Love Hard Fight Hard
Love Hard Fight Hard
  • Видео 85
  • Просмотров 225 954
NJ Feeding Tube Placement - Hospital Inpatient - Real & Raw Vlog
Sorry for the low volume! I will try my best to fix that but I record on my old phone which has issues. Thank you for your patience!
Vlog of my NJ (nasojejunal) feeding tube placement. I had to have an NJ placed bedside during my 2+ week hospital admission for a severe sustained hypertensive crisis and severe malnutrition due to gastroparesis, exocrine pancreatic insufficiency and cyclic vomiting syndrome caused by hyperadrenergic POTS, Ehlers Danlos (vEDS) and Sjogren's autoimmune disease.
I debated for months on weather to upload this here as it's very raw and real. It was rough, but as always I'm keeping it real and transparent. I think patients and family/caregivers going through or e...
Просмотров: 7 998

Видео

Admitted For Hypertensive Crisis & Malnutrition + GJ Feeding Tube Surgery! Hospital Vlog
Просмотров 25 тыс.Год назад
This vlog was from my hospital admission in August 30-September 23' for my worst hypertensive crisis emergency, as well as severe malnutrition from gastroparesis and pancreatic insufficiency. They got to the conclusion that the malnutrtion was putting extra stress on my already damaged heart and organs so they placed an NJ feeding tube as a trial. Since it was so helpful they placed a surgical ...
A Wholesome SELF CARE & NATURE RESET 🌱 💚 Days In My Life Vlog
Просмотров 1,9 тыс.2 года назад
An aesthetic, wholesome self care days in my life vlog! With much needed time spent in nature, earthing, gardening and sowing seeds, reading, healthy comfort food (vegan & gluten free what I eat in a day), making natural hypoallergenic skincare, meditation, time spent with Ann Purkins (my cat) and more! 💜 Love y'all!!! 💜 OFFICIAL MERCH 🥰: www.bonfire.com/store/love-hard-fight-hard/ NEW GOFUNDME...
The Loving Hut For My 35th Birthday! 🥳 💞
Просмотров 1,3 тыс.2 года назад
Day in the life birthday vlog! Haircut reveal and dinner at my favorite vegan restaurant The Loving Hut for wholesome vegan food and vegan cupcakes to celebrate my 35th birthday with close friends/family!! My heart was so full 💜 Thank you to those of you who made it to my last minute get together and thank you to those who offered to vlog for me! I appreciate you so much! Biiig hugs!! OFFICIAL ...
How To Survive Gastroparesis & Cyclic Vomiting 🤮 My Tips
Просмотров 1,7 тыс.2 года назад
Hi loves! This video I share my tips on getting through a cyclic vomiting and/or gastroparesis flare! I'm obviously speaking a lot about vomiting in this video, and what has helped me personally. If you're bothered by talk of vomit then I suggest you skip this one! Hope this is helpful for my fellow warriors out there who're struggling with vomiting on a regular basis. Lots of love! ♡♡♡ *Portab...
Finally Had My Gastric Emptying Study - Diagnosed With Gastroparesis AND Dumping Syndrome?!
Просмотров 9 тыс.2 года назад
Finally ad My GES (Gastric Emptying Study) at the hospital. I was officially diagnosed with Gastroparesis AND Dumping Syndrome after battling the symptoms for over 10 years. #GastricEmptyingStudy #Gastroparesis #DumpingSyndrome #GastricEmptyingTest TIMESTAMPS: 00:00- Teaster/Intro 00:35 - To The Hospital 01:06 - Parking/Break From IV’s 01:48 - At The Hospital 02:52 - Radioactive Oatmeal 03:40 -...
Easter Treat Hunt For Ann Purkins ♡ + I Keep Having Anaphylactic Reactions! 😨 Days In My Life Vlog
Просмотров 1,2 тыс.2 года назад
I keep having severe allergic reactions from my mast cell activation being flared up. I'm having a hard time figuring out all my triggers. I had to stop gabapentin and am having some withdrawal symptoms. Threw an Easter treat hunt for Ann Purkins, made a low histamine, gluten free vegan (mostly) carrot cake and planted some herbs for Earth Day! =) 𝐀𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐱𝐢𝐬 (𝐚𝐧-𝐚-𝐟𝐢-𝐋𝐀𝐊-𝐬𝐢𝐬) 𝐢𝐬 𝐚 𝐬𝐞𝐫𝐢𝐨𝐮𝐬, 𝐥𝐢𝐟...
Rushed By Ambulance To ER For Anaphylaxis! 🚑 Emergency Hospital Trip - Days In My Life Vlog
Просмотров 4,3 тыс.2 года назад
I had an ambulance ride to the emergency room for another anaphylactic episode where I couldn't breathe and had severe hypertension with bad cyclic vomiting that required IV meds and extra IV hydration. I had an outpatient GI appointment scheduled to discuss TPN, but it didn't go to plan. 𝐀𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐱𝐢𝐬 (𝐚𝐧-𝐚-𝐟𝐢-𝐋𝐀𝐊-𝐬𝐢𝐬) 𝐢𝐬 𝐚 𝐬𝐞𝐫𝐢𝐨𝐮𝐬, 𝐥𝐢𝐟𝐞-𝐭𝐡𝐫𝐞𝐚𝐭𝐞𝐧𝐢𝐧𝐠 𝐚𝐥𝐥𝐞𝐫𝐠𝐢𝐜 𝐫𝐞𝐚𝐜𝐭𝐢𝐨𝐧. 𝐓𝐡𝐞 𝐦𝐨𝐬𝐭 𝐜𝐨𝐦𝐦𝐨𝐧 𝐚𝐧𝐚𝐩𝐡𝐲𝐥𝐚𝐜𝐭𝐢...
A Magical Weekend!! 🔥 🥰 The Best Gluten Free Vegan Chocolate Chip Cookies ♡ Days In My Life Vlog
Просмотров 6022 года назад
OFFICIAL MERCH: www.bonfire.com/store/love-hard-fight-hard/ PAYPAL DONATIONS: www.paypal.me/claireizabel ♡Vegan, Gluten Free Chocolate Chip Cookies - aheartfulharvest.wordpress.com/2022/03/28/fool-everyone-chocolate-chip-cookies/ ..::Related Vlogs::.. *Baking Vegan, Gluten Free Pumpkin Oat Muffins - ruclips.net/video/t-u0vdwoGA0/видео.html *Getting My IV Pump Vegan Birthday Cookout!! 🍔🎈 Day In ...
Medical Supplies Unboxing & Organization + POTS & Other Updates | Love Hard Fight Hard ♡
Просмотров 1,5 тыс.2 года назад
An informal IV medical supplies unboxing and organization vlog! Also a little update on my POTS, mast cell activation and more. Lots of love, dears! ♡♡♡ #MedicalSuppliesOrganization #MedicalSuppliesUnboxing #POTS #MastCellActivation ..::Related Vlogs::.. *Severe High Diastolic Blood Pressure Safe Foods - Days In My Life Vlog - ruclips.net/video/H11_FB2iW2s/видео.html *Frustrations Scheduling My...
Come Thrifting With Me! + Frustrations Scheduling My GES - Days In My Life Vlog ♡
Просмотров 6362 года назад
Sharing my trouble scheduling my Gastric Emptying Study (GES). Plato's Closet trip again to sell some clothes, but also to also thrift this time! Had my routine cardiology appointment at the dysautonomia / POTS clinic. I'll share an update from my visit in my next vlog! Lots of love, my dears!! ♡♡♡ #POTS #DysautonomiaClinic #PlatosCloset #MedicalFrustrations .::Related Vlog::.. *Making Vegan Su...
How To Be Positive Through The Hardest Times - 5 Tips ♡
Просмотров 1,4 тыс.2 года назад
How To Be Positive Through The Hardest Times - 5 Tips ♡
What I Eat In A Week - Plant Based 🌱 | Love Hard Fight Hard ♡
Просмотров 9722 года назад
What I Eat In A Week - Plant Based 🌱 | Love Hard Fight Hard ♡
Target Haul + Christmasy Vlog - Days In My Life | Love Hard Fight Hard ♡
Просмотров 9472 года назад
Target Haul Christmasy Vlog - Days In My Life | Love Hard Fight Hard ♡
I Have To Wear An Eye Patch + Making Vegan Burgers 🍔 | Love Hard Fight Hard ♡
Просмотров 2,8 тыс.2 года назад
I Have To Wear An Eye Patch Making Vegan Burgers 🍔 | Love Hard Fight Hard ♡
Heating Pad For Chronic Pain - Hompres Smart Heating Pad Review | Gifts For Chronic Illness
Просмотров 8483 года назад
Heating Pad For Chronic Pain - Hompres Smart Heating Pad Review | Gifts For Chronic Illness
Hospital For Chest Xray + Change In My MCAS Severe Asthma Treatment | Love Hard Fight Hard ♡
Просмотров 1,6 тыс.3 года назад
Hospital For Chest Xray Change In My MCAS Severe Asthma Treatment | Love Hard Fight Hard ♡
First Time Making S’mores! + Hardest 1,000 Piece Puzzle Ever 🧩 & Taste Testing Theo Chocolate!
Просмотров 4123 года назад
First Time Making S’mores! Hardest 1,000 Piece Puzzle Ever 🧩 & Taste Testing Theo Chocolate!
Some Of My Safe Foods For Cyclic Vomiting + Severely High Blood Pressure - Days In My Life Vlog
Просмотров 7423 года назад
Some Of My Safe Foods For Cyclic Vomiting Severely High Blood Pressure - Days In My Life Vlog
Baking Vegan Gluten Free Pumpkin Oat Muffins | Love Hard Fight Hard ♡
Просмотров 5093 года назад
Baking Vegan Gluten Free Pumpkin Oat Muffins | Love Hard Fight Hard ♡
Cyclic Vomiting Syndrome Week In The Life Vlog - TW: VOMIT | Love Hard Fight Hard ♡
Просмотров 41 тыс.3 года назад
Cyclic Vomiting Syndrome Week In The Life Vlog - TW: VOMIT | Love Hard Fight Hard ♡
34th Birthday Vlog! 🎂🎈🥳 | Love Hard Fight Hard ♡
Просмотров 6793 года назад
34th Birthday Vlog! 🎂🎈🥳 | Love Hard Fight Hard ♡
Medical Clearance For Surgery Take 2 - Am I Stable Enough Yet? | Love Hard Fight Hard ♡
Просмотров 5573 года назад
Medical Clearance For Surgery Take 2 - Am I Stable Enough Yet? | Love Hard Fight Hard ♡
I didn’t See This Coming! 😥 + Cyst Ultrasound Results | Love Hard Fight Hard ♡
Просмотров 7283 года назад
I didn’t See This Coming! 😥 Cyst Ultrasound Results | Love Hard Fight Hard ♡
Hospital For Another Ultrasound On My Complex Ovarian Cyst | Love Hard Fight Hard ♡
Просмотров 1,4 тыс.3 года назад
Hospital For Another Ultrasound On My Complex Ovarian Cyst | Love Hard Fight Hard ♡
Xolair For MCAS & Severe Asthma - My Experience | Love Hard Fight Hard ♡
Просмотров 1,3 тыс.3 года назад
Xolair For MCAS & Severe Asthma - My Experience | Love Hard Fight Hard ♡
Trip to the ER - They Found A Mass! | Love Hard Fight Hard ♡
Просмотров 7753 года назад
Trip to the ER - They Found A Mass! | Love Hard Fight Hard ♡
SIBO Test & Dysautonomia Clinic Vlog | Love Hard Fight Hard ♡
Просмотров 4743 года назад
SIBO Test & Dysautonomia Clinic Vlog | Love Hard Fight Hard ♡

Комментарии

  • @m_m_rafi
    @m_m_rafi 10 дней назад

    i am 23, i my blood ige level is 550+,i have allergy too much i can't go out side dust make me sick,,doctor told me to xolair injection ,i want to know how many injection need to be cure? how long it last?can you share?

  • @sheilawallace9177
    @sheilawallace9177 11 дней назад

    Thank God you are young. Im 71.. wont be so easy with so many other complications.

  • @conniegarvie
    @conniegarvie 19 дней назад

    Speaking of severe constipation, in 2022, my colon ruptured and I required emergency surgery and a colostomy to save my life. If you have had lifelong constipation, like I've had, talk to your Gastroenterologist about it and start taking something like Mirilax daily. Fortunately, I did survive.

  • @MitsubishiEvo10mr
    @MitsubishiEvo10mr 24 дня назад

    Did you have any luck with shots I suffer with severe airway information and mucus from asthma, and all the other medication’s have failed so I’m running out of options. I’m hoping something like this works. I’m starting soon.

  • @barinahsukowati9112
    @barinahsukowati9112 25 дней назад

    268psdgjllxvbnm

  • @barinahsukowati9112
    @barinahsukowati9112 25 дней назад

    1:29

  • @ChelseyGuhde
    @ChelseyGuhde 29 дней назад

    you are lucky to have a family that knows what your dealing with and that they can help you get through it. feel better very soon god bless your little heart i know it sucks to be sick its painfui get some rest feel better soon

  • @ChelseyGuhde
    @ChelseyGuhde Месяц назад

    i know it sucks to be sick ive thrown up several times but im healthy i dont get sick very often stay strong hope you feel better soon

  • @susanday3478
    @susanday3478 Месяц назад

    Bless you, dear one. ❤

  • @LDWeary
    @LDWeary Месяц назад

    How are you, love? You are a true Champion 🏆💪🏾 Stay Strong.. God Bless you 🙏🏾🙏🏾🙏🏾

  • @LDWeary
    @LDWeary Месяц назад

    ❤ 💯💯

  • @tiffanyclark3435
    @tiffanyclark3435 Месяц назад

    My 18 yr old daughter just got diagnosed with this and it’s absolutely devastating. We have spent the last 2 getting admitted too many times to count. She has had 2 Mallory Weiss tears that both led to pneumomediastinums. This last stay she was diagnosed with severe malnutrition, low calcium and her potassium was 2.3 at admission. She also Carrie’s around a cup for the little spits. So many similarities. Sorry you both go through this. Thanks for sharing about it.

  • @RANDOM_VIDEOES
    @RANDOM_VIDEOES 2 месяца назад

    SAME IN GETTING A GET TOMORROW IM SO SCARED WHAT WILL HAPPEN NEXT I. STUGGELING DO BAD😢😢😢 IK NEW TO ALL OF THIS

  • @EngermanShealey
    @EngermanShealey 2 месяца назад

    i love you so much! I recently just found your LYXBAGS and i’m in love!! Your videos are so fun and you energy is just MWAH! keep living your life

  • @YurkoRussel
    @YurkoRussel 2 месяца назад

    Combining elegance and luxury LYXBAGS

  • @lynncochrane9630
    @lynncochrane9630 2 месяца назад

    I've had this fear since I was a child I'd rather be dead than vomit this condition would kill me you have my sympathy 😢😢xx

  • @jennahudson3420
    @jennahudson3420 2 месяца назад

    Your positivity shows through. You’re a ray of sunshine! Keep shinning ☀️

  • @alfonsinho74
    @alfonsinho74 2 месяца назад

    Easily the most beautiful young woman in RUclips! God bless you dear sister.

  • @chronicallyme2657
    @chronicallyme2657 2 месяца назад

    I can’t believe they waited so long for nutritional support!

  • @torisuchan5702
    @torisuchan5702 2 месяца назад

    I recently am going through the exact same thing. I have both too. I'm a type 1 diabetic. And all stages of neuropathy. You're positivity gives me strength to keep going. Even on hard days so thank you more than I can ever express. 😢

  • @lynnvaught5717
    @lynnvaught5717 2 месяца назад

    I'm 🙏 for you

  • @minnietoot9704
    @minnietoot9704 2 месяца назад

    You are one brave lady and the first person I have found that had what so have …. The emergency surgeries and all. I’m in New Zealand and sending very best wishes. Thankyou for this and those tests….

  • @ashleycatastrophe2709
    @ashleycatastrophe2709 2 месяца назад

    I have cyclic vomiting syndrome, and I’ve been having an episode for a week now and when I started your video, I immediately started crying just to hear somebody else who also dealt with this and knew what I was going through thank you 🥹❤

  • @alex-loxa
    @alex-loxa 2 месяца назад

    You need the right diet and the right medication. We can fly to the moon and I’m pretty sure u can heal it. Because I had it to/ or have it it depends how you look at this.

  • @rukeyareyaz8362
    @rukeyareyaz8362 3 месяца назад

    Are you fine now

  • @Taynader
    @Taynader 3 месяца назад

    How are ou

    • @susanday3478
      @susanday3478 Месяц назад

      It's a bit concerning, I don't she has replied to anything for about 6 months. I hope she is OK. X

  • @BpambassadorEstatex-s3y
    @BpambassadorEstatex-s3y 3 месяца назад

    Bill knott on yt talks about healing his neuropathy with vibration plate and carnivore. Also look at Mikhaila Peterson Ted Talk video on her testimony. Inspiring.

  • @how.disability.justice
    @how.disability.justice 3 месяца назад

    Thank you for helping others navigate the medical industrial complex. Mutual support from directly-impacted people is what I highly value. These conditions are becoming more known. Mold: I'm guessing in places with a lot of opportunistic and corruption, the budget doesn't include proper maintenance if buildings to prevent and remediate mold. In North Carolina, I don't know if the state has laws about mold, but even with the Fair Housing Act, there's too much corruption in the city and cover-ups to enforce these laws. many companies corrupt lawmakers by donating to get them elected so they don't regulate air quality. The medical industrial complex has similar infrastructure to avoid accountability. I hope directly-impacted people will combine our little resources to build infrastructure to make an alternative and challenge this corruption.

  • @augustgirl
    @augustgirl 3 месяца назад

    Thanks for this video. I appreciate it immensely. I have a test in October. Eggs, toast and jelly with 4 oz water. I have gastritis duodenitis and a hiatal hernia. Mystery problem that stumps doctors. All of a sudden I am hungry as heck and if I don't eat immediately I feel hypoglycemic but nothing ever shows up in blood work when I fast. The kicker... I have diarrhea when this episode happens. All I get from any doctor is, " Oh, that's odd" Me: Really? I thought so, too. That is why I am asking. 19 yrs. of suffering with this problem. So, I am on Pantoprozole 2x a day for 10 weeks. Along with Famotodine and carafate. I hope life will be kinder to you. It's hell suffering with me. I can't imagine what you go through. Good luck.

  • @alfonsinho74
    @alfonsinho74 3 месяца назад

    Happy birthday tomorrow 26th of August!🎉🎉

  • @alfonsinho74
    @alfonsinho74 3 месяца назад

    I hope you read this before next Monday. I wish you a happy happy birthday dear beautiful Claire.

  • @jeffreygo3991
    @jeffreygo3991 3 месяца назад

    Got my first Xolair shot today too.. Was nervous but all's well.

    • @m_m_rafi
      @m_m_rafi 10 дней назад

      now how are you?

  • @forthgoever
    @forthgoever 3 месяца назад

    GOD bless you <3

  • @fhamilton2172
    @fhamilton2172 3 месяца назад

    🙏🏽

  • @fhamilton2172
    @fhamilton2172 3 месяца назад

    Thank you for being so brave sharing your story. Im scheduled in a few days here, so your video was very informative.

  • @Sam-fp8zm
    @Sam-fp8zm 3 месяца назад

    eat paleomedicina carnivore die to be healthy look them up online

  • @Sommer369
    @Sommer369 3 месяца назад

    LDN gave me heart problem, nothing before taking it, nothing after I stop

  • @camerongebbie6589
    @camerongebbie6589 4 месяца назад

    Crazy how you have the strength to deal with this let alone anything else

  • @mawkeechin5447
    @mawkeechin5447 4 месяца назад

    Thank you sister for sharing your journey.

  • @katk1958
    @katk1958 4 месяца назад

    I'm bedridden on palliative care. I'm old though 😊. I'm curious you must have someone who cooks for you, since you mentioned healthy recipes? Thanks so much for this video! ❤

  • @Faithandseekerofchrist
    @Faithandseekerofchrist 4 месяца назад

    I am so glad that there are videos like this because people tend to look down on people who are chronically ill unless it is a terminal illness. Yes we do want to rejoice about God but at the same time we just want to be heard as well. I'm so glad that there are people sharing this because it gives fellow chronically ill people an example of how to live and they would take this type of video more seriously because they know what they're going through and it could very well bring them on to the right path to God and this is definitely an example of loving your neighbors because you're sharing your testimony with love and to help people get through these things. ❤

  • @jannatchohan_14
    @jannatchohan_14 4 месяца назад

    I have emetophobia and trsust me severe gurl u are the strongedt person i have seennn keep up the work tw.vomit u showed my heart started.beeping hard hehe buy i vouragwd to watvh morr😊

  • @juliebeason9889
    @juliebeason9889 4 месяца назад

    Nurse Kitty by your side

  • @nunu4evaaa
    @nunu4evaaa 4 месяца назад

    Life is something😢

  • @alfonsinho74
    @alfonsinho74 4 месяца назад

    You really are a great cook, everything looks so delicious! God bless you dear sister and I hope you are doing as well as can be.

  • @ven0006
    @ven0006 5 месяцев назад

    You are so extremely brave, must have been so uncomfortable. Hope you are going ok? Take care xo

  • @bubbamanandkids2974
    @bubbamanandkids2974 5 месяцев назад

    Go carnivore