Really? What is the benefit of Georgia in this? Is this a life you would wish for your child? People don't see beyond their newborn being helpless in a diaper. It would break my heart if I would allow my daughter to live like this.
The thing is govt is mostly responsible for the problems we have today. Yet charge outrageous prices for Healthcare. With that being said, a lot of people have children when not fully stable or prepared for all of the possibilities that may happen
@@drewmoore365 It's as you know, not only gov..... But the cards are stacked. Between the so called health industry & many man made created toxins / gene & endocrine disruptors, just for starters. While many think it's no big deal or factor; but plays a huge roll in developmental risk issues.
@@lotuspocus76312Not a great look dude. That’s a vile comment to make and a vile worldview, fyi. I don’t know why you watch this channel, but it’s really not the place to suggest you know more than the families, doctors, etc. who are actually involved. I think it reflects poorly on you, whether you’re coming from a genuine place or just trying to troll. This channel gives people an opportunity to share their or their loved one’s stories on a fairly public platform. Everyone’s life is different. Do you think asking sincere questions and listening to the replies, not just arguing, could be a little more beneficial? Unless you’re just intending to be rude and pass judgement, which doesn’t feel appropriate here.
That's people for you, ofcourse not all of them (I mean, it takes a lot of nerve to even say that out loud to someone, so it's a type of person), but unfortunately judging seems to be in all of us.
It is devastating. How do we think WE get to make the decision on who should or should not live. Each person has their own experience living, whether good or bad. Just because you are uncomfortable with the idea of you being in that way doesn't mean that person is u happy at all. They can only know their experience as we can only know ours. All else is left to imagination which is all limited. Bless that beautiful child and I pray she continues receiving all the love. Her mother seems wonderful from this snippet of a video.
Yes! He meets everyone where they need to be met. And in return everyone feels so safe around him. It's both a gift and a well-honed skill. He is wonderful. ❤
@@isaacheres1354it’s been a few years since I’ve met him but he interviewed one of my friends and I briefly met him then before he interviewed Liz (her interview is on her as well)
I can’t imagine giving birth to a child with special needs and then being accused of doing drugs. God bless this strong momma who has stayed strong for her baby.
I am sure they have a list of routine questions they ask in these situations, but they should be sensitive to the families and reassure them it is routine follow-up.
@@nightyew2160it is. Because they have to rule those things out, and some women are ashamed and aren’t always up front about it. In hindsight, we know it did end up being a genetic condition, so it sounds like a kind of foul thing to say, but in reality, it is such a rare condition and at the time, trying to rule out everything else, the possibility of it being from substance use related pathogens probably seemed ten times more likely. You can’t not ask those questions and explore the possibility out of fear of offending the mother if you’re wrong, but risk not being able to save a baby’s life, if that had been the case
I'm a doctor and I would never EVER let the receptionist call my patient and tell them a diagnosis like this. It's absolutely OUTRAGEOUS, and that word is way too mild for my indignation. You didn't deserve that and I truly hope you found a good pediatrician after this
@@FierceGeorgiaOnMyMind I'm so glad to hear that!! Wow that's wild indeed that he's still doing his business... But happy to hear you found a great ped 🤗 Will never get used to stories about doctors who don't care about their patients feelings or situation
As a medical receptionist myself, my jaw DROPPED. If my doctor asked me to relay most any diagnosis over the phone I would be shocked, much less something to this degree of severity.
We were also told over the phone to write down our daughter’s rare diagnosis, without any explanation other than ‘it’s bad, the genetic counselor will explain it’. We then of course had to Google it and it turned out the most awful, fatal disease. We didn’t get to talk to genetic counselor till days later and there was no follow up. We now have a much more supportive medical team, but 4 years later this memory can still make me tear up.
I cannot believe the things her mom had to listen to during and after pregnancy. BELIEVE a patient when they say somethings wrong. WE know our bodies best. Sometimes you have to scream to be heard 💔
Thank you! Some doctors have the mentality that they are smarter and better than their patient. They will not listen when you tell them something’s not right. They do a lot of gaslighting.
Problem is that in the majority of times there's nothing wrong, even if the patient thinks so, that's just the daily experience for them. This condition for example is incredibly rare, so for a doctor to notice that if it's not super clear, can be hard. Doctors are people, unfortunately they deal with health so every little mistake or misdiagnosis is magnified 1000x. If a doctor is clearly not fit for the job or basically a criminal, sure that's something to deal with, otherwise I have the greatest respect for them.
@@VincentGroenewoldNormally I would agree, but in this case I think they should have at least been able to pick up on the fact that she was not going to be born at 8 pounds. I am sure some of the questions, like "Were you out of the country?" are just routine, but blaming it on drugs when she had clearly been cautious going into the ER ten times makes it sound like they're just trying to find a way to deflect blame away from themselves. Also, just having her Google Trisomy 18 is really harsh. Personal interaction with someone with a decent bedside manner could have made a big difference for them.
I know that makes me sad and angry. Also, just telling her to just google trisomy is very insensitive. They should have had her come in instead of just making a phone call and offered the services of a genetist.
In all the videos, people say, "Just come over and say hi." It sounds so simple... I really try to put that into practice in my everyday life. Thank you so much for producing and sharing these interviews; they touch me every time. Georgia and her mom are fighters!
You’re channel gives me hope for humanity. Thank you for everything you and your wife do for these kids. They’ll remember your compassion for the rest of their life.
I really appreciate that Chris always asks what we should do or say if we meet these families or want to become friends. That they consistently answer---- to simply treat their son or daughter like anyone else, to just say hello---- has meant a lot to me personally. After reflecting on this, I feel more confident and able to interact with everyone, honestly. I'm looking forward to sharing the stories on this channel with my young kids. Thank you Georgia, Georgia's Mama and Chris for making this world a more liveable place for everyone.
At a funeral I saw a woman in a wheelchair who had dyed her hair a vibrant blue, so I went up to her and told her I liked her hair. Watching this channel gave me the courage to do that. Otherwise I might have been too shy. Everyone is different, and not everyone may want to be approached by strangers, but people who choose blue hair probably don't mind being noticed.
Hello everyone, I am an adult with Edwards Syndrome or Trisomy 18 and although it’s a complicated disability, but always cherish all the things your children can accomplish on their own. The world we live in is always about what everyone does in society! Always stay positive! Everyone is unique!
Hello, sure not a problem; I will be 33 this month on the 29th and the information online states what Georgia’s mom has explained and that Chris has done a video of Trisomy 18 previously. I searched online that there’s two females who are nonverbal; however, one is wheelchair bond in her 40’s and a mom from Texas started a program called “The Chromosome 18 Registry & Research Society,” for her daughter.
Georgia, it was so amazing to get to meet you through your very own video! You’re so adorable in your cute little dress, and we’re all so very proud of you. We love you so much, and we’re also incredibly thankful you have a mother that loves you unconditionally.
I have a similar story with my daughter who has a partial trisomy (massive duplication) on one of her 14th chromosome. She's also small for her age and I always tell people she's tea cup sized. Thank you for sharing sweet Georgia's story.
Thank you for sticking up for your kid, you are an awesome mum! Also, it's good to know that parents with disabled children would much rather have people come over and say hi instead of avoiding contact. Heard that same response on many other videos on this channel. Thank you Chris for educating me!!
Your mum is amazing dear Georgia, I hope you keep staying strong for Georgia.. I can't imagine how it's like to have to have a baby so fragile and needing so much help.. it's so overwhelming to stay on top of all those diagnoses.. Georgia I hope you can feel all the love you are surrounded with you are blessed and you are a blessing ❤
Read the description, and its absolutely heartbreaking to hear that people say that about her... I see it alot on instagram especially. People dont understand that these people are still enjoying life as anyone else does, and they have every right to continue. Its not AT ALL selfish to keep them alive, they are just like any other child who needs support.
I wanted to scream when mom said what the peds office did. How are these people still working? Horrible! I can't imagine the pain and being scared for their baby! I hope this sweet girl and her family have a wonderful, long life together.❤❤
God made you perfect Georgia! What a cutie you are & just LOVE your laugh! The medical world makes me sick to my stomach. My heart broke for what you had to hear & learn on your own. I enjoyed hearing about Georgia's story! I have a 5yro in my church that I am her buddy. She is very active but has a lot of the same things Georgia dose. Her parents have had so much hardship in even getting my little lady diagnosed. This is a new hope for them. I also have a T21 grandson. He too is perfect as God created him! He is a joy in our family! Prayers & many blessings to Georgia & her family!
Thank you for this. Her laughter is precious. My brother passed away with Trisomy 13 several years ago. Up until this point, trisomy 13 and 21 were the only ones I knew about.
I have learned from watching videos on RUclips that the parents are the ones who spend all the time with their child and therefore they see how the child develops, learns, etc… I honestly used to think that parents were in denial and couldn’t face that their child was not having any quality of life. Thanks to this channel and others for helping us learn. 😊 PS… Georgia is adorable !!
As a doula I’m sickened to hear how this amazing Mum was initially blamed and questioned by medical carers. This is abhorrent, Compounding an already traumatic experience and circumstance. I thank her for speaking out about this to educate medical carers. We must do better! What a beautiful, bright, lovely, daughter and wonderful, dedicated, articulate and advocating Mum❤
What a beautiful young lady, when I seen her smile and laugh that proves she is certainly like any other little girl. I'm happy to see she was born to a loving family. God bless them. ❤
🌷Georgia's giggle is so cute! Made my day! 🌷She's perfect just the way she is. She's uniquely her own person, with abilities that might look a bit different than everybody else, but are abilities nevertheless. 🌷She's obviously got a sweet sense of humor. When Chris hid the ball her reaction was adorable.😊 You could tell she was thinking - those wheels were turning. Probably thinking, "It was here a second ago. Where is it?!🤔" 🌷Georgia is happy, healthy, and living her best life.💖
I'm so sorry they didn't listen to your concerns then tried to blame you. I had lost my last pregnancy. The week before I kept saying something is wrong... they just kept listening to the heart saying sounds strong. That child died the following week. Seeing Georgia makes me happy that she is a fighter!!!!!
The fact that in the description its said that people sometimes say to her mom that ''It's selfish to keep her alive'' is insane. Those people are legitimately uncultured, if they had a child like Georgia they would do their best to keep her alive. The nerve of some people.
@@rathersleepthanstayawakezzz I think about all the resources (trouble and money) that are wasted on keeping people alive who are so uneducated and ignorant that they would say something like that.
To me, it's a totally thoughtless thing to say. Some people are so immersed in the culture of death that they expect parents to murder or neglect their own child if she happens to be born with a disability. Really, even parents who are just putting in the legal minimum wouldn't do those things, so if you would say something like that to parents who actually love their kids, you clearly didn't think your opinion through.
Wow.. 2 minutes ago! she is the most awesome person i have ever seen. ^^ Much love to her! Thank you for starting this. I am always delighted to watch your videos and watch these awesome kids. Im sure they will remember you for a while! ❤🎉
I have been watching you Chris with these special needs Kids and Adults. Makes me proud to see you interact with them and bring them joy. I have a special needs grandson.
Georgia is so adorable! That crooked little smile lights up her face. It's really aggravating when so called experts fail to LISTEN to their patients. That is reprehensible that you were told to Google your daughter's diagnosis. I hope that you found new doctors. How cruel are people? To tell you that you're being selfish? Seriously? Georgia is aware and interacts with her environment and other people. So what if it's different than how you or I process things? She has every right to be here. This channel is extremely important in educating people regarding handicapped children and adults
Awesome interview. What a cute little lady. And Chris you are such an amazing person, you always make the effort to get to know each child and you're so positive and respectful. The world needs more people like you. I feel like you could be the modern day mister Rogers 😊
A doctor should never tell someone to “google it!” We all know what ends up happening when we do that. Georgia is so cute with her little smile! Made me smile too❤ ty for sharing Georgia’s story Chris❤
Chris, you and your channel and content is so helpful to watch. Many people don't realise the struggles of others. I tried my best to help a friend with motor neuron disease (MND) until his pass. Your attitude is what I have strived for, I hope I had done so
I've followed Georgia since she was teeny tiny! I'm thrilled they got a chance to share her amazing journey with everyone. She's such a warrior! Mom is right, she's a fighter!!!
I get you Georgia. I’m autistic and sometimes I can’t talk I can only make noises and my outward mannerisms may look childish but I’m 28 with 28 year old responsibilities and my brain works just fine. It’s nice when people treat me like a normal adult even if I have to type what I’m saying to them
Her laugh is the cutest sound ever!! I looked up Trisomy 18 and I wanted to share this: Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old.
I absolutely love your videos, Chris. You're doing humanity such a lovely service by teaching us all about "different" people - and making new friends all along the way. Thank you for all you do.
You are such a beautiful mother ❤ Hearing your laugh in this video, as your little girl plays, is the best sound I’ve heard in a lonnnng time. Thank you for sharing your little princess with us. For those who cannot see how valuable her life is, as ALL lives are; they have a sad existence, plain and simple. How shallow of a life THEY lead, hey?
This little girl deserves the world! She’s so sweet and kind. It’s unfortunate that she can’t always communicate what she wants but it’s nice to see her happy!
What a strong momma and adorable daughter!! We were also told over the phone to write down our daughter’s rare diagnosis, without any explanation other than ‘it’s bad’, and then had to Google it. Turned out the most awful fatal disease. We now have a much more supportive medical team, but 4 years later this memory can still make me tear up. Just heartless. Celebrate every moment. It’s so easy to love these children!!! ❤❤
i’ve followed your facebook page for years Georgia! i love this! such a sweetheart 🩷 much love to your family & to sbsk for having this beautiful little girl on your channel!
I knew that sweet face looked familiar, I keep up with this cutie on Facebook. I just adore how Chris plays with these kiddos. He has no shame when it comes to making a child smile, I love that.
Good on you Mom… What people, especially in the medical community told you is heartless. I love your view on how you & your husband decided to fight along with Georgia. I do hope all of those who didn’t listen to you, and tried to put the onus on you as well, have been dealt with. Georgia, is adorable, and I am glad she’s here for you to love her.
Georgia seems like the sweetest girl ever ❤ She has been blessed with an amazing family who very obviously loves her and makes her feel loved. These videos make me realize that when there’s love, people can really endure anything ❤
She is happy healthy and beautiful. You are doing a amazing job. Wish you all the best in the work. Hopefully one day I would love to meet her and play and talk to her. Your story truly touched me. Keep up the great work mama. You are blessed and she is a beautiful young lady
Georgia- you are so pretty you have such lovely hair. I love how you make sure everyone gets that you can speak for yourself. Thank you for sharing your life story with us I hope you continue to thrive and be happy with your lovely family. Love from Janice 🇬🇧 xxxxxx
I feel like Georgia the best little lady ever! She’s so brave and we all love her she’s so cute with her little giggles and smile❤❤❤☺️she’s The best little lady ever! She’s so smart!!
I’m absolutely stunned that the pediatrician had a receptionist call late on a Friday to inform the parents of her diagnosis. This is a conversation that should have been in-person where they could ask questions. Reminds me of when my husband received a late-Friday call to tell him his blood work came back positive for HIV (while he was driving and working). A confusing and devastating 15 minutes. Then, 15 minutes later, the receptionist called to say, “Oops. I called the wrong patient. Your blood work is fine.”
It is amazing what babies can survive through in utero. Georgia is a blessing to this earth! I had undiagnosed pre-eclampsia until around 34 weeks with my first son. We always knew something was a little different about him, but didn't learn until he was 3 that he has CP. An orthopedist did a full body MRI to rule out causes for his motor delay, and found that he had an old brain injury (most likely from when my pre-eclampsia was in full swing). As parents of special kids, it seems like we constantly have to fight for something. My husband and I have vowed that we will fight to get him every resource he can have to give him the best life possible. Anyone who gets in our way can kick rocks. Georgia is so blessed to have family who go to bat for her, and he undeniable right to live her best life!
She's actually quite adorable...❤ Never take a disabled person for granted, nor underestimate them.. They know, understand, and feel far more than you think...❤❤❤❤
I can't begin to imagine being a parent to such a unique kid...I'm not strong enough to take care of myself properly in my 30's, let alone someone with disabilities...huge, massive respect to Georgia's mom.
You'd be surprised what you can get used to and do when you don't have a choice. I never could've imagined what living in pain for so long I forgot what pain free feels like, but here I am because what's my other option? Give up? That's not a choice.
I think this is the first parent I hear mention the "you're keeping her alive because you're selfish" and she said i'm not keeping her alive she is doing all this on her own. From what I see, yeah Georgia wants to be here and is here because she belongs here.
Parents of these children deserve everything they need to care for them without being bankrupted.
Really? What is the benefit of Georgia in this? Is this a life you would wish for your child? People don't see beyond their newborn being helpless in a diaper. It would break my heart if I would allow my daughter to live like this.
The thing is govt is mostly responsible for the problems we have today. Yet charge outrageous prices for Healthcare. With that being said, a lot of people have children when not fully stable or prepared for all of the possibilities that may happen
@@lotuspocus76312I don't want to assume what your thoughts are as far as her / parents alternative ?
@@drewmoore365 It's as you know, not only gov..... But the cards are stacked. Between the so called health industry & many man made created toxins / gene & endocrine disruptors, just for starters. While many think it's no big deal or factor; but plays a huge roll in developmental risk issues.
@@lotuspocus76312Not a great look dude. That’s a vile comment to make and a vile worldview, fyi. I don’t know why you watch this channel, but it’s really not the place to suggest you know more than the families, doctors, etc. who are actually involved. I think it reflects poorly on you, whether you’re coming from a genuine place or just trying to troll.
This channel gives people an opportunity to share their or their loved one’s stories on a fairly public platform. Everyone’s life is different. Do you think asking sincere questions and listening to the replies, not just arguing, could be a little more beneficial? Unless you’re just intending to be rude and pass judgement, which doesn’t feel appropriate here.
Devastating how easily people will tell disabled people and their carers that their own lives are not worth living.
Right?? I mean, who do they think they are? It breaks my heart. They clearly don't understand anything about what makes a life worth living
So true, I have mild Cerebral Palsey and am legally blind and I get this crap.
That's people for you, ofcourse not all of them (I mean, it takes a lot of nerve to even say that out loud to someone, so it's a type of person), but unfortunately judging seems to be in all of us.
I'm confused as to what they'd do if they became disabled or their child.
It is devastating. How do we think WE get to make the decision on who should or should not live. Each person has their own experience living, whether good or bad. Just because you are uncomfortable with the idea of you being in that way doesn't mean that person is u happy at all. They can only know their experience as we can only know ours. All else is left to imagination which is all limited. Bless that beautiful child and I pray she continues receiving all the love. Her mother seems wonderful from this snippet of a video.
I like how Chris decides between each kid in their interviews how to play with the kids and make them laugh. Chris plays with each kid differently
He is the best!
@@FierceGeorgiaOnMyMind Chris is wonderful. I wish I could meet him in person
Yes! He meets everyone where they need to be met. And in return everyone feels so safe around him. It's both a gift and a well-honed skill. He is wonderful. ❤
@@isaacheres1354it’s been a few years since I’ve met him but he interviewed one of my friends and I briefly met him then before he interviewed Liz (her interview is on her as well)
One thing about Chris I've noticed. He's been wearing that same blue sweater since the channel started lol
I can’t imagine giving birth to a child with special needs and then being accused of doing drugs. God bless this strong momma who has stayed strong for her baby.
It was wild
I am sure they have a list of routine questions they ask in these situations, but they should be sensitive to the families and reassure them it is routine follow-up.
@@nightyew2160it is. Because they have to rule those things out, and some women are ashamed and aren’t always up front about it. In hindsight, we know it did end up being a genetic condition, so it sounds like a kind of foul thing to say, but in reality, it is such a rare condition and at the time, trying to rule out everything else, the possibility of it being from substance use related pathogens probably seemed ten times more likely. You can’t not ask those questions and explore the possibility out of fear of offending the mother if you’re wrong, but risk not being able to save a baby’s life, if that had been the case
I'm a doctor and I would never EVER let the receptionist call my patient and tell them a diagnosis like this. It's absolutely OUTRAGEOUS, and that word is way too mild for my indignation. You didn't deserve that and I truly hope you found a good pediatrician after this
We have an amazing ped now. The first doctors practice is STILL open which is wild.
@@FierceGeorgiaOnMyMind I'm so glad to hear that!! Wow that's wild indeed that he's still doing his business... But happy to hear you found a great ped 🤗 Will never get used to stories about doctors who don't care about their patients feelings or situation
@HaDatWicht we had a rough start but we've found our circle now! I'm so glad to hear from other doctors about the standard of care.
As a medical receptionist myself, my jaw DROPPED. If my doctor asked me to relay most any diagnosis over the phone I would be shocked, much less something to this degree of severity.
We were also told over the phone to write down our daughter’s rare diagnosis, without any explanation other than ‘it’s bad, the genetic counselor will explain it’. We then of course had to Google it and it turned out the most awful, fatal disease. We didn’t get to talk to genetic counselor till days later and there was no follow up. We now have a much more supportive medical team, but 4 years later this memory can still make me tear up.
This channel and it's host is making this world kinder, more humane and livable.
I totally agree.❤️
Absolutely
Yes and amen to that
💝🙏💕
Chris just has a gift of friendship. All of his interviewees just light up which is a beautiful thing to witness
I totally agree.😊
He is amazing.
I cannot believe the things her mom had to listen to during and after pregnancy. BELIEVE a patient when they say somethings wrong. WE know our bodies best. Sometimes you have to scream to be heard 💔
Thank you! Some doctors have the mentality that they are smarter and better than their patient. They will not listen when you tell them something’s not right. They do a lot of gaslighting.
Problem is that in the majority of times there's nothing wrong, even if the patient thinks so, that's just the daily experience for them. This condition for example is incredibly rare, so for a doctor to notice that if it's not super clear, can be hard. Doctors are people, unfortunately they deal with health so every little mistake or misdiagnosis is magnified 1000x. If a doctor is clearly not fit for the job or basically a criminal, sure that's something to deal with, otherwise I have the greatest respect for them.
It was surreal but it made me a stronger advocate.
Misogyny at it's finest!
@@VincentGroenewoldNormally I would agree, but in this case I think they should have at least been able to pick up on the fact that she was not going to be born at 8 pounds. I am sure some of the questions, like "Were you out of the country?" are just routine, but blaming it on drugs when she had clearly been cautious going into the ER ten times makes it sound like they're just trying to find a way to deflect blame away from themselves. Also, just having her Google Trisomy 18 is really harsh. Personal interaction with someone with a decent bedside manner could have made a big difference for them.
It hurts to hear when firstly the doctors they dismiss her concerns and then they attack her for doing something wrong.
I know that makes me sad and angry. Also, just telling her to just google trisomy is very insensitive. They should have had her come in instead of just making a phone call and offered the services of a genetist.
Oops trisomy 18
The whole thing is wild to look back on honestly.
You would think that private practice would imply more caution
That receptionist saying "Google it" - how awful. I'm so sorry. Your girl's amazing.
Thank you
@@FierceGeorgiaOnMyMind❤
💝🙏💕
In all the videos, people say, "Just come over and say hi." It sounds so simple... I really try to put that into practice in my everyday life. Thank you so much for producing and sharing these interviews; they touch me every time. Georgia and her mom are fighters!
Yes! I've heard it over and over to the point it's sad.. people do look away..I wish people were more aware 😢
It is that simple ❤
I really love this channel. Parents should sit and watch these videos with their children.
I'm doing it with my 1st grader right now. 👍💕
It's unbelieveable how ppl can be so cruel! Georgia is here because she's SUPPOSED to be here. Good job, mama and daddy!
🩷 Hi Georgia! 👋
Thank you.
She's beautiful and I love how she interacts. YOU are a beautiful mother!
💝🙏💕
You’re channel gives me hope for humanity. Thank you for everything you and your wife do for these kids. They’ll remember your compassion for the rest of their life.
💜Jesus loves you so much! If you are going through something hard, he will help you get through this! Ilysm!😊💜
Georgia is absolutely beautiful and adorable.
I really appreciate that Chris always asks what we should do or say if we meet these families or want to become friends. That they consistently answer---- to simply treat their son or daughter like anyone else, to just say hello---- has meant a lot to me personally. After reflecting on this, I feel more confident and able to interact with everyone, honestly. I'm looking forward to sharing the stories on this channel with my young kids. Thank you Georgia, Georgia's Mama and Chris for making this world a more liveable place for everyone.
Well said! I feel exactly the same way!
At a funeral I saw a woman in a wheelchair who had dyed her hair a vibrant blue, so I went up to her and told her I liked her hair. Watching this channel gave me the courage to do that. Otherwise I might have been too shy. Everyone is different, and not everyone may want to be approached by strangers, but people who choose blue hair probably don't mind being noticed.
@@nightyew2160 Love that. Thank you for sharing 😊
This channel is a gift to humanity
Hello everyone, I am an adult with Edwards Syndrome or Trisomy 18 and although it’s a complicated disability, but always cherish all the things your children can accomplish on their own. The world we live in is always about what everyone does in society! Always stay positive! Everyone is unique!
Hii! Thank you for chiming in! Is it ok if I ask how old you are?
How common is it for people with Trisomy 18 to live to adulthood?
Hello, sure not a problem; I will be 33 this month on the 29th and the information online states what Georgia’s mom has explained and that Chris has done a video of Trisomy 18 previously. I searched online that there’s two females who are nonverbal; however, one is wheelchair bond in her 40’s and a mom from Texas started a program called “The Chromosome 18 Registry & Research Society,” for her daughter.
By the way, I forgot to mention that I am verbal.
@@CarolynKhanhvyNgu that's incredible!
Thanks for sharing your story with us, Georgia and Georgia's Mom! And thank you, SBSK for educating us.
This channel and it's host is making this world better every day.
Georgia, it was so amazing to get to meet you through your very own video! You’re so adorable in your cute little dress, and we’re all so very proud of you. We love you so much, and we’re also incredibly thankful you have a mother that loves you unconditionally.
I love that “ cool chair” comment that mom said. I’m gonna use that. Thanks for sharing your story and educating me.
That "cool chair" comment is genius.
I have a similar story with my daughter who has a partial trisomy (massive duplication) on one of her 14th chromosome. She's also small for her age and I always tell people she's tea cup sized. Thank you for sharing sweet Georgia's story.
Little but fierce!
I was considered "failure to thrive" until I was in middle school.
Big things can come in small packages!
💝🙏💕
Thank you for sticking up for your kid, you are an awesome mum! Also, it's good to know that parents with disabled children would much rather have people come over and say hi instead of avoiding contact. Heard that same response on many other videos on this channel. Thank you Chris for educating me!!
Your mum is amazing dear Georgia, I hope you keep staying strong for Georgia.. I can't imagine how it's like to have to have a baby so fragile and needing so much help.. it's so overwhelming to stay on top of all those diagnoses..
Georgia I hope you can feel all the love you are surrounded with you are blessed and you are a blessing ❤
Read the description, and its absolutely heartbreaking to hear that people say that about her... I see it alot on instagram especially. People dont understand that these people are still enjoying life as anyone else does, and they have every right to continue. Its not AT ALL selfish to keep them alive, they are just like any other child who needs support.
This was on another video on RUclips 😭
I wanted to scream when mom said what the peds office did. How are these people still working? Horrible! I can't imagine the pain and being scared for their baby! I hope this sweet girl and her family have a wonderful, long life together.❤❤
God made you perfect Georgia! What a cutie you are & just LOVE your laugh! The medical world makes me sick to my stomach. My heart broke for what you had to hear & learn on your own. I enjoyed hearing about Georgia's story! I have a 5yro in my church that I am her buddy. She is very active but has a lot of the same things Georgia dose. Her parents have had so much hardship in even getting my little lady diagnosed. This is a new hope for them.
I also have a T21 grandson. He too is perfect as God created him! He is a joy in our family! Prayers & many blessings to Georgia & her family!
Thank you for this. Her laughter is precious.
My brother passed away with Trisomy 13 several years ago. Up until this point, trisomy 13 and 21 were the only ones I knew about.
I have learned from watching videos on RUclips that the parents are the ones who spend all the time with their child and therefore they see how the child develops, learns, etc… I honestly used to think that parents were in denial and couldn’t face that their child was not having any quality of life. Thanks to this channel and others for helping us learn. 😊 PS… Georgia is adorable !!
As a doula I’m sickened to hear how this amazing Mum was initially blamed and questioned by medical carers. This is abhorrent, Compounding an already traumatic experience and circumstance. I thank her for speaking out about this to educate medical carers. We must do better! What a beautiful, bright, lovely, daughter and wonderful, dedicated, articulate and advocating Mum❤
Thank you.
This mother has such an amazing outlook. And has a beautiful young lady ❤
Thank you 🩵
Georgia is absolutely precious
Thank you for sharing her story and I wish her and her family all the best❤❤❤
Georgia is the cutest little girl. Her smile is precious. It's obvious that she is loved and cherished. To love and be loved is the greatest gift.
One of the strongest moms I have ever seen! Thank you for sharing your story. Beautiful family ❤️
What a beautiful young lady, when I seen her smile and laugh that proves she is certainly like any other little girl. I'm happy to see she was born to a loving family. God bless them. ❤
🌷Georgia's giggle is so cute! Made my day!
🌷She's perfect just the way she is. She's uniquely her own person, with abilities that might look a bit different than everybody else, but are abilities nevertheless.
🌷She's obviously got a sweet sense of humor. When Chris hid the ball her reaction was adorable.😊 You could tell she was thinking - those wheels were turning. Probably thinking, "It was here a second ago. Where is it?!🤔"
🌷Georgia is happy, healthy, and living her best life.💖
The mother is a really nice person and Georgia is a sweet little girl
Thank you
Love Kimberly!!!! She is a force in our community. There is no one who fights for her baby as much as she does!
Thank you 😭😭😭
She is a beautiful child. You are a wonderful parent. I feel something special about her.
I'm so sorry they didn't listen to your concerns then tried to blame you. I had lost my last pregnancy. The week before I kept saying something is wrong... they just kept listening to the heart saying sounds strong. That child died the following week. Seeing Georgia makes me happy that she is a fighter!!!!!
Georgia laughing brightened my day!🥰✨
The fact that in the description its said that people sometimes say to her mom that ''It's selfish to keep her alive'' is insane. Those people are legitimately uncultured, if they had a child like Georgia they would do their best to keep her alive. The nerve of some people.
I think a lot of people think about how much trouble and money will take to take care of a "special needs" baby
@@rathersleepthanstayawakezzz I think about all the resources (trouble and money) that are wasted on keeping people alive who are so uneducated and ignorant that they would say something like that.
@@sharim yeah I agree with you
To me, it's a totally thoughtless thing to say. Some people are so immersed in the culture of death that they expect parents to murder or neglect their own child if she happens to be born with a disability. Really, even parents who are just putting in the legal minimum wouldn't do those things, so if you would say something like that to parents who actually love their kids, you clearly didn't think your opinion through.
@@rathersleepthanstayawakezzz It may be trouble, but love is way more important then that.
She is beautiful!❤
What an absolute sweetheart!! ❤
Thank you for sharing beautiful Georgia’s story with us!
Thank you
Wow.. 2 minutes ago! she is the most awesome person i have ever seen. ^^ Much love to her! Thank you for starting this. I am always delighted to watch your videos and watch these awesome kids. Im sure they will remember you for a while! ❤🎉
Mom saying her daughter is NOT a baby, she is pocket sized is brilliant! ❤😊 And her smile and laugh is contagious!!
I have been watching you Chris with these special needs Kids and Adults. Makes me proud to see you interact with them and bring them joy. I have a special needs grandson.
Hes amazing!
Georgia, you and your family are an absolute inspiration to me!!! I loved your interview, thank you.
Georgia is so adorable! That crooked little smile lights up her face. It's really aggravating when so called experts fail to LISTEN to their patients. That is reprehensible that you were told to Google your daughter's diagnosis. I hope that you found new doctors. How cruel are people? To tell you that you're being selfish? Seriously? Georgia is aware and interacts with her environment and other people. So what if it's different than how you or I process things? She has every right to be here. This channel is extremely important in educating people regarding handicapped children and adults
Chris seemed to be enjoying himself acting silly 😋 to make this Special little girl with an amazing smile 😊 & contagious laugh 😂!
I hate how much medical gaslighting look place for this family. Keep on fighting and thriving.
Awesome interview. What a cute little lady. And Chris you are such an amazing person, you always make the effort to get to know each child and you're so positive and respectful. The world needs more people like you. I feel like you could be the modern day mister Rogers 😊
I saw her beautiful face, and my heart just melted. I can tell that she adored visiting with you. Georgia is a lovely young lady. ❤😊
Great video, thanks for sharing. She's a wonderful human being.
I love your videos. Brings me back down to earth. ❤
❤
@@FierceGeorgiaOnMyMind ❤️🙏
A doctor should never tell someone to “google it!” We all know what ends up happening when we do that. Georgia is so cute with her little smile! Made me smile too❤ ty for sharing Georgia’s story Chris❤
Chris, you and your channel and content is so helpful to watch. Many people don't realise the struggles of others.
I tried my best to help a friend with motor neuron disease (MND) until his pass.
Your attitude is what I have strived for, I hope I had done so
I've followed Georgia since she was teeny tiny! I'm thrilled they got a chance to share her amazing journey with everyone. She's such a warrior! Mom is right, she's a fighter!!!
I get you Georgia. I’m autistic and sometimes I can’t talk I can only make noises and my outward mannerisms may look childish but I’m 28 with 28 year old responsibilities and my brain works just fine. It’s nice when people treat me like a normal adult even if I have to type what I’m saying to them
OMG she's so precious, like a real life angel👼🏼🩷
Yea . This video is helping be do my slides on Edwards syndrome for school .
Geez, even with a handicap she looks so much like her mother ❤
EDIT: Such a good supportive mom. It's obvious she's thriving with her
Her laugh is the cutest sound ever!!
I looked up Trisomy 18 and I wanted to share this: Megan Hayes, oldest known individual in the US (2nd oldest in the world) with Full Trisomy 18 has recently turned 40 years old.
Megan is amazing!!
Hi, sweet Georgia!
Nice to meet you 😊
Georgia's mum, thank you for sharing.
Sending love & light your way 💖
Thank you, Mr. Chris 🌹
I absolutely love your videos, Chris. You're doing humanity such a lovely service by teaching us all about "different" people - and making new friends all along the way. Thank you for all you do.
You are such a beautiful mother ❤ Hearing your laugh in this video, as your little girl plays, is the best sound I’ve heard in a lonnnng time.
Thank you for sharing your little princess with us. For those who cannot see how valuable her life is, as ALL lives are; they have a sad existence, plain and simple. How shallow of a life THEY lead, hey?
This little girl deserves the world! She’s so sweet and kind. It’s unfortunate that she can’t always communicate what she wants but it’s nice to see her happy!
What a strong momma and adorable daughter!! We were also told over the phone to write down our daughter’s rare diagnosis, without any explanation other than ‘it’s bad’, and then had to Google it. Turned out the most awful fatal disease. We now have a much more supportive medical team, but 4 years later this memory can still make me tear up. Just heartless. Celebrate every moment. It’s so easy to love these children!!! ❤❤
i’ve followed your facebook page for years Georgia! i love this! such a sweetheart 🩷 much love to your family & to sbsk for having this beautiful little girl on your channel!
What an amazing mom and beautiful girl! Excellent video!
You’re an amazing mom to an amazing daughter. May God bless you both! ❤❤
Thank you
I knew that sweet face looked familiar, I keep up with this cutie on Facebook. I just adore how Chris plays with these kiddos. He has no shame when it comes to making a child smile, I love that.
Aww yay! He's the best!
Good on you Mom… What people, especially in the medical community told you is heartless. I love your view on how you & your husband decided to fight along with Georgia. I do hope all of those who didn’t listen to you, and tried to put the onus on you as well, have been dealt with.
Georgia, is adorable, and I am glad she’s here for you to love her.
Thank you. It's wild bc that pediatrician is still open.
You are an amazing person the way you interact with all these kids. You are such an amazing young man and you have an special place in God's eye
Georgia seems like the sweetest girl ever ❤ She has been blessed with an amazing family who very obviously loves her and makes her feel loved. These videos make me realize that when there’s love, people can really endure anything ❤
She is happy healthy and beautiful. You are doing a amazing job. Wish you all the best in the work. Hopefully one day I would love to meet her and play and talk to her. Your story truly touched me. Keep up the great work mama. You are blessed and she is a beautiful young lady
I laughed when you were playing the 'boop' game😂...the sounds and your facial expressions...onthe flip side...very adorable little girl❤
This guy is such.an.angel!
Such joy watching Chris make her laugh. Precious moments for everyone. 🥰
What a beautiful girl and momma! I just want to hug her! She’s so cute and sweet!
What a horrible thing that receptionist said!
Georgia- you are so pretty you have such lovely hair. I love how you make sure everyone gets that you can speak for yourself.
Thank you for sharing your life story with us
I hope you continue to thrive
and be happy with your lovely family.
Love from Janice
🇬🇧 xxxxxx
Love her mom for all the things she said and clearly feels. My eyes are leaking
God bless you two! Mama, I see a strength of will in her eyes that should teach us all something new.
Chris, you really are the best
He is! 😊
I feel like Georgia the best little lady ever! She’s so brave and we all love her she’s so cute with her little giggles and smile❤❤❤☺️she’s The best little lady ever! She’s so smart!!
I’m absolutely stunned that the pediatrician had a receptionist call late on a Friday to inform the parents of her diagnosis. This is a conversation that should have been in-person where they could ask questions.
Reminds me of when my husband received a late-Friday call to tell him his blood work came back positive for HIV (while he was driving and working). A confusing and devastating 15 minutes. Then, 15 minutes later, the receptionist called to say, “Oops. I called the wrong patient. Your blood work is fine.”
It was awful. I left a few terrible reviews.
@@FierceGeorgiaOnMyMindGeorgia is beautiful and precious ❤
I love the mom's attitude ❤
Everyone should see this. Georgia, you are a brave little warrior! We’re rooting for you!
Another good one.
Georgia, you go girl!
Wonderful, wonderful loving parents!
I absolutely adore how intuitive he is with everyone ❤
Her giggles are everything ❤❤😭
OMG Georgia's eyelashes are gorgeous!
I hope her the best! She's a great mother and the way the doctor treated her was so horrible...
It is amazing what babies can survive through in utero. Georgia is a blessing to this earth! I had undiagnosed pre-eclampsia until around 34 weeks with my first son. We always knew something was a little different about him, but didn't learn until he was 3 that he has CP. An orthopedist did a full body MRI to rule out causes for his motor delay, and found that he had an old brain injury (most likely from when my pre-eclampsia was in full swing). As parents of special kids, it seems like we constantly have to fight for something. My husband and I have vowed that we will fight to get him every resource he can have to give him the best life possible. Anyone who gets in our way can kick rocks. Georgia is so blessed to have family who go to bat for her, and he undeniable right to live her best life!
She's actually quite adorable...❤
Never take a disabled person for granted, nor underestimate them.. They know, understand, and feel far more than you think...❤❤❤❤
she is soooo special, wish much love i send to her and her beautiful family
I can't begin to imagine being a parent to such a unique kid...I'm not strong enough to take care of myself properly in my 30's, let alone someone with disabilities...huge, massive respect to Georgia's mom.
For sure it is not for everyone. But you would be surprised how human spirit can pull itself together when required
You'd be amazed what you're capable of when you have no other choice.
You'd be surprised what you can get used to and do when you don't have a choice. I never could've imagined what living in pain for so long I forgot what pain free feels like, but here I am because what's my other option? Give up? That's not a choice.
I love what you do Chris. Keep on keepin on!
He is the best
I think this is the first parent I hear mention the "you're keeping her alive because you're selfish" and she said i'm not keeping her alive she is doing all this on her own.
From what I see, yeah Georgia wants to be here and is here because she belongs here.