Happy subscriber 🎉 Thanks for the video. I hope you keep sharing your insights on neurodivergence. I'm just starting to come to terms with this in my own life.
I'm so happy this helps! There are so many waves to process and I wish you the best and compassion for yourself as you discover new ways to embrace all of your human experience. Thank you for commenting
Oh my God, 2 minutes into your video and i just related to one of the most frustrating thing in my life, i'm not diagnosed yet btw planning to when i get the money which may be never btw. Anyway at 2:23 you talked about hating to speak sometimes because you speak inaudibly and have to speak on each syllable, and that's something i have struggled with since forever i don't know the cause or why it happens but it's so frustrating because it makes speaking a double effort, i have to say a sentence twice because the first one sounded like someone rapping in a coma.
I appreciate you so much for sharing. The syllable thing I think has so much to unpack with the brain, linguistics, and words just being collections of rather arbitrarily assigned sounds with multiple meanings able to be interpreted, which in the fear of not being misunderstood creates a lot of data flooding the brain and the coordination can get challenging. At least that's what happens for me, except when I'm speaking on a technical nerdy passion where word choice and interpretation is clear for me or if I'm in a presenter mode, which isn't the real me. Letting this side come out, I've had to release the shame around having awkward conversational speech by practicing being vulnerable and then nurturing and self-caring as soon as my nervous system is starting to max out. Also I hear you about diagnosis and you're self-diagnosis is valid. University of Washington autism research center even posted on LinkedIn that self-diagnosed autistic adults are basically correct. The diagnostic system itself is very flawed and the whole system is practically inaccessible and invalidating to neurodivergents, plus why would we make this up if we didn't have to deal with it lol. Basically when I have to go to see even a regular doctor I lead with "I'm autistic so I'm very confusing and overwhelmed right now can you please help me" (tbh I'm usually already crying by this point) to every person I interact with and sometimes they can refer you to someone in network, but it's brutal. The book i referenced (what I mean when i say I'm autistic) has a lot of well written thoughts about why self-diagnosis is valid and challenges of access. All the best and thank you for sharing.
@@NikolinaLawless oh yeah i do know about the research that came out and as much as i know that self diagnosis is valid inside imposter sydrome just fulls my mind and heart on a daily basis and on the topic of syllable, it happens to me mostly with words with alot of syllables(3 or more, not definite), anyway honestly would love to see an explanation to this somewhere, i do also have dyslexia so that's something
@@jceedunsin4972 this lecture by temple grandin at some point gets into dyslexia as far as what's happening in the brain and while I remember if she has a solution, she at least has some advice on what makes it worse to avoid based in environment that exacerbates it. ruclips.net/video/MWePrOuSeSY/видео.html
@@jceedunsin4972 thank you for your encouragement that means a lot. I'm trying to get to posting more while finding a balance with my regulation needs, but interactions like this really give me the strength to keep sharing. Thank you again for your input and sharing your experiences. I know the more people see others like them going through similar things (including your comments), the more supported we all feel in the world
Books you can try on your get to know yourself journey : Uniquely Human - Barry M.Prizant How to be autistic - Charlotte Amelia Poe But you dont look autistic at all - bianca toeps Autism feels - Orion Kelly Untypical - Pete Wharmby PDA by PDAers compiled by Sally Cat Autism in Heels Jennifer Cook O´Toole Unmasked - Ellie Middleton I overcame my autism - Sarah Kurchak Pretending to be Normal - Liane Holliday Willey Navigating Autism - Temple Grandin Unmasking Autism - Dr Devon Price Different not Less - Chloe Hayden Neurotribes - Steve Silberman The reason I jump - Naoki Higashida Asperger´s Children - Edith Sheffer The Autistic Brain - Temple Grandin How Emotions are Made - Lisa Feldman Barrett Fall down 7 times Get up 8 - Naoki Higashida The Well-lived Life - Dr Gladys McGarey - not about autism but really worth reading In a different key - John Donvan+Caren Zucker Loud Hands - ASAN Emergence Labeled autistic - Temple Grandin Send in the idiots - Kamran Nazeer Far from the tree - Andrew Solomon has its Autism chapter Power of Neurodiversity - Thomas Armstrong Thinking in Pictures - Temple Grandin Nobody´s normal - Roy Richard Grinker Aspergers syndrome - Tony Attwood Divergent Mind - Jenara Nerenberg The way I see it - Temple Grandin Hope it helps 🙂
Wow! I love this list!! Thank you! I’ll share it along as well when people ask me. I love Temple Grandin too (I watch her lectures and her movie was a thoughtful illustration as an artistic mode to present engaging awareness aspects, she seems proud of it and references it regularly so I definitely recommend it but I’m sure you’ve seen it!) I’ve also started pretending to be normal. I’ve had to try to find new ways to read (audiobooks being easiest) since reading words can be sensory challenging for me - I’ve been trying out speechify to help get me started when I’m in non-reading inertia as well as doing stretches and moving around as I read with a physical copy (usually four pages printed to a single page so I can absorb context of what’s coming more quickly plus the kinesthetic brain activation. Thank you for all of your feedback!
Thank you for this! Im just sitting here going same same same lol Figuring out why my brain and body work the way they do is so comforting! I ordered the book from amazon and I have also been listening to "Unmasking Autism" By Devon Price which ive been going same same same to as well xD It makes me feel less alone to know others went through the rough stage of life without knowing something was going on and then the moment you find out everthing kinda clicks and its easier to breathe and live knowing theres nothing wrong with me its just the way my brain is and there are ways to drop the mask and really be myself even though im still having a tough time dropping the mask around new people and my work bosses and what not but im working on it! I hope you and whoever reads this has a great day
thanks for sharing your experience and that book recommendation as well! I totally resonate with that shadow to light clicking moment. I found in my research, ironically, that the best sources of information are from other people online going through the same things as medical research and understanding of adult masked autism is so behind, plus what resources?, that online mind melds sometimes provide the best context as we transition. I still have a long was to go too. Glad this helped! It's terrifying for me lol.
Happy subscriber 🎉 Thanks for the video. I hope you keep sharing your insights on neurodivergence. I'm just starting to come to terms with this in my own life.
I'm so happy this helps! There are so many waves to process and I wish you the best and compassion for yourself as you discover new ways to embrace all of your human experience. Thank you for commenting
Oh my God, 2 minutes into your video and i just related to one of the most frustrating thing in my life, i'm not diagnosed yet btw planning to when i get the money which may be never btw. Anyway at 2:23 you talked about hating to speak sometimes because you speak inaudibly and have to speak on each syllable, and that's something i have struggled with since forever i don't know the cause or why it happens but it's so frustrating because it makes speaking a double effort, i have to say a sentence twice because the first one sounded like someone rapping in a coma.
I appreciate you so much for sharing. The syllable thing I think has so much to unpack with the brain, linguistics, and words just being collections of rather arbitrarily assigned sounds with multiple meanings able to be interpreted, which in the fear of not being misunderstood creates a lot of data flooding the brain and the coordination can get challenging. At least that's what happens for me, except when I'm speaking on a technical nerdy passion where word choice and interpretation is clear for me or if I'm in a presenter mode, which isn't the real me. Letting this side come out, I've had to release the shame around having awkward conversational speech by practicing being vulnerable and then nurturing and self-caring as soon as my nervous system is starting to max out.
Also I hear you about diagnosis and you're self-diagnosis is valid. University of Washington autism research center even posted on LinkedIn that self-diagnosed autistic adults are basically correct. The diagnostic system itself is very flawed and the whole system is practically inaccessible and invalidating to neurodivergents, plus why would we make this up if we didn't have to deal with it lol. Basically when I have to go to see even a regular doctor I lead with "I'm autistic so I'm very confusing and overwhelmed right now can you please help me" (tbh I'm usually already crying by this point) to every person I interact with and sometimes they can refer you to someone in network, but it's brutal.
The book i referenced (what I mean when i say I'm autistic) has a lot of well written thoughts about why self-diagnosis is valid and challenges of access. All the best and thank you for sharing.
@@NikolinaLawless oh yeah i do know about the research that came out and as much as i know that self diagnosis is valid inside imposter sydrome just fulls my mind and heart on a daily basis
and on the topic of syllable, it happens to me mostly with words with alot of syllables(3 or more, not definite), anyway honestly would love to see an explanation to this somewhere, i do also have dyslexia so that's something
@@jceedunsin4972 this lecture by temple grandin at some point gets into dyslexia as far as what's happening in the brain and while I remember if she has a solution, she at least has some advice on what makes it worse to avoid based in environment that exacerbates it. ruclips.net/video/MWePrOuSeSY/видео.html
@@NikolinaLawless thanks for recommending!! You've earned a subscriber, would love to see your videos in the future
@@jceedunsin4972 thank you for your encouragement that means a lot. I'm trying to get to posting more while finding a balance with my regulation needs, but interactions like this really give me the strength to keep sharing. Thank you again for your input and sharing your experiences. I know the more people see others like them going through similar things (including your comments), the more supported we all feel in the world
Books you can try on your get to know yourself journey :
Uniquely Human - Barry M.Prizant
How to be autistic - Charlotte Amelia Poe
But you dont look autistic at all - bianca toeps
Autism feels - Orion Kelly
Untypical - Pete Wharmby
PDA by PDAers compiled by Sally Cat
Autism in Heels Jennifer Cook O´Toole
Unmasked - Ellie Middleton
I overcame my autism - Sarah Kurchak
Pretending to be Normal - Liane Holliday Willey
Navigating Autism - Temple Grandin
Unmasking Autism - Dr Devon Price
Different not Less - Chloe Hayden
Neurotribes - Steve Silberman
The reason I jump - Naoki Higashida
Asperger´s Children - Edith Sheffer
The Autistic Brain - Temple Grandin
How Emotions are Made - Lisa Feldman Barrett
Fall down 7 times Get up 8 - Naoki Higashida
The Well-lived Life - Dr Gladys McGarey - not about autism but really worth reading
In a different key - John Donvan+Caren Zucker
Loud Hands - ASAN
Emergence Labeled autistic - Temple Grandin
Send in the idiots - Kamran Nazeer
Far from the tree - Andrew Solomon has its Autism chapter
Power of Neurodiversity - Thomas Armstrong
Thinking in Pictures - Temple Grandin
Nobody´s normal - Roy Richard Grinker
Aspergers syndrome - Tony Attwood
Divergent Mind - Jenara Nerenberg
The way I see it - Temple Grandin
Hope it helps 🙂
Wow! I love this list!! Thank you! I’ll share it along as well when people ask me. I love Temple Grandin too (I watch her lectures and her movie was a thoughtful illustration as an artistic mode to present engaging awareness aspects, she seems proud of it and references it regularly so I definitely recommend it but I’m sure you’ve seen it!) I’ve also started pretending to be normal. I’ve had to try to find new ways to read (audiobooks being easiest) since reading words can be sensory challenging for me - I’ve been trying out speechify to help get me started when I’m in non-reading inertia as well as doing stretches and moving around as I read with a physical copy (usually four pages printed to a single page so I can absorb context of what’s coming more quickly plus the kinesthetic brain activation. Thank you for all of your feedback!
Thank you for this! Im just sitting here going same same same lol Figuring out why my brain and body work the way they do is so comforting! I ordered the book from amazon and I have also been listening to "Unmasking Autism" By Devon Price which ive been going same same same to as well xD It makes me feel less alone to know others went through the rough stage of life without knowing something was going on and then the moment you find out everthing kinda clicks and its easier to breathe and live knowing theres nothing wrong with me its just the way my brain is and there are ways to drop the mask and really be myself even though im still having a tough time dropping the mask around new people and my work bosses and what not but im working on it! I hope you and whoever reads this has a great day
thanks for sharing your experience and that book recommendation as well! I totally resonate with that shadow to light clicking moment. I found in my research, ironically, that the best sources of information are from other people online going through the same things as medical research and understanding of adult masked autism is so behind, plus what resources?, that online mind melds sometimes provide the best context as we transition. I still have a long was to go too. Glad this helped! It's terrifying for me lol.