Quadriplegics Answer Web's Most Searched Questions on Paralysis
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- Опубликовано: 15 июл 2024
- My friend Jenny and I answer some of the webs most asked questions for people living with paralysis (specifically quadriplegia)! With years of experience, we answered these questions to the best of our knowledge and wisdom. I hope you learned something new.
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My husband and I were setup on a blind date by my mother in 1985. He had a diving accident in 86 which left him a C4-6 quad. He was just 24 yo. He is now 59 and incredibly healthy!
❤️
dam you still married him after he got paralyzed? Now that is true love young lady. I wish both of you the very best.
@@dianajames4717 If you love someone, I dont think it would change the love. There are a lot of people married that are not actually in love, just married cause they get on with the person and are expected to be married by family and friends and dont want to be out of the norm.
@@joemyers8289 yes I do agree with that
@@joemyers8289 I can't believe how common it is, to be married. People just hate being alone I guess... I prefer being alone, single, doing whatever the hell I want whenever I want. I just can't feel completely myself if someone else is around.
@@dianajames4717 wow!! you would of just said " see ya " good person you are. not
I did some work for a guy who couldnt talk, well apart from grunting. he needed 24 hour care and everyone talked over him. So I sat on the floor in front of him, worked through what was needed, and asked him as many questions as I could . Amazed at how we got on so well, the guy thanked me via a tablet voice machine thing when I was doing the work a few weeks later - the thing of it is, he could communicate perfectly well if only people took the trouble to understand him, Poor sod. Good you two are making the best of it, too.
More people need your compassion and understanding.
This was an interesting video. Thank you for sharing and I wish you both the best!❤️
I think one of the biggest fears when it comes to this is other people. It's a real shame. I am actually writing a will that will include all kinds of things in case I can't communicate properly. I know people with whom a few days would make me want to kill myself, but since I am unable to do so, I need to make it very clear in my will that I can be at least left alone.
I’m a C5 myself and it’s so nice to see you guys inform everyone about sci’s !
Well done ladies! Some great resources you've provided as well. Forty years a quad, there's always something new to learn. Abby and Jenny, you're both amazing and choose to handle this thing with dignity and style - God Bless you both, always!
thats so kind to hear!! I am glad this could help!!! Thank you William!
You two are so beautiful, positive and strong. And informative. Thank you for this video.
Well said ! 🙂✅🇺🇲
RUclips's algorithm somehow brought me to 2 beautiful & charming ladies. Your words, supernova smiles, and heartfelt sharing of your life experiences, has touched my soul to its very core. Isn't communication grand? No matter the subject, or life challenge, it is fundamental to mutual understanding & life's progress, growth,& happiness. You both have so much to be proud of. My life has been irrevocably altered, by your stories, hope, character, and smiles. God Bless you both for your gift of sharing, phil
Thank you very much for answers to common problems that you must handle everyday. You’re both admirable and inspirational. The world is a better place with you in it.
Thank you for your honesty. My older brother was a paraplegic who lived life to the fullest until his death.
Thanks for opening up! im sure this will help a lot of people
Thank you both for making this video! Such a great way to educate folks. I had the mitrofinoff procedure as well, and that alone gave me more independence than anything else. It was life changing.
I did want to point out that you said quads are c1-c7 but there are actually 8 cervical nerves! I'm a c8 quadriplegic. It is a common misconception because there are only 7 vertebra in the cervical spine, but 8 corresponding nerves. The vertebra is just the bone that protects it. You can actually damage your vertebra (spine) without actually hurting the spinal cord. So confusing lol!
hey guys, great video... I just by chance ended up clicking on this, and it was interesting to get info like this about your day to day issues dealing with being quadriplegics, and how you simply just answered those questions that many would feel rude for asking, but you did it so matter-of-factly that it took the stress out of both asking the question(s) and made it easy listening of the answers. My sport is drag racing, and there are more than a few quadriplegic drag racers out there.... in both door cars and dragsters. I just read a recent article about a guy who is also a quadriplegic who races in a specially built dragster with probably the same or similar hand controls that you guys use in your daily drivers, and the interesting part was his race seat that is powered to move up and down so he can get in and out of the tight dragster cockpit (they're hard to get in and out of even for someone who isn't physically impaired in some way). Maybe you guys should watch some drag racing videos, I bet you girls would kick ass (there are pretty much just as many women in drag racing as there are men btw, and in every age... I've had my ass handed to me by grandmas!). Would be fun to race you guys, or even better, to see you guys race each other!
This has been “awesome” Jenny and Abby. Thanks for the excellent education and your candid responses, laced with some humor, addressing difficult questions. God Bless you both! 😘
I love you guys! Wow! How inspirational! Love your personalities and how open you both are in sharing your experience.
I have worked on a rehab unit. But much of the information you gave was very informative and for me updating since it was 20+ years ago. Thank you ladies.
I don't know how this video showed up in my feed but man, am I GLAD it did! All my questions answered (mostly) and in a way that both the person with the injury and someone without can understand. Thank you so much...
Wonderful people, role models for all of us! Thank you very much! ❤
You ladies are amazing! ❤ I can only imaging the effort it takes to do what you do and be positive. Thank you for being you.
Dad was a doctor. I knew a lot of this medical stuff from a very early age. Thanks for sharing your stories. Very courageous and inspiring. I’ll be tuning in often for a dose.
Two beautiful ladies! Thank you for opening up and sharing with us all. I sadly must admit that I don’t know much about these injuries. I think your both extremely strong and genuinely good people. Thank you for your courage and opening up and sharing with us. Thank you ladies ❤ your both beautiful!
Give you two ladies Kudos for explaining it to everyone, stay strong and best of everything for both of you
These ladies are very brave, very strong, very inspirational, the epitome of "don't quit!". 👍
They don't need your pity. You're making it sound like "don't quit" is an exception rather than norm.
Social media as of late can be so toxic. Thank you ladies for showing the inspirational side.
All great questions and answers! Side note though, the music was very distracting/annoying for me.
Wow!! You guys are keeping it real!! Thanks for being naturally yourselves.
Both you ladies are amazingly positive - thank you for sharing part of your life/disabilities with everyone - it was a great education
Abby you have the most adorable, genuine smile 🙂
Aw this is great. I love being educated on things like this
Thank you for taking the time to explain some misconceptions. I hope you are both doing well three years later.
You ladies are incredible. I'm sure the positive attitude doesn't come easy, but you pull it off.
this video randomly popped up on my feed and I'm so happy i watched. you two seem like super sweet ladies, this was sooo informative. i wish you both the best of luck!
Your personalities and up-beat attitudes are so inspiring ladies 😊
Just saw this video. Well done indeed….both for the idea but also for the down-to-earth positivity coming out of this video.
Great video, thanks! Speaking of driving, I'm a medic for a race track, and we actually have a couple of guys that come race that are quadriplegic. Their cars are modified with hand controls and they're just as fast as anyone out there.
Thank you so much ladies. Great information.
You two are incredible. Thank you so much for such an inciteful video ❤
Great video, thank you! So so helpful ❤️
You ladies are amazing. Thanks for the info.
This was really informative, and I think you did an amazing job. Good on you!
Very good video ladies. Very informative on the issues of people who are paralyzed.
Attractive and very personable young ladies. Thank you for the information. Everyone needs to know this.
Well done for clearing things up, it's nice to learn, all the best Lee
We all know social media is, too frequently, used for "evil." However, videos like this are incredible. I was one of the ones, when I was younger, who thought "quadriplegic" was anyone like Christopher Reeve, where neither legs nor arms could move (though I knew a trach wasn't a given for quadriplegics). Jump forward to the internet and people making educational videos...so we all can learn injuries and illnesses are not cookie-cutter. I know most of us know that but videos like this fill in so many blanks and answer questions we didn't consider asking.
I used the internet in the dial up days but reading about things doesn't always have the same impact as hearing people explain their own experiences so I, truly, thank you both, and all others, for sharing with, and informing, us.
This was amazing. You both are beautiful and will give hope for many others. ❤
This was so interesting. Thanks for sharing so openly.
Great video responding to all the questions!
wow - you guys are tougher than anyone I know - love and respect
Thank you ladies!
I'm not sure why this popped up on my page, but it sure was interesting to watch. I thank you for taking the time to educate people.
You two are truly amazing!❤️
Very informative, well done gals!
You are both an inspiration, to all walks of life. Our body is a shell, which in no way defines us. There are wealthy people who never have to shop for groceries, wash their own car, balance a check book (etcetera). Their 'ease of life' can be perceived to be better than my life. But, it is not true. It is just a different experience that i have, than they have. Both of our life's are valid, purposeful, and as meaningful as we make it to be. I am not the most handsome person, but that has nothing to do with who i am, and most importantly - my self worth, and how God values me!
Girl power💪 Wow this is so powerful! Thank you!!
This was such an enlightening video, ladies. It certainly made me more aware of the complex and varied symptoms of quadriplegia. It's great to see the advancement in technology and biology aimed at independence and autonomy. I do have a question: How challenging is diet and exercise with a limited range of movement?
Thanks for sharing.
Thank you for answering this questions. I admire you both very much and hope that you have love in your life and are happy
Thank you some very good info expressed in a very matter of fact way. No one could ask any more. Good luck with it.
I enjoyed this video. Very informative, thank you.
If you're ever in the DFW area in summer time, check out RISE Adaptive Sports. If you'd like to water ski, tube rides, para sail or just ride on a boat.. we do it all at no charge for persons with any physical disability - friends and family included. I'm a t12 complete since 77 and I've helped run this organization for the past 13 years.
This is damn amazing. Its making me so happy more people are being able to just straight up answer questions with no shame anymore. I do feel like an asshole because the very first question yall answered was one i had immediately, same with the pissing one, and i always though a quadripalegic hade to move around from blowing into a straw how with a joystick in the mouth. Yall are inspiring to me, especially with how fucking ignorant i was about this condition
Thank yall for sharing. I'm totally ignorant on the matter and I appreciate yall sharing.
Great video. Very informative!
Your comment about thanking God for the ability to poop and to pee is no joke. The things we take for granted. That was a very informative and encouraging video. I look forward to the day when all people will be able to walk, run and enjoy life to the full! Isa 35:5 All the best to both of you!!
You both are beautiful young ladies that have strength most people wish for
Ladies, you both were, and are, awesome. Respect.
Sometimes you don't know what's important to know. This was something for me that is important to know.
Thank you for sharing
Abby. You're so beautiful. I feel like I learned a lot from watching this video. I am a support care provider. I do get lost in my work. I clock in and I clock out. But just watching you talk and listening to you guys, it opens up my perspective. so yeah much love and thank you for making this video.
So brave! You are amazing women!
Love you ladies!!!
Thank you, ladies, for sharing such intimate information for us normies haha. I love learning this type of interesting information about people who have different levels of physical or neurological abilities.
Thank you very much for this girls. Very inspiring. Loved you both... Cheers :-)
Very informative. Thank you ladies.
Abby, your voice is as beautiful as you are. you ooze calmness and confidence.
Great honest interview ladies
Wow Jenny, I have the EXACT same scarf!!!
thanks for the education
good luck to you both for the future
Love you girls! PCA's and CNA's are angels. God bless
You ladies are awesome.
I'm 76 years old and I've seen a lot in life. I was a Marine infantry officer for 21 years with 3 years in combat. I lost a of Marines killed and horribly wounded, some of which were way beyond the disabilities of these to lovely women.
If I were single now (I'm 77 and I have a lovely wife of well over 40 years), I would be glad to help these women with whatever challenges they have if for no other reason to honor the Marines who were so horribly wounded in Vietnam and whose wounds were far more horrific with arms and legs blown off or unable to do anything to care for themselves including eating and drinking. Brain trauma injuries so severe that they have no idea who their families are.
I so admire the courage and strength of these two women. I wish I could help them have a better and more enjoyable life.
You ladies are very inspiring:)
Thanks so much! Very interesting.
Very informative. Thanks
You two are awesome!
so informative. Thank you
Oow! So great and interesting video and infos.. You both are awasome.. Are you planning to make more videos about spinal cord injuries? Could you show any usefull daily life tips as transfers or whatever? At any case, you are wonderfull and your smiles are the best thing in this video!! Go go .. oh and go on! Happy new year (also hahha)..
Here's the link to my RUclips page. I have videos on everything from doing transfers, cooking to sports. ruclips.net/user/jennysmithrollson
Very inspiring. And very informative
You are beautiful young ladies. Best of luck and times in the future. Your strengths are many and great and outweigh any shortcomings. Outstanding role models.
Good job! Thanks for your example of strength! Though I think we all know what the number searched question really is…I swear I’m not trolling but I really did watch the entire video curious if you’d talk about intercourse.
Thanks ladies ...both of you have amazing auras about you.
Thank you
You guys are wonderful and I SO admire your attitudes and smiles considering your injuries! I am so glad that you can get together and truly understand how the other feels. Big thumbs UP for you both!!
I guess one never knows, but I have told my husband that I do not want to live if I were in that condition and it is POSSIBLE to make that decision! I KNOW where I am heading when I die and am not afraid to die but I cannot imagine, where WE live and what we do as ranchers, being able to continue living here with that type of injury, or my husband having to ranch and still do what it takes to deal with a wife who is injured in that manner. I really can't imagine doing that?
Great and informative video. Thanks. Neuropathic pain sucks, but not as bad as the Autonomic Thermoregulatory Dysfunction where the body has difficulty balancing heating and cooling. I find heat the worst, similar in principle to MS I think albeit with a slightly different modality. Incomplete C7 here.
Yes! Overheating is the worst. I definitely struggle with this, too.
Great video !
Respect!
Thank you very much for your explanations concerning your situation. I also want to tell you both that you are as brave as pretty! Greetings from France ( Brittany ). 😘
I had full blown GBS in 1977. I was totally paralyzed and on a ventilator for a month then slowly got better. Now, 45 years later, I'm still getting nerves to heal. Good Luck, Rick
💯❤ 👍 I appreciate you !
Thanks
Always curious but didn't have the courage or obnoxiousness to ask. Thank you.
Have either of you looked into methods of healing your injuries? 1) the surgery where they insert an electrical instrument that stimulates blood flow and electrical signals thru the spine. It's based in Australia and 60 Minutes Australia has a show on it. 2) IASIS Microcurrent feedback: this stimulates the brain to heal an injuries...great with strokes too. 3) Long term water only fasting: this triggers autophagy which cleans out the cell and heals the body. Both of you look and sound terrific. God bless you for taking lemons and turning them into lemonade:+) God bless~
Love your candidness! BTW, it's called suprapubic not super pubic catheter. :-) On pooping, there is the peristeen pump. This can help set things up so that you can definitely poop when you want to and there is often times less chance of having an accident.
Haha oops! Thanks Nathan, I'll keep that in mind next time! I am trying the peristeen sumo soon, hopefully it works for me!
Glove and stim for para's..!!