This game is really accurate of most severe chronic illnesses. You have to carefully plan out every waking second of your life in order to get even the smallest things done. You learn quickly how to budget your energy, but it's hard not to feel bad when you can't even do basic things like laundry or showering. It's worse with things like CFS or other "invisible" illnesses, because you constantly feel the judgement of everyone around you, whether it's real or not. If you're interested in researching this topic further, you should really look up "The Spoon Theory." It really explains this game very well. Essentially, spoons = energy. Brushing your teeth takes a spoon. Showering takes a spoon. Making breakfast takes another spoon. Eventually, you run out of spoons, and you can't do anything else until you rest and gain some of your spoons back. Healthy people start their day with a lot more spoons than chronic illness sufferers (or "spoonies"). So while your morning routine may not ever cross your mind as something that requires energy to do, for someone who only has half as many spoons as you do, things like making a fresh breakfast, or saving the spoon and just eating something quick like cereal might mean the difference between going out with friends later or going home and going to bed. If you've ever seen or heard someone say "I'm out of spoons today," that's what they're referring to. I don't have CFS, but I do have multiple other chronic illness issues that cause chronic fatigue (mostly complications from EDS). I'm 26 years old next week and I've never been able to work a "real" job due to my illnesses. I feel like a failure watching so many of my friends buying houses and starting families, and I'm still stuck living with my mom who constantly (whether intentionally or not) makes me feel guilty for not being more independent. I'm currently facing the very real possibility that I may be placed on a feeding tube. Maybe temporarily, maybe forever. I have severe chronic joint pain due to all the dislocations and sublaxations that happen just from walking around normally, to the point where I have to use a cane if I'm going to be standing or walking for any extended amount of time. I tend to avoid going out at all now because I know I'll get tired before everyone else, or start throwing up, or just have a panic attack about any random thing that *might* happen, and since I can't drive that means someone else has to leave early to take me home. Chronic illness is very isolating, which can lead to depression, which tends to cause further fatigue. I can relate to the character feeling bad for not having time for social media, because my social media interactions are the only human contact I have outside of doctor's offices these days. It's a dangerous cycle, and it's easy to fall into if you don't remember to reserve some of your energy for self care (whether that's art, watching movies, watching videos on youtube, or just whatever you can do that makes you feel happy for a little while). For me, I'm a trained seamstress, so I sew in bed while watching videos on RUclips or Netflix. For Robin, maybe all she has is her bird and her novel, so she feels bad if those things are neglected. The key is to maintain a balance. It's okay to let things slide once in a while, as long as you're getting the important things done and maintaining your own mental health. (Sorry for the novel, but this is a topic that hits very close to home for me. Thank you so much for playing this game and trying to understand!)
Chriss thank you for sharing! Though I have never heard of this until now. It seems like a very heavy topic to cover. I'm sorry sorry you have CFS, amen to you. I hope you feel well. I'm also happy to see people around you who support you and are fully aware that you have this syndrome but treat you with full reduced. Again thank you so much for sharing your novel and I hope you have a wonderful life!
yeah really sucks when you are going through school with it but not knowing you have it and just being called lazy and then because of all that failing that is what happened to me with CFS/ME It sucks but that is my Life
I have fibromyalgia, it's a chronic illness, damage to the nervous system. It has over 200 confirmed symptoms. I suffer from many of those symptoms, including chronic fatigue and chronic exhaustion. It's miserable to live with and it's very disruptive making simple daily task very difficult. Many of the symptoms when they flare up, will actually irritate other symptoms causing them to flare up as well. There was a time years ago when my symptoms were so bad that my husband had to physically pull me out of bed, dress me and start moving my arms and legs for me just to get me up for the day. My body was in so much pain and was so stiff and weak that I couldn't get myself up and dressed. That lasted for several months. I also suffer from depression and suicidal tendencies. Exercise definitely does help, and I know it's hard, especially for us with fibromyalgia but you have to push through it. It absolutely gets better and helps a lot of your symptoms. I love and appreciate that you play games like this and bring attention to various illnesses. Watching videos from your Q&A's at PAX shows how much you've helped many of us who suffer from many different things. You make our lives much better in more ways than we can explain, you are a voice for the voiceless and I couldn't thank you enough for being such an open minded and loving human being. Thank you Jack.
My grandmother has fibromyalgia and I have a lot of the symptoms, so completely understand and you seem to have a positive outlook. My mum told me last night that theres been a breakthrough, and that they have identified the source as excess of blood, so I hope that this leads the way to treatment and management for all
My mum has CFS and this is really good. She always feels so guilty for not being able to do something, she has to sleep after doing like 4 things around the house and it's showing no sign of stopping. But it's fine because I'm here to help, I guess. She's who she is and she has CFS, she's not lazy and she doesn't just get tired. But we live with it together and we get by. My this is the best thing I've seen to describe it, so when people ask me why she's so lazy, I'll show them this game. And um ik this isn't relevant but after I've done whatever my mum needs, I love watching jacks videos. I don't have many friends because I have to stay at home to care for my mum. Like, I always feel so shit being kind of a young care giver and I feel like giving up, but when my mums asleep and all the works done, I always have someone I can watch and listen to and talk to, so thank you so so so much for saving my life ❤ and I know you say "don't thank me" but really, thank you
TheOriginalJoker, if everybody was like you, the world would be a great place. especially compared to the shot world we have today. our world today is basically dirt with sprinkles. the sprinkles being kind, helpful people, and the dirt being the majority of the population.
TheOriginalJoker thanks for sharing.. you're a good kid for helping your mom. hope she's doing well with he CFS. im glad you both have each other's backs
Exercise can help almost all physical and mental illnesses but in many cases it can actually make CFS worse. People with CFS don't recover their energy, if they're lucky they'll have more energy after sleeping (not always), but attempts at regular exercise can mean no longer having the energy for basic functioning, like eating and showering, and it doesn't mean that eventually you'll start having more energy if you exercise enough. Exercise programs for CFS need to be monitored carefully but usually doctors and trainers just recommend a normal exercise regimen and sometimes even expect people with CFS to do the same things healthy people of the same age & weight can do, and it just makes everything worse, it can make people depressed/more depressed when it makes them feel worse and they keep being told if they just try a little harder and don't give up so "easily" then it'll work
Privacy Lover thank you!!!!!!! This is the case with me even though my illness is different. All the time people tell me what to eat and how I should exercise. I'm overweight because my fatigue is caused by a thyroid issue. It's so hard when people assume you eat horribly or are lazy
I feel this. A lot of people tell me to exercise but they don't understand that because of my muscular dystrophy I can only walk, swim, and do some light yoga. I tell them I have muscular dystrophy and then they tell me to exercise or lift weights to help but I can't do that because I have dystrophy. Luckily, I can still walk and climb stairs okay.
I'm 22 and can't work or do much of anything because of this. I can't even wash my own hair; once a week I have to put on a swimsuit and have my mom help me. I used to be a straight A student and a nurse assistant for developmentally disabled people...shit really sucks. Having no energy to do anything then feeling even worse for what you don't get done...I don't even play my ps4 anymore cuz even gaming is somehow too draining. That's a huge reason I love RUclips as much as I do...being stuck in bed really gets lonely as hell and depressing, but watching you tubers/let's plays kind of feels like hanging out with a friend in some ways and I can get to enjoy some of the games I don't get to play anymore. Thank you.
It really does suck. I have a variety of conditions and, especially at this age (I'm 20), everyone expects us to be out at clubs and whatever else hanging out with friends but we can't because it's just too exhausting. RUclips really helps me too. It's almost like having a friend round but they never ask you to do anything or question why you aren't doing more.
Hana Kellogg I completely agree, I'm 19 and have a severe chronic pain disease that is now affecting my breathing. I can barely get out of bed some days. I'm lucky in the sense that most of the time I can try and live a normal life, but I pretty much just go to work and come home. I'm taking nearly 40 tablets a day. I try to explain to people that I just can't do the things they want me to do? but the never understand. I tried to go to a concert and I just wasn't able to stand up? I physically couldn't, the pain was just too much - but because it's invisible no one believes it. I once spent 3 months bedridden on high doses of morphine - I just tried to watch RUclips so I wasn't as lonely. the night's alone in hospital are made SO much easier because of these RUclipsrs! I wish they knew just how much they helped!
It just comes down to being openminded and compassionate to other people. You never know what people are going through behind closed doors. Be kind and don't shy away from things like this. Even if you could never possibly understand how or why someone is suffering, as long as you keep trying to educate yourself about different things and be kind no matter what, it's enough.
I'm chronically fatigued. I can say this is fairly accurate. imagine if you never slept for a week straight, how tired you'd be, how exhausted you'd be... now imagine feeling like that ALL the time, no matter how much you sleep, no matter what you do you always feel the need for naps, you get headaches easily. it's something that can be lived with, but it makes everyday things so difficult to do. for example, when I was in school I did horribly... I would always fall asleep in class. if I stay in one position too long, I pass out. people always ask about the bags under my eyes. "stop playing video games all night, get more sleep" they'll say... and I do... I get a good 10 hours sleep a night. sometimes I'll just stay up and play videogames till 3 in the morning... there isn't a difference when I wake up. it's the same every day. every day is just wanting to nap, wanting peace and quiet so you can sleep... it's a very awful kind of hell.
In the sea of comments, this will probably get lost, but I just wanted to say that you've helped a lot of us through some tough times. Whether it be CFS or depression, just know you've helped somebody. You have literally saved people, Jack (or Sean). So, on behalf of your community ... thank you.
Thank you so much for playing this game. I've struggled with CFS for most of my life and watching this video brought tears to my eyes. Most days my BPD DPD and CFS make it hard to get out of bed and I always feel guilty because there's nothing wrong that the doctors could find. I've seen specialist after specialist, done blood test after blood test, and to see one of my favorite creators validate my illness made my day. Thank you for helping spread awareness.
I have Lupus and when I have a flare it is a lot like this. I try to work through it, but it's so hard. It is nice to see you trying to bring awareness to illnesses that are not always visible from an observers point of view. Thank you
Alexis Merrill omfg! I think I might cry...... I've never talked to someone with lupus like me.. I have SLE lupus! I hate our flares too.. they're not fun.. the thing I hate THE MOST is that to a normal person, we look healthy and they think we can manage what they can manage, when we actually can't.. my muscles and joints can't handle many things as it used to.. It's sad that we look ok outside but no one knows are suffering inside.. I hate that when a normal person questions why you can't do something when they ask or tell you to do, then you have to awkwardly tell them you have lupus and explain how it affects us.. when all you wanna do is scream at them for not knowing or understanding how bad it affects you :'(
Aerowe AE how dare u say that to her!! It might not be true but still you should NEVER say that to anyone. Also, she wasnt even asking for a like, she was just writing down a comment. Bruh chill out!
Thanks for doing this I myself have C.F.S and have had it for a year and a half now it's not a widely recognised condition I hope this shines a light on it prepare for this to be lost in the sea of comments
No problem, good luck though. I have insomnia (and i mean it not like a lot of people who say it when they didn't get a lot of sleep) so I share a similar pain.
This game clearly has been influenced by *the Spoon Theory*. If you don't know what it is, I suggest you look it up! The idea is you are given a certain amount of spoons, kind of like energy bars in a game, and activities take spoons away from you. You can try to get stuff done and lose a lot of spoons or not do anything and keep the spoons in case of a rainy day. This theory can be applied to a lot of different chronic diseases.
My mum has COPD, and she once explained to me that she has a certain amount of marbles to use each day, but events that take too many will have effect on the next day. it really helped me to understand her situation.
{GD} NightHawkF117 Umm not sure! I think originally the person who came up with this was having lunch with someone and had only spoons around them to demonstrate! :D Could work with any other item as well!
Hi, Jack. I just want to say thank you for showing me and my friend this game. My friend suffer from chronic fatigue syndrome, and this game really reflects her life. She spent years, going to hospital to funderar out what makes her sooo tierd every day. She Lost her job, boyfriend and most of her friends, since she dont have the energy to do things. She got happy when i showed ger this video, and finaly dont feel as lonely strugling with this illness. So thank you.
That’s one of the main reasons why your my favorite RUclipsr Jack. You respect all of us. No matter who we are, and no matter what we struggle with. I do get pretty tired during the day, and it can be hard to do things. But I do sometimes have energy.
This video is about a girl named Robin who has a pet robin named Robin and the video was edited by a guy named Robin and the title of the video is Robin and a girl named Robin is watching! (My name is Robin!) That's a lot of Robins!
Oh my god! I can't believe you are playing this!! My classmates in uni developed this game for one of our game project assignments! and I'm super happy that this game is on steam and got it's deserving recognition! Thank youu for playing it~ I'll be sure to share it to them! hehe :D Please be sure to support them if you like what they make! They are such an amazing people and such great friends as well! :3
We were assigned to make games about health and deliver a message that would help people that suffers it and even give an understanding to the people who doesn't have it. It can be any mental health issue, from addiction, anxiety, depression, and etc. As well as encouraging the players who had suffered from these to seek help and that they are not alone. I'm not sure about if they did suffer from CFS or not but I guess it is something that they themselves can relate.
Jack, thank you so much for playing this game and raising awareness for syndromes like CFS. I have suffered from CFS for several years now, was diagnosed as a teenager (so you can imagine the comments and frustration that came until I learned the truth) and each day is a constant struggle of dealing with the constant exhaustion, insomnia, depression, and other side effects. However, over the years as I've struggled with my disease and the inability to feel normal, I was fortunate enough to have come across your channel. It may not seem like much to you, but for a few hours a day, I can turn on the computer, watch your videos, and smile knowing that I can still be normal for a little while. Thank you for this gift and when youtube gets difficult, remember that you have already touched so many people with your work all over the world. So may God bless you, Jack, because you are a true boss!
I really love these kind of videos, because he takes the time to address issues that may not affect him but other people and he tries to understand things that are going on in other people's lifes. So, thanks for raising awareness and doing it in such a kind and entertaining way!
Thank you for raising awareness about CFS! I have suffered from it personally since I was 12 (now I’m 22 - also my name is Robyn! Haha! 😁) It means a lot that you tried to let other people know about this condition as everyday is a struggle. Even though we look normal on the outside, everyday and every second of everyday we have to think of how one little action or choice will affect how much activity we can do on a particular day or over a particular length of time. All you can do is ask for support from others on social media (Facebook groups) and know that we will get though this and think that not every little thing is an obstacle, it’s a journey. It is such a misunderstood illness and still not believed to be a ‘real’ condition by many but it certainly is. And with all the advances in medical research which I will be hopefully be contributing to shortly in my new job (at Newcastle in the UK) we can find some new answers about why it happens and how to get down to the nitty gritty bits biologically and remove the ambiguity and the unknown details about the illness. We will get there, slowly but surely! 😊
As someone who struggles with chronice fatigue it really means a lot to see it represented in such a cute little game that makes it easier for other people to understand. Thanks for playing this, Jack 💚
I have CFS, I've had since I was 13 after having another chronic illness. I lived most of my teen years in a hospital. I never graduated high school because I couldn't keep up with my school work. The loneliest 5 years of my life. This game really hit home, it's nice to see someone who understands and can sympathise.
As someone now struggling with chronic migraines and very limited energy, this hits very differently then when I first watched it. Thankyou for doing videos on these sorts of games/experiences.
Not sure that people like Jack who do what they do and have so much energy to go around, that this 12 minutes can make so much of a difference in the lives of those of us who deal with these issues on a daily basis.
This hit really close to home. I've got CFS on top of Chronic Migraine Headaches, Postural Orthostatic Tachycardia Syndrome, and my doctor and I are in the process of figuring out and Ehlers-Danlos Syndrome, and Mast Cell Activation Syndrome. A lot of us use what's called the spoon theory, which allows us to explain our energy levels to people who don't live with chronic illness. We measure the energy activities take in spoonfuls of energy. So if we tell a person we're out of spoons, they're more likely to understand.
You're a very strong person. I have chronic pain, depression, and anxiety. I learned about the spoon theory from a friend that has spinal issues and fibromyalgia. It's been a lifesaver for me.
The Spoon Theory is something I use as I suffer with Major Depression, Anxiety and a few medical conditions, but none as serious as yours. I am so sorry you have to deal with all of that, it's so unfair. I really hope you have a good support network of family and friends who listen, care and support you x best of luck with everything hun
I have EDS Type 3and CFS too and suspected POTS. I found a more recent way of explaining more useful which works on seeing your energy like a mobile phone battery and on bad days it hasn't charged to 100%. I like that theory better, I think it makes more sense.
I don't think I have C.F.S, but I do know my depression messes with me a lot. I'll always be very tired, my friends tell me I look stressed/exhausted. Typically I can go through the day I'm fine, but that's only if I don't leave my room. If I have to leave for anything, especially to see people. I become exhausted quickly and I just want to be back in my room asleep. So I do relate with being exhausted from simple things. Laying in bed feeling gross, knowing I have laundry. It's upsetting knowing my so tired I can't do anything.
I don't have chronic fatigue syndrome, so I have periods of normal energy, but major depression also saps your energy...so every day is a practice in prioritizing. It's taken me a really long time to both come to terms with my condition, and reach for forgiveness when encountering ignorant criticism. And Jack--there's no difference between a physical or mental illness. Your brain is a physical organ, and the diseases that affect it are just as provable as what can afflict your other organs. The true terror of brain illnesses is that nobody tells you that your brain can be compromised, and so most people grow up thinking that it can't. It can, and there's really no worse feeling than not being in control of your own brain.
Yeah no one is in control of his own brain, we make ourselves believe it but we are sooo influenced in an unconscious manner, by illnesses yes but not only that. It's fascinating! (and a bit scary too aha)
Jack, look up the Spoon Theory. It is how my mom described what it is like for her to live with Fibromyalgia. The Spoon Theory is basically what the energy bar in the game is.
Alexandre: Some days she can hide the pain from me, others I want to cry because you can see how tired and how in pain she is, and other days she feels better. And she's been living with it for almost 25 years now. Patches: I'm glad I wasn't the only one. As soon as he started mentioning how tired people were with the illness, I was like, "Are they going to show the Spoon Theory in anyway?" So though it wasn't spoons, they did a good job with the energy bar.
I have fibromyalgia as well, and I will often use Spoon Theory to explain how I'm feeling when others ask. However, it isn't always entirely accurate. Sometimes you think you have 12 spoons when you wake up, but a bad storm hits later that afternoon (air pressure changes like storms affect me a lot) and it cuts your remaining spoons in half. Sometimes you just tire out even quicker than usual that day for seemingly no reason. What I mean is, fibromyalgia and other illnesses aren't always as clean-cut as Spoon Theory would suggest, but it's definitely a good tool--just don't take it too simply. It's wonderful you were interested in your mom's health enough to go through the steps of Spoon Theory. If I have a child, I hope he's as caring as you ❤
Why have i never heard of this! Gotta look this up. There is absolutely no support for fibro where i live, so i have no idea how to cope with it by myself, i have no family or friends to help and i really struggle to walk and get out of the house now.
I know it's probably going to be lost forever in the comments, but I just wanted to share one thing: I honestly love Jack and how he is always spreading awareness and shares his own mentality/ideas when it comes to things like mental and physical issues (and many others). I have social phobia and many people force me to do things I cannot bring myself to, despite knowing it will only worsen it all. And when I apologise a thousand times, they still get mad and dissapointed, as 'it's not a big deal', 'don't be such a crybaby', 'you are just stubborn', 'everybody gets stressed and they just toughen up'. They don't take into account how painful it is to live with social phobia or any disorder, and try to compare their own take on everything with other peoples', which may not always work. Just like with Robin's CFS - we cannot just say 'oh just get on with life, no big deal'. It's much more than that. Same goes with physical illnesses; when I was sent to a hospital for sight checks, the doctor, not a GP, told me *literally* 'Welp you are going blind, get over it'. It pains me to see how little empathy and understanding some people have. Solemn apologies to anybody that reads this, for wasting your precious time. And to Jack, if you ever read this: I know you heard it millions of times, but you really do help me get by every single day and I really appreciate your hard work, dedication and how much heart you put in everything you do. Thank you ♥
Soulshade Schizzy. I know it might, at times, seem like people on the whole have little sympathy but please remember some of us do. Some of us will always be there for people who need it and I really hope that you can get better. Social phobia isn't easy and it cannot and SHOULDNT be brushed off by people. I know that you've probably heard this before but please smile. Don't force yourself to do things, don't force yourself to be happy, just let other people make you smile and make them smile in return. Try, as best you can, to be happy and think that someone will always be there to support you even if it's just me in the comments. Talk to people and if needed I am always here. I genuinely hope you have a wonderful day and a wonderful life :)
Unfortunatly unless people have had personal experience(themselfs or friends/family)with these kind of things, they won't understand what it is like to have something and that most things can't be simple ignored or toughend up. I think it is amazing that Jack uses his time to raise awareness for games like these and reaches so many people through them.
I had been suffering from chronic fatigue syndrome and because of this it triggered social anxiety and depression because of self negative feelings because I just thought I was lazy, after about a year I went to get help. your videos Along with Mark's helped to cheer me up on the darkist days through the long recovery, so I wanted to say Thank you on behalf of me and every one else you have helped. look after yourself Jack. =)
Robyn Leflay :) I've been through the same stuff I hope your slightly better now and that the sun can shine down on you ... Everyone is special in their own way :)
I wish both of you the best! Remember never to give up, and always talk to friends/family when you need help! There will always been people to support you. 💜
I have Ehlers-Danlos syndrome, a chronic pain/ chronic fatigue condition. I've also been battling a cold. Tonight I got ill, throwing up in the toilet, and it was so discouraging because I'm so weak from getting sick, in combination with my EDS, that I had to call my neighbor over to help me stand back up off the bathroom floor... While I hate games like this because they can never encapsulate the true suffering of such conditions, it's thoughtful to at least see game developers attempt to bring a portion of that suffering to light to help others better empathize with what we go through daily.
I have EDS and CFS too. It's good that games like these are helping to make people realise that we aren't just lazy or anything like that, even if they can never show people what it's like to really live with it.
Courtney Witt geez man, cut developers some slack; they probably don't have the illnesses as bad as other people(or at all), but they're trying their damnedest to help/raise awareness.
Logan R. yeah dude, I didn't mean the game was in any way bad. It's great to even be acknowledged and, as short as the game was, it did a great job covering the basics; but it's hard to encapsulate all that is ANY condition really in game form.
Hey Jack. I'm really glad you played this, I just got diagnosed with this today actually aha coincidence? I'm glad you played this to help show people what it is like. Even though I was diagnosed today, I've been suffering with this for a while and shrugged it off to depression. It's so difficult to wake up and do normal things, however I'm a carer for my mum as she's very ill. All of this takes a toll on me, but I always watch your videos before I go to bed for my rest time as it makes me happy. So thank you Jack. You're an amazing person, don't ever forget that. Keep being you ❤
I thought it was like an introduction video, maybe a Q&A or something, to get to know Robin if you don't know who he is. This makes me wonder if the clickbait was intended XD
This is the problem with chronic illnesses. My mother has fibromyalgia, chronic fatigue syndrome, and a number of other things. And it's sad because, a lot of people don't understand she can't help it. And it's frustrating because often there aren't good tests to find these things, it's a long process to basically eliminate all other possibilities. I'm so glad you play games like this and that you're so respectful. Thank you, Sean, so much.
this was very close to my heart. I have ME which is a very similar disease. and unfortunately i almost never haveenergy for anything anymore. I love to sit and watch your episodes, and hear you talk about it means a lot to me. so thank you, thank you for making my day a little easier for me
I have CFS and I've learned to just push away all of the comments on me being lazy, or all the comments on me being young and I should have lots of energy. I used to try to tell them that's not how it is for me but they don't understand or listen. It didn't become noticeable until about a year ago. It hasn't gotten any better. But I try to make the best of things while I still can.
It's okay. I know it's hard. I suffer with excruciating pain every day-- daily migraines and I've had the same headache for three years. I've been in brain scans and they can't find out what's wrong with me. I've learned to live with this flaw, even though it's so hard. I know what it's like to have pain (or less energy). I have respect for people that have this (what you have) because I know it must be so hard. I hope that you have a good day
I totally empathize with this, telling people your tired all the time and they tell you that you don't use your time well and that you have 'all the time in the World'
Dylan See I'm digonosed with depression and anxiety.im pretty lazy and I'll tell you I know Jack helps me so much to not be sad I take medicine for it every night.i use to cry myself to sleep for no reason.I have a depression where u want to be sad.its horrible.the only thing making me sad at night is when I did something like playing with a ball and not telling her about it.or when I put on a cap wrong so I feel like I'm different.too different. anxiety is horrible too all I do is stress about a test or going somewhere to spend the night.i use to not have sleepovers because I would cry because I wasn't tired.just know I'm here for u and would love to help u threw the way
Hey Jack, whenever i feel stressed or down or angry, i can watch ur videos and feel better ur an amazing person and i know for certain im not the only person you help. Keep it up, Love ur videos!!
I was diagnosed with a chronic pain disorder 2 and a half years ago and since then I'd become completely disabled (along with finding other disorders I have that add to it). Jack has been such a huge part of what keeps me going everyday and why I don't feel as sad or lonely or hopeless. I'm only 18 so all of my friends are healthy and able to have any sort of life, while mine is spent wholly in my bed or at hospitals, and of course that just makes me feel worse. honestly his videos are a huge part of what keeps me alive now, and seeing him play a game like this that so accurately depicts a big chunk of what it's like to live like this feels like a way of him connecting to those of us with chronic illnesses. while that may not have been a part of why you played it, thank you for doing it at all and thank you for doing what you do and helping people like me have something to look forward to everyday.
Goblin080302 Placebo. Your body expects there to be flavor. So in turn, you body either "makes flavor" or tricks you into thinking that. That's why if you were given sugar pills but we're told they were pain relievers, then your body could possibly "give" them the effects of them.
I suffer from depression but one thing that makes me happy is watching your RUclips channel you changed my life a lot and without you I wouldn't be who I am today 💚
Thank you for playing this. I have chronic fatigue due to other chronic illnesses, and this is a pretty good representation, as simple as it is - including the disappointment of getting blood tests back that don't have any answers. The moment in the game when you realized that you would never have enough energy to get everything done is literally my life. I don't have the energy to do everything I need to do, and I have to choose a few things to get done each day, so everything left undone keeps piling up and piling up. I spent years being really hard on myself and getting a lot of judgment from people around me about being "lazy" because I didn't have the energy for everything that other people were able to get done easily. I pushed myself so hard that I eventually had a complete breakdown, which was when my family finally understood that I was sick, not lazy. I still have so much self-doubt about whether I could be doing more, but every time I try, I end up having to spend days or sometimes weeks recovering. It really means a lot that you played this game and talked about this kind of experience on the channel so more people can get a better understanding of what it's like.
I can imagine how hard it must be ;-; I've got suicidal depression and social anxiety, so it's hard too, but while scrolling through comments I realized how many of us has ilnesses and deseases. It made me believe that no one is alone with his or her problems. There is always someone that can support us and we can always support someone else. Be strong buddy! 😊
I don't have Chronic Fatigue Syndrome, however with my Depression I feel constantly tired and feel like I have no energy at all but I've been working out more and am trying to convince myself to go out with some friends and I feel better, especially with such an amazing community to come to at the days end. I Love you guys!!!!!!!
I've never been diagnosed with chronic fatigue syndrome (but I have been diagnosed with depression), but this actually speaks to me a lot. I spend most of my day lying down, normally watching RUclips (one of the things that doesn't tire me nearly at all), and some days I forget to eat because I'm just too tired to care. I can only do so much in a day before I just get...tired. Jack, thank you for being one of the few things that makes me smile without tiring me exponentially.
I have a disease called endometriosis that causes chronic pain and fatigue. On the exterior I look fine, tired, but fine. And for that reason I can completely relate to this. The pain on most days drains all my energy. I have at one time or another felt like it was all in my head. Felt like I was just a lazy failure who should be trying harder to push through my pain and fatigue. And Ive felt that judgement from others who cannot relate. I am glad you played this game Jack. Its nice to be reminded I am not alone with these thoughts and feelings.
I don't have endometriosis myself but I know a couple of people ho do and you have my sympathy. It is a horrible condition. There are other people with it so you aren't alone.
I, too, have Endometriosis that was recently found out. 7 years ago I was diagnosed with PCOS (which is still there, too) I know exactly what you're going through. Often times would get envious of my friends that have normal cycles with very little cramping compared to mine. Some may think "Oh you just have bad cycles, that's not bad." when it extends further out on a daily basis more than just on your cycle. To the point when your cycle does hit, you're left throwing up from the pain and bed ridden for quite sometime. Others have said "Must be nice to stay at home." When it's really not. I hate that anyone else goes through the same, but indeed, it is a nice reminder you're not alone going through it. We're all troopers regardless of what plagues us
I have an anxiety disorder and a learning disability mentally that cause me to process information a lot slower than other people. I used to be very upset at myself about this because I thought I was the only person who had this type of problem and feel alone a lot. RUclips has helped find friends and tell me I'm not the only person who feels this pain. I'm 19 and in college so these videos have always helped me whenever I am stressed and need something to cope with. I was lucky enough to meet Signe at Pax East and was so close to meeting jack. This community has helped so much in the times of serious struggle. Thank you jack for doing videos on anxiety, depression, and more like this. They have helped me find my closest friends and help me learn more about myself.
Well, i have depression and anxiety and as Jack said... RUclips does help.... as least for me. Twice a day i can shut my brain up and listen to the green bean.... and that saved my life
My mom has had chronic fatigue syndrome for 25+ years. She's dealt with so many obstacles in life, and even with this terrible disease afflicting her she's been so inspirational. I've watched her fight for awareness and acceptance of Chronic Fatigue Syndrome. For decades people thought it was a mental disorder, or strictly made up, and seeing a game come out about this and showing the daily struggle of all those who live with CFS is amazing. Thank you Jack for playing this, it has made me and my mother unbelievably happy.
Anyone who wants to try and understand chronic illness/syndrome/ pain look up "the spoon theory" it is a good way of having at the very least a partial understanding of the day to day logistics. And please understand that anyone in these situations is trying their hardest. Yes there are things that they wont be able to do but dont make them feel bad about it. they feel bad enough about as it is. and im talking from experience.
The normies made memes out of us too, I mean those who suffer from chronic mental illnesses. They all label us as "lazy" even though we are trying so hard just to live day to day.
This game is good at portraying some of what CFS is like, i think it's good that this can bring some awareness of the disorder. I've had to go through so much strife dealing with this but I've been lucky enough to have my parents and people at school supporting me through it all but i know a lot of people don't and the disorder is awful on it's own without that. I think this game is good for spreading some awareness about the disorder; it's hard when people who don't understand it expect and demand more of what you can do but you physically aren't able to.
In the end though you have to be strong, which i know isn't so simple as saying it, and try to live to the beft of your abilities and make the most of life. I've learnt to not take life too seriously and a therapist really helped me there. I'm not asking for sympathy or anything I'm just trying to give my input into this because i have lived it.
SilverBlood74 It's really great to see there are so many other people suffering with this. Sometimes I feel really alone when it comes to having CFS. It's really hard to understand unless you have it. All the best to you!
I can't relate personally but I do appreciate how many people are commenting and giving input based on experience and I will definitely look into it so I can learn more.
You really seem like such an amazing person. I love watching your videos, completely silly or more serious. Thank you so much for being an awesome RUclipsr and people human thing!
Is there a cure? I'm in middle school currently and my mom always give me chores and stuff and I can't do them all and she yells at me constantly and it feels like the world is on my shoulders. We went to the doctor and they said I had Pots and that was it. Which is accurate but... I'm still tired. They say I just need to drink more but it just makes me more tired! My mom told me "go to bed earlier!" "Wake up later I'll take you to school!" I don't know nothing works and I think I might have it...
The Irish Doggo there isn't a cure I don't think but do your best to eat, drink and sleep well. It may not cure it but it helps get you as good as possible
maisie moo Narcolepsy is usually determined by random and unexpected fatigue or 'sleep episodes' where you uncontrollably fall asleep at any given time in the day. But there's more to it than that. Your brain is made up differently. It associates the day time with sleep and the night time with wake; meaning that sleeping at night is usually difficult or impossible. It varies from person to person, but for me, it's nonstop tiredness and fatigue that you have to power through. People assume you are lazy or aren't drinking enough water or aren't trying to make yourself entergetic, exactly as Jack said. It's like no matter how much you sleep, you aren't satisfied. Your always exhausted and sleep for 13 hours or more a day. Thats the shortened summary of Narcolepsy.
xYomoshiix thats crazy... they thought i had narcolepsy cuz i had the same thing happening that u did. Did a sleep study and told me i was one rem nap away from being one and only had hypersomnelence. It sux cuz i fall asleep at work in the middle of doing things and had to be put on medication. i still wonder if it isn't narcolepsy and just misdiagnosed.
prissynikki3 Doctors are very quick to diagnose a sleeping issue as something more benign than Narcolepsy because it is rare and is similar to other fatigue disorders. Either way, it's awful.
Hi Jack, I'm 20 years old and suffer with a condition called POTS, one of the plethora of symptoms of POTS is chronic fatigue. Living with it and dealing with depression, anxiety, working when I can, and being a full time student in my senior year of college is a true struggle. I'm so relieved that you played this game, it gives a huge eye opener to the world that people with this disability. Thank you so much for talking about it and for playing the game. I struggle to get through a lot of my life, some times I go weeks without picking up my laundry off the floor because I have to dedicate the little energy that I get to doing something like feeding myself or getting school work done. I truly hope that your playing this game will give some people a look into the lives that some people have to deal with to just get through a 'short' day. Again, thank you so much, I love you as a gamer and enjoy listening to your 'rambling' and hearing the thoughts going through your mind.
I have a bit of chronic fatigue syndrome which makes it hard for me to do school, and there's the fact I have to make money with my art but a bad problem that I have is that I have Insomnia. I'm also suffering much depression, I feel like this game though is a very connected to me and I'm glad that Jack understands the problems and cares for his viewers. Thank you Jack, I'm glad your videos are always able to cheer me up
all i can say is: We believe we beleive we believe in you we believe we believe we believe in you, in you oh yeah in youh oh yeah grab the glory all the glory
Something you should look up is called The Spoon Theory. It is an awesome way of explaining it all in layman's terms. I live with something called CRPS which is a degenerative nerve disease. I empathize with what this character goes through. Thank you for sharing this game!
Jack you have a very caring heart and I know you have helped a lot of people with this video. It's amazing how a guy like you can be capable of such serious conversations and I can tell you say it all from the bottom of your heart. Love ya jack but not in a gay way. Peace ✌️
I am always tired... And never get everything done. I never told anyone about it, and I never paid much mind to it. But lately, I have been declining offers just to sleep. I go to bed at 6:00 when I used to go to sleep at 10:30. I feel tired all the time and am wandering if I should tell someone.
RLM Gaming You need to tell someone. I have an auto immune disorder that causes stuff kind of like this, having no energy at times. I spent a good 3 years not being able to do normal things and hating myself for it. It is important that you figure it out
Tell someone. They will either help you, get you to someone that knows how to help you or try to help you the best way they can. It might be hard, but it'll be worth it. :)
Hi Jack, I was rushed into hospital yesterday. This was mostly thanks to my PoTS but was certainly brought on from my CFS. I was so tired all day after travelling and was feeling unwell all day. Then I had pain in my chest, went to get my Mum, collapsed and started fitting. It was scary. Mum called the hospital and they sent an ambulance. What was odd this time is that the attack lasted so long and I stopped breathing quite a lot. I’m at home now but they referred me to the sleep clinic as there was evidence that I may also have Sleep Apnoea (stopping breathing when you go to sleep.) Everytime I drifted to sleep my Sats would drop and they had to shake me awake again. This month has been hard. I’m glad I still have your videos to fall back on. It was so fun to watch you and Brian (Connor from Detroit) meeting each other, I see as I type this you just uploaded a new video with him. You’re videos always help me when I’m not well. I just hope my condition doesn’t deteriorate further. I’m 17 now! I’ve been watching you since I was 13. I remember last year when I spoke to you here that I was so excited for the project I was working on for you. Now I’m working on the Music for a team making a game for Ethan (Crankgameplays). Today I was able to talk to the team about my Chronic Fatigue and explain why I always need so many breaks from the project. I wish I could work on what I love more but my condition always catches up to me. You’ve got to the part in the video again where you talk about mental illness and how people want to help me. Years ago I never would’ve believed that but Thanks to you helping me understand my mental state as well as my physical state, I’m doing a lot better. No matter how bad I get physically, I try to keep my mental state separate. That I am happy even when I’m in pain. PMA. Even when I was in hospital and someone did my bloods or helped me out by taking me to the X-ray room or if I woke up from not breathing... I always said Thankyou. To every member of staff I saw. Because of how much they do for everyone everyday. I was grateful for everyone around me even though I had nothing. I could do not very much. Instead of being bored, sad, depressed, although I was scared, I was okay. I was grateful for my surroundings and I New I’d be okay. And although this month has been hard, although I’m exhausted today, I’ll be okay. I am okay. Thanks for keeping me company, Robin.
This really hits me hard. I just recently had my blood drawn, and the results came in this morning. Somehow it found out that I had depression, and I was later diagnosed with Major Depressive Disorder.
David Vierra I'm very sorry about that. I have the lowest form of depression, and most of my family has MDD. Please, take care of yourself. I hope you'll feel better, David.
Hey, I don't want to bring it up, but may I ask how you go about getting an official diagnosis? I've been wondering about myself, or if I do have any things going on with myself.
depression is your brain failing to produce chemicals that allow you to feel joy or motivation. if the brain isn't producing these, they're obviously not going to be in the blood.
Iam glad you play games like this jack,i really appreciate your effort on opening up and talking about this things(mental illnesses,proplems....)and you should be proud that you do,the amount of people that you have helped including me is propably astounding,there is a very few amount of creators who do this,who treats their viewers like people,friends even,and not a bunch of mindless followers to benefit from......,ive been experiencing symptoms lately,i always fall asleep during classes(no matter how much rest i get),i feel tired and unmotivated to do any of important stuff in my life.ETC.,im not sure if iam diagnosed with CFS or just being plain lazy,because i feel energetic temporarily in times,and sometimes i feel like dying which honestly is the most common feeling i get,but rambling aside,although you may not see this,i thank you jack for creating this amazing community full of creative and wonderful people and to all the people who experience this type of illnesses....dont feel like your alone,i may not know you but i do emphasize what your feeling and experiencing,and iam glad to be part of this amazing community of amazing individuals and an amazing content creator.
I'm 13 and suffer from cfs and it's really fucking difficult but I feel the game accurately represented chronic fatigue syndrome and that you have an energy level and can only do a few things through out the day. I'm glad games bring recognition to certain conditions many people are unaware of. Anyway jack you're a legend and high fives all round 👋👋
Katie Bevan-Thomas I'm 16 and suffered for a long time It made me miss 3 years of school and it sucked. But now I'm starting to beat it and I know that you can too. keep going and remember that you can and will beat it one day.
Thanks man . it is really difficult and I appreciate the support thank fuck jack has one of the best communities btw I'm actually male just using a different email
Expectation: My Favorite part of the day is when I can go outside and enjoy nature Reality: My favorite part of the day is when I sit down watch RUclips and chat with my friends
Thanks for those last few minutes. I have been formally diagnosed with GAD (Generalized Anxiety Disorder) and my therapist is pushing for me to get tested for a few others, mainly depression and ADD. My mom is convinced that I don't have GAD even though I've had panic attacks and meltdowns in front of her and it's frustrating and painful when she says "I don't think you have anxiety. I think it's all in your head." I don't know why she won't believe me. That alone is exhausting and draining. I can't imagine what people go through with this disorder. On top of already having a limited energy supply, they have to deal with the pressure of everyone else to "snap out of it" which drains the hell out of me and I can imagine is much worse for them. If your family is unsupportive with your disorder or mental illness, I'm sorry. Just remember you're not alone and there are people here for you. Whether online or offline, find someone supportive. I don't know if it'll help you, but it certainly helped me.
![I.N "HALLUCINATION" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/n5B5q1Hwt_U/mqdefault.jpg)
This game is really accurate of most severe chronic illnesses. You have to carefully plan out every waking second of your life in order to get even the smallest things done. You learn quickly how to budget your energy, but it's hard not to feel bad when you can't even do basic things like laundry or showering. It's worse with things like CFS or other "invisible" illnesses, because you constantly feel the judgement of everyone around you, whether it's real or not. If you're interested in researching this topic further, you should really look up "The Spoon Theory." It really explains this game very well. Essentially, spoons = energy. Brushing your teeth takes a spoon. Showering takes a spoon. Making breakfast takes another spoon. Eventually, you run out of spoons, and you can't do anything else until you rest and gain some of your spoons back. Healthy people start their day with a lot more spoons than chronic illness sufferers (or "spoonies"). So while your morning routine may not ever cross your mind as something that requires energy to do, for someone who only has half as many spoons as you do, things like making a fresh breakfast, or saving the spoon and just eating something quick like cereal might mean the difference between going out with friends later or going home and going to bed. If you've ever seen or heard someone say "I'm out of spoons today," that's what they're referring to.
I don't have CFS, but I do have multiple other chronic illness issues that cause chronic fatigue (mostly complications from EDS). I'm 26 years old next week and I've never been able to work a "real" job due to my illnesses. I feel like a failure watching so many of my friends buying houses and starting families, and I'm still stuck living with my mom who constantly (whether intentionally or not) makes me feel guilty for not being more independent. I'm currently facing the very real possibility that I may be placed on a feeding tube. Maybe temporarily, maybe forever. I have severe chronic joint pain due to all the dislocations and sublaxations that happen just from walking around normally, to the point where I have to use a cane if I'm going to be standing or walking for any extended amount of time. I tend to avoid going out at all now because I know I'll get tired before everyone else, or start throwing up, or just have a panic attack about any random thing that *might* happen, and since I can't drive that means someone else has to leave early to take me home.
Chronic illness is very isolating, which can lead to depression, which tends to cause further fatigue. I can relate to the character feeling bad for not having time for social media, because my social media interactions are the only human contact I have outside of doctor's offices these days. It's a dangerous cycle, and it's easy to fall into if you don't remember to reserve some of your energy for self care (whether that's art, watching movies, watching videos on youtube, or just whatever you can do that makes you feel happy for a little while). For me, I'm a trained seamstress, so I sew in bed while watching videos on RUclips or Netflix. For Robin, maybe all she has is her bird and her novel, so she feels bad if those things are neglected. The key is to maintain a balance. It's okay to let things slide once in a while, as long as you're getting the important things done and maintaining your own mental health.
(Sorry for the novel, but this is a topic that hits very close to home for me. Thank you so much for playing this game and trying to understand!)
Chriss thank you for sharing! Though I have never heard of this until now. It seems like a very heavy topic to cover. I'm sorry sorry you have CFS, amen to you. I hope you feel well. I'm also happy to see people around you who support you and are fully aware that you have this syndrome but treat you with full reduced. Again thank you so much for sharing your novel and I hope you have a wonderful life!
Magstersnoyl hggg
Dude, my best wishes to you, I read every single word and I was shocked. GL out there bro
I hope that you get better, and I honestly don't know why this isn't the top comment.
yeah really sucks when you are going through school with it but not knowing you have it and just being called lazy and then because of all that failing that is what happened to me with CFS/ME It sucks but that is my Life
Jack: I don't have CFS.
Me: I would have never guessed.
fbejster mate he has the Opposite.
TOP OF THE MOOOORNING
fbejster lol
fbejster ha ikr
fbejster my brother has this fatigue thing and he can't do any thing I feel bad for him I hope you guys or girls do to
I have fibromyalgia, it's a chronic illness, damage to the nervous system. It has over 200 confirmed symptoms. I suffer from many of those symptoms, including chronic fatigue and chronic exhaustion. It's miserable to live with and it's very disruptive making simple daily task very difficult. Many of the symptoms when they flare up, will actually irritate other symptoms causing them to flare up as well. There was a time years ago when my symptoms were so bad that my husband had to physically pull me out of bed, dress me and start moving my arms and legs for me just to get me up for the day. My body was in so much pain and was so stiff and weak that I couldn't get myself up and dressed. That lasted for several months. I also suffer from depression and suicidal tendencies. Exercise definitely does help, and I know it's hard, especially for us with fibromyalgia but you have to push through it. It absolutely gets better and helps a lot of your symptoms. I love and appreciate that you play games like this and bring attention to various illnesses. Watching videos from your Q&A's at PAX shows how much you've helped many of us who suffer from many different things. You make our lives much better in more ways than we can explain, you are a voice for the voiceless and I couldn't thank you enough for being such an open minded and loving human being. Thank you Jack.
I pray for u
TheNerdyMonkey my mum has this pray for you
My grandmother has fibromyalgia and I have a lot of the symptoms, so completely understand and you seem to have a positive outlook. My mum told me last night that theres been a breakthrough, and that they have identified the source as excess of blood, so I hope that this leads the way to treatment and management for all
TheNerdyMonkey My mother has the same, i wish you luck dear
My mum has CFS and this is really good. She always feels so guilty for not being able to do something, she has to sleep after doing like 4 things around the house and it's showing no sign of stopping. But it's fine because I'm here to help, I guess. She's who she is and she has CFS, she's not lazy and she doesn't just get tired. But we live with it together and we get by. My this is the best thing I've seen to describe it, so when people ask me why she's so lazy, I'll show them this game. And um ik this isn't relevant but after I've done whatever my mum needs, I love watching jacks videos. I don't have many friends because I have to stay at home to care for my mum. Like, I always feel so shit being kind of a young care giver and I feel like giving up, but when my mums asleep and all the works done, I always have someone I can watch and listen to and talk to, so thank you so so so much for saving my life ❤ and I know you say "don't thank me" but really, thank you
TheOriginalJoker you're a wonderful person helping your mum and trying to understand. I wish more people were like you
Angelicwings1 thank you, but I guess it's what we need to do to live properly, but I wouldn't change my life for anything
TheOriginalJoker, if everybody was like you, the world would be a great place. especially compared to the shot world we have today. our world today is basically dirt with sprinkles. the sprinkles being kind, helpful people, and the dirt being the majority of the population.
Kassandra Neuhauser awhh thank you! I wish there were kind people in this world, but I love your analogy, it's what we need to do I guess ❤
TheOriginalJoker thanks for sharing.. you're a good kid for helping your mom. hope she's doing well with he CFS. im glad you both have each other's backs
Jack: "Come on I wanna go!" **flails arms around** JACK IS GREGG COMFIRMED!
I knew that all along, just look at how happy he was making Gregg's voice.
Moonaback I'm going to cry because Night in the woods is over!!!:(
i thought about that when he said that too! haha
Moonaback YES🤣
Moonaback omg yes
Exercise can help almost all physical and mental illnesses but in many cases it can actually make CFS worse. People with CFS don't recover their energy, if they're lucky they'll have more energy after sleeping (not always), but attempts at regular exercise can mean no longer having the energy for basic functioning, like eating and showering, and it doesn't mean that eventually you'll start having more energy if you exercise enough.
Exercise programs for CFS need to be monitored carefully but usually doctors and trainers just recommend a normal exercise regimen and sometimes even expect people with CFS to do the same things healthy people of the same age & weight can do, and it just makes everything worse, it can make people depressed/more depressed when it makes them feel worse and they keep being told if they just try a little harder and don't give up so "easily" then it'll work
Privacy Lover thank you!!!!!!! This is the case with me even though my illness is different. All the time people tell me what to eat and how I should exercise. I'm overweight because my fatigue is caused by a thyroid issue. It's so hard when people assume you eat horribly or are lazy
Angelicwings1 same, I get "you should try yoga!" alot, like no it makes it 10 times worse! >.
I feel this. A lot of people tell me to exercise but they don't understand that because of my muscular dystrophy I can only walk, swim, and do some light yoga. I tell them I have muscular dystrophy and then they tell me to exercise or lift weights to help but I can't do that because I have dystrophy. Luckily, I can still walk and climb stairs okay.
I'm 22 and can't work or do much of anything because of this. I can't even wash my own hair; once a week I have to put on a swimsuit and have my mom help me. I used to be a straight A student and a nurse assistant for developmentally disabled people...shit really sucks. Having no energy to do anything then feeling even worse for what you don't get done...I don't even play my ps4 anymore cuz even gaming is somehow too draining.
That's a huge reason I love RUclips as much as I do...being stuck in bed really gets lonely as hell and depressing, but watching you tubers/let's plays kind of feels like hanging out with a friend in some ways and I can get to enjoy some of the games I don't get to play anymore. Thank you.
It really does suck. I have a variety of conditions and, especially at this age (I'm 20), everyone expects us to be out at clubs and whatever else hanging out with friends but we can't because it's just too exhausting. RUclips really helps me too. It's almost like having a friend round but they never ask you to do anything or question why you aren't doing more.
Hana Kellogg
I completely agree, I'm 19 and have a severe chronic pain disease that is now affecting my breathing. I can barely get out of bed some days. I'm lucky in the sense that most of the time I can try and live a normal life, but I pretty much just go to work and come home. I'm taking nearly 40 tablets a day. I try to explain to people that I just can't do the things they want me to do? but the never understand. I tried to go to a concert and I just wasn't able to stand up? I physically couldn't, the pain was just too much - but because it's invisible no one believes it. I once spent 3 months bedridden on high doses of morphine - I just tried to watch RUclips so I wasn't as lonely. the night's alone in hospital are made SO much easier because of these RUclipsrs! I wish they knew just how much they helped!
Not trying to get Jack to reply..
Hana Kellogg sorry about that. hey if you subscribe to my channel Dan Tdmfan you get a free shoutout in my video today
Wtf random person???
It just comes down to being openminded and compassionate to other people. You never know what people are going through behind closed doors. Be kind and don't shy away from things like this. Even if you could never possibly understand how or why someone is suffering, as long as you keep trying to educate yourself about different things and be kind no matter what, it's enough.
Your comment is really nice! :)
I'm chronically fatigued. I can say this is fairly accurate. imagine if you never slept for a week straight, how tired you'd be, how exhausted you'd be... now imagine feeling like that ALL the time, no matter how much you sleep, no matter what you do you always feel the need for naps, you get headaches easily. it's something that can be lived with, but it makes everyday things so difficult to do. for example, when I was in school I did horribly... I would always fall asleep in class. if I stay in one position too long, I pass out. people always ask about the bags under my eyes. "stop playing video games all night, get more sleep" they'll say... and I do... I get a good 10 hours sleep a night. sometimes I'll just stay up and play videogames till 3 in the morning... there isn't a difference when I wake up. it's the same every day. every day is just wanting to nap, wanting peace and quiet so you can sleep... it's a very awful kind of hell.
Sorry that was so long, just wanted to get my thoughts across
Ty Stafford accurate
Tyfford Games Its weird how you weren't tired enough to write so much.
In the sea of comments, this will probably get lost, but I just wanted to say that you've helped a lot of us through some tough times. Whether it be CFS or depression, just know you've helped somebody. You have literally saved people, Jack (or Sean). So, on behalf of your community ... thank you.
Ted Zhang I wish he read the comments so he could read this cus it's so true
Preach,brother.
Ted Zhang agreed
Ted Zhang agreed
he saved me, he can save others 😭 I'm crying literally as i write this comment
Ted Zhang it's so true I have had cfs and depression cfs when I was five and depression 2 years ago jack solved that
Thank you so much for playing this game. I've struggled with CFS for most of my life and watching this video brought tears to my eyes. Most days my BPD DPD and CFS make it hard to get out of bed and I always feel guilty because there's nothing wrong that the doctors could find. I've seen specialist after specialist, done blood test after blood test, and to see one of my favorite creators validate my illness made my day. Thank you for helping spread awareness.
Who else thought this was a video about his editor robin
Dylan Couder me :D
Me
✋
the girls name is robin...
...the birds name is robin...
...MY name is robin...
...ROBINCEPTION.
his editor is named robin!!
zenyatta tekharta my name is also Robin.
lol
zenyatta tekharta jacks editor is named Robin
.
I have Lupus and when I have a flare it is a lot like this. I try to work through it, but it's so hard. It is nice to see you trying to bring awareness to illnesses that are not always visible from an observers point of view. Thank you
Alexis Merrill omfg! I think I might cry...... I've never talked to someone with lupus like me.. I have SLE lupus! I hate our flares too.. they're not fun.. the thing I hate THE MOST is that to a normal person, we look healthy and they think we can manage what they can manage, when we actually can't.. my muscles and joints can't handle many things as it used to.. It's sad that we look ok outside but no one knows are suffering inside.. I hate that when a normal person questions why you can't do something when they ask or tell you to do, then you have to awkwardly tell them you have lupus and explain how it affects us.. when all you wanna do is scream at them for not knowing or understanding how bad it affects you :'(
Alexis Merrill nobody cares stupid bitch, stop begging for likes
Aerowe AE how dare u say that to her!! It might not be true but still you should NEVER say that to anyone. Also, she wasnt even asking for a like, she was just writing down a comment. Bruh chill out!
Thanks for doing this I myself have C.F.S and have had it for a year and a half now it's not a widely recognised condition I hope this shines a light on it prepare for this to be lost in the sea of comments
Also depression it's a downward circle
*spiral
The Fantabulous Gamer I have it too man. Stay strong!
Spiral ye srry I much grammar good
No problem, good luck though. I have insomnia (and i mean it not like a lot of people who say it when they didn't get a lot of sleep) so I share a similar pain.
I thought this was a video about your editor...
Same 😂
RubieGaming same
Same
RubieGaming
Same
Me 2
This game clearly has been influenced by *the Spoon Theory*. If you don't know what it is, I suggest you look it up! The idea is you are given a certain amount of spoons, kind of like energy bars in a game, and activities take spoons away from you. You can try to get stuff done and lose a lot of spoons or not do anything and keep the spoons in case of a rainy day. This theory can be applied to a lot of different chronic diseases.
Stelliinou's but why spoons ?
My mum has COPD, and she once explained to me that she has a certain amount of marbles to use each day, but events that take too many will have effect on the next day. it really helped me to understand her situation.
{GD} NightHawkF117 Umm not sure! I think originally the person who came up with this was having lunch with someone and had only spoons around them to demonstrate! :D Could work with any other item as well!
Hi, Jack.
I just want to say thank you for showing me and my friend this game.
My friend suffer from chronic fatigue syndrome, and this game really reflects her life.
She spent years, going to hospital to funderar out what makes her sooo tierd every day.
She Lost her job, boyfriend and most of her friends, since she dont have the energy to do things.
She got happy when i showed ger this video, and finaly dont feel as lonely strugling with this illness.
So thank you.
SugarSkullz Gaming she's very lucky to have a friend like you then ! Good on you !
SugarSkullz Gaming i hope she gets better
SugarSkullz Gaming svensk? xD
ironarvid tjena :D xD jag är svensk :D
KinezaGOD R Sverige👍
I'm pretty sure 90% of people thought this was about Jack's editor, Robin! Cos I did!
That’s one of the main reasons why your my favorite RUclipsr Jack. You respect all of us. No matter who we are, and no matter what we struggle with. I do get pretty tired during the day, and it can be hard to do things. But I do sometimes have energy.
robins editing a video about a girl called Robbin with a bird called Robin who is a robin
robinception
*4 ROBINS IN ONE VIDEO*
THEGAMINGLEPRECHAUNS Robin should get himself a hoody. Then he can be Robin Hood XD
DarkRubberNeck
😂😂😂 aw my god....
4 robins 1 vid
This video is about a girl named Robin who has a pet robin named Robin and the video was edited by a guy named Robin and the title of the video is Robin and a girl named Robin is watching! (My name is Robin!) That's a lot of Robins!
_robinception_
Then robin commented about all the robins.
Panic! At The Phandom I freaking love your username.
Panic! At The Phandom teen titan Robin?
srry
Panic! At The Phandom I LOVE P!ATD. I FOUND MY PEOPLE.
Oh my god! I can't believe you are playing this!! My classmates in uni developed this game for one of our game project assignments! and I'm super happy that this game is on steam and got it's deserving recognition!
Thank youu for playing it~ I'll be sure to share it to them! hehe :D
Please be sure to support them if you like what they make! They are such an amazing people and such great friends as well! :3
Vyolfers did they suffer from CFS themselves or was someone else the inspiration?
We were assigned to make games about health and deliver a message that would help people that suffers it and even give an understanding to the people who doesn't have it. It can be any mental health issue, from addiction, anxiety, depression, and etc. As well as encouraging the players who had suffered from these to seek help and that they are not alone.
I'm not sure about if they did suffer from CFS or not but I guess it is something that they themselves can relate.
Vyolfers thanks for clarifying :)
No worries ^-^
Vyolfers that is cool how something your friend created was played by jack. If only i was him
Do work but 'accidentally' browse the internet. That couldn't be any more perfect of a comparison to my life
Jack you are so good in life. I love to watch you if I'm feeling bad I love to watch you. You always cheer me up great video as always JACK A BOY!
Jack, thank you so much for playing this game and raising awareness for syndromes like CFS. I have suffered from CFS for several years now, was diagnosed as a teenager (so you can imagine the comments and frustration that came until I learned the truth) and each day is a constant struggle of dealing with the constant exhaustion, insomnia, depression, and other side effects. However, over the years as I've struggled with my disease and the inability to feel normal, I was fortunate enough to have come across your channel. It may not seem like much to you, but for a few hours a day, I can turn on the computer, watch your videos, and smile knowing that I can still be normal for a little while. Thank you for this gift and when youtube gets difficult, remember that you have already touched so many people with your work all over the world. So may God bless you, Jack, because you are a true boss!
GrimReaper0X awe dude that sucks I hope u get better or stay positive
I really love these kind of videos, because he takes the time to address issues that may not affect him but other people and he tries to understand things that are going on in other people's lifes. So, thanks for raising awareness and doing it in such a kind and entertaining way!
Thank you for raising awareness about CFS! I have suffered from it personally since I was 12 (now I’m 22 - also my name is Robyn! Haha! 😁)
It means a lot that you tried to let other people know about this condition as everyday is a struggle. Even though we look normal on the outside, everyday and every second of everyday we have to think of how one little action or choice will affect how much activity we can do on a particular day or over a particular length of time. All you can do is ask for support from others on social media (Facebook groups) and know that we will get though this and think that not every little thing is an obstacle, it’s a journey.
It is such a misunderstood illness and still not believed to be a ‘real’ condition by many but it certainly is. And with all the advances in medical research which I will be hopefully be contributing to shortly in my new job (at Newcastle in the UK) we can find some new answers about why it happens and how to get down to the nitty gritty bits biologically and remove the ambiguity and the unknown details about the illness.
We will get there, slowly but surely! 😊
me too! ive just posted a comment maybe I'm too slow on this I didn't know jacksepticeye did a video on this!
As someone who struggles with chronice fatigue it really means a lot to see it represented in such a cute little game that makes it easier for other people to understand. Thanks for playing this, Jack 💚
I have CFS, I've had since I was 13 after having another chronic illness. I lived most of my teen years in a hospital. I never graduated high school because I couldn't keep up with my school work. The loneliest 5 years of my life. This game really hit home, it's nice to see someone who understands and can sympathise.
My mom has CFS and I really appreciate you for bringing attention to this condition, Jack. You're an amazing guy :)
As someone now struggling with chronic migraines and very limited energy, this hits very differently then when I first watched it. Thankyou for doing videos on these sorts of games/experiences.
Not sure that people like Jack who do what they do and have so much energy to go around, that this 12 minutes can make so much of a difference in the lives of those of us who deal with these issues on a daily basis.
"Okay, we're gonna do some work now."
"Oh, I'm surfing the internet. Okay. then."
xXShadowCor3 The LegendXx
My life in a nutshell.
xXShadowCor3 The LegendXx story of my life.
This hit really close to home. I've got CFS on top of Chronic Migraine Headaches, Postural Orthostatic Tachycardia Syndrome, and my doctor and I are in the process of figuring out and Ehlers-Danlos Syndrome, and Mast Cell Activation Syndrome. A lot of us use what's called the spoon theory, which allows us to explain our energy levels to people who don't live with chronic illness. We measure the energy activities take in spoonfuls of energy. So if we tell a person we're out of spoons, they're more likely to understand.
SAME!! Spoonie buds :D
I have POTS, EDS, and also Complex Regional Pain syndrome. It is awesome meeting other Spoonie buddies in the wild!
You're a very strong person. I have chronic pain, depression, and anxiety. I learned about the spoon theory from a friend that has spinal issues and fibromyalgia. It's been a lifesaver for me.
The Spoon Theory is something I use as I suffer with Major Depression, Anxiety and a few medical conditions, but none as serious as yours. I am so sorry you have to deal with all of that, it's so unfair. I really hope you have a good support network of family and friends who listen, care and support you x best of luck with everything hun
I have EDS Type 3and CFS too and suspected POTS. I found a more recent way of explaining more useful which works on seeing your energy like a mobile phone battery and on bad days it hasn't charged to 100%. I like that theory better, I think it makes more sense.
I don't think I have C.F.S, but I do know my depression messes with me a lot. I'll always be very tired, my friends tell me I look stressed/exhausted. Typically I can go through the day I'm fine, but that's only if I don't leave my room.
If I have to leave for anything, especially to see people. I become exhausted quickly and I just want to be back in my room asleep.
So I do relate with being exhausted from simple things.
Laying in bed feeling gross, knowing I have laundry. It's upsetting knowing my so tired I can't do anything.
*_any food that was ever mentioned in a game jack played_*
"aw i wanna eat that"
absoloutely correct
i thought this was about robin not robin or robin's robin.
Mamad Aph it is about Robin
the fuq i'm soooooo confused #smesk
Mamad Aph what
Mamad Aph so did I
Same, Part of me was hoping it was just Robin playing a random game XD
i loved this game, a very good way to educate people on something important.
spacey stacey very true
Who else thought that this was to do with robin, jack's real life friend and felt bad, until I watched the video.
I don't have chronic fatigue syndrome, so I have periods of normal energy, but major depression also saps your energy...so every day is a practice in prioritizing. It's taken me a really long time to both come to terms with my condition, and reach for forgiveness when encountering ignorant criticism. And Jack--there's no difference between a physical or mental illness. Your brain is a physical organ, and the diseases that affect it are just as provable as what can afflict your other organs. The true terror of brain illnesses is that nobody tells you that your brain can be compromised, and so most people grow up thinking that it can't. It can, and there's really no worse feeling than not being in control of your own brain.
I also have major depression and GAD (general anxiety disorder) which exhausts you because you worry about _everything_
Yeah no one is in control of his own brain, we make ourselves believe it but we are sooo influenced in an unconscious manner, by illnesses yes but not only that. It's fascinating! (and a bit scary too aha)
Shaetane OR HER his OR her brain
+Julia Hallam-Baker aha I'm a girl myself and not native english speaker, but isn't it grammatically incorrect to write her in this sentence?
Jack, look up the Spoon Theory. It is how my mom described what it is like for her to live with Fibromyalgia. The Spoon Theory is basically what the energy bar in the game is.
KyneEatsPandas101 fibromialgia must be really annoying! I thought I had it, but I didn't, now I'm fine, but I'll tell you, it was driving me crazy!!
KyneEatsPandas101 I was JUST thinking this when I saw the meter at the left hand corner. :D
Alexandre: Some days she can hide the pain from me, others I want to cry because you can see how tired and how in pain she is, and other days she feels better. And she's been living with it for almost 25 years now.
Patches: I'm glad I wasn't the only one. As soon as he started mentioning how tired people were with the illness, I was like, "Are they going to show the Spoon Theory in anyway?" So though it wasn't spoons, they did a good job with the energy bar.
I have fibromyalgia as well, and I will often use Spoon Theory to explain how I'm feeling when others ask. However, it isn't always entirely accurate. Sometimes you think you have 12 spoons when you wake up, but a bad storm hits later that afternoon (air pressure changes like storms affect me a lot) and it cuts your remaining spoons in half. Sometimes you just tire out even quicker than usual that day for seemingly no reason. What I mean is, fibromyalgia and other illnesses aren't always as clean-cut as Spoon Theory would suggest, but it's definitely a good tool--just don't take it too simply. It's wonderful you were interested in your mom's health enough to go through the steps of Spoon Theory. If I have a child, I hope he's as caring as you ❤
Why have i never heard of this! Gotta look this up. There is absolutely no support for fibro where i live, so i have no idea how to cope with it by myself, i have no family or friends to help and i really struggle to walk and get out of the house now.
I know it's probably going to be lost forever in the comments, but I just wanted to share one thing:
I honestly love Jack and how he is always spreading awareness and shares his own mentality/ideas when it comes to things like mental and physical issues (and many others).
I have social phobia and many people force me to do things I cannot bring myself to, despite knowing it will only worsen it all. And when I apologise a thousand times, they still get mad and dissapointed, as 'it's not a big deal', 'don't be such a crybaby', 'you are just stubborn', 'everybody gets stressed and they just toughen up'. They don't take into account how painful it is to live with social phobia or any disorder, and try to compare their own take on everything with other peoples', which may not always work. Just like with Robin's CFS - we cannot just say 'oh just get on with life, no big deal'. It's much more than that.
Same goes with physical illnesses; when I was sent to a hospital for sight checks, the doctor, not a GP, told me *literally* 'Welp you are going blind, get over it'. It pains me to see how little empathy and understanding some people have.
Solemn apologies to anybody that reads this, for wasting your precious time. And to Jack, if you ever read this: I know you heard it millions of times, but you really do help me get by every single day and I really appreciate your hard work, dedication and how much heart you put in everything you do.
Thank you ♥
Soulshade Schizzy. I know it might, at times, seem like people on the whole have little sympathy but please remember some of us do. Some of us will always be there for people who need it and I really hope that you can get better. Social phobia isn't easy and it cannot and SHOULDNT be brushed off by people. I know that you've probably heard this before but please smile. Don't force yourself to do things, don't force yourself to be happy, just let other people make you smile and make them smile in return. Try, as best you can, to be happy and think that someone will always be there to support you even if it's just me in the comments. Talk to people and if needed I am always here. I genuinely hope you have a wonderful day and a wonderful life :)
Unfortunatly unless people have had personal experience(themselfs or friends/family)with these kind of things, they won't understand what it is like to have something and that most things can't be simple ignored or toughend up. I think it is amazing that Jack uses his time to raise awareness for games like these and reaches so many people through them.
same here man. same here!
Soulshade Schizzy You are brave and strong. I know how the insensitive reactions feel... so you're not alone. All the best ♡
Soulshade Schizzy Here here!
It makes me happy when Jack refers to a character as "they", even if they have a stated pronoun. I don't know why.
SammyIsRandom now nobody can say "DID YOU JUST ASSUME THEIR GENDER!?!?"
Kent Britton Jack is open. Jack is good. Be like Jack
SammyIsRandom Same ^.^
Me too :)
he's so sweet
Who else thought when they saw the tittle that this game was about Robin, Jacks editor/Best friend
Acrylicx me
Acrylicx I thought it was gonna be a montage of all of Robin's best moments
the title is ambiguous
Acrylicx I thought it was going to be about his editor as well
i thought so too. was a tad confused. xD
I had been suffering from chronic fatigue syndrome and because of this it triggered social anxiety and depression because of self negative feelings because I just thought I was lazy, after about a year I went to get help. your videos Along with Mark's helped to cheer me up on the darkist days through the long recovery, so I wanted to say Thank you on behalf of me and every one else you have helped. look after yourself Jack. =)
Robyn Leflay :) I've been through the same stuff I hope your slightly better now and that the sun can shine down on you ... Everyone is special in their own way :)
Robyn Leflay robin I go through the exact same thing as you, it's nice to meet another robin, I hope you keep working on yourself and are happy!
I wish both of you the best! Remember never to give up, and always talk to friends/family when you need help! There will always been people to support you. 💜
Robyn Leflay same
Robyn Leflay same here
I have Ehlers-Danlos syndrome, a chronic pain/ chronic fatigue condition. I've also been battling a cold. Tonight I got ill, throwing up in the toilet, and it was so discouraging because I'm so weak from getting sick, in combination with my EDS, that I had to call my neighbor over to help me stand back up off the bathroom floor... While I hate games like this because they can never encapsulate the true suffering of such conditions, it's thoughtful to at least see game developers attempt to bring a portion of that suffering to light to help others better empathize with what we go through daily.
I have EDS and CFS too. It's good that games like these are helping to make people realise that we aren't just lazy or anything like that, even if they can never show people what it's like to really live with it.
Courtney Witt geez man, cut developers some slack; they probably don't have the illnesses as bad as other people(or at all), but they're trying their damnedest to help/raise awareness.
Logan R. yeah dude, I didn't mean the game was in any way bad. It's great to even be acknowledged and, as short as the game was, it did a great job covering the basics; but it's hard to encapsulate all that is ANY condition really in game form.
Hey Jack. I'm really glad you played this, I just got diagnosed with this today actually aha coincidence? I'm glad you played this to help show people what it is like. Even though I was diagnosed today, I've been suffering with this for a while and shrugged it off to depression. It's so difficult to wake up and do normal things, however I'm a carer for my mum as she's very ill. All of this takes a toll on me, but I always watch your videos before I go to bed for my rest time as it makes me happy. So thank you Jack. You're an amazing person, don't ever forget that. Keep being you ❤
When I got this notification and all it said was "Robin" I was so scared something happened to Robin, Jack's editor. XD
Murderous Rose me too dude, I was super nervous😂
Murderous Rose tru
I thought it was like an introduction video, maybe a Q&A or something, to get to know Robin if you don't know who he is. This makes me wonder if the clickbait was intended XD
Murderous Rose it's very hard to choose a video title about a illness so I don't think it was clickbait
I thought it was Robin the Pixlpit lol
Leon Gimenez me too
Leon Gimenez same
yeah me too
ikr
Leon Gimenez same
The Best Channel
In The Best Place
RUclips
I Love You So Much
Jacksepticeye
This is the problem with chronic illnesses. My mother has fibromyalgia, chronic fatigue syndrome, and a number of other things. And it's sad because, a lot of people don't understand she can't help it. And it's frustrating because often there aren't good tests to find these things, it's a long process to basically eliminate all other possibilities. I'm so glad you play games like this and that you're so respectful. Thank you, Sean, so much.
this was very close to my heart. I have ME which is a very similar disease. and unfortunately i almost never haveenergy for anything anymore. I love to sit and watch your episodes, and hear you talk about it means a lot to me. so thank you, thank you for making my day a little easier for me
bloodfeder1 Same here. I have an auto immune disorder that causes hypothyroidism that causes me to not be able to do anything
I have CFS and I've learned to just push away all of the comments on me being lazy, or all the comments on me being young and I should have lots of energy. I used to try to tell them that's not how it is for me but they don't understand or listen. It didn't become noticeable until about a year ago. It hasn't gotten any better. But I try to make the best of things while I still can.
It's okay. I know it's hard. I suffer with excruciating pain every day-- daily migraines and I've had the same headache for three years. I've been in brain scans and they can't find out what's wrong with me. I've learned to live with this flaw, even though it's so hard. I know what it's like to have pain (or less energy). I have respect for people that have this (what you have) because I know it must be so hard. I hope that you have a good day
I totally empathize with this, telling people your tired all the time and they tell you that you don't use your time well and that you have 'all the time in the World'
Dylan See I'm digonosed with depression and anxiety.im pretty lazy and I'll tell you I know Jack helps me so much to not be sad I take medicine for it every night.i use to cry myself to sleep for no reason.I have a depression where u want to be sad.its horrible.the only thing making me sad at night is when I did something like playing with a ball and not telling her about it.or when I put on a cap wrong so I feel like I'm different.too different. anxiety is horrible too all I do is stress about a test or going somewhere to spend the night.i use to not have sleepovers because I would cry because I wasn't tired.just know I'm here for u and would love to help u threw the way
I feel sorry for you.and plz,dont take that as an insult
Hey Jack, whenever i feel stressed or down or angry, i can watch ur videos and feel better ur an amazing person and i know for certain im not the only person you help. Keep it up, Love ur videos!!
Its FlowZ same here
I was diagnosed with a chronic pain disorder 2 and a half years ago and since then I'd become completely disabled (along with finding other disorders I have that add to it). Jack has been such a huge part of what keeps me going everyday and why I don't feel as sad or lonely or hopeless. I'm only 18 so all of my friends are healthy and able to have any sort of life, while mine is spent wholly in my bed or at hospitals, and of course that just makes me feel worse.
honestly his videos are a huge part of what keeps me alive now, and seeing him play a game like this that so accurately depicts a big chunk of what it's like to live like this feels like a way of him connecting to those of us with chronic illnesses.
while that may not have been a part of why you played it, thank you for doing it at all and thank you for doing what you do and helping people like me have something to look forward to everyday.
There is a reason why froot loops are the same favor, they are telling us something.
Whatever colored skin we are we all are same.
Goblin080302 Placebo. Your body expects there to be flavor. So in turn, you body either "makes flavor" or tricks you into thinking that. That's why if you were given sugar pills but we're told they were pain relievers, then your body could possibly "give" them the effects of them.
Sheep Gaming holy shit
Sheep Gaming umm... froot loops are actually different flavors...
woAH
Vicki I was right there with you. But also, this gave me weird cannibal vibes...
That was such a good, small story.
short and sweet!
I suffer from depression but one thing that makes me happy is watching your RUclips channel you changed my life a lot and without you I wouldn't be who I am today 💚
Thank you for playing this. I have chronic fatigue due to other chronic illnesses, and this is a pretty good representation, as simple as it is - including the disappointment of getting blood tests back that don't have any answers. The moment in the game when you realized that you would never have enough energy to get everything done is literally my life. I don't have the energy to do everything I need to do, and I have to choose a few things to get done each day, so everything left undone keeps piling up and piling up. I spent years being really hard on myself and getting a lot of judgment from people around me about being "lazy" because I didn't have the energy for everything that other people were able to get done easily. I pushed myself so hard that I eventually had a complete breakdown, which was when my family finally understood that I was sick, not lazy. I still have so much self-doubt about whether I could be doing more, but every time I try, I end up having to spend days or sometimes weeks recovering. It really means a lot that you played this game and talked about this kind of experience on the channel so more people can get a better understanding of what it's like.
I really love the mellow soundtrack of this game
"I'm someone who doesn't get tired very easily" Really?, we couldn't tell jack!
i don't have CFS, but this is a very accurate idea of my depression-based exhaustion
more than my depression, I also have Hypothyroidism. It's so difficult to get through the day.
Thorp same
ME TOO!
I can imagine how hard it must be ;-; I've got suicidal depression and social anxiety, so it's hard too, but while scrolling through comments I realized how many of us has ilnesses and deseases. It made me believe that no one is alone with his or her problems. There is always someone that can support us and we can always support someone else. Be strong buddy! 😊
Jack I feel your pain when people tell you that you have to much energy and to calm down but you can't because you want to go do something.
I clicked this thinking it was a video about his editor lmao
OMG I WAS LOOKING FOR A COMMENT TO SAY THIS XD I Thot that to
Shauna Atkins Same
Shauna Atkins So did I haha thought Robin would have been in this video with Jack 😂
Same :P
Enrico Polez F Pinto Jack trolled us :P but it did turn into a good video 😊
I don't have Chronic Fatigue Syndrome, however with my Depression I feel constantly tired and feel like I have no energy at all but I've been working out more and am trying to convince myself to go out with some friends and I feel better, especially with such an amazing community to come to at the days end. I Love you guys!!!!!!!
I thought this was gonna be a video about the editor Robin, haha. Hopefully I'm not the only one.
Anonymous Potato same
Yup
Anonymous Potato same lol
I've never been diagnosed with chronic fatigue syndrome (but I have been diagnosed with depression), but this actually speaks to me a lot. I spend most of my day lying down, normally watching RUclips (one of the things that doesn't tire me nearly at all), and some days I forget to eat because I'm just too tired to care. I can only do so much in a day before I just get...tired. Jack, thank you for being one of the few things that makes me smile without tiring me exponentially.
I have a disease called endometriosis that causes chronic pain and fatigue. On the exterior I look fine, tired, but fine. And for that reason I can completely relate to this. The pain on most days drains all my energy. I have at one time or another felt like it was all in my head. Felt like I was just a lazy failure who should be trying harder to push through my pain and fatigue. And Ive felt that judgement from others who cannot relate. I am glad you played this game Jack. Its nice to be reminded I am not alone with these thoughts and feelings.
I don't have endometriosis myself but I know a couple of people ho do and you have my sympathy. It is a horrible condition. There are other people with it so you aren't alone.
I, too, have Endometriosis that was recently found out. 7 years ago I was diagnosed with PCOS (which is still there, too) I know exactly what you're going through. Often times would get envious of my friends that have normal cycles with very little cramping compared to mine. Some may think "Oh you just have bad cycles, that's not bad." when it extends further out on a daily basis more than just on your cycle. To the point when your cycle does hit, you're left throwing up from the pain and bed ridden for quite sometime. Others have said "Must be nice to stay at home." When it's really not. I hate that anyone else goes through the same, but indeed, it is a nice reminder you're not alone going through it. We're all troopers regardless of what plagues us
OML. Jack, don't scare me like that! I thought something happened to Robin. ;(
Vizeryn ikr 😟
Vizeryn same!😨
Vizeryn I Actually Thought He Died, But Thank God It's Just The Name Of The Game
Mughd/Armenian Blood hi I'm trying to start off my singing channel if can check it out and comment
Vizeryn SAME! I thought something...that he... yeah...
Jack, the only one who can make a 5 minute game into a 12 minute video xD
Element Seal Nah youtubers who want dat AdSense would make an hour long one XD
gotta get that *MAD AD REVENUE BOIIIIIIIIIIIIIIIII*
I have an anxiety disorder and a learning disability mentally that cause me to process information a lot slower than other people. I used to be very upset at myself about this because I thought I was the only person who had this type of problem and feel alone a lot. RUclips has helped find friends and tell me I'm not the only person who feels this pain. I'm 19 and in college so these videos have always helped me whenever I am stressed and need something to cope with. I was lucky enough to meet Signe at Pax East and was so close to meeting jack. This community has helped so much in the times of serious struggle. Thank you jack for doing videos on anxiety, depression, and more like this. They have helped me find my closest friends and help me learn more about myself.
I THOUGHT SOMETHING HAPPENED TO ROBIN WHEN I LOOKED MY RUclips NOTIFICATION I FREAKED OUT
Gabriel Ferrieri same 😂
YAY I'M NOT ALONE XDD
Same Here
Gabriel Ferrieri me too
Gabriel Ferrieri me too
Well, i have depression and anxiety and as Jack said... RUclips does help.... as least for me. Twice a day i can shut my brain up and listen to the green bean.... and that saved my life
same
Sam Kenobae same
they should make a game like this for social anxiety
Dr GoldenPotato there is
Dr GoldenPotato
I agree!
There is one! It's pretty short but it's free and on steam. It's called "The Average Everyday Adventures of Samantha Browne"
Me: I'm going to talk to people and make friends:D
Anxiety: Haha, you wish
Me: Ok...*walks opposite direction*
Sah
My mom has had chronic fatigue syndrome for 25+ years. She's dealt with so many obstacles in life, and even with this terrible disease afflicting her she's been so inspirational. I've watched her fight for awareness and acceptance of Chronic Fatigue Syndrome. For decades people thought it was a mental disorder, or strictly made up, and seeing a game come out about this and showing the daily struggle of all those who live with CFS is amazing. Thank you Jack for playing this, it has made me and my mother unbelievably happy.
Anyone who wants to try and understand chronic illness/syndrome/ pain look up "the spoon theory" it is a good way of having at the very least a partial understanding of the day to day logistics. And please understand that anyone in these situations is trying their hardest. Yes there are things that they wont be able to do but dont make them feel bad about it. they feel bad enough about as it is. and im talking from experience.
And tasks can "cost" different numbers of spoons from day to day
I have a "Spoonies Never Say Die" for mine ;)
The normies made memes out of us too, I mean those who suffer from chronic mental illnesses. They all label us as "lazy" even though we are trying so hard just to live day to day.
Miranda Rosansky thanks for suggesting that, I hadn't seen it before today
Sora your referring to people who don't have CFS as 'normies' your also normal CFS or not, we are all the same species syndromes or not.
YEAH BOY, Another Jack video... OR SHOULD I SAY SEAN! Haha either way I love the videos!
DX Army whats funny?why did u say haha
rasheed al amir Because I don't know what to called him XD
that's still not funny.....and you should call him jack/sean not both....also its call not called....
Holy crap, i have CFS. I wouldn't have ever thought someone world have made a game about it.
This game is good at portraying some of what CFS is like, i think it's good that this can bring some awareness of the disorder. I've had to go through so much strife dealing with this but I've been lucky enough to have my parents and people at school supporting me through it all but i know a lot of people don't and the disorder is awful on it's own without that. I think this game is good for spreading some awareness about the disorder; it's hard when people who don't understand it expect and demand more of what you can do but you physically aren't able to.
In the end though you have to be strong, which i know isn't so simple as saying it, and try to live to the beft of your abilities and make the most of life. I've learnt to not take life too seriously and a therapist really helped me there. I'm not asking for sympathy or anything I'm just trying to give my input into this because i have lived it.
SilverBlood74 It's really great to see there are so many other people suffering with this. Sometimes I feel really alone when it comes to having CFS. It's really hard to understand unless you have it. All the best to you!
SilverBlood74 this is the internet someone will
I can't relate personally but I do appreciate how many people are commenting and giving input based on experience and I will definitely look into it so I can learn more.
You really seem like such an amazing person. I love watching your videos, completely silly or more serious. Thank you so much for being an awesome RUclipsr and people human thing!
I haven't watched the video yet but when I got the notification I thought it was Pixlpit taking over Jack's channel
Is there a cure? I'm in middle school currently and my mom always give me chores and stuff and I can't do them all and she yells at me constantly and it feels like the world is on my shoulders. We went to the doctor and they said I had Pots and that was it. Which is accurate but... I'm still tired. They say I just need to drink more but it just makes me more tired! My mom told me "go to bed earlier!" "Wake up later I'll take you to school!" I don't know nothing works and I think I might have it...
Hydration is definitely important, so don't neglect it. I don't know about cures for pots, but I wish you the best of luck!
The Irish Doggo there isn't a cure I don't think but do your best to eat, drink and sleep well. It may not cure it but it helps get you as good as possible
The Irish Doggo same
Awww geez thanks guys. It was nice to see some people replying. As I usually just get scrolled over and ignored cuz I talk too much.
The Irish Doggo oh trust me yours is the shortest essay ive seen in the comment section
Being narcoleptic, I relate to this a lot.
Thank you for uploading this.
What does that involve? if you don't mind talking about it :)
maisie moo Narcolepsy is usually determined by random and unexpected fatigue or 'sleep episodes' where you uncontrollably fall asleep at any given time in the day. But there's more to it than that. Your brain is made up differently. It associates the day time with sleep and the night time with wake; meaning that sleeping at night is usually difficult or impossible. It varies from person to person, but for me, it's nonstop tiredness and fatigue that you have to power through. People assume you are lazy or aren't drinking enough water or aren't trying to make yourself entergetic, exactly as Jack said. It's like no matter how much you sleep, you aren't satisfied. Your always exhausted and sleep for 13 hours or more a day. Thats the shortened summary of Narcolepsy.
xYomoshiix thats crazy... they thought i had narcolepsy cuz i had the same thing happening that u did. Did a sleep study and told me i was one rem nap away from being one and only had hypersomnelence. It sux cuz i fall asleep at work in the middle of doing things and had to be put on medication. i still wonder if it isn't narcolepsy and just misdiagnosed.
prissynikki3 Doctors are very quick to diagnose a sleeping issue as something more benign than Narcolepsy because it is rare and is similar to other fatigue disorders. Either way, it's awful.
xYomoshiix I hope you can succeed past it. Much love to you
Hi Jack, I'm 20 years old and suffer with a condition called POTS, one of the plethora of symptoms of POTS is chronic fatigue. Living with it and dealing with depression, anxiety, working when I can, and being a full time student in my senior year of college is a true struggle. I'm so relieved that you played this game, it gives a huge eye opener to the world that people with this disability. Thank you so much for talking about it and for playing the game. I struggle to get through a lot of my life, some times I go weeks without picking up my laundry off the floor because I have to dedicate the little energy that I get to doing something like feeding myself or getting school work done. I truly hope that your playing this game will give some people a look into the lives that some people have to deal with to just get through a 'short' day.
Again, thank you so much, I love you as a gamer and enjoy listening to your 'rambling' and hearing the thoughts going through your mind.
i think this is accurate, my friend has to choose between all the stuff she wants to do and can never do all the things she would like to
I have a bit of chronic fatigue syndrome which makes it hard for me to do school, and there's the fact I have to make money with my art but a bad problem that I have is that I have Insomnia. I'm also suffering much depression, I feel like this game though is a very connected to me and I'm glad that Jack understands the problems and cares for his viewers. Thank you Jack, I'm glad your videos are always able to cheer me up
all i can say is: We believe we beleive we believe in you we believe we believe we believe in you, in you oh yeah in youh oh yeah grab the glory all the glory
Prut Skid that is extremely disrespectful. People suffer this and you don't care,
I suffer from jackdicting it's when you can't stop watching Jack's vids
Jackspedicy 2 I think we all do....
Anyone think of something else when they read jackdicting? Admit it, I know you did...
Travis McNabb after seeing this comment, yeah
How did you know!? It was obvious. JackDICting
Jackspedicy 2 yeah i got it too...
Watching RUclips and being a part of RUclips communities has really educated me on these kinds of issues.
Something you should look up is called The Spoon Theory. It is an awesome way of explaining it all in layman's terms.
I live with something called CRPS which is a degenerative nerve disease. I empathize with what this character goes through.
Thank you for sharing this game!
Jack you have a very caring heart and I know you have helped a lot of people with this video. It's amazing how a guy like you can be capable of such serious conversations and I can tell you say it all from the bottom of your heart. Love ya jack but not in a gay way. Peace ✌️
Gay or not, jack is one lovable bundle < 3
Your profile pic is misleading. I almost thought you were being sarcastic ^^;
I am always tired... And never get everything done. I never told anyone about it, and I never paid much mind to it. But lately, I have been declining offers just to sleep. I go to bed at 6:00 when I used to go to sleep at 10:30. I feel tired all the time and am wandering if I should tell someone.
Halcyon Music thanks I will
RLM Gaming definitely its important to make sure just in case
RLM Gaming You need to tell someone. I have an auto immune disorder that causes stuff kind of like this, having no energy at times. I spent a good 3 years not being able to do normal things and hating myself for it. It is important that you figure it out
Aids?
Tell someone. They will either help you, get you to someone that knows how to help you or try to help you the best way they can. It might be hard, but it'll be worth it. :)
Hi Jack, I was rushed into hospital yesterday. This was mostly thanks to my PoTS but was certainly brought on from my CFS. I was so tired all day after travelling and was feeling unwell all day. Then I had pain in my chest, went to get my Mum, collapsed and started fitting. It was scary. Mum called the hospital and they sent an ambulance. What was odd this time is that the attack lasted so long and I stopped breathing quite a lot. I’m at home now but they referred me to the sleep clinic as there was evidence that I may also have Sleep Apnoea (stopping breathing when you go to sleep.) Everytime I drifted to sleep my Sats would drop and they had to shake me awake again.
This month has been hard. I’m glad I still have your videos to fall back on. It was so fun to watch you and Brian (Connor from Detroit) meeting each other, I see as I type this you just uploaded a new video with him. You’re videos always help me when I’m not well. I just hope my condition doesn’t deteriorate further.
I’m 17 now! I’ve been watching you since I was 13. I remember last year when I spoke to you here that I was so excited for the project I was working on for you. Now I’m working on the Music for a team making a game for Ethan (Crankgameplays). Today I was able to talk to the team about my Chronic Fatigue and explain why I always need so many breaks from the project. I wish I could work on what I love more but my condition always catches up to me.
You’ve got to the part in the video again where you talk about mental illness and how people want to help me. Years ago I never would’ve believed that but Thanks to you helping me understand my mental state as well as my physical state, I’m doing a lot better. No matter how bad I get physically, I try to keep my mental state separate. That I am happy even when I’m in pain. PMA. Even when I was in hospital and someone did my bloods or helped me out by taking me to the X-ray room or if I woke up from not breathing... I always said Thankyou. To every member of staff I saw. Because of how much they do for everyone everyday. I was grateful for everyone around me even though I had nothing. I could do not very much. Instead of being bored, sad, depressed, although I was scared, I was okay. I was grateful for my surroundings and I New I’d be okay. And although this month has been hard, although I’m exhausted today, I’ll be okay. I am okay.
Thanks for keeping me company,
Robin.
This really hits me hard. I just recently had my blood drawn, and the results came in this morning. Somehow it found out that I had depression, and I was later diagnosed with Major Depressive Disorder.
David Vierra I'm very sorry about that. I have the lowest form of depression, and most of my family has MDD. Please, take care of yourself. I hope you'll feel better, David.
Hey, I don't want to bring it up, but may I ask how you go about getting an official diagnosis? I've been wondering about myself, or if I do have any things going on with myself.
literally what how can they find depression in your blood
depression is your brain failing to produce chemicals that allow you to feel joy or motivation. if the brain isn't producing these, they're obviously not going to be in the blood.
They look at the chemical composition within the blood
I THOUGHT U WERE ON ABOUT ROBIN LIKE PIXLPIT UR EDITOR OML
Lolo XD same lmao
Lolo XD omfg saaaameeee
Lolo XD same
OMG SAMEEE XDDD
I THOUGH THE SAME I THOUGHT IT WAS SOME FACTS ABOUT ROBIN
Videos like these really help me see the challenges of many people,
and just more of the real world.
Thank you.
Iam glad you play games like this jack,i really appreciate your effort on opening up and talking about this things(mental illnesses,proplems....)and you should be proud that you do,the amount of people that you have helped including me is propably astounding,there is a very few amount of creators who do this,who treats their viewers like people,friends even,and not a bunch of mindless followers to benefit from......,ive been experiencing symptoms lately,i always fall asleep during classes(no matter how much rest i get),i feel tired and unmotivated to do any of important stuff in my life.ETC.,im not sure if iam diagnosed with CFS or just being plain lazy,because i feel energetic temporarily in times,and sometimes i feel like dying which honestly is the most common feeling i get,but rambling aside,although you may not see this,i thank you jack for creating this amazing community full of creative and wonderful people and to all the people who experience this type of illnesses....dont feel like your alone,i may not know you but i do emphasize what your feeling and experiencing,and iam glad to be part of this amazing community of amazing individuals and an amazing content creator.
I'm 13 and suffer from cfs and it's really fucking difficult but I feel the game accurately represented chronic fatigue syndrome and that you have an energy level and can only do a few things through out the day. I'm glad games bring recognition to certain conditions many people are unaware of. Anyway jack you're a legend and high fives all round 👋👋
Katie Bevan-Thomas I'm 16 and suffered for a long time It made me miss 3 years of school and it sucked. But now I'm starting to beat it and I know that you can too. keep going and remember that you can and will beat it one day.
Thanks man . it is really difficult and I appreciate the support thank fuck jack has one of the best communities btw I'm actually male just using a different email
Expectation: My Favorite part of the day is when I can go outside and enjoy nature
Reality: My favorite part of the day is when I sit down watch RUclips and chat with my friends
I can't belive Irish Senpi.... I MEAN JACK! Played this game, it makes me so happy that you notice this stuff. Thank you.
Sorry but, *Senpai
Crazy Caity
Irish Senpai...
You deserve all the fucking hugs for that.
Crazy Caity
You also just got a subscriber for that.
Kier Wright they were trying to give the effect of stopping halfway through the word
Thanks for those last few minutes. I have been formally diagnosed with GAD (Generalized Anxiety Disorder) and my therapist is pushing for me to get tested for a few others, mainly depression and ADD. My mom is convinced that I don't have GAD even though I've had panic attacks and meltdowns in front of her and it's frustrating and painful when she says "I don't think you have anxiety. I think it's all in your head." I don't know why she won't believe me. That alone is exhausting and draining. I can't imagine what people go through with this disorder. On top of already having a limited energy supply, they have to deal with the pressure of everyone else to "snap out of it" which drains the hell out of me and I can imagine is much worse for them. If your family is unsupportive with your disorder or mental illness, I'm sorry. Just remember you're not alone and there are people here for you. Whether online or offline, find someone supportive. I don't know if it'll help you, but it certainly helped me.