Rock Hill baby battles rare genetic condition

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  • Опубликовано: 22 окт 2024

Комментарии • 74

  • @Hottool365
    @Hottool365 Год назад +10

    You can tell how much she loves her baby. I hope that they get all the support they need❤

  • @nadiabutcher6232
    @nadiabutcher6232 4 года назад +34

    I’m 8 months pregnant an my unborn is diagnosed with trisomy 8 I’m prepared but scared ❤️ prayers for us moms ... this is very new to me! But god has my family just ready to met my baby boy 🤍🤍🤍🤍

  • @TaraRosado1998
    @TaraRosado1998 4 года назад +16

    Awww, he is the most adorable little baby boy, such a sweetheart!!! 😍

  • @crystalhaataja304
    @crystalhaataja304 3 года назад +10

    Such a sweet baby, who is obviously happy and loved. I don't understand the rude comments on here...

  • @rebeccabradshaw8911
    @rebeccabradshaw8911 5 лет назад +13

    What adorable kids you both have. She like a mother when to him. Bless her, and he is so feisty which will be in his favor. He's a doll. He's lucky to have been placed in this family, with such wonderful parents. God bless you all.

  • @annacaiazza8869
    @annacaiazza8869 5 месяцев назад +3

    He is a beautiful boy and he is very happy and lively and he is very loved 🥰
    Your daughter is also a sweetheart and how she loves her brother ❤
    May God’s blessings and protection be upon you and I will keep your family in my prayers ❤

  • @moniquem6667
    @moniquem6667 3 года назад +17

    I’m curious how he’s doing. I would love to see an updated video. I have a daughter that’s nine months old with the same genetic disorder.

    • @eloquentia7207
      @eloquentia7207 Год назад +6

      Just found out from an online search that Triton passed last month (May 2023), aged 8. So sorry for his parents...

  • @kingofcatskingofcats168
    @kingofcatskingofcats168 4 года назад +9

    Shes a loving mother that is pure speechlessness priceless ❤ 💖 💕 💗 💙

  • @xohellalovexo
    @xohellalovexo 3 года назад +5

    Such a sweet baby . Thank you for sharing . My baby is 10 months old and has 18q- . We are also new parents and learning day by day . The unknown is scary

  • @dawndouglas922
    @dawndouglas922 4 года назад +8

    What a happy little boy- such a cutie

  • @janetpitts7302
    @janetpitts7302 2 года назад +7

    Oh my, what a beautiful baby!! God bless him!!

  • @19th-Nervous-Breakdown
    @19th-Nervous-Breakdown 5 месяцев назад +2

    Sad to hear that he died at age eight. It's such a rare disorder that it was hard to predict how long he might live. At least his loving parents got to spend some time with him before he passed. RIP.

  • @louderthanwordsInclusivity
    @louderthanwordsInclusivity Год назад +4

    We are from SC and my son has Trisomy 9p, a 3rd cytoband (24.3) of one arm of the 9nth chromosome, he has level 3 Autism, IDD, Severe feeding disorder on all liquid diet, balance issues, seizure disorder, significant fine motor delay, and they are testing to make sure he doesn't have a cardiac cause for his siezures

  • @soaringkite2673
    @soaringkite2673 2 года назад +8

    He’s beautiful!

  • @poohbeared40
    @poohbeared40 Год назад +7

    My granddaughter has Trisomy 9. She is now 4 yrs old, but she needs quite a bit of care and she has had many surgeries.

  • @linm9598
    @linm9598 Год назад +1

    You have beautiful children & I wish you all well for the future.
    You are doing a great job! I 🇬🇧💜👏

  • @NYCgirl927
    @NYCgirl927 3 года назад +6

    How is this cute kid doing. I hope well

  • @bexnmoo
    @bexnmoo 6 лет назад +8

    Good luck!! He's lovely by the way

  • @Chodie4Life
    @Chodie4Life 3 месяца назад

    He’s a beautiful joy filled baby. Aww. Him such a cutie.

  • @janetcox5748
    @janetcox5748 12 дней назад

    ❤ God Bless this beautiful family ❤

  • @kat.699
    @kat.699 7 месяцев назад +1

    He's really cute, hope he grows up heathy ❤

  • @carolindorotheemcgroarty620
    @carolindorotheemcgroarty620 6 месяцев назад

    Such a very cute baby! Precious. The big sister is too, of course.

  • @kingofcatskingofcats168
    @kingofcatskingofcats168 4 года назад +5

    Praying to you my lady and your lad keep your prayers on the behalf of this going and continue to believe in our enchanting redeemer Jesus christ .🙏

  • @Horsewoman725
    @Horsewoman725 Год назад +2

    So so so cute!!!

  • @lindamarie6574
    @lindamarie6574 6 месяцев назад +1

    He is so cute!❤

  • @JoeGoodman-ml4qk
    @JoeGoodman-ml4qk 7 месяцев назад +1

    Great mama and daddy.

  • @donnagallt3145
    @donnagallt3145 Год назад +3

    Omg my daughter has trisomy 9p duplication we have had 2 surgeries on her legs she started walking at 5. And she just turned 18 very difficult to find information about it

    • @fatimabekri5084
      @fatimabekri5084 Год назад

      How is your daughter doing?
      What about her learning abilities?
      May Allah provides you with strength

  • @NayNay4life175
    @NayNay4life175 4 года назад +8

    I know a full grown man with this...it's really sad. He doesn't really fit in anywhere & he's intelligent enough to know it. Not a good life unfortunately.

    • @spiralrose
      @spiralrose Год назад

      🥺

    • @annacaiazza8869
      @annacaiazza8869 5 месяцев назад

      What the hell is wrong with you !!! You are the one that is damn shame and pitiful!!!

  • @lindadoherty9176
    @lindadoherty9176 16 дней назад

    He’s happy thank to you both

  • @rachelsnyder5510
    @rachelsnyder5510 Год назад +2

    Cute baby

  • @jimmythevoice8716
    @jimmythevoice8716 5 лет назад +1

    all the best to you 3 xo. was looking for info on Trisomy six ? anyone please .

  • @dahby2724
    @dahby2724 Год назад +3

    Big sister is going to have his back

  • @hilarymeyerov2934
    @hilarymeyerov2934 5 месяцев назад

    He is very cute

  • @blossom1643
    @blossom1643 2 месяца назад

    It’s a cute baby. I don’t see anything wrong with it (?) some people just “Borrow Trouble”.

  • @dahby2724
    @dahby2724 Год назад +1

    Angel's ok n Earth

  • @brendaseager7371
    @brendaseager7371 Год назад +1

    It sounds like most symptoms are minor and I think he will live to be of a normal age. You are so lucky he has such a minor appearance of how this chromosome effects him

    • @elliesouza717
      @elliesouza717 5 месяцев назад

      I think it's pretty callous to minimize her blindness

  • @joycehebda5274
    @joycehebda5274 5 лет назад +1

    They should have known before he was born with the ultrasounds they didn't detect anything poor baby he's so cute though

    • @crystalhaataja304
      @crystalhaataja304 3 года назад +2

      Ultrasounds aren't fool proof. They misdiagnose all the time and they also miss things all the time. He seems happy. His parents love him. Not really important at this point

    • @chloeshann8142
      @chloeshann8142 Год назад +1

      @@crystalhaataja304 Not accurate. Things aren't missed "all the time". Not everything can be visualized by ultrasound... big difference

    • @chloeshann8142
      @chloeshann8142 Год назад +1

      Not everything is apparent by ultrasound

    • @SapphirasMama
      @SapphirasMama Год назад +1

      They can only detect so much, especially if the type of Trisomy, that is being looked at is extremely rare. In this case there is only over 100 people so far diagnosed. Also, his features on ultrasound may seem somewhat normal and is not noticed until immediately after birth that this is not the case and are in fact abnormal.

    • @elliesouza717
      @elliesouza717 5 месяцев назад

      ​@@crystalhaataja304they don't "misdiagnose all the time", but there are things that cannot be seen

  • @jordyd4
    @jordyd4 8 лет назад +4

    its never acceptable to act on the respiratory actions of a child when he does not need it, it can cause a lot of damage to the child lungs. you need to be really careful when breathing into him like that, thats really harmful. i would appreciate your fed back for your sons well being.. you are doing him harm.

    • @annacaiazza8869
      @annacaiazza8869 5 месяцев назад

      Who the hell are you to tell them how to take care of their sick baby! They already know! Plus you are no fucking doctor to give any medical advice! Crazy idiot!

  • @cynthiawhite5040
    @cynthiawhite5040 Год назад +1

    Okay tell us something good about him everything wrong with him

    • @elliesouza717
      @elliesouza717 5 месяцев назад +1

      You kinda missed the point

    • @annacaiazza8869
      @annacaiazza8869 5 месяцев назад

      You suck !!! Everything is beautiful about him and if you can’t see that then you are more stupid!!! I think you are the one who has something wrong!!!

  • @cindywhite4485
    @cindywhite4485 2 года назад +1

    What is wrong with her??

    • @chloeshann8142
      @chloeshann8142 Год назад +3

      Read the description and watch the video.

    • @billyJessica1126
      @billyJessica1126 Год назад

      It's a boy 💙

    • @bconsilio3764
      @bconsilio3764 Год назад +4

      I second the other2 comments and will tell it is Very Rude to ask that question!! Children who are born with medical conditions and disabilities are not born wrong! Parents willing to be vulnerable and share their child’s needs deserve much more respect. Please think of a better way to ask for information AFTER you have watched the video and read comments. Parents don’t need to read questions like yours repeatedly when you can use your intellectual abilities to avoid rubbing it in their face that you think their child is broken!!

    • @hilarymeyerov2934
      @hilarymeyerov2934 5 месяцев назад

      Nothing

    • @annacaiazza8869
      @annacaiazza8869 5 месяцев назад

      @@bconsilio3764 true