TIMESTAMPS: 00:00- Teaster/Intro 00:35 - To The Hospital 01:06 - Parking/Break From IV’s 01:48 - At The Hospital 02:52 - GES Prep/Radioactive Oatmeal 03:40 - Gastric Emptying Study (GES) 05:52 - Post GES 07:14 - Why I Needed The GES 08:42 - Other GI Diagnoses/Symptom Triggers 11:57 - How It’s Affected My Nutrition 12:26 - How My GES Went 15:52 - The Results 19:41 - Treatment Options 25:29 - Final Thoughts 27:23 - Outro
When I did my ges test I wasn't in a machine for two hours! I ate my radioactive eggs then they scanned my stomach every 30 minutes- half hour for four hours. I guess different hospitals do it differently
Here I am with Emetophobia and Hypochondria, and even I have it a lot easier in life. You are just one of many people struggling immensely with several chronic illnesses. :( You are so strong dear!! Always know that! I'm not sure how I'd manage with such illnesses considering my own immense mental struggles, plus I also have Atrial Tachycardia. But I'm so aware that not everyone has it easy, many have a daily struggle and battle to go through their life, to just live and continue forward. I have my own mental struggles, and thankfully just a minor heart condition, but I'm still very blessed and a privileged person, and always thankful for my blessings. You still holding onto you faith is admirable. I'm Catholic, you are in my prayers that I always pray for those struggling in this world. Hope you have more easier days ahead dear! God bless you! ✝️🙏
Claire, you're always so brave and a reminder to never take my health for granted. Sorry to hear about your stomach, I hope somethibg can be done to help you 💜
I recently am going through the exact same thing. I have both too. I'm a type 1 diabetic. And all stages of neuropathy. You're positivity gives me strength to keep going. Even on hard days so thank you more than I can ever express. 😢
Hi Claire, I’m really sorry to hear about your challenges with your health. I’m a fellow EDSer, hypermobile type. I get it! Hoping you find peace and Gods love, amidst the pain. 🙏💕Heidi
Thank you so much for this video. I just had my GES. It showed severe gastroperesis. 1 hr - 0 % 2 hr - 8 % 3 hr - 10 % 4 hr - 21 % My GP also thinks that somedays I have rapid gastric emptying because I have those sometimes somedays (not on the test day). I couldnt rap my head around how it could be possible until I watched your video. Thank you.
Amazing camera work I don't know how you do all the great pictures why you're Getting tested Amazing attitude you have And smile Wish I had your attitude Seems like mine is crying and fear I'll be praying for both of us on our health journeys
You cant conquer what you dont confront, you cant confront you dont identify..glad you were able to identify your problem. Thank you for sharing your story 🙏🏾
I have cEDS and we suspect gastropareisis and dumping syndrome but I haven't gone through the testing yet. I am glad you got some answers and hope your team can come up with some things to help you feel better. Sending love from a fellow 🦓
Thanks for this video. I appreciate it immensely. I have a test in October. Eggs, toast and jelly with 4 oz water. I have gastritis duodenitis and a hiatal hernia. Mystery problem that stumps doctors. All of a sudden I am hungry as heck and if I don't eat immediately I feel hypoglycemic but nothing ever shows up in blood work when I fast. The kicker... I have diarrhea when this episode happens. All I get from any doctor is, " Oh, that's odd" Me: Really? I thought so, too. That is why I am asking. 19 yrs. of suffering with this problem. So, I am on Pantoprozole 2x a day for 10 weeks. Along with Famotodine and carafate. I hope life will be kinder to you. It's hell suffering with me. I can't imagine what you go through. Good luck.
I went through quite a rough time with vomiting nearly everything and anything that went down orally but also severely fatigued, severe dizziness and a high craving for salt which oddly enough helped with the nausea and vomiting (from October 2021 to January 2022). I ended up getting a scope done for my stomach (found an ulcer and severe stomach inflammation along with finding that the lining mildly infected with some bacteria) and a gastric emptying study (showed mild end of rapid gastric emptying with slow intestinal transit). Considering that I have diabetes and fairly severe dysautonomia, the gastric emptying study results weren't much of a surprise for me. However, I continued to have problems with vomiting despite trying to treat the found issues with my stomach and intestines. It wasn't until I saw my endocrinologist who was able to figure out why I had so many problems. Come to find out I had adrenal insufficiency (below normal cortisol production). Hydrocortisone ended up helping to resolve most of my problems although I still have diabetes, dysautonomia, severe CRPS, central pain syndrome, Sjogrens syndrome along with a new diagnosis that I was gifted with by neuro in July 2023-> CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis).
Hi the verb is to LIE down (to "lay" is for example to lay the table/lay down one's life/lay a towel on the beach/lay down plans etc) -🌻I enjoy ur vlogs ur so sweet🌻👋
Fellow Eds and pots person here... it took me a good 8 years to get somewhere with mine. I was told I had dumping syndrome. My symptoms have got so much worse over last few months... ive started being sick when I'm asleep...and I've lost a lot of weight. I get the shakes and extreme exhaustion aswell. I do have vitamin b12 and d deficiency which I've had for years. Only problem when you have EDS everything else comes with it unfortunately! The list just keeps adding up with all these diagnosis. Even though it sucks now at least you have answers. Here you eat scrambled egg on toast 🤢
Hi dear! Yes I know exactly what you mean about all the diagnoses adding up, it's like a domino effect. They do it with egg whites on toast here too, but I can't eat egg whites due to histamine intolerance from MCAS. Most foods with histamine send me into anaphylaxis! Take care and I hope you get help to better manage your symptoms! 💜
Hi, Isabelle! Thanks for sharing your journey! I have a few questions. Forgive me if they seem strange. Of course, feel free to not answer them if you don't feel comfortable doing so. But if you do, maybe you could make another Q&A sometimes, if you ever run out of ideas for videos. 1. Have you ever been to a Christian faith healer or called a priest or pastor to pray for you? I know that you're a Christian, and the Bible does recommend us to call the elders of the Church to anoint us and pray for us when we are ill. 2. Do you have a list of all the herbal treatments you've tried over the years? I recall having asked this on Instagram some time ago, and you said you were going to DM me about it (or something like that), but I don't think you ever got to it because your illness flared up (perfectly understandable, don't worry about it). 3. Do you have any other relatives besides your mother? 4. Did you ever have any other pets besides Anne Purkins? 5. I am not familiar to how things are in the USA (as I am from Europe). Does the state give you any sort of remuneration, like a pension or something, for being chronically ill / disabled? Wishing you better times ahead and sending positive vibes! God bless you!
Hi Lucian! I'd be happy to do another Q+A, and I've actually been meaning to do an updated one where I'll answer everyone's questions I've gotten including yours! I'm so sorry about not getting back to your message, my inboxes are always overloaded and I can never keep up! Thank you for understanding. Take care =)
I go for my test today. I've been sick over a year testing for h pylori... negative... now gastroparisis ....no anti nausea meds that taste horrible today...my thoughts are so scattered today. They are already playing with fire by saying no coffee. Wish me luck on getting some sort of answer for why I'm nauseous daily for a year and a half.
🎉Going for my gastro emptying test in 2 weeks. Recently found out i I have h pylori and saw two different gastro doctors with 2 very different approaches and quite honestly I don't trust either one very much. One did a stool test right away and gave me pain meds and nausea meds The nausea meds made me constipated and feeling sicker so i discontinued them. The second doctor never gave me any pain meds and thinks it's gastroparesis. Except i got the results a few days afterwards and it is h pylori. I have an upcoming abdominal scan and the upcoming gastric emptying test.😢
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TIMESTAMPS:
00:00- Teaster/Intro
00:35 - To The Hospital
01:06 - Parking/Break From IV’s
01:48 - At The Hospital
02:52 - GES Prep/Radioactive Oatmeal
03:40 - Gastric Emptying Study (GES)
05:52 - Post GES
07:14 - Why I Needed The GES
08:42 - Other GI Diagnoses/Symptom Triggers
11:57 - How It’s Affected My Nutrition
12:26 - How My GES Went
15:52 - The Results
19:41 - Treatment Options
25:29 - Final Thoughts
27:23 - Outro
When I did my ges test I wasn't in a machine for two hours! I ate my radioactive eggs then they scanned my stomach every 30 minutes- half hour for four hours. I guess different hospitals do it differently
Here I am with Emetophobia and Hypochondria, and even I have it a lot easier in life. You are just one of many people struggling immensely with several chronic illnesses. :( You are so strong dear!! Always know that! I'm not sure how I'd manage with such illnesses considering my own immense mental struggles, plus I also have Atrial Tachycardia. But I'm so aware that not everyone has it easy, many have a daily struggle and battle to go through their life, to just live and continue forward. I have my own mental struggles, and thankfully just a minor heart condition, but I'm still very blessed and a privileged person, and always thankful for my blessings. You still holding onto you faith is admirable. I'm Catholic, you are in my prayers that I always pray for those struggling in this world. Hope you have more easier days ahead dear! God bless you! ✝️🙏
Thank you for your prayers! That's great you can remain grateful amidst your struggles! God bless you and take care =)
Claire, you're always so brave and a reminder to never take my health for granted. Sorry to hear about your stomach, I hope somethibg can be done to help you 💜
Thank you! 💜
I recently am going through the exact same thing. I have both too. I'm a type 1 diabetic. And all stages of neuropathy. You're positivity gives me strength to keep going. Even on hard days so thank you more than I can ever express. 😢
Hi Claire, I’m really sorry to hear about your challenges with your health. I’m a fellow EDSer, hypermobile type. I get it! Hoping you find peace and Gods love, amidst the pain. 🙏💕Heidi
Thank you so much for this video. I just had my GES. It showed severe gastroperesis.
1 hr - 0 %
2 hr - 8 %
3 hr - 10 %
4 hr - 21 %
My GP also thinks that somedays I have rapid gastric emptying because I have those sometimes somedays (not on the test day). I couldnt rap my head around how it could be possible until I watched your video. Thank you.
Amazing camera work I don't know how you do all the great pictures why you're Getting tested Amazing attitude you have And smile Wish I had your attitude Seems like mine is crying and fear I'll be praying for both of us on our health journeys
Thank you!
Thank you for being so brave sharing your story. Im scheduled in a few days here, so your video was very informative.
You cant conquer what you dont confront, you cant confront you dont identify..glad you were able to identify your problem. Thank you for sharing your story 🙏🏾
Glad to hear see that you are doing okay
Thank you
@@LoveHardFightHard :)
I have cEDS and we suspect gastropareisis and dumping syndrome but I haven't gone through the testing yet. I am glad you got some answers and hope your team can come up with some things to help you feel better. Sending love from a fellow 🦓
Thank you so much! I hope you get the answers and help you need! Lots of love 💜
May you always be healthy
Thank you for posting your results I just got diagnosed with gastroparesis in May starting have symptoms why back as December
Thanks for this video. I appreciate it immensely. I have a test in October. Eggs, toast and jelly with 4 oz water. I have gastritis duodenitis and a hiatal hernia.
Mystery problem that stumps doctors. All of a sudden I am hungry as heck and if I don't eat immediately I feel hypoglycemic but nothing ever shows up in blood work when I fast. The kicker... I have diarrhea when this episode happens. All I get from any doctor is, " Oh, that's odd"
Me: Really? I thought so, too. That is why I am asking. 19 yrs. of suffering with this problem.
So, I am on Pantoprozole 2x a day for 10 weeks. Along with Famotodine and carafate.
I hope life will be kinder to you. It's hell suffering with me. I can't imagine what you go through. Good luck.
I went through quite a rough time with vomiting nearly everything and anything that went down orally but also severely fatigued, severe dizziness and a high craving for salt which oddly enough helped with the nausea and vomiting (from October 2021 to January 2022). I ended up getting a scope done for my stomach (found an ulcer and severe stomach inflammation along with finding that the lining mildly infected with some bacteria) and a gastric emptying study (showed mild end of rapid gastric emptying with slow intestinal transit). Considering that I have diabetes and fairly severe dysautonomia, the gastric emptying study results weren't much of a surprise for me.
However, I continued to have problems with vomiting despite trying to treat the found issues with my stomach and intestines. It wasn't until I saw my endocrinologist who was able to figure out why I had so many problems. Come to find out I had adrenal insufficiency (below normal cortisol production).
Hydrocortisone ended up helping to resolve most of my problems although I still have diabetes, dysautonomia, severe CRPS, central pain syndrome, Sjogrens syndrome along with a new diagnosis that I was gifted with by neuro in July 2023-> CFS/ME (chronic fatigue syndrome/myalgic encephalomyelitis).
Hi the verb is to LIE down (to "lay" is for example to lay the table/lay down one's life/lay a towel on the beach/lay down plans etc) -🌻I enjoy ur vlogs ur so sweet🌻👋
Thank you! 💜
Fellow Eds and pots person here... it took me a good 8 years to get somewhere with mine. I was told I had dumping syndrome. My symptoms have got so much worse over last few months... ive started being sick when I'm asleep...and I've lost a lot of weight. I get the shakes and extreme exhaustion aswell. I do have vitamin b12 and d deficiency which I've had for years.
Only problem when you have EDS everything else comes with it unfortunately!
The list just keeps adding up with all these diagnosis.
Even though it sucks now at least you have answers.
Here you eat scrambled egg on toast 🤢
Hi dear! Yes I know exactly what you mean about all the diagnoses adding up, it's like a domino effect. They do it with egg whites on toast here too, but I can't eat egg whites due to histamine intolerance from MCAS. Most foods with histamine send me into anaphylaxis! Take care and I hope you get help to better manage your symptoms! 💜
@@LoveHardFightHard I Have Gastroparesis as well,I’m in so much pain!
@@abbykuusisto6417 I'm sorry, the pain and nausea and sickness is awful! Stay strong
Hi, Isabelle! Thanks for sharing your journey!
I have a few questions. Forgive me if they seem strange. Of course, feel free to not answer them if you don't feel comfortable doing so. But if you do, maybe you could make another Q&A sometimes, if you ever run out of ideas for videos.
1. Have you ever been to a Christian faith healer or called a priest or pastor to pray for you? I know that you're a Christian, and the Bible does recommend us to call the elders of the Church to anoint us and pray for us when we are ill.
2. Do you have a list of all the herbal treatments you've tried over the years? I recall having asked this on Instagram some time ago, and you said you were going to DM me about it (or something like that), but I don't think you ever got to it because your illness flared up (perfectly understandable, don't worry about it).
3. Do you have any other relatives besides your mother?
4. Did you ever have any other pets besides Anne Purkins?
5. I am not familiar to how things are in the USA (as I am from Europe). Does the state give you any sort of remuneration, like a pension or something, for being chronically ill / disabled?
Wishing you better times ahead and sending positive vibes! God bless you!
Hi Lucian! I'd be happy to do another Q+A, and I've actually been meaning to do an updated one where I'll answer everyone's questions I've gotten including yours! I'm so sorry about not getting back to your message, my inboxes are always overloaded and I can never keep up! Thank you for understanding. Take care =)
Your a medical miracle!!
I go for my test today. I've been sick over a year testing for h pylori... negative... now gastroparisis ....no anti nausea meds that taste horrible today...my thoughts are so scattered today. They are already playing with fire by saying no coffee. Wish me luck on getting some sort of answer for why I'm nauseous daily for a year and a half.
I'm 🙏 for you
Hello, what is the type of x-ray for stomach paralysis?
🎉Going for my gastro emptying test in 2 weeks. Recently found out i I have h pylori and saw two different gastro doctors with 2 very different approaches and quite honestly I don't trust either one very much. One did a stool test right away and gave me pain meds and nausea meds
The nausea meds made me constipated and feeling sicker so i discontinued them. The second doctor never gave me any pain meds and thinks it's gastroparesis. Except i got the results a few days afterwards and it is h pylori. I have an upcoming abdominal scan and the upcoming gastric emptying test.😢
Hopefully it’s h pylori which is treatable! I had it at one point. Good luck with everything! 💜
You sound like me...yes... I eat one meal a day because of the nausea. I can eat that meal because of my gummy. Oh my gosh the constipation.
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Ummm there’s no way u have all these things wrong with you. And what are pods
How can you say she can not have these things wrong with her? She obviously does as she has been diagnosed by her physicians.