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I have all but 2 if these… I’ve only ever fainted twice but… should I get this checked out?

I thought my symptoms were due to my Iron Deficiency Anemia and Antiphospholipid syndrome but this might actually be what I have.

Dr. S, I have MCAS and HAT, no EDS or POTS, but a progressive peripheral neuropathy and inflammatory arthritis. Would appreciate any insights you have on this constellation of disorders. Thanks!

l am in the same boat Pain management trying me on this and that always complaining about you taking too much , your meds not getting filled on time suffer with withdrawals , then twisting your words a bout how and when you take it " let them devil 🙏💙Doctors talk to the drug pushers and addicts like that no they baby drug abusers because if they are in the hospital and you dont give them what they want they'll make those emergency room doctors wish they had ! l have seen it !

Thank you for the information. Do you have any other surgeons that you recommend? Thanks.

What about ketoifen? What about heavy metals?

Thank you

Distressing to Severe at least now I know why.

Both are extremely painful

I have two, both relating to bad doctors refusing to do more than bare minimum research. I was told I was “too heavy” to have it. Then when I pressed it, I spoke to multiple doctors about my condition, only for them to shrug it off as weight, my cycle, or just dismiss me after roping every type of the condition into one, rather then recognizing the drastically different distractions. Like… I swear they open Google for two minutes and come back with only AI generated “facts”. The fact that anytime anyone tries to research anything, AI is the very first thing that the likes of Google even shows you. Like, if I didn’t know any better, I would’ve read that and just lived my life without a care, only furthering damage to my body. For context: I’m not even obese, just overweight.

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You have to live with discomfort and pain for the rest of your life and “Just deal with it!”. Or you are being manage by a doctor and don’t qualify for being seen by this specialist or that one.

Can confirm.

That it is EDS - it’s a lazy description. Ehlers Danlos Syndromes are 13 different types. Lumping them all as EDS confuses everyone as much as just saying I have ‘arthritis’.

You always deliver such great content! For those looking for natural allergy relief, I can’t recommend Planet Ayurveda's Allergy Care Pack enough - it really works

All these years and I have to find out about what I (99% have) through a Facebook post my mom saw describing a woman's terrible journey through getting properly diagnosed. Mom told me that this woman's story was MY story and I needed to look up EDS. I did. I'm sitting here almost in tears because it explains every aspect of my life, minus a few other issues related to another health condition I have). Doctors have consistently failed to properly diagnose me all my dang life and here I am disabled and unable to earn a living, still, in my 40s and I see that there is no financial help for me, even if I did magically get a diagnosis. At least I can finally start finding help online through people's experiences and advice. Maybe I can help make my life a little more comfortable.

I cant......score a 9 out of 9 on The Beighton score.....interesting little fact!

I was just finally formally diagnosed with HSD a few days ago, but im feeling a little uncomfortable with how i was assessed. I was told i only have 1 of the 12 points (heel bumps) but i had 9 years of braces to fix my teeth which i was specifically told was a high and narrow pallet issue, but my doctor said that history doesnt count because he needed to assess with what he could visually see. My skin stretches to the required minimum, my skins so soft it just splits sometimes, i have 3 abdominal hernias but my ultrasound to confirm them is upcoming, ive got symptoms of pelvic floor prolapse but my OBGYN referall is 8 mouths out to confirm. I had the stretch marks prior to puberty but since im in my twenties now they say they cant assume they where there before hand. Many things. I had expected getting the HSD disagosis, but i thought after the hernias and obgyn could weigh in that it coukd be updated to HEDS, but i was told no. I strongly believe a different doctor would have diagnosed me differently or that after those appointments confirmed stuff it would be heds :/ not sure what to do going forward

I had seizures for a year from 3 years old to 4 years old. Had three in that year. All grand mal seizures. When I had my first p.o.t.s episode, I got up to hug my mom. Only to pass out in my mom’s arms as I was standing, and started shaking like a seizure. There where a couple other times after that where I just stood up, passed out and started seizing up. Was wake through it the last two times. It was scary Dx happened in the bathtub for one. The other had me stuck between the toilet and tub while my body was just seizing. Hurt so bad trying to fight everything in my body to keep me up and even try to move me from the spot. Since introducing cannabis. I haven’t had those episodes. Besides my body going heavy and shaking a bit if I’ve pushed myself to hard through out the day.

Then maybe you should consider accepting insurance instead of making people pay out of pocket in a state where there isn’t many specialist for EDS? Kind of selfish and greedy of you don’t you think?

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I can

A. I can

I can’t, but my son can. I do have a few tricks, though. I can roll it, turn it over both ways, make a 3 leaf clover & do a few other fun things that nobody else I know can do. 😎

Theres more symptoms than this

How fast can a critical situation requiring Intubation come on when you have Myasthenia Gravis

The list goes on … pain yeh that about covers it

Eds has cuased me kyphoscoliosis and now this monster

Do you happen to know of a good MSAS doctor in Utah?

Can IST arise from autonomic dysfunction, pots or vice versa?

A lot of people don’t understand HSD. Cuz if you “google” hypermobility it just states being “double jointed” or “flexible” But I have been diagnosed with hypermobility in 85% of my body and I can’t even begin to explain the type of health problems and pain it has caused me over the years. Basically none of my limbs stiffened and connected the way the should have as I aged. It’s been hell most days.

They also said there is only one medicine in the world that can help me if you comment back I can send you a picture of the box they sent me the medicine can cause calcium buildup in the eyes and cause blindness and a whole bunch of likely side effects in calcium buildup in the kidneys and other places to and it’s most likely not likely

For reference, I had to get my gallbladder removed because it was malformed and it was stretchy and it was holding a whole bunch of bone fat filled to the brim

I just got diagnosed with EDS and my body can’t absorb certain vitamins. It just builds on top of my bones and I can stretch like everyone and my organs turn into rubber overtime which I’ve never heard any ones say on any of these videos anything about that?

CIDP

So no real solution

nah most of are just fibromyalgia or menopause not any eds or simply unhelthy person like whole life person normal and then around age 35 she is suddenly eds? ofcourse not, its menopause nearing hormone issue or fibromyalgia or something else. yes fibromyalgia means all eds stuff lol yes before normal person so only extreme not just fibromyalgia should be eds not common problems and if you look at eastern european or asian people like everyone is hypermobile and with nice skin velevet alike lol so this means nothing, it is normal.

Compression stockings now there is evidence from random controlled studies . Please look into compression stockings for pots patients

The heart thing is just a small percentage …why oversimplify this

Can Burning mouth syndrome be linked or caused by CCI ?

My daughter has been addicted to salt since she was quite young… we used To have to take the salt shaker off tables at any restaurant… I thought she was a mermaid! 🧜‍♀️ nope… she has pots and EDS! So happy when i see anyone spread awareness of these conditions!!! ❤❤❤❤❤❤

Demetrius Field

Thank you for this video! How long can a syncope be prolonged for? (If people don't allow them to lay flat) Is there anything someone who has these issues can do to lessen likelihood of it happening?

Brown Dorothy Lee Nancy Martinez Eric

Thank you for validating people who have been living this life. I think you value the true meaning of "patient" or those who endure long suffering.

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Martin Melissa Rodriguez Sharon Davis Thomas

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Thank you for the work you do ❤