For anyone who watched this and felt like it was their fault that they’re not healing fast enough, I promise you it’s not. TSW is a bitch and you’re not doing anything wrong if you’re struggling or healing super slowly. Even people who do all of the common-sense things on this list religiously can still struggle for a long time. Don’t put any extra pressure on yourself. You’re doing your best in a horrible situation! ❤️ Time heals and you WILL get through this! To Fighting Eczema: I appreciate your desire to help people who feel stuck with TSW healing. I agree mindset and social interaction, movement, good nutrition, and sleep are all so important for healing. But I know from experience you can do all of these things and still heal super slowly. And on top of that, TSW often results in some of the most bone-crushing insomnia imaginable… so the advice to “get more sleep,” is like telling a man dying of thirst to drink more water. We’d love to! Also: Protopic is a HUGE no-no for TSW! Please don’t use it!!
I mostly agree with the what you are saying but again, I’ve literally seen people with TSW who were on the edge of suicide use Protopic and it changed their life for the better. I wouldn’t blindly tell people not to use a medication without a thorough intake first. Appreciate the personal experience you’ve provided though! I agree it takes time to heal!
Appreciate the humour in your videos, it offers levity to such a gruelling journey 😅 Your points often line up with what I’m trying I.e. fasting (intermittent fasting). Keep it up! Stay patient & positive people!
On another of your videos, I found out about the four non-steroidal medication. I wrote them all down, meaning to take the list with me when I next went to my dermatologist. I strongly believe that I have been suffering from TSW and DO NOT want to do steroids again, which I feel were the cause of the terrible spreading of my eczema. When I forgot to take my list in, she rattled off the names of all four and prescribed the Tacrolimus, but also gave me a few samples of Eucrissa (which burned quite a bit). When I called the pharmacy, they wanted over $400 for it, so I called a different pharmacy and their price was $89, even though the price that my doctor showed online was $49. What a scam there seems to be! So I am still suffering with no medication since I wouldn't pay the $89 without a sample to try first. Will keep following you for more advice and ideas. But just want others to be aware of price gowdjing.
you lost me at elidel/protopic it’s the same if not even worse as steroids and have the exact same withdrawal symtoms. Even FB support groups for this also. DO not recommend this. Immunosuppressants pills fine but not elidel/protopic.
Withdrawal symptoms from prescription medications can be bad so I try hard not to recommend them. However, I’ve personally seen people overcome skin issues with the help of these medications. The fear that some of these Facebook groups spread is a little obnoxious in my opinion. Ultimately it is up to you to decide if you want to go on prescription medications but the fact that I have clients who are fully healed after using them PROPERLY is just something I cannot ignore. Best of luck!
I would take a look at some of the newer studies looking at tacrolimus and the idea of it being carcinogenic as they seem to suggest NO link. Here is a large study from 2020 to take a look at. jamanetwork.com/journals/jamadermatology/fullarticle/2768937
My whole body eczema was cleared up but my neck eczema/tsw not healing .it will come again and again and i feel depressed 😔 .I don't know what is going wrong with me
I find the neck is sometimes the last place to heal. But since your whole body cleared, that is a sign you are doing things right. What do you think is keeping your neck from healing? Do you scratch it a lot? Are you stressed a lot? How is your sleep?
Thanks for sharing, especially on emphaszing the social aspect! 😊 But I don't get your logic/point to Reason-2, because isn't topical steriod usage itself the "root cause" for TSW? If you are asking about why use steriod in the first place, it could be, for example, due to eczema or atopic dermatitis, which may be a result of gut health -- what I am trying to say this seems be another question, in a different direction. 😮 I am also going through my own TSW journey. Ideally, we probably should be treating the body holistically, but I guess TSW is just so intense not to focus on it first!
Great question! Steroid use is definitely the trigger for TSW but you need to think even deeper about the mechanism. When you use steroid creams, you are adding artificial hormones into your body. This causes your body to reduce natural production of steroids. This may then lead to a hormone imbalance in your body. If this is the case, hormone imbalance is going to be a root cause of your TSW. Or maybe the steroid creams have caused immune system dysregulation. This could be another root cause of your TSW. Or maybe the steroid cream has caused dysregulation at the skin barrier level. This could be another root cause of your TSW. Now we can go even deeper and think about how to fix hormone imbalances, immune system dysregulation, and an impaired skin barrier. This is where aspects of health like gut health, diet, exercise, sleep, stress and many more “root causes” come into play. It’s a bit of a complex topic so it’s hard to explain haha. Hope this makes some sense, let me know if you have further questions!
TSW definitely can be healed fully! Everyone’s timeline will be different unfortunately so it is impossible for me to give a time. On average it takes months. Just make sure to keep putting in the work!
I have been using mometasone furoate (Elica) for the majority of the past 2 years to treat my rosacea. I stopped using it a month or 45 days and im having a lot of fungal acne and bacterial acne breakouts. Im also afraid due to using it for 2 years i might have gotten it into my blood stream and caused adrenal problems or cushing syndrome. Is all this reversible or is it really permanent like whats written online? I hope u shed some light
Yes, unfortunately all steroid medications will eventually enter the bloodstream even with minimal usage. Have been officially diagnosed with adrenal issues or Cushing’s syndrome? This could also potentially be a case of topical steroid withdrawal (TSW).
I’ve seen patients with skin conditions get better during Ramadan! My main tip is to keep yourself busy when you’re fasting. Fill up your schedule with activities that you enjoy doing! Just don’t make yourself too busy with work otherwise you’ll add more stress to your life haha. Maybe I will make a full video on tips for fasting! Thanks for the idea 💡
Great questions! In regards to eczema, there are a lot of differing opinions on this matter. In my opinion, eczema can be healed 100% but in most cases it does not. However, I don’t think that it matters. My goal is to get your skin to a point where it does not affect your life. This is possible at 90% healed! For leaky gut, yes you can fix it! I would work with a healthcare professional to develop a leaky gut healing protocol. This will likely involve supplements such as probiotics and L-glutamine, which are great gut-healing supplements. Let me know if you have more questions!
@ifeyinwamaryann1684 Unfortunately there are no tests that can diagnose it as it is on too small of a cellular level. In people with skin issues, I would look for symptoms like food sensitivities or digestive system symptoms such as gas, bloating, diarrhea, and constipation. Honestly with all my coaching clients I treat them as if they have leaky gut because treating it only has benefits, even if the person does not have leaky gut. Hope that helps!
I'm suffering from topical steroid atrophy.. I'm really worried about it. It's been 1.5 years but still experiencing skin thinning. Don't know it will heal or not. Or if it heals how much time it'll take to thicken again
@@FightingEczema I think may be 50%... I'm taking a lot of stress. May be this is the reason of slow healing. As I had heard that once skin is thinned from topical steroid it never go back to normal thickness, this is what disturbed me a lot.🥺
If it’s been 5 years I would really look deeper into what might be the root causes of your skin issues. There is likely something present that is preventing you from healing. For example, if you are eating foods you are sensitive to every day, it doesn’t matter if you wait 10 years, your skin will NOT heal. Best of luck!
I’ve came to the conclusion it’s stress and diet more diet than anything get food allergy test I guarantee if you have tsw you’re allergic to something
Yes! It stands for “topical steroid withdrawal”. It is basically when the body becomes addicted to steroid creams so when you stop using them, the body flares really bad. It often leads to full body redness and flaring. Hope this helps!
For anyone who watched this and felt like it was their fault that they’re not healing fast enough, I promise you it’s not. TSW is a bitch and you’re not doing anything wrong if you’re struggling or healing super slowly. Even people who do all of the common-sense things on this list religiously can still struggle for a long time. Don’t put any extra pressure on yourself. You’re doing your best in a horrible situation! ❤️ Time heals and you WILL get through this!
To Fighting Eczema:
I appreciate your desire to help people who feel stuck with TSW healing. I agree mindset and social interaction, movement, good nutrition, and sleep are all so important for healing. But I know from experience you can do all of these things and still heal super slowly. And on top of that, TSW often results in some of the most bone-crushing insomnia imaginable… so the advice to “get more sleep,” is like telling a man dying of thirst to drink more water. We’d love to! Also: Protopic is a HUGE no-no for TSW! Please don’t use it!!
I mostly agree with the what you are saying but again, I’ve literally seen people with TSW who were on the edge of suicide use Protopic and it changed their life for the better. I wouldn’t blindly tell people not to use a medication without a thorough intake first. Appreciate the personal experience you’ve provided though! I agree it takes time to heal!
Appreciate the humour in your videos, it offers levity to such a gruelling journey 😅
Your points often line up with what I’m trying I.e. fasting (intermittent fasting). Keep it up!
Stay patient & positive people!
Glad to hear! Keep up the good work! You’ll get through this 😊
On another of your videos, I found out about the four non-steroidal medication. I wrote them all down, meaning to take the list with me when I next went to my dermatologist. I strongly believe that I have been suffering from TSW and DO NOT want to do steroids again, which I feel were the cause of the terrible spreading of my eczema. When I forgot to take my list in, she rattled off the names of all four and prescribed the Tacrolimus, but also gave me a few samples of Eucrissa (which burned quite a bit). When I called the pharmacy, they wanted over $400 for it, so I called a different pharmacy and their price was $89, even though the price that my doctor showed online was $49. What a scam there seems to be! So I am still suffering with no medication since I wouldn't pay the $89 without a sample to try first. Will keep following you for more advice and ideas. But just want others to be aware of price gowdjing.
Ah yes even here in Canada, prices of medication can be crazy high. Wishing you best of luck!
I love your consistency with uploads🥰
Thanks for the feedback! Hope the information in the vids help you! 😊
you lost me at elidel/protopic it’s the same if not even worse as steroids and have the exact same withdrawal symtoms. Even FB support groups for this also. DO not recommend this. Immunosuppressants pills fine but not elidel/protopic.
Withdrawal symptoms from prescription medications can be bad so I try hard not to recommend them. However, I’ve personally seen people overcome skin issues with the help of these medications. The fear that some of these Facebook groups spread is a little obnoxious in my opinion. Ultimately it is up to you to decide if you want to go on prescription medications but the fact that I have clients who are fully healed after using them PROPERLY is just something I cannot ignore. Best of luck!
Amen 100% Linda!! Protopic is not only carcinogenic, but really prolongs TSW withdrawal!
I would take a look at some of the newer studies looking at tacrolimus and the idea of it being carcinogenic as they seem to suggest NO link. Here is a large study from 2020 to take a look at. jamanetwork.com/journals/jamadermatology/fullarticle/2768937
Best doctor in the whole world ❤❤❤
My whole body eczema was cleared up but my neck eczema/tsw not healing .it will come again and again and i feel depressed 😔 .I don't know what is going wrong with me
I find the neck is sometimes the last place to heal. But since your whole body cleared, that is a sign you are doing things right. What do you think is keeping your neck from healing? Do you scratch it a lot? Are you stressed a lot? How is your sleep?
May be stress but I think it's normal when you have such type of rashes
Start to drink boiled warm water each day and stop drinking cold drinks completely. Coffee or tea is also fine.
Isn't TSW related to overuse of the medication? I think in this video the skin disease itself and TSW are use interchangeably.
Correct! TSW is when you get withdrawal symptoms after topical steroid use.
Thanks for sharing, especially on emphaszing the social aspect! 😊
But I don't get your logic/point to Reason-2, because isn't topical steriod usage itself the "root cause" for TSW? If you are asking about why use steriod in the first place, it could be, for example, due to eczema or atopic dermatitis, which may be a result of gut health -- what I am trying to say this seems be another question, in a different direction. 😮
I am also going through my own TSW journey. Ideally, we probably should be treating the body holistically, but I guess TSW is just so intense not to focus on it first!
Great question! Steroid use is definitely the trigger for TSW but you need to think even deeper about the mechanism.
When you use steroid creams, you are adding artificial hormones into your body. This causes your body to reduce natural production of steroids. This may then lead to a hormone imbalance in your body. If this is the case, hormone imbalance is going to be a root cause of your TSW. Or maybe the steroid creams have caused immune system dysregulation. This could be another root cause of your TSW. Or maybe the steroid cream has caused dysregulation at the skin barrier level. This could be another root cause of your TSW.
Now we can go even deeper and think about how to fix hormone imbalances, immune system dysregulation, and an impaired skin barrier. This is where aspects of health like gut health, diet, exercise, sleep, stress and many more “root causes” come into play.
It’s a bit of a complex topic so it’s hard to explain haha. Hope this makes some sense, let me know if you have further questions!
Can TSW be healed permanently? And if so how long does it take and does your normal skin come back eventually, I am 20 years old?
TSW definitely can be healed fully! Everyone’s timeline will be different unfortunately so it is impossible for me to give a time. On average it takes months. Just make sure to keep putting in the work!
You just got a subscriber ❤
Welcome to the Fighting Eczema fam! 🖤
I have been using mometasone furoate (Elica) for the majority of the past 2 years to treat my rosacea. I stopped using it a month or 45 days and im having a lot of fungal acne and bacterial acne breakouts. Im also afraid due to using it for 2 years i might have gotten it into my blood stream and caused adrenal problems or cushing syndrome. Is all this reversible or is it really permanent like whats written online? I hope u shed some light
Yes, unfortunately all steroid medications will eventually enter the bloodstream even with minimal usage. Have been officially diagnosed with adrenal issues or Cushing’s syndrome? This could also potentially be a case of topical steroid withdrawal (TSW).
do you have tips for people fasting during Ramadan with tsw? would really appreciate it!
I’ve seen patients with skin conditions get better during Ramadan! My main tip is to keep yourself busy when you’re fasting. Fill up your schedule with activities that you enjoy doing! Just don’t make yourself too busy with work otherwise you’ll add more stress to your life haha. Maybe I will make a full video on tips for fasting! Thanks for the idea 💡
@@FightingEczema that’s great to know thank you so much! will be patiently waiting for the video 🥰
Hope the Ramadan fasting goes well! Keep up the good work 😊
Going through the same as well sister
Alhamdulillah my TSW isn’t as bad as the previous 2 Ramadans
I pray we get healed completely
in sha Allah
@@ayanyasin7747 Ameen! May Allah make it easy for us
Can seborrheic dermatitis be healed permanently? If so how?
It definitely can! Diet can play a huge role in
Can eczema be healed permanently?
Can leaky gut go back to normal?
Great questions! In regards to eczema, there are a lot of differing opinions on this matter. In my opinion, eczema can be healed 100% but in most cases it does not. However, I don’t think that it matters. My goal is to get your skin to a point where it does not affect your life. This is possible at 90% healed!
For leaky gut, yes you can fix it! I would work with a healthcare professional to develop a leaky gut healing protocol. This will likely involve supplements such as probiotics and L-glutamine, which are great gut-healing supplements.
Let me know if you have more questions!
@FightingEczema how can one know they've leaky gut? Any medical test to carryout for that? If yes, what is it called?
@ifeyinwamaryann1684 Unfortunately there are no tests that can diagnose it as it is on too small of a cellular level. In people with skin issues, I would look for symptoms like food sensitivities or digestive system symptoms such as gas, bloating, diarrhea, and constipation. Honestly with all my coaching clients I treat them as if they have leaky gut because treating it only has benefits, even if the person does not have leaky gut. Hope that helps!
Can TSW be healed permanently? And if so how long does it take for normal skin to come back?
I'm suffering from topical steroid atrophy.. I'm really worried about it. It's been 1.5 years but still experiencing skin thinning. Don't know it will heal or not. Or if it heals how much time it'll take to thicken again
How much improvement has happened over 1.5 years? There may be something preventing your skin from repairing and rebuilding itself.
@@FightingEczema I think may be 50%... I'm taking a lot of stress. May be this is the reason of slow healing. As I had heard that once skin is thinned from topical steroid it never go back to normal thickness, this is what disturbed me a lot.🥺
I've been at it over 5 years now :(
If it’s been 5 years I would really look deeper into what might be the root causes of your skin issues. There is likely something present that is preventing you from healing. For example, if you are eating foods you are sensitive to every day, it doesn’t matter if you wait 10 years, your skin will NOT heal. Best of luck!
@FightingEczema well I just stopped using the ointment completely this March I didn't know it was that until recently😅
I’ve came to the conclusion it’s stress and diet more diet than anything get food allergy test I guarantee if you have tsw you’re allergic to something
Absolutely agree! Even though I am currently clear, in high-stress situations and when I eat crap, my skin starts to flare!
Can you explain what's TSW?
Yes! It stands for “topical steroid withdrawal”. It is basically when the body becomes addicted to steroid creams so when you stop using them, the body flares really bad. It often leads to full body redness and flaring. Hope this helps!
WARNING! THIS FOOL NEEDS TO GET HIS FACTS STRAIGHT.
Protopic is gonna get u in big time TSW.
DYOR. Good luck.
Protopic withdrawal is definitely a thing! However, I was luckily able to taper off and after 5 years I am happy to say no withdrawal 😊.