Great podcast❣️ I’ve been told by a naturopath that I’ve had decades of Lyme, and remember so many symptoms as a child that I now know were Lyme. I’m 69, and had a new infection of live Babesia Mycroti about 4 years ago, after having mold toxicity, a compromised immune system, and moving to a new location. I was diagnosed 19 months ago, and was put on antibiotics (anti-malarials) but went through horrible symptoms of malaria while it was being killed off, I’m assuming. Then, I was put on tinctures which I still take, along with binders and supplements. I’m due for another blood work panel, but I have been through, and am still going through, the nervous system problem, just got over insomnia, and still have a LOT of the symptoms you mentioned. I’m alone, but some people have helped me when I really needed it, and others dismiss this as hypochondria, exaggeration, age, or think I’m lazy or being a baby! THAT is hurtful!!! I have no advocates nor caregivers. I’ve been sick and in pain with other toxin-based illnesses for 21 years, but NO ONE understands what these infections and viruses that resurface, to every part of your body and brain unless they’ve had it. Fred, I’m a subscriber since I saw you, and I’m also a subscriber to The Tick Chicks. Thank you so much for this podcast! I’m going to share it and HOPE someone will watch it! Thanks again!
@@freddiamond7485 I agree! In addition, I have a daughter who is a pharmaceutical rep, and I gave her the book “Chronic” because she has an 8 year-old daughter, and she gave it back to me saying she doesn’t have time to read it! But, she has time to to the spa, visit friends, go on vacations, read People Magazine, etc. She would have time if her daughter gets Lyme! Both of my adult children dismiss my symptoms, and my son has Lyme! He decided he’s too wonderful to get any more treatments and doesn’t want to go to doctors anymore! He sees a life coach, but if he’s in denial, as most people seem to be lately, and he has psychological issues because of Lyme, so, he can end up in jail again!
Thank you so much for having this interview! I think had Lyme’s disease for ~2 decades before I was diagnosed! Still have it. Thank you also to Ali ! I’m going to send this interview to my sister, etc. Bless everyone with safety & improving health❤
THANK YOU! THANK YOU! I want to thank my husband as well! He has been amazing! Most of my family dismiss Lyme and dont try to understand. Its a lonely journey especially when you get passed around like a hot potato. I agree eating clean is SO important to control inflammation and symptoms. Your gut health is compromised due to the treatment, and it can really mess things up. New symptoms pop up, and it feels like an endless whack-a-mole tournament. The psychological effects of the medical professionals is perhaps the most difficult aspect. In a wheelchair, unable to walk because of the excruciating pain, a neurologist at a university hospital diagnosed me with a form of Munchausens. I got so angry, and I decided to find my own way to get better. We Lymies take time, patience and love. Few have that, it seems. I appreciate your efforts more than you know. ❤
Antibiotics only worked for me after a month of using both powders for a month I wasn't responding to any before that also had to change diet no sugar gluten dairy
I’m positive for bebesia duncan, mold and just found mold at home. Have you heard symptoms of hand/joint pain? That’s currently my main symptom. Thanks
Your body can't heal while remaining in a moldy environment. In fact, if you've been in that environment (maybe it's your workplace) for a long time, you can become a carrier of mold illness. A mycotoxin test from an Integrative doctor will tell you a lot.
My leg nerves are being gradually weakened since 1.5 years after finding Borrelia infected dog tick on my scalp & me testing positive for IgM & IgG tick borne relapsing fever Borrelia sp.. 2 rounds of doxycycline & 1 round of amoxicilin got rid of all my scary brain/bladder/spine/arm symptoms except for my leg weakness/pain/twitching. Constantly feels like liquid lead has been injected deep into front of both thighs & lower legs/feet going weak/numb/pins & needle sensations. Listening to this woman's battle history as I lay in bed- not because I want to - made me cry because she described what I am going through right now & for past year. And she gives me hope that I can get thru to the other side of this nightmare. Supplements, vitamins, red light therapy, Gabapentin, walking in nature 20 minutes a day, expensive room air filter, adult coloring books, organic whole foods, chicken bone broth, countless specialists....tried them all & running out of options.
I must be going through this with you! I have the same symptoms! But, I never went on those antibiotics. I still have bladder retention, leg aching, nerve issues, extreme pain and fatigue )found out I had a stroke that affected the sleep cycles of my brain. I’m afraid of doing a lot of things now, and I was a high school teacher for 40 years. I shouldn’t be afraid to drive!! 🙏🙏
Update...finally got insurance to cover lumbar to knees mri with & without contrast. Found out I have moderate to severe arthritis with effusions in hips & knees. I think this fluid inflammation is pressing on nerves causing constant pain/weakness/twitching/pressure. Waiting to go to bone dr specialist now. I believe this is post antibiotic lyme arthritis because I didn't have these symptoms pre tick. Or else antibiotics did joint damage. No dr. I'm seeing wants to discuss lyme/doxycycline connection...to them its ancient history. Infectious dz dr & neurology clinic have discharged me as no longer needing their treatment/testing. Now trying to concentrate on movement & immune health/vagas nerve restoration. I'm in it for the long haul & not expecting the US medical system to fix me. May later try a functional Dr./accupuncture not covered by insurance, but I'm taking a break from specialists because its all too expensive & they don't have any more solutions other than pain management prescriptions & physical therapy. Want my old legs & life back, but as time marches on, accepting my new reality/ trying to adjust the sails is my ultimate goal. Making do with forced early retirement & a part time job at minimum wage & trying to find new joys in life to focus on. I'm not going to let this defeat me without fighting the good fight.
Hot tubs aren't great in an ACUTE state of tickborne illness. Especially if you have nerve pain or nerve issues. Wait until your episodes slow down and are manageable then take it slow with the heat and pressure. Baby steps until your body can handle it. Then throw in the magnesium salts!!
Just found your channel on RUclips I've been suffering from extreme burnout and headaches for about 5 years and then about 2 months ago I pulled a tick off my dog the next day I pulled a tick from behind my ear now I'm in such severe pain it's crazy started seeing a new doctor he prescribed some hormone pills for me for a month ran out last week and it is again really bothering me I'm seeing a doctor this afternoon I'm going to ask him to give me some ivermectin what do nice folks think?
Just positive for Borrelia myself, on Doxycycline, next Amoxicillin heavy daily doses. Using herbs too, trying to cut out dairy amd gluten and alcohol. Eat well. I also use medicinal mushrooms
Hormones do not treat Lyme or tickborne illness. Ivermectin could aid in co-infections but not Lyme itself. I would get to a Lyme-versed doctor as soon as possible (most of them are called Integrative MD's) and learn how to get it under control in your body. Each person is unique in what works for them due to immune response etc.
Seeing how the ospa b are bad with lyme and who knows what else. Wouldn't it make sense to develop something to deactivate this ospa and b. This is I'm sure 1 of the ways lyme borrellia and or the other borrellia are resistant bacteria. Weaken this ospa and b so regular antibiotics or whatever antimicrobials could get at the bacteria easier. I'm at a loss treating my multiple infections diseases and environmental illness. Just awful. Something needs to be done quicker and outside of the federal system. A med to increase Immune system function, stem cells.
I wonder could Lyme trigger other autoimmune issues? I was diagnosed with Hashimoto’s Thyroiditis in October 2023 and have been sicker than a dog since. I have been bitten by at least 30 ticks or more in the 23 years living in Indiana. No thyroid issues in the family whatsoever. I wonder if there is a correlation there I don’t know I’m ignorant on these things and my father is a retired gastroenterologist so I’m not a complete idiot. My symptoms are mostly neurological. I am waiting on the Lyme test to come back. It has been sent to a special Lab . I am so fortunate to have a Lyme disease specialist 20 miles from me. He studied out east he seen over 6000 cases of Lyme disease. He’s pretty certain I have it based on seeing me for 30 minutes and his office last week. So who knows. One thing I do know that I’ve learned is at the regular standard testing of Lyme disease is like a flip or a coin. It’s anyone’s best guess rather it’ll be positive or negative it’s so inaccurate.
I'm glad you are testing. Hashimoto's can sometimes be triggered by toxic mold, as can Lyme. Keep digging and treating. It may get worse before it gets better.
![FendiDa Rappa - Clock Dat ft. Shamar Marco [Official Music Video]](http://i.ytimg.com/vi/3NBU8KHdxYY/mqdefault.jpg)
If you're a chronic Lyme survivor and want the free pdf of my book, reach out to me via LinkedIn or Facebook Message.
Yes pdf please
Can I get the PDF too please
@@elspethmcphail7362 Sorry. send me your email on FB Messager.
@@steveduffey5790 Sorry. send me your email on FB Messager.
@@freddiamond7485 I will be reaching out, Sir...thank you!
Great podcast❣️
I’ve been told by a naturopath that I’ve had decades of Lyme, and remember so many symptoms as a child that I now know were Lyme. I’m 69, and had a new infection of live Babesia Mycroti about 4 years ago, after having mold toxicity, a compromised immune system, and moving to a new location. I was diagnosed 19 months ago, and was put on antibiotics (anti-malarials) but went through horrible symptoms of malaria while it was being killed off, I’m assuming. Then, I was put on tinctures which I still take, along with binders and supplements. I’m due for another blood work panel, but I have been through, and am still going through, the nervous system problem, just got over insomnia, and still have a LOT of the symptoms you mentioned.
I’m alone, but some people have helped me when I really needed it, and others dismiss this as hypochondria, exaggeration, age, or think I’m lazy or being a baby! THAT is hurtful!!! I have no advocates nor caregivers.
I’ve been sick and in pain with other toxin-based illnesses for 21 years, but NO ONE understands what these infections and viruses that resurface, to every part of your body and brain unless they’ve had it.
Fred, I’m a subscriber since I saw you, and I’m also a subscriber to The Tick Chicks. Thank you so much for this podcast! I’m going to share it and HOPE someone will watch it! Thanks again!
Thank you for sharing. It's a sin that so many Lyme survivors have been treated the same way you have.
@@freddiamond7485 I agree!
In addition, I have a daughter who is a pharmaceutical rep, and I gave her the book “Chronic” because she has an 8 year-old daughter, and she gave it back to me saying she doesn’t have time to read it! But, she has time to to the spa, visit friends, go on vacations, read People Magazine, etc.
She would have time if her daughter gets Lyme!
Both of my adult children dismiss my symptoms, and my son has Lyme! He decided he’s too wonderful to get any more treatments and doesn’t want to go to doctors anymore! He sees a life coach, but if he’s in denial, as most people seem to be lately, and he has psychological issues because of Lyme, so, he can end up in jail again!
Thank you so much for having this interview! I think had Lyme’s disease for ~2 decades before I was diagnosed! Still have it. Thank you also to Ali ! I’m going to send this interview to my sister, etc. Bless everyone with safety & improving health❤
Thank you for listening and sharing! Blessings to you.💚
THANK YOU! THANK YOU! I want to thank my husband as well! He has been amazing! Most of my family dismiss Lyme and dont try to understand. Its a lonely journey especially when you get passed around like a hot potato. I agree eating clean is SO important to control inflammation and symptoms. Your gut health is compromised due to the treatment, and it can really mess things up. New symptoms pop up, and it feels like an endless whack-a-mole tournament. The psychological effects of the medical professionals is perhaps the most difficult aspect. In a wheelchair, unable to walk because of the excruciating pain, a neurologist at a university hospital diagnosed me with a form of Munchausens. I got so angry, and I decided to find my own way to get better. We Lymies take time, patience and love. Few have that, it seems. I appreciate your efforts more than you know. ❤
Ali is amazing and very committed to her community's health and success.
Thank-you wonderful interview , Great information
Antibiotics only worked for me after a month of using both powders for a month I wasn't responding to any before that also had to change diet no sugar gluten dairy
Smart move! Always worth a try with antibiotics. 💚
Please ADVISE WHERE I'm missing the e-version of Love, Hope, Lyme that is free for Lyme Survivors. Thank you
If you're a chronic Lyme survivor and want the free pdf of my book, reach out to me via LinkedIn or Facebook Message.
I’m positive for bebesia duncan, mold and just found mold at home. Have you heard symptoms of hand/joint pain?
That’s currently my main symptom. Thanks
Your body can't heal while remaining in a moldy environment. In fact, if you've been in that environment (maybe it's your workplace) for a long time, you can become a carrier of mold illness. A mycotoxin test from an Integrative doctor will tell you a lot.
Thank you for this, Ali & Fred! ♡
My leg nerves are being gradually weakened since 1.5 years after finding Borrelia infected dog tick on my scalp & me testing positive for IgM & IgG tick borne relapsing fever Borrelia sp.. 2 rounds of doxycycline & 1 round of amoxicilin got rid of all my scary brain/bladder/spine/arm symptoms except for my leg weakness/pain/twitching. Constantly feels like liquid lead has been injected deep into front of both thighs & lower legs/feet going weak/numb/pins & needle sensations. Listening to this woman's battle history as I lay in bed- not because I want to - made me cry because she described what I am going through right now & for past year. And she gives me hope that I can get thru to the other side of this nightmare. Supplements, vitamins, red light therapy, Gabapentin, walking in nature 20 minutes a day, expensive room air filter, adult coloring books, organic whole foods, chicken bone broth, countless specialists....tried them all & running out of options.
I must be going through this with you! I have the same symptoms! But, I never went on those antibiotics. I still have bladder retention, leg aching, nerve issues, extreme pain and fatigue )found out I had a stroke that affected the sleep cycles of my brain. I’m afraid of doing a lot of things now, and I was a high school teacher for 40 years. I shouldn’t be afraid to drive!! 🙏🙏
Work on nerve health now. I'm so happy you are making progress!💚
Update...finally got insurance to cover lumbar to knees mri with & without contrast. Found out I have moderate to severe arthritis with effusions in hips & knees. I think this fluid inflammation is pressing on nerves causing constant pain/weakness/twitching/pressure. Waiting to go to bone dr specialist now. I believe this is post antibiotic lyme arthritis because I didn't have these symptoms pre tick. Or else antibiotics did joint damage. No dr. I'm seeing wants to discuss lyme/doxycycline connection...to them its ancient history. Infectious dz dr & neurology clinic have discharged me as no longer needing their treatment/testing. Now trying to concentrate on movement & immune health/vagas nerve restoration. I'm in it for the long haul & not expecting the US medical system to fix me. May later try a functional Dr./accupuncture not covered by insurance, but I'm taking a break from specialists because its all too expensive & they don't have any more solutions other than pain management prescriptions & physical therapy. Want my old legs & life back, but as time marches on, accepting my new reality/ trying to adjust the sails is my ultimate goal. Making do with forced early retirement & a part time job at minimum wage & trying to find new joys in life to focus on. I'm not going to let this defeat me without fighting the good fight.
Castol oil pack hepled me with "pain/ liquid feeling" in both of my thights.
No massage???
I would be totally bed ridden if it wasn't for my massages.
If you are beyond the acute stage, massages can be amazing for circulation, detox, etc. But I was speaking about while in an acute stage or episode.
Thank you!!❤❤❤
So glad I found this!!!
Why not the hot tub? I have a hydro jet tub and take epsom salt soaks
Hot tubs aren't great in an ACUTE state of tickborne illness. Especially if you have nerve pain or nerve issues. Wait until your episodes slow down and are manageable then take it slow with the heat and pressure. Baby steps until your body can handle it. Then throw in the magnesium salts!!
Also retro v powder and biocilm breaking powder from native wisdom do that too
can you give any more information on this? I am very interested in healing remedies from nature used by our ancestors
I just started the Vital Plan by Dr. Rawls!!
Just found your channel on RUclips I've been suffering from extreme burnout and headaches for about 5 years and then about 2 months ago I pulled a tick off my dog the next day I pulled a tick from behind my ear now I'm in such severe pain it's crazy started seeing a new doctor he prescribed some hormone pills for me for a month ran out last week and it is again really bothering me I'm seeing a doctor this afternoon I'm going to ask him to give me some ivermectin what do nice folks think?
Just positive for Borrelia myself, on Doxycycline, next Amoxicillin heavy daily doses. Using herbs too, trying to cut out dairy amd gluten and alcohol. Eat well.
I also use medicinal mushrooms
Hormones do not treat Lyme or tickborne illness. Ivermectin could aid in co-infections but not Lyme itself. I would get to a Lyme-versed doctor as soon as possible (most of them are called Integrative MD's) and learn how to get it under control in your body. Each person is unique in what works for them due to immune response etc.
Anybody try SOT
Yes, going through Lyme will have one questioning everything including their own sanity maybe most of all.
Thanks for this.
Oh, I know!!
Absolutely true! I don't remember most of the last 15 years.
@@tammihughes3385 you're not alone..going back to 89, trying new herbs at this time along with Zeolite - wishing you the best 💓
Did she use ldn ?
Seeing how the ospa b are bad with lyme and who knows what else. Wouldn't it make sense to develop something to deactivate this ospa and b. This is I'm sure 1 of the ways lyme borrellia and or the other borrellia are resistant bacteria. Weaken this ospa and b so regular antibiotics or whatever antimicrobials could get at the bacteria easier. I'm at a loss treating my multiple infections diseases and environmental illness. Just awful. Something needs to be done quicker and outside of the federal system. A med to increase Immune system function, stem cells.
My podcast called Lyme Time with Dr. Rawls is interesting. He's had great results from the Restore Kit, an herbal course.
I wonder could Lyme trigger other autoimmune issues? I was diagnosed with Hashimoto’s Thyroiditis in October 2023 and have been sicker than a dog since. I have been bitten by at least 30 ticks or more in the 23 years living in Indiana. No thyroid issues in the family whatsoever. I wonder if there is a correlation there I don’t know I’m ignorant on these things and my father is a retired gastroenterologist so I’m not a complete idiot. My symptoms are mostly neurological. I am waiting on the Lyme test to come back. It has been sent to a special Lab . I am so fortunate to have a Lyme disease specialist 20 miles from me. He studied out east he seen over 6000 cases of Lyme disease. He’s pretty certain I have it based on seeing me for 30 minutes and his office last week. So who knows. One thing I do know that I’ve learned is at the regular standard testing of Lyme disease is like a flip or a coin. It’s anyone’s best guess rather it’ll be positive or negative it’s so inaccurate.
DNA CONNECTIVE TESTING IS ACCURATE
I'm glad you are testing. Hashimoto's can sometimes be triggered by toxic mold, as can Lyme. Keep digging and treating. It may get worse before it gets better.