Thank you for this. My husband has been in a coma for 26 days now after suffering a grade 3 DAI due to a motorcycle accident. I was just told yesterday from the trauma team that at this point, my husband may stay in a persistent vegetative state. I am devastated. Your video helped me understand his injury a little more. Thank you.
He came out of the coma but as predicted, he has remained in a persistent vegetative state. He was just recently placed in hospice 3 weeks ago in a skilled nursing facility. He has developed calcifications of the brain and randomly has focal seizures. He requires total care and is 100% bedridden. I’ve placed our children in grief counseling to help them cope. I pray every day for a miracle.
Rotational whiplash caused a lot of axonal shearing in my brain, all over but mostly frontal lobe. There was original insult/rotational acceleration, sudden rotational deceleration, secondary/rotational acceleration, and then sudden secondary/rotational deceleration. There is very little activity in the part of my brain that controls my hands and legs. I had to do many rounds of physical and speech therapy. Apparently, my ability to move mostly normal looking is very impressive considering how little activity is going on there. I think, based on other symptoms like Auditory Processing Disorder and the tendency for PNES, Much of my motor control, at least left side, is happening in the part of my brain that processes left side auditory stimulus. What you are saying about the leaking is a better explanation of why I have so much inflammation and resulting constant migraine than I have been given, if that is what is going on. I appreciate you needing out on this. It helps to get a functional understanding of what is happening in there.
Thank you. Very clear and cogent intel and delivered in a digestible fashion. (Smooth enough for ME. If you were any smoother, you'd be slick; and who needs that?) I have ongoing damage from a bicycle accident, that I am still trying to fully understand and assess nearly 18 months later. Problems with my balance and walking. Motor cortex is adversely affected. Once a runner. No longer, for the nonce.
The MMA fighters are going down to Panama and getting stem cell therapy and getting good results. It has to be maintained and is quite expensive to do. You have to travel there, stay there a bit and the treatment isn’t cheap. I want to try it at some point.
I agree with you when you talked about how some believe there are more than just the 3 grades. I would think if the brainstem is involved but showing only ''subtle'' damaged and also only unilaterally it would not be the same as bilateral involvement. Would not be a grade 3 but also not a grade 2 as the brainstem is involved. I also read unilaterally only involvement gives a much better prognosis.
Unfortunately, they just don't allow for clearer gradations...hopefully with clearer imaging, this may change. Who knows. Neurology is conservative, it should be, but...
Thank you, sir. For this video, i have a brain jnjury from being hit by a car crossing the road and was vaulted into the air backwards at the rear end of the travelling vehicle. Everything was going in slow motion once impacted by this car, i have white matter hyperintensity in corpus callsum, with scattered subcortical foci, hyperintensity throughout periventricular and ventrical horns, a slight bleed to the right side of my pons, everyday is a struggle with this extreme fatigue and this heavy tiredness inside my head all over my crown its a deep dull ache i have a left arm that has a fly away reaction, vascular restrictions down both arms with blood pooling under my skin on my hands , i just want to sleep as my spine in my cervical and thoracic is damaged, that is a problem, but i truly can state as a fact the ongoing circumstances that are in my brain sensations never stops im so tired but only sleep for a few hours all night long ,here in Australia they dont care as i was hit by a car and the sad truth is that its because i was hit by a car and insurance doctors are frauds im still getting denials from these type of doctors, im too tired to care much anymore about how compromised they are i just want to know what type of help can i get to help with this type of brain injury.
I had a paliet go threw the roof of my mouth in my erly 30s wich gave me a stroke an it paralised my left side its a led palet an its still in my brain 20 years later good luck everyone
@@detoursunderstandingacquir7282 where can I find it? I have it all over my brain along with brain atrophy and no one explains it that well to me so I can understand
@@detoursunderstandingacquir7282 I watched it, thank you. I still have confusion as to why my neurologist tells me to stay away from my horses and one more blow to my head could be lights out for me. No one gives me any straight answers
if you are looking for results regarding your own scan, it really depends on who read yours and what type of MRI they did...if they weren't imaging for "metals" they won't see old deposits from old blood...scars from gliosis again depends on how good they are and if they get AI support these days...I know Im not good enough to read that, but I know a neurorad from Penn who was...don't know if she's still around anymore...been more than a decade.
some people may become cortically deaf, but that is incredibly rare...the bigger problem is the degree to which a person with DAI actually comprehends what is said. They may hear and recognize sound...but may not understand the words...they may understand the emotional sense of what is said...depending on the extent of injury and which networks are disrupted, or they may understand all or nothing. it also may change over time...from nothing to everything...don't give up...they may just be unable to express themselves...
I have terrible allergies, sorry about the sniffs not much to do. smoother? i do these off the top of my head with very little scripting because it sounds natural. I have some aphasia.
@@detoursunderstandingacquir7282 You did a fantastic job! Sorry people are so demanding and so rude- no appreciation for people taking their time to share their knowledge!
You're trolling or projecting. What one sees on the outside is what's going on in the inside. Intimidated by his intelligence The need to feel better about yourself Equals out to being an ass.
@detoursunderstandingacquir7282 please don't let this troll get to you. It wanted a response from you. If you come across another troll ignore them. I know it's hard but let the trolls cower in the corner while you walk on by ignoring them. Appreciate your videos!! Thank you
Excellent, very educational!
Thank you for this. My husband has been in a coma for 26 days now after suffering a grade 3 DAI due to a motorcycle accident. I was just told yesterday from the trauma team that at this point, my husband may stay in a persistent vegetative state. I am devastated. Your video helped me understand his injury a little more. Thank you.
prayers for his recovery. we have a webpage and a facebook page: Friends With Brain Injury
@@detoursunderstandingacquir7282 Thank you 🙏🏻
Hope things have improved for you.
Has your husband awakened from the coma?
He came out of the coma but as predicted, he has remained in a persistent vegetative state. He was just recently placed in hospice 3 weeks ago in a skilled nursing facility. He has developed calcifications of the brain and randomly has focal seizures. He requires total care and is 100% bedridden. I’ve placed our children in grief counseling to help them cope. I pray every day for a miracle.
Very informative, thankyou!
Rotational whiplash caused a lot of axonal shearing in my brain, all over but mostly frontal lobe. There was original insult/rotational acceleration, sudden rotational deceleration, secondary/rotational acceleration, and then sudden secondary/rotational deceleration. There is very little activity in the part of my brain that controls my hands and legs. I had to do many rounds of physical and speech therapy. Apparently, my ability to move mostly normal looking is very impressive considering how little activity is going on there. I think, based on other symptoms like Auditory Processing Disorder and the tendency for PNES, Much of my motor control, at least left side, is happening in the part of my brain that processes left side auditory stimulus. What you are saying about the leaking is a better explanation of why I have so much inflammation and resulting constant migraine than I have been given, if that is what is going on. I appreciate you needing out on this. It helps to get a functional understanding of what is happening in there.
Thank you. Very clear and cogent intel and delivered in a digestible fashion. (Smooth enough for ME. If you were any smoother, you'd be slick; and who needs that?) I have ongoing damage from a bicycle accident, that I am still trying to fully understand and assess nearly 18 months later. Problems with my balance and walking. Motor cortex is adversely affected. Once a runner. No longer, for the nonce.
thank you very much this helped me better understand the topic as i was researching the topic for my psychology class
Well Done. I received your message well.
Do you provide consultations?
The MMA fighters are going down to Panama and getting stem cell therapy and getting good results. It has to be maintained and is quite expensive to do. You have to travel there, stay there a bit and the treatment isn’t cheap. I want to try it at some point.
I agree with you when you talked about how some believe there are more than just the 3 grades. I would think if the brainstem is involved but showing only ''subtle'' damaged and also only unilaterally it would not be the same as bilateral involvement. Would not be a grade 3 but also not a grade 2 as the brainstem is involved. I also read unilaterally only involvement gives a much better prognosis.
Unfortunately, they just don't allow for clearer gradations...hopefully with clearer imaging, this may change. Who knows. Neurology is conservative, it should be, but...
Thank you, sir. For this video, i have a brain jnjury from being hit by a car crossing the road and was vaulted into the air backwards at the rear end of the travelling vehicle. Everything was going in slow motion once impacted by this car, i have white matter hyperintensity in corpus callsum, with scattered subcortical foci, hyperintensity throughout periventricular and ventrical horns, a slight bleed to the right side of my pons, everyday is a struggle with this extreme fatigue and this heavy tiredness inside my head all over my crown its a deep dull ache i have a left arm that has a fly away reaction, vascular restrictions down both arms with blood pooling under my skin on my hands , i just want to sleep as my spine in my cervical and thoracic is damaged, that is a problem, but i truly can state as a fact the ongoing circumstances that are in my brain sensations never stops im so tired but only sleep for a few hours all night long ,here in Australia they dont care as i was hit by a car and the sad truth is that its because i was hit by a car and insurance doctors are frauds im still getting denials from these type of doctors, im too tired to care much anymore about how compromised they are i just want to know what type of help can i get to help with this type of brain injury.
Thank you for this video!
Great video I had DAI ,and now have axonal neuropathy,could they connected.
seems reasonable...there really isn't much research but a neuroinflammatory process like that and DAI? I would take that bet for sure...
I had a paliet go threw the roof of my mouth in my erly 30s wich gave me a stroke an it paralised my left side its a led palet an its still in my brain 20 years later good luck everyone
Can you do a video on encephlamalcia
i do have one...
@@detoursunderstandingacquir7282 where can I find it? I have it all over my brain along with brain atrophy and no one explains it that well to me so I can understand
@@detoursunderstandingacquir7282 where can I find it
@@detoursunderstandingacquir7282 I watched it, thank you. I still have confusion as to why my neurologist tells me to stay away from my horses and one more blow to my head could be lights out for me. No one gives me any straight answers
At the 16:40 min the spaces you are talking about (spaces). Would they be reported at ischemic foci? Without Gliosis? (No iron deposits scene ?
if you are looking for results regarding your own scan, it really depends on who read yours and what type of MRI they did...if they weren't imaging for "metals" they won't see old deposits from old blood...scars from gliosis again depends on how good they are and if they get AI support these days...I know Im not good enough to read that, but I know a neurorad from Penn who was...don't know if she's still around anymore...been more than a decade.
Can peryson with DAI hear us or they lose hearing
some people may become cortically deaf, but that is incredibly rare...the bigger problem is the degree to which a person with DAI actually comprehends what is said. They may hear and recognize sound...but may not understand the words...they may understand the emotional sense of what is said...depending on the extent of injury and which networks are disrupted, or they may understand all or nothing. it also may change over time...from nothing to everything...don't give up...they may just be unable to express themselves...
I enjoyed this. But please try to be smoother and no snorting or sniffing.
I have terrible allergies, sorry about the sniffs not much to do. smoother? i do these off the top of my head with very little scripting because it sounds natural. I have some aphasia.
Are you kidding?
You are SO RUDE!
@@detoursunderstandingacquir7282 You did a fantastic job!
Sorry people are so demanding and so rude- no appreciation for people taking their time to share their knowledge!
You're trolling or projecting. What one sees on the outside is what's going on in the inside.
Intimidated by his intelligence
The need to feel better about yourself
Equals out to being an ass.
@detoursunderstandingacquir7282 please don't let this troll get to you. It wanted a response from you. If you come across another troll ignore them. I know it's hard but let the trolls cower in the corner while you walk on by ignoring them.
Appreciate your videos!! Thank you