This is seriously depressed to live with. I've always ate healthy, exercised and get rest. People treat themselves like absolute garbage and get away with more it's just not fair man. I'm not even 30 yet 😔🥴
Same experience here. I wonder how many of us that have this were born by c-section. I have the feeling that this is the unfair root of my gastroparesis.
Something you left out is that it can be EXTREMELY PAINFUL. I have delayed digestion with liquids as well so I have to drink small amounts all day. I do not have diabetes. It can be idiopathic and also caused from previous abdominal surgeries. Thank you for keeping people aware this exists! We get a bad rep because we don’t always “look sick” Mine also involves migraines as well. It’s a very debilitating disease.
Liquids are even more delayed for me than solids-after the liquid emptying test, I still had 100% of the liquid remaining in my stomach (solid emptying was also severely delayed). When my upper GI surgeon performed a scope, he noted a complete absence of peristalsis. Most often the food would just sit there until it was dumped, which did terrible things to my blood sugar (and I'm not even diabetic). After not getting any relief from medications like maxalon and domperidone (plus modifying my diet), I had an Enterra II implanted in 2016 and it made a huge difference in my life, taking my symptoms from severe to mild-moderate (still experiencing daily issues but generally not severely painful and with modifications to my diet, able to eat and drink enough to maintain a healthy weight and nutrient status). I'm pregnant now (something we could only dream about five years ago) and my symptoms have significantly exacerbated again. We expected this might occur and have a management plan in place, but it's really brought back just how bad it was pre-implant. I've just got another five months to get through and hopefully will bounce back. I really hope you're able to find some relief for yours. I have multiple chronic health issues due to Ehlers-Danlos but gastroparesis is definitely one of the worst. I wouldn't wish it on my worst enemy, so I'm really sorry you're living through this hell. 😞
I’m glad you had good outcomes with the implant device. It’s not always easy to find surgeons who can help with that. As yet there’s no endoscopic method to implant a device but I think it will be technical feasible soon. That could prove a major breakthrough. Meds just don’t work well.
@@MarkCooperMD Yes, it would be incredible if the procedure (and others like it) could be performed endoscopically! The gastroscopy I mentioned was performed prior to the Enterra being implanted as part of a trial (nasogastric leads attached to the interior stomach wall with clips connected to an external device), the actual implant was done laparoscopically-just mentioning this for others, as I know you're well aware of the techniques involved. I feel incredibly fortunate to have found a surgeon who deals with the devices. He's one of only a few in Australia and he only receives funding to implant five devices each year through our public health system. It hasn't all been smooth sailing (required a subsequent omentopexy to provide some padding around the leads as they were causing irritation) and it interacted with another implanted device I have, but all things considered, it's made such a huge difference to my life.
@@daniellegreig489 I hear you about liquids. Ain't no waterslide here, either. It just lies there on top of my undigested baby food making me feel like I'm going to barf.
I am 14 and got diagnosed with mild gastroparesis today. All I can say is thank you to the doctors who believed me when I sobbed in pain, my mom never believed me even though she’s a professional nurse and my dad told me it was all in my head and that it was just anxiety. I hate this so much
Another thing when I start getting dick lije today I had to go to er a g.i. cocktail I'd the fastest way to get a person out of pain in their stomach g.i. cocktail is lidocaine and malox so if u go to the er tell them to try a gi cocktail once u can hold a Lil down the numbing works wonders
I got diagnosed in 2022, got it after getting very dehydrated after getting sick from covid and eventually got a blood clot. I was only 17. Now I can't even eat dairy without my body rejecting it. I can't even digest it. I avoid raw veggies and beef products because it gives me horrible stomach cramps. I also have lost a lot of confidence because I lost a lot of weight. I used to eat a full meal usually have seconds and not feel full. Now I can't even finish a plate of small portions without feeling incredibly full. I still am getting used to it, I've only lived with it for two years. But some days ared definitely better than others
Wait a minute I got Covid Jan 2022 and developed a blood clot in my foot area I also found out I had gallstones had gall bladder sugery March 20 2022 sand we had some of the same symptoms oh I’m type 2 diabetic
@@Loluxmarie that's so scary I'm glad you're okay now! I keep hearing ppl get crazy things from covid. But I am sorry that happened to you, I hope you're doing ok now
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases, dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis.
This condition is truly horrible. I have been dealing with it since 1997 and it has gotten much worse over the last 10 years. I can't even drink a smoothie now because even smoothies cause severe bloating.
Sorry to hear that as smoothies can be a good option. An upcoming video will discuss the impact of excess fructose and may give you some ideas to help modify what you’re doing. Thanks for watching and I hope you get some relief!
@@Rob__James ginger seems to soothe the GI tract. Bitters have been used to stimulate the appetite and some Italian apertivos and Amaro use artichoke. I would expect the fiber of the artichoke to be difficult to digest. Have you found these helpful? No reason not to try as the right food can be the best medicine, especially for your GI system.
The answer to fight it, is complex and requires intense work. Its all about fysical exercise , to oxynate your nerves and system in general.. one nerve lead to another, and so, it can be very deep in the system that those nerves that cause the main problem are located. Before getting acces to those, you need to clear all those roads that lead to them. Basicly you have alot of gas/inflammation in your nerves/veins/muscles, and it is blocking blood flow. Your vagus nerve is compromised, and is that one, that is responsible for making your stomach contract and squeeze content into the colons normally, 3 times a minute. Its now sorta paralysed, and thous you cant eat and digest normal..so you want to go all out on exercise, to put oxygen into as many parts of the body… dayli..run, sweat, cold showers, stretch, build home gym, etc.. do it all… it might take years, but atleast your are fighting and not just seeing the body shut down. It is basicly all symptoms, of a main issue somewhere causing a blockage of your system running free. You want to research and put as much into schedule to know what to do everyday. Healing is possible… i am about 3 years into this battle. Full time… and i am roughly 70 % healed. Do not accept this, as something that cant get better. It can…. Most of my pains went away. I am getting stronger.. track your progress. Notify how much you can do.. feel motivation. Take alot of relaxation.. breath into those nerves in isometric exercises. It will make new blood flow into the local area, and thous clean your pipes. Drink water.. get a healthy routine.. dont eat before bed. Mistakes are lessons. Strong is the way throu it… ive actually for a long time, overeaten some unhealthy cake (lots) in the evening, to then immidietly vommit it up, and that actually cause the remains from lunch that is still bothering me, to be squezzed down, and then after vommit, i am sorta feeling good.. so theres alot of trix and ajustments you can do.. a healthy neck and neck exercises are really great, because vagusnerve to stomac signal, from the brain, runs throu the neck.. so alot of neck exercises might be really beneficial. Theres a great neck strenght equipment called iron neck. Look it up. I wish you the best.. dont accept it✌️✌️✌️✌️
Yes definitely works. And one thing I have learned that to go small even when consuming liquid foods and drinking water. Thank you so much for helping us understand it.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I fast a lot. A lot. Just reached out to a dietician for hopefully some help to at least get 1000 calories per day. So frustrating. Always on the edge of hunger, because at leasr hunger is "safe" pain. Not really, but some days, it's better for me to spend the day light headed and hungry than on the edge of nausea, constipation and diarrhea.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases, dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis.
Ive been following all you stated for the past month now since being diagnosed with gastropresis. It took a year and many mis diagnosis but now i am learning to better treat it 🙏🏻🙏🏻 this is the worst thing to live with
My GP is recent to. Nerve damage from a hernia eruption in April this year. It us hard to live with! I do good and then not and I want everything I can't have. And the things I did like and can have, I'm so tired of all of them. It does suck!
@@claudiahillman606 try carnivore, not only you stop crave shitfood, you will feel full all over day. Just dont undereat, its almost impossible to overeat on meat+fat.
I was given a shot of extra strength trulicity without realize gastroparesis is a side effect… I would have never taken it if I had realized the extent of the damage it could cause. I’m a bigger person I didn’t anticipate such a horrible reaction, I actually have begged to be taken out of my misery but I know that’s an overreaction. I only just took the shot a couple of nights ago, I will not be taking any more shots because some people never got the side effects again and other people never lost the side effects even after stopping taking it. I don’t want any risk of having this be a life long condition if I have the chance to reverse it by doing nothing. I hope you all find peace. I have meditated on pain in therapy before, it works but it didn’t work on my stomach pains and nausea. You are troopers this is hell. Maybe there’s slightly worse things to be afflicted by but this is the kinda thing you wish on your worst enemies it’s a life of suffering
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
When I skip breakfust on a good day I feel great, then the moment after I eat I start feeling discomfort, extreme bloating, my mood goes down, i become anxious and a bit depressed. Then no digestion, start yearning a lot and feel sleepy and tired. I never come back to the stage before food. I thaugth tha anxiety and depresson was the caause, but its the othe way around. Startin OMAD and Keto, will try for 90 days , main reason to not eat during the day, tried emzymes but no improvment. This condition destroyed my academic career and other things, no one around me understands anything, they think I am lazy or somethin, it's horrible, life destroying in many ways.
I think that it a great idea. Look into carnivore as well maybe a version between keto and carnivore. Lots of great people on You Tube for advice on those lifestyles
I feel like this also. I feel so much better, mood wise, and physically when I don’t eat. But I know I have to. It’s very challenging. How has keto been working for you? I don’t do well with a lot of meat, or fat, so I don’t think I can try it.
I just want you to know that your comment truly resonated with me! Your words describe the exact same hell I’m living and have been trying to figure out for almost 18 months. It’s incredibly isolating so I want you to know an internet stranger sympathizes with you! Wishing you ‘relief’ when you need it and that your ‘good days’ increase! *sends virtual hug*
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
We just found out that my 32 year old son has this. I feel so bad because he has been to the ER several times over the last few months and they never even considered or checked for this. He just found out today from his diabetic doctor. Thank you for this video it was very easy to understand and so helpful
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and even diabetes. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
As someone with Gastroparesis it’s so depressing and unfair to live with this condition. In august 20th was the day i was diagnosed with it and i was one tpn ( total parental nutrition ) which is nutrition trough IV. I got really sick after graduating from « respiratory therapist « in jun all of the sudden my health went downhill so up to TODAY i have a picc line that goes in my heart to get infusion, iv meds and hydration, and my surgeon can use for surgeries and a GJ feeding tube to suction the G and nutrition through the J. Its very debilitating and VERY PAINFUL condition. When i got diagnosed they were saying it’s unknown but 3 month ago heen diagnosed with type 2 diabetes and now i have to give myself insulin shots Twice a day. Am hoping to get a gastric pacemaker to help me with my emptying stomach because they told me as diabetic gastroparesis patient i will benefit from it. AM REALLY REALLY hoping they will find medications or surgery to help patient with their symptoms. Even tho there isn’t meds or surgeries available which is super super unfair!!!
I’m suffering now with this I’ve been in hospital 2 times in the last 4 weeks It’s so painful - I would not wish this on my worst enemy I’m 58 and only got diagnosed 4 weeks ago I have an over active thyroid as well which does not help - double whammy 👎👎😠😠🫤🫤😢😢🇬🇧🇬🇧🏴🏴
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and even diabetes. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Paralysed Stomach !! Gastroparesis ……I’ve had this since 2000 and it hellish !! Best thing to do is to work on stomach muscles, firm up the pelvic floor, and follow the correct diet …….try to lessen the use of motility drugs firstly by eating the right foods and keeping your health in check !! It’s a hard journey but keep at it and don’t give up 💪👊✊🙏😎🌺
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
The Greek word Gastro-paresis literally translates to: stomach - paralyzed. Emma Kok from my country is a prime example who is hooked up to a stomach/intestine pump 22 hours a day! She also sings Voilà beautifully
Ice chips help alot!! I cant drink even water without getting nauseous but ice chips always help!! Hopefully this helps some people. I know how depressing and exhausting gastroparesis is
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
@ no i have never even heard of that but thank you so much for the adivice !! I am a diabetic which is what they say causes it but i am for sure gonna bring this up to my doctor any type of advice is helpful so thank you !!
Ive been having all these symptoms since a long time. Had my gallbladder removed coz of gall stones which made this problem worse. Been suffering from pancreatitis for last 7 yrs since my surgery. Thank u ao much for this video. Now I know the actual problem and have Gastro appointment later today. Will defo spk to thm about this. Really hope they will investigate this soon😊
Same here...and all i hear is :'oh I had my galbladder removed without a problem'...well good for you....when I met de surgeon for removal, he said only problem with removal was some bleeding, otherwise nothing....not that i had a choice, my galbladder was giving problems every week...hope you are doing good.
Awesome. I find the concept very compelling and have heard great things. Technically it should be easier than POEM in the esophagus though I’d wonder about bleeding risks with how vascular the stomach is. Any issues with bloating or diarrhea afterwards? Thanks for watching and congratulations on your success!
I’ve got multiple sclerosis and the endoscopist thinks it’s the likely cause of delayed gastric emptying. I’ve been referred to a gastroenterologist to confirm the diagnosis. I’m full but hungry most of the time with stomach pain, it’s horrible. Thanks for the info.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis, diabetes and maybe even multiple sclerosis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I’ve been underweight my whole life and people have always made comments on my body, I was diagnosed with gastroparesis in college and now I’m trying to gain weight but I’m practically never hungry and force myself to eat till I’m going to throw up but even then I can’t eat enough, no one in my life fully gets it, they just advise me to eat more and don’t understand I am trying, I’m also tired all the time, I feel so depressed and alone.
Maybe tubefeeding can help you? I lost a lot of weight and there is this gastric rest where you dont eatfor 3 month and only water of Black tea (max 500 ml). And they say you can reset your stumach for a time...im on week 6 now and hope everything goes good after this. My Weight is stabel now...hope to gain some
I'm exactly the same. Haven't been diagnosed yet but all the symptoms line up. I've also been underweight my whole life. I've never had the urge to eat when I wasn't starving and when I do try to eat more during the day, I instantly feel full and nauseous. Currently, getting even ONE meal in a day is a struggle. It's like there's food already lodged in my throat and stomach and I'm just adding to the undigested pile. I don't wish this upon anybody. It's made my life hell and I'm not even 30.
I may be late to this but you're not alone. I got diagnosed in 2019 had a surgery last year and although I'm not getting sick. I eat like a bird. I'm staying in weight rage only cause I only eat highly processed foods that digest easy. That's 2 foods and 1 group of a snacks I rotate, eat in bed, trying to sleep through the painful digestion. I pray there's been improvement? The thought of eating 5 small meals a day sounds like hell to me. I'm not hungry and truly. Force feeding only makes me hate food. Please, I'm with you, be bummed with me, maybe we could be a good support. Praying things are improving 🕊️🙏
@@LukeMM95 Yo, that sucks I had a major surgery exactly a year ago. It was a mess, I was nearly rotted in there and they took a lot. My chronic pain is gone as is the vomiting. I do however barely eat unless crap. I go for highly processed foods and eat in bed to sleep away the painful digestion. I had a thing called "plugging" my gastric outlet, also called GOO was ubstructed. Maybe same with you. I threw up a mozzarella stick hours after eating and it was a missle. That's when I knew that outlet was too tiny and the slightest chunk was stuck. It would happen each time I ate. Now it's pizza bites, 1 specific type hot pocket and candy in bed. My cholesterol is now high lol. No one understands and don't get me started on being cold. I'm miserable at 70 degrees. It hurts being thin *Surgery might be your best bet cause the endoscopy didn't show nearly how horrible it was. 4 days in the hospital and a blood transfusion. It's scary but they need to go look
my stomach is 87% food retention after 4 hours, Reglan I cannot take due to severe side effects, way too many. waiting for Botox injection in my lower valve to keep it open. .
There is a better alternative. It is not prescribed in the US, only in Canada. Donperion , i may be spelling it wrong. My doctors took me off Reglan quickly. Side Effects are too dominant especially for long term use. @mt.shasta6097
My Gastro doctor says I have functional dyspepsia. I get a lot of pain after eating bloating. Stress makes it worse. It’s like a hypersensitivity of the stomach. It’s insane.
@@MarkCooperMD I was prescribed desipramine it’s a tca antidepressant . It helps reduce that brain gut connection. Also buspirone 30 minutes before meals to help with gastric accommodation. Have you heard of this stuff?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and functional dyspepsia. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Thank you so much for your honest reviews of baby food! My family thinks I’m crazy but this is a great way to get nutrition when you don’t feel like making puréed food.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My daughter and I have severe gastroparesis. Because we both only hypoglycaemia we need to have something just before we go to bed. It is so frustrating for us. My condition was worsened by having a whipples procedure and despite my daughter having no surgery she has the condition worse than I do. We have EDS and MCAS too. It is not how I envisaged our lives would be.
This sounds like my mum and I, she's doing everything she possibly can to support me through the same issues she faces every day and I'm sure you are doing the same for your daughter. Be proud of yourselves, these are very difficult things to live with and you're doing so well :)
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I had abdominal surgeries (open MALS, hernia repair). Barrett’s esophagus and now gastroparesis. Even a sip of water just sits there. The bloating gets very painful and I lost 15 lbs the past 6 months. We just have to exercise and do the best we can.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have it but not diabetes. I have Autonmic dysfunction and POTs but im trying to heal it through the mind and healing my vagas nerve through meditation and visualization 😊
As soon as my sister started treating her dysautonomia (a form of autonomic dysfunction) with fludrocortisone, her symptoms of gastroparesis disappeared.
I had severe gastro, by the time I got to the hospital I was so depleted that I had to go on a feeding tube, since it tales 5 to 6 weeks for G-poem to be approved by insurance. I would not have made it. Since G=poem no nausea no vomiting no restrictions since day one .Overnight stay went back to work, eat almost everything. Life is great. God Bless
@@MarkCooperMD I tried to post the hospital and surgeons name, but You tube took down my posts. that I had placed all over you tube, Dirty Dogs. I learned about G-poem , but did not know where to get it until I was in dire straights and was told by a doctor from a hospital I was currently in where to go. Thank God I would be dead.
If the symptoms persist your doctor should inform you about a G-POEM procedure which I had two weeks ago. But I had to do several tests and I am hoping that I will feel better in a month or so. Mine is unknown apart from the fact that I had a viral infection, I don't vomit but it was the bloating, early satiety, nausea and discomfort in the stomach as well as regurgitation that got me fed up. Before the surgery I had a high resolution endoflip done to check if I am suitable for the G-POEM as mine was classed mild/borderline. And I was informed that my pylorus was quite tight after the surgery which was widened carefully to help empty the stomach quicker. I felt awful post surgery and I am worried about having GERD but didn't get the Nissen Fonduplication because it can make me worse and the reflux symptoms should go away if this surgery works. I have a follow up with my gastroenterologist next week to get some help regarding the post surgery symptoms.
I had mine done in London, I thought it didn't work however after 3 months the stomach started resetting and now I feel like I never had it, the stomach still needs to adjust itself and it will take another year or so, I might have few symptoms occasionally but nothing related to emptying, also it's essential to take Esomeprazole to help with the acid reduction. I lost hope but the G-POEM saved me. I would urge anyone suffering to get their pylorus checked or have a botox injection to see if it helps and go from there, I had 3 professors discussing my case because it was borderline before they decided it's the right procedure for me, cause it couldn't harm me if it didn't work, you just need a good surgeon who will make the right cut as if they cut too much you can experience dumping syndrome which is basically the stomach is emptying too fast and you will suffer horrible symptoms. I hope my post helps people. The procedure is still fairly new and my surgeon performed 90 cases I was number 90 and they were all successful. I had to take sucralfate to coat my stomach or help it heal after the surgery, it literally stopped all the symptoms and was a great help for the slow but worthy recovery.
I've been dealing with this for years but I don't know why. I don't have diabetes and haven't had any recent surgeries. I cant eat a normal size meal or my stomach just shuts down.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Got diagnosed with this in August, was having trouble keeping any food down. Figured it may have been just something to do with my acid reflux, but got diagnosed through an esophagogastroduodenoscopy (try saying that 5 times fast). Not diabetic (glucose in normal range and pancreas is functioning well according to tests), but I guess since those with autism are more likely to develop gastrointestinal issues, this is how it's manifesting physically. Believe me when I say it's not a pleasant experience. If the meds are forgotten for even a night, I'm in pain for the rest of the following day
No other test than the EGD, may have to ask the gastro about that just to confirm. We figured the issue was an ulcer and although I hadn't eaten for a good 12 hours before the procedure, they noticed there was still food in the stomach.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
11/04/2024 Hello from Schulenburg, Texas 😊 Thank doctor Mark Cooper this was an amazing video ❤ I'm 63 with very Weak muscles in my stomach beans I had four children and four c sections and have done much heavy lifting in my life anyway I think with what you said in this video With the little exercise for my stomach and eating 5 small meawesome a day, I believe that I will heal.And strengthen my stomach muscles at least I hope again thank you doctor ❤
Around a month ago I had signs of this and I’m about to get an appointment I have experienced severe weight loss nausea bloating and early satiety, I have turned 13 a couple of months ago
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
☹️ this is the worst thing I’ve ever had to deal with. Waking up EVERY SINGLE DAY with extreme nausea and just wanting to throw up. Sometimes literally the only thing that helps is hours in the hot bath. 😔
@@hermoinedavisluckett9217 if you can get them to give you a prescription for the sublingual zofran….. that thing is AMAZING. But it has to be the one that goes under your tongue. It helps almost instantly. I promise you it will help!!
I recently found out I have gastroparesis. After weeks and weeks of tests finally have an answer. Looking back I've had very mild gastroparesis probably my whole life. Feeling super full before I even had dinner but still ate and ended up puking it up anyway. Recently it has gotten really bad. I ended up having the begining stages of malnutition. Its going to take a while to adjust my eating. Like steak. I would rather give up oxygen than steak. Any suggestions?
I was recently diagnosed. Currently the only thing that seems to make sense is eat “more solid” meals in the early part of the day, “more liquid” meals in the afternoon and evening.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Liquids sit in my stomach for hours and sound like an ocean all day. Very nauseating and fills like you have a blockage. Wouldn't the solution to the root cause of gastroparesis be to stimulate the vagus nerve? Theoretically that is what makes the stomach empty correct?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
i'm in palliative care for my gastroparesis. even with a pyloroplasty, ges, medications, and diet changes. i still have all my symptoms, but worse now. it absolutely sucks.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Iv had it 14yrs now iv done everything I'm at the end of my wit I'm so lost the daily pain nusea and vomiting is just to much idont want to die i just dont want to suffer nomore I have no life at all
I’ve only been diagnosed with it for 3 years and I feel the same way you do. I reconnected with my high school sweetheart, but this condition has made me shy away. He was the one who got away. And now that he’s back, I can’t have him because I’ve isolated myself. I don’t want to make him as miserable as I am.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
PLEASE READ THIS. My 20-year-old sister suffered from uninterrupted, severe stomach pain and severe nausea for almost 3 years due to gastroparesis (which by the way was super hard to diagnose). She visited probably over 50 doctors from different specialties, tried multiple medications, resorted to alternatives like acupuncture and homeopathy and nothing lessened her pain or nausea in those 3 years. Frustrated with seeing my sister suffer, I decided to look for testimonies from other people with gastroparesis and that's how I found a video ("What made my gastroparesis better?" from Izzy K DNA) suggesting it could be linked to dysautonomia. Thanks to that video my family and I decided to find out if my sister had dysautonomia and it turned out that she did. When we started treating her dysautonomia (in this case with fludrocortisone), the pain, nausea and all kinds of discomfort derived from her gastroparesis disappeared after 3 tortuous years. I would like to express my empathy to all those people who are suffering from gastroparesis and beg them, if it is within their possibilities, to take a tilt table test to find out if they suffer from dysautonomia (or other autonomous nervous system disorder), since it turns out to be the origin of gastroparesis, other functional gastrointestinal problems and many other diseases. It is a noninvasive 30-minute test and at the end it can be determined with certainty whether or not the person has dysautonomia. If you want to know more about my sister's case, gastroparesis, dysautonomia or other cases of functional gastrointestinal problems that turned out to be caused by dysautonomia, write to me at info@dysautonomia.mx and I will gladly answer you.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder, like EDS) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
So glad I have gastroparesis and no teeth LOL you did an excellent job explaining this it's helping me understand it better but still no resolve I hate you gastroparesis
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Ive had this since I was eleven. Only found out what was wrong at 35. I am unfortunately one of the people that gets severe pain, was at the hospital 30-50 times for the pain and no one could ever tell me what is was, doctors said it was pain from stress. Now it happens about once every 2 weeks and then i cant eat for 3 days.
Very informative, thank you. Can you advise us on the best digestive enzymes to purchase. I checked Amazon and noticed that some reviews report negative effects on a few brands. What should we be looking for?
I don't know if i have gastroparesis but i can eat 6-7 hours before bed and still be full when trying to sleep i hate it so much. I only eat two meals a day and i have to pretty much force myself to eat because i don't want to get any skinnier but eating is such a struggle. I've always had slight digestive problems but now at 23 years old it's worse and affecting me daily. When i got covid almost two years ago my stomach became paralyzed for a whole day and i couldn't eat anything. I was tired all the time but if i laid down i felt like i would vomit so i had to immediately get back up. That only lasted one day though the next weeks would just be like a flu on steroids, the paralyzing digestion part was weird i didn't know covid could do that. Much earlier this year i got sick again, like a little cold but again one of the strange symptoms was I felt full for much longer than usual which prevented me from sleeping. A little later in the year like in early spring I noticed now I couldn't sleep because i was so full even though i hadn't eaten in like six hours. After that day it's become a consistent problem which is why i only eat twice a day but still suffer.
Around half a year ago, I went to the ER for vomitting blood. As soon as I arrived, they performed gastric lavage. The doctor diagnosed me that my condition was due to overeating+food poisoning, which made me vomit so violently that my esophagus bled. Since then, I have been experiencing early satiety. I feel nauseous all the time. And I feel full to the point of almost vomitting even if I only eat half my meal. It’s a condition so painful to live with. I thought that after some time passed, it would get better, but it’s not getting any better at all.
I haven’t been diagnosed but I suspect I have gastroparesis! I have the symptoms and I only weigh 90lbs! I’ve been doing a modified Paleo diet which emphasizes fatty foods as a means of energy in comparison to sugar! Which often makes me nauseous! I’m hoping if I adopt some of these suggestions it will help! I don’t want to have a bunch of testing done…..when there’s really no solution except lifestyle changes!
There are some medications that help. When people get extremely low weight that can develop problems with digestion that warrants speaking with a physician further.
Thanks so much for this video. I am vegan I only get gas and bloating if I eat beans or broccoli. I love them but try not to eat them. I have lost so much weight it is scary and I can't gain although I eat. I believe I got this condition from either Covid or being given Cipro for an infection. It was only after taking the cipro I started having bowel and constipation problems along with rapid weight loss. So discouraged since I have been vegan for 15 years and avoid processed foods but now I have to be careful of the healthy foods. The constipation is driving me crazy and cannot seem to get it straightened out. I do drink smooth move tea and it helps some. By the way you are so handsome. I am sure I am old enough to be your mother or grandmother so not hitting on you! 🤪
I was diagnosed with this a few years ago but I don't have any of these symptoms and when I had the tracer scan, I was only there for an hour... they projected my results which I don't think is a correct way to identify a gut condition. For example I ate porridge with the tracer.... why would porridge in your stomach cause stomach upset when a steak can be in your stomach for several hours and causes no-one problems. I feel like it was a tick box exercise and they don't know what's wrong. My symptoms are merely acid reflux and bloating. Mostly I find liquids are what cause acid reflux. I don't feel full and can eat anything in any amount. So someone please advise as I feel I was fobbed off. I don vomit or have any bowel issues. I have always been sensitive to fibre and has bowel problems when I was born - but these problems just cleared up over night.... same as this current situation, I can go months with no issues then suddenly have a bout of crappy reflux and bloating.
Get used to fasting especially for type 2 diabetics. Eat 1 meal a day and practice intermittent fasting. When you taste burnt eggs/Sulphur that means old food is still in there, either voluntarily force vomiting or take digestive enzymes and ginger to help empty it. If you're type 2 diabetic and you are very used to how much insulin it takes to get your blood sugar down quickly, and if you know your sugar is high or you ate excess sugar recently, then take enough insulin to get it down quickly and often you'll feel it empty as you feel slight hypoglycemic symptoms. This is how i get mine to clear. I start immediately as soon as i taste sulphur because if you do nothing and it stays within your stomach too long without adequate digestive enzymes to break it down, then SIBO can result when it does finally enter your small intestine. There are herbs like oregano, wormwood, black walnut, and others that also help keep bad gut bacteria from overgrowth.
I was having trouble swallowing food and I was throwing up. Esophagus was fine but stomach showed. I had Gastro paresis. That was a few weeks ago. In the meantime I’m chewing my food a lot more staying away from soda and too much fiber shoot I was always looking for fiber and things, so now I don’t. I have not had any bad times with this disease thankfully so I’m just wondering if it’s ever really gonna hit me hard? So far so good I’m not suffering like some of these poor people are I hope I don’t start either.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have EDS and am considering getting seen about this as well. and being somebody who’s a little bit overweight, I always dismissed my symptoms, even when they were super severe, after I ate a salad for instance. I had to be type two, IBS, maybe I was over eating. none of that was true. hearing that fatty and FIBEROUS! meals are the hardest to digest just put two and two together for me. I always struggled eating salads, and they made me feel awful, and I always felt so ashamed of it. getting seen because of this video, thank you 🤞
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder like EDS) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I know of a 15 year old girl who has never been able to eat via her mouth. She has been depending on being fed by tube feeding since she was 9 months old. She is connected to her tubes for 22 hours every day. She has to carry 2 pumps with her in her backpack during that time, one going to her stomach and one going to her small intestine. The condition is rare and incurable (as of today) and mostly overlooked by the medical institutions. Despite all of this she has become an amazing singer, having already won 2 vocal competitions (for kids), and being on a World tour with an orchestra (as a guest singer) as we speak. We are looking for a solution. Is there research going on with regards to this kind of extreme case of Gastroparesis?
Thanks for sharing. That’s a great patient success story. Gastroparesis is horrible - it’s essentially stomach failure. G POEM has been helpful for some. Gastric pacing has also worked well for some cases. I hope the pacing improves given how far it’s come for cardiac conditions.
She should try taking a tilt table test to determine if she suffers from dysautonomia. In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My specialist believes I have a mild case and I get a vapour aspiration type reflux into my Sinus, no regurgitation problems or heartburn but wake in the middle of the night with lower abdominal pain that radiates to my back, I've tried erythromycin, made me sick, prucalopride, worked for bowel movements but lost weight tried anti depressant drugs ginger and artichoke as well, I can still eat and don't get nausea or vomit but can't seem to shake my other symtoms
I’ve been sick for a few years and multiple hospital admissions. Just diagnosed this year. This disease is debilitating, isolating and wreaks havoc on your mental health 😢
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have a client that suffers from gastroparisis. However she is adamant on wanting to perform resistance training. My gut tells me this is extremely dangerous. Are there exercises that would help her feel engaged without triggering severe symptoms?
Hi Mark I think I might have this condition but I think it's drug related. I'm on a nerve blocker called pregabalin and I am wondering if there is a correlation since the paralysis seems to be related to nerve damage. Do you think it's worth discussing coming off this medication and do you think it's possible to reverse the damage?
Sigh my condition got worse after I was hospitalised n took gabapentin as per doc. I came back with very bad reflux and my digestive area were much more bloated. Drinking water also also digest slow. Those who are on these medications please try to ween it off because even my bladder area hurts now. I’m tired of medications side effects. Try sound healing and acupuncture if u can.
I'm up every night, full of air, stomach bloating, cannot eat much and when I do eat anything if feels likr it just sits there im my stomach for many hours.
I lost over 200lbs in a year and a half and was in and out of the hospital for a long time. I was very underweight and they were going to do the feeding tube but then I just started smoking marijuana every day and now I can eat a lot more than I could before with no issues and I'm a healthy weight again. I just never touch raw vegetables or whole grains. I can eat fatty foods, fully cooked veggies, most fruits, beans and eggs again. I used to only be able to consume my food as a liquid. I'm not saying anyone should do what I have done but it's really interesting how it seems to actually improve my gut motility and not just relieve symptoms of nausea. My quality of life has improved so much. I just had a chicken salad the other day for the first time in almost ten years with no issues. The only time I really notice marijuana doesn't help much is the week before and the first few days of my period.
I have serve pain in my upper abdomen and it go to my back. It s excruciating and it Last for days on end. I took pain pills but it just goes away for about an hour and then return. Please advise me what to use to make it go away. I can't sleep at night
Good God I am only 48 and have a neuromuscular disorder that is attacking my gi tract… have jackhammer esophagus, messed up LES, gastroparesis and severe asthma on the side! What a horrible way to live. 😢 the chronic pain and infections are just horrific. It’s hard to live to work to be happy and calm! I am just so overwhelmed.
Thanks for sharing. Have biopsies of your esophagus or stomach shown any abnormality? Did bloodwork identify any specific antibodies to pinpoint what’s driving this?
@@MarkCooperMDmy dr said it’s idiopathic or maybe it’s related to the vagus nerve. I had delta covid and was disabled for 5 months and I’ve been sick ever since… 3 years. I am on pamelor for the chest pain I get for the jackhammer esophagus and I think that med can make gastroparesis worse. My stomach has been bad my whole life. All I know is now i have this neuromuscular disorder of some sort. I tested + for lupus for 2 yrs after I had delta covid but could not handle those meds. It’s just too much!
@ my daughter does have Ehlers Danlos and POTS so maybe I do too? I know gastroparesis goes hand in hand with Ehlers. So far my daughter does not have issues with her gi tract.
Hi doc! I've been having the exact symptoms of gastroparesis for almost 2 weeks and what's worse is that I think it is caused by my blood sugar level. I've having an anxiety most of the time because if ever I have this disease, it would be too hard for me because im not rich and I can't maintain a regular check up or go to a nutritionist or buy the necessary food. My question is how can I provide myself food while maintaining my sugar? I'm only 23 yrs old
@@MarkCooperMD thank u. I have already consulted a doctor and he said my sugar is normal. His prescriptions are avarin and ranzole for my guts problem. This afternoon, I had my first poop for 3 days. I think it's a good sign but my concern is I have chills. Is that a side effect? Or another problem? I'm still anxious. I don't have a contact to that doctor since he is far I went home to the rural area. Do you have a platform where I can contact you directly and ask you questions?
@Penny hi. My conditions have improved. It turned out to be just an effect of anxiety and depression because I have a lot of worries at the back of my mind and so it affected my vision and my digestion and my weight. Although, this was not diagnosed by a doctor but I'm pretty sure it is linked to stress because I got better the moment I learned how to manage it.
I was diagnosed with Crohn’s and everything you said I do, cook vegetables, no sodas, no salads and I still ended up in the hospital with horrible pain, 😭😭😭😭 I will throwing up the stomach acid, my stomach and intestines are horrible.
I have been diagnosticated with gastroparesis 2 months ago. I have been suffering from it from 2 years now, and I am 26 years old. I have lost 30kg withouth doing nothing. Every time I incline my torso up, I feel a deep orrendous pain in the bottom of the esofaous/ beginning of the mounth of the stomach. It is horrible, you will lose weight, you will feel satiated with half a pizza if not less, chronic pain every day at least for 1-2 hours a day
Hey doc, is post viral gastroparesis something that clears up? Pretty sure I got norovirus in February and again in may and have had symptoms off and on ever since.
i had spinal fusion years ago didnt connect it as i also lost my galll bladder all the docs i hVE SEEN WANT TO do this operation but i think its more like my nervous system
I have Gastroparesis. It can be very painful. I'm tired of having stomach problems. I have to see a specialist this month in August, about Gastroparesis. Ive had gallbladder surgery done last year I had to have it removed people tell me with having that surgery done can cause Gastroparesis. But yet my doctor doesn't want to believe that it could be from that . But it's got to be caused by something. I also have had low platelets in the past .
There is so much frustration with this......don't eat this, don't drink that, watch the sugar......I'm not diabetic, I do not have gallbladder because oh that's what's wrong with your stomach......not. 8 years later and I'm getting worse at 56. Why is there not more help out there if specialists know what it is? The nausea is awful but not a lot out there about the abdominal pain that radiates into your back not to mention take this to be able to go to bathroom and then get ready for days of staying in the bathroom afraid to shop unless you know where every bathroom is located!! Yes frustration is high with this and seriously, not much help!!!
I agree it’s frustrating for me as a doctor. It’s infinitely more frustrating for patients. But you go into medicine hoping to help people and this is a disease where the help isn’t very good. It’s crippling for many patients.
That will give you good fiber. It may be easier on your stomach. Some of the complex carbohydrates we can’t break down will not be broken down by a food processor either. These chemical bonds need enzymes to be broken. Therefore these foods may still cause gas in the lower GI tract.
Back in August of 2023 I found out that I have gastroparesis. I've had 3 abdominal surgeries in 4mos... now my new doctor thinks the old doctor (who did the first two surgeries) messed up my stomach vagus nerve. Living with this sucks. Everyday I'm nauseated or throwing up... the stomach pains hurt so bad even with me following the new diet plan.
Thank you Doctor for this vidoes ,since taking Probitoics it gave me Diarhea and lately I dont know what is this condition called I have an urge to pass stool but its too hard if I eat fat and meat the stool very hard I get an urge regularly but its very hard to clear bowels ,shall I take probiotics or anything else ?
Just diagnosed last week after suffering for months. Then just tossed into the water, no help for debilitating pain or why this even happened to me. What the hell. 😢
My 23 yr old son has been been suffering for nearly 5 years has recently been diagnosed with this its heartbreaking watching him suffer. His weight is deteriorating that bad that he goes in this Thursday to be tube fed 😢
I’m sorry he’s had to go through that. What time of the year did his symptoms start? I think some of these cases are related to seasonal viruses. Unfortunately we are also seeing many young people (and also retirees) develop nausea and vomiting related to marijuana overuse. It seems to be more common as laws have been loosened and modern strains of the plant seem to be supercharged, with more potent effects (and thereby side effects).
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
We need a more timely video that addresses the burgeoning problem with gastroparesis that can result after taking weight management drugs like Ozempic and Wegovy.
I’ve thought about that. Though you’ve pretty much summed it up. These meds slow gastric emptying which is essentially medically induced gastroparesis.
I thought it was because i ate late and went to bed early without giving my stomach time ro have the food move from the stomach to the intestines. Would wake up hours maybe 1 or 2 later with nausea and pain in my abdomen, right under the ribs area. Then some uncomfort on my back. Would not be able to sleep and just go to the restroom to see if it's that. Then, if pissible, throw up, and sometimes that helped. But today i started to feel the same pain, around 2pm, and i haven't even layed down. If this keeps up ima have to go to the doctor to see whats up. Its really uncomfortable and at times painful.
I’m sorry you suffered this complication. It’s why I aim to get as much relief as we can without surgery. From what you describe you had an injury of the vagal nerve?
My 15 year old son was just diagnosed after months of being sick following his perforated appendix surgery. Eating is a struggle for him and he drinks lots of boost which can’t be good right? Any good suggestions on types of diets to try? He is currently on erythromycin but already tried quite a few other meds with no relief
I’m sorry to hear this has happened to your son. I wonder what the exact cause and effect was to make this occur. Over time I think there are a lot of cases that are related to infection. I don’t think we have a good medication for this and we should perhaps be looking towards pacing devices. While they are available and used they remain rudimentary compared to cardiac pacing. If he needs to drink boost, let him. You might try smoothies that have a variety of vegetables and fruits and high quality yogurt base (for protein).
@@MarkCooperMD thank you so much for responding. Yes he was put into a diagnosis clinic through children’s hospital once they could not figure out what was wrong. They believe it was related to an infection and after weeks in the hospital on iv antibiotics we are now doing this treatment. I will look more into the pace type machines and bring it up to his dr team. Thank you so much for meal replacement ideas!! Please continue your great work!!
I have GP as well, 10 years now. We don't necessarily eat for health, we eat to live. Sometimes the food may not be the most nutritious, but its food to feed our bodies. Don't do fad diets, that won't work. Just have him eat what he can when he can. Also what works for one person, will not work for another. But typically low fiber, low fat. Avoid fruits and veggies with skin(or just remove it.) Bone broth, greek yogurt, fruit smoothies, pureed veggies soups. No steak. Trial and error what works, keep a food journal. It is going to be a long road unfortunately.
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I eat plantbased and have gastroparesis (im on tubefeeding now for 3 month). If my tube gets removed, can I eat beans and lentils if I blend them? When we blend the fiber, is it then less of a problem? Thanks.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I've lost 40 pounds in the past 6 months. I love eating food but this illness has stopped me from enjoying that. I want to eat like I used to. Is there any way for me to get back to the weight I once was?
Specific answer would require some blood work and knowledge of your diet. But in general actual need of supplements is uncommon. If supplement makers only sold to those who needed them then they would have a small business!
Could you help me figure out the cause of my Gastroparesis? I’m 25 and I’ve been having stomach problems like functional dyspepsia and gerd, and now I just got this. And I’m miserable. I started noticing digestion problems after these things I did: - i was on a high fiber diet for like maybe a month or two, especially high fiber dinner -I had a very VERY filling meal at a buffet, it was to the point I thought my stomach was gonna explode. I experienced some minor pain at a certain spot in my stomach for a couple days after. Could that caused damage to my nerve?
All of these symptoms sometimes overlap with an underlying issue of the stomach not emptying normally. Overworking the stomach with a large meal will cause discomfort, just as over doing weights will leave you muscles sore. However you should recover over days, just as your muscles would after a strenuous work out. You may benefit from being evaluated in clinic. I hope you find the information helpful to understand the assessment your doctors recommend.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and functional dyspepsia. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My 14 yr old son is getting vertigo and vomiting within 30 min of eating/drinking anything. He had an upper endoscopy which showed he still had food in the stomach, suggesting gastroparesis. This week he had a gastric emptying scan (using Ensure plus drink) and it was normal. Could it still be gastroparesis? Is vertigo common with gastroparesis?
It's a very difficult condition to live with. Like, how in the heck did my nerves get so damaged? And there goes intermittent fasting if I have to eat 5 smaller meals throughout the day. There must be something that will cure this.
nver heard what foods all it was to eat smaller meals. i get no help i am miserable with gasand bloat i stay in fasted state until i cant take the growling tummy anymore and feel weak
@Mark cooper, thank you for the information. Do we need to keep the serving small even if it’s a smoothie? Ones I have been diagnosed, it’s been about 80% under control now, and considering I was so chronically ill from every symptom that gastroparesis causes. No medication. I just follow the diet guidelines for about 70% of the time. And walk an hour later after my meal. And never go to bed on a full stomach. I sometimes go for a walk very late at night if I had late meal. Walk walk walk. My dinner is between 4:30- 5:30, and I have juice around 7pm and big glass of warm lemon water before bed to help with constipation. But I do get a flare up occasionally if I exercise within the hour after a meal. I can only exercise on an empty stomach other I feel very nausea.
Hi i am 4 months post Covid since January of this year . I’ve been have gut issue’s recently when I went out for dinner I ate a big meal and I felt super sick and had upper abdominal bloating .. I brushed it off the next but I wasn’t well for the next 2 days . I went out with a friend last Thursday for lunch and had a sandwich and coffee I instantly felt short of breath and super sick I had diarrhea 2 times then and haven’t had it since .. I’m just worried that I might have this condition as I haven’t been able to go to the bathroom since last week I go little bits here and there but my left side hurts and I’ve had a lot of acid reflex since I have a dr app next week just still really Nausea
With my GP I can't eat much of anything, but I am still alive, just in agonizing pain every single day since 2014. They say that what doesn't kill you makes you stronger, yeah, I call bullshit! I had to go on medication just to control my snapping at people because of the pain I am in.
This is seriously depressed to live with. I've always ate healthy, exercised and get rest. People treat themselves like absolute garbage and get away with more it's just not fair man. I'm not even 30 yet 😔🥴
Sorry to hear this. Is there a clear diagnosis or underlying cause if you’re otherwise healthy?
I'm 33 and this is exactly how I feel. Life is just unfair. My quality of life. Hope and faith keep me going!
I'm so sorry, my husband lives with this too and it kills me to see him going through this everday and he's just going to be 30 this year.
Same experience here. I wonder how many of us that have this were born by c-section. I have the feeling that this is the unfair root of my gastroparesis.
Same I’m 20 and turn 21 in May. I genuinely don’t want to live anymore. I’m so tired of this
Something you left out is that it can be EXTREMELY PAINFUL. I have delayed digestion with liquids as well so I have to drink small amounts all day. I do not have diabetes. It can be idiopathic and also caused from previous abdominal surgeries.
Thank you for keeping people aware this exists!
We get a bad rep because we don’t always “look sick”
Mine also involves migraines as well.
It’s a very debilitating disease.
Liquids are even more delayed for me than solids-after the liquid emptying test, I still had 100% of the liquid remaining in my stomach (solid emptying was also severely delayed). When my upper GI surgeon performed a scope, he noted a complete absence of peristalsis. Most often the food would just sit there until it was dumped, which did terrible things to my blood sugar (and I'm not even diabetic). After not getting any relief from medications like maxalon and domperidone (plus modifying my diet), I had an Enterra II implanted in 2016 and it made a huge difference in my life, taking my symptoms from severe to mild-moderate (still experiencing daily issues but generally not severely painful and with modifications to my diet, able to eat and drink enough to maintain a healthy weight and nutrient status).
I'm pregnant now (something we could only dream about five years ago) and my symptoms have significantly exacerbated again. We expected this might occur and have a management plan in place, but it's really brought back just how bad it was pre-implant. I've just got another five months to get through and hopefully will bounce back.
I really hope you're able to find some relief for yours. I have multiple chronic health issues due to Ehlers-Danlos but gastroparesis is definitely one of the worst. I wouldn't wish it on my worst enemy, so I'm really sorry you're living through this hell. 😞
I’m glad you had good outcomes with the implant device. It’s not always easy to find surgeons who can help with that. As yet there’s no endoscopic method to implant a device but I think it will be technical feasible soon. That could prove a major breakthrough. Meds just don’t work well.
@@MarkCooperMD Yes, it would be incredible if the procedure (and others like it) could be performed endoscopically! The gastroscopy I mentioned was performed prior to the Enterra being implanted as part of a trial (nasogastric leads attached to the interior stomach wall with clips connected to an external device), the actual implant was done laparoscopically-just mentioning this for others, as I know you're well aware of the techniques involved.
I feel incredibly fortunate to have found a surgeon who deals with the devices. He's one of only a few in Australia and he only receives funding to implant five devices each year through our public health system. It hasn't all been smooth sailing (required a subsequent omentopexy to provide some padding around the leads as they were causing irritation) and it interacted with another implanted device I have, but all things considered, it's made such a huge difference to my life.
I didn't know Gastroparesis can cause migraines thanks for letting me know.
@@daniellegreig489 I hear you about liquids. Ain't no waterslide here, either. It just lies there on top of my undigested baby food making me feel like I'm going to barf.
I am 14 and got diagnosed with mild gastroparesis today. All I can say is thank you to the doctors who believed me when I sobbed in pain, my mom never believed me even though she’s a professional nurse and my dad told me it was all in my head and that it was just anxiety. I hate this so much
How are you feeling? My family is literally been telling me the same thing. What are you taking for it?
@@marceld8961nothing Yet but antacids have helped
Ask ur drs if linzess would help u it helped me
Another thing when I start getting dick lije today I had to go to er a g.i. cocktail I'd the fastest way to get a person out of pain in their stomach g.i. cocktail is lidocaine and malox so if u go to the er tell them to try a gi cocktail once u can hold a Lil down the numbing works wonders
SAME. all my doctors and parents thought it was just anxiety, you should have seen their face when the doctor told them😭😂
I got diagnosed in 2022, got it after getting very dehydrated after getting sick from covid and eventually got a blood clot. I was only 17. Now I can't even eat dairy without my body rejecting it. I can't even digest it. I avoid raw veggies and beef products because it gives me horrible stomach cramps. I also have lost a lot of confidence because I lost a lot of weight. I used to eat a full meal usually have seconds and not feel full. Now I can't even finish a plate of small portions without feeling incredibly full. I still am getting used to it, I've only lived with it for two years. But some days ared definitely better than others
Wait a minute I got Covid Jan 2022 and developed a blood clot in my foot area I also found out I had gallstones had gall bladder sugery March 20 2022 sand we had some of the same symptoms oh I’m type 2 diabetic
@@Loluxmarie that's so scary I'm glad you're okay now! I keep hearing ppl get crazy things from covid. But I am sorry that happened to you, I hope you're doing ok now
Look for high dose thiamine (B1) videos. Maybe that can help.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases, dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis.
@sergiosantibanez4437 no I haven't! But I will definitely ask my doctor about it. Thank you for the information 💓
I was born with Gastroschisis and this is the diet I was recommended- really sucks to have to be in and out of the hospital in my 20s with an NG tube
This condition is truly horrible. I have been dealing with it since 1997 and it has gotten much worse over the last 10 years. I can't even drink a smoothie now because even smoothies cause severe bloating.
Sorry to hear that as smoothies can be a good option. An upcoming video will discuss the impact of excess fructose and may give you some ideas to help modify what you’re doing. Thanks for watching and I hope you get some relief!
Have you tried taking ginger & artichoke?
@@Rob__James ginger seems to soothe the GI tract. Bitters have been used to stimulate the appetite and some Italian apertivos and Amaro use artichoke. I would expect the fiber of the artichoke to be difficult to digest. Have you found these helpful? No reason not to try as the right food can be the best medicine, especially for your GI system.
The answer to fight it, is complex and requires intense work. Its all about fysical exercise , to oxynate your nerves and system in general.. one nerve lead to another, and so, it can be very deep in the system that those nerves that cause the main problem are located. Before getting acces to those, you need to clear all those roads that lead to them. Basicly you have alot of gas/inflammation in your nerves/veins/muscles, and it is blocking blood flow. Your vagus nerve is compromised, and is that one, that is responsible for making your stomach contract and squeeze content into the colons normally, 3 times a minute. Its now sorta paralysed, and thous you cant eat and digest normal..so you want to go all out on exercise, to put oxygen into as many parts of the body… dayli..run, sweat, cold showers, stretch, build home gym, etc.. do it all… it might take years, but atleast your are fighting and not just seeing the body shut down. It is basicly all symptoms, of a main issue somewhere causing a blockage of your system running free. You want to research and put as much into schedule to know what to do everyday. Healing is possible… i am about 3 years into this battle. Full time… and i am roughly 70 % healed. Do not accept this, as something that cant get better. It can…. Most of my pains went away. I am getting stronger.. track your progress. Notify how much you can do.. feel motivation. Take alot of relaxation.. breath into those nerves in isometric exercises. It will make new blood flow into the local area, and thous clean your pipes. Drink water.. get a healthy routine.. dont eat before bed. Mistakes are lessons. Strong is the way throu it… ive actually for a long time, overeaten some unhealthy cake (lots) in the evening, to then immidietly vommit it up, and that actually cause the remains from lunch that is still bothering me, to be squezzed down, and then after vommit, i am sorta feeling good.. so theres alot of trix and ajustments you can do.. a healthy neck and neck exercises are really great, because vagusnerve to stomac signal, from the brain, runs throu the neck.. so alot of neck exercises might be really beneficial. Theres a great neck strenght equipment called iron neck. Look it up. I wish you the best.. dont accept it✌️✌️✌️✌️
@@silasgroenning Thank you so much for taking the time to write all of this. I appreciate it so much! God bless you!
Yes definitely works. And one thing I have learned that to go small even when consuming liquid foods and drinking water. Thank you so much for helping us understand it.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I fast a lot. A lot. Just reached out to a dietician for hopefully some help to at least get 1000 calories per day. So frustrating. Always on the edge of hunger, because at leasr hunger is "safe" pain. Not really, but some days, it's better for me to spend the day light headed and hungry than on the edge of nausea, constipation and diarrhea.
100% ...but it makes you sicker...its very difficult to choose between pain or not eating
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases, dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis.
Ive been following all you stated for the past month now since being diagnosed with gastropresis. It took a year and many mis diagnosis but now i am learning to better treat it 🙏🏻🙏🏻 this is the worst thing to live with
Thanks for watching. It’s a privilege to share information that can be helpful.
My GP is recent to. Nerve damage from a hernia eruption in April this year. It us hard to live with! I do good and then not and I want everything I can't have. And the things I did like and can have, I'm so tired of all of them. It does suck!
@@claudiahillman606 try carnivore, not only you stop crave shitfood, you will feel full all over day. Just dont undereat, its almost impossible to overeat on meat+fat.
I was given a shot of extra strength trulicity without realize gastroparesis is a side effect… I would have never taken it if I had realized the extent of the damage it could cause. I’m a bigger person I didn’t anticipate such a horrible reaction, I actually have begged to be taken out of my misery but I know that’s an overreaction. I only just took the shot a couple of nights ago, I will not be taking any more shots because some people never got the side effects again and other people never lost the side effects even after stopping taking it. I don’t want any risk of having this be a life long condition if I have the chance to reverse it by doing nothing. I hope you all find peace. I have meditated on pain in therapy before, it works but it didn’t work on my stomach pains and nausea. You are troopers this is hell. Maybe there’s slightly worse things to be afflicted by but this is the kinda thing you wish on your worst enemies it’s a life of suffering
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
When I skip breakfust on a good day I feel great, then the moment after I eat I start feeling discomfort, extreme bloating, my mood goes down, i become anxious and a bit depressed. Then no digestion, start yearning a lot and feel sleepy and tired. I never come back to the stage before food. I thaugth tha anxiety and depresson was the caause, but its the othe way around.
Startin OMAD and Keto, will try for 90 days , main reason to not eat during the day, tried emzymes but no improvment.
This condition destroyed my academic career and other things, no one around me understands anything, they think I am lazy or somethin, it's horrible, life destroying in many ways.
I think that it a great idea. Look into carnivore as well maybe a version between keto and carnivore. Lots of great people on You Tube for advice on those lifestyles
I feel like this also. I feel so much better, mood wise, and physically when I don’t eat. But I know I have to. It’s very challenging. How has keto been working for you? I don’t do well with a lot of meat, or fat, so I don’t think I can try it.
@@corinnespanelewski4732 carnovor during the day and keto in the evening - but now im thinking about insulin reistance if I do that prolonged
I just want you to know that your comment truly resonated with me! Your words describe the exact same hell I’m living and have been trying to figure out for almost 18 months. It’s incredibly isolating so I want you to know an internet stranger sympathizes with you! Wishing you ‘relief’ when you need it and that your ‘good days’ increase! *sends virtual hug*
Oh how I feel this… 😞 and what sucks is nobody around me understands the pain and constant illness. I feel like I’m being looked at as over dramatic
I got very sick at 17 and I developed gastro paresis and some other chronic illnesses and I will say that gastro paresis is the worst one
What are your simptoms?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
We just found out that my 32 year old son has this. I feel so bad because he has been to the ER several times over the last few months and they never even considered or checked for this. He just found out today from his diabetic doctor. Thank you for this video it was very easy to understand and so helpful
How was it diagnosed? Has he found any relief from anything else?
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and even diabetes. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
As someone with Gastroparesis it’s so depressing and unfair to live with this condition. In august 20th was the day i was diagnosed with it and i was one tpn ( total parental nutrition ) which is nutrition trough IV. I got really sick after graduating from « respiratory therapist « in jun all of the sudden my health went downhill so up to TODAY i have a picc line that goes in my heart to get infusion, iv meds and hydration, and my surgeon can use for surgeries and a GJ feeding tube to suction the G and nutrition through the J. Its very debilitating and VERY PAINFUL condition. When i got diagnosed they were saying it’s unknown but 3 month ago heen diagnosed with type 2 diabetes and now i have to give myself insulin shots Twice a day. Am hoping to get a gastric pacemaker to help me with my emptying stomach because they told me as diabetic gastroparesis patient i will benefit from it. AM REALLY REALLY hoping they will find medications or surgery to help patient with their symptoms. Even tho there isn’t meds or surgeries available which is super super unfair!!!
I’m suffering now with this
I’ve been in hospital 2 times in the last 4 weeks
It’s so painful - I would not wish this on my worst enemy
I’m 58 and only got diagnosed 4 weeks ago
I have an over active thyroid as well which does not help - double whammy
👎👎😠😠🫤🫤😢😢🇬🇧🇬🇧🏴🏴
Ill be praying for u man im sorry to hear that
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and even diabetes. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Paralysed Stomach !! Gastroparesis ……I’ve had this since 2000 and it hellish !! Best thing to do is to work on stomach muscles, firm up the pelvic floor, and follow the correct diet …….try to lessen the use of motility drugs firstly by eating the right foods and keeping your health in check !!
It’s a hard journey but keep at it and don’t give up 💪👊✊🙏😎🌺
Thank you for talking about what helped your condition. I am glad you are on the road to recovery and your normal routine. 🎉🎉
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
The Greek word Gastro-paresis literally translates to: stomach - paralyzed. Emma Kok from my country is a prime example who is hooked up to a stomach/intestine pump 22 hours a day! She also sings Voilà beautifully
Ice chips help alot!! I cant drink even water without getting nauseous but ice chips always help!! Hopefully this helps some people. I know how depressing and exhausting gastroparesis is
Thank you. i’ll try it. I get so frustrated when these videos show acceptable “ gastroparesis” meals, when I can’t even drink water.
@@andsoitgoes1142 water makes my so nauseous. I drink Body Armor instead.
i also recommend pedialyte popsicles! they’re easy to get down then liquids and extra hydrating during flare ups
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
@ no i have never even heard of that but thank you so much for the adivice !! I am a diabetic which is what they say causes it but i am for sure gonna bring this up to my doctor any type of advice is helpful so thank you !!
Ive been having all these symptoms since a long time. Had my gallbladder removed coz of gall stones which made this problem worse. Been suffering from pancreatitis for last 7 yrs since my surgery. Thank u ao much for this video. Now I know the actual problem and have Gastro appointment later today. Will defo spk to thm about this. Really hope they will investigate this soon😊
I hope you have a good appointment
@@MarkCooperMD Thank you!
My wife got gasteroparesis after a botched gallbladder surgery as well
@@UnsettlingDwarfsame thing happened to my wife and hers is getting worse. Any help? Or tips?
Same here...and all i hear is :'oh I had my galbladder removed without a problem'...well good for you....when I met de surgeon for removal, he said only problem with removal was some bleeding, otherwise nothing....not that i had a choice, my galbladder was giving problems every week...hope you are doing good.
I got a G-POEM surgery and it pretty much eliminated my Gastroparesis. Thank goodness. I had the disease for many years.
Awesome. I find the concept very compelling and have heard great things. Technically it should be easier than POEM in the esophagus though I’d wonder about bleeding risks with how vascular the stomach is. Any issues with bloating or diarrhea afterwards? Thanks for watching and congratulations on your success!
I’ve got multiple sclerosis and the endoscopist thinks it’s the likely cause of delayed gastric emptying. I’ve been referred to a gastroenterologist to confirm the diagnosis. I’m full but hungry most of the time with stomach pain, it’s horrible. Thanks for the info.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis, diabetes and maybe even multiple sclerosis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I’ve been underweight my whole life and people have always made comments on my body, I was diagnosed with gastroparesis in college and now I’m trying to gain weight but I’m practically never hungry and force myself to eat till I’m going to throw up but even then I can’t eat enough, no one in my life fully gets it, they just advise me to eat more and don’t understand I am trying, I’m also tired all the time, I feel so depressed and alone.
@@MR-cw2gy im sorry to hear that, have you got your results back? I know, it’s hard, I wish doctors could do more for us.
Maybe tubefeeding can help you? I lost a lot of weight and there is this gastric rest where you dont eatfor 3 month and only water of Black tea (max 500 ml). And they say you can reset your stumach for a time...im on week 6 now and hope everything goes good after this. My Weight is stabel now...hope to gain some
I'm exactly the same. Haven't been diagnosed yet but all the symptoms line up. I've also been underweight my whole life. I've never had the urge to eat when I wasn't starving and when I do try to eat more during the day, I instantly feel full and nauseous. Currently, getting even ONE meal in a day is a struggle. It's like there's food already lodged in my throat and stomach and I'm just adding to the undigested pile. I don't wish this upon anybody. It's made my life hell and I'm not even 30.
I may be late to this but you're not alone. I got diagnosed in 2019 had a surgery last year and although I'm not getting sick. I eat like a bird. I'm staying in weight rage only cause I only eat highly processed foods that digest easy. That's 2 foods and 1 group of a snacks I rotate, eat in bed, trying to sleep through the painful digestion. I pray there's been improvement? The thought of eating 5 small meals a day sounds like hell to me. I'm not hungry and truly. Force feeding only makes me hate food. Please, I'm with you, be bummed with me, maybe we could be a good support. Praying things are improving 🕊️🙏
@@LukeMM95 Yo, that sucks I had a major surgery exactly a year ago. It was a mess, I was nearly rotted in there and they took a lot. My chronic pain is gone as is the vomiting. I do however barely eat unless crap. I go for highly processed foods and eat in bed to sleep away the painful digestion. I had a thing called "plugging" my gastric outlet, also called GOO was ubstructed. Maybe same with you. I threw up a mozzarella stick hours after eating and it was a missle. That's when I knew that outlet was too tiny and the slightest chunk was stuck. It would happen each time I ate. Now it's pizza bites, 1 specific type hot pocket and candy in bed. My cholesterol is now high lol. No one understands and don't get me started on being cold. I'm miserable at 70 degrees. It hurts being thin
*Surgery might be your best bet cause the endoscopy didn't show nearly how horrible it was. 4 days in the hospital and a blood transfusion. It's scary but they need to go look
Rx Reglan is really helping me. I'm finally able to gain some weight. I was very malnutritious. Thank you for the awareness video, Merry Christmas 🎄
Glad reglan is helping you. I’m sure you were counseled on Tardives Dyskinesia when it was prescribed.
I'm glad it helps you but be careful of the severe side effects don't over use
@@thebigmann81 Reglan scares me. Guess it's a trade off, but I couldn't even consider it.
my stomach is 87% food retention after 4 hours, Reglan I cannot take due to severe side effects, way too many. waiting for Botox injection in my lower valve to keep it open.
.
There is a better alternative. It is not prescribed in the US, only in Canada. Donperion , i may be spelling it wrong. My doctors took me off Reglan quickly. Side Effects are too dominant especially for long term use. @mt.shasta6097
My Gastro doctor says I have functional dyspepsia. I get a lot of pain after eating bloating. Stress makes it worse. It’s like a hypersensitivity of the stomach. It’s insane.
Makes sense as you describe it. And yes, it can be difficult to control.
What were you advised and prescribed?
Thanks for watching!
@@MarkCooperMD I was prescribed desipramine it’s a tca antidepressant . It helps reduce that brain gut connection. Also buspirone 30 minutes before meals to help with gastric accommodation. Have you heard of this stuff?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and functional dyspepsia. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Thank you so much for your honest reviews of baby food! My family thinks I’m crazy but this is a great way to get nutrition when you don’t feel like making puréed food.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My daughter and I have severe gastroparesis. Because we both only hypoglycaemia we need to have something just before we go to bed. It is so frustrating for us. My condition was worsened by having a whipples procedure and despite my daughter having no surgery she has the condition worse than I do. We have EDS and MCAS too. It is not how I envisaged our lives would be.
I’m sorry to hear this. Your last statement gets to the heart of what makes chronic medical conditions so difficult. Do you find anything helps?
This sounds like my mum and I, she's doing everything she possibly can to support me through the same issues she faces every day and I'm sure you are doing the same for your daughter. Be proud of yourselves, these are very difficult things to live with and you're doing so well :)
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I had abdominal surgeries (open MALS, hernia repair). Barrett’s esophagus and now gastroparesis. Even a sip of water just sits there. The bloating gets very painful and I lost 15 lbs the past 6 months. We just have to exercise and do the best we can.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have it but not diabetes. I have Autonmic dysfunction and POTs but im trying to heal it through the mind and healing my vagas nerve through meditation and visualization 😊
you're superstitious and that does not work.
As soon as my sister started treating her dysautonomia (a form of autonomic dysfunction) with fludrocortisone, her symptoms of gastroparesis disappeared.
I had severe gastro, by the time I got to the hospital I was so depleted that I had to go on a feeding tube, since it tales 5 to 6 weeks for G-poem to be approved by insurance. I would not have made it. Since G=poem no nausea no vomiting no restrictions since day one .Overnight stay went back to work, eat almost everything. Life is great. God Bless
G poem is great from what I’ve read and seen. It’s a specialized procedure without many GI docs doing it yet.
@@MarkCooperMD I tried to post the hospital and surgeons name, but You tube took down my posts. that I had placed all over you tube, Dirty Dogs. I learned about G-poem , but did not know where to get it until I was in dire straights and was told by a doctor from a hospital I was currently in where to go. Thank God I would be dead.
@@MarkCooperMD They erased my last reply to you
I posted the name of my surgeon and hospital all over so people would know where to go all erased.
Most major academic centers are doing G POEM.
If the symptoms persist your doctor should inform you about a G-POEM procedure which I had two weeks ago. But I had to do several tests and I am hoping that I will feel better in a month or so. Mine is unknown apart from the fact that I had a viral infection, I don't vomit but it was the bloating, early satiety, nausea and discomfort in the stomach as well as regurgitation that got me fed up. Before the surgery I had a high resolution endoflip done to check if I am suitable for the G-POEM as mine was classed mild/borderline. And I was informed that my pylorus was quite tight after the surgery which was widened carefully to help empty the stomach quicker. I felt awful post surgery and I am worried about having GERD but didn't get the Nissen Fonduplication because it can make me worse and the reflux symptoms should go away if this surgery works. I have a follow up with my gastroenterologist next week to get some help regarding the post surgery symptoms.
These are exciting and I’m looking forward to more data and plan to cover this here. It’s not widely available-where was yours done?
I had mine done in London, I thought it didn't work however after 3 months the stomach started resetting and now I feel like I never had it, the stomach still needs to adjust itself and it will take another year or so, I might have few symptoms occasionally but nothing related to emptying, also it's essential to take Esomeprazole to help with the acid reduction. I lost hope but the G-POEM saved me. I would urge anyone suffering to get their pylorus checked or have a botox injection to see if it helps and go from there, I had 3 professors discussing my case because it was borderline before they decided it's the right procedure for me, cause it couldn't harm me if it didn't work, you just need a good surgeon who will make the right cut as if they cut too much you can experience dumping syndrome which is basically the stomach is emptying too fast and you will suffer horrible symptoms. I hope my post helps people. The procedure is still fairly new and my surgeon performed 90 cases I was number 90 and they were all successful. I had to take sucralfate to coat my stomach or help it heal after the surgery, it literally stopped all the symptoms and was a great help for the slow but worthy recovery.
@larashin what is the doctors name?
How r u doing with the surgery?
@larashin how r u doing now ??
I've been dealing with this for years but I don't know why. I don't have diabetes and haven't had any recent surgeries. I cant eat a normal size meal or my stomach just shuts down.
Same here😢
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Got diagnosed with this in August, was having trouble keeping any food down. Figured it may have been just something to do with my acid reflux, but got diagnosed through an esophagogastroduodenoscopy (try saying that 5 times fast). Not diabetic (glucose in normal range and pancreas is functioning well according to tests), but I guess since those with autism are more likely to develop gastrointestinal issues, this is how it's manifesting physically. Believe me when I say it's not a pleasant experience. If the meds are forgotten for even a night, I'm in pain for the rest of the following day
Was a gastric emptying study performed? It’s rare (but happens) that I’m sufficiently convinced of gastroparesis based on an EGD alone.
No other test than the EGD, may have to ask the gastro about that just to confirm. We figured the issue was an ulcer and although I hadn't eaten for a good 12 hours before the procedure, they noticed there was still food in the stomach.
If there was an ulcer it may interfere with normal stomach emptying. When the ulcer heals hopefully it all returns to normal.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
11/04/2024 Hello from Schulenburg, Texas 😊 Thank doctor Mark Cooper this was an amazing video ❤ I'm 63 with very Weak muscles in my stomach beans I had four children and four c sections and have done much heavy lifting in my life anyway I think with what you said in this video With the little exercise for my stomach and eating 5 small meawesome a day, I believe that I will heal.And strengthen my stomach muscles at least I hope again thank you doctor ❤
Thank you. Are you an Aggie or Longhorn? There’s definitely a right answer…
Around a month ago I had signs of this and I’m about to get an appointment I have experienced severe weight loss nausea bloating and early satiety, I have turned 13 a couple of months ago
So sorry hon you are very young to have to deal with this but since you are young maybe you will heal! Best of luck to you!
@@blee309 thank you! Im about to get tested for multiple things soon! Thank you very much❤️
how is it going now?
@@mohidd Im doing way better! Turns out I am allergic to gluten and that was what caused all the reactions! thank you for asking!
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
☹️ this is the worst thing I’ve ever had to deal with. Waking up EVERY SINGLE DAY with extreme nausea and just wanting to throw up. Sometimes literally the only thing that helps is hours in the hot bath. 😔
Pluuuuuus there’s all the damage to my teeth from my the actual vomiting 😢
I use a heated pillow...because some days getting out of the tub is to much, to painfull...heathelps a lot
@@natuurlijkwasbaar6563 hey! I’m gonna try that!!!!! Thank you for the idea!
I have the same issue. Waking up nausea every day for the last year 1/2. No help from MD. Horrible way of life.
@@hermoinedavisluckett9217 if you can get them to give you a prescription for the sublingual zofran….. that thing is AMAZING. But it has to be the one that goes under your tongue. It helps almost instantly. I promise you it will help!!
I recently found out I have gastroparesis. After weeks and weeks of tests finally have an answer. Looking back I've had very mild gastroparesis probably my whole life. Feeling super full before I even had dinner but still ate and ended up puking it up anyway. Recently it has gotten really bad. I ended up having the begining stages of malnutition. Its going to take a while to adjust my eating. Like steak. I would rather give up oxygen than steak. Any suggestions?
I was recently diagnosed. Currently the only thing that seems to make sense is eat “more solid” meals in the early part of the day, “more liquid” meals in the afternoon and evening.
@@randibroadway4084I find this too.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Excellent tips . Thanks
Liquids sit in my stomach for hours and sound like an ocean all day. Very nauseating and fills like you have a blockage. Wouldn't the solution to the root cause of gastroparesis be to stimulate the vagus nerve? Theoretically that is what makes the stomach empty correct?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
i'm in palliative care for my gastroparesis. even with a pyloroplasty, ges, medications, and diet changes. i still have all my symptoms, but worse now. it absolutely sucks.
It's very hard depression I'm in the hospital now and haven't ate 4 days now no cure
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
The reasons behind gastropersis make sense. I am not diabetic but I did suffer with C-Diff and diagnosed gastropersis about six months after.
Iv had it 14yrs now iv done everything I'm at the end of my wit I'm so lost the daily pain nusea and vomiting is just to much idont want to die i just dont want to suffer nomore I have no life at all
I’ve only been diagnosed with it for 3 years and I feel the same way you do. I reconnected with my high school sweetheart, but this condition has made me shy away. He was the one who got away. And now that he’s back, I can’t have him because I’ve isolated myself. I don’t want to make him as miserable as I am.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
PLEASE READ THIS. My 20-year-old sister suffered from uninterrupted, severe stomach pain and severe nausea for almost 3 years due to gastroparesis (which by the way was super hard to diagnose). She visited probably over 50 doctors from different specialties, tried multiple medications, resorted to alternatives like acupuncture and homeopathy and nothing lessened her pain or nausea in those 3 years. Frustrated with seeing my sister suffer, I decided to look for testimonies from other people with gastroparesis and that's how I found a video ("What made my gastroparesis better?" from Izzy K DNA) suggesting it could be linked to dysautonomia. Thanks to that video my family and I decided to find out if my sister had dysautonomia and it turned out that she did. When we started treating her dysautonomia (in this case with fludrocortisone), the pain, nausea and all kinds of discomfort derived from her gastroparesis disappeared after 3 tortuous years.
I would like to express my empathy to all those people who are suffering from gastroparesis and beg them, if it is within their possibilities, to take a tilt table test to find out if they suffer from dysautonomia (or other autonomous nervous system disorder), since it turns out to be the origin of gastroparesis, other functional gastrointestinal problems and many other diseases. It is a noninvasive 30-minute test and at the end it can be determined with certainty whether or not the person has dysautonomia.
If you want to know more about my sister's case, gastroparesis, dysautonomia or other cases of functional gastrointestinal problems that turned out to be caused by dysautonomia, write to me at info@dysautonomia.mx and I will gladly answer you.
I have mine with extreme migraine. I have hEDs and am told that’s the reason I have it.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder, like EDS) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
So glad I have gastroparesis and no teeth LOL you did an excellent job explaining this it's helping me understand it better but still no resolve I hate you gastroparesis
Gastroparesis is terrible.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
This video really helped. Thank you! 🙏
Ive had this since I was eleven. Only found out what was wrong at 35. I am unfortunately one of the people that gets severe pain, was at the hospital 30-50 times for the pain and no one could ever tell me what is was, doctors said it was pain from stress. Now it happens about once every 2 weeks and then i cant eat for 3 days.
Very informative, thank you. Can you advise us on the best digestive enzymes to purchase. I checked Amazon and noticed that some reviews report negative effects on a few brands. What should we be looking for?
Papaya enzymes
Thank you. I will try those for a while. It might work for me too.@@shanalynn16
I don't know if i have gastroparesis but i can eat 6-7 hours before bed and still be full when trying to sleep i hate it so much. I only eat two meals a day and i have to pretty much force myself to eat because i don't want to get any skinnier but eating is such a struggle. I've always had slight digestive problems but now at 23 years old it's worse and affecting me daily. When i got covid almost two years ago my stomach became paralyzed for a whole day and i couldn't eat anything. I was tired all the time but if i laid down i felt like i would vomit so i had to immediately get back up. That only lasted one day though the next weeks would just be like a flu on steroids, the paralyzing digestion part was weird i didn't know covid could do that. Much earlier this year i got sick again, like a little cold but again one of the strange symptoms was I felt full for much longer than usual which prevented me from sleeping. A little later in the year like in early spring I noticed now I couldn't sleep because i was so full even though i hadn't eaten in like six hours. After that day it's become a consistent problem which is why i only eat twice a day but still suffer.
Try increasing your stomach acid with hcl supplements. Acv and/or lemon water can help before or after meals to speed up digestion.
@@truth_hurtz678 ok thanks, I started taking this Chinese medicine herb granules called zhi zhu tang and it's helped, I'll look into hcl supplements
Around half a year ago, I went to the ER for vomitting blood. As soon as I arrived, they performed gastric lavage. The doctor diagnosed me that my condition was due to overeating+food poisoning, which made me vomit so violently that my esophagus bled. Since then, I have been experiencing early satiety. I feel nauseous all the time. And I feel full to the point of almost vomitting even if I only eat half my meal. It’s a condition so painful to live with. I thought that after some time passed, it would get better, but it’s not getting any better at all.
I had it since birth and I just live with it lol. I found that over processed foods and popcorn can be the worst ones
Great tips.
I haven’t been diagnosed but I suspect I have gastroparesis! I have the symptoms and I only weigh 90lbs! I’ve been doing a modified Paleo diet which emphasizes fatty foods as a means of energy in comparison to sugar! Which often makes me nauseous! I’m hoping if I adopt some of these suggestions it will help! I don’t want to have a bunch of testing done…..when there’s really no solution except lifestyle changes!
There are some medications that help. When people get extremely low weight that can develop problems with digestion that warrants speaking with a physician further.
Thanks so much for this video. I am vegan I only get gas and bloating if I eat beans or broccoli. I love them but try not to eat them. I have lost so much weight it is scary and I can't gain although I eat. I believe I got this condition from either Covid or being given Cipro for an infection. It was only after taking the cipro I started having bowel and constipation problems along with rapid weight loss. So discouraged since I have been vegan for 15 years and avoid processed foods but now I have to be careful of the healthy foods. The constipation is driving me crazy and cannot seem to get it straightened out. I do drink smooth move tea and it helps some. By the way you are so handsome. I am sure I am old enough to be your mother or grandmother so not hitting on you! 🤪
Kind of late to comment, but dried dates have helped keep me somewhat regular and avoiding bread. BUT bread is my weakness. =(
@@Phoenix-bn5ec thank you I just bought more dates this week. Trying to eat 2 a morning. Appreciate your feedback!
I was diagnosed with this a few years ago but I don't have any of these symptoms and when I had the tracer scan, I was only there for an hour... they projected my results which I don't think is a correct way to identify a gut condition. For example I ate porridge with the tracer.... why would porridge in your stomach cause stomach upset when a steak can be in your stomach for several hours and causes no-one problems. I feel like it was a tick box exercise and they don't know what's wrong. My symptoms are merely acid reflux and bloating. Mostly I find liquids are what cause acid reflux. I don't feel full and can eat anything in any amount. So someone please advise as I feel I was fobbed off. I don vomit or have any bowel issues. I have always been sensitive to fibre and has bowel problems when I was born - but these problems just cleared up over night.... same as this current situation, I can go months with no issues then suddenly have a bout of crappy reflux and bloating.
Get used to fasting especially for type 2 diabetics. Eat 1 meal a day and practice intermittent fasting. When you taste burnt eggs/Sulphur that means old food is still in there, either voluntarily force vomiting or take digestive enzymes and ginger to help empty it. If you're type 2 diabetic and you are very used to how much insulin it takes to get your blood sugar down quickly, and if you know your sugar is high or you ate excess sugar recently, then take enough insulin to get it down quickly and often you'll feel it empty as you feel slight hypoglycemic symptoms. This is how i get mine to clear. I start immediately as soon as i taste sulphur because if you do nothing and it stays within your stomach too long without adequate digestive enzymes to break it down, then SIBO can result when it does finally enter your small intestine. There are herbs like oregano, wormwood, black walnut, and others that also help keep bad gut bacteria from overgrowth.
I was having trouble swallowing food and I was throwing up. Esophagus was fine but stomach showed. I had Gastro paresis. That was a few weeks ago. In the meantime I’m chewing my food a lot more staying away from soda and too much fiber shoot I was always looking for fiber and things, so now I don’t. I have not had any bad times with this disease thankfully so I’m just wondering if it’s ever really gonna hit me hard? So far so good I’m not suffering like some of these poor people are I hope I don’t start either.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My Dr put me on Fod Map Diet . It’s been easier than I thought to get use to.
Super useful video. Thanks Sir
My last brain surgery left me mostly unable to walk and partial use of arms but the Gastroparesis has disabled me!
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have EDS and am considering getting seen about this as well. and being somebody who’s a little bit overweight, I always dismissed my symptoms, even when they were super severe, after I ate a salad for instance. I had to be type two, IBS, maybe I was over eating. none of that was true. hearing that fatty and FIBEROUS! meals are the hardest to digest just put two and two together for me. I always struggled eating salads, and they made me feel awful, and I always felt so ashamed of it. getting seen because of this video, thank you 🤞
EDS has a lot of GI motility issues and is very challenging. I hope you find some relief and I’m glad this was helpful to you. Thanks for sharing.
Have you tried taking a tilt table test to determine if you suffer from dysautonomia as a result of EDS? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder like EDS) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I know of a 15 year old girl who has never been able to eat via her mouth. She has been depending on being fed by tube feeding since she was 9 months old. She is connected to her tubes for 22 hours every day. She has to carry 2 pumps with her in her backpack during that time, one going to her stomach and one going to her small intestine. The condition is rare and incurable (as of today) and mostly overlooked by the medical institutions. Despite all of this she has become an amazing singer, having already won 2 vocal competitions (for kids), and being on a World tour with an orchestra (as a guest singer) as we speak. We are looking for a solution. Is there research going on with regards to this kind of extreme case of Gastroparesis?
Thanks for sharing. That’s a great patient success story. Gastroparesis is horrible - it’s essentially stomach failure. G POEM has been helpful for some. Gastric pacing has also worked well for some cases. I hope the pacing improves given how far it’s come for cardiac conditions.
She should try taking a tilt table test to determine if she suffers from dysautonomia. In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My specialist believes I have a mild case and I get a vapour aspiration type reflux into my Sinus, no regurgitation problems or heartburn but wake in the middle of the night with lower abdominal pain that radiates to my back, I've tried erythromycin, made me sick, prucalopride, worked for bowel movements but lost weight tried anti depressant drugs ginger and artichoke as well, I can still eat and don't get nausea or vomit but can't seem to shake my other symtoms
I’ve been sick for a few years and multiple hospital admissions. Just diagnosed this year. This disease is debilitating, isolating and wreaks havoc on your mental health 😢
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I have a client that suffers from gastroparisis. However she is adamant on wanting to perform resistance training. My gut tells me this is extremely dangerous. Are there exercises that would help her feel engaged without triggering severe symptoms?
Yes, walking will work.
Hi Mark
I think I might have this condition but I think it's drug related. I'm on a nerve blocker called pregabalin and I am wondering if there is a correlation since the paralysis seems to be related to nerve damage. Do you think it's worth discussing coming off this medication and do you think it's possible to reverse the damage?
Gabapentin can slow the GI tract. Certainly worth discussing. I would not stop suddenly. Thanks for watching.
Sigh my condition got worse after I was hospitalised n took gabapentin as per doc. I came back with very bad reflux and my digestive area were much more bloated. Drinking water also also digest slow. Those who are on these medications please try to ween it off because even my bladder area hurts now. I’m tired of medications side effects. Try sound healing and acupuncture if u can.
I'm up every night, full of air, stomach bloating, cannot eat much and when I do eat anything if feels likr it just sits there im my stomach for many hours.
I lost over 200lbs in a year and a half and was in and out of the hospital for a long time. I was very underweight and they were going to do the feeding tube but then I just started smoking marijuana every day and now I can eat a lot more than I could before with no issues and I'm a healthy weight again. I just never touch raw vegetables or whole grains. I can eat fatty foods, fully cooked veggies, most fruits, beans and eggs again. I used to only be able to consume my food as a liquid. I'm not saying anyone should do what I have done but it's really interesting how it seems to actually improve my gut motility and not just relieve symptoms of nausea. My quality of life has improved so much. I just had a chicken salad the other day for the first time in almost ten years with no issues. The only time I really notice marijuana doesn't help much is the week before and the first few days of my period.
Amen marijuana!!!Marijuana!!!! Miracle drug!!!
I have serve pain in my upper abdomen and it go to my back. It s excruciating and it Last for days on end. I took pain pills but it just goes away for about an hour and then return. Please advise me what to use to make it go away. I can't sleep at night
Good God I am only 48 and have a neuromuscular disorder that is attacking my gi tract… have jackhammer esophagus, messed up LES, gastroparesis and severe asthma on the side! What a horrible way to live. 😢 the chronic pain and infections are just horrific. It’s hard to live to work to be happy and calm! I am just so overwhelmed.
Thanks for sharing. Have biopsies of your esophagus or stomach shown any abnormality? Did bloodwork identify any specific antibodies to pinpoint what’s driving this?
@@MarkCooperMDmy dr said it’s idiopathic or maybe it’s related to the vagus nerve. I had delta covid and was disabled for 5 months and I’ve been sick ever since… 3 years. I am on pamelor for the chest pain I get for the jackhammer esophagus and I think that med can make gastroparesis worse. My stomach has been bad my whole life. All I know is now i have this neuromuscular disorder of some sort. I tested + for lupus for 2 yrs after I had delta covid but could not handle those meds. It’s just too much!
@ my daughter does have Ehlers Danlos and POTS so maybe I do too? I know gastroparesis goes hand in hand with Ehlers. So far my daughter does not have issues with her gi tract.
Hi doc! I've been having the exact symptoms of gastroparesis for almost 2 weeks and what's worse is that I think it is caused by my blood sugar level. I've having an anxiety most of the time because if ever I have this disease, it would be too hard for me because im not rich and I can't maintain a regular check up or go to a nutritionist or buy the necessary food. My question is how can I provide myself food while maintaining my sugar? I'm only 23 yrs old
In the short term it may be viral and hopefully passes. But ultimately a diagnosis requires evaluation by a physician through an appointment.
@@MarkCooperMD thank u. I have already consulted a doctor and he said my sugar is normal. His prescriptions are avarin and ranzole for my guts problem. This afternoon, I had my first poop for 3 days. I think it's a good sign but my concern is I have chills. Is that a side effect? Or another problem? I'm still anxious. I don't have a contact to that doctor since he is far I went home to the rural area. Do you have a platform where I can contact you directly and ask you questions?
@@itsyourdude.7284 sorry that’s hard to deal with. My videos are informational only and I do not provide medical advice outside of my clinic. Thanks.
@@MarkCooperMD OK thank you for sharing your knowledge♥️
@Penny hi. My conditions have improved. It turned out to be just an effect of anxiety and depression because I have a lot of worries at the back of my mind and so it affected my vision and my digestion and my weight. Although, this was not diagnosed by a doctor but I'm pretty sure it is linked to stress because I got better the moment I learned how to manage it.
If we need to avoid nuts and grains, is almond milk and soy milk not okay to consume?
Depends on why you were told to avoid these. If for tree nut sensitivity or allergies, then almond milk may be problematic.
I was diagnosed with Crohn’s and everything you said I do, cook vegetables, no sodas, no salads and I still ended up in the hospital with horrible pain, 😭😭😭😭 I will throwing up the stomach acid, my stomach and intestines are horrible.
@@e.s.92 How are you now
I have been diagnosticated with gastroparesis 2 months ago. I have been suffering from it from 2 years now, and I am 26 years old.
I have lost 30kg withouth doing nothing. Every time I incline my torso up, I feel a deep orrendous pain in the bottom of the esofaous/ beginning of the mounth of the stomach. It is horrible, you will lose weight, you will feel satiated with half a pizza if not less, chronic pain every day at least for 1-2 hours a day
Hey doc, is post viral gastroparesis something that clears up? Pretty sure I got norovirus in February and again in may and have had symptoms off and on ever since.
I got severe constipation after norivirus. The doctor says it is post infection ibs. I was told to keep eating a lot of fiber. It usually goes away.
Thx doc. I get it.
i had spinal fusion years ago didnt connect it as i also lost my galll bladder all the docs i hVE SEEN WANT TO do this operation but i think its more like my nervous system
I have Gastroparesis. It can be very painful. I'm tired of having stomach problems. I have to see a specialist this month in August, about Gastroparesis. Ive had gallbladder surgery done last year I had to have it removed people tell me with having that surgery done can cause Gastroparesis. But yet my doctor doesn't want to believe that it could be from that . But it's got to be caused by something. I also have had low platelets in the past .
My wife had had many GI problems since gallbladder removed
There is so much frustration with this......don't eat this, don't drink that, watch the sugar......I'm not diabetic, I do not have gallbladder because oh that's what's wrong with your stomach......not. 8 years later and I'm getting worse at 56. Why is there not more help out there if specialists know what it is? The nausea is awful but not a lot out there about the abdominal pain that radiates into your back not to mention take this to be able to go to bathroom and then get ready for days of staying in the bathroom afraid to shop unless you know where every bathroom is located!! Yes frustration is high with this and seriously, not much help!!!
I agree it’s frustrating for me as a doctor. It’s infinitely more frustrating for patients. But you go into medicine hoping to help people and this is a disease where the help isn’t very good. It’s crippling for many patients.
@@MarkCooperMD can you help me I have questions
If I puree cooked broccoli, cauliflower or beans will that be helpful??
That will give you good fiber. It may be easier on your stomach. Some of the complex carbohydrates we can’t break down will not be broken down by a food processor either. These chemical bonds need enzymes to be broken. Therefore these foods may still cause gas in the lower GI tract.
Any advice for HEDS gastroparesis in early stages where water and gatorade isn’t staying down?
Back in August of 2023 I found out that I have gastroparesis. I've had 3 abdominal surgeries in 4mos... now my new doctor thinks the old doctor (who did the first two surgeries) messed up my stomach vagus nerve.
Living with this sucks. Everyday I'm nauseated or throwing up... the stomach pains hurt so bad even with me following the new diet plan.
Thank you Doctor for this vidoes ,since taking Probitoics it gave me Diarhea and lately I dont know what is this condition called I have an urge to pass stool but its too hard if I eat fat and meat the stool very hard I get an urge regularly but its very hard to clear bowels ,shall I take probiotics or anything else ?
Just diagnosed last week after suffering for months. Then just tossed into the water, no help for debilitating pain or why this even happened to me. What the hell. 😢
My 23 yr old son has been been suffering for nearly 5 years has recently been diagnosed with this its heartbreaking watching him suffer. His weight is deteriorating that bad that he goes in this Thursday to be tube fed 😢
I’m sorry he’s had to go through that. What time of the year did his symptoms start? I think some of these cases are related to seasonal viruses.
Unfortunately we are also seeing many young people (and also retirees) develop nausea and vomiting related to marijuana overuse. It seems to be more common as laws have been loosened and modern strains of the plant seem to be supercharged, with more potent effects (and thereby side effects).
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I’m a type 1 Diabetic since I was 14 and I’ve been dealing with Gastroparesis for over a year now. I’m going to be turning 30 soon, life sucks 😔
We need a more timely video that addresses the burgeoning problem with gastroparesis that can result after taking weight management drugs like Ozempic and Wegovy.
I’ve thought about that. Though you’ve pretty much summed it up. These meds slow gastric emptying which is essentially medically induced gastroparesis.
I thought it was because i ate late and went to bed early without giving my stomach time ro have the food move from the stomach to the intestines. Would wake up hours maybe 1 or 2 later with nausea and pain in my abdomen, right under the ribs area. Then some uncomfort on my back. Would not be able to sleep and just go to the restroom to see if it's that. Then, if pissible, throw up, and sometimes that helped. But today i started to feel the same pain, around 2pm, and i haven't even layed down. If this keeps up ima have to go to the doctor to see whats up. Its really uncomfortable and at times painful.
Gasroparisis occured after hiatus hernia surgery. It has literally ruined my life. I’m 73 so who cares.
I’m sorry you suffered this complication. It’s why I aim to get as much relief as we can without surgery. From what you describe you had an injury of the vagal nerve?
My 15 year old son was just diagnosed after months of being sick following his perforated appendix surgery. Eating is a struggle for him and he drinks lots of boost which can’t be good right? Any good suggestions on types of diets to try? He is currently on erythromycin but already tried quite a few other meds with no relief
I’m sorry to hear this has happened to your son. I wonder what the exact cause and effect was to make this occur. Over time I think there are a lot of cases that are related to infection. I don’t think we have a good medication for this and we should perhaps be looking towards pacing devices. While they are available and used they remain rudimentary compared to cardiac pacing.
If he needs to drink boost, let him. You might try smoothies that have a variety of vegetables and fruits and high quality yogurt base (for protein).
@@MarkCooperMD thank you so much for responding. Yes he was put into a diagnosis clinic through children’s hospital once they could not figure out what was wrong. They believe it was related to an infection and after weeks in the hospital on iv antibiotics we are now doing this treatment. I will look more into the pace type machines and bring it up to his dr team. Thank you so much for meal replacement ideas!! Please continue your great work!!
I have GP as well, 10 years now. We don't necessarily eat for health, we eat to live. Sometimes the food may not be the most nutritious, but its food to feed our bodies. Don't do fad diets, that won't work. Just have him eat what he can when he can. Also what works for one person, will not work for another. But typically low fiber, low fat. Avoid fruits and veggies with skin(or just remove it.) Bone broth, greek yogurt, fruit smoothies, pureed veggies soups. No steak. Trial and error what works, keep a food journal. It is going to be a long road unfortunately.
Has he tried taking a tilt table test to determine if he suffers from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
I eat plantbased and have gastroparesis (im on tubefeeding now for 3 month). If my tube gets removed, can I eat beans and lentils if I blend them? When we blend the fiber, is it then less of a problem? Thanks.
How long it takes to recover from post viral gsstroparesis?
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
Shellfish made my life better. At 6’1” and 135 lbs, shellfish is what made my weight stabilize
Yes it hurts and I can be sick up to a week before I see any relief
I've lost 40 pounds in the past 6 months. I love eating food but this illness has stopped me from enjoying that. I want to eat like I used to. Is there any way for me to get back to the weight I once was?
Will multiple capsule supplements build up in stomach
Yes. I’ve seen that occur.
@@MarkCooperMD should I take supplements unless I need them.
I know you Prbly can’t answer that. But thanks for the first reply
Specific answer would require some blood work and knowledge of your diet. But in general actual need of supplements is uncommon. If supplement makers only sold to those who needed them then they would have a small business!
Could you help me figure out the cause of my Gastroparesis? I’m 25 and I’ve been having stomach problems like functional dyspepsia and gerd, and now I just got this. And I’m miserable.
I started noticing digestion problems after these things I did:
- i was on a high fiber diet for like maybe a month or two, especially high fiber dinner
-I had a very VERY filling meal at a buffet, it was to the point I thought my stomach was gonna explode. I experienced some minor pain at a certain spot in my stomach for a couple days after. Could that caused damage to my nerve?
All of these symptoms sometimes overlap with an underlying issue of the stomach not emptying normally. Overworking the stomach with a large meal will cause discomfort, just as over doing weights will leave you muscles sore. However you should recover over days, just as your muscles would after a strenuous work out. You may benefit from being evaluated in clinic. I hope you find the information helpful to understand the assessment your doctors recommend.
У меня тоже самое (
Have you tried taking a tilt table test to determine if you suffer from dysautonomia? In many cases (including my sister's case), dysautonomia (or other autonomic nervous system disorder) is the root cause of gastrointestinal functional disorders, such as gastroparesis and functional dyspepsia. When my sister started treating her dysautonomia with fludrocortisone, her gastroparesis symptoms disappeared.
My 14 yr old son is getting vertigo and vomiting within 30 min of eating/drinking anything. He had an upper endoscopy which showed he still had food in the stomach, suggesting gastroparesis. This week he had a gastric emptying scan (using Ensure plus drink) and it was normal. Could it still be gastroparesis? Is vertigo common with gastroparesis?
I have gastroparesis, and when I have a severe episode of vomiting, I also get vertigo. I am so tired of the symptoms 😢
it could be cyclical vomiting syndrome / abdominal migraines
It's a very difficult condition to live with. Like, how in the heck did my nerves get so damaged? And there goes intermittent fasting if I have to eat 5 smaller meals throughout the day. There must be something that will cure this.
nver heard what foods all it was to eat smaller meals. i get no help i am miserable with gasand bloat i stay in fasted state until i cant take the growling tummy anymore and feel weak
@Mark cooper, thank you for the information.
Do we need to keep the serving small even if it’s a smoothie?
Ones I have been diagnosed, it’s been about 80% under control now, and considering I was so
chronically ill from every symptom that gastroparesis causes. No medication.
I just follow the diet guidelines for about 70% of the time. And walk an hour later after my meal.
And never go to bed on a full stomach. I sometimes go for a walk very late at night if I had late meal. Walk walk walk.
My dinner is between 4:30- 5:30, and I have juice around 7pm and big glass of warm lemon water before bed to help with constipation.
But I do get a flare up occasionally if I exercise within the hour after a meal. I can only exercise on an empty stomach other I feel very nausea.
Thanks for this great summary of how you’ve coped. It usually helps to keep serving small.
@@MarkCooperMD 🙏🏻😊
Thank you 😊
Thanks for sharing!
Hi i am 4 months post Covid since January of this year . I’ve been have gut issue’s recently when I went out for dinner I ate a big meal and I felt super sick and had upper abdominal bloating .. I brushed it off the next but I wasn’t well for the next 2 days . I went out with a friend last Thursday for lunch and had a sandwich and coffee I instantly felt short of breath and super sick I had diarrhea 2 times then and haven’t had it since .. I’m just worried that I might have this condition as I haven’t been able to go to the bathroom since last week I go little bits here and there but my left side hurts and I’ve had a lot of acid reflex since I have a dr app next week just still really Nausea
How are you doing now?
With my GP I can't eat much of anything, but I am still alive, just in agonizing pain every single day since 2014. They say that what doesn't kill you makes you stronger, yeah, I call bullshit! I had to go on medication just to control my snapping at people because of the pain I am in.
I’m so sorry, I’m 14 and going through the same thing since December.. Your not alone
I puke alot i have celiac as well any advice