Living with Verbal Apraxia: Q&A
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- Опубликовано: 13 май 2019
- Hi! I'm posting this video in the hope to spread awareness to my rare speech disorder also known as Verbal Apraxia; this is only part of my story. I decided to do a question and answer format to understand what people would want to know about directly! If anybody would want me to make more informative videos like this on Verbal Apraxia or anything, let me know!
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Facebook Page: Fighting-for...
Instagram: / jordapraxia
Thank you. I'm 22 and I've only just discovered that Verbal Apraxia is likely what I have. I've never heard another person who sounds like me before.
I’m 17 & been told I have this. I can write & text perfectly but can’t talk for the life of me. It sucks because people think I’m dumb (though I can’t blame them) so I just stop speaking.
Lake, my 12 year old son deals with verbal apraxia. It would be awesome if you could do a RUclips video and share your thoughts and experience and advice about this.
It has been a huge struggle.
@@chuwee3835 THIS i have been so alone in my childhood, the only true friends i had was one person 3 years older than me who lived next door and my family, its mainly the reason im so shy too irl😭
I’m 43 and have it. I owe everything to my mum as she constantly worked with me to help me improve my speech. I’m a kindergarten teacher now but I feel like I’ve had to work harder and been discriminated against all my life, especially as an adult. I feel like guys don’t like me because of my speech. I am over people thinking I’m dumb because of how I speak and it really does destroy my self esteem.
Very proud of you for putting this out there! We have an 11 year old daughter that has speech apraxia. Keep on sharing your testimony and journey.
Randy Maez I’ll do my best. Thanks so much!
My toddler was just diagnosed with this. Honestly this video has helped me with my emotions so much. Thank you for taking the time to post this.
Is it just me, or his voice very calming. Like I could just listen to it all day 😂
Maybe you're suck
You are making a huge difference in the apraxia community, Jordan. My son has apraxia and I'm in many support groups for parents and let me just say we see you!!!! You are a treasure to parents raising kids with apraxia of speech, myself included. Thank you from the bottom of my heart for sharing your journey.
Recovered Chaos thank you 💙
How did you find a support group? My son is 12, now and I’d love to learn from other parents and kids!
@@sharonwiley2970 Facebook! They have tons of support groups there and then if you type in “fighting for my voice: my life with verbal apraxia” you should find Jordan’s group as well which I highly recommend. 💙
My son is 4 years old and Apraxic. This year has been really hard for him. For our family. Thank you for being so open. Hearing you speak has really eased my worry. Thank you❤️
My son is 12 years old now. I remember when he was two years old and only had three words that he could articulate understandably. Hang in there! It gets easier (but not without regular speech therapy and a lot of support and advocacy on the part of the parent. 🌸
My nephew is 3 and we are just getting a diagnosis. I have so many questions. hearing him speak makes me feel relieved - i want to know his severity.
I'm in my 20s and I have what is most likely verbal apraxia as a symptom of autism, and this is the most I've ever felt seen. I can't thank you enough.
I think you speaking incredibly well, Jordan! I plan to show this to my granddaughter who I am continuously telling to slow her speech down and say her letters clearly!
Bonnie Whatley Thank you! When I do slow down I do better myself. I do find this helps prevent for me throat tension and mental exhaustion that can carry with speaking.
Was your grand daughter diagnosed with this or are you just annoyed at her conversation with you?
Thanks so much for making this video! Well done. It was so encouraging
Thanks so much Jordan. I followed your FB post to this video. I am an SLP working in early childhood intervention. I am proud of you and all you have done with "Fighting for My Voice". I have been following you for a while but never saw this premier video. You are awesome and all people with Apraxia (CAS or Verbal Apraxia) love you and NEED you. Keep up the fight!!
I'm watching this to learn about it, and I've got to say, other than being extremly helpful, your voice is super calming
Thank you so much for sharing and taking the time to make this video.
Hey I just wanted to thank you for posting this. My 11 year old son has apraxia of speech and it MADE HIS DAY to watch this video. I can’t believe it never occurred to me before to look for videos like this. But it meant the world to him to have an idea of how amazingly good it can get and what there is to look forward to. It really is so kind of you to take the time to share your experience. It requires bravery as well as kindness toward others and I just really appreciate that. My son, like you, exudes a sort of sweetness. And I think that it must be the case that, at least for a certain personality type, having a limit on your ability to express yourself verbally naturally leads to you discovering other ways to connect with others. So for some, and this definitely includes my son and seems to include you, there is just this blossoming of kindness and warmth that is really wonderful to encounter. It makes me really excited for my son’s future to think of what a uniquely emotionally gifted person he is going to be when he is able to put together that tremendous warmth with the capacity to express himself verbally as fluidly as you do. So thanks once again. Hope you have a great day :)
🫶
I just saw your video! My son has verbal apraxia and I needed to see this!!!! Thank you for your encouragement!
Thank you for your videos, my daughter is 3, breaks my heart to see her struggling but I have hope thanks to you.
Hi Jordan thank you for making this. Our 2.5 year old grandson has apraxia and is really having a go of it. Thanks for your perspective.
Thank you Jordan! As a parent of a 5 years old kid with verbal apraxia I really admire you for your video and for sharing your experience! Thank you again, you are brilliant!
Incredible! My 2 year old nephew was diagnosed today. You speak eloquently. I find your pace and tone you use to be captivating and demanding of attention. Thank you for making this video. Fantastic message and insight!
Such a great and beautiful message! Loved learning about you and how you are so encouraging
Thank you for posting. I am an SLP and am so impressed with how you overcame your challenges. You sound amazing! I pray that I can help my students get to your level. I have high school students and it is so hard for them to change their habits. I'd love you to do a video on tips that really helped you!! Thank you agan.
Thank you so much for sharing ❤️. Our SLP just mentioned to us this week that she believes our son (4 year old) has apraxia. I have so many questions and concerns and this video has helped me!
You have such a beautiful tone to your voice. I hope my son speaks as well as you someday. Right now he has only one word, which I’m thankful he has even one!
how old is your son?
Witnessing people with real problems always makes me appreciate what I've got going for me. You're strong as steel mate
My mother is 52 and has developed apraxia following her stroke. She is still really, really struggling with getting the correct words out, but we are trying to remember it's only been five months, and this takes a lot of practice. Just wish I could help her more because I know it gets so frustrating for her 😔 thanks so much for sharing this, it gives me a lot of hope!
Thank you for sharing your experience! So inspired by your courage to share your voice. And we love hearing it!
Thank you so much for taking the time to do this.
The best of wishes Jordan, thanks for this insight
Awesome video, mate! My nephew has apraxia of speech and seeing someone as confident and well-spoken as you has given me a lot of hope.
Your voice is so calming. Thank you. My 2 year old son is preverbal and we will be starting speech therapy soon. You are inspirational.
I love this video. Thank you so much. You’re right, I’m a parent and my son has verbal apraxia. You’re doing so well and that makes me happy. Thank you.
We are just getting into following your journey. My wife and I currently have a 6 year old daughter with Apraxia. I recently took over my 10 year old daughters softball team and found out that one of her friends on the team is also dealing with apraxia. We are so thankful for you sharing this information as it has helped us better understand what our daughters going through as well as my player. May you be blessed beyond years with continued wisdom.
Thank You so much for making this video. You are a role model for children, especially male children suffering with this.
You sound wonderful! Its actually neat that you are so unique that you have your own stylistic way of speaking. Love it! Keep it up bro!
My little girl has Verbal Apraxia. Thanks for posting your videos. Keep up the good work
Thank you for this Q&A! I have a 3 year old with speech problems we’re not sure what she has yet but I feel like it must be this Apraxia of speech. I won’t refer to it as childhood apraxia either after you clearly have it longer than that. Thanks again💕
My daughter is 3 and she hasn’t been diagnosed but her speech therapist thinks she has apraxia. We’ve been doing lots of things to determine if it’s what she has. I’ve always been able to tell she couldn’t talk right. As an infant learning to talk she never repeated words back or seemed to want to. With my second baby it’s so different. She talks so much and mimics us. I’m so beyond grateful you made this video and gave an insight to what you go through and I hope others that see it become more understanding. You’re so strong. So brave. And so appreciated for making this video. I’m forever thankful to you for giving me a different perspective and showing me what it’s like down the road with apraxia. I’m so proud and thankful for you
My 5 yr old was recently diagnosed with apraxia. Thank you for this!
I had Apraxia when I was younger. Nobody could understand me besides my close friend and sister. I pointed at what I wanted and even at 7 the words were not coming out correctly. I went to a special school from preschool and kindergarten. When I was in first grade until 5th grade. I struggled because nobody could understand what I was saying. I wanted to say the word but it wasn’t coming out. I was told even today that I sound like I am from another country. You can’t tell today I have it but it still happens that the word is not coming out what I want. Now I can never stop talking. When I was younger in speech I had a speech teacher that was extremely mean and would scream at me. She would of been fired if I would of told anyone but if it wasn’t for her I wouldn’t of gotten to the point where I talk that you can’t tell I had apraxia or a speech problem.
Hi. Theo same thing we re going with our son who is 6 years old. Only we and maybe few People can understand him. Do you have speech problems today?
Thank you for making this video! Our son has verbal (and generalized) apraxia. It was great to hear your perspective. Very nicely done!
Michel Accad Thank you!
Jordan, thank you. As a mother of a child with apraxia, we wonder all the time whether we'll be able to have a more robust relationship with our son through verbal communication. Our 5 year old son can say many words imperfectly with difficulty, but we understand him. He's shy and quiet, and avoid speaking unless we force him to do so. Our son has spent 20 hours a week with a CDA (Communications Disorder Assistant), with SLP supervision, for over a year now. He's made great progress. When he was 4, he could barely say one word. But how do we know what his prognosis will be as he matures? No one can tell us. If my son could communicate like you, I would have so much hope for his future. Thank you for sharing your story.
My son was diagnosed with apraxia at 2
He’s going to be four in October he recently received a device to help with his speech but his therapist said he might not even need it because when I tell you he’s progressed so much, I mean this kid progressed.
Amazing video! I’m so excited and I have so much hope for my son!
Thanks dude for making this video!
I'm sitting here crying because my 3 year old son is going to therapy now. I noticed something was a bit off when his now 2 year birthday li sister began to say words and make sounds that he couldn't. It took about 4 months to get him in with a therapist. Thank you so much for this channel. It's really uplifting my spirit ❤️
Thank you for making this video! It was very informative!
Amazing content! Great job your hard work has paid off! Thanks for sharing.
Dopps Chiropractic thanks for the kind words!
Thank you for posting this video! This was new information for me and as an RN I want know about these types of issues so as to further help any patients I may have that are struggling with apraxia.
Thank you so much for this! You are truly amazing and have touched my family greatly with your words! You are doing great! Keep it up and I truly believe with you that it should be Verbal Apraxia and not Childhood.
Amy L I believe so too. I know everybody won’t agree with this opinion, but as an young adult just what is preferred. No problem! :)
I have this and I’m so happy to find your video. I wish I could talk like you one day!!!
Your a gem! Thankyou for sharing 😍💖
Thank you so much for sharing this Jordan, it's really awesome and helpful. I am a student of speech therapy and enjoyed this video. :)
You are very informative. Thank you.
Thank you and God bless you.
Thank you for making this video. My little grandson has been diagnosed with this condition. He is in therapy and doing well. He will be four years old soon.
PEGGY SAINDON Awesome for you to be educating yourself about the DO! You’re welcome. :)
Thank you so much for this video.
Thank you, Jordan. My 5 year old son is recently diagnosed with childhood apraxia. I am enlightened now and no longer scared for my son. I was told he will be needing a long term speech therapy.
It’s needed but so worth it! 💞
This was so cool! Thanks so much for answering all of these :D
If you ever get a chance, I'd love ask how apraxia affects any of your facial expressions, or if that's all unrelated to it
I'm an Early Childhood: Special Ed teacher and found this just fascinating and also so encouraging. Sharing with parents! Thanks, Jordan! You're amazing. :)
Sarah Oksiuta Thank you so much! Feel free to share it with parents. I hope to educate people about the speech difference.
This gives me so much hope for my granddaughter! Thank you Jordan! You're a superhero!
Jimmy Hitchcock there’s hope for her!! Thanks so much for your kind words. :)
Thank you for this💜
Thank you so much for putting this information out. I have a relative (who is a child) that has apraxia and was wondering about how it may affect him long term.
This is great. Thank you for sharing :)
I had to laugh when you said people refer to your accent or what country you’re from. My apraxia granddaughter gets this all the time. She is 15 now. One lady at the store even came up to her and said she loved my granddaughter's accent and asked where she is from. We play along with it now and currently she tells stranglers she if from the U K. Then we have a good laugh. I would like to hear you share about how you dealt with academics at school and the academic language that is involved with school. My granddaughter can do the work but can’t seem to remember or use the words that go with the topic. Thank you for your bravery in sharing.
Thank you!! I also have Apraxia and Its hard for people to understand that its more then just about speech
Isabelle Blees it is! It’s so much more
Have tears in my eyes watching this as a mom who is trying to do everything I can to support my son who was just diagnosed with apraxia at 2.5 years old. Thank you for giving me hope and for sharing your story.
How can they say your son has this condition? He is sooo young. My child has startet speaking with 3
Wish you so much luck🫂
@@diesassi7558 he was young to diagnose at the time but he’s 3.5 now and he still has the same diagnosis.
I pray my daughter speaks as well as you do when she is a adult.
Thank you, thank you, thank you. My son was just diagnosed with this and I’m so clueless
Very nice and helpful Jordan. Thanks a lot. My kid is 3 yo has CAS and struggling to speak.
I wanted to ask for your permission to translate your videos to Portuguese (and add captions). I'll send the videos back to you so you can post them for Portuguese speakers to watch them. We would be giving opportunity for more people to be aware of verbal apraxia. Again very helpful Q&A
Adriano Saccenti of course!
I know what you mean because I have aphasia from three strokes during COVID I was a smooth fast talker and now I can barely talk, have dysarthria so a weak tongue and cannot put words together to form sentences. This is the most challenging thing in my whole entire life but I'm working hard on it thank you for your video it helps
Thank you for the informative video! I didn't know this was even a thing until a few days ago, and now learning about it more and more. God bless your heart.
Out of curiousity, what's the main difference between Verbal Aporaxia and Aphasia? Sorry if it comes out stupid, I'm litterally trying to learn more about these conditions. Take care!
Magnificent, Jordan. One question: how did you speak when you were 5 years old?
Thank You!! My daughter is 19 with Verbal Apraxia, she is attending a special program at college. She is struggling with people understanding her, do you have any types for her, she has been attending speech since she was 3 years old, about 4 years ago her speech therapist came to me and said I believe she has Apraxia.
Thanks for sharing
Thank you so much for the video. Our three year old has verbal apraxia and we are just starting the journey, I guess
Dude love that you have a vans hoodie .. my son is just starting to do longboarding .... I’m trying to watch a couple of your videos so if I ask questions that you already answered please forgive me. How did your parents got you of your “easy answers” such as when I want to ask my son what you want to eat he usually say chicken or spaghetti cause that’s what’s easy for him to say ... even when it’s breakfast
Firestarta-666 thank you! I would say I was probably able to have a good conversation at age 12.
Jordan, my toddler granddaughter is newly diagnosed. You give us so much hope! She is now starting her speech therapy with an experienced SLP who treats CAS. She loves music and loves to sing. Do you sing?
I have Childhood Apraxia of Speech. When I was younger. My parents tried to teach me how to sing but I didn't get it so they didn't continue it. At that point, I was starting to talk. So it really didn't matter that I could not sign.
I have apraxia and have sensory issue like pulling my teeth out
What part of the south you from. I hear it real well lovely
Hi, thanks for this i have a 4 year old that has difficulty pronouncing his sounds, he has not been diagnosed medically and is not on any therapy yet. He has challenges with oicing out consonant sounds.From your video, your sounds seems kind of clear, is it due to therapy over the years or is it just due to the fact that things will get better as you age. Were you missing out on consonant sounds. Thank you
I also have Aparixa I"m 21 it is both a lot of speech therapy 15 years worth also maybe age has to do with it, But mostly a lot a lot a lot of speech therapy.
One of my characters in my story had suffered brain damage from a traumatic injury (bullet to the brain will kinda do that), so he ended up developing verbal apraxia. Am here to educate myself more on the topic.
I'm just curious if physical trauma will always cause more than just verbal apraxia cuz dang, I already wrote him a certain way! :(
Thanks for sharing. Question: how much do you have to concentrate when you speak? Does speaking occupy most of your brain power, or are you able to go into 'cruise control' of sorts?
Magnus Brzenk it does take a lot of concentration
❤️
I believe that my son has apraxia; he's four. We're going to start signing as much as possible.
I thought sign language are for those mute or deaf?
How its diegonsed..by genetic testing..please reply
Do you have any advice. My 3 year old nephew has just been diagnosed. Im sad and worried. Is there anything that we can do to improve his learning and experience? Does it effect learning? i have so many questions. I just want to help him.
I think this is what I have
I'm 30 and I have this. didn't even know what its was really called wow
Good job on the video I really like it. I am 14 and have Apraxia and my named is Branden also I am the oldest son. :)
tcbobb16 thank you so much for watching! How are you doing?
Hi Branden!! Thank you! I’m the youngest in my family hahaha.
tcbobb16 I went to community college also and transferred! I loved community college
tcbobb16 you can do it! That’s an awesome goal. I went for 1 1/2 years and then transferred to my four year college. It definitely helped me transition and find out what works best for me. Best of luck!!
Hey Jordan, thank you for making these videos! From K-6, how many times per week did you attend therapy? Also, did you work on it by practicing exercises at home? If so, how long per day? Thanks again! Our son has been working very hard and we're so proud of the progress he's made. We also don't want to regress if we cut back on his therapy. He has two sessions per week and is in the 1st grade.
Patrick
Patrick Dowd hi hi hi! I received speech therapy 5x a week, every week, 45 minutes a session. We did practice a little bit at home. My mom really had to push hard against the school board for this amount of services.
@@jordanchristian9099 wow that is a lot of work! We are getting a lot of resistance for even 2 times per week. Was this therapy at school or somewhere else? The school said he doesn't qualify for speech therapy at school, which is as hilarious as it is sad.
My fiancé has apraxia. He is very handsome. Just like you! ❤
Please do people with Apraxia find difficultly in reading?
I think if a random person spoke to you for a long time they would think you're sometimes thinking in another language and translating in your head. like sometimes when I think about an idiom that doesn't exist in the other language or if it's a language I don't know as well and I'm not thinking in the same language I'm speaking in it can sound like you sometimes sound
I have apraxia too I was born and rise having it🥺🥺
I have this and at this point Idk what to do , I’m very social distance from friends because of this .. I can’t even explain a story without pausing between words .. it’s hard .. I cry all the time and call myself stupid .. idk if this Symptom have anything to do with it but I even have to use a GPS EVERYWHERE I go because I forget where things is located at .. I hate it .. I want it to go away 😢
NaturalMelanin You are not stupid. You are not weak. You are beautiful in your own right and should be respected as such. If your friends don't accept you, than it's time to find others. I know it must be extremely hard and lonely for you right now, but you have to love yourself. There are other people out there who will love you for your personality and spirit, which is all that truly matters. It doesn't feel this way forever. Keep going, you can do it. I wish you the best. :)
@@aidynanderson1249 thank you so much 💕
I have this too. Can we talk about this on instagram? If so, send me your contact
I have this too. Can we talk about this on instagram? If so, send me your contact
@@alagbede_1 what’s ur Instagram ?
So basically, you have to think about how the muscles of your mouth move when you speak?
He still speaks better than me, I don’t have a personality and combined with this is just horrible I sound like a robot speaking
My son is 17 and has this from birth what did u do in order to fix this problem because as a single parent I am struggling to find ways to get this problem fixed
Speech therapy is the only way to try to improve our Speech.
I have Apraxia of Speech
Is there a difference in your ability to convey your thoughts compared to your ability to read words out loud off of a page?
Yes!
Briliant! I just posted this to my fb page SLPMommyofApraxia. Do you have an fb account to follow? Thanks for sharing!
Laura Smith I don’t, should I make one?
I’m on instagram at jordanchristian28
Thanks for your kind words. :)
It could be a platform to share apraxia awareness all year! But totally up to you.
Laura Smith I’m definitely considering it. I’m interested in making more videos like this that are informative/tells the first person view of how apraxia affects the individual
I have a question. I am concerned that my son has Verbal Apraxia. Do you still struggle? I mean, do you feel comfortable speaking or you would prefer not to speak?
I have Apraxia of speech, I'm 23, I only really struggle with people understanding me in loud environment. I feel comfortable speaking all of the time.
Yes to a certain degree but not as much. I progressed from a profound case to mild
@@jordanchristian9099 I am glad to read it. My son doesn't have apraxia fortunately. He just had a slight speech delay and is getting better by the day. Thanks for responding.
Hi
ASHLYNN ILY
Hi
Hi
You are handsome❤