This is so validating and encouraging from a doctor. EDS & POTS for me, it took a long hunt to be heard & treated after lots of “you’re too complicated.” FB groups are lifesaving
If EDS was correctly diagnosed early, many patients would know what they should avoid doing to not injure themselves. Yet we do things that put us in danger of disability because doctors thing that Eds is rare, especially if you are a male, and you should be super flexible in evry joint to have it.
80 years old here. Was this many years old when I learned from RUclips that being “double jointed” had some medical explanation. Only last month mentioned to my PCP about being “double jointed” and he said “Ehlers-Danlos“. Lucky to have this guy for my PCP. Can someone teach AI to spell Danlos? they want to spell danilo’s
This is so validating and encouraging from a doctor. EDS & POTS for me, it took a long hunt to be heard & treated after lots of “you’re too complicated.” FB groups are lifesaving
Thank you for validating people who have been living this life. I think you value the true meaning of "patient" or those who endure long suffering.
If EDS was correctly diagnosed early, many patients would know what they should avoid doing to not injure themselves. Yet we do things that put us in danger of disability because doctors thing that Eds is rare, especially if you are a male, and you should be super flexible in evry joint to have it.
80 years old here. Was this many years old when I learned from RUclips that being “double jointed” had some medical explanation. Only last month mentioned to my PCP about being “double jointed” and he said “Ehlers-Danlos“. Lucky to have this guy for my PCP. Can someone teach AI to spell Danlos? they want to spell danilo’s