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Love the crystals but all of them being squashed together like that creates a chaotic energy that would give me anxiety.

We just moved to Star, Idaho and it’s been between 105-112 degrees Fahrenheit going on almost 3 weeks now… I finally just crashed and could not get out of bed for two entire days. I crave nothing but salty and sweet food. I had my compression socks off and on I was drinking tons of Gatorade I just wanted to be in a dark room with no sunlight. I just felt like crap just utter crap and my heart was palpitating and I got dizzy when I stood up. I only feel better when I was laying down and it’s so difficult especially when you have a toddler. My husband had to have our daughter 24 seven for the past 48 hours. He did a pretty darn good job, but the house is destroyed. Lol I can definitely relate!!!

I am very sorry for you. I have been bedbound for 10 years. In 2021 doctors called me to get the jab. From that time my life changed completely. I am not cured but my life is so much better and I can go outside walking and I have several hobbies. My chronic illness thought me the best lesson of my life. Take care

Sorry, removed my initial comment because I did what I've done other times occasionally and commented something before getting farther in the video and I've saw that you mentioned what I mentioned in my other comments so I deleted it

Hello Stela, I would like to forward something on to you. Do you still read Comments? As I do not do Social Media.

I had two friends start a rumor i was a drug addict, because i was sick all the time. i dont believe in doing drugs..i struggled with chronic illness. another thing I hate they say to me is "you look good, you are a pretty girl, so you're not sick, nothing is wrong with you"

Postural is pronounced "pos-chur-al", not pos-tur-ial!

Thsnk you. I'm down to drinking just purified water. I don't know how much longer I can last. The grief has been immense lately. And anger. 😮‍💨

I hope you don't mind me asking! But I was wondering what was the reason you don't get infusions? Your pots seems quite bad so I'm curious. I know this is an old video so I'm not expecting a respose! Best of luck! :)

I am so sorry that u have it. U look very calm and strong, Howe er. Wish u the best

don`t forget the doctors ! give you everything but PAIN MEDS !

These are amazing! I've been collecting since I was little, but you have me beat! I really do feel energy from them. I agree on trying everything to find a little relief. Girl, I'd try voodoo if it would get rid of my lupus and fibro.. and the long list of other chronic diseases!😂

Spot on with all of these! Girl, I'm not gonna say how long I've gone without a shower! 🤔😬😂😂😂❤❤❤

Are you getting tested for anti-hydros, sis I don’t know if I’m saying that right but it’s where you don’t sweat I wish the best of luck for you and I’m 11 and I had it done because I don’t sweat and they were trying to diagnose me with something so you got this I wish the best of luck.

Ty but if you need help fam and those around who cares the burden can. Be lightened. My issues from the war if I am about to disappear from society I bring in my fam .if those like me goes off their meds for 2 long the issue could be catastrophic bc your other personality comes out and you see and hurt people or yourself. I am a combat vet with 12 years of tracking the enemy but you can't translate it w/o meds. Some wounds you can't see

I pass out cold when I get out of the shower. Just transferring from the wheelchair to the shower chair is exhausting. Worst is not being independent and living in my own place. My illness cost over half of what I can earn.

Thank God, I'm so glad I ran across this video tonight. New subscriber 😊

I want to take this test because i believe i have pots, but also worried it wont be accurate because they started me on metoprolol for tachycardia

Thank you!!

I watched half of your video at this time and it's totally informative and supportive ❤ I was procrastinating to watch this video a whole year out of fear of feeling sorry about myself and that didn't happen i felt belonged and heard. Thank you for sharing ❤

❤❤

Sending you my hugs xx I can totally relate to it...

Love your cane ❤

Are the front wheels easy to clean? Seeing you on the grass you could easily pick something up on them 😂 Great video 👍

I have mcas because of being exposed to mold in an HVAC system five years ago. Been to many doctors and did testing. All were totally useless and a waste of money. I have done research on my own and have discovered many connections between high estrogen, estrogen dominance and high histamine. The late Dr. John Lee has several books about balancing hormones. I have researched everything I can about natural over the counter bioidentical progesterone cream. Not the kind from a doctor's rx. Progesterone can't hurt you. Estrogen can. So, I started Emerita Progest last week. Also, using Milk Thistle for constipation and to help repair and clean my liver and detox from estrogen. You have to use enough progesterone according to your symptoms. Your symptoms may get worse as you detox from the estrogen. Estrogen raises histamine. Progesterone lowers histamine. It will take awhile for your body to balance. You do not need a test. Go by your symptoms. Go to Dr. John Lee's website where they have a test for synptoms. Go to Barbara Hoffman's website. She talks all about progesterone and hormones. Do not read sites like web me or Cleveland Clinic. There are a lot of studies about progesterone and the brain, gut health and immune system. There has even been a study on long hauler covid and progesterone. Do the research. It's out there. I hope anyone who reads this will look into it. I went to naturopathy and they said you don't need progesterone. Men and women always need progesterone whether you are young or old. I hope this helps.

Please one chayar gift

I had the tilt table test this morning. As someone else mentioned it is like slow torture. Horrible horrible experience. I only fainted 15 months ago for 3 seconds but have to go through these tests to get license back. To say it’s extremely uncomfortable is being disingenuous. I’m a 56 year old postman who’s been through a lot. I lasted 20 mins but it got too much. They want you strapped upwards for 40 mins. No chance. I had to tell them I’d had enough. Didn’t feel or experience fainting. The only thing I felt was extreme anger and frustration been tightly strapped.

I have to think about every single move I make as well! ❤ Thanks for coming forward with your experience. I always knew there was a reason why I never got into dancing or aerobics. 😊

Amen sister!! 3 rare pancreatic conditions after over a decade of medical gaslighting. Was told sarcopenia because I no longer have glucagon was just sore muscles. Was asked if I was more tired than usual, but I had an undiagnosed heart condition from birth than needed a pacemaker. I said, “ no more than usual.” Ugh after a car crash caught my misbehaving heart in action on an ambulance ekg post rollover it was found my “usual” to be a bit worse than his usual. Medical gaslighting is real, and I have had to block all but one of my 6 siblings as well as my parents on my phone. I told my mom I was being put on a feeding tube for three months and was lectured about respecting my elders. I had a GI specialist not send my biopsy into a lab then falsify records after another one caught my Exocrine Pancreatic insufficiency, Gastro Paresis, and even rarer diabetes type 3c. How could I have faked this labs and EKG?? But my mom says I’m a hypochondriac and I have my lab results with my name on hospital stationery. Dear god this is hell!

“Have you tried a pancreas transplant “ uhhh … people live without them after whipple surgery, why would I want immune suppressants too on top of 3 rare permanent disorders

Beyond true

Great video, thank you.

So helpful, thank you!

I’ve heard about the ab and pelvic floor thing but I had no idea that it was related to EDS lol.

Growing up I thought everybody got lightheaded and dizzy when you would stand up. Gen X kids you just suck it up and move on. 2012 my systems really got bad and I got diagnosed with POTS/dysautonomia in 2016 CC. My youngest his hyper mobile joints won’t get diagnosed. My middle son started passing out when he was 19. I think we all have a variation of EDS.

Long time not see you. Come join yoga challenge again😊

I have bursitis in both shoulders and both hips I have osteoarthritis, torn rotator cuff, I can't use my cane cuz it hurts my shoulder, elbow, and wrist, so no one believes I need my wheelchair cuz I forget I need it and take off without it same with cane I'm so forgetful I can't stay on task and I feel I'm bleeding internally in my hip joint from bone spurs and impingement syndrome femoracetabular kind fibromyalgia I feel I torn my it band....doctors look at me sideways when I say I'm in level 10 pain because my blood pressure is low 98/56 um blood work don't show I'm bleeding internally 😢idk what to do they send me home with instructions to return if I experience them and I came in and was leaving with same symptoms I'm just totally confused

Man finding this video is eye opening seems you living my life 😮

You sound like me I was allergic to everything soy was the major one

I sneeze I cough I sprain my back glute and down my leg causes calf to Charlie horse

I'm hot and cold at the same time and have one leg under blanket one outside seems to work some of the time 😂

I too have ADHD/ASD/EDS ❤

I can't digest any grains not even oatmeal even chickpea pasta I will have a reaction basically meat fruit and vegetables

Girl your collection is so beautiful 😭

Look up dr fasting Starve to heal in Siberiana

The guilt is a horrible feeling. Feeling like a failure and a burden to our loved ones is very destructive for us. Nothing about chronic illness and pain is easy. Hence the high suicide rate of us sick people

No friends anymore

There’s no one that can help me & I’m literally losing my mind, tired & exhausted from being in pain all of the time & it’s even exhausting talking about it again & again & I’m feeling like I’m losing the battle, it’s been too long.

Hello dear i hope u reply me Is your heart beart increase while you walk...... because same symptoms happens with me

Thank you. I needed to hear every bit