I have had doctors think that because it starts to get a little stiff right before my thumbs touch my arm that I can't have EDS because they think it should be super easy for that specific joint. Used to be looser, is a little stiffer now as I have injured those joints so much. Even then i'm still a nine out of nine on the beighton scale. However, since my thumbs are a bit stiff I have had a few doctors who thought I must have the wrong diagnosis. At least a few people seem to be sure that that particular feature is a must. 😒
Thank You for sharing this info!! I started fainting daily at age 8 as a child. I also had an entire list of additional symptoms, as well as being very clumsy… always bruised, had joint dislocations multiple times a year, as well as many fractures from being “clumsy”… I was always doing my party tricks with my flexibility… I was diagnosed with Dysautonomia, POTS, NCS, MVP, and Cardiologist noted Hypermobility at age 11…. My Cardiologist passed away when I was in my 20’s. It’s been hard to find Good Doctors that truly understand all this. Most Doctors now will treat my other Diagnosed illnesses but totally dismiss H-EDS (bc previous doc only made a note of Hypermobility & not EDS) I recently had an appt Genetics doctors that finally diagnosed H-EDS along with my other issues. But, still being dismissed by my regular doctors as just a flexibility thing and not the reason why I have so many dislocations/injuries & pain.
Please talk about the allergies and flare up meds. I am recently diagnosed and have terrible allergies and sensitivities, but my MD didn't mention this as connected. Thank you for this!
Are there any other common myths you also hear about EDS? 🦓
Thanks for watching! Xxx
I think you've covered them all hun👩🏫
@@chrissulzdorf456 You think so 😅
I have had doctors think that because it starts to get a little stiff right before my thumbs touch my arm that I can't have EDS because they think it should be super easy for that specific joint. Used to be looser, is a little stiffer now as I have injured those joints so much. Even then i'm still a nine out of nine on the beighton scale. However, since my thumbs are a bit stiff I have had a few doctors who thought I must have the wrong diagnosis. At least a few people seem to be sure that that particular feature is a must. 😒
Very cool video about EDS hun. Done great research here. Well done, love the animations and editing💗💗💖💖
Thank you so much hun! I’m so happy you like it 💕
Thank You for sharing this info!!
I started fainting daily at age 8 as a child. I also had an entire list of additional symptoms, as well as being very clumsy… always bruised, had joint dislocations multiple times a year, as well as many fractures from being “clumsy”… I was always doing my party tricks with my flexibility…
I was diagnosed with Dysautonomia, POTS, NCS, MVP, and Cardiologist noted Hypermobility at age 11….
My Cardiologist passed away when I was in my 20’s. It’s been hard to find Good Doctors that truly understand all this. Most Doctors now will treat my other Diagnosed illnesses but totally dismiss H-EDS (bc previous doc only made a note of Hypermobility & not EDS)
I recently had an appt Genetics doctors that finally diagnosed H-EDS along with my other issues. But, still being dismissed by my regular doctors as just a flexibility thing and not the reason why I have so many dislocations/injuries & pain.
So informative! I had no idea babe ❤️
I’m so glad it was so informative! Love you 💕
Please talk about the allergies and flare up meds. I am recently diagnosed and have terrible allergies and sensitivities, but my MD didn't mention this as connected. Thank you for this!
I had a pacemaker inserted in 2019 and also have terrible insomnia. Ambien 12.5mg is the only thing that has worked so far for that.
Like your video, it’s very interesting and educational . Sending you big hugs 🤗😻💕💕
Thanks so much! 💕✨