My Handbag Keeps Me Alive | Living Differently

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  • Опубликовано: 14 авг 2018
  • When Lauren was diagnosed with pulmonary arterial hypertension as a child, she and her mother Tracy knew just how serious it was. The family had already experienced tragedy at the hands of the disease with Lauren’s father passing away due to the condition in 2010. After receiving her diagnosis Lauren underwent treatment and now, she pumps an experimental drug into her heart - which involves carrying the pump around with her everywhere she goes. Despite facing a shortened life expectancy, Lauren lives life in the present without inhibitions. She’s training to become a nurse to help people just like herself.
    Producer: Joe Roberts, James Thorne
    Editor: James Thorne
    Director: Elie Khadra
    Series Producer: Charley Sutton
    Executive Producer: Alex Morris
    Head Of Production: Adam Mudditt
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Комментарии • 2,5 тыс.

  • @sunyyshinee
    @sunyyshinee 5 лет назад +3053

    "I can't control what happens to me, only how I respond to it" wow okay we all need to learn from that

  • @rachelel9087
    @rachelel9087 5 лет назад +5520

    "I'm not scared, because I feel like there's going to be a time when I need to be scared, and now is not that time"
    Wow. As someone with multiple chronic autoimmunes that can end up fatal....wow. This hit me hard. Truly. And I don't say that about ANYTHING. Thank you for that Lauren.

    • @sarawilkinson6766
      @sarawilkinson6766 5 лет назад +38

      Rachel El I agree, it reminds you to be in the moment. Incredible young woman.

    • @shania209
      @shania209 5 лет назад +18

      Very meaningful

    • @anetten425
      @anetten425 5 лет назад +9

      How old is she?

    • @fantazjaz7448
      @fantazjaz7448 5 лет назад +16

      I wish I had watched that phrase when I nearly died a year ago and agree she is so strong EDIT: STAY STRONG GIRL

    • @gabrielleandrew542
      @gabrielleandrew542 5 лет назад +7

      So wise so profound what an amazing young woman she should be made a nurse quick so she can mentor others

  • @strangelove4267
    @strangelove4267 5 лет назад +1826

    She’s currently doing well at SFSU, I became a friend of her’s in history class.

    • @jesusandstephforever5733
      @jesusandstephforever5733 5 лет назад +74

      How old is she? Thank God is is doing well.

    • @BobCindyL
      @BobCindyL 5 лет назад +77

      Thank you for the update. :)

    • @briannabergman8381
      @briannabergman8381 5 лет назад +42

      Thank you so much, I was worried!

    • @krishmajoshi
      @krishmajoshi 5 лет назад +33

      @@jesusandstephforever5733 she's 18 or 19

    • @ThisIsYourOnlyWarning
      @ThisIsYourOnlyWarning 5 лет назад +46

      Oh thank you so much for the update! Please let her know there’s a lot of people checking on her and wishing her the best?

  • @RomyKane
    @RomyKane 5 лет назад +748

    My heart broke into a thousand pieces when her mom started talking about her life expectancy and her voice cracked 💔 wishing her the best

    • @adhc8560
      @adhc8560 4 года назад +23

      That woman's suffering shows in her eyes. First watching her husband die, and now watching her daughter suffer and knowing she may lose her too. I hope so much a cure comes in time to help this beautiful girl - so smart, so lovely, so mature and thoughtful.

    • @craigtaylor4131
      @craigtaylor4131 4 года назад +6

      I hope she lives a long and happy life

    • @jammier6483
      @jammier6483 3 года назад +9

      She is now a nursing student at SFSU however her sister now has it.

    • @alittleofeverything4190
      @alittleofeverything4190 3 года назад +3

      She has already lived longer than expected. Her mom lives with this fear every night she goes to bed. They are all role models for us who live basically pain free every day. Love life! Peace!

    • @rawdata678
      @rawdata678 3 года назад

      @@jammier6483 so its genetic. Hidyopathic means "we dont really know"

  • @JodieLouise98
    @JodieLouise98 5 лет назад +1837

    She is so mature and has a deep understanding of life at such a young age. Very inspiring!

    • @toaster3183
      @toaster3183 5 лет назад

      Mature means shes not acting her age

    • @cacti3884
      @cacti3884 5 лет назад +6

      @@toaster3183 No? Mature means you're mature lmao

    • @_little.sam_
      @_little.sam_ 5 лет назад +1

      @@toaster3183 it's immature, I think you got it mixed up

    • @toaster3183
      @toaster3183 5 лет назад

      @@_little.sam_ yeah my dad said mature meabs not acting their age lolollololol

    • @_little.sam_
      @_little.sam_ 5 лет назад +2

      @@toaster3183 ma·ture
      adjective
      1.fully developed physically; full-grown.

  • @burymedeep-be7dm
    @burymedeep-be7dm 5 лет назад +1840

    And I was whining the last 6 hours of my shift last night cause water got in my boot and my sock was wet. You're pretty tough.

    • @carlocolombo8768
      @carlocolombo8768 5 лет назад +25

      burymedeep 2093 6 hours, whats your job? And why wasnt the sock dry?!

    • @burymedeep-be7dm
      @burymedeep-be7dm 5 лет назад +82

      Random PERSON I clean machines in a large bakery. So we blast chemicals and water and a water boot filled upand i didnt bring extra pair of socks.
      The stuff I complain about is so inconsequential compared to some this girl is really amazing

    • @iampringlestm8603
      @iampringlestm8603 5 лет назад

      @@burymedeep-be7dm Seriously?

    • @iampringlestm8603
      @iampringlestm8603 5 лет назад

      @Twins Gaming Seriously?

    • @iampringlestm8603
      @iampringlestm8603 5 лет назад

      SERIOUSLY????

  • @3brendan933
    @3brendan933 5 лет назад +223

    she's the kind of girl people write books about... so sad she has to deal with it but i think it makes her a wonderful person, i hope life turns out good for her

  • @soccerboy1447
    @soccerboy1447 5 лет назад +759

    I feel like shit for complaining about anything now. Shes done so much better than me with her sickness (idk what to call it). I hope she lives a long happy life with no pain

    • @ry9134
      @ry9134 5 лет назад +31

      A Salty Fry you shouldn’t feel bad. we all have days where we don’t fell good. i know that other people have it worse but that doesn’t mean that we should feel bad for going through a human bodily function, pain.

    • @jennajames5446
      @jennajames5446 5 лет назад

      If you never know, I feel condition usually fits

    • @jacobramonebennett-watkins2234
      @jacobramonebennett-watkins2234 5 лет назад +8

      You have a right to complain I don't understand this mindset... Everyone has a right to complain about a shitty situation vs. someone else's shittier situation.
      Now if you over-complain then yes thats a different story, but every human being has the right to complain regardless of the extremeness of the injury or diagnosis

    • @larissaleigh4488
      @larissaleigh4488 4 года назад +7

      Ok but like, just because someone has worse problems than you that doesn't make yours invalid.
      If you are broke and cant pay your rent, sure, its not as bad as being homeless but its still a valid problem and you can still complain or be worried about it even though its not as bad as some other problems in the world.
      The " oh i shouldn't complain about anything because there are others who have it worse" mindset is illogical and really annoying

  • @tanyaak9382
    @tanyaak9382 5 лет назад +1957

    I hope no one ever steals her bag 😫

    • @isabell9269
      @isabell9269 5 лет назад +63

      @@mariannalove4880 LOL? WHAT THE HECK THAT AIN'T FUNNY!

    • @MOCHIOKIE-xx5ts
      @MOCHIOKIE-xx5ts 5 лет назад +47

      It's not funny Marianna this is a serious thing if you can't take something seriously than why comment something that can offend others.

    • @lizalvarezllamas
      @lizalvarezllamas 5 лет назад +89

      I know, I thought the same thing because where I live is very insecure so if that happened to her that would be a disaster, but luckily she has her dog so she can feel safer

    • @IvanBraginski13
      @IvanBraginski13 5 лет назад +3

      @@MOCHIOKIE-xx5ts dont shit on them they didn't make the comment

    • @aliasanew3398
      @aliasanew3398 5 лет назад +6

      there are some really sick people in this world.

  • @lclark715
    @lclark715 5 лет назад +470

    She has an old soul. Very inspirational

  • @missiesmith949
    @missiesmith949 3 года назад +97

    My adoptive daughter was born with only half an heart, basically. She had her 1st open heart surgery at 2 HOURS old. She has had several more since then. Both of her parents died from the same condition before my girls 4th bday.
    These girls are amazing survivors. They can do anything. They can take over the world.

    • @PanDeSal.28
      @PanDeSal.28 3 года назад +1

      🙏🙏🙏

    • @jerilyn9683
      @jerilyn9683 3 года назад +1

      God bless you 🙏 ❤

    • @badlandschugs2042
      @badlandschugs2042 3 года назад +1

      No one asked

    • @badlandschugs2042
      @badlandschugs2042 3 года назад

      @Meme Guy! Coming from a guy with the word meme in his name he doesn't really live up to it does he no

    • @kingtut7213
      @kingtut7213 3 года назад +8

      @@badlandschugs2042 stop being cringe

  • @Jenna-lo1yp
    @Jenna-lo1yp 5 лет назад +1870

    *I'm a dumbass. I thought It was some self-centered teen saying she can't live without her handbags 😂 but boy was I wrong! God Bless Her!*

  • @alien-ann
    @alien-ann 5 лет назад +2713

    Moral of the story don't steal people's handbags

  • @minalaine9692
    @minalaine9692 5 лет назад +2098

    Why do good and inspiring people like you get to have lives like that

    • @k.o.h8446
      @k.o.h8446 5 лет назад +205

      Lulu Laine I think its the other way around. People who get lives like that *are* inspiring.

    • @lodoesstuff3594
      @lodoesstuff3594 5 лет назад +98

      Because people with those lives learn to be kind. The ones without those lives don't learn how they feel.

    • @varpu3379
      @varpu3379 5 лет назад +2

      Ootko suomalaine?

    • @Kinobambino
      @Kinobambino 5 лет назад +50

      The people who struggle the most and lift themselves up are often more powerful than those who lead easy lives

    • @moniquegrove9809
      @moniquegrove9809 5 лет назад +14

      Because they grow to be good and inspiring people in there life and they leave an impact on us to be better people

  • @kendallsummary971
    @kendallsummary971 5 лет назад +701

    This must be so hard for the mom I can't even imagine 😣

    • @Angie-ry7ql
      @Angie-ry7ql 5 лет назад +1

      Yeah:(

    • @amongusinreallife3
      @amongusinreallife3 4 года назад +5

      Um you think it’s hard for her mom ITS HARD FOR HER

    • @jasonstarrising
      @jasonstarrising 4 года назад

      iloveyoutkp
      No u

    • @Unknown70896
      @Unknown70896 4 года назад +1

      Kendall Summary hard to imagine why you’d describe your situation the way you just did on social media and you basically saying and making it sound like your mums dying and your enjoying your coke in the next room... maybe get of the computer and go wipe dat arse. That what family is for but your is obviously irrelevant in yourself to make it this open.

    • @lucy7559
      @lucy7559 4 года назад

      But she copes so well

  • @ArtisticPawsStickerEmporium
    @ArtisticPawsStickerEmporium 5 лет назад +53

    "I'm not scared, because I feel like there's going to be a time when I need to be scared, and now is not that time"... ty Lauren

  • @fullmetalgaara2
    @fullmetalgaara2 5 лет назад +702

    What a wise young woman. I'd listen to her podcast.

  • @patm934
    @patm934 5 лет назад +804

    36 years old very young,but managed to stay strong for his beautiful wife and daughter

    • @katiehansen5931
      @katiehansen5931 5 лет назад

      Pat M my uncle joe wasn’t married to Aunt Tracy when he passed

    • @katiehansen5931
      @katiehansen5931 5 лет назад

      I’m Lauren’s cousin

    • @liamhoskinson4505
      @liamhoskinson4505 5 лет назад +1

      @@katiehansen5931 how old is Lauren, out of curiosity

    • @katiehansen5931
      @katiehansen5931 5 лет назад +3

      Aliya Hoskinson 18 she will be 19 in December 2 days after Christmas her and my dad have the same birthday the crazy thing is we both have heart conditions but I’m adopted 😂

    • @katiehansen5931
      @katiehansen5931 5 лет назад +1

      Aliya Hoskinson we are both 18

  • @pufca5856
    @pufca5856 5 лет назад +40

    “I can’t control what happens to me, but I can control my reactions of it.” Smart and beautiful girl.

  • @amyevans5209
    @amyevans5209 5 лет назад +125

    My nephew has this he's had the pump since January 2019 and he's doing amazing and it will be out in August of this year! Keep fighting baby girl! Y'all are AMAZING!!!

    • @gooselaughter5149
      @gooselaughter5149 4 года назад +6

      @Axiss Playz But the father had it too...

    • @salj.5459
      @salj.5459 4 года назад +4

      Axiss Playz The only dumbass here is you

    • @MiSSJUiCEBOXXLiVE
      @MiSSJUiCEBOXXLiVE 4 года назад +3

      Axiss Playz Hows that possible when the dad had it?🤔

    • @FOC-xu2kw
      @FOC-xu2kw 3 года назад +2

      Amy Eva's how can your nephew survive without the medicine in the pump? There is no cure for this disorder.

    • @dynishaspalding220
      @dynishaspalding220 3 года назад

      @@MiSSJUiCEBOXXLiVE mp

  • @its_brandeeb
    @its_brandeeb 5 лет назад +520

    I cried along with her mom. I don't know that I'd be strong enough to hear that about any of my boys. She is such a brave young woman and very grounded

    • @rachelel9087
      @rachelel9087 5 лет назад +6

      That whole family has been through a lot. Her father died, and her mother has been intubated at some point (scar on her neck) Jesus :/

    • @Snyde91
      @Snyde91 5 лет назад +6

      Username does not check out.

  • @MrsznewyawkRN
    @MrsznewyawkRN 5 лет назад +608

    My mom had to use this device but with a different medications cause she had heart failure this past october she got put on the transplant list and received a heart an we still have her today THANKFULLY.

    • @yamilet4746
      @yamilet4746 5 лет назад +7

      Mrsznewyawk that’s amazing thank god you have a mom 😊😊😊

    • @user-lv6is9bc6v
      @user-lv6is9bc6v 5 лет назад +6

      thank god and her being resilient!!

    • @Kinobambino
      @Kinobambino 5 лет назад +2

      That's beautiful. Send her my love and keep on loving life 😊

    • @gatooncracko527
      @gatooncracko527 5 лет назад +1

      That’s a miracle. Wow, I am so happy for you.

    • @Chris-fe1kx
      @Chris-fe1kx 5 лет назад +2

      Mrsznewyawk godbless your mom, stay strong 🙏🏻🙏🏻

  • @jagdiskheidi2261
    @jagdiskheidi2261 5 лет назад +718

    When I grow up I will find a cure to this

    • @ijeomaaao
      @ijeomaaao 5 лет назад +78

      @@bjornnielsen7613 come on...... let her try to save people. Stop being sarcastic.

    • @ijeomaaao
      @ijeomaaao 5 лет назад +15

      @@bjornnielsen7613 damn... okay

    • @roxyndra
      @roxyndra 5 лет назад +32

      please do. I believe!

    • @lizziehodder7590
      @lizziehodder7590 5 лет назад +30

      @@bjornnielsen7613 honestly let the girl have dreams

    • @lizziehodder7590
      @lizziehodder7590 5 лет назад +30

      @@bjornnielsen7613 yeah there is disapointments but if she wants to find a cure she can try

  • @moonlightpalace8038
    @moonlightpalace8038 3 года назад +9

    " I cant' control what happens to me only how I respond to it " ....this girl is wise beyond her age ... sending loads of love

  • @deborahk5433
    @deborahk5433 5 лет назад +4664

    Its important to educate ourselves about these things, I learn so much when I watch these mini docu.. You're sooo strong baby girl ❤️❤️❤️

    • @porterhouse5502
      @porterhouse5502 5 лет назад +2

      DeeDee Nicole 123 nice virtue signaling

    • @feero9680
      @feero9680 5 лет назад +3

      Doc.*

    • @skyeperry1923
      @skyeperry1923 5 лет назад +1

      Yeah

    • @emily.6903
      @emily.6903 5 лет назад +7

      DeeDee Nicole 123 maybe don’t call her baby girl?

    • @briana_patrick
      @briana_patrick 5 лет назад +12

      @GamingwithJamie Plays it's a term of affection you dumbass

  • @stephaniegrant8164
    @stephaniegrant8164 5 лет назад +1845

    Such a fighter. Sending my prayers ❤️

  • @MirceaD28
    @MirceaD28 5 лет назад +550

    how much money we pour into war, weapons, and how much in research? Just sad

    • @secondswell
      @secondswell 5 лет назад +15

      It wouldn't matter anyway for the wider spread disease's like cancer even if they found a cure they would probably not release it cancer is a multi billion dollar industry. For diseases like hers that are not wide spread they probably would release a cure if they had one people are greedy.

    • @dogvtf
      @dogvtf 4 года назад +18

      @@secondswell bruh theres probably already a cure for cancer. it's probably just being covered up cuz governments gotta get that green.

    • @secondswell
      @secondswell 4 года назад +3

      @@dogvtf that's pretty much what I said.

    • @olgabagildinskaia7415
      @olgabagildinskaia7415 3 года назад +15

      @@dogvtf there can't be a cure for cancer because cancer is not just one illness. There are numerous types of cancer, each reacting differently to different types of treatment. So that's just a naive thing to think.

    • @kittenmimi5326
      @kittenmimi5326 3 года назад +2

      @@olgabagildinskaia7415 cure for 'cancer' which is not just a single thing would be.... expecting a single cure to be able to solve many many diseases at obce. That'd be wishing for some magic there lol
      About treatments that might help, those probably already exist but dtill in trial with questiomable results, not getting widespread enough to be useful or people exploiting that by jacking uo thr prices so much almost nobody will be able to afford it

  • @KaileexLove
    @KaileexLove 5 лет назад +46

    My heart goes out to her and her family. I can’t even imagine losing my husband and then my daughter. What a strong family

  • @IRISistibleMakeup
    @IRISistibleMakeup 5 лет назад +450

    Lauren's strength is incredible and I wish the best for her but can we also talk about her mother? She lost a husband and now her daughter is going through the same disease. I wish her all the best, hope her daughter still has many many years to live.

  • @Loug522
    @Loug522 5 лет назад +2318

    I hope she gets better!

    • @audrey9947
      @audrey9947 5 лет назад +183

      There is no cure.

    • @jacktangent
      @jacktangent 5 лет назад +161

      She said in the video there wasn't a cure. As disappointing as it is - she will probably never get better.

    • @gummyfishlegz
      @gummyfishlegz 5 лет назад +42

      There isn’t a cure...

    • @anetten425
      @anetten425 5 лет назад +116

      I think the person means that they hope it gets easier or they fined a cure.

    • @lilava7326
      @lilava7326 5 лет назад +15

      Me too... Poor girl...

  • @janyou17
    @janyou17 5 лет назад +17

    At her such a young age she is doing all those treatment preparations for herself. Her perseverance and will to survive is amazing..

  • @karssgovroom
    @karssgovroom 5 лет назад +505

    She looks like a mix between Joey King and Chloe Grace Moretz

  • @fishypoop
    @fishypoop 5 лет назад +355

    I hope nobody takes that bag. She is so inspiring...I’m speechless

    • @corypaws6741
      @corypaws6741 5 лет назад +6

      Like, steals it? Because I'm pretty sure it's attached to her.

    • @utkarshmishra7416
      @utkarshmishra7416 5 лет назад +35

      @@corypaws6741 no like a bag snatcher thief, where they snatched your bag and run away.

    • @kawaiipinkukittyangel7957
      @kawaiipinkukittyangel7957 5 лет назад +1

      @@utkarshmishra7416 i Hope that doesnt happen......

    • @devon1777
      @devon1777 3 года назад

      she wears it as a crossbody, as long as she does that no one can take it

    • @Char10tti3
      @Char10tti3 2 года назад

      @@devon1777 won't stop someone who really wants the bag unfortunately

  • @billybrown8919
    @billybrown8919 5 лет назад +245

    i hope she has a long and good life!

  • @g.s777
    @g.s777 4 года назад +1

    Poor girl man she so sweet doesn't deserve this at all.

  • @gregoryoh2758
    @gregoryoh2758 4 года назад +4

    She is a brave warrior, I have been diagnosed for over 12 years already and currently use the same drug bur I use it in my stomach, may God keep her

  • @guipacker
    @guipacker 5 лет назад +185

    I never comment on videos but WOW. This girl is like a breath of fresh air. She transformed my day today. Thank you.

  • @boogieg8763
    @boogieg8763 5 лет назад +57

    i have cancer and i had to have thins tube in my chest for almost 2 years and it was hell. i would cry and be so depressed just about the tube. you are so strong lauren! i look up to you. praying!

  • @ooommm4024
    @ooommm4024 2 года назад +1

    All I can say is go for it! I followed a similar path, growing up with multiple dangerous medical problems, and eventually went back to college to become a registered nurse. Despite extreme pain, nearly dying from a rare, life threatening vascular defect called Dunbar Syndrome, and being 1 semester away from graduating, I refused to let the circumstances keep me down. This placed promoting quality of life in perspective.

  • @LTilli313
    @LTilli313 3 года назад +2

    So this girl real does adapt to everything. Did I hear there was a long wait list for a service dog, so she just got a dog and a trainer to him herself? That's amazing and I love her attitude.

  • @linolium4814
    @linolium4814 5 лет назад +384

    I also have a tube in my chest :)
    (I have short gut syndrome and I'm on TPN)
    It's nice to see that you're not alone

    • @rachelel9087
      @rachelel9087 5 лет назад +36

      I have no tube, but a port. She does a kickass job at prepping it.

    • @christinewilkinson6059
      @christinewilkinson6059 5 лет назад +17

      Mik P I was on tpn for 2 years from issues with gastroparesis. Good luck and many prayers for you💚

    • @namineutane5932
      @namineutane5932 5 лет назад +10

      good luck! I hope you stay strong! bless you and your family.

    • @mauragrier6958
      @mauragrier6958 5 лет назад +6

      I also have a broviac in my chest for TPN/IV fluids :).

    • @ingoingmage9207
      @ingoingmage9207 5 лет назад +4

      What is short gut syndrome?

  • @berkeuslu
    @berkeuslu 5 лет назад +122

    She is smart and beautiful. I hope they will find a cure someday.

  • @hannahb2479
    @hannahb2479 5 лет назад +5

    It's so hard not to cry when you hear about this stuff :( 😭

  • @magicalcadet2323
    @magicalcadet2323 5 лет назад +1

    Awww poor girl I hope she has a good life

  • @ljubicastojanovic2660
    @ljubicastojanovic2660 5 лет назад +55

    5:16 she has a great attitude, this sentence should be a quote somewhere 😊

    • @mimi-fl1ys
      @mimi-fl1ys 5 лет назад +1

      Ljubica Stojanovic It's already a quote by someone else.

    • @negg7046
      @negg7046 5 лет назад

      There's a quote along the lines of what she said.

  • @chigasaki06
    @chigasaki06 5 лет назад +87

    Watching these videos reinforces how fragile life can be. I love her perspective..."do it now," time waits for no-one and we can pass at any moment. Praying for her strength and a cure.

  • @Nodexis
    @Nodexis 4 года назад +11

    I don’t know her but I love her she’s very strong ♡ ♡ ♡

  • @HarleLeviathan
    @HarleLeviathan 3 года назад +1

    What a brave beautiful soul, good luck to you little lady

  • @EmoPurpleTurtle17
    @EmoPurpleTurtle17 5 лет назад +51

    It's nice she can be so positive about a difficult situation and not let it stop her from doing what she wants in life.

  • @crinsuphalak4868
    @crinsuphalak4868 5 лет назад +47

    I’m glad that there is a documentary about this. I have been diagnosed with this condition about 11 yrs ago. It’s hard. I feel your pain and all that you go through. There is time that I’m afraid but I tell myself that I have to be strong not for just my family but for me.

    • @crinsuphalak4868
      @crinsuphalak4868 5 лет назад +3

      Thank you so much for putting this out there. Everyone need to learn and know about this rare condition.

    • @ughkook
      @ughkook 5 лет назад +3

      You are a strong person and I wish you lots of love and happiness.
      I'm thankful you and I exist in this moment together!

  • @ValerieMarieM
    @ValerieMarieM 5 лет назад +1

    "I can't control what happens, only how I respond to it." That is profound. So glad this young woman is able to live her life with such an amazing outlook.

  • @yunabrooks
    @yunabrooks 5 лет назад +10

    She‘s sooooo beautiful!

  • @lunamoon7218
    @lunamoon7218 5 лет назад +41

    My bff has crohnes disses and she has to have a tube going into her stomach and she's always in the hospital. God bless the people who are like this girl and my friend, these people are true angles 😇

    • @nyla-amarasmit8117
      @nyla-amarasmit8117 5 лет назад +2

      I have crohn too. I have portocath. Permanent iv tube
      I have benign braintumor. Chronic pain high dose morfine. Sleep disorder and kidney damage.
      Not out of bed since oct 2017.
      Now renting a wheelchair when i need to go to hospital.
      Have surgery again soon.
      I hate being this ill. Girl in video is amazing. She lives. I dont.
      Im stuck. And have only my 2e dad
      😢😢😢

    • @sabanoor885
      @sabanoor885 5 лет назад +2

      Amarah smit stay strong I hope things get better for you❤️ I have Ulcerative Colitis and it’s such a debilitating disease as is Chrohns I had to have an emergency surgery because I had a toxic megacolon

    • @nyla-amarasmit8117
      @nyla-amarasmit8117 5 лет назад +1

      @@sabanoor885 oh noo.. hope you are now bit better after surgery?
      Crohn is bad.. but for me chronic pain is way worse.
      I cant do anything. Not lay on any normal bed. Not sit in every chair. Not walk. A normaly pretty simple operation was so painfull (surgeon was an .... so she didnt believe me no pain doctor was consulted) that i wanted to die. Not b/c of my shitty life no only b/c of the pain.
      Also sleepdisorder is also horrible.
      But all combined... 😢😢i cant...
      Thanks be strong. Hope you do have good care! 💖🙏💖🙏

  • @mje19D
    @mje19D 5 лет назад +86

    Lauren is an incredible young woman. So inspiring and strong. I hope she somehow reads this comment and smiles. Thank you for your bravery and charm. :)

  • @gotchufam2964
    @gotchufam2964 4 года назад +2

    She’s an amazing girl, she can change the the world with her dreams, her positivity and her response to the things that get in her way, nothing can stop her, she is strong she will get through this, she is an inspiration to everyone. If she can push through despite the situation she’s in why can’t you?
    Bless her soul I wish her luck on her journey.

  • @marissajolie6857
    @marissajolie6857 5 лет назад +15

    Omg shes beautiful

  • @bex8832
    @bex8832 5 лет назад +144

    Such a lot for a young girl to go through! Very brave girl, absolute credit to her parents. I hope she continues to keep well ❤

    • @gummyfishlegz
      @gummyfishlegz 5 лет назад +1

      Bex 88 she cant get well..... there isn’t a cure...

    • @bex8832
      @bex8832 5 лет назад +4

      @@gummyfishlegz Yes I know I watched the video! Read what I've written - I said I hope she continues to keep well... 🤦🏻‍♀️

    • @jasonstarrising
      @jasonstarrising 4 года назад +1

      Bex 88
      There is no cure
      She will never get well

  • @cutelilly1000vedios
    @cutelilly1000vedios 5 лет назад +100

    Omg she’s so pretty!
    She looks like an actress!

    • @Pineapple85247
      @Pineapple85247 5 лет назад +3

      An actress can look like anything.

    • @amayahaynes244
      @amayahaynes244 5 лет назад

      LSDWI, so what you got from all of this video is that shes pretty, she could die any second and your worrying about her looks shame on you.

    • @kevinsidarta8392
      @kevinsidarta8392 5 лет назад +4

      @@amayahaynes244 ayyee chill she is just saying that lil girl is pretty dats all.theres nothing wrong with dat comment wtf.

    • @Tasnim33
      @Tasnim33 5 лет назад

      Like Chloe Grace I thought

    • @jacyannc7381
      @jacyannc7381 5 лет назад +1

      @@Tasnim33 me too!!!

  • @nattcattt
    @nattcattt 5 лет назад

    Wow. What a mature young girl. She has a great outlook on life and has dealt with her situation so gracefully. I admire her

  • @zhairesimon2089
    @zhairesimon2089 5 лет назад +32

    fight hard and NEVER GIVE UP♥️♥️ Lauren

  • @simply3663
    @simply3663 5 лет назад +21

    My mom has the same thing. And when ever I see the pump it makes me cry. So I was crying through like the whole thing.😭😭🙏🏻🙏🏻

  • @vampiricly
    @vampiricly 5 лет назад +344

    this isn’t nearly as deep as the other comments but she looks kinda like Chloe Grace Moretz??

  • @thedustiev1
    @thedustiev1 3 года назад +1

    What an inspiring young woman. Her sunny outlook & her ability to grab life with both hands & not think too far ahead amazes me. I want to try & be more like this🙏

  • @Jesussavedme
    @Jesussavedme 5 лет назад +9

    In heaven we will all be perfect 💖 No more desiese no more pain no more suffering I wish her the best she's so sweet and beautiful inside and out God bless you sweetie

  • @nicoleperal8236
    @nicoleperal8236 5 лет назад +75

    *Im so sorry for people with problems like this 😕😢*

  • @jordanmahoney2765
    @jordanmahoney2765 5 лет назад +7

    As someone who has a congenital heart defect and missing pulmonary valve, I could relate a lot to what she was saying. It was really inspiring to hear how optimistic she is. I really look up to and admire her for this.

  • @amelielarouche6840
    @amelielarouche6840 5 лет назад

    Life is all about her...very touching.

  • @chloeb2222
    @chloeb2222 4 года назад +1

    How in the world is she so chill

  • @cm2ca
    @cm2ca 5 лет назад +40

    Such a beautiful, articulate young lady!!!💜💙💚

  • @vipinjamwal1522
    @vipinjamwal1522 5 лет назад +13

    This is not easy to live such a life she is a real fighter

  • @mirandachristina3412
    @mirandachristina3412 3 года назад +1

    Thank You Lauren. What a cool and mature young lady you are!

  • @zaarthelizard2728
    @zaarthelizard2728 5 лет назад +40

    After hearing that “as time goes on, the body becomes immune to the medicine” that just tells that the brain is weird, it knows that it needs it to stay alive (which is its primary directive) but it also gets rid of it. :\

    • @tanvikhare9710
      @tanvikhare9710 3 года назад +9

      Actually, it doesn't "know" anything. There's chemical reactions triggering of terminating other chemical reactions. For its functioning, our body isn't conscious....... fascinating isn't it

    • @skmk88
      @skmk88 3 года назад

      It’s a survival mechanism. If something bad gets into the system, it can absorb it and become immune to it. Sadly it’s a double edged sword

  • @de3414
    @de3414 5 лет назад +3

    She just made me realize not to be scared and to make the most of life.

  • @MissNebulosity
    @MissNebulosity 5 лет назад +13

    You can tell that she is a very detail-oriented, intelligent girl by the way she speaks.

  • @graciegymnasticsgirl3438
    @graciegymnasticsgirl3438 5 лет назад

    That girl will inspire me for life. Stay strong Lauren!

  • @emma-leyahcharity8080
    @emma-leyahcharity8080 5 лет назад +2

    I’m literally crying she’s so inspiring I love these videos she needs to stand strong she’s beautiful

  • @esxoanddszo5391
    @esxoanddszo5391 5 лет назад +16

    *_U are so brave and I love ur personality! U go girl!!!_*

  • @IMADALBASRII
    @IMADALBASRII 5 лет назад +64

    My dear. My thoughts with you and with all children and kids who facing all hardships. Think this life is a journey and never think you are stopped actually you might faster than other we live how long don’t make different we all will leave

  • @miamarie4484
    @miamarie4484 5 лет назад

    What a strong, beautiful girl. I hope she lives better. She’s so inspirational to all. Stay strong girl!❤️

  • @lucyespinoza-bl3sc
    @lucyespinoza-bl3sc 5 лет назад

    this girl is absolutely amazing, no like, wow, her positive outlook on everything is just literally mind boggling

  • @vneziagabriell151
    @vneziagabriell151 5 лет назад +107

    You are a total mature girl

  • @iamherenowandgoneforever5120
    @iamherenowandgoneforever5120 5 лет назад +14

    *imagine someone just dash by and snatch the bag from her* that's just so scary to think of

    • @n_u001
      @n_u001 5 лет назад

      the tube just rip straight out and she just drops dead on the floor oh well

    • @jasonstarrising
      @jasonstarrising 4 года назад

      hello oofpuke
      A black guy

  • @mariahawkins8876
    @mariahawkins8876 5 лет назад

    This young woman is wise beyond her years. So intelligent and kind. I pray she has a long successful life.

  • @fabulousomelette5168
    @fabulousomelette5168 5 лет назад +2

    As soon as this video started I literally started to cry

  • @flintdances7713
    @flintdances7713 5 лет назад +26

    She's such a fighter! It must be extremely hard to accept that she will become immune to the drug soon and will probably pass away prematurely. She has so much more courage than me! Then again her condition is so much more severe.
    I'm 14 and I was told that I'm slowly going deaf from my frequent ear infections. They said there's a pretty good chance I'll be more than half deaf by the time I'm 30.

    • @maeannsacay4552
      @maeannsacay4552 5 лет назад +3

      I'm 16 but I have a permanent infection in my right ear and it happened when I was just 6 yrs old...I'm a little bit deaf so when someone wants to say something secret to me, they have to whisper in my left ear...oh and i have to come to see a doctor everyday when my right ear starts to hurt or there's a liquid flowing out

    • @ig-nat-ius1891
      @ig-nat-ius1891 5 лет назад +3

      Well there's a big Deaf community out there waiting for you! I know a lot of people who feel hearing loss = deaf gain. There's language, jokes, culture, movies. It's going to be okay.

    • @laurenspencer2670
      @laurenspencer2670 5 лет назад +1

      Ophelia The Sergal you’re so strong girlie!! This is Lauren from the video💜sending love

    • @flintdances7713
      @flintdances7713 5 лет назад +1

      @@laurenspencer2670 Thank you!

  • @patrickdan9274
    @patrickdan9274 5 лет назад +36

    You are an inspiration for many people out there...

  • @tripleravenwolf
    @tripleravenwolf 5 лет назад

    Braver than I will ever be. One of my doctor friends battled this since age 18, he passed 4/13/2018 age 34. I hope they find a better way for you to outlive him.

  • @hazzaplayz808
    @hazzaplayz808 2 года назад

    Such an articulate,level headed and awesome young lady

  • @N3RDYG0GGLES
    @N3RDYG0GGLES 5 лет назад +10

    Wonderful girl and good doggo. It's so good that she's able to surpass some of the limits her condition brings, and that she's staying positive wherever she can. This is one of those times where saying that someone with a condition is "inspiring" is really accurate.

  • @angeldust3676
    @angeldust3676 5 лет назад +295

    I would die if I went out without my bag because I'm a brittle asthmatic some of you may not know what brittle asthma is but it's when your lungs are permanently partly closed so I'm basically always having a asthma attack of a normal asthmatic so when I do have an attack it completely closes and I can't breathe at all so I have my inhalers in my bag all the time one day I didn't get them out quick enough and I fainted I almost died that day I have almost died twice in just 3 years

    • @Hannah-io9jb
      @Hannah-io9jb 5 лет назад +35

      cat girl This is terrible. I have never heard of this kind of condition. I prayed for your healing and may you be well. I believe and hope that you will be well and whole one day. May you also be safe and live a long happy life. Xx. *hugs*

    • @YskarAlbumLuna
      @YskarAlbumLuna 5 лет назад +14

      oh damn i know the feeling of when the lungs close completely, it's completelly terrible, worst feeling in the world, that's sad af

    • @marisa8565
      @marisa8565 5 лет назад +6

      Im really sorry for u idk what to say but i hope u live a long life

    • @mindfucker8515
      @mindfucker8515 5 лет назад +10

      Maybe wear one around your neck too, just in case you forget the bag

    • @kjh-h7162
      @kjh-h7162 5 лет назад +6

      You sound like you need to have an oxygen tank

  • @anyabrandon4991
    @anyabrandon4991 5 лет назад

    This made me cry so much, she's so brave - such a fighter. My sister died of this at 3 years old and it's such a heartbreaking thing to have

  • @keirasworld0967
    @keirasworld0967 3 года назад

    She’s so strong and brave she deserves the world

  • @givemefood1616
    @givemefood1616 5 лет назад +13

    I have a complex congenital heart condition and have had 3 open heart surgeries , and although I don’t have a pump myself I do what it’s like not to know what’s going to happen in the future with my condition especially since it’s palliative. I really sympathise with you, you are so brave and I hope new treatment will soon be found to help not only you but people with the same condition 💓

  • @euphoriajk5487
    @euphoriajk5487 5 лет назад +17

    🙏❤ prayers. She's so positive and so inspirational. I realized that I keep complaining about all the stuff that annoys me, and I just keep complaining and complaining that I don't realize the blessings that I recieve. Like I easily break down and stuff for the smallest things and she just helped me. May God bless her and her family. I will continue to pray for you and everyone else who is going through tough times. You guys aren't alone and that God will always be with you. 🙏❤ Thank you for helping me realize this. God bless!❤🙏

  • @anonymousandcool
    @anonymousandcool 5 лет назад

    This girl makes me cry. So young but SOO medically literate... not just about herself but about others. ALREADY headed to nursing school. I hope she can live a long healthy life somehow

  • @kinchowangmo4144
    @kinchowangmo4144 5 лет назад +3

    She is such a positive spirit. “Live each day like last day” thanks for the advice 🙏

  • @RenegadeTimes
    @RenegadeTimes 5 лет назад +5

    Brilliant young woman. She's practical and intelligent. Mature beyond her years.
    Wish you the best Lauren. Wonderful mom.

  • @jackwhitbread1876
    @jackwhitbread1876 5 лет назад +7

    She's so positive hope they find a cure

  • @Babiisicko
    @Babiisicko 5 лет назад

    what a beautiful soul i wish her nothing but happiness and pray that someday they find a cure

  • @tek512
    @tek512 3 года назад +2

    This is a dang tough girl, and pretty wise to boot. I can only hope she's still doing well.