I had a long-distance friend who had mitochondrial disease. We met online, and we talked about once a week for nearly two years, until one day, I stopped hearing from her. Then I googled her name one day, a year later, and found out that she’d died from her mitochondrial disease. She apparently passed peacefully in her sleep. I knew that she was in bad health, and she had mentioned that she couldn’t work or go to school because of her condition, but she never told me what it was. RIP Sarah. I hope one day, we can read fanfiction together again, in another life.
In my role as a special education teacher in the early 90's, I worked with a child with this disease. She was delightful, happy, intelligent, curious and hungary for every bit of knowledge she could access. As she grew, she slowly lost her ability to move independently, as well as the disease affecting sight and hearing but this did not affect her zest for life. She had the most wonderful parents and brother who supported her in any way they could. I retired in the late 90's as she moved onto high school and I moved to another province. This the 1st time I have every heard about this disease outside of the amazing child I worked with. I pray everyday that research can assist children with this disease lead a full and active life. Thank you for sharing this video.
Try pre-mastication. Any mitochondrial disorder will have missing enzymes, and incomplete digestion. Pre-mastication can replace those missing enzymes with a healthy donor's saliva in the food.
My niece die:( also had this.. she was born healty and then after two month she started to have seizure:( She was three years old and extremly sick. Wish you all the best
I had a long-distance friend who had mitochondrial disease. We met online, and we talked about once a week for nearly two years, until one day, I stopped hearing from her. Then I googled her name one day, a year later, and found out that she’d died from her mitochondrial disease. She apparently passed peacefully in her sleep. I knew that she was in bad health, and she had mentioned that she couldn’t work or go to school because of her condition, but she never told me what it was.
RIP Sarah. I hope one day, we can read fanfiction together again, in another life.
In my role as a special education teacher in the early 90's, I worked with a child with this disease. She was delightful, happy, intelligent, curious and hungary for every bit of knowledge she could access. As she grew, she slowly lost her ability to move independently, as well as the disease affecting sight and hearing but this did not affect her zest for life. She had the most wonderful parents and brother who supported her in any way they could. I retired in the late 90's as she moved onto high school and I moved to another province. This the 1st time I have every heard about this disease outside of the amazing child I worked with. I pray everyday that research can assist children with this disease lead a full and active life. Thank you for sharing this video.
Thank you for contributing help to children with special needs 🙏
My grandson and granddaughter have mito. They are doing wonderful.
Sending positive thoughts. What a beautiful family. Thanks for sharing to help others.
Am so glad you've moved to the Seattle area! THAT has probably saved your little boy's life AND your family life together!!
God bless you Caylum 🙏
What a cutie pie 😊God Blessed you 😍
My 5 year old nephew is being tested for this now he’s been having seizures for 4 weeks 🙏🏽
Jesus still heals today! My family have all been healed!
My 5 year old nephew is being tested for this now he has been having seizures for 4 weeks.
Hi God bless you to all your family love you
Beautiful guy 🤗
Try pre-mastication. Any mitochondrial disorder will have missing enzymes, and incomplete digestion. Pre-mastication can replace those missing enzymes with a healthy donor's saliva in the food.
My niece die:( also had this.. she was born healty and then after two month she started to have seizure:(
She was three years old and extremly sick.
Wish you all the best
My son’s name is CaylEm but pronounced the same he is 15 yrs now
They spelt his name wrong they meant Callum
They know how to spell their own child's name. FFS