Kathleen Rose: Trisomy 13: How Our Beautiful Girl Surprised us all!
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- Опубликовано: 13 сен 2024
- Tracy and Tom Harkin's little girl Kathleen Rose was diagnosed with Trisomy 13, a condition often referred to as 'incompatible with life." See in this video, a wonderful daughter, full of life, and the love of her devoted family.
See more personal testimonies and stories at www.everylifecounts.ie
![Aneuploidies: Trisomy 13, 18, 21, Turner Syndrome, Klinefelter Syndrome [Genetics 6 of 8]](http://i.ytimg.com/vi/Nj_tnwVOHfc/mqdefault.jpg)
I watched this video when I my son was diagnosed neonatally with Trisomy 13, your video helped to shape my decision to continue with my pregnancy. I was told that T13 just don’t live. You helped to show me a different version, a different outlook. My son is now 21 months and doing so well. Thank you for sharing Kathleen Rose’s story. Thank you for the hope you gave to my family. Praying that Kathleen Rose has continued to thrive and defy the odds against her.
thank you for sharing and sending love to you both x
How is your son doing?
My cousin just passed a couple a weeks ago, she had T13 and she made it to 15 months and even began saying words. I'm still so proud of her even though she is gone.
so sorry for your loss and what a fantastic outlook you have x
R.I.P. my daughter , Ivy Violet , died in utero of this. 2016. I love her forever. 💕
My beautiful little girl Nicole was born with Cornelia De Lange syndrome. I was told she would be unable to even ever roll over by herself. She is now 33 years old, and lives in a group home for disabled adults, and doing quite well. She reads and writes at a 7 th grade level and I wouldn't trade her for the world!!
God bless this wonderful family! ❤
Kathleen rose is a beautiful little girl and she is a true gift🙏❤
She is also a great teacher of live,happiness and compassion
I have a cousin with T13 and this July will be his 16th birthday 😱 he's doing really good, we hope to have him with us for many years more!
Daniela Freitez that is truly a wonderful gift from god you have been given how do you well.
that's so wonderful to hear. I sincerely hope that he is still going strong. Quick question - is it full trisomy or mosaic trisomy ?
layman swam well he doesn’t have eyes, his hears didn’t developed at all, and had some issues with internal organs that have been treated with surgery. And also he had cleft lip which also was treated with surgery, last week was his 17th birthday! So he is over any medical prognostic!
19th birthday
@@ryogaconen wow ok. That would make him one of the oldest living trisomy 13 survivors, as far as I know... if not the oldest.
I work with the sweetest little 4 year old boy who has partial trisomy 13 and its amazing how much personality that little guy has
She is so beautiful and blessed!!! I love this video!!! She is so full of life!!!
Bless her! She’s adorable and she super pretty too🥺 I hope she get many more years to come
I think this is one of the most beautiful and inspirational stories
I have heard so far.
I don't believe no matter what the doctors may say in ending the life of an unborn child even one who will be born with disease and may not live long.
I don't care if it's one minute or one hour or one day or one year or a life time, every child deserves a chance to prove science wrong.
Every child born no matter how little time or how long deserves to
be loved and bring joy into the life of those who love him or her already just by having those precious moments to always remember.
My daughter was born 38 years ago with congenital heart disease and lived 29 days.
My son was born 32 years ago with a rare skin disease that peeled and looked like Burns.
He passed after 3 month and 17 days after he was born.
I would not trade every moment I had with them for all the Gold, because my babies were Golden and brought so many smiles and joy but most of all love and memories we will cherish forever.
Please don't take for granted that a child cannot survive a disease diagnosed while in the womb and abort it.
I have a son who was born with digestive and intestinal disease when he was born.
He was born 1975 and I was told he would not survive more than 1 year.
I am happy to say my handsome and funny son is now 42 years old living a healthy happy productive life with his wife and four children.
God has Blessed my family and if you believe and you are trying to make a choice right now just know God will Bless your family with a beautiful bundle of joy whether he or she has problems or whether you are financially burden.
Every child deserves a chance and just believe and Almighty God Jehovah will bring you through with the most precious gift and Blessings because of his love for you.
Blessings to everyone ❤️❤️❤️❤️
I used to be a family assistant to a baby/child with Trisomy 12 Pallister Killian Syndrome. It was such a privilege to be available to care for her alongside her mother.
She lived to be 8 years old.
Usually die at birth or don't see their first birthday so this little girl is a true miracle !!
Yes!!💜💜💜💜
Such a beautiful family and a adorable little girl I have a child with complex needs and she's always smiling
Never give up hope these children are amazing
emma davis I give you a whole lot of credit for not giving up on your child. Even though I don't know you I can tell just by your comment that you are a very good person.
She is so beautiful. I am so glad that she survived! God bless your family!
Your sweet girl is adorable and I love how her siblings interact so sweetly with her. Many blessings to her and your beautiful family.
What a joy, so pleasant and sweet. It is so beautiful to see her sisters interacting so lovingly. What a beautiful love story.
It's great that she's very special, but her family is also special too. God bless them too!
Thank you for sharing your story. You have a beautiful family. Lots to be proud of. My sister had a special needs child gave her 19 years of happiness. God bless
Omg she’s so beautiful😍
Such beautiful, loving parents. What a blessing their daughter is to their family. Nine years on I wonder whether she is still with us, how she is doing? Would love an update on this lovely, caring family.
What a gorgeous wee girl!
What a beautiful girl!
may Allah bless her and guide her through life with love and mercy.
My first baby was diagnosed with trisomy 13 when I was 5 months pregnant. I was young and doctors advised me to abort since the chance of survival were nil considering the extent of complications in the ultrasound. It all happened within 2 days like a blur and I still can't believe how and why I went with their decision. But I didn't understand all that they were saying and I believed doctors were saying only what's best for my baby and me. I still cry about it often and I will continue to cry for my child all my life. I feel so much guilt and remorse that sometimes I don't know what to do. I will always love her and I miss her. I don't know what more to say. After that I came into the Lord and I have asked for forgiveness and received His mercy but nothing will change the feeling of guilt and remorse that I feel 😢😢
Self-forgiveness is a big deal. Work with the Lord on that and you'll be fine.
My beautiful niece beats the odd since her Radiologist told her mom that she should consider abortion. Oh boy, she proves them wrong. She will be turning 3 years old this May. She turn out to be very gifted normal child. She is a miracle from above. It’s a blessings that her parents did not listened to the radiologist considering all the negative advised from the expert. The parents believed no
Matter what the outcome will be and they will accept it. She is a miracle and a blessed from heaven. The parents are asian. I was told her dimples
On her cheeks were maybe the basis for the radiologist to think that she is a candidate for a Trisomy 13.
Please do not feel guilty about your decision. Bringing a child into the world that will never have a life of their own, and will only be a thing to be taken care of is not the kind choice. The fact that medicine can keep these children alive doesn’t mean we should.
All of their kids are so adorable.beautiful and handsome.GODBLESS ALL OF THEM.
Love, love, love your story! God bless you and your family for not listening to the " most likely...". Your whole family is a blessing and look how Kathrine is smiling so often! Thank you for sharing 💜
Beautiful Family, GOD BLESS U ALL.
I think I know someone with trisomy 13. His parents were told he wouldn’t live past 5. He’s 14 now and can walk around in his walker. He has had an NG tube his whole life because they don’t think he’ll survive surgery.
Edit- he has trisomy 18 not 13. He’s now 17!
Beautiful. Thank you for sharing. God bless you all!
She's so cute, love that smile.😊
Beautiful Kathleen 💝Thank you for posting this video. I have a beautiful girl with trisomy 13 as well. She will be 9 years old next month, in October, God Willing🙏 I also have 3 older daughters and they all love her soooo much and brings us closer together💞 She brings us so much Joy & Unity and wouldn’t have it any other way. We count our Blessings each day! They told us she wouldn’t live past 1 year and here we are, we Treasure each day and she brings the best in all of us💖 God Bless these little angels 👼🏼
God Bless you little Angel💜
she's smiling all the time... it's so cute.
What a sweet little girl and family😍💕💕
She is beautiful
Kathleen Rose is truly a beautiful little girl in every sense of the word. God doesn't give these children to just anybody. You and your husband are so awesome, and so responsible for delivering God like children into this godless world.♥️
This has warmed my heart so much.....you don't give yourselves enough credit....because you're the reason your children are the most kind amazing children, because of the way you bring them up....a big hug, and a huge pat on the back from me to you x x x x x
I love this. God Bless your whole family
Very special video, an inspiration to others. Kathleen is a beautiful girl and we wish her the best. We have a 17 month old daughter Wiktoria with Trisomy 13. She is also doing well. Beautiful Video. God Bless.
l
Aneta Ogorek ❤
Wiktoria is name I have never heard before. I heard of Victoria and mine as just Tori.
wow, I wish you all the very best
Hi there...not certain but this may be an Eastern European version of Victoria. I've seen several videos with this sweetie. She is so adorable and it's so obvious how much her family cherishes her.
@@torimccool4413 It's the way people in eastern Europe pronounce their V's and W's. They are reversed, so V's sound like W's and W's sound like V's. Her name would still be pronounced Victoria.
You have a beautiful and loving family. Kathleen seems very happy and well loved. God bless all of you. Im a care taker of disabled individuals. They are excited to be loved and taught things. You are a great Mom. God bless
Pequeña hermosa bendiciones 😍🙏
I wish you all the best! Such a beautiful girl!
what a darling MIRACLE she is..I am glad she is thriving..are there any updates?
Many thanks for sharing your story. Many blessings and prayers to your family!
what a beautiful story
Beautiful video and beautiful Kathleen Rose, her parents are courageous
What a beautiful family you have! God bless you! Kathleen is truly a blessing for your family.
Thank you for producing such a beautiful video on Kathleen Rose and her doting family. If brought a certain amount of joy to my heart. The family are inspiring. Thanks again. John del
What a beautiful story of a lovely girl who has beat the odds! Gods blessings to Kathleen Rose 🌹 and her special family!
I thank God He sent Kathleen to you and your husband. She is absolutely beautiful, and such a happy little girl. Chances are if to anyone else, her precious beating heart would have been made silent after that fateful ultrasound. God Entrusted you with one of his most very special miracles. (1) Because of your unconditional love, and (2) Kathleen will, and is a source for Christian witnessing, Just By Being... The Lord knows that you and your husband can inspire, and be a blessing too future parents who learn their babies may be born, less than perfect. Doctors with this technology try, but they don't always have the answers.
God Bless...
What a beautiful family! Kathleen is adorable!💖 We don't know why God does what He does when He creates but what we do know is that He makes no mistakes! Every human being matters! Every person makes an impact on the world!
Oh stop....
Great parents! She looks so happy. With all the love she has she probably doesn’t even know she’s different in any way.
She has such a wonderful life. So much better than most. You should be so proud of that. God bless your family.
So beautiful.... thank you for sharing!
She is so cute and beautiful and amazing and don't give up
So many people in the comments that have babies with t13 that are thriving ♥️ I hope this means that medical technology is working hard for babies born with this condition. My firstborn is in heaven, having died in utero two weeks before his due date because of t13 complications. I still feel his love every day. He would have been turning 22 this year. ♥️
So very sorry for your loss
May God Bless you All!
I think the lessons of the video and subsequent comments is that these children can help us get this crazy world we live in back on track to kinder, gentler times gone by. I loved your video and your beautiful family. Thank you.
What a beautiful child and family! Is Kathleen still alive? I used to work with special needs children when I was younger and I cannot imagine having a sweeter child than Kathleen and a supportive family like yours. Having taken Irish folklore, I wonder if "I'll Take You Home Again, Kathleen" was sung to her alot. Any pets? I have 2 Border Collies that herd me around my house, Gypsy Rose Lee and Little Bo Peep. Gypsy could be a diabetic therapy dog;she knows when my sugar is high or low and herds me to the bathroom or kitchen.
She is beautiful, see what love can do? you are a example to all, these babies that, make it this far are precious..love endures everything, this a proof that love cures, she is your baby, it is not selfish, because God made her just the way she is and you are so blessed
My grandson has t 13 he is nearly 18 months old you have given me so much hope for him kathleen is so lovely all the best to you and your family
+Carol Garwood If he has Trisomy 13 Mosaicism, then his prognosis should be fairly similar to Kathleen Rose's. Also, medical terminology can vary from country to country. These people have very distinctive Northern Irish accents, so some of what they're saying might not be 100% the same as terms used outside the UK or Irish Island.
Unfortunatly my lovely grandson passed away on 13 april but i treasure the time we had with him he didnt have mosaic but full t 13 but thank you for your reply
+Carol Garwood I'm very sorry to hear that. My baby sister had it and died after 34 hours. I am certain that Kathleen Rose does not have full Trisomy 13. That means only some of her cells contain a third copy of chromosome 13. The video should've specified that.
I suspect so i am sorry about your sister .it seems so unfair .please give my heartfelt sympathy to your mom .the loss of any child is so heartbreaking
Carol Garwood Thank you, and I will.
The smile on her face says everything
Very well said, your daughters beautiful and all parents should see this if they've been told this from diagnosis. God bless you all😊🙏😇🥰
Being a parent is challenging enough, but to have a special needs child on top of that... the strength one must have to cope. I have much respect for them because they admitted that everyday wasn’t easy and at times they needed to vent. God bless them and their family.
God bless your family
So beautiful and amazing thank you so much for sharing ❤️
This video was in July 2014. Tracy, if you see this, can you update? Such a lovely little girl! Thank you.
Kathleen rose is happy and well
My sister lived 18 months , 16 months in icu, 2 weeks home .
So wonderfully said.
Reminds me of my baby girl that died q8 yrs ago yesterday. She had very severe heart defects and other defects, and this is one of the syndromes she was tested for. This and trismoy 18 and 21. All chromosomes were normal. They told me at the time of testing, when o was pregnant, that if she had trisomy 13 or 18, they wouldnt do any life saving surgeries, like on her heart. She did have surgery, but bc of the complexity of her heart malformations, she was just too small to take on such a long surgery. She was on the heart-lung bypass machine for 111 minutes, so she went into total organ failure. But my point is, they tried to get me to terminate my pregnancy with her bc they didnt thi k she'd even survive it. She showed them. She had open heart surgery at 10 days old and went to heaven 11 days later. I miss her tremendously and will love and cherish every moment Inhad with her in those 3 weeks she was here. I don't regret for a second not terminating.
So very sorry for your loss
Beautiful ❤️
kathleen is so pretty
I love her little pigtails! This is in Ireland somewhere?
What lovely people!
Beautiful, your blessed.. ❤️
God love you all. She's beautiful
bless you both xx i carry the translocation that can pass t13 onto my babies. I never listen to doctors when they say this is incompatible with life, kathleen has shown this is not the case ❤
Rachael Yeadon I'm with you all the way babe xxx
❤ xx
My baby nephew has t13 and is almost 3!!
So beautiful
nobody on earth , can tell what GODS plans are ..amen
Does she have an feeding tube? And she is so beautiful and cute and amazing
❤
My older sister was a Trisomy 13. She died only minutes after birth...
Grace Lockhart im so sorry for your loss
How is Kathleen doing these days?
Is there levels of severity with trisomy 13 like there is with trisomy 21 ?
Yes there would full partial and mosaic
I have a request.
I would like to request your permission to use approximately 5 seconds of this video in a video that I am making about trisomy 13. Note that I will NOT use the audio. Just the video.
The clip will be somewhere within the following timestamps:
7:20 - 7:30
I would very much appreciate being able to use this short 5 second clip. The context will be speaking about how lucky parents of trisomy 13 children are, and how wonderful the experience of being the parent of a trisomy 13 child can be.
I eagerly await your reply.
Thank you
Can you email me your request please Samuel at vicky@everylifecounts.ie thank you
Can I ask if your child had full or partial trisomy 13? We found out our baby has full Trisomy 13. We are 13 weeks along in the pregnancy.
She had full trisomy Lucas, email us if we can help at all
Please remember that those neonatal screenings are not super accurate… they are only about 70 percent accurate. I know of three mothers that got a diagnosis of chromosomal abnormalities during their pregnancy, and gave birth to three healthy babies. Those kids are developing just normally today. No health issues.
So those tests can be wrong. Not saying they will be, but it’s worth keeping in mind.
Love
I always thought this was incompatible with life-
Nope! They can live for many years!!
Witam serdecznie zakładam stronę na Facebooku odnośnie choroby zespołu
patau .Porady odnośnie funkcjonowania z tą chorobą oraz porady,numery
tel lekarzy itp.Czy film mogę wykorzystać na stronie.Mieliśmy Synka z
zespołem niestety zmarł chcielibyśmy pomóc i podzielić się naszymi
doświadczeniami z innymi rodzicami na tyle ile jest to możliwe.Dziekuję w
imieniu swoim i innych rodziców.
Like, even though you're genetically hosed, you're very cute. You go, girl!
So many children that are not supposed to live, living. Dr's get this wrong so often.
Hi