What to do If You Can't Get Your ADHD Meds?

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  • Опубликовано: 24 окт 2022
  • Right now there is a nationwide Adderall shortage affecting many people. So what are you supposed to do if you can't get your ADHD meds? Lets explore that.
    Check out this list of ways Hearts can help Brains during shortages! (And there are a few tips for Brains, too!): • Post
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Комментарии • 2,2 тыс.

  • @ruaoneill9050
    @ruaoneill9050 Год назад +925

    "It turns out I need my meds to USE a lot of those coping strategies" Welcome to another episode of Jess sums up my entire life in 1 sentence!

    • @lulumoon6942
      @lulumoon6942 Год назад +7

      SAME!

    • @camillapantoja873
      @camillapantoja873 Год назад +4

      Same!

    • @JC-du6sn
      @JC-du6sn Год назад +2

      Look up the Healing Journeys of Hannah Terradez and Maren Hamm on RUclips 😇

    • @A_ndrea
      @A_ndrea Год назад +2

      Thank you so much for saying this because I was trying to find a way to explain this to my therapist today 😭😭😭😭

    • @smizles
      @smizles Год назад

      She's like a friggin' clone sometimes

  • @MixMeMcGee
    @MixMeMcGee Год назад +544

    I’ve never clicked a video faster.

  • @khr217
    @khr217 Год назад +362

    With meds I see colors much more vivid, I focus much better, I get relaxed much easier, I do not have compulsive eating cravings, the anxiety went away. This anxious fog of thoughts, I was so much used to, I thought it is just normal state of being. With meds I for the first time in my life am truely happy and present.

  • @mattlydon8873
    @mattlydon8873 Год назад +137

    One thing I find incredibly helpful when I can't get meds is to take a brief nap during the day. I know that isnt available to everyone, but any kind of rest is better than none. I limit mine to 20min so I dont mess with my sleep schedule, and I find that once I get back out of bed it is so much easier to direct my attention. Like a little reset button :)

    • @jessicaschoonmaker2073
      @jessicaschoonmaker2073 Год назад +1

      Yes I get exhausted

    • @nicholaslandry6367
      @nicholaslandry6367 Год назад

      How do you not impulsively sleep longer than planned

    • @Jharris32908
      @Jharris32908 Год назад +1

      I work from home and this works for me also!

    • @kaydenstuff
      @kaydenstuff Год назад +3

      How to make the naps brief tho doesn't matter the alarms I set I'm a barely conscious zombie during naps until my brain is good and ready to wake up and then existing feels funny for a few minutes like I woke up on another planet or something I can't seem to get under 3 hours for naps 😭

    • @mattlydon8873
      @mattlydon8873 Год назад

      @@kaydenstuff Dang, my suggestion comes in 2 parts.
      First, it is difficult but also super important to get good sleep at night. I know that isn't always super possible, but as best you can. Sleep deprivation will totally make those naps hard to wake up from - even if you do wake up in 20 minutes, if your body is trying to run through a full sleep cycle, you'll probably be groggy for the rest of the day. My personal goal is for naps to be used for recharging my emotional battery rather than physical.
      Second, maybe getting some help from a friend? If you live with someone, maybe ask them if they're willing to help wake you up. Maybe ask for a phone call from someone else. Ummm, maybe strategic phone-pillow placement? Im not sure what's feasible for you.
      Regardless, Im sure there is some method of management that will help, even if it isn't naps specifically.

  • @pnut9995
    @pnut9995 Год назад +610

    This is the 2nd national shortage I've seen. I miss desperately when I could take my meds and when my Adderall worked for me.

    • @HowtoADHD
      @HowtoADHD  Год назад +98

      Oh no, did you get impacted by the shortage? If so, I'm so sorry! If not, I'm still sorry! Sucks to be without meds or meds that work.

    • @umb3rto641
      @umb3rto641 Год назад +42

      it's around the world, too Europe also has a shortage

    • @k.l.manring2083
      @k.l.manring2083 Год назад +29

      Oh ouch. I'm so sorry! That's gotta suck. I found if I supplemented my Adderall with another stimulant like medication that my doctor prescribed and an antidepressant believe it or not it made all the difference in the world. So please don't get too discouraged and don't give up.

    • @pnut9995
      @pnut9995 Год назад +56

      No, thankfully, as I am unable to take meds any longer since having had my twin sons. My pregnancy amped up my ADHD to severe and from Innatentive to Combined. It also made me fail all ADHD meds, so I'm unmedicated any more, but I desperately miss when my meds worked for me steadily. I miss being able to organize my thoughts and clear the fog.

    • @Emwest84
      @Emwest84 Год назад +9

      Wow same . That part about adderall working hits home for me as well :(

  • @NarwhalAcademy
    @NarwhalAcademy Год назад +616

    hope it's okay I comment timestamps in case anyone wants to go back to specific parts 😊
    03:17 Readjust workload and expectations
    03:46 Lean harder on and adjust coping mechanisms
    04:36 Let people know
    05:27 Pay attention to your brain chemistry

    • @k.m.223
      @k.m.223 Год назад +39

      As someone who's also off their meds and can't sit through the whole thing, thank you.

    • @NarwhalAcademy
      @NarwhalAcademy Год назад +37

      @@k.m.223 I had a little exec function to spare and I was just going to save the time stamps and link in a note for myself and it occurred to me it could be useful for others! Glad it helped 🥰

    • @dare2liv_nlove
      @dare2liv_nlove Год назад +13

      @@NarwhalAcademy Here too, highly appreciative of you deciding to share it! 😊

    • @gwendolyncrutcher7236
      @gwendolyncrutcher7236 Год назад +11

      I want to Thank you for putting in the timestamps.

    • @supermeansadie6753
      @supermeansadie6753 Год назад +3

      @@k.m.223 same here my internet search history and RUclips library is even crazier than normal!!

  • @ericapelz260
    @ericapelz260 Год назад +36

    For myself, I altered #2 to "adjust other people's expectations." Maybe tell folks it's a bad concentration day rather than mention meds. It depends on your coworkers, boss, teacher, classmates, etc., and what you are comfortable telling them.

  • @TwoPlusTwoEqualsFive32
    @TwoPlusTwoEqualsFive32 Год назад +284

    I went from age 12 to 30 without any meds, I don't recommend. Mostly I have just tried to keep my life as minimalistic and as straight forward as possible, job that doesn't require complex thinking, less belongings, less subscriptions to services and just having lots of boxes you can shove things into to keep things "somewhat" organised."
    I think the biggest critical factor is having a supportive friend or family member who is aware of your ADHD and have them visit regularly just to give you a reality check and help you body double with cleaning and chores, I have found even if they are just sat down keeping an eye on you that tends to drive you forward to get more done.

    • @lorddedionware7526
      @lorddedionware7526 Год назад +1

      I never really liked taking my meds, I would get work done but it always just made everything less fun so I wouldn't take them over the weekend.

    • @kirintenshi
      @kirintenshi Год назад +8

      Even with meds I keep my life minimalistic because it just makes life so much easier and happier for me.

    • @normanbabbitt8876
      @normanbabbitt8876 Год назад +3

      This is my favorite post yet. I make my living by essentially how much pain I can take, and how much longer I can keep working. While most have a 40 hour work week I have a 68. I'm o.k with this.

    • @shawnphillips2556
      @shawnphillips2556 Год назад +8

      How did you get diagnosed at 30? That's about my age and the doctors diagnose me with "if you had ADHD, you would have already been diagnosed. You probably have depression...
      Which is funny. Because I do have depression... Which i take meds for... It does not get rid of my add!
      Be refused the concept that it was possible

    • @markdavis5176
      @markdavis5176 Год назад

      ahh,, the doom box..

  • @spoogly
    @spoogly Год назад +754

    The shift between you having a little difficulty starting the video to you being completely engaged in it is so much more apparent when you're off your meds. At their core, your videos are a form of storytelling, and I know I'm exactly the same way when I get into a story.
    I'm really glad you chose to make this video. I've been unmedicated for a couple years because my coping strategies are sufficient to match my current lifestyle. But I remember the feeling of not having my meds for a few days, and it was very not good.

    • @aenithharper2417
      @aenithharper2417 Год назад +12

      I agree so much with relating to that transition.
      Thank you for sharing your story.
      I too I went off meds for 7 years. Recently my lifestyle changed to a higher demand so I am trying out meds again just in time for this shortage.

    • @spoogly
      @spoogly Год назад +8

      @@aenithharper2417 oof. I hope you're able to get the care you need. I'd have suggested viibryd as an option since you're just starting back up, but my pdoc told me a lot of people on viibryd also take Adderall to help with the comedown or for sleep, so you'd still be stuck dealing with the shortage if that was what you needed. And I can completely understand why. I was a total jerk when it started wearing off.

    • @adelai3795
      @adelai3795 Год назад +13

      So I am a bipolar Brain that you told was allowed to be in our tribe a few years ago. I’ve been following and I am weaning off my meds because I’ve learned coping stategies. I appreciate this lesson because as someone who is trying to look at being off her meds long term, this is a really good outline. I can’t stay on my mood medications long term because they interfere with other medications that make daily like feasible, so as someone who is managing a brain sans medication I appreciate this, and any other videos you have on this topic.
      P.s. being without meds sucks and I feel for you. You’ve been there through ever step of my struggle with a brain, even if it meant your own struggles, and I appreciate that. Thank you.

    • @chuuchuububble1572
      @chuuchuububble1572 Год назад +6

      @Andrew Peterson Could you tell us what your coping strategies are and what your current lifestyle is, if you don't mind?

  • @willtharp7477
    @willtharp7477 Год назад +95

    The first time I ever took my medication, I sat down, waiting to see what effect it would have. I woke up about 45 minutes later. Apparently that was the most relaxed I had been in my life.

    • @thecagedsong
      @thecagedsong Год назад +20

      Lol same. I asked my psychiatrist if that was a normal reaction and she went silent for a bit before saying "no, that shouldn't happen, I think you should up the dose"
      Still make me sleepy sometimes, even at my current dose, because brain finally shuts up for a moment letting body finally rest.

    • @kid_missive
      @kid_missive Год назад +7

      @@thecagedsong It is not an uncommon reaction, especially earlier in the dose. I get the same thing! :D

    • @LaundryFaerie
      @LaundryFaerie Год назад +2

      Yep, lowest-dose Daytrana made me super sleepy. Bringing the dose up a bit made it work differently.

    • @flawlix
      @flawlix Год назад

      I’m now taking Focalin because of the shortage, and it makes me so sleepy!

    • @kid_missive
      @kid_missive Год назад +2

      Many drugs that induce the release of dopamine can cause something that can feel like sleepiness (although it's not an identical feeling for me). It can be a little nauseating too, but definitely associated with somnolence the right mind state. I just associate it with "the dopamine feeling". lol

  • @positivelykaylamarie
    @positivelykaylamarie Год назад +389

    Can you please do a video on *body focused repetitive behavior (BFRB) with ADHD* (i.e. nail biting, skin picking, cheek biting, etc.)? I feel like it's not talked about very much, but I've struggled with a lot of them my whole life.

    • @TheShinySnivy
      @TheShinySnivy Год назад +23

      ooh great suggestion

    • @d1ss0nantBecca
      @d1ss0nantBecca Год назад +13

      please yes

    • @HotTakeAndy
      @HotTakeAndy Год назад +27

      Is this what it is? My psych told me it was self harm. I bite holes in my mouth.

    • @dougclendening5896
      @dougclendening5896 Год назад +1

      This is called stimming and also a symptom of anxiety and autism spectrum disorder

    • @the1tnin
      @the1tnin Год назад +7

      whenever i take adderall the cheek biting thing is just more and more common.

  • @JD-pd3gl
    @JD-pd3gl Год назад +77

    I didn’t know the shortage had been going on so long, I only needed to get my meds refilled recently & called my pharmacy today & they told me about it😭 Right in time for finals week!!! I’m so frustrated

  • @mariamshah338
    @mariamshah338 Год назад +226

    I’m a college student who finally got the right medication. This medication shortage scares me. It also scares my mom who’s a child psychiatrist. I NEED my medication. It’s literally life changing for me. I cannot go through college without my meds and I’m terrified right now.

    • @victoriaveitch6650
      @victoriaveitch6650 Год назад +19

      Miriam, I am so sorry about about your troubles. Have you tried talking to your professors about your courses and adjusting your learning plan? I know this depends on the university and your location so this may or may not be a helpful suggestion.
      I grew up in the US and I know my professors were less than understanding. But here in Australia, negotiation is possible for me when I am a wreck.
      If your school isn't amenable to negotiation, please know that at the very least I am in your side and scared for you too. I started my medications in university and can't cope with studies without them either.

    • @SmallSpoonBrigade
      @SmallSpoonBrigade Год назад +12

      You probably can, a ton of folks with ADHD did, and in many cases didn't even know that we had it in the first place. That being said, it's less than ideal and does make it even more important to talk with the college about what accommodations can be made to lessen the impact of not having that medication.

    • @raapyna8544
      @raapyna8544 Год назад +8

      @@SmallSpoonBrigade You can, but at what cost? Is the question.

    • @SmallSpoonBrigade
      @SmallSpoonBrigade Год назад +2

      @@raapyna8544 Of course there's going to be a cost, just probably not as high as the OP was suggesting. There are accommodations available, and people regularly graduate college without medication for one reason or another. This level of angst is neither appropriate to the problem nor helpful.

    • @mariamshah338
      @mariamshah338 Год назад +14

      @@SmallSpoonBrigade No the cost is very high. My university is terrible at providing accommodations and you can only request them in the first two weeks of the semester. I want to be a doctor and if I don’t have ADHD medication, I’m screwed.

  • @heavenlycute
    @heavenlycute Год назад +487

    I was diagnosed with ADHD this summer and in August I tried medication for the first time. It was fantastic! All of a sudden I was a lot less anxious and reactive, I didn’t overeat like I usually do and I actually *did stuff* instead of just thinking about them! I was absolutely crushed when I had to stop taking it after only 10 days because my blood pressure was through the roof! I was absolutely devastated. It was like I had been shown a different, a *better* world and then told nuh-uh, you can’t go there. Now I’m going through all these tests and medical assessments to find out if I have the heart health to possibly go back on ADHD medication, and it’s compatible with my blood pressure meds. I really, really, really feel for all the ADHD’ers who can’t get their meds now.

    • @DamnMandi
      @DamnMandi Год назад +34

      Lisa, talk to your doctor about non-stimulant medication. It works super well for many people, and it's usually easier for the heart to handle.

    • @ldbarthel
      @ldbarthel Год назад +17

      I feel you, Lisa. I'm in the same boat - I was switched to a different med because of those concerns and I can really tell the difference. (I had been off meds due to lack of coverage for several years, and had gotten used to not having the pharmaceutical support. The few months I was back on were fantastic in terms of focus and emotional regulation. I had forgotten how much of a difference the right meds can make.) Hopefully we can make a different change at my next appointment - I had my annual cardiology checkup and he thinks I should be fine, possibly a tweak here or there.
      It's a pain going through the trials - hopefully they can find the right mix for you soon.

    • @ginac7235
      @ginac7235 Год назад +10

      Cardiologist Dr. Caldwell Esselstyn and physician Dr. Dean Ornish are two pioneering doctors who have shown that heart disease can be reversed by adopting a whole foods plant-based (WFPB) lifestyle. It would be worth looking into to improve your heart health. Then maybe you can get back on your adhd medication you like. ❣️WFPB lowers blood pressure.

    • @Mumsy711
      @Mumsy711 Год назад +12

      Can you handle coffee. I saw where a guy drank measured strong coffee through the day as a stimulate. Was better than nothing, he said it helped

    • @lucsmith2092
      @lucsmith2092 Год назад +10

      @@Mumsy711 that’s me. Undiagnosed but sure I am ADHD. Drink LOTS of coffee “focus juice” to get me through the day. Wonder what the difference would be like if I were on stimulant meds, would I focus BETTER …

  • @Annaspopoff
    @Annaspopoff Год назад +51

    I was off meds from age 20 to 38, cried when I got back on my meds because I had been struggling for so long and I could live a normal ish life again, Was a relief.

  • @AITCOYE4444
    @AITCOYE4444 Год назад +43

    As I'm in an ADHD paralysis watching your videos trying to get back up, just wanted to say that yes it's been such a struggle without my meds !! 😭😭😭😭 Thanks for your videos!!

  • @Bandrik
    @Bandrik Год назад +38

    As someone who takes adderall, I relate strongly with this video. Very similar results and feelings. Easiest way to describe it is that it turns the feeling of "I don't want to do it" into "sure, let's do the thing". It gives me motivation and relieves anxiety and depression. Very helpful and I'm thankful for it.

    • @barbrasmerz3846
      @barbrasmerz3846 Год назад +6

      When I was without my Adderall for a few weeks trying to track down some somewhere, I did find that Olly brand happy Worms (or something to that effect - it's gummy worms that have vitamin D3 and saffron, which helps our brains release dopamine 😉) which helped a bit with the "gumption" problem as I call it 😁 They're super yummy, so it's really easy for me to remember to take them 🤣 Hope this helps 😀

    • @Bandrik
      @Bandrik Год назад +1

      @@barbrasmerz3846 interesting, I might check that out, thanks!

  • @xerofelix7090
    @xerofelix7090 Год назад +166

    A few weeks before the shortage was first announced, my husband lost his job. A week before, we lost insurance. Which means no meds anyway, and no knowing when we'd have insurance again. So I feel this SOOOO hard right now.
    We're currently in a different state living with family, but e hope we can apply for medicaid or something, but the shortage is quite concerning for when we do get insurance. 😰 I just hope we get this figured out soon.

    • @magvs_maestro216
      @magvs_maestro216 Год назад +3

      ::astral hug:: to you and your husband_ its going to work out. And remember, when you pray, don't pray for non of this to happen, but rather pray to give you strength to get through it...eye have faith in you guys

    • @sunriderksy
      @sunriderksy Год назад +5

      Hugs indeed. I don't know if this will work for you but perhaps worth a try? When my son prescribed Adderall XR we found that our insurance would ONLY cover the name brand - 30 days worth was about $90. Generics exist and I found that a GoodRx coupon could get us the same number of generics for about $35 - and in September it refilled for $26.
      Good luck.

    • @niccilefevre
      @niccilefevre Год назад

      @@sunriderksy Yeah thats what I do since I have no insurance. lol its the only reason I go to walmart anymore, get my meds for $33.

    • @leilap2495
      @leilap2495 Год назад

      Your post exemplifies such a big part of what is wrong with out healthcare system. You shouldn’t have to lose access to care. When I was in between care, I was able to get meds filled through a remote service and had it filled at the cheapest pharmacy I could find on goodrx. I wish you and your family well.

  • @Viola1891
    @Viola1891 Год назад +43

    I wanted to add that another reason you might want to have a day without your meds is if you are planning on drinking. I’m not condoning in binge drinking or anything but, apparently ADHD meds can effect how alcohol makes you feel and you can feel *less* drunk so you end up drinking more till the stimulants wear off and you are hammered. (Wish I had known this is college but whatever 🙄) I had just upped my meds and was going to a college friend’s wedding and my therapist suggested I skip my dosage that day so I could stay in control. I wanted to share as we head into the holiday season.

  • @n.d.8276
    @n.d.8276 Год назад +9

    This shortage is terrible. I haven’t been able to get a refill on my meds in about 6 months. Then finally, this month I called the pharamcy and they had the name brand in. We paid out the nose, even with insurance. BUT WOW, I feel human again, I can think again! I hope this shortage ends soon.

    • @xant8344
      @xant8344 15 дней назад

      Still waiting 😢

  • @maryamp1867
    @maryamp1867 Год назад +173

    I got diagnosed for adhd now at 46 years old and got medication Concerta is fantastic this change my life totally.
    I could see how toxic my husband was and break our relationship, I got a totally work situation I got a much much better relationship to my children.
    I wish everyone out there to found help ❤
    Thank you for your videos ❤ I love them

    • @92RKID
      @92RKID Год назад +8

      Maryam, Concerta does wonders! I credit it for like basically fixing some of the things I had going on when I took it in high school. I don't take it anymore but I do absolutely recommend it as an ADHD med. I like to joke that it reset my mind to the ADHD equivalent of the factory default!

    • @obgfoster
      @obgfoster Год назад +10

      I thought it wasn't helping me but then suddenly realized I hadn't rushed around my apartment looking for my phone or my shoes in a couple of weeks! That had been my way of life for my WHOLE life!

    • @maryamp1867
      @maryamp1867 Год назад +1

      @Gaurav Goswami no I only got Concerta do you recommend it? Do you think is better?

    • @zoeolsson5683
      @zoeolsson5683 Год назад +6

      Concerta is available to me quite cheaply under the Australian pharmaceutical scheme. I started taking it this year. Blown away by the change. Is level of executive functions what everyone typical has access to!!!!! Much grief about how my life could have been if my decision making and attention could have been regulated like it now is.

    • @sabinajoh
      @sabinajoh Год назад +1

      We have a concerta shortage 😭 both my brothers take it and even though the main company making it is in the same country, we have basically none

  • @averycockburn31
    @averycockburn31 Год назад +136

    Some of these tips (especially the exercise and leaning on coping mechanisms) are really useful for those of us who can't (or can no longer) take stimulants for side-effect reasons. 😔 For me, regular exercise really helps with energy level and focus. Having an accountability buddy helps with short-term goals like daily word counts or emails.

  • @destinyinvest364
    @destinyinvest364 Год назад +56

    I am so grateful that I found this channel cause I have been so embarrassed about my ADHD and I have been off meds for years a boy a lot of things has suffered

  • @suzannehyden2751
    @suzannehyden2751 Год назад +108

    Writing is incredibly hard without meds. I developed tachycardia and can no longer take stimulants and its incredibly challenging. Thanks for what you have done for ADHD advocacy. ❤️

    • @MorriAelthyn
      @MorriAelthyn Год назад +6

      I'm at that spot. The really irritating part for me is that the tachycardia was caused by another med I'm taking, but instead of changing it they insisted I need to phase out my stimulant. 😖

    • @Chironex_Fleckeri
      @Chironex_Fleckeri Год назад +1

      @@MorriAelthyn Oh come on.

    • @_asantesana_squashbanana_
      @_asantesana_squashbanana_ Год назад +5

      @@MorriAelthyn fight it, with proof, and a 2nd or 3rd opinion. When Drs mess up, sometimes they just make sh*t up. Be well. X

    • @JC-du6sn
      @JC-du6sn Год назад +1

      Look up the Healing Journeys of Hannah Terradez and Maren Hamm on RUclips 😇

    • @Szenenmischa
      @Szenenmischa Год назад +5

      I have to write so slow to make no weird grammas... I have huge problems with that.. I own a business and write with customers... it is soo challenging... even this here took me like a full minute to write and check up and I still had to edit it.. man I really wish I had it more sorted like you guys

  • @AMSA.3208
    @AMSA.3208 Год назад +10

    I HIGHLY recommend (if and when possible) squirreling away meds at times when you don't need them like when you're at home sick in bed, not going to school or work or scaling back half of your dose on a weekend day. Having that med savings account can REALLY save you.

  • @3-E
    @3-E Год назад +101

    If you take Adderall daily, I highly recommend taking 1 or 2 days off each week. I have found this helps to balance "tolerance creep". There are a few other reasons I like this practice:
    1) It is probably purely psychological but it makes you appreciate it more on the days you do take it
    2) It gives you small opportunities to practice life without it
    3) You can slowly build up an emergency stash which can really come in handy if there is a delay in getting your prescription refilled (or now when there is a shortage)

    • @BoyMama87
      @BoyMama87 Год назад +5

      Great points! I need to do this cause I take it daily and my brain needs a break.

    • @16ShiningUmbreon
      @16ShiningUmbreon Год назад +15

      I've considered doing this but I have found so far that the Adderall helps me on the daily. I get more tired at night because I'm more energetic during the day so I sleep better. I am actually more present for the activities I enjoy doing, like hanging with my friends and playing video games. I like the idea of taking a break from it just so I don't develop a tolerance, but I also know if I skip it entirely I won't be able to enjoy the things I like to do as much. Not sure if anyone has any feedback about that issue.

    • @jessieprahmmiles6406
      @jessieprahmmiles6406 Год назад +8

      This did NOT work for me when taking the extended release. Taking immediate release now, I can do that. It may or may not work for each individual and also dependent on which med they're taking.

    • @desertrat5543
      @desertrat5543 Год назад +4

      I did this and had enough to hold me over for 10 days. I only had a few days unmedicated as opposed to two weeks.

    • @chalkedlines8960
      @chalkedlines8960 Год назад +4

      Yup, every Sunday is my brain rest day. Like you, I have found it really helps reduce tolerance. I never worried about stashing away the extra meds until now.

  • @arobril8701
    @arobril8701 Год назад +22

    I have been off my meds for maybe 6-8 months. I went to renew and my doc denied with no explanation and I haven't asked. I figured I functioned for 40+ years prior to diagnosis, I can do it again. I have definitely noticed the difference. Motivation is big struggle, I'm tired a lot more, and I'm not as productive at work. I cope with caffeine and organizational strategies that have worked in the past, like task lists. Let's just say, Overwhelmed is my constant companion...

    • @whatisahandle221
      @whatisahandle221 Год назад +5

      Sorry to hear your doctor just shut it off.
      I’d encourage you to find a new doctor. Or necessarily because you _have_ to be on meds, but because you and your current doctor don’t seem to be communicating well.
      Any big move to change, start, or stop chronic, sustaining medication should be a cooperative and planned decision, not a unilateral and poorly communicated decision.

    • @user-corgipoopybutt
      @user-corgipoopybutt Год назад +3

      You sound like me.. I just tried nootropics… vyvamind and actually found less zombie like.. b vitamins, other dopamine helpers and caffeine.. noocube I heard good reviews

  • @Neyjina
    @Neyjina Год назад +8

    I‘m so happy that we don’t have a shortage where I live. I‘m a PICU nurse so there are literally lifes depending on my ability to focus properly.

  • @rufidaalbakri6800
    @rufidaalbakri6800 Год назад +53

    I'm dental student and I can't keep up with my studying because of lack of medication and even normal mental treatment, so this is very helpful and it's feel good to be relatable too and I'm not the only one experienced this

  • @featherstone2.0
    @featherstone2.0 Год назад +84

    This could not have come at a better time. I haven't been able to be on my meds fully for almost a month and it has messed me up so much. This helped so so much.

    • @HowtoADHD
      @HowtoADHD  Год назад +8

      Oh no that's awful I'm so sorry! Glad the video helps

  • @debratracy2960
    @debratracy2960 Год назад +57

    I absolutely love this channel! Im 45 been diagnosed since about 8 years old, survived elementary thru high school on Ritalin. Took a break for a few years struggled in the workplace and been on Adderall for YEARS. At 42, became pregnant and went cold turkey off meds - Almost lost my job. Im happily, back on my meds able to work, manage my home & toddler. I've learned the importance of knowing yourself on & off the meds. Growing up I took summers & weekends off and as an adult I too give myself permission to take a day off & have no expectations or accomplishments required of me. It is incredibly hard for me to manage my emotional state when unmedicated. My unfiltered brain to mouth can be hard for someone who doesn't know me. My boyfriend teases me when unmedicated that he absolutely WILL NOT go grocery or any shopping with me, he's miserable with my lack of direction, decision making skills (even with a list in hand!). On the plus side when unmedicated and not overwhelmed or stressed my natural personality shines, my ability to have fun & find humor around me comes easy.. plus my creativity is completely unlocked - Again, only when not stressed or overwhelmed.

    • @HH-gv8mx
      @HH-gv8mx Год назад

      I’m really struggling now. I’ve been on Adderall for over 20 years. And I cannot get my prescription filled. It’s really affecting my sleep patterns and my mood and my ability to focus and get things done. I’m starting to fall into a depression. When is this Adderall shortage going to end?! My doctor suggested Concerta but I think there is even a shortage of that. And I’m nervous to try something, but I don’t know how it’s gonna make me react.

    • @udirt
      @udirt Год назад

      wonderful description, thanks that you shared this. soothing and especially the part about creativity.

  • @Wow-gg5mz
    @Wow-gg5mz Год назад +18

    Today I was finally diagnosed. And I'm still accepting that it is almost impossible to get meds in my country. I'm also have really harmful coping mechanisms because of untreated bpd due to misdiagnosis in the past. But your channel really brings me hope for a possibility of peaceful future ☺️

  • @tempestseraphim5457
    @tempestseraphim5457 Год назад +163

    This channel convinced me to get my daughter and myself diagnosed! We were prescribed Concerta but had to wait about a week to get them filled as they were on backorder due to a shortage, shipping, or whatever. My kid's teacher and my wife say they can definitely tell the difference between us medicated and unmedicated. Medicated, we are engaged and focused. Unmedicated there is a direct link from our brains to our mouths, our brains are running at Mach speeds, and we become a highly distractible, fidgety, ball of chaos in human form.

    • @jimwilliams3816
      @jimwilliams3816 Год назад +12

      @Tempest Seraphim a direct link from the brain to my mouth is a perfect description of me. When I used to travel for work I often worried that the people I dealt with would think I was on coke. It’s finally sinking into me why. Hoping I can do something about it, I can’t keep going the way I am now, I exhaust everyone including myself.

    • @katythriftyunder35homeowne57
      @katythriftyunder35homeowne57 Год назад +5

      I took Concerta for years as a child. Adderall Extended release has been a game-changer for me

    • @tempestseraphim5457
      @tempestseraphim5457 Год назад +4

      @@katythriftyunder35homeowne57 I was just diagnosed, so am in the infancy of my journey. The first day I took the first pill and it kicked in...it was disarming how quiet my brain was. Almost eerie. The eerie feeling didn't last because I realized that silence came with focus. For the first time in my life I can start a task, get interrupted, then go back to that same task! It's magical.

    • @tempestseraphim5457
      @tempestseraphim5457 Год назад

      @@jimwilliams3816 never hurts to get checked out to see what might be best for your needs.

    • @monakeulen5622
      @monakeulen5622 Год назад +4

      I regret taking Concerta for the rest of my life. It killed the joy I had when I was working on my hobbies. It killed my creativity and it killed my hyperfocus. I hate it that nobody told me these can be the side effects, so I hope those who read this will make a more balanced choice of what's good for them.

  • @c4t4ly5t
    @c4t4ly5t Год назад +153

    Having never been put on ADHD meds, now at 42, I often find myself wondering what the world looks like from a neurotypical person's perspective. Being able to filter out sounds other that what I'm actively listening to sounds like a super power to me.
    Having said that, I'm kind of glad that I've never been put on meds, since I really learned a lot about my brain and how it works, and I've honed my coping mechanisms considerably. I do sometimes still wonder, though.

    • @quiptheip
      @quiptheip Год назад +17

      I'm 39, never been on meds and grateful I have been able to reign in many aspects of my ADHD. I've been seriously contemplating starting meds as I feel they might compliment the ways I've learned to deal with my ADHD. After changing careers, I've started to realize how "fuzzy" many of my own coping skills are and where some of my weaknesses lie and wonder what they could do to improve my skills and focus. Until the shortage is resolved it isn't a journey I'd undertake and don't know if I ever will, as I know I will be okay if I never go on meds. The thought of what the other side of meds looks like is really intriguing though and it was nice to hear someone else express the thoughts of wonder about meds later in life.

    • @alexlail7481
      @alexlail7481 Год назад +23

      I was diagnosed at 27 and am now 42. My favorite way to describe it to others is...
      Remember the longest stretch you've went without sleep and your ability to concentrate and effectively complete tasks. Now if you can separate the tiredness from the ability to concentrate... that is what it's like for me everyday without my meds...

    • @lovinourfiveboys3952
      @lovinourfiveboys3952 Год назад +2

      SAME!

    • @HassanSelim0
      @HassanSelim0 Год назад +4

      At least in my case with Atomoxetine (a non-stimulant) my sensory sensitivity increased, it's almost like I pay attention to everything better including the noise, or it could be that I'm going through an Autistic burnout and it's getting worse.
      Thankfully I've purchased noise-cancelling headphones and loop earplugs, so there is an overall net positive in my life.

    • @evehanlin
      @evehanlin Год назад +10

      Yes, pills don’t teach skills! ❤ I was terrified to start meds. But an encouraging family member helped me.
      My experience is that it’s easier to get traction. The struggle between wanting to do something and actually doing it decreases significantly. My animal brain emotions aren’t as overpowering (anger, sadness). My thoughts are calmer. It’s more than just focusing, though that is a part of it.
      Like you still have to climb the mountain, but you have snowshoes instead of boots.

  • @erinbuck129
    @erinbuck129 Год назад +4

    One “positive” I will say for being diagnosed as an adult: I feel like I have a clear grasp on how I function without meds. Going without them doesn’t worry me as much as it might if I had grown up taking them. Just me finding a silver lining

  • @ArjanKop
    @ArjanKop Год назад +25

    My meds were taken off the market and the substitute was horible. Almost two years later, I’ve learned to just acknowledge what I’m good at and what I’m definitely not. In work, that is ok. In personal life, it’s a big set back.

    • @bellabear653
      @bellabear653 Год назад +7

      I am sure the chronic pain patients feel a lot like you as well. It sucks that someone other than yourself has this much control over your life and happiness.

    • @user-tf7of1pz4c
      @user-tf7of1pz4c 6 месяцев назад

      @@bellabear653 this is what affects me the most...

  • @pnut9995
    @pnut9995 Год назад +80

    Since failing all ADHD medication after giving birth to my twin sons, I rely heavily on coffee, trying to sty hydrated and drinking my water, and the understanding of others. I am REALLY struggling with Emotional Regulation, though, too. Life was so much better when Meds worked for me. I still take my Adderall in certain situations to help make me feel a touch more in control, but it maxes out my anxiety.

    • @Seeker0fTruth
      @Seeker0fTruth Год назад +6

      Mom of three boys…I hear you so much. Sooooo much. Group therapy has been huge for me and understanding my emotions through a lens of IFS (Internal Family Systems). Thanks for sharing. ❤

    • @ThatJay283
      @ThatJay283 Год назад +3

      damn. i hope you find something that works well for you. my experience is with caffeine is that i can drink maybe 2 monsters then I'll be able to focus but it also makes me shaky and puts my heartrate above 100 bpm and makes my ears ring which isn't great so i don't do that anymore, instead i use vyvanse. i wonder if there's any alternative stimulants you could use like desoxyn? ik that's prescribed in the us

    • @pnut9995
      @pnut9995 Год назад +6

      @@ThatJay283 Thank you! I haven't given up. I am using coffee and water. LOL

    • @pnut9995
      @pnut9995 Год назад +3

      @@ThatJay283 Thank you! I drink 2 - 3 cups of coffee a day and drink water the rest of the day. I am looking into whatever I can.

    • @pnut9995
      @pnut9995 Год назад +2

      @@Seeker0fTruth Here for you, too!

  • @elilambie4334
    @elilambie4334 Год назад +129

    These tips are great. In addition to stimulant medication, I have noticed a few things that have had a tremendous positive impact in treating my ADHD-
    1- getting enough sleep
    2- exercising every day
    3- cutting out processed sugar
    4- drinking enough water
    I plan to continue to stay consistent on doing these 4 things until the shortage ends. Good luck to everyone!

    • @cbazxy2697
      @cbazxy2697 Год назад +3

      How does cutting sugar help?

    • @erinmcdonald7781
      @erinmcdonald7781 Год назад +1

      Thanks for the reminder. This time of year it's easy for me to eat more sugar because of the holidays. Halloween candy got me this year. ✌️😎🍀🦋

    • @elilambie4334
      @elilambie4334 Год назад +6

      @@cbazxy2697 great question. Cutting sugar stabilizes energy levels tremendously. Also, sugar causes an inflammatory response in the body and can cause things like headaches. Not everything works for everyone, but this one has worked wonders for me. Give it a try!

    • @robertapelin5755
      @robertapelin5755 Год назад +8

      And eating enough. At least for me, if I'm even slightly hungry (not even to the point I feel hungry yet) I get anxious and restless which is both distracting in itself and makes me more easily distracted, I think low blood sugar and low dopamine can feel quite similar

    • @Greg-yu4ij
      @Greg-yu4ij Год назад +2

      @@elilambie4334 Sugar also causes you to have an insulin crash

  • @skiingowl
    @skiingowl 4 месяца назад +1

    Came here to re-watch this because my meds have been out of stock for 3 weeks. I am not enjoying being off with the fairies at a time when I have urgent, important stuff to get done, but the reminder to tell people is like, oh, yeah. I told people at work, but not the people at uni, and that is vastly more important right now. Thank you for the advice.

  • @joew717
    @joew717 Год назад +31

    I found that there are certain conditions that worsen my ADD including fatigue and stress and that trying to minimize those helps a lot. Say if I'm running on little sleep and am under immense pressure of a deadline etc I'm in for a rough day. The smallest tasks feel like moving mountains and problems I can usually solve feel foreign and frustrating. Exercising helps but it's hard to when you've wasted most of the day attempting to work and now have even less time to wrap up your tasks

  • @justafikus2287
    @justafikus2287 Год назад +44

    As a person who can't get meds because of living in a country that don't really like to give them, I'm really grateful for this video. I've never taken a medication and I'm struggling really hard with some things that people consider normal and I really wish that one day I would have an opportunity to take meds. But for now, even some tips are really helpful

    • @ray.t.georgi
      @ray.t.georgi Год назад +1

      I've also never been able to access meds, and the struggle is so real. And people keep telling me how to do stuff, and I really really can't and it ends in a panic attack. And then the same people tell me to not even try to get meds because "they will affect my brain". yeah that's the point tho innit...

    • @ChildrensRightsFirst947
      @ChildrensRightsFirst947 Год назад

      True Focus and Alpha Brain have been supplements that help me out a lot.

    • @javiercmh
      @javiercmh Год назад

      Omega 3 supplements and green tea have been my "substitutes"... There are some studies about their effectiveness on people with ADHD, but remember to keep in mind individual differences (see what works for you). Good luck

    • @mouse9831
      @mouse9831 Год назад

      I coincidentally took up meditation to help with emotional regulation prior to the shortage. Adderall helps give me that slow, single & clear mindedness that a good, long meditation session gets me. Of course, it takes discovering what techniques and philosophies work for you (as well as other adjustments, people with ADHD can meditate!). I've also experienced 'runner's high' a few times and I can confirm that the blood rush and focusing power is the same as when you take your adhd medication. The right amount of caffiene will help you focus, too.
      There's plenty of workarounds! It just takes time and regularity to make them most effective, which, uh, sucks when you have adhd. But it does work, and it's what I've been using to cope as a college student this past month.

    • @killy374
      @killy374 Год назад

      @@mouse9831 people with adhd can meditate*
      Speak for yourself 😂😂😂

  • @TastierBackInThe80s
    @TastierBackInThe80s Год назад +31

    I need to get diagnosed. What you describe when you're off medication, is how my life has felt for the last 40 something years.

    • @amuza5928
      @amuza5928 Год назад +4

      I hope you can get diagnosed. There is so much validation and self compassion that stems from it, even if you don't go to meds (right away, or ever).

    • @Hisglorre
      @Hisglorre Год назад

      😮 60 years for me. 😢

  • @ohnoZomBri
    @ohnoZomBri Год назад +12

    Such an important video right now. No one close in my life has (diagnosed) ADHD, and the extremely bad days I’ve had during this medication shortage sometimes makes me feel like a pill-popping drama queen.
    You and my therapist help me remember to keep a good relationship with my treatment, it’s okay that I need my prescription, it’s okay that it’s hard right now. Thank you thank you

  • @jhsevs
    @jhsevs Год назад +1

    I love it when videos start buffering or unskippable ads show up. It makes me jump out of my chair after sitting there for ages

  • @anisa2273
    @anisa2273 Год назад +24

    This is soo true. Taking meds and having supportive and non-judgmental peers is definetly a PRIVILEGE! I unfortunately don't have those (besides mom), and most/all of ADHDers in my country don't either... there are no meds anywhere here and I'm just struggling to do what most seem to do fine... it sucks.

    • @SmallSpoonBrigade
      @SmallSpoonBrigade Год назад

      It is, and historically it wasn't even an option. If you can't or don't want to take medication, then you're left with organizing your work to best make use of what you've got and generating the necessary neurotransmitters in other ways. Definitely not convenient, but if medications are off the table, then that's largely what you're left with.

  • @melaniedejonge5234
    @melaniedejonge5234 Год назад +12

    I am intentionally shifting to a life without meds over the next couple of years because I want to travel extensively internationally and don’t want to have to plan my itinerary around where stimulant medication is legal to bring in (a complicated and very limiting prospect…not to mention actually having to come “home” every few months to get the meds!), so these tips are coming in right on time!

  • @winterzee
    @winterzee Год назад +4

    The adderall shortage is really affecting me at work. Before going on meds, I used coffee to focus, but I went on meds because that became less effective. I've switched back to using coffee, but it's just not the same. And it's a struggle!

  • @c.a.honeycutt5046
    @c.a.honeycutt5046 Год назад +4

    I’ve had some overlap between prescriptions, so even during the times where I couldn’t get the meds, I still had access to some. Today is the first day without that cushion of extra pills, and it’s been absolutely miserable. I have bad brain fog, I feel tired but also anxious and restless, and I’m so hungry. My stomach won’t stop growing. Every moment that passes at work is more and more excruciating. I can’t believe I was dealing with these symptoms for so many years before taking meds.

  • @jacoblynam923
    @jacoblynam923 Год назад +6

    This is why we should be allowed to stockpile our stimulant medication (adderall, Vyvanse, etc.). Our drug laws do way more harm than good and policy makers have absolutely NO IDEA how painful/uncomfortable it is to go even a few days without those meds. But since they believe that people with adhd really don’t need these meds; they won’t be worried about those who go without it.
    Here is my favorite quote a really terrible therapist told me and let me know if you agree or disagree, “stimulant medications like adderall are a privilege, not a right.”

    • @chalkedlines8960
      @chalkedlines8960 Год назад +2

      I agree, that person was a really terrible therapist. But that seems to be a rather common sentiment among many mental health professionals, unfortunately.

  • @annem8704
    @annem8704 Год назад +20

    I live in the Philippines and have not taken meds in 2 weeks. We also have a shortage here. Seeing that it's like a GLOBAL issue is really scary. 🥺

    • @fheylaxa6257
      @fheylaxa6257 Год назад +1

      Fr?? Me too.. I’ve tried in the three provinces that I visit and none of them had any stock..

    • @australobuchia
      @australobuchia Год назад +1

      Global shortage definitely, also having problems with it in Australia

  • @mr_green33
    @mr_green33 Год назад +16

    2:46 this moment right here struck home deep. I’m not currently on meds and have been giving it a go without them for a while and with this time I’ve had off my meds I’m actually seeing the benefits they have on my life as a whole. ADHD has taught me a lot about dopamine and I’m realizing that my brain simply doesn’t produce enough on its own. With the help of meds bringing my dopamine levels up to baseline where they’re supposed to be everything just seems, fixed. Like taking a broken sink and fixing it. Like it just fixes me. Sounds funny I know but I’ve been off my meds for a while now and that’s what I’ve come to realize during my time off. Stimulant medication just fixes our dopamine levels.

  • @benhagstrom2185
    @benhagstrom2185 Год назад +2

    I can't get meds at all because my Health Provider won't officially diagnose me, even though all the doctors who worked there tested me and are 90% sure I have it. So these coping strategies are all some of us have, thank you for putting them out there!

  • @ericaledel4065
    @ericaledel4065 Год назад +12

    I was diagnosed as a kid and used stimulant meds for years, when I became an adult and got into the workforce and started dealing with my other issues it became clear that the side effects of my meds were a big problem so I've had to be off them for nearly 10 years now, and these tips are what I have to do to get through every single day, the life I hoped for as a kid just isn't in the cards for me, and that's OK, now I listen to my body and my brain and my service dog to make sure I take care of myself without overloading my limits.

  • @vaultfox
    @vaultfox Год назад +23

    I didn't take my meds this weekend for the same reason you did (solidarity) and it was TOUGH. I'm so thankful I had my husband with me because I basically relied on body-doubling to get any amount of work done. We were building furniture and it was getting late on Sunday night and I COULD NOT get my mind off of the idea that we had to finish building this one piece so I could make sure it fit where I wanted it to. He tried to give me the measurement and reassure me but my brain just would NOT get off of this one topic and I finally broke down and told my husband I didnt take my meds and it was why I was so fixated/spiraling about it. I kinda wish I had told him earlier because he was so understanding. My one hope or wish for people with ADHD is that they can be open about their struggles with those they love and rely on to get through times like this when they don't have access to the meds that help them function.

  • @Seashelldub
    @Seashelldub Год назад +2

    My gosh. Just hearing that others have “bad brain days” is incredibly validating to me. I’m thankfully in a situation where I’m never without my meds - largely because I gave an awesome psychiatrist. But even with meds, some days my vyvanse just won’t cut the mustard.

  • @annegarrett9901
    @annegarrett9901 Год назад +2

    You starting this dialogue of the adderall shortage is wonderful because when I run out of my adderall, I almost become Jabba the Hut because Im sluggish and my thoughts are exactly like you said, "trying to nail jello to the wall." I have always lived in a high gear, been artistic and active, but when I was a teenager, I was told I was demon possessed. My ADHD was so out of control that I couldnt finish things or stay focused. This led to depression, along with the spiritual and emotional abuse at home. I got "exercised" from my demon, lol, and continued my life. In college, I switched majors 5 times because I was unable to complete the work as sitting still and focusing hurt my brain. It was almost like trying to fit two opposite ends of magnets together. The "push" away was my brain "pushing" any attempt to better my life or focus on a career. So, after watching my roommate memorize 400 hundred definitions for her Pharmacology class, I continued to cut out my paper stars and became an elementary school teacher. I didn't discover I was ADHD until my divorce and I was 33 years old. Thank God it wasn't a demon!!!

  • @flawlix
    @flawlix Год назад +11

    My doc and I had finally figured out a mostly-correct balance for my meds (a combo of Adderall XR, Adderall IR, and Wellbutrin), and then this shortage started. My pharmacy forgot to send me my XR last month, even though it’s supposed to be available and not really part of the shortage (and in typical ADHD fashion, I have not called them or my doctor to ask what’s up… nor scheduled my next prescription appt that I technically should have sometime in the next week). My doctor has me trying Focalin to make up for the unavailability of IR, but the dose is definitely too low, and I have to take a full day’s worth in one go to get any effect. Also, for the first time, I understand why some people say their meds make them feel like a zombie.
    This sucks, and if I ever meet someone who tells me they got a fake diagnosis just so they could get adderall, I’m stealing their meds. And then supergluing a pair of Bluetooth headphones to their ears so that I can stream a randomly changing selection of 3 different songs, a couple podcasts, a talk radio station, and some static into their heads simultaneously until they understand what it’s like to live with my brain without medication.

  • @yuukifenia1611
    @yuukifenia1611 Год назад +30

    As someone who is currently dealing with both sleep issues and trying to even get the ADHD diagnosis on waiting lists this helps a lot. A lot of this I've had to start doing in general but the sleep issues have really made my ADHD much harder to deal with and made most days bad brain days. I've been doing similar things and taken a few strategies and am SO glad your channel exists. Your channel is what started me learning and thinking about it more clearly so I wanted to thank you!... Even if my ADHD sometimes makes me struggle to watch the newest upload xD
    Side note, while unhealthy and not perfect I've found Soda (Coke) to be a good substitute for coffee or a French Vanilla/Latte for anyone who wants something sweeter. Coffee is the purest way and probably the better way still. For me tho I tend to have one can of Coke a day as a sort of stimulant that actually gets me going. Days without it I end up wandering, aimless, and I can't tell when I'm tired making sleep harder. It's what I realized I used as a substitute while watching Dr. K and realizing it's what most streamers use. Also on that note I started noticing a lot of RUclipsrs and Streamers have ADHD which was very interesting and made sense lol.
    The exercise note I also found helpful but my sleep medication makes mornings more groggy so it's been hard to do since I get distracted if I don't do it morning. Been trying to work on that.
    I never knew how to explain but I always hated the concept of alcohol because it was like: I don't want LESS control of my brain and inhibitions?? It's why I strayed away from it in general. Even when I drank it tho I never enjoyed it and one cocktail in particular I felt a lot more down randomly. So I also avoid it lol
    Anyways, Thanks for continuing to help the Brains and I just wanted to say I appreciate you! I might not comment often but I appreciate you from the shadows

    • @OrangeColt
      @OrangeColt Год назад +1

      Gfuel as silly as it sounds is a wonderful and fairly healthy way to get caffeine when you don't like bitter.

  • @Zintastikcowbell
    @Zintastikcowbell Год назад +2

    I FINALLY got back on my meds this week after being without for two months (and I also went without for about a month in December). WHAT A DIFFERENCE!!!!! At my most recent appointment, my provider said that another contribution to the shortage was hurricaines that hit Puerto Rico, which, apparently, is where a lot of ingredients for Adderall come from.

  • @kevinwillems8720
    @kevinwillems8720 Год назад +8

    I should have found this a week ago, I lost my meds briefly, so I had to find my meds without my meds.
    Exactly like trying to find my glasses without my glasses.

  • @LadyCirra
    @LadyCirra Год назад +27

    Thank you!! Turns out I really needed this, didn’t even realize it. Currently going through first semester in college, and fun fact, when you work harder and later your meds wear off earlier!😅 So it’s been an unfamiliar struggle for me to have to regularly be doing homework at 9 pm.
    I can definitely recommend body doubling, that has been a lifesaver!! Find a good study partner if you can. It’s so important, and it’s the only way I’ve managed till now. Even better if you can find someone who you trust enough to tell them when you’re off your meds, that helps too. Another thing I’ve found helps is study music, I’ll pick something pretty repetitive or non-obtrusive and play it just loud enough that it drowns other noise out but isn’t interfering with my thoughts. Also a comfortable/effective place to sit and work, and this one was a bit of a surprise but good lighting. Being able to see your work makes it easier to actually do it, and if you pick the right lighting it can help you wake up and focus.

    • @penelopefp
      @penelopefp Год назад +2

      What is the body doubling? I've watched a ton of her videos but I don't remember body doubling.

    • @Moraenil
      @Moraenil Год назад

      @@penelopefp Body doubling is basically having someone else in the room with you while you work. They work on their thing (their homework/hobby/whatever that's quiet), while you work on yours. Personally it doesn't work for me, as I sense them there the whole time and feel I need to be talking to them and entertaining them. I also sense them sitting there judging and criticizing me. In her video, she talks about you can also use body doubling with a stuffed animal or pet too, if you can trick your brain into it. I just give myself the reward of gaming after a job well done or as a break, and that helps me. But different things work for different people. Although I suppose maybe I do use body doubling sometimes, because I like some of the environmental sounds and stuff in some of my games and will have the game on and have my character in a spot that's peaceful and won't be bothered. It's kinda like that character is there, watching my back and protecting me while I work and listen to the nature sounds that help drown out outside noises (not unlike nature sounds from an mp3, but with a view too).

    • @penelopefp
      @penelopefp Год назад

      @@Moraenil thanks! I looked up her video on body doubling and realized my daughter "body doubles" when we go shopping. I am fine shopping alone, but it is much more enjoyable and I stay on task better when she's with me. (Ya know the big trips for TP, tooth paste, band aids, deodorant, and then some grocery items) Alone, I tend to over think decisions. She helps me stay realistic. "No, don't get the Halloween craft kits. We won't have time to do them. Just get the candy." But because she is such a big help we also tend to impulse buy. "Mocha Pop Tarts?! Ooo! Those are new!! Sure! You deserve it for helping me shop!" Its a win-win. She helps me keep my sanity and she gets goodies.

    • @relishin
      @relishin Год назад

      also on my first term of college! (British tho) and I totally relate to this one

  • @Alewo2735
    @Alewo2735 Год назад +12

    This is extremely scary to me because I can't just stop taking my stimulant without really awful side effects. If I go more than 1 day, I'll get dizzy, light-headed, nauseous, etc. It's horrible! I feel for anyone going through this! I also wish there wasn't so much damn stigma and aduse around our meds so we could better help each other. I know a lot of us had to try several meds and doses to get the right one and have the unused stuff just sitting around wasted.

  • @katythriftyunder35homeowne57
    @katythriftyunder35homeowne57 Год назад +4

    I've been STRUGGLING with this. It's been SO hard to get my Adderall lately for my ADHD. I have had some hard moments at work because of them
    Thank you for voicing this!

  • @pheobemadison3909
    @pheobemadison3909 Год назад +19

    Jessica thank you so much, I knew you’d cover this for us. Words can’t even express how helpful it is to hear how similarly it feels for you to be off your meds as it does for me. The depression is the hardest part for me, and I started to forget that I wasn’t alone in what I was experiencing. Thank you for creating this community and bringing so much awareness to the realities of living with ADHD, especially during a national medication shortage that brings up so many challenges.

  • @JohnFrazier
    @JohnFrazier Год назад +9

    I literally just started my meds this month. The change to my productivity and overall mental health has been astounding. I am not looking forward to having to go without.

    • @HeavenlyKnight96
      @HeavenlyKnight96 Год назад

      Same. I joke that just when I get it in my hands, the world wants to rip it away.

  • @basketcasejacegaming8673
    @basketcasejacegaming8673 Год назад +38

    Back before I knew I had ADHD (I was in denial for a long time), I had several coping mechanisms that helped me mask my ADHD symptoms. The biggest one that helped was relying on my fear of my anxiety. It might not have been the most mentally healthy thing, but whenever I knew that not finishing a task would result in my anxiety flaring up, it was a great motivator to be diligent in getting that task done. My particular brand of anxiety is activated whenever I feel that I have failed someone or in something important to me. Luckily, that has been really helpful in getting me to do things I dislike. It has also resulted in a whole lot more anger and self loathing because of my ADHD symptoms. Double edged sword I suppose. I would not have ever made it through college without relying on that fear though.

    • @indigoziona
      @indigoziona Год назад +3

      Oh my goodness, thank you for this comment - I identify with this so much! I worry that dealing with my anxiety will make it impossible to get things done.
      It's also super frustrating when people see your anxiety as a weakness and you've got to somehow mask that too :(

    • @francesdarwin1184
      @francesdarwin1184 Год назад +1

      Ugh, the amount I can relate to this!

    • @Stemorrow
      @Stemorrow Год назад +1

      Yeah, I relate to this post really hard as well. Fear of letting people down and anxiety about deadlines are some of the only things that motivate me to get things done. I always thought my brain was broken until I realized that there must be something else going on. Even simply just having a medical professional tell me that they're positive that I have ADHD has done so much good for me. Knowing why my brain operates the way it does helps me forgive myself and move forward.

    • @baum7des7lebens7
      @baum7des7lebens7 Год назад +1

      It's called conscience and it's a good thing.

  • @christinagreer1821
    @christinagreer1821 Год назад +8

    I've been pregnant three times, and having to stop Adderall throughout my pregnancies was a huge challenge. (My doctor did say he has ADHD patients that are dangerous drivers when off their meds, and who therefore continued to take medication as the risks were much higher off meds.) It's not ideal, but this is a great reminder to prepare coping strategies as there will probably come a time in everyone's life where they'll have to deal.
    Big +1 to exercising.
    A couple of helpful things that weren't in this video:
    - Most other people don't notice. People aren't paying that much attention to you. I felt that my work performance was so much worse that it must be as obvious to everyone around me as it was to me. Close colleagues told me, "What are you talking about? You're fine." It feels more obvious to you internally than it looks to others.
    - Try moving things around to optimize your best focus times of day. Mornings are best for me. I make time to do work that requires significant executive function (say, yearly planning...) when I'm at my best. Stuff that can be easily chunked up or is less critical to have all my brain engaged for (answering emails), I save for later in the day.

    • @user-tf7of1pz4c
      @user-tf7of1pz4c 6 месяцев назад

      im one of those that have to be on may add medication throughout pregnancy. im non functional without . before starting I was in 7 car accidents

  • @ashlynadami1605
    @ashlynadami1605 Год назад

    Thank you for posting this. This is a really scary time and being without my medication is very difficult, so I'm grateful to hear advice from someone else who has similar struggles

  • @lkope0903
    @lkope0903 Год назад +45

    I'm pregnant right now and not allowed to take stimulant medication and that has been the biggest struggle at work. Letting people know has been HUGE for me, but as you said, not always safe for everyone.
    My coping mechanisms for my office job:
    - Be transparent about my availability (update statuses to "slow to respond") and turn off slack, email, etc. Set a timer and check in an hour.
    - Rely heavier on digital/physical notebooks for my working memory. Even if the notes seem silly. If I take a break, looking at my notes to remember what I was working on is helpful
    - Like you, I have my "non negotiables"/mandatory tasks. These are usually care tasks like taking a walk without my phone and brushing my teeth.
    In terms of coping mechansims for my personal life.... haha. Still working on those.

    • @lulumoon6942
      @lulumoon6942 Год назад +3

      Great suggestions! I mentioned elsewhere that L-Theanine, the calming component from Green Tea, has helped me in a pinch. Maybe worth researching for yourself? Good luck, Mama! ❤️

    • @naomihepworth1642
      @naomihepworth1642 Год назад +2

      I'm also pregnant - finding it tough being off meds for such a long period, things have really fallen behind. I have an older child to look after so had to quit my job - just wasn't practical to keep it and do childcare off meds since pregnancy is also really tiring. Also finding it harder to manage off meds as I get older (I'm 40) because I can't 'brute force' through emergency stuff the way that I used to. Am mostly coping by having rock bottom expectations and trying to remember how brave I am to do this! Do feel that I had to choose between children and a career because of my ADHD, and miss working a lot. No regrets though.

  • @BathtubJenn
    @BathtubJenn Год назад +5

    I take med vacations every few months for 1-2 weeks. I do gain a few lbs but I cut down my projects to tiny bites and also take a mental health day. Lean in and take care of yourself!!! ❤

  • @teto6180
    @teto6180 Год назад +4

    I was without meds for a week. I only survived life and work because of the structure I have built into them. The biggest difference I noticed was how much my meds help me self regulate my emotions and remembering things. I kept working things and found myself easily overwhelmed and anxious.

  • @siobhanfeeney3262
    @siobhanfeeney3262 Год назад +2

    I'm 56 yrs and female and was diagnosed when i was 52 yrs. It took me a long time to accept (~ a year). Your videos have been so helpful!! Thank you!

  • @MsLinoi
    @MsLinoi Год назад +57

    I think I needed this. As someone with Epilepsy, I was advised against taking medication. So I'm trying to find out how to cope without it. Never been on meds, as I got diagnosed late, but sometimes I wished I had the option...
    My number 1 coping mechanism is probably coffee 😅

    • @papermario3982
      @papermario3982 Год назад +22

      I hope she does a video for people who CAN'T take meds, instead of for people who are in a gap but have a light at the end of a tunnel :( This that she's talking about as a temporary thing is my everyday for possibly forever :(

    • @florencejoy5209
      @florencejoy5209 Год назад +6

      My sister takes both. Epelepsie meds and vivanse for ADHD. Maybe some meds can be combined and others not. Have you asked your doctor about alternative combinations?

    • @MsLinoi
      @MsLinoi Год назад +5

      @@florencejoy5209 I was advised against taking anything stimulating for now, atleast until my other meds are settled and I don't get seizures anymore. After that, I'll see...

    • @SmallSpoonBrigade
      @SmallSpoonBrigade Год назад +7

      IIRC, there are anti-seizure medications that are prescribed for ADHD, so perhaps ask your psychiatrist to consult with your neurologist to find a medication that might help with both. As I understand it though, the research on that isn't as well established as it is for stimulants.

    • @MsLinoi
      @MsLinoi Год назад

      @@SmallSpoonBrigade I have to look that up! Have to make an appointment with my neurologist soon anyways (he's also my psychiatrist currently, although another psychiatrist advised me not to take stimulating medication in addition)
      The options for anti-epileptics may be more limited with my type of epilepsy, as I have "grand mals", I don't know enough about that though...

  • @makingahomemaker
    @makingahomemaker Год назад +19

    I recently decided to finally do something about my symptoms for the benefit of my entire family (I'm a mom of 3) and told my doctor I wanted to be assessed for ADHD. She referred me to the psychologist and when they finally followed up on the referral it was to tell me that they were scheduling 6 months out right now! I've really been struggling these last few days and feeling really down knowing that I have to wait so long to finally get treatment. This video was perfect timing. Although I've never been on meds, it's a reminder to me that there are things I can do to help myself in the meantime (and maybe even beyond if there's still a shortage when I finally get my diagnosis! 😳) I need to start watching more of your videos. Thanks so much for the encouragement!

  • @realxistic
    @realxistic Год назад +5

    I opened up to my job and they were super supportive. I feel so fortunate because I've never had that and had to have so many jobs before I found one. Good luck and hopefully things continue to change. Thanks for sharing this Jessica!

  • @njparkway
    @njparkway Год назад +1

    This could not have come at a better time. Not only is there a national shortage but my doc either got fired or quit suddenly and i was left without any type of medication. it's been really really difficult for me especially as i'm in my senior year of college so just thank you, thank you, thank you for taking the time to put this out right now.

  • @darrenwilkinson1742
    @darrenwilkinson1742 Год назад +9

    One of the top things I do is come onto RUclips and head straight for the How to ADHD channel and watch an amazing video on the problem I’m struggling with at that time. They often feel like they were made just for me. Your videos are a massive part of my coping strategy and they always help. I must have watch “the wall” videos 20+ times! Thank you so much, your efforts on your videos over the years genuinely make a difference in my life.

  • @jagibaba
    @jagibaba Год назад +10

    Girl, I don't have ADHD but I watch your show religiously because I have the sensory processing sensitivity trait and most of what works for you, works for me as well (minus a few things, like meds). I am truly grateful, I've never came across hands-on content like this but regarding my trait. Thanks for so so many great ideas and insights. I really hope the meds shortage is over soon and everyone can get their hands on what they need again, this sounds like a nightmare so best of luck, may it gets better soon.

  • @mi_jan
    @mi_jan Год назад +4

    I often tear up while watching your videos because what you say is so relatable, thank you for being vulnerable with the world! I fully accept and love my adhd but sometimes Its great to have a reminder that we are not alone in this never ending battle against air brains.

  • @NinjaOwns1032
    @NinjaOwns1032 Год назад +5

    Thank you for making these videos. I’m still hesitating on getting diagnosed because of money issues. But you describing your brain days off meds helps me to realize those are my every days and reaffirm to myself that I do struggle/have ADHD and to keep getting diagnosed as a goal. Because I’ve just recently in the past couple of years noticed my ADHD, I’ve been struggling to try to recognize if I’ve experienced it in my youth, so hearing other’s experiences of having ADHD helps me to quiet the critic in my mind that keeps telling me that I don’t have it and to keep handling these symptoms by myself. ❤

  • @k80_
    @k80_ Год назад +3

    My dad and I both have adhd, and he was on adderall for 10-15 years. He went off it recently because he was worried about cardiovascular health, but the “withdrawals” he faced in the first few weeks of going off adderall were really striking even to us.
    I’m on a different medication, but I really wish everyone the best in coping with this situation. This shortage and purposeful withholding of necessary medication is a direct effect of the war on drugs and the govs shitty attitude towards addiction and substance use.

  • @NoorFatima-iq7tf
    @NoorFatima-iq7tf Год назад +10

    It's painful to watch because I've been diagnosed with ADHD after a lot of struggling for an year and Now I can't take meds because I can't afford them. And I literally second everything you said.
    Ita painful 😖

  • @d3yuen
    @d3yuen 7 месяцев назад +1

    I love how you're so in tune with your ADHD and how this drives you -- This is a level of maturity and control that I never knew is possible. Thank you so much!

  • @nysaloudon311
    @nysaloudon311 Год назад +7

    Thank you so much for addressing this! I've been off of my meds for over a month now because of the shortage and I had to start my PhD this month too... its been hard since it was the first time I'd been off of them since I got on them last year. My impulsiveness is definitely harder to control

  • @rannugblah4251
    @rannugblah4251 Год назад +6

    I experience less symptoms of ADHD taking my meds but it's still a handful. So when people say "wait aren't you taking your meds?" I'm like yes I am, I at least form cohesive sentences, I can't ask for more! So meds are definitely a YMMV.

  • @toriibarlow
    @toriibarlow Год назад +17

    I love how fast paste you make your videos it really helps me concentrate for the whole duration of the video. I find oftentimes for videos and thanks to keep my attention I often have to speed Them up a fair bit but that's not always the case with your videos

  • @LilMissCollins97
    @LilMissCollins97 Год назад

    You are truly the BEST for making this video!! It can be so scary being dependent on medication but these are great tips for getting through it.
    PS I've been watching your vids for 6 years and they have always helped me so much so THANK YOU

  • @TheEccentricMage
    @TheEccentricMage Год назад +6

    My #1 mandatory thing to do every day when I'm out of meds is to get (and stay) out of bed. Days without meds are awful for me, so I try to be realistic about my expectations for myself

  • @samanthaL2824
    @samanthaL2824 Год назад +8

    I live in England and we are having similar problems with lots of medications including ADHD meds and trying to get anyone to believe they are essential is nearly impossible, it's so frustrating. your videos have helped me so much these past few years, thank you!

    • @foxInGloves
      @foxInGloves Год назад

      Out of interest what region of the UK are you talking about because where I live in the UK it is the complete opposite. Dr's /mental health teams absolutely recognise the importance of meds and care. It seems like a post code lottery from what you're describing, so sorry to hear that 🤗🤗🤗🤗

  • @vaelg7796
    @vaelg7796 Год назад

    This video actually helped me with getting back to my psych about my med review; he'd asked if I was happy on my meds, and I am! But you mentioning homework meds had me thinking about the few days I skip my meds because I need to sleep earlier, or similar situations, and I hadn't realised that there was the option for having two differing medications for different situations!
    My meds help a lot with my chronic illness' fatigue/brain fog issues too, so they're super important, and the idea that you can switch it up instead of having just the one set of meds is super helpful to start that conversation, so thank you!

  • @tonymarshall3162
    @tonymarshall3162 Год назад

    So thankful that I found your tedtalk and now your channel. Divine intervention for me 🙏🏼

  • @RyanSnead
    @RyanSnead Год назад +6

    I have a medical condition that led me to stop taking stimulant medication and also curtail non-prescription stimulants like caffeine. I spent many years living this way with un-diagnosed ADHD, so in some ways it is a return to what was high functioning except for two things. 1. I am back to living life on Hard mode which impacts my energy. 2. My awareness of the difference between medicated and un-medicated impacts how I feel about life and sometimes myself. I think that makes telling others with whom I have a degree of trust important for the reason Jessica cited in her video. I also find it easier to overshare in life both before and after stimulant meds, so I have to remember to be selective about who needs to know. So my trusted circle helps me to set expectations for myself and others and also help me filter better.

  • @chezellis
    @chezellis Год назад +14

    My husband has ADHD and takes a stimulant called Concerta. It's very difficult to get his prescription filled, due to the very brief window of time and the restrictions in filling it, but what I wound up doing is giving him a DMAE pill on weekends or other days when I know he won't have to focus. Doing that, I managed to build up an 'emergency buffer' of his Rx for those times, like now, when we can't get his Rx filled. I consider keeping him on his ADHD treatment to be as important as making sure he has his eyeglasses.

    • @lucsmith2092
      @lucsmith2092 Год назад +5

      What is DMAE?

    • @blondbum
      @blondbum Год назад +1

      Looked it up, it's a supplement. Results may vary, but having a placebo is an interesting idea to save an emergency stash... 🤔

    • @chezellis
      @chezellis Год назад +3

      @@blondbum Yeah. I took a risk on it, but there's been no counterindications or side effects from him taking the placebo on unimportant days. It's been a few years.

  • @possumnoises
    @possumnoises Год назад +3

    I'm having a rough time with getting my medications this month, and it's always been hard, so honestly thank you so much

  • @anna20812
    @anna20812 Год назад

    this really came at the perfect time, I just lost access to getting prescribed and finding a new provider has been the most frustrating task. thank you!

  • @lyfewithdj2258
    @lyfewithdj2258 Год назад +10

    I am currently trying to get insurance to get proper medication. The depression you mentioned is where I am right now. I know medicine would help me be more productive as I feel a lack of energy to do daily tasks.🥺 I didn't knw there amwas an Adderall shortage but I pray that our fellow "brains" may get the meds that we very much need!🙏🏾 Thank u for thus vid, I'll be implementing these suggestions until I can get my meds!😊💜

  • @MichaelDursch
    @MichaelDursch Год назад +8

    Unbelievable. I’m so thankful I talked my doc into giving me a 90 day supply. This saves me money from monthly doc visits and cheaper through insurance

  • @sadiewalters2786
    @sadiewalters2786 Год назад +4

    THANK YOU!!!! I'm a Legal Assistant and Office Manager for 4 attorneys, and we have a constant stream of a full case load.
    I'm working on recognizing more of my bad brain days w/o my meds. Everyone knows at this point that I'm still not able to fill my prescription and my productivity will be lower and less of the quality they are used to. Which has helped me adjust my expectations and my attorneys have been helping me with leaving notes of what needs done on files, instead of just dropping things on my desk with the expectation of getting "it" done. Still working on the heavier coping strategies. Luckily I have been able to structure the office to what works for me, and my attorneys have been great about it.

    • @drippinwet774
      @drippinwet774 Год назад

      How long has your back-order been for your most recent prescription? @sadie walters

  • @Cerias
    @Cerias Год назад +1

    I'm so happy that you described your reaction on the medication. The past two week i was really struggling with my self if my diagnosis was right a few years ago. Clearly with my meditation my life is really better - but without i can life. My syntomes are not this hard like maybe yours or from the few people i know but the medication description i can relate to.

  • @SnowySpiritRuby
    @SnowySpiritRuby Год назад +4

    Never been this early to a video. Perfect timing, because I'm bringing up ADHD meds to my dr. at my appointment today, and the Adderall formulation I first took, back in grade school, worked amazingly and I want to try it again because it has been 16 1/2 years. Good to know there's a shortage going on, so I might have to wait a couple weeks to get it (we'll see what ends up happening).