Cranial Cervical Instability (CCI) presented by Dr. David Saperstein
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- Опубликовано: 2 окт 2024
- Cranial Cervical Instability (CCI) presented by Dr. David Saperstein.
- What it is
- How it presents
- Symptoms
- Treatments
Dr. Saperstein has been diagnosing and treating patients with CCI for over 20 years. He has advanced training to read imaging to determine if CCI is present. Contact us to inquire about scheduling. bit.ly/LearnMo...
All those symptoms are bagged up and labelled Fibromyalgia by most general practitioners - prescriptions for NSAID's and Opiods are given and the patient is subsequently treated as a hypochondriac/lazy arse/attention seeker. So long as pharmaceutical companies are allowed to rewards GP's for writing prescriptions, patients will continue to be denied the referral to specialists and treatment they need to start the healing process. This opinion is based on 25 years of chipping away at the brick wall to try and break through to a proper diagnosis of the issue and actual health care.
Spot on, did you ever resolve your issue?
I would like to know more about your issue if you are willing to share. I have been having problems for 2 years and so far I have no answer.
its called delusional parasitosis
Exactly, I do have Hypermobility EDS, But the doctor I went to see a few weeks ago, basically poo-pooed me off as lazy arse and said I can't be sitting around forever and wrote on my medical file that there are jobs I can do. Meanwhile giving me diazepam sent me on my way. I've been getting as far back as 2018 and before. Repeated chronic headaches, from the base of the skull pain going down the neck into the Scapula., shoulders and down arms tingling fuzzy fingers, Tinnitus, pain behind the eyes, Pressure in the skull.. sweating, more than Usual blur vision. dizziness, vertigo and unbalanced walking, and digestive issues. I cant turn my neck left or right and it is very painful doing so. I Realise that this is not going to be easy trying to get any of these local GPs to take my symptoms seriously. I was given a number to self-refer myself to physiotherapy.. She had it in for me from the minute I said I needed a sick note. Even Accused me in words, It became apparent she was here for a sick note. Also said she didn't have time to look at my medical file, but when I checked my medical file she had put EDS not seen on file.
Perfect explanation reminds me of such I’ve had to pursue my life through. Rewarding them GP for writing prescription… is inhumane and they know it. Even specialists hold back proper investigation/treatment. I asked a neurologist for over 2 years to look into my neck, or autoimmune in case since the steroids I got abolished all symptoms and even had me seizures free for about 2 years straight, nothing seizure meds did for 10 years straight. They seen hydrocephalus on my scans over 10 years ago now, at about the 10 year mark my headaches had intensified I had added dizziness and immense pressure in my head. All ignored and just said by DOCTORS and neurologist to be epilepsy. When I landed in the hospital my DOCTOR seen I had huge ventricles… I mean if anyone in this country feels safe with whatever health services they get, they’re probably not seeing things through well enough. I seen 4 ENT Specialists and 4 neurologists. I felt a sense of unproven direction from such people. I’m in Ontario Canada.
I have all of these except digestive issues and headaches. the doctors gave up on me and now I am self diagnosing myself it seems. Thanks for this video
I have all the symptoms except the fast heartbeat (tachycardia). Instead of fast heartbeat what I have is what seems like heart palpitations that come and go. Other than that I have all those symptoms and more but I haven’t been diagnosed. 2 years of doctors and nothing.
Me Too!
How are you now?
No change@@tara7206
I have EDS and a neck traction has made me worse. I am not sure if traction Is the right thing for hypermobile patients, maybe it is even dangerous. I have a lot of pain now , plus almost all these symptoms
All of this can be assessed via palpation...It makes sense to assume we all need to work on all the functions, and have good strong posture.
Can CCI cause Myoclonus ? i have all the symptoms that you mentioned plus the involuntary muscle twitches over the neck and different parts of my body is it common to have myoclonus with CCI ?
I have a reversed curvature in my neck and my main issues are c1 and c2, the muscles at the base of the skull hurt and feel bruised when pressed. I also have issues with tense trapz too. I’ve got vertigo, tinnitus and the dizziness. My heart rate is tachycardic usually around 100+ resting rate. I just don’t know who to see, GP fobbed me off with viral meningitis and all sorts until Chiro did my x ray. Sadly can’t afford the upkeep, would a physio be better?
Find a good Upper Cervical Chiro. Try the Centeno Schultz Orthopedic Specialist who embrace Upper Cervical they're based in Denver and have specially trained real experts in various areas. PT is not always the best because one size does not fit all ! You need the highly specialized who truely have expertise in head & neck injuries and the harm done by long term lack of expert care
@@anitabarnes3114 thank you, sadly I’m based in the U.K. so can’t check out the recommendation, but I’ll do some research for local ones,
Im sorry to say, it may well be that most of your symptoms are rooted in the Upper Cervical distorted alignment, and only the specialised trained in UC know how to help you. The reg PT may do more harm unknowing. This was originally discovered by MDs in London so you ought to be able to find help. Keep searching CCI experts, or upper cervical experts. Warm regards
Who did you go to in London? Looking for a specialist
@@anitabarnes3114do you have experience with that place in Denver? I’m in Kansas and a family member of mine has all those symptoms plus some.
Yes there is so much confusion and distortion on the CCI dx, because MDs fail to address ligaments laxivity, often caused by a severe whiplash or injury that cuased torn ligaments. There is true variables in the ligaments damage. It may be injuries in early age, that go unaddressed for long periods then show up later age and become very severe !!! When the MDs, Neuro's, Ortho's dont have enough knowledge they also do harm and put a patient thru tx's that cause more harm. I learned all of this the hard way. Its a tremendous disservice to both patients and MDs to play the turf war game and claim Chiro's are quacks. Instead like all fields recognize there are good, bad, and incompetent. Those who embrace for example the Upper Cervical highly specialized trained Chiro's really begin to practice genuine medical CARE ! Forget the fraud & bias taught in med schools that push business money making not patient centered medical do no harm care !!!
I have this from a chiropractor violently ripping my neck, 2 years of hell and torture. 6 doctors have blown me off including 2 neurosurgeons
Yeah same with me. My life is absolutely miserable now. I’m in bed nearly 18 hours a day. I’m not sure how much longer I can keep at like this
@@someonewhoisyou4643I understand too well.
I was going to send my 84 year old mother to a chiropractor to see if she has CCI ...maybe not then.
How are you now ?
Have you guys thought about a CSF leak? They can result from chiropractic treatment too and have the same symptoms as CCI
I want to know why neurosurgeons don't use DMX. Flexion extension sucks ass
Thank for making this video, does CCI cause with matter?
You're welcome. Can you please clarify the question?
Thank you, I meant to say, do CCI cause white matter?
CCI patients could have pinch nerve??
may i know why cervical instability occurs in those who never had trauma or accidents and no hypermobility!
Injury during birth.
Where are you located? I have suffered for 17 years with no help. I live in Texas. Please help!
We are located at 1010 E McDowell Rd, Phoenix, Arizona. We often see patients from Texas. Contact us on our website using Klara; a HIPAA-compliant way to communicate if you'd like to inquire more. www.complexneurology.com
What if someone has all the symptoms of CCI but has never been diagnosed with EDS or been in some serious accident? Is it possible to have CCI just by wear and tear alone? Or is it something that can only happen to people with EDS?
Mold can cause it
@@robertwilliams5618 mold can cause this? 😮
@@robertwilliams5618 Can you elaborate further.
Yes, osteoarthritis.
I have degenerative disc disease c5 c6 and c7 gives me terrible symptoms
Me too facing same issues 😢😢
I have eds and I have started with really bad neck pain I have all the symptoms stayed above. My Gp doesn’t really take me serious 🤷🏻♀️
Sorry to hear you're going through that. We do offer second opinions if you're seeking one. Otherwise, you might check out our video on coat hanger pain and Dr. Saperstein's recommendations.
@@centerforcomplexneurology Thankyou I will have a look
Do you do initial telemed consults before visiting from out of state?
Dr Houser at caring medical center in fort Myers Florida is an expert on this!
Been watching him. He's brilliant.
I had a neuro surgeon tell me that the nerves in that area are not important in the body at all
sir one question how many neurologist accept this?? only few?
I think I have EDS , I definitely have CCI and multiple injuries in the spine along with a brain cyst in the arachnoid membrane. let’s just say, I’m fkd up.
The # 1 best treatment I’ve ever had for any of my symptoms related to this is A low force CHIROPRACTOR who specialized in cervical ATLAS ORTHOGONAL style treatment and cranial sacral therapy.
I got the fibromyalgia diagnosis at age 14. Seizures began at about age 21 in my sleep… deemed epileptic. Put on sodium blockers called Vimpat. All so dangerous and undercooked by the very one’s suppose to be specialists I just continue having my fainting seizure spells till death clears such.
Is CCI the implicated if vision goes dark and heart rate spikes when turning one’s head?
I just saw a PT for my neck and talked about this. She said it was considered vascular insufficiency. Basically when you turn your head it's cutting off the blood to the brain when it shouldn't.
You need a DMX, curve correction, tendon dry needling, and prp injections. For so.e odd reason only in America do they shit on regenerative medicine lol. People literally do a course of injection and post xrays shows significant reduction in movement and symptom relief.
Fluoroquinolone ligament damage. Cipro, levoquin, avelox etc.
???
@@DynamicUnreal Ligaments are more prone to tearing due to this class of antibiotic.
@@beutel6116 During or anytime afterwards?
Hi, do you know how long you need to take them to get ligament damage? Thank you.
@@marygleeson352Just one pill can damage you for life.
Stem Cell and PRP does work not crappy physical therapy
How do you know?
Because I have a brain and I can understand the body and how it works...…..(CCI) is a condition were the ligaments that hold the head on the neck are laxed/loose or overstretched. This causes instability, i.e the bones move to much whiles in motion. As you have lots of important nerves their, they become irritated and pinched. If your vegus nerve gets hit, you get POTS and all sort of symptoms were that nerve is going, your heart, headaches, brain fog, digestive issues. The only treatment is to treat these ligaments with regenerative medicine using PRP or Stem Cell therapy. This then tightens and strengthens the ligaments eliminating the instability your nerves don't get pinched no more and then healing can start and symptoms go away. What does Physical therapy do? may give you temp relief like chiropractic that's it!!!!! its not addressing the cause and fixing it!!!!!!! WAKE UP that's why they ask you to keep coming back.........its like taking paracetamol..... THE BEST SCAN TO DETERMINE YOU HAVE CCI IS THE DMX SCAN WHICH SHOWS YOUR BONES IN MONTION. PICL is the only real treatment for CCI.......Surgery is not recommended.
centenoschultz.com/treatment/picl-procedure/
@@DynamicUnreal
Hi, could you please elaborate
U know the ringing is from ijv compression?
howto reverse it
I have Chiari and Dysautonomia and POTS and suspected MCAS (waiting on lab results). I am getting nowhere with my doctors and I have every symptom you speak of. I feel bobbleheaded and tension pulling if they ben over. My Chiari is 14-18cm so no surgery available for me, I was told 20 years ago. I need help. Who do you recommend in Indiana or can we do telehealth with you?
From vax????
I do too. And you are the first that has mentioned bending over issue
@@Kelly-im7ec
I get severe pain in neck about 25-35% percent of the time other times it's milder pain and not as debilitating.
When I get severe neck pain I get headache, nausea and dizziness and occasionally ringing in ear.
Bending over sometimes will trigger the neck pain and headache.
Sorry to hear you are going through that. We aren't aware of anyone in Indiana. We do see patients from out of state often. We have a hotel partnership with set lower rates. We can do telemedicine. However, state medical board regulations require the patient be seen in our office at least once first and once annually for ongoing care. If you'd like to discuss this further, please reach out on our website using Klara; a HIPAA-compliant way to communicate. bit.ly/CranialCervicalInstability
No difference in upright & horizontal MRI??? Look at mine & try to feed me that bull. Grabb-Oakes of 11mm that doesn't show up on supine MRI. Just to start.
Doctors like you are the reason I have spent 16 years in constant, unrelenting pain🤬- Thank God there are a handful out there who actually care.
Hello, would you mind telling me if your upright MRI also involved moving your neck into different positions or was just a straight scan? My upright one showed no real difference, though CXA etc are bad on both. Thank you.
Are you familiar with Dr Hauser at Caring Medical in Fort Meyers Fla . See some of his videos. Brilliant Dr .
He does digital motion x rays amongst other things.
7:15
Thanks
Way too much information and no direct advice or some condensed direction.
Hi there if I have CCI would lifting weights be a bad idea?
Yes please don't do it I didn't know I had cervical instability and I pulled myself up on an out-of-reach ladder at a wave pool (so basically I did a pull up) and I got very disabling symptoms that continued to get worse and worse with ANY physical activity even mild dancing and stretching. I found an excellent upper cervical chiropractor who started saving my life and I am soon going to get prolotherapy at Caring Medical, Ft Myers Fl
Please please let us know how it goes prolotherapy at Caring Medical, Ft Myers Florida. I have been trying to find someone to go with with me to get prolotherapy at Caring Medical for over a year. You need a companion to be accepted. Please what are your symptoms? Are you on the west coast? Who is your excellent upper cervical chiropractor who started saving my life ? What did they do for you? @@JacksonStar4757
Please keep us updated. Where is your chiro located? I’ve been suffering with this since 2007. It’s only getting worse!
Don’t do weights! I just really screwed myself up doing dumbbell front raises and developed tinnitus and ear fullness. It’s not worth it. I’m going crazy now
@@TheFortissimo1 I'm so sorry yes it's horrible when I found my upper cervical chiropractor I was in such bad shape I couldn't even walk half a block without about having a seizure idk if I actually had one or was just close to it and also could not carry a purse, drive my car or even dry my own hair. My UC is in Bridgeville, Pa. After almost 3 months of getting my atlas adjusted I was able to drive, fix my hair and do very minimal work and housework but still cannot lift or carry anything over a few pounds and have to watch my every move. I saw Dr Hauser in Feb he recommended a neck brace which has helped a lot but still not a cure bc anything I do with my arms makes me significantly worse. My first prolotherapy is scheduled the first week of November and I plan on documenting my progress on my channel! I'm a bit scared ofc I heard it's a painful procedure and a rough healing process for some ppl but I have to do something I can't keep living like this I'm only 36 yrs old n feel like I'm 90 and all the other drs wanna do is give u medication they don't even wanna acknowledge that I have a neck injury 😡
Do you know of anyone practicing this type of work in the Minneapolis area?
Unfortunately, we do not. However, we do see patients often from out of state. We also have a hotel partnership for set lower rates. If that is not an option, you can check the Ehlers Danlos Society's website where they have a list of EDS providers and one might treat this.
ask Myle Koby in Maryland. expert radiogists. i saw Dr. Hooly gilmere. then nurse in Ann Hoarbor. then seasonally mailed in scans adn reports to Dr. Farzser Cumings Hendersen sr in Md. then I had ict with Dr. Paolo bologneses in Ocensside. NY.