19 years post-diagnosis, this is still so helpful to hear. most of my symptoms are these type--not the usual obvious motor symptoms. this is a very good summary!! THANKS!
Wow! Every word was helpful and hopeful! You spoke to me as the caregiver and to my husband as the patient. Without knowing it, you even described our first-and less than competent-neurologist. Please keep these coming. Thank you for informational and encouraging words.
Thank you so much for this -- and I will say, it's not just Parkinson's. I have MS and while I was diagnosed only five years ago, I have had symptoms for nearly thirty years (I'm 52) and almost all of them haven't been motor but cognitive and emotional and other non-motor physical symptoms. It took a motor symptom (a numb leg) after years of other issues and being told it was all in my head to finally get an MS diagnosis. And although I currently have excellent care and medical support from the best in the region, these top-end experts still don't really recognize anything beyond the motor symptoms. So thank you and please keep spreading the word.
Good point! So many conditions have lesser-known and under-recognized symptoms. These can often be among the most complicated to navigate--in part because they're harder to see. We're glad you found value in this video. Thanks for watching and for your comment!
I was diagnosed five years ago at 66 years old. In those five years this is the first time I've seen an article dealing with "other" symptoms. I was beginning to think I had something else entirely. Thank you so much for all of your hard work and the details you've included. 7:32
Pretty much everything which largely eats up my time, besides just what all I need to get done. Whatever my body is doing interrupts me continuously. A larger problem to me seems to be a culturally developed set of unrealistic social expectations that are more and more off the rails every day, for just everyone whether they are chronically ill or not. The demands are more than 25 times as much in my estimation
Some say I have Parkinson some say MSA....all my test are on the fence .....how do I know....symptoms tell nothing I have the same for both evidently...... Anyone have any insight?
Thanks for your message. Distinguishing between MSA and Parkinson's is challenging. We have a blog post that may be helpful: davisphinneyfoundation.org/multiple-system-atrophy/
19 years post-diagnosis, this is still so helpful to hear. most of my symptoms are these type--not the usual obvious motor symptoms. this is a very good summary!! THANKS!
Wow! Every word was helpful and hopeful! You spoke to me as the caregiver and to my husband as the patient. Without knowing it, you even described our first-and less than competent-neurologist. Please keep these coming. Thank you for informational and encouraging words.
We're so glad you found this episode helpful. Dr. Hamilton is insightful and we hope to bring her back for another talk soon!
Very well done! It's hard to find those words... I know.
Thank you😊
Thank you so much for this -- and I will say, it's not just Parkinson's. I have MS and while I was diagnosed only five years ago, I have had symptoms for nearly thirty years (I'm 52) and almost all of them haven't been motor but cognitive and emotional and other non-motor physical symptoms. It took a motor symptom (a numb leg) after years of other issues and being told it was all in my head to finally get an MS diagnosis. And although I currently have excellent care and medical support from the best in the region, these top-end experts still don't really recognize anything beyond the motor symptoms. So thank you and please keep spreading the word.
Good point! So many conditions have lesser-known and under-recognized symptoms. These can often be among the most complicated to navigate--in part because they're harder to see. We're glad you found value in this video. Thanks for watching and for your comment!
I was diagnosed five years ago at 66 years old. In those five years this is the first time I've seen an article dealing with "other" symptoms. I was beginning to think I had something else entirely.
Thank you so much for all of your hard work and the details you've included. 7:32
Pretty much everything which largely eats up my time, besides just what all I need to get done. Whatever my body is doing interrupts me continuously. A larger problem to me seems to be a culturally developed set of unrealistic social expectations that are more and more off the rails every day, for just everyone whether they are chronically ill or not. The demands are more than 25 times as much in my estimation
Some say I have Parkinson some say MSA....all my test are on the fence .....how do I know....symptoms tell nothing I have the same for both evidently......
Anyone have any insight?
Thanks for your message.
Distinguishing between MSA and Parkinson's is challenging. We have a blog post that may be helpful: davisphinneyfoundation.org/multiple-system-atrophy/