I honestly can't describe how uplifting these videos are. I've been dealing with this shit (sorry) for two decades, and only in the last year did I run into an orthopedic surgeon who had any experience with hypermobility, but he sure didn't know how to treat it apart from injecting me with steroids (which actually helps to an extent) But this gives me so much more hope because these are fundamentals I can use for the rest of my life. I can't even believe you fixed something as insane as your entire head falling backward like you got hit in the face by a ghost. Favorite channel on RUclips now. Without the slightest doubt.
I'm so glad I read your book 'Hypermobility without tears'. I then started watching your youtube videos. I'm hypermobile with lots of joint problems and previous surgeries. I have seen lots of physiotherapist which were all ignorant of hypermobility and wanted to apply to me what they do to general population which didn't help most of the time (some actually made things worse). I have done some of the exercises you recommend and I'm already feeling better with less pain. Thank you Jennie 😊❤.
Hi Jeannie, Would you please talk about TMJ? This joint often ignore. I have this problem and neck pain shoulder pain as well. Would like to know more about it. Thank you from Canada Kally.
Than you for this video. I started pilates because of my hypermobility issues, and I see why it was recommended by my doctor. Most of the exercises you showed are part of Pilates workouts.
This was great. I appreciate your cues. I am in PT for a painful neck. It’s bothered me for 26 yrs. When I was a teenager the PT RXd isometrics, & it didn’t really help. ThePT now is having me do some of the same things you showed in this video & your cues helped me better understand the muscles to recruit. When I go to PT he typically has 2-5 ppl at time to work w. Thanks for this video!!
Thank you for this! I appreciate how specific you are about body positioning. Extremely helpful! I’m glad to have found your channel - many recommendations for exercise cause me more pain due to my hypermobility. Thank you for sharing your expertise with us!
Very useful !!!❤ Thankyou! Yes those chin tucks/ isometrics given my pT’s made my issues worse Feeling hopeful about my constant nagging pain around left neck/shoulder /scapula after doing this today 🙏🙏
Thank you for this I don't have a diagnosis or anything but laid down from computer and went in a search because a Facebook thing. Got me thinking. I've been off balance esp with gout toe recently it's all off from the feet. You talking with the facts on tensions and soft working is great on my sedentary life right now.
Sorry you have been so sick. Its a month after this video aired, so I hope you are completely well now. I love this video. Very informative. I also found & downloaded that info you shared W/us.
Hi Thankyou so much for doing these live video series - they are so helpful what time in US should we come live today?- im always missing getting here on first Thursday of the month - but today I’m right here !❤😊
For most people who have this condition is it classed more of a nuisance than anything? Such as having slightly unstable knees ankles and wrists ect. As I’m 100% sure I suffer with this since sustaining a whip lash injury and thought I was dying when symptoms first started that was back in 2019 as I didn’t understand what was happening I got diagnosed with benign joint hypermobility last year but still to this day haven’t managed to find someone to look into my neck further or take it seriously since every scan I have comes back normal I had to research myself online to find the cause of my symptoms and I came across CCI which matched me perfectly the only problem with having to do that terrified me as online makes it sound like a death sentence which then sent me down an anxiety/depression hole which I nearly didn’t make it out of I think I may fall into the mild to moderate irritability category but I’m not too sure since I can do everything within reason and I’m not bedbound by it but it does hold me back from alot as I feel the movement and I have two cleaning jobs which flare my symptoms alot and if I don’t sleep in the right position at times I get pulsitile tinnitus and visual issues upon waking up and get random fast heart rates at times it’s only since learning to calm my anxiety around it that I managed to get on top of a lot of my symptoms and calm them down as I was so tense when it first started I guess what I’m trying to ask is can I lead a normal long life with this? As it terrifies me that I’m just coping and one day I won’t be able to mainly from things I’ve read online as it makes it all sound so scary and that one day I’ll be severely disabled also it is possible to be able to have children if you have this condition? Thankyou for any replies and watching this video calmed alot of my anxiety as you didn’t put anything in a scary way like I’ve read online and it’s made me feel more hopeful x
What if you are high irritability with UCI and can't be on all fours or lay face down without pain or a symptom flare? Honestly even laying down on my back is questionable for me to do. What would you suggest for direct neck strenghtening in this case?
Hey Jeannie, I have CCI, and the thing thats most frustrating about physical therapy and exercises like these is the left side of my neck feels extremely rotated versus my right. Basically like if you were to take your hand and push the right side of your jaw forward a bit, thats how it feels like my neck is. Almost as if the left of my jaw is being pushed into my neck. Can I do these exercises still? Because its not painful but rather just very annoying. I make sure to breath and not push but when I relax my head up from the ground it goes up unevenly.
So grateful for your videos Jeannie! As a newly diagnosed and in the middle of a severe health collaps, I am still finding my way in this new world. I have one question: When I try to sit up straight in the first exercise, I realize that I am doing exactly what you described: I am bracing my diaphragm as if I was holding my breath, in order to even stabilize myself in the seating position. When I try to release that and belly breathe softly, my body goes into a slouching position immediately. It seems I cannot even hold myself up without tensing up my diaphragm! Can you orient me to any of your exercises that would help with this? Thank you so much!!
Yes I too started in the same way and after following Jeannie’s advice I think I’m getting a little better or atleast understanding how I need to pull up slowly- very hard to keep thinking like that all the time though . And yes for the first one month I was only doing the breath exercises before coming to these other videos. Thankyou so much Jeannie for having zebra club for us to get personalized advice.
I am unable to sit in a good posture without the support of the custummade back orthesis in my wheelchair. So if I do these it has to be done from my wheelchair. But the backrest has side support too so there is always some space in between my side and my arms. Will that be a problem? I also don't feel any pressure going down to my sitbones or lengthening/opening up on the exhale. Why is that? And can my dystonia. mild scoliose or tethered cord have anything to do with this?
When you describe that you do neck isometrics daily, are the exercises from this video what you usually do? Or are there other neck isometric exercises you do?
When I do isometrics side to side, something clicks/pops back and forth in the C6-C7 area. Is this what you mean by shearing? Isometrics feel great forward & backwards for me but idk if I should be doing them side to side with this happening?
Yes that could be. Always best to check with a physio therapist if you have new symptoms & avoid anything that increases pain or brings on neuro symptoms.
Would you think that Isometrics could possibly be bad for AAI and scarry craneal ligaments? I'm not sure if to start with them. I feel traction and hanging down my head is a release. But the posture part makes so much sense to me. And can we do the secind part of arm exercises with bangles?
Hey Jeannie, thank you for your videos. As a newbie with CCI i am living with few informations about treatment. To me it seems only i can do is prolotherapy to heal ligaments or spine fusion or live with headaches and brainfog forever. Do you think (just in some paralel, academical universe :P) exercises could fix CCI? I will not consider your answer as a medical advice :P Just opinion in paralel universe.
Hope they are helpful. It depends how severe the CCI is. Highly recommend reading the new research paper by Russek et al that can help you identify level and what treatment options there are. Paper is freely available if you google it. Upper cervical instability.
@@JeannieDiBonHypermobility Russek study is overhyped with almost zero case study and zero good results in treatment. They dont ever use DMX for measuring. Another thing is they say traction devices are bad even tho we have solid new study that says opposite. www.ncbi.nlm.nih.gov/pmc/articles/PMC10002528
I’m not able to give personal guidance on here as I don’t know your history or how you did the exercises. But I always say to avoid anything that brings on pain. I recommend getting the headache checked out first.
Hope they are helping. In terms of frequency - be guided by you. Some people can’t tolerate exercise every day especially around head and neck. Listen to your body.
Hi Jeanie; my neck clicks all over at the bottom of my skull and I cannot turn my head side to side. It feels like gears are stuck in my head, will these exercises help me look left & right. I’ve had this now for 6 months and it’s unbearable
Sorry to hear. I can’t give any personal advice on here as I don’t know your history. Definitely worth getting it assessed by a physio who understands instability of the neck.
And do you have any particular feeling about the fact - which I was only told after many years of visiting upper cervical Chiropractic specialists - that given that the spinal cord is not much smaller than the space it has to pass through, then vertebrae that are out of place will obstruct the sac around the spinal cord, causing spinal cord or brain stem pressure, specifically in the case of the upper cervical spine. That this brain stem pressure will cause dysautonomia, in addition to constantly activating the sympathetic nervous system, which I was only finally told arbitrarily in june, will specifically preclude healing - of nerves, of all the aggravated stringy muscles, for one. Or does your licensure prevent you from discussing such things? In part I'm trying to discover why I was not only denied all this information for so many years, but even denied the knowledge that there was significant explanation that I was being denied, such that medicine was functionally misrepresented, as the impression was distinctly given that there was nothing medicine had to say about my condition, when the relative anatomy of vertebrae and spinal cords and the consequences of spinal cord pressure, were actually already quite well known
I am 23 years old in medical school and i have flatten cervical curve and trapezius muscle spasm and cracking sound when i move my neck and i have been going to physiotherapy for 14 stations but i want to know what exercise are best because i have disc bulge in cervical and lumber scolosis 15 degree they say this all due to muscle weakness
@@JeannieDiBonHypermobility yup. Made my bobble feeling worse. And now when I look down my whole body starts to sink down probably because my head is going foward without my realizing it.
What about both? Maybe in different videos. It happens that sometimes is good to have the exercises "straight", but she spends quite a long time before starting with them.
@@verdadsiempre1435How about you just fast forward through the videos? Context with true hyper-mobility is extremely important. I’m thankful for her wealth of knowledge and proper instruction.
I honestly can't describe how uplifting these videos are. I've been dealing with this shit (sorry) for two decades, and only in the last year did I run into an orthopedic surgeon who had any experience with hypermobility, but he sure didn't know how to treat it apart from injecting me with steroids (which actually helps to an extent)
But this gives me so much more hope because these are fundamentals I can use for the rest of my life.
I can't even believe you fixed something as insane as your entire head falling backward like you got hit in the face by a ghost.
Favorite channel on RUclips now. Without the slightest doubt.
Thank you. I’m so glad you’ve found the videos so useful.
I'm so glad I read your book 'Hypermobility without tears'. I then started watching your youtube videos. I'm hypermobile with lots of joint problems and previous surgeries. I have seen lots of physiotherapist which were all ignorant of hypermobility and wanted to apply to me what they do to general population which didn't help most of the time (some actually made things worse). I have done some of the exercises you recommend and I'm already feeling better with less pain. Thank you Jennie 😊❤.
I’m so happy to hear this. Thanks for reading & watching 🙏🏻
I hav instability in the neck thank you for talking about it not many people know
Hope it was helpful
You are pure wisdom and clearly know what you're talking about.
Glad the video was helpful
Hi Jeannie, Would you please talk about TMJ? This joint often ignore. I have this problem and neck pain shoulder pain as well. Would like to know more about it. Thank you from Canada Kally.
Great suggestion!
Than you for this video. I started pilates because of my hypermobility issues, and I see why it was recommended by my doctor. Most of the exercises you showed are part of Pilates workouts.
Glads it’s helpful.
This was great. I appreciate your cues. I am in PT for a painful neck. It’s bothered me for 26 yrs. When I was a teenager the PT RXd isometrics, & it didn’t really help. ThePT now is having me do some of the same things you showed in this video & your cues helped me better understand the muscles to recruit. When I go to PT he typically has 2-5 ppl at time to work w. Thanks for this video!!
Glad it was helpful!
Thank you for this! I appreciate how specific you are about body positioning. Extremely helpful! I’m glad to have found your channel - many recommendations for exercise cause me more pain due to my hypermobility. Thank you for sharing your expertise with us!
You're so welcome!
Very useful !!!❤ Thankyou! Yes those chin tucks/ isometrics given my pT’s made my issues worse
Feeling hopeful about my constant nagging pain around left neck/shoulder /scapula after doing this today 🙏🙏
Glad it was helpful!
Thank you for this I don't have a diagnosis or anything but laid down from computer and went in a search because a Facebook thing. Got me thinking. I've been off balance esp with gout toe recently it's all off from the feet.
You talking with the facts on tensions and soft working is great on my sedentary life right now.
Glad it was useful 🙌
Sooooo beautifully explained - you have a very special gift 💝
Thank you so much!
Sorry you have been so sick. Its a month after this video aired, so I hope you are completely well now.
I love this video. Very informative. I also found & downloaded that info you shared W/us.
Thank you so much!
This was so helpful, thank you ❤
You're so welcome!
The best exercice for my instabikity is with elastic ..the others increase my pain with neurologic symptoms. Thank you
Great you’ve found something that works for you 👍
Very good discussion. I found your information logical and highly useful. Thank you.
Glad it was helpful!
Great ITS so great greetings from Switzerland
Thank you very much!
🙏Thank you Jeannie - good to join in to your classes again this year 😊
Welcome!
Hi Thankyou so much for doing these live video series - they are so helpful what time in US should we come live today?- im always missing getting here on first Thursday of the month - but today I’m right here !❤😊
Sorry not on today but back next week 5pm UK
@@JeannieDiBonHypermobility Thankyou 🙏💕
Hi Jeannie where can I find that paper you referred to in this video please? You said use it to take to a therapist. Thank you
Yes you can google Russek et al upper cervical instability. It’s free.
For most people who have this condition is it classed more of a nuisance than anything? Such as having slightly unstable knees ankles and wrists ect. As I’m 100% sure I suffer with this since sustaining a whip lash injury and thought I was dying when symptoms first started that was back in 2019 as I didn’t understand what was happening I got diagnosed with benign joint hypermobility last year but still to this day haven’t managed to find someone to look into my neck further or take it seriously since every scan I have comes back normal I had to research myself online to find the cause of my symptoms and I came across CCI which matched me perfectly the only problem with having to do that terrified me as online makes it sound like a death sentence which then sent me down an anxiety/depression hole which I nearly didn’t make it out of I think I may fall into the mild to moderate irritability category but I’m not too sure since I can do everything within reason and I’m not bedbound by it but it does hold me back from alot as I feel the movement and I have two cleaning jobs which flare my symptoms alot and if I don’t sleep in the right position at times I get pulsitile tinnitus and visual issues upon waking up and get random fast heart rates at times it’s only since learning to calm my anxiety around it that I managed to get on top of a lot of my symptoms and calm them down as I was so tense when it first started I guess what I’m trying to ask is can I lead a normal long life with this? As it terrifies me that I’m just coping and one day I won’t be able to mainly from things I’ve read online as it makes it all sound so scary and that one day I’ll be severely disabled also it is possible to be able to have children if you have this condition? Thankyou for any replies and watching this video calmed alot of my anxiety as you didn’t put anything in a scary way like I’ve read online and it’s made me feel more hopeful x
Thank you - I would definitely seek the guidance of a physical therapist to help manage symptoms.
This is so helpful! What is the cushion you're using called? I am having trouble finding something similar
The head cushion? It’s a pilates head cushion.
From 11:38 omg yes!
What if you are high irritability with UCI and can't be on all fours or lay face down without pain or a symptom flare? Honestly even laying down on my back is questionable for me to do. What would you suggest for direct neck strenghtening in this case?
If you have high irritability I strongly recommend working with a movement specialist or PT that will guide you.
Hey Jeannie, I have CCI, and the thing thats most frustrating about physical therapy and exercises like these is the left side of my neck feels extremely rotated versus my right. Basically like if you were to take your hand and push the right side of your jaw forward a bit, thats how it feels like my neck is. Almost as if the left of my jaw is being pushed into my neck. Can I do these exercises still? Because its not painful but rather just very annoying. I make sure to breath and not push but when I relax my head up from the ground it goes up unevenly.
Thank you for your comment. I really can’t give any personal medical advice on here as I don’t know your history or situation.
I'll check, but do you have Information on Thoracic Outlet Syndrome?
We have a class for this in The Zebra Club
@@JeannieDiBonHypermobility😢
Scalene trigger points - this is a basic part of massage therapy education, so there should be a lot of videos showing you where to poke
So grateful for your videos Jeannie! As a newly diagnosed and in the middle of a severe health collaps, I am still finding my way in this new world. I have one question: When I try to sit up straight in the first exercise, I realize that I am doing exactly what you described: I am bracing my diaphragm as if I was holding my breath, in order to even stabilize myself in the seating position. When I try to release that and belly breathe softly, my body goes into a slouching position immediately. It seems I cannot even hold myself up without tensing up my diaphragm! Can you orient me to any of your exercises that would help with this? Thank you so much!!
I would start with supine breath work - much easier to learn.
@@JeannieDiBonHypermobility Thank you!
Yes I too started in the same way and after following Jeannie’s advice I think I’m getting a little better or atleast understanding how I need to pull up slowly- very hard to keep thinking like that all the time though . And yes for the first one month I was only doing the breath exercises before coming to these other videos. Thankyou so much Jeannie for having zebra club for us to get personalized advice.
My arm constantly moves back and forth. Also noticed a pressure on the right side near the middle my neck tgats making my head turn
Always good to get things checked out my a medical professional.
Oh wow! You know your stuff!! Can these exercises be performed if one has cervical and lumbar (facet joint syndrome) spondylosis, too? TIA
Thank you. I can’t give any specific medical guidance on here. Please check with your medical professional to be sure.
I am unable to sit in a good posture without the support of the custummade back orthesis in my wheelchair. So if I do these it has to be done from my wheelchair. But the backrest has side support too so there is always some space in between my side and my arms. Will that be a problem?
I also don't feel any pressure going down to my sitbones or lengthening/opening up on the exhale. Why is that? And can my dystonia. mild scoliose or tethered cord have anything to do with this?
No that’s not a problem. It’s important you feel comfortable and adapt the exercises as you need to.
Sensation can take time to cultivate.
When you describe that you do neck isometrics daily, are the exercises from this video what you usually do? Or are there other neck isometric exercises you do?
Not on this video. In the 5 a day for necks there should be some.
@@JeannieDiBonHypermobility Perfect. Thank you.
When I do isometrics side to side, something clicks/pops back and forth in the C6-C7 area. Is this what you mean by shearing?
Isometrics feel great forward & backwards for me but idk if I should be doing them side to side with this happening?
Yes that could be. Always best to check with a physio therapist if you have new symptoms & avoid anything that increases pain or brings on neuro symptoms.
I can’t even “feel” properly it feels like I can’t even control my posture. Ughh
I talked about posture at the recent EDS conference. Check it out when the videos go live.
@@JeannieDiBonHypermobility okay
Would you think that Isometrics could possibly be bad for AAI and scarry craneal ligaments? I'm not sure if to start with them. I feel traction and hanging down my head is a release. But the posture part makes so much sense to me. And can we do the secind part of arm exercises with bangles?
I can’t give any personal advice as I don’t know your history. But nothing should hurt or make you feel worse.
Can I book a call or can we talk like an interview? Sharing CCI treatment options on my instagram.
Feel free to email me
Hey Jeannie, thank you for your videos.
As a newbie with CCI i am living with few informations about treatment. To me it seems only i can do is prolotherapy to heal ligaments or spine fusion or live with headaches and brainfog forever.
Do you think (just in some paralel, academical universe :P) exercises could fix CCI? I will not consider your answer as a medical advice :P Just opinion in paralel universe.
Hope they are helpful. It depends how severe the CCI is. Highly recommend reading the new research paper by Russek et al that can help you identify level and what treatment options there are. Paper is freely available if you google it. Upper cervical instability.
@@JeannieDiBonHypermobility Russek study is overhyped with almost zero case study and zero good results in treatment. They dont ever use DMX for measuring. Another thing is they say traction devices are bad even tho we have solid new study that says opposite.
www.ncbi.nlm.nih.gov/pmc/articles/PMC10002528
Do any of these exercises work for vertical instability?
What do you mean by vertical? What diagnosis do you have?
When you say these exercises shouldn't create neurological problems, does that include optical migraine?
I’m not able to give personal guidance on here as I don’t know your history or how you did the exercises. But I always say to avoid anything that brings on pain. I recommend getting the headache checked out first.
Hi Jeanie, I have been doing these exercises to help with my CCI. Is this something that can be preformed daily?
Hope they are helping. In terms of frequency - be guided by you. Some people can’t tolerate exercise every day especially around head and neck. Listen to your body.
Hi Jeanie; my neck clicks all over at the bottom of my skull and I cannot turn my head side to side. It feels like gears are stuck in my head, will these exercises help me look left & right.
I’ve had this now for 6 months and it’s unbearable
Sorry to hear. I can’t give any personal advice on here as I don’t know your history. Definitely worth getting it assessed by a physio who understands instability of the neck.
@@JeannieDiBonHypermobility Thank you so much for responding. I'm going to give these exercises as go to help with my CCI.
@@JeannieDiBonHypermobility Are these exercises that can be performed daily?
Can I ask please, how strongly do you feel about the importance of Nucca, assuming that the adjustments themselves are well tolerated?
I’m afraid I don’t know what that is so cannot comment.
(National) Upper cervical chiropractic (adjustments) association ( - in the states... as to the abbreviation - that's how people refer to it here...)
And do you have any particular feeling about the fact - which I was only told after many years of visiting upper cervical Chiropractic specialists - that given that the spinal cord is not much smaller than the space it has to pass through, then vertebrae that are out of place will obstruct the sac around the spinal cord, causing spinal cord or brain stem pressure, specifically in the case of the upper cervical spine. That this brain stem pressure will cause dysautonomia, in addition to constantly activating the sympathetic nervous system, which I was only finally told arbitrarily in june, will specifically preclude healing - of nerves, of all the aggravated stringy muscles, for one.
Or does your licensure prevent you from discussing such things?
In part I'm trying to discover why I was not only denied all this information for so many years, but even denied the knowledge that there was significant explanation that I was being denied, such that medicine was functionally misrepresented, as the impression was distinctly given that there was nothing medicine had to say about my condition, when the relative anatomy of vertebrae and spinal cords and the consequences of spinal cord pressure, were actually already quite well known
I am 23 years old in medical school and i have flatten cervical curve and trapezius muscle spasm and cracking sound when i move my neck and i have been going to physiotherapy for 14 stations but i want to know what exercise are best because i have disc bulge in cervical and lumber scolosis 15 degree they say this all due to muscle weakness
And is flatten cervical curve reversible I struggle alot
And I take muscle relaxant and antiinflamatory I am afraid I might get osteoarthritis
Thanks alot
I need help
Sorry to hear you are struggling. I can’t give any personal guidance on here as I’d need to get a full medical history & assessment.
Isometrics made my problems even worse 😢
For the neck? Yes that’s common.
@@JeannieDiBonHypermobility yup. Made my bobble feeling worse. And now when I look down my whole body starts to sink down probably because my head is going foward without my realizing it.
Thanks very much for your work! But PLEASE 🙏 I don't want to sound rude but could you please focus on exercises ? (Less talk..)
Glad you enjoyed it. But these are education sessions so the first half is education. Try some other non live classes that don’t have education.
@@JeannieDiBonHypermobility thanks very much....like? Best regards from Spain
nooo I love the education aspect! she is giving this information for free so I’m appreciative of it. knowledge is power.
What about both? Maybe in different videos. It happens that sometimes is good to have the exercises "straight", but she spends quite a long time before starting with them.
@@verdadsiempre1435How about you just fast forward through the videos? Context with true hyper-mobility is extremely important. I’m thankful for her wealth of knowledge and proper instruction.