Does my Brother Have Ehlers-Danlos Syndrome?
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- Опубликовано: 16 окт 2024
- Thanks to my brother, Kiril for coming onto my channel and filming with me. As you know, I have Ehlers-Danlos Syndrome (EDS). But I’ve always been curious to know if my brother has it too. In this video, I’m recreating my EDS test and seeing if my brother has it as well!
Disclaimer This video is just for fun and isn’t anything official. If you, or someone you know, thinks you might have Ehlers-Danlos Syndrome (EDS), please speak to a registered Doctor or Physician. We are not professionals!
Thanks for watching! Xxx
My Instagram: @stelasulzdorf
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Get to know me: My EDS Story
• What is Ehlers-Danlos ...
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Thanks to my brother, Kiril for coming onto my channel and being such a good sport! I hope you enjoy our chaotic energy. Is there anything else you’d like us to film together?
Please note, this video was filmed just for fun. The EDS test is way more complex than this. If you think you might have EDS, please speak to a registered doctor or physician.
Thanks for watching! Xxx
Review of Christmas snacks! Day out at the gym!
@@chrissulzdorf456 I haven’t been to a gym in years, 😂 but snacks sounds amazing! 😋
I got a request
@@DMoneyy97 sure! What is it?
@@stelasulzdorf sorry for late reply. I came up with it it's called footballin for autism and anxiety challenge!!! Yall both do 4 poses that each have a meaning. 1st pose is tackle position - tackle your daily objectives 2nd pose is longsnapper - change your pov even if it's upside down 3rd pose is quarterback - throw away all negativity and 4th is yalls own made up touchdown pose - celebrate your achievements
I didn’t realize i never finished! You two are so fun! Love it
Hehe no worries babe! Thanks for watching til the end! Love you 💕
OMG lol, it was great fun watching the video. It’s very educational as well as funny to watch you both. Thumb up for doing another video with your brother. ✅❌✅❌
Thank you so much! Haha I’m glad you enjoyed it. Kiril was on his best behaviour for this 😂💕
Great video. Was lots of fun having Kiril on board. Looking forward to the next collab. Very informative video on the diagnosis process. Well done hunxxxx
Thanks so much for all your support! Love you lots!! 😍💕
Only a few minutes in atm, but I’m finding this so interesting! You & your brother are both so charismatic & fun to watch, btw ☺️
Aww… thank you so much! That really means a lot to me. This is probably the most unprofessional video ever, 😂 but we had fun with it! Xxx
Hhahaha omg I love seeing you and your brother!! This is great Stela! Love!!
Haha I’m so glad you liked it babe! 😂💕
This was great and the two of you are hilarious together! And, I think I need to get myself and my kids checked. We pass enough markers to qualify. Thank you, honey 🙏🏼
Thank you so much, Stephanie! 💕 To be honest, I’ve thought this about you too. But it’s not my place to say. It’s well worth checking for sure. I’m so happy you found us funny haha! Xx 😂
@@stelasulzdorf oh my gosh yes! It was fun to see your sweet dynamic together! And idk if Chris did the edits but they were also hilarious! Yes, I’m going to get us all checked. Joe (my son) and I were in a nasty car accident two days ago so that will be addressed first but it’s okay because all doc appts are about a month out anyway due to the pandemic.
@@stephaniekonat2998 Oh my goodness! I’m so sorry to hear that! 😞 I hope you’re all okay. That’s definitely your first priority for sure! Sending you the biggest hug and all the healing vibes! ❤️🩹
@@stelasulzdorf aww thank you, Stela! ♥️ hugs to you!!
@@stephaniekonat2998 Big hugs right back to you too! 💕
Your left arm hyperextends when the arm lined up against the brick wall you could see it
Loved the video guys 😘
Hey Tanya!!! Thanks so much for watching 💕😘
Loved the video lol I’ve not been officially diagnosed with EDS but 20ish years ago a doctor diagnosed me with hyper mobility syndrome and over the years of reading about EDS I’m pretty sure it’s that. I got a 7-9 out of 9 on the Breighton. I didn’t have anyone to hold down my knees lol so without that it’s a 7 but I do know they are extremely hypermobile because a few years ago in PT we had to alter my exercises because of how bad they were hyper extending behind me lol seriously freaked out the therapist working with me 😂
Thank you so much for watching! 💕 I’m so glad you loved the video. It most definitely sounds like you have EDS too. Seldom do doctors know what EDS is nowadays. So, I can only imagine it was even less known about 20 years ago. There are many debates out there as to whether HSD (Hypermobile spectrum disorder) should just be classified as EDS. But it’s so under researched, that I believe your diagnosis at the time, was based on your the knowledge of your doctor at the time 💕
Sorry about my typos! 🥴 it’s really late here in London 😅💕
He's great! You're a great team 👍
If we hit are 5 million likes then booom watch this space
Good luck to us for that! 😂👍🏼
Your hands are meant to be flat on the floor
I don't know if the UK and US have different criterias but here his arms, leg, and fingers would not have counted. Because his fingers have to be past 90 at the first joint not the ends and the arms have to be hyperextended by more then 10°, same for the legs and touching the floor your palms have to be completely flat for it to count. Think this was a great entertaining video tho! I just wanted to say that atleast here the official diagnostic criteria is a bit harder then this. As well as here (again idk if their different or why) the first minor criteria is actually 12 parts and u have to have atleast 5, then a family relative by first degree which would be her as his sister then there's a third minor criteria which is three parts. Two of those need to be passed to go to the third major (the three minor go together as one major)
I believe the criteria are the same globally.
@@alexiskruel if it is then she didn't do the full criteria and some of what she did is wrong, maybe she's using the old criteria though? I don't know what the old one consisted of but it was updated in 2017
Correct
Hey! You’re right, I didn’t go through the whole criteria. This video was purely for entertainment purposes, as I wanted to personally see if my brother might have EDS. I just decided to film the process. I got diagnosed quite some time ago and the criteria has changed since then. My brother is also very distracting and it was hard to remember much around him. 😅
This video should only be used as a small indicator and should be taken with a pinch of salt. Always consult with professionals as I’m not clinically trained - I’m just a Zebra sharing her life with EDS 💕🤗