I'm really more intrigued into breaking down symptoms and the effects of living with EDS versus HSD. I have EDS and my daughter has HSD(could be pushed up to EDS awaiting more test results) yet she presents with far more severe symptoms and comorbidities than I ever did at her age. Supposedly HSD is a less significant form of EDS so its difficult to wrap my mind around.
It's not clear where you are located but we do see patients from out of state and even from out of the country. Please reach out to us if you'd like to inquire about scheduling on our website using Klara. Otherwise, The Ehlers Danlos Society has a list of providers by region, state, and city.
I'm really more intrigued into breaking down symptoms and the effects of living with EDS versus HSD. I have EDS and my daughter has HSD(could be pushed up to EDS awaiting more test results) yet she presents with far more severe symptoms and comorbidities than I ever did at her age. Supposedly HSD is a less significant form of EDS so its difficult to wrap my mind around.
Bendybodies podcast tries to explain the difference in symptoms of EDS & HSD.
I’m having a hard time finding a doctor that can evaluate me for hEDS. I do have a pending test through invitae the 92 panel.
It's not clear where you are located but we do see patients from out of state and even from out of the country. Please reach out to us if you'd like to inquire about scheduling on our website using Klara. Otherwise, The Ehlers Danlos Society has a list of providers by region, state, and city.