My Cancer Had Been There For YEARS! - Faye | Rare Appendix Cancer | The Patient Story
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- Опубликовано: 2 июл 2024
- At 39 years old, Faye's life took an unexpected turn when a routine surgery for an ovarian cyst led to a shocking rare cancer diagnosis.
In this cancer vlog, Faye candidly discusses her experiences, from the initial symptoms and diagnosis to undergoing an extensive grueling surgery. She opens up about the emotional and physical toll of her illness, her treatment journey, and the hope that keeps her moving forward.
Thank you, Faye, for sharing your story to help others.
#appendix #rarecancer #cancerpatient #cancersurvivor #patientstories #thepatientstory #cancertreatment #cancerprevention #cancersymptoms #hysterectomyrecovery
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Chapters:
0:00 I have a rare cancer that affects only 1 in 2 million people
2:44 The doctors found a tumor on my appendix
5:01 My rare cancer diagnosis and surgery
7:02 I expected to die during surgery
10:08 My long road to recovery
16:10 Cancer changed my outlook on life
19:05 Cancer is scary but you are not alone
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My Cancer Had Been There For YEARS! - Faye | Rare Appendix Cancer | The Patient Story
• My Cancer Had Been The...
A friend was diagnosed with this 10 years ago. She has gone through the mother of all surgeries twice. Her cancer was more advanced at the time of her first surgery, but she has been able to watch her son grow up and continues to thrive. Best wishes for continued good health.
This is great too hear ❤x
Yourc story is remarkable. You are very articulate when telling your story. I am also recovering from Cancer. Ovarian Cancer. I had a full historectomy. Also a rare cancer, Clear Cell Carcinoma. Little is known and no clear cure. I had chemo, despite the fact that it doesn't respond to chemo. I lost my hair. It really wasn't a big deal to me. I nought a wig. Kinda fun. I had radiation and it was much more effective.
Thank you for your detailed story. I will pray for healing for you. My faith in God has allowed me to get through everything very easily. I can't explain it. So I will pray for your complete healing.
Thank you Alina. I'm sorry to hear about your own battle
How have you felt after the hysterectomy? I have pelvic aches still but apart from that no sweats anymore
I always said to my mother "hair loss is minor when your still alive"
I hope you can be healed 🙏 xx
My daughter had this same disease in 2022 😢😢 she’s doing good but recently got diagnosed with another rare disease called CIDP. I’m grateful for videos like this. Trying to encourage my daughter to do the same
Awarness is so important x
Excellent video! She explained everything so clearly. I can’t imagine losing that many organs at once! She’s a strong woman!
Thank you ❤x
What a resilient and brave young lady you are ❤ best wishes for a long and healthy life xx
Thank you so much x
You are very well spoken. Thank you for sharing your story and being clear what the treatment was. Prayers for a full and complete healing.
Thank you x
Faye I follow Paul in Perth. I believe he has the exact same diagnosis. He is a wonderful person. Thought you might want to reach out to him. Sending prayers
HI I Had my appendix removed in February as a emergency. The hospital did biopsy they put it down as routine . I was told via call from consultant that my Appendix was cancer . Booked in to have my right Colon removed on 11th July. Thankyou for sharing as your right there is not enough about Appendical Cancer.
I wish you the best for your treatment x
Thankyouxxx
Sending you the best. 💙
Me too same thing and now they want me to do chemo but they never offer me the hípec treatment
@user-yt8ro7jv4g they will do chemo before I believe they can only offer this when tumour is a certain size. I know a few here who have had before chemo then HIPEC X
So brave of you to share your story to help other people. You are truly a remarkable person. Hope you make a full recovery and have a very happy life xx
Thank you Alison x
She said it the way it was for her. Brave women as can cancer can hit us all,
6 weeks for biopsy results?? Absolutely unacceptable!!!
Yes every week call saying sorry no MDT medical discussions no results 😢 really did spiral me x
I have a very rare cancer too. Took 6 weeks for diagnosis after surgery by the MDT. Quite a normal time for very rare cancers.
What a lovely lady u are, u have been through a lot. I’ll be praying for u. Wishing u all the best x
Thank you so much xx
What an amazing story, and person you are! You went through a lot, but I bet you'll have a long and healthy life ahead because of it!!
I hope so 1st scan November 🙏 for no evidence of disease x
You’re a smart, beautiful strong young woman. This could not have been easy for you at all. So glad you’re doing well and prayers you continue to stay healthy.
it is eye opening and absolutely brutal what doctors have learned they must do to battle some cancers. they must have seen some terrible stuff in the past to take this kind of radical action.
Wow! My husband had a Whipple surgery and I thought that was horrific. Your surgery tops them all. So glad you’re doing well.
Wow, aren't you amazing. Such a lovely lady. All good vibes coming your way sweetie. ❤ 🇺🇸
❤❤❤ thannk you xx
My daughter had appendix cancer, she did have pain and they took it seriously. She did have thyroid cancer about 6 yr ago, two types so she was treated with radiation and multiple nodes were removed along with the thyroid. The cancer in her appendix was a "hormonal" type that they said had migrated from her thyroid nodules. During a total hysterectomy 4 yr ago, there were no signs of cancer. She is still at a greater risk of other cancers now even though scans show nothing and the cancer in the appendix seemed to be isolated. Crazy word, when cancer starts as cellular changes that can't be seen.
Sending wishes for your daughter x
My daughter had this same cancer in 2022. They repeatedly diagnosed her as having an inflamed appendix. They finally took it out after months of ER visits. The tumor was super sized needless to say and cancerous. Praying for your daughter and you as well
A very good friend of mine had this exact diagnosis and operation and the HIPEC in 2020. It is a major surgery and full recovery took a very long time, but she is doing great and living her best life again. She had bloating that wouldn't go away and this is what it turned out to be. She is truly brave and so are you. Keep on healing and well done on spreading awareness. 🤗
I'm always grateful to hear people are doing wel it gives me alot of reassurance that I desperately need. Was she low grade? My 1st scan is November x
@@fayelouise7113 I will see her later today and ask. She had everything just like you had to have removed etc. Because it was during Covid her husband had to just drop her off at the hospital in Miami and wasn't allowed to even go in. I will show her this video and ask her to answer for you. (I'm also English, but in Florida.) She just had clear scans two week ago, she has to go every six months still.
@xMichelex I am annual so she may of had a different type to me low grade seem to be annually I had LAMN tell her I wish her the best and thank you xx
How can you survive without many organs in your life? Is there pain lifetime? Or any medicine to keep on?@@xMichelex
@@fayelouise7113 My friend Lauree said she had LAMN like you. I gave her the link to your video and she said she will comment here, maybe you can connect with her. xx
You are the epitome of strength and courage. And so well spoken. Well done.
Thank you for sharing your remarkable story.
Thank you for watching x
Thank you for sharing your story. Very inspiring ❤❤❤❤
Thank you for sharing your story. This means a lot to some people, you bring hope
Thank you❤
What an ordeal you have been through. Happy that you are currently NED. Your cancer seems very similar to a youtuber, Paul from Perth. He went through a treatment that sounds the same.
Yes I know Paul he has been through it poor guy but glad he is doing OK these days x
wow, you are some woman - my best wishes for you!
❤thank you x
Thank you for sharing ❤
❤️thank goodness you were able to keep your stomach ❤
Great informative video ❤
Thanks for sharing I’d never heard of it before listening to you. Hope you continue to thrive , you look great xx
Thank you so much ❤🎗I am glad more people are aware x
Great video. It's great you're doing so well. You're too young and I understand how bad it feels to think you can't be declared cancer free for decades. But some people don't get long periods of NED, they recur and need ongoing treatment and regular scans forever. Take the one per year and be happy you don't need more. I wish you all the best!!
Thank you I know some have it come back but 20% do and that's across all grade of pmp pseudomyxoma
I am just living life to fullest now while I can x
Bless your beautiful heart ❤️ I’m so glad you’re doing well. Stay strong 💪 I’m sending you so much love xxx
Well done you. I’m s happy you are doing well - your personality and honesty shines through. Enjoy the trees, flowers and everything else. 💕🙏🏻🌲
❤❤❤❤ thank you I certainly am xx
Thank you for all your kindness ❤❤
Thank you for your concern for all. That makes us worry and pray for you. 💕💕💕
May God give u strength ❤
You’re a young, beautiful, and very courageous and strong women.
❤thank you x
God Bless You. You are an inspiration to all.❤🙏
Thank you x
Brave woman bless 🙌
Thank you for this video. You’ve been through so much. I hope you’re NED until you’re declared entirely cancer-free.
Thank you and me xx
I had a HIPEC surgery in 2016 for the same cancer. My appendix was removed 3 months prior and two different hospitals determined I had the same cancer. My abdominal cavity was filled with the mucin. During the HIPEC surgery it was discovered ALL the mucin cancer was gone. I had many people praying for me and God answered the prayers. Unfortunately my surgeon made a mistake. I have had to have all my small and large intestines removed and my bladder. When God heals from cancer, it never returns. I’m expecting a creative miracle from Him. I thank God for the doctors, but my life is in The Lord’s hands, not man’s.
Sorry to hear about the mistake may I ask where you was treated? I was Basingstoke x
@@fayelouise7113 I was treated in Portland, Oregon. The surgeon thinks she touched my transverse colon with a hot cautery tool that created a blister. After I was sewn back up it burst. This was discovered three weeks later when I was very ill and went to the emergency. Unfortunately, they didn’t do another surgery to fix it for fifteen months and so much damage was done.
@@Cat-qn1yw omg!! Are you OK now? Still NED? X
@@fayelouise7113 I’m doing well, however my life is rather small because of fatigue and I am on nightly infusions for nutrition. I fortunately can eat , but not much is absorbed.
@@Cat-qn1yw sorry to hear this 😢 x
Yeah,.Paul in Perth also has this diagnosis and has been through the surgery. He's doing well, and is a good guy.
I'm glad he's doing well he has had one hell of a rough recovery 😢x
Yes he has..
My prayers for everyone who is suffering from Cancer and all illnesses 🙏🙏🙏🙏
Thank You for sharing your experience,it's very much appreciated 💕...I've just been diagnosed with Uterine Canver(a very aggressive form)..undergoing "scans" now(to see if it has 'spread' to other organs) before the hysterectomy AND to see if I'll be having chemotherapy before surgery as well as chemotherapy & radiation, afterwards..
Yours is only the second video I've watched. Even though the 'type' of cancer you experienced is very different from mine,I'm finding reassurance and knowledge from your video..Thank You again,I'll keep you in my prayers💕🙏🙌✝️🕊
Btw,I'm in Southern Tennessee (100 miles from Nashville,Tennessee🤠🎵🎸🎼🪕🎶) U.S.A.
I hope you have a successful treatment are much more than a diagnosis and a statistic xx
Wow that is sad.
I just learn yesterday that i have a appendice cancer but do not yet know what type ,thank you for your video
Have they done a biopsy? I hope your low grade and treatable x
This is a strange cancer..😢
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If not treated on time this can lead to having what's called the motherload of all surgeries. It's when the organs are scrubbed and it takes hours and hours. I cared for someone who had it and they're doing great many years later.
@@KMyer that is what I've had MOAS x
@@fayelouise7113 Ah ok, I stepped out of the room and missed the better part. You did great because it was VERY rough going through it for my relative. Even though they call it a pseudo cancer, her oncologist did not put her under any treatment but watched her for 5 years.
@KMyer yes watch and wait but I was given this operation if I get recurrence in future as I'm Low Grade LAMN I will have watch and wait more than Likely which will really torture me tbh x
@@fayelouise7113 It's going to take several years before you can relax and not think about it daily. I'm also a cancer survivor and while it doesn't go away, it gets easier over time. The stats are in your favour which means you can lead a long, healthy life. My relative was an extreme case, so much so that surgeons came just to watch the operation. She runs circles around me now.
There should have been suspicion though. Between the growth and the markers and the inflammation, those were ALL signs that doctors missed. Sad.
Inflammation was put down to the cyst as it can cause the markers to rise was never any mention of cancer at all when I went in for cyst operation laparotomy open surgery then they saw it x
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Remember we are MORE than a diagnosis and a statistic! Today i am taking on the 10K i have raised 2100 pounds so far for CRUK! x
When I was 15, in 1971, I was seized with severe stomach pains. I was sent to the hospital for exploratory surgery. I had a large ovarian cyst and an inflamed appendix. Both were removed. My friend's mom died of some sort of appendix cancer, goblet something?
Goblet cell is the really aggressive one 😢x
She described having six chest tubes, 2 in her chest, 2 in her waist and 2 in her pelvis. I thought Jackson Pratt drains were used in the pelvis and in the waist I did not know that you could put a chest tube there.
Just around my armpit area side. I have the two small scars x
@@fayelouise7113 were they able to use chest tubes in your waist and pelvis?
@@fayelouise7113 wishing you all the best in your recovery
@ny_njtrailrunnert926 no I was meant to day drains lol sorry x
I was meant to say I had 6 drains 2 in chest and other 4 lower sorry alot to remember x
I’ve had the best of luck,finding out that I’ve got a health problem by accident. It usually means that it’s still at a treatable stage.
I was lucky it was treated not everyone gets offered this surgery some just have debulking x
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i suspect that they check memory when something goes wrong during procedure... flatline... to see if you have brain damage. Most wont tell you if you did... don't want to get sued or lose license...
There is a team of 40 in the theatre during this kind of operation I was kept in ICU for a day and half so my body could rest before waking me up x
ive been watching quite alot of these videos and something ive noticed is that alot/most of these people say they had an active or healthy lifestyle....i dont understand what it implies.
are these people chosen for this channel so other people know that "healthy" people also get cancer?
are those people the ones that get cancer more?
it shouldn't be the case ,but if the majority of people you bring on, have the same story, the message gets quite distorted and confusing.
I didn't smoke and drank on occasions and I was active that is my healthy side x
i’ve said it before and ill say it again. i’d rather visit an african witch doctor than one of these corporate doctors/hospitals.
You look great. Maybe fumes from jets at airport? They cannot be good for your health overall.
Thanks but... jet fumes?? I'm nowhere near when it's on thrust and the fumes kick out...
@@fayelouise7113 You are not as far as you think. The winds carry those fumes miles. Also, the planes likely fill up with fuel near you. Not saying it caused it but who knows. Wonder if any other workers ever had similar health issues or cancers. Environment and "toxic load" account for a lot more than most people think. Glad you are doing so well. You look great.
@UTAH100 I had this 5 years not knowing... I been at Gatwick few years
I'm mostly inside running up and down jetty to captain and gate and back again lol
X
@@fayelouise7113 I hear you. So maybe it was just mostly genetic then...but even genetics get triggered by something. Test the water supply at your house. Sorry this happened to you but you are a rock star! Glad you are doing so well.
@UTAH100 pseudomyxoma isn't genetic there is no connection x