I insisted on a biopsy when they told me I was “too young” for breast cancer at 35. Surprise! I wasn’t too young. Mine was caught at a very early stage and here I am 30 years later.
Hello! I am 53 and had a full hysterectomy this past Feb! 3 weeks later I got a call from my Oncology Surgon( I had cancer on my Uterus but she thought she got it all during surgery)she made an appointment with me to come back in asap. She diagnosed me with stage 3B High Grade Carcinoma of the Endometrium which I had never heard of before which is a rare cancer. I have now gone through 2 Chemo treatment with my 3rd one coming up! I love life and plan on living the best I can! My goal now is to be around for my grandkids that I will one day have❤
I lost my husband, my mother and my best friend within a year. I was a mess, trying to survive grief and shock, with 5 children. I stopped going to the doctor because I figured if they found anything, I couldn't handle it. I felt a heaviness in my pelvis. It fleetingly crossed my mind that it was like something was in there, but pregnancy was not a possibility. I also lost a severe amount of weight and it was like I could feel my organs I was so skinny. When I finally went to the doctor, it was not my organs I was feeling, but 3 huge solid mass tumors. One was 7 inches across, and I am a small woman. Sent directly to the oncologist, I was told to make legal plans for my children if they lose me too, hinting that they were going to. I had surgery, having a full hysterectomy and to the doctors shock, all 3 giant tumors were benign.
Losing your hair is like losing dead weight. When I lost my last strand of hair, I was alchemically changed. I knew my life was getting better. I lost my last bit of cancer when I lost my hair
I had a double mastectomy a few years ago, and 6 months of chemotherapy! I kept teaching school during that time and am grateful it never came back. I continuously have skin cancers that are removed, and am grateful that I’m still alive at 78 and riding my horse almost every day!!❤ I think it takes a lot of courage to share your long journey with us, wishing u a long and healthy life!
I was diagnosed in Sept 2014 with IDC triple positive, node positive breast cancer. Dbl masect, chemo,red devil and taxol then herceptin. I also then in 2016 ? Was diagnosed with acral lentiginous melanoma. They told me it's linked to breast cancer. What a damn journey it's been but I'm grateful to be alive. I was sick for year prior and was told it was gastritis and I was crazy. My family locked me in a mental hospital for 3 days.. 6 months later I was diagnosed with aggressive bc and surgeon said I would have been dead in 6 months. I knew I had cancer.
I’ve been on a ten year journey with endometrial cancer. I’ve had a hysterectomy, colectomy, liver resection, chemo, radiation and still it goes on. Not very much research $$$ and much of the treatment is from the late 70’s. Advocate always for your own health and never settle.
I have a super rare gyno-cancer- stage 4 Carcinosarcoma and your story really struck a cord with me! I ignored sooooo many symptoms that in hindsight were super alarming. I am going the chemo route- and I am on Jemperli-taxil-carboplatin and just had my second round. I am balding and exhausted but my cancer marker went down at my last blood test so I’m feeling super hopeful! All my chemo warriors, god bless you!! I hope you’re all doing well.
@@jonnitrea I bled like crazy for months, had high fevers for like a month straight, an awful backache- super flu-like symptoms for months, heartburn, sooo many. Thanks love! You too!
Hi Amanda, I am a cancer survivor. I had uterine cancer and a tumor that enveloped my right overy. I had massive amounts of radiation. I chose to not have chemotherapy. Fortunately, my health is good after 15 years. But I eat healthy by eating healthy foods as well as vitamins and supplements. Congratulations on winning your battle! I have one awesome tip for you. I was exposed to black mold last year. I started giving myself a 20 minutefoot baths using water and food grade clay powder from Amazon. This healing modality is amazing.! The clay pulls toxins from your body. I always get a huge energy boost after my clay foot baths. I only do foot baths in the am, never in the evening. I want to ensure I can sleep well.
Ma'am prayers to you, you're a very beautiful lady and you're going to make it. I've been on death's doorstep a number of times and prayer saved me. God bless, Denis Berte' USMC (Nam 70-71)
You are a positive influence on others who are in cancer world. Breast cancer 8 yrs ago. Limbo isn’t fun. Decisions are difficult. God bless you in your future life.
Amen 🙏 healing for her, her family & whoever suffering of any illness in Jesus holy mighty name 🙏✝️💕The Lord IS our greatest physician 🙏 God bless you dear Angela&your loved ones in Jesus holy name 🙏💕
I was diagnosed 9 years ago with endometrial cancer following a hysteroscopy for post menopausal bleeding. I’d had a couple of male doctors tell me to just monitor the bleeding, we then moved into our newly built home and I saw a new, female doctor who told me no bleeding is acceptable and referred me to the gynae clinic at our local hospital. I did not expect a cancer diagnosis and within a week had seen an oncology gynaecologist and within another week had a total hysterectomy with bilateral oophorectomy. Luckily it was very early and I didn’t need any further treatment.
I had post meno bleeding & ran straight to my gyno. I had an endometrial biopsy, ultrasound, transvaginal ultrasound, CT scan & CA 125 blood test. Thankfully all was fine & I continue every 6 months for checkups . My gyno told me that bleeding after meno is not unheard of ,but should be investigated to be on the safe side. The same thing happened to my mom when she finished menopause ,but didn't get checked at all . She is 82 now 🤷
@@MadJak-g6r don’t be. I had a total hysterectomy with both ovaries removed. The surgery happened really quickly after diagnosis and recovery was pretty straightforward for me. The relief of knowing all the cancer was removed and there were no organs left for it to recur anyway has been enormous. I’m not saying I can never get cancer anywhere else in the future but that’s one major area that is no longer of concern. I had just started menopause so more children was not an issue. Something I’ve become aware of of since my diagnosis is the possible link between using baby powder down there and endometrial cancer. I used baby powder every time I bathed🤔🤔Who knows?
Thank you for sharing your beautiful but difficult journey with cancer/Lynch Syndrome. As a retired nurse, it was my privilege to care for many people with different illnesses including cancer, and also hospice patients. Now I am an advocate for several wonderful relatives who are living their best lives with cancer. My cousin absolutely rocked bald, and her lovely hair has come back. I lost 75% of my hair with Covid and I can relate somewhat with your difficulty, although I envy your gorgeous curly hair. ❤️🙏❤️
You probably know about this, but author Ami McKay wrote a moving memoir about her being diagnosed with Lynch Syndrome and what she did, and how she traced this back in her family history. It is called Before My Time. All the best to you!
@@pamelcakes04 I was tested last year. No Lynch but very high risk. Inherited risk. Your family history is of high importance. Lynch is very prominent in Eastern Europeans and Jewish people.
@@lynndinovo3500It is not just colon cancer...I have tested for lynch syndrome. And relatives had esophugial cancer, ovarian, multiple uteral cancers, liver and kidney lungs cancer...
I have been following Amanda’s RUclips channel She is such a beautiful and incredibly talented woman. It’s tragic how Amanda and her family have been through so much.
hi - thank you for your story x. I was diagnosed with endometrial cancer (high grade) at the age of 52 just before Christmas in 2021 where I had a full hysterectomy. I had radiation treatment and it affected the bones in my pelvis with hairline fractures. My mum also had the same cancer at the same age. I was tested and it was discovered I had Lynch Syndrome, MSH6. I have since had a colonoscopy and had my polyps removed which thankfully they were benign. I am now hoping that my kids do not have this faulty gene.
When I was 30 years old in 1998 I had a colonoscopy and they found a few polyps but wasn’t cancerous. My second oldest brother got colon cancer and wasn’t diagnosed until late in the stage and he declined any treatment. He passed away in 2020. In 2022 I was diagnosed with DCIS breast cancer. They did surgery and then radiation and I’ve been cancer free for two years now. Prayers to you to hand in there and stay strong. You’ve got this!
Similar story here with family. I had an aggressive form of dcis, had bilateral mast - 15 yrs post now. Hang in there - there are a lot of ups and downs but try to keep a positive attitude and a sense of humor. Hope you have a good support system. Best wishes 😊
I love how you were able to explain your pain. I experienced pain in both wrists. It felt as though they were uncooked noodles and they were being broken into a million pieces. I was diagnosed with stage 4 Cervical and stage 2 breast cancer, one month apart! I have the best oncology team and for that I am eternally grateful. Hope you are doing well today.
Thank you for sharing your story. The first thing I noticed was how beautiful you hair is!! As a fellow curly haired person I love it!! Secondly as a retired RN I cannot tell you how much the nurses wanted to tell you the diagnosis when we have to wait for the doctor to give you that information. Thank you again for sharing your story. ❤ I took chemo for my Multiple Sclerosis and it was a blessing for me. Don’t know if I would take it again. Also I had a port for my chemo.
Hello. I’m 56 and just had a hysterectomy/ ooferectomy. I had pre-cancer found in a D&C and we went straight to the h/o surgery. Pathology found Endometrial Carcinoma. My Oncologist & GYN both agreed that taking the steps we did caught it at the “perfect time”. It had just started to enter the muscle lining but had not made it to the half way mark. It was considered 1A and I do not have to do anything other than exams every 6 months. My 20 year old was diagnosed with Thyroid Cancer December of '23 after watching a lump in her neck for a year. Pathology found her lump still showed no signs of cancer a year after the first ultrasound. Luckily our ENT said let's be sure. The biopsy returned as cancer and we had her thyroid removed over spring break! She is now a Junior in college and just started wearing necklaces this month! I am so thankful we were both able to overcome our cancers. Thank you for sharing your story. I stumbled upon a story and yours came up next. Hearing your story and reading others comments makes me appreciate our results. I would like to follow you on your journey and I ‘d love to see your furniture work! Can you share your I /G or Tik Tok with us! I love to repaint furniture! I have a fun story about my mom painting my furniture pink in the 1970’s! She could have started a flipped business before they existed! Thinking of you and thank you again for sharing your story! Oh, and your short curly hair is very becoming on you! It looks great! ❤
Hello! First I would like to say you are so strong and beautiful! Thank you for sharing your life story! You are AMAZING and the voice that many need to make AWARENESS ❤❤❤❤ God bless you!! Sending love and prayers
Similar. 2004 was diagnosed with MGUS. (Beginning stage of Multiple Myeloma, which there is only watch & wait) if we did the Bence Jones test it could possibly show borderline Smoldering Myeloma. MGUS is considered a "blood disorder" & Smoldering Myeloma "cancer". Both are "watch & wait".... so we didn't do the test bc at the time 2004 it would be considered a "pre-existing" & could be denied insurance & life insurance. It was still hard to get w/ MGUS bc the chance of progressing - they gave me 5 yrs. ..... it didn't progress until 2022.
YOU ARE BEAUTIFUL INSIDE AND OUT .YOUR STRENGTH AND SPIRIT TO SHARE IS SO GENERIOUS WHEN YOU GAVE SO MUCH OF YOU PRIOR INTO EVERYTHING..THAT LOVING NATURE RETURNS BACK TO YOU AS I AM SO VERY HAPPY YOU HAVE MAINTAINED WELLNESS AND HAPPINESS AND LOVE THROUGH IT ALL. SENDING THE BIGGEST HUG I CAN FIND .🌼TERI
My names Amanda too and live in Seattle AND I flip furniture!! So crazy! I have stage 4 endometriosis and am having my 4th surgery to excise it all and get a hysterectomy. I’ve had polyps but have always wondered about cancer. It’s always in the back of my head. My surgery is this August
My name is also Amanda and I have stage 4 endometriosis and just had cancer removed from my cervix and my tubes removed i almost died after that surgery that was two months ago and I am still having complications and symptoms I had before my surgery have gotten worse , in my head as well something is literally push my right eye outward and I have horrible pains in the right side of my head that won’t go away with Tylenol and such my right eye also twitches now since my surgery very badly I’m in constant pain in my abdominal, my lower back , my bowls , I get short of breath and dizzy spells chest pain memory problems the list goes on the doctor I currently have which is the one who did my surgery that I almost died from is just overlooking most of my symptoms and just wants me to rush and do more surgeries which I found out that a hysterectomy will not keep endometriosis from coming back or it won’t keep the cancer from coming back either they both still can even after a hysterectomy, I’m 30 I have had symptoms now for over a year that has just gotten worse and worse I am still currently fighting to get the care that I need now it effects me horribly from even doing anything really my lymph nodes in my neck under arms and groin are also swollen and sore all the time , I wish I could find good doctors like she did because I have a very strong feeling that it has spread through my body and it’s growing rapidly oh and my doctor also left a 4 in cyst on my ovary that is cancerous and so hard she couldn’t get a biopsy so she just left it in me instead of taking the whole thing out especially after she already took my tubes without my knowledge until I woke up in critical condition, so just be careful just having surgery because once they cut in it , it makes it grow and most doctors don’t care about your well being anymore it’s all about the money and of course they will tell you , you need this because that’s what costs the most money or at least that’s how it is in Alabama
As soon as she said her Mum and Brother were diagnosed with cancer and then she got cancer, the first thing I thought was Lynch Syndrome. Anyone with a lot of family incidence of cancer of the bowel and reproductive organs should get tested for Lynch Syndrome and be followed closely by an oncologist to be proactive and find any cancer occurrences early.
I’m sorry maybe I didn’t understand,I’m a cancer patient been to 4 cancers. And what I know is when your diagnosed it’s protacal to doing imaging C T’s an MRI and pet to see if there spread or recuuamce an after every 3 or 6 mo for 5 years! Why wasn’t that big growth on pelvic didn’t show up till it was so big! I’m perplexed!!!??
Thank you for sharing your cancer journey with us. Your such a strong and beautiful lady Amanda. I had to giggle when you showed your head with super massive curls,that is exactly my hair atm,quite the challenge to say the least ...lol I wish you clean scans,many smiles and much love to you❤.
Thank you for sharing your story. I really appreciated the ides of the cancer registry. It would really help people to help others to set something up like that.
Ma'am you are so lovely, I wish you all the best, & indeed sometimes we just know when something is wrong & need to let the professionals know we know our own bodies.
You do have lucious, beautiful hair!!! I would have struggled too…but it is just hair. Hair is not life. I had gorgeous thick long brunette hair and I went bald within about 14 days! Didn’t love it but I got through it. The hardest part was others reactions…not being recognized. I shaved it completely bald at work surrounded by coworkers. I had cut my hair shorter in stages prior to chemo but nothing really prepares you for the gobs of hair just slipping off.🤢
My friend is a doctor and she has Mantle cell lymphoma.. she refused to stay in ATL and have chemo.. she decided to go to MD Anderson to the top Mantle Cell specialist in the country to do monoclonal antibodies and immunotherapies.. some as part of a trial.. He told her that chemo is the worst possible thing you can do for Mantle cell.
We're the same age from the same area and my mom was diagnosed with endometrial cancer at the same time and my brother was diagnosed with adinocarcinoma cancer in 2022 and was dead 8 weeks later. We're twinzies. Oh, and i go on for my colonoscopy tomorrow. I'm super scared.
Biggest message.. Always listen to yourself. Push for the thing that you feel in your heart you want. Make sure your Drs listen to you also. Make sure your team is doing all things they can and are out there to be offered. Listen to what they have to say but you need to be Be heard too. Last most importantly, live life in each moment of your days.🙌🏼thankyou for sharing your story and all the steps that lead you thru this up and down cancer diagnosis and treatments and sharing your mental physical well being.🫶🏻🙏🏼
Thank you for sharing your experience… your amazing and so positive I have breast cancer that has returned I hate cancer much ❤ strength hope …. I agree about just feeling good then your health stops you again ❤❤❤
You’re not the first cancer patient who was upset about losing her hair from chemo. I had the opposite reaction. I had light blond shoulder length loose curly hair. I knew I was going to lose it when I started chemo. But it wasn’t hard at all. One Saturday morning just after it started to fall out, I had my BF shave it all off. It wasn’t going to look nice in a couple of weeks anyway so I just got it over with and bought a collection of wigs. I changed my personality as I changed my hair. It was like an adventure. That probably sounds really weird but losing your hair is only temporary. It all came back and it’s where it was before I lost it. It’s what you tell yourself about it that makes it harder to lose.
Having had endometrial cancer caught early - often these 2 cancers go together especially if you have the MSH6 gene mutation! You can get your genetic test easily with 1 vial of blood or saliva test to see what you have a high % to get and then PREVIVE PREVIVE PREVIVE
I’ve been getting really bad pains in my uterus sometimes goes all the way to my leg for about a year..I’ve had blood work and vag ultrasounds everything comes back normal my gyno tried to tell me I had nothing I told him just order me a ct scan! I do have something this is not normal I know my body 😖 today I had excruciating pain I was crying I couldn’t get up from bed ,my daughter helped me she was pulling me off the bed so I can be able to get up I was facing down bc I couldn’t make any movement , I tried to pee and everything just felt so heavy like if I was about to give birth it was horrible I was holding the pee bc of the pain all over my uterus I finally let it out, the pain was still there for another half hour I couldn’t sit I was just standing there thinking of calling the ambulance.. I have no insurance I really think about it when going in to the er , I hope I can get the ct scan soon 😖
You are one courageous person, I love how your pooch is so there for you, what a cutie! Thank you for sharing your story, I am sure you have helped so many people, keep dancing and smiling your beautiful smile💐🌻🌹
Why would a doctor make you wait til morning for results? He should have given results that night and talked further the next day if he had the information. That is very controlling and I'm glad now we have access to our results online. Shouldnt be doctor's decision when to let us know.
Immediately post an anesthesia event is not an appropriate time to share significant findings. It’s actually unethical and most patients do not remember what was discussed with them. Right before she disclosed this information in her story she said she was “in and out”…
Color Coded Surgery. Several years ago I watched a doctor give a Ted Talk Dec. 13, 2011 Color-Coded Surgery Dr Quyen Nguyen out of San Diego, CA. I don’t know where she is in her research on Color-Coded Surgery but this is where I would go to ensure all the cancer was removed. The Ted Talk she gave is still up on this platform.
Your hair WILL return and will be as good as before. At first mine grew back curly (it’s naturally wavy, not curly). After awhile, it came back to what it had been. Mine wasn’t particularly beautiful. It’s true that some people end up with curly hair forever instead of their naturally straight hair, or vice verse, or even a different color, but it will still be good.
When your hair begins to grow back, it will blow your mind how thick and beautiful it is. I'm so sorry that you're going through this right now. I pray that the Lord will wrap His arms around you, and heal you completely. God bless you and keep you. ❤
@@Ceerads I wish it’s awful and like fox hair … but I know if you look at the bigger picture suppose it’s minor as I’m still here and very grateful 🙏 for that … it may change when I come off my chemo drug … thank you for reply … I hope your doing ok sending ❤️
@@clairebeever3038 Thank you. I understand fully how devastating it can be to lose one’s hair, especially because the hair loss is due to chemo and the cancer that necessitated chemo. I’m not denying how hard it is. But, as you said, we’re still here, and for most of us, hair will grow back (unless constant chemo is needed). I am doing well; hair was dark brown when I had chemo, and it’s now gray, because I was fortunate enough to grow old. I wish the same for you and good health from now on.
I think at this point the very next thing that you feel that feels "weird" is gonna just be straight to a biopsy and a CT without letting them or yourself put it off for any reason whatsoever for the rest of your life.
The dog you kiss will be your soul mate I'm mid 5yr survival rate just starting my 3rd Yr of having been diagnosed with a rare cancer too goblet cell carcinoid in my appendix 2nd yr scan was clean I had a right hemicolectomy but 3wks just gangrene sepsis as my appendix was rotting I kept a picture diary of my symptoms several years before rupture and they were all over looked gaslight for years it was all in my head apparently 😮
I insisted on a biopsy when they told me I was “too young” for breast cancer at 35. Surprise! I wasn’t too young. Mine was caught at a very early stage and here I am 30 years later.
What did they do to you
Thank God for you! And 🤍🕊
🎉my aunt lived also
I have seen a lot of videos from doctors here on RUclips that explain how to starve Cancer.I wish you all the best God bless you
@@BambotbI had bilateral
Mastectomies
Hello! I am 53 and had a full hysterectomy this past Feb! 3 weeks later I got a call from my Oncology Surgon( I had cancer on my Uterus but she thought she got it all during surgery)she made an appointment with me to come back in asap. She diagnosed me with stage 3B High Grade Carcinoma of the Endometrium which I had never heard of before which is a rare cancer. I have now gone through 2 Chemo treatment with my 3rd one coming up! I love life and plan on living the best I can! My goal now is to be around for my grandkids that I will one day have❤
Praying for you. God bless you!!
Keeping you in my prayers ❤️🙏
All the very best to you 🙏💜
Prayers
🙏❤️🙏
I lost my husband, my mother and my best friend within a year. I was a mess, trying to survive grief and shock, with 5 children. I stopped going to the doctor because I figured if they found anything, I couldn't handle it. I felt a heaviness in my pelvis. It fleetingly crossed my mind that it was like something was in there, but pregnancy was not a possibility. I also lost a severe amount of weight and it was like I could feel my organs I was so skinny. When I finally went to the doctor, it was not my organs I was feeling, but 3 huge solid mass tumors. One was 7 inches across, and I am a small woman. Sent directly to the oncologist, I was told to make legal plans for my children if they lose me too, hinting that they were going to. I had surgery, having a full hysterectomy and to the doctors shock, all 3 giant tumors were benign.
Thank God!
Losing your hair is like losing dead weight. When I lost my last strand of hair, I was alchemically changed. I knew my life was getting better. I lost my last bit of cancer when I lost my hair
What a motivating way to think of that - thanks for sharing.
I had a double mastectomy a few years ago, and 6 months of chemotherapy! I kept teaching school during that time and am grateful it never came back. I continuously have skin cancers that are removed, and am grateful that I’m still alive at 78 and riding my horse almost every day!!❤ I think it takes a lot of courage to share your long journey with us, wishing u a long and healthy life!
I was diagnosed in Sept 2014 with IDC triple positive, node positive breast cancer. Dbl masect, chemo,red devil and taxol then herceptin. I also then in 2016 ? Was diagnosed with acral lentiginous melanoma. They told me it's linked to breast cancer. What a damn journey it's been but I'm grateful to be alive. I was sick for year prior and was told it was gastritis and I was crazy. My family locked me in a mental hospital for 3 days.. 6 months later I was diagnosed with aggressive bc and surgeon said I would have been dead in 6 months. I knew I had cancer.
I’ve been on a ten year journey with endometrial cancer. I’ve had a hysterectomy, colectomy, liver resection, chemo, radiation and still it goes on. Not very much research $$$ and much of the treatment is from the late 70’s. Advocate always for your own health and never settle.
At any time did your health insurer deny your care or weed you out of their coverage and send you to another insurer?
I have a super rare gyno-cancer- stage 4 Carcinosarcoma and your story really struck a cord with me! I ignored sooooo many symptoms that in hindsight were super alarming. I am going the chemo route- and I am on Jemperli-taxil-carboplatin and just had my second round. I am balding and exhausted but my cancer marker went down at my last blood test so I’m feeling super hopeful! All my chemo warriors, god bless you!! I hope you’re all doing well.
Super!
Bless you .
🙏🏾🙏🏾🙏🏾
May I ask what alarming symptoms you had? May you continue to heal 🙏❤️🩹
@@jonnitrea I bled like crazy for months, had high fevers for like a month straight, an awful backache- super flu-like symptoms for months, heartburn, sooo many. Thanks love! You too!
Congrats on being in full remission, Amanda! You are a real trooper!❤
Hi Amanda, I am a cancer survivor. I had uterine cancer and a tumor that enveloped my right overy. I had massive amounts of radiation. I chose to not have chemotherapy. Fortunately, my health is good after 15 years. But I eat healthy by eating healthy foods as well as vitamins and supplements. Congratulations on winning your battle! I have one awesome tip for you. I was exposed to black mold last year. I started giving myself a 20 minutefoot baths using water and food grade clay powder from Amazon. This healing modality is amazing.! The clay pulls toxins from your body. I always get a huge energy boost after my clay foot baths. I only do foot baths in the am, never in the evening. I want to ensure I can sleep well.
a cancer registry is actually a good idea and I know my opinion probably don't count but I love the short curls
Cute😊
Ma'am prayers to you, you're a very beautiful lady and you're going to make it. I've been on death's doorstep a number of times and prayer saved me. God bless, Denis Berte' USMC (Nam 70-71)
Thank you for your service 🇺🇸❤
Yes, Denis - thanks for fighting for our country!
You are a positive influence on others who are in cancer world. Breast cancer 8 yrs ago. Limbo isn’t fun. Decisions are difficult. God bless you in your future life.
May God continue to grant you and family Healing.🙏 Keep your Faith and beautiful positivity. Stay strong! 💪
Amen 🙏 healing for her, her family & whoever suffering of any illness in Jesus holy mighty name 🙏✝️💕The Lord IS our greatest physician 🙏
God bless you dear Angela&your loved ones in Jesus holy name 🙏💕
You are a breath of fresh air. A wholesome happy individual. You ooze positivity. Flipping Furniture? Is that restoring old furniture?
Yes
I was diagnosed 9 years ago with endometrial cancer following a hysteroscopy for post menopausal bleeding. I’d had a couple of male doctors tell me to just monitor the bleeding, we then moved into our newly built home and I saw a new, female doctor who told me no bleeding is acceptable and referred me to the gynae clinic at our local hospital. I did not expect a cancer diagnosis and within a week had seen an oncology gynaecologist and within another week had a total hysterectomy with bilateral oophorectomy. Luckily it was very early and I didn’t need any further treatment.
I had post meno bleeding & ran straight to my gyno. I had an endometrial biopsy, ultrasound, transvaginal ultrasound, CT scan & CA 125 blood test. Thankfully all was fine & I continue every 6 months for checkups .
My gyno told me that bleeding after meno is not unheard of ,but should be investigated to be on the safe side.
The same thing happened to my mom when she finished menopause ,but didn't get checked at all . She is 82 now 🤷
@@kerriecrewe5267 I just diagnosed early stage and am scared surgery.
@@MadJak-g6r don’t be. I had a total hysterectomy with both ovaries removed. The surgery happened really quickly after diagnosis and recovery was pretty straightforward for me. The relief of knowing all the cancer was removed and there were no organs left for it to recur anyway has been enormous. I’m not saying I can never get cancer anywhere else in the future but that’s one major area that is no longer of concern. I had just started menopause so more children was not an issue. Something I’ve become aware of of since my diagnosis is the possible link between using baby powder down there and endometrial cancer. I used baby powder every time I bathed🤔🤔Who knows?
@@carriekowal5123
What would make post menopausal bleeding "normal", not unheard of and okay?
Unless it's from a fibroid tumor...
@@Kiskadee8388 I never said " normal" I said ,my Dr. Said it is NOT unheard of.
I had an ovarian cyst that was constantly monitored.
Thank you for sharing your beautiful but difficult journey with cancer/Lynch Syndrome. As a retired nurse, it was my privilege to care for many people with different illnesses including cancer, and also hospice patients. Now I am an advocate for several wonderful relatives who are living their best lives with cancer. My cousin absolutely rocked bald, and her lovely hair has come back. I lost 75% of my hair with Covid and I can relate somewhat with your difficulty, although I envy your gorgeous curly hair. ❤️🙏❤️
You probably know about this, but author Ami McKay wrote a moving memoir about her being diagnosed with Lynch Syndrome and what she did, and how she traced this back in her family history. It is called Before My Time. All the best to you!
1 in 279 people has lynch and no clue. Genetic testing saves lives. Thanks for mentioning the book title. I'm going to look it up.
Ty for that info. Best to you. 🤍🕊
@@pamelcakes04 I was tested last year. No Lynch but very high risk. Inherited risk. Your family history is of high importance. Lynch is very prominent in Eastern Europeans and Jewish people.
That's a wonderful book. I loved it. Thanks for recommending it.
So much good information. Thank you. I hope you remain in good health. 😍
We have to be our own advocates for our health
Amanda does beautiful work and is a true inspiration. ❤
I absolutely love the cancer patient gift registry! Thank you for sharing your story ❤
Feel happy from the bottom of my heart to see you healthy and happy , your little brother from Iran .
May you continue to heal from cancer.
I'm so glad you're in remission! We have lynch too. It's a lot to take care of all the time. My sister and daughter have also tested positive.
Thankfully you were tested. You can prevent colon cancer or treated successfully if caught in early stage. 🤍🕊
@@lynndinovo3500It is not just colon cancer...I have tested for lynch syndrome. And relatives had esophugial cancer, ovarian, multiple uteral cancers, liver and kidney lungs cancer...
I have been following Amanda’s RUclips channel She is such a beautiful and incredibly talented woman. It’s tragic how Amanda and her family have been through so much.
hi - thank you for your story x. I was diagnosed with endometrial cancer (high grade) at the age of 52 just before Christmas in 2021 where I had a full hysterectomy. I had radiation treatment and it affected the bones in my pelvis with hairline fractures. My mum also had the same cancer at the same age. I was tested and it was discovered I had Lynch Syndrome, MSH6. I have since had a colonoscopy and had my polyps removed which thankfully they were benign. I am now hoping that my kids do not have this faulty gene.
I’m so glad that insurance covers this now. I hope it continues. I’m hoping you have huge success. ❤️
When I was 30 years old in 1998 I had a colonoscopy and they found a few polyps but wasn’t cancerous. My second oldest brother got colon cancer and wasn’t diagnosed until late in the stage and he declined any treatment. He passed away in 2020. In 2022 I was diagnosed with DCIS breast cancer. They did surgery and then radiation and I’ve been cancer free for two years now. Prayers to you to hand in there and stay strong. You’ve got this!
Similar story here with family. I had an aggressive form of dcis, had bilateral mast - 15 yrs post now. Hang in there - there are a lot of ups and downs but try to keep a positive attitude and a sense of humor. Hope you have a good support system. Best wishes 😊
I love how you were able to explain your pain. I experienced pain in both wrists. It felt as though they were uncooked noodles and they were being broken into a million pieces. I was diagnosed with stage 4 Cervical and stage 2 breast cancer, one month apart! I have the best oncology team and for that I am eternally grateful. Hope you are doing well today.
I subscribed to Amanda's channel. She is an amazing person!
where did you find her channel?
@@MadisonBriggsArtchick search for Amanda Whitworth
Thank you for sharing your story. The first thing I noticed was how beautiful you hair is!! As a fellow curly haired person I love it!! Secondly as a retired RN I cannot tell you how much the nurses wanted to tell you the diagnosis when we have to wait for the doctor to give you that information. Thank you again for sharing your story. ❤ I took chemo for my Multiple Sclerosis and it was a blessing for me. Don’t know if I would take it again. Also I had a port for my chemo.
Wow she’s really stunning ❤ even without eyebrows and hair she has a radiance to her.
Hello. I’m 56 and just had a hysterectomy/ ooferectomy. I had pre-cancer found in a D&C and we went straight to the h/o surgery. Pathology found Endometrial Carcinoma. My Oncologist & GYN both agreed that taking the steps we did caught it at the “perfect time”. It had just started to enter the muscle lining but had not made it to the half way mark. It was considered 1A and I do not have to do anything other than exams every 6 months. My 20 year old was diagnosed with Thyroid Cancer December of '23 after watching a lump in her neck for a year. Pathology found her lump still showed no signs of cancer a year after the first ultrasound. Luckily our ENT said let's be sure. The biopsy returned as cancer and we had her thyroid removed over spring break! She is now a Junior in college and just started wearing necklaces this month! I am so thankful we were both able to overcome our cancers.
Thank you for sharing your story. I stumbled upon a story and yours came up next. Hearing your story and reading others comments makes me appreciate our results.
I would like to follow you on your journey and I ‘d love to see your furniture work! Can you share your I /G or Tik Tok with us! I love to repaint furniture! I have a fun story about my mom painting my furniture pink in the 1970’s! She could have started a flipped business before they existed!
Thinking of you and thank you again for sharing your story! Oh, and your short curly hair is very becoming on you! It looks great! ❤
Really love your energy Amanda! I'm a breast cancer survivor since 2011.
Thank God You are doing better! Prayers for Gods Healing Hands Upon You for
Complete Healing!🙏✝️🙏✝️
👏👏👏yeah Female Doctors! 🥰
Thank you for sharing your story and the detailed information. Blessings to you 💛
What a strong girl you are! I love your dog❤
Hello! First I would like to say you are so strong and beautiful! Thank you for sharing your life story! You are AMAZING and the voice that many need to make AWARENESS ❤❤❤❤ God bless you!! Sending love and prayers
Thank you for sharing your story.💗💗💗
Gosh you are courageous. Patient too. What a war you have been through. Thank you for sharing all this. And you look great with the bob!
Thanks for sharing your story Amanda! I'm up in Sequim Washington and love Alki beach!! Prayers for ever lasting remission! ❤
Amazing strong lady 😢🙏
Glad you are doing better ! God bless you
Thank you for sharing. You are a mighty woman. I wish you many blessings and full health.
She is so sweet and a great artist.
You are an amazing person. God bless you in your journey.
Similar. 2004 was diagnosed with MGUS. (Beginning stage of Multiple Myeloma, which there is only watch & wait) if we did the Bence Jones test it could possibly show borderline Smoldering Myeloma. MGUS is considered a "blood disorder" & Smoldering Myeloma "cancer". Both are "watch & wait".... so we didn't do the test bc at the time 2004 it would be considered a "pre-existing" & could be denied insurance & life insurance. It was still hard to get w/ MGUS bc the chance of progressing - they gave me 5 yrs. ..... it didn't progress until 2022.
God bless God, bless you go girl very very happy for you for the record. You are beautiful with here or without enjoy life.
YOU ARE BEAUTIFUL INSIDE AND OUT .YOUR STRENGTH AND SPIRIT TO SHARE IS SO GENERIOUS WHEN YOU GAVE SO MUCH OF YOU PRIOR INTO EVERYTHING..THAT LOVING NATURE RETURNS BACK TO YOU AS I AM SO VERY HAPPY YOU HAVE MAINTAINED WELLNESS AND HAPPINESS AND LOVE THROUGH IT ALL. SENDING THE BIGGEST HUG I CAN FIND .🌼TERI
My names Amanda too and live in Seattle AND I flip furniture!! So crazy! I have stage 4 endometriosis and am having my 4th surgery to excise it all and get a hysterectomy. I’ve had polyps but have always wondered about cancer. It’s always in the back of my head. My surgery is this August
Funny coincidence lol
My name is also Amanda and I have stage 4 endometriosis and just had cancer removed from my cervix and my tubes removed i almost died after that surgery that was two months ago and I am still having complications and symptoms I had before my surgery have gotten worse , in my head as well something is literally push my right eye outward and I have horrible pains in the right side of my head that won’t go away with Tylenol and such my right eye also twitches now since my surgery very badly I’m in constant pain in my abdominal, my lower back , my bowls , I get short of breath and dizzy spells chest pain memory problems the list goes on the doctor I currently have which is the one who did my surgery that I almost died from is just overlooking most of my symptoms and just wants me to rush and do more surgeries which I found out that a hysterectomy will not keep endometriosis from coming back or it won’t keep the cancer from coming back either they both still can even after a hysterectomy, I’m 30 I have had symptoms now for over a year that has just gotten worse and worse I am still currently fighting to get the care that I need now it effects me horribly from even doing anything really my lymph nodes in my neck under arms and groin are also swollen and sore all the time , I wish I could find good doctors like she did because I have a very strong feeling that it has spread through my body and it’s growing rapidly oh and my doctor also left a 4 in cyst on my ovary that is cancerous and so hard she couldn’t get a biopsy so she just left it in me instead of taking the whole thing out especially after she already took my tubes without my knowledge until I woke up in critical condition, so just be careful just having surgery because once they cut in it , it makes it grow and most doctors don’t care about your well being anymore it’s all about the money and of course they will tell you , you need this because that’s what costs the most money or at least that’s how it is in Alabama
Praying for you ❤
@@Godfirst1177 thank you and very sad that ,but keep strong and fitting don’t give up 🙏
What a beautiful inspiring person. So full of joy and fun. Keep it going. Love you. Praying for your complete healing and restoration 😘🤗🙏
As soon as she said her Mum and Brother were diagnosed with cancer and then she got cancer, the first thing I thought was Lynch Syndrome. Anyone with a lot of family incidence of cancer of the bowel and reproductive organs should get tested for Lynch Syndrome and be followed closely by an oncologist to be proactive and find any cancer occurrences early.
I’m sorry maybe I didn’t understand,I’m a cancer patient been to 4 cancers. And what I know is when your diagnosed it’s protacal to doing imaging C T’s an MRI and pet to see if there spread or recuuamce an after every 3 or 6 mo for 5 years! Why wasn’t that big growth on pelvic didn’t show up till it was so big! I’m perplexed!!!??
Prayers to you beautiful!! 💖🙏
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🌹🌹🌹🌹💐💐💐💐 My gosh you went through so much - but you were on it!
Thank you for sharing your cancer journey with us. Your such a strong and beautiful lady Amanda. I had to giggle when you showed your head with super massive curls,that is exactly my hair atm,quite the challenge to say the least ...lol
I wish you clean scans,many smiles and much love to you❤.
Watching this on Amanda's birthday. Happy birthday! 🎈🎈
Thank you for sharing your story. I really appreciated the ides of the cancer registry. It would really help people to help others to set something up like that.
Bless your heart! ❤
I'm wondering why Claritin worked when you were on Chemo? I've never heard of that treatment before, and it would be good to know!
Maybe antihistamine properties
It’s odd the insurance company denied standard of care. Not cool.
Ma'am you are so lovely, I wish you all the best, & indeed sometimes we just know when something is wrong & need to let the professionals know we know our own bodies.
Great video! Great art! Great dog and cat! I wish you and your family all the best.
Well done Amanda ❤️
You do have lucious, beautiful hair!!! I would have struggled too…but it is just hair. Hair is not life. I had gorgeous thick long brunette hair and I went bald within about 14 days! Didn’t love it but I got through it. The hardest part was others reactions…not being recognized. I shaved it completely bald at work surrounded by coworkers. I had cut my hair shorter in stages prior to chemo but nothing really prepares you for the gobs of hair just slipping off.🤢
You rock that short hair!
I wonder if anyone has told Amanda how beautiful she is, inside and out?
My friend is a doctor and she has Mantle cell lymphoma.. she refused to stay in ATL and have chemo.. she decided to go to MD Anderson to the top Mantle Cell specialist in the country to do monoclonal antibodies and immunotherapies.. some as part of a trial..
He told her that chemo is the worst possible thing you can do for Mantle cell.
An insurance underwriter determines if you can have a drug your doctor recommends.
I don’t know how they sleep at night.
We're the same age from the same area and my mom was diagnosed with endometrial cancer at the same time and my brother was diagnosed with adinocarcinoma cancer in 2022 and was dead 8 weeks later. We're twinzies. Oh, and i go on for my colonoscopy tomorrow. I'm super scared.
How did you go? I hope you're OK.
🙏 ❤️ 🙏
For You & All
Always & Forever
Biggest message.. Always listen to yourself. Push for the thing that you feel in your heart you want. Make sure your Drs listen to you also. Make sure your team is doing all things they can and are out there to be offered. Listen to what they have to say but you need to be Be heard too. Last most importantly, live life in each moment of your days.🙌🏼thankyou for sharing your story and all the steps that lead you thru this up and down cancer diagnosis and treatments and sharing your mental physical well being.🫶🏻🙏🏼
Senxing you love and prayers Amanda God bless❤🙏
Thank you for sharing your experience… your amazing and so positive I have breast cancer that has returned I hate cancer much ❤ strength hope …. I agree about just feeling good then your health stops you again ❤❤❤
Happy Birthday!
Thanks so much for sharing your story. 😊
You’re not the first cancer patient who was upset about losing her hair from chemo. I had the opposite reaction. I had light blond shoulder length loose curly hair. I knew I was going to lose it when I started chemo. But it wasn’t hard at all. One Saturday morning just after it started to fall out, I had my BF shave it all off. It wasn’t going to look nice in a couple of weeks anyway so I just got it over with and bought a collection of wigs. I changed my personality as I changed my hair. It was like an adventure. That probably sounds really weird but losing your hair is only temporary. It all came back and it’s where it was before I lost it. It’s what you tell yourself about it that makes it harder to lose.
Good luck to you❤
Having had endometrial cancer caught early - often these 2 cancers go together especially if you have the MSH6 gene mutation! You can get your genetic test easily with 1 vial of blood or saliva test to see what you have a high % to get and then PREVIVE PREVIVE PREVIVE
God loves You all. Psalm 86:5 For thou, LORD, art good and ready to forgive; and plenteous in mercy unto ALL them that call upon thee.
I’ve been getting really bad pains in my uterus sometimes goes all the way to my leg for about a year..I’ve had blood work and vag ultrasounds everything comes back normal my gyno tried to tell me I had nothing I told him just order me a ct scan! I do have something this is not normal I know my body 😖 today I had excruciating pain I was crying I couldn’t get up from bed ,my daughter helped me she was pulling me off the bed so I can be able to get up I was facing down bc I couldn’t make any movement , I tried to pee and everything just felt so heavy like if I was about to give birth it was horrible I was holding the pee bc of the pain all over my uterus I finally let it out, the pain was still there for another half hour I couldn’t sit I was just standing there thinking of calling the ambulance.. I have no insurance I really think about it when going in to the er , I hope I can get the ct scan soon 😖
Your curls are gorgeous 😍!
You are one courageous person, I love how your pooch is so there for you, what a cutie! Thank you for sharing your story, I am sure you have helped so many people, keep dancing and smiling your beautiful smile💐🌻🌹
Why would a doctor make you wait til morning for results? He should have given results that night and talked further the next day if he had the information. That is very controlling and I'm glad now we have access to our results online. Shouldnt be doctor's decision when to let us know.
Immediately post an anesthesia event is not an appropriate time to share significant findings. It’s actually unethical and most patients do not remember what was discussed with them. Right before she disclosed this information in her story she said she was “in and out”…
@@delftblue true
I love Amanda! Been subscribed to her channel for some time now.
May i know her channel pls? Thanks
@@corazonyap3499 Sure, just type Amanda Withworth!
As someone who didn't take IT, because I knew there was something fishy about IT, I do want to know, if she and her brother took IT!
Color Coded Surgery. Several years ago I watched a doctor give a Ted Talk Dec. 13, 2011 Color-Coded Surgery Dr Quyen Nguyen out of San Diego, CA. I don’t know where she is in her research on Color-Coded Surgery but this is where I would go to ensure all the cancer was removed. The Ted Talk she gave is still up on this platform.
Genetic testing is so important
My mother was diagnosed with this exact same thing in 2001.
I totally get you not wanting to loose your hair I’m devastated having no hair 😢 it won’t be the same ever again 😢😢😢
Your hair WILL return and will be as good as before. At first mine grew back curly (it’s naturally wavy, not curly). After awhile, it came back to what it had been. Mine wasn’t particularly beautiful. It’s true that some people end up with curly hair forever instead of their naturally straight hair, or vice verse, or even a different color, but it will still be good.
When your hair begins to grow back, it will blow your mind how thick and beautiful it is. I'm so sorry that you're going through this right now. I pray that the Lord will wrap His arms around you, and heal you completely. God bless you and keep you. ❤
@@Ceerads I wish it’s awful and like fox hair … but I know if you look at the bigger picture suppose it’s minor as I’m still here and very grateful 🙏 for that … it may change when I come off my chemo drug … thank you for reply … I hope your doing ok sending ❤️
@@marisawoods aww thank you for such a lovely reply … really appreciate the kind words.. I hope your doing ok sending all my love ❤️
@@clairebeever3038 Thank you. I understand fully how devastating it can be to lose one’s hair, especially because the hair loss is due to chemo and the cancer that necessitated chemo. I’m not denying how hard it is. But, as you said, we’re still here, and for most of us, hair will grow back (unless constant chemo is needed). I am doing well; hair was dark brown when I had chemo, and it’s now gray, because I was fortunate enough to grow old. I wish the same for you and good health from now on.
Forgive if this is too intrusive, but when you had your regular yearly, Pap smears, did they follow up with requiring a colpo?
Insurance refused her chemo.
I think at this point the very next thing that you feel that feels "weird" is gonna just be straight to a biopsy and a CT without letting them or yourself put it off for any reason whatsoever for the rest of your life.
How are you doing now?
You have cancer..but your first worry was your hair, ..bless you and congtulatins on being no disease present
l
Claritin can cause serious adverse side effects depending on which other meds you are taking.
Always talk to your oncologist first.
Did any of you have a hysteroscopy before diagnosis, surgery?
The dog you kiss will be your soul mate I'm mid 5yr survival rate just starting my 3rd Yr of having been diagnosed with a rare cancer too goblet cell carcinoid in my appendix 2nd yr scan was clean I had a right hemicolectomy but 3wks just gangrene sepsis as my appendix was rotting I kept a picture diary of my symptoms several years before rupture and they were all over looked gaslight for years it was all in my head apparently 😮
21:25 - eff insurance companies.