Living with Speech Apraxia
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- Опубликовано: 29 сен 2024
- Hey, so I decided to make a video about my experiences living with Speech Apraxia. I wanted to show people what a 21 year old sounds like with this disorder. Sorry about the video being so long. Hopefully you guys don't mind. Enjoy!
FYI- I did not edit this video.
Jaron, Thank you. Our son was diagnosed today, and my wife is on the verge of tears. I am totally sending her this video. She is so worried that he isn't going to have a normal life. You are proving otherwise. :)
Kelvin Gerold it'll be okay! I had this too, and I'm 22 now. I went to speech therapy for a total of 13 years. I'm a pre-nursing student, about to apply for the nursing program at my college after this semester!! 😻 I’m also thinking of becoming a dental assistant, so I need to make a decision soon lol
Kelvin Gerold can you tell us how your son is doing now, a year later?
Well i always know I had speech issues. But I always thought it was minor problems. I recently recorded my ps4 online play and I can even tell what I'm saying.
I had 8 years of speech therpapy now I am 14 going on 15 and I can talk people can understand me. Not only that but i am enrolled in flvs online, and all my grades ar good. But the thing is I wouldn't change me having apraxia, but you will have hand corridantion and once and a while a word that I get stumped on.
How are things going? I am that Mom right now with no support from my husband. I think he is in denial.
I am a father of twin 4 1/2 year old boys. One of them has Apraxia. He has been in therapy since he was 3. He is a ever happy, every positive kid, but he is starting to realize he is different. Watching this helped me. I thank you for that. But more so it showed me that he has a future much like yourself.
Sean Dawley, my name is Samantha, I'm 18 and a apraxia as well, I also have a twin brother but he's doesn't have apraxia or anything he's really smart it's only me who has apraxia between my twin brother and I. 💙
You're an inspiration! My son has speech Apraxia, is in college and is doing very well. God bless. :-)
I actually have two children with verbal apraxia. My 10-year-old had come a long way but it's great to see how far you've come to reassure me that things will be fine when she's grown. Hers was diagnosed are 'severe.' I also have a 5-year-old who has it even more severe than she did.
Thank you so much for sharing your story. I have a 2 year old who has is red flagged for apraxia. He is only just starting to imitate sounds/basic words so we will go for his official evaluation in another 6 months (assuming he is imitating enough to evaluate). It has been weighing on my heart a lot lately on what his future will look like. Your story gives me hope that with continued support and therapy he can go on to accomplish his dreams. Congratulations on all your successes
I’m so glad I found your video. Thank you for sharing your story.
I feel comfort and hope for my 3 year old niece that was diagnosed 6 months ago. You are the type of person I always wanted my kids to look to. Positive through hard work.
Professional role model. You are awesome. I’m glad you didn’t edit the video. It was perfect as is.
God Bless you all your days.
Jaron, Your work ethic to overcome Apraxia is outstanding. I would be honored to have you as my nurse.
I would like to thank you for this video. My son was diagnosed with Childhood Apraxia of Speech two years ago. It gives me hope to know that people are able to overcome this disorder and my son can have a future much like yours. Thank you!
Thanks for putting this up / out there, Jaron.
You are doing a fantastic job of handling your circumstance. I have a 19-year old who is dealing with apraxia and a severe stutter. I'm showing him this video and hopefully he can use your experience as a springboard to take his progress to the next level.
And congratulations on the RN, and I assume your BSN in 16.
It can take you a long way, and you can affect far more people than you will ever imagine - says the spouse of a Former NA who went on to get her BSN and then her MSN/CRNA. It gets waaay better!
Cheers!
+Jody Silvers I graduate in two weeks with my BSN :). Planning on my MSN real soon.
Thank you. My daughter was diagnosed a year ago. This helps me to deal with the future. You are wonderful! 😊
THANK YOU SO MUCH FOR YOUR VIDEO !! i have a two year old who recieves speech therapy , has no autism but its obvious he has speech delay. Your video gives me hope that we put our own limitations !! GOD BLESS YOU
Hi Jaron
Thanks for sharing your story. It was enlightening to learn of your experience of having apraxia from birth. I was afflicted with apraxia at age 56 as a result of a stroke. I can’t image dealing with the challenges of apraxia on the schoolyard. You are inspiring. Like you plan post an unedited RUclips video of my experience acquiring and overcoming apraxia. Thank you.
Thank you so much for sharing, you are an inspiration and God sent to so many parents, me inclusive. God bless you as you have given us a truth to hold onto for our own miracle and testimony as we walk with our son. Continue to excel in all you do.
Thank you for posting this. My 2.5 year old was just diagnosed this week. She is already getting made fun of by 3 year olds not understanding why she cannot talk and how she talks.
Thank you for sharing your story. My son was diagnosed recently and the whole bit about him not understanding why people don't understand him was really informative.
You're story sounds exactly what I'm going through with my 3 1/2 year old son. You are giving me hope for his future. Thank you :)
Thank you for sharing!!! SLP here. I work with 3-5 year olds and AOS is my favorite population to work with. This video is inspiration for my families.
Thank you thank you thank you for this video!!! My 2 year old is in speech therapy and she thinks he has apraxia, and after watching RUclips I'm convinced he has it. After hearing the kids in the mayo clinic video. He sounds just like them. I've been watching videos and bawling. He gets sooo flustered that we don't understand.
As a fellow Apraxier, I can appreciate this. I still have people asking me where I am from, they say they can hear an "accent"
This video DID help! You're awesome and should be very proud of yourself for everything you have accomplished! My son is 6 years old and was also diagnosed with apraxia and low muscle tone in his mouth at the age of 3. It is very hard (more so for me) to see him struggle to get his words out. He is such a happy kid and doesn't seem to let him bother him. Quick question..do you remember how often you had ST in elementary school? He only gets it 2x a week in a small group. I feel he definitely needs more. Apraxia is more than overcoming typical speech problems that children grow out of. It requires intense therapy. (Just wanted your opinion) Anyway, thank you for this video! You were a big help and I wish you the best of luck in what ever you do. ~Lisa
I actually only had speech therapy once a week for the most part.
Thank you for making this video! You are so thoughtful for helping us with this.
Thank you for sharing your story. It gives me hope!
Thank you so much for sharing your experience!
+Bonnie Rodriguez Anytime :)
I have aprixa it is tough because people do make fun of me and I’m 16 and I have got a lot better
Thanks for sharing. Much appreciated… really, thank you.💗
Thank you so much for this video!
Thank you for sharing. It’s really helping.
so inspiring! thank you!
Thank you so much for this video! I think my son has CAS. 💗
Thank you for sharing💙
Thank you for making this video! My son is only 5 and still has many more years of speech therapy to go, I've often wondered what it may be like in the future. How difficult did you find choir? My son loves music and would like to do chorus with my older daughter, however I'm worried about how he would do with the audition.
THANK YOU!!!
Kim Smith you are welcome!
Do you know how word like when u writing.i should I wish I never have oral apraxia.for me it is a problem.
I feel you bro.. im 17 years old
And I have apraxia 😭 I always think that people don't like to talk to me😭
I am just starting this long process with my four year old son. As I sit here in tears wondering about the unknown it is nice to see what his future can look like. Did you have fine motor skill problems with your apraxia?
It's so hard as a parent isn't it? My son is now 12 soon to be 13 and still has difficulties, this video has really given me hope for him. One thing i had to come to terms with is not knowing how clear his speech will be as an adult. I hoped his speech would of been corrected years ago. One thing i've realized for sure, is that even if my sons speech doesn't improve he has a bright future. It takes considerable strength of character to get through each day struggling to be understood. I can already see my son has strong will, is very unique, has great coping skills, a big imagination, has more empathy for others then any kid i know his age. No matter what your child will find their strengths. Aside from that we live in a fortunate time where there is technology to aid them. So keep plugging along at the speech therapy, but don't let it be the only factor that you use to judge how well he/she is going to do in the future. Focus on your child's strengths and nurture them! Also, try not to let yourself over worry, or feel like your failing your child (this is something that got into my head a lot, especially when other moms (especially my own mom) made comments that made me feel judged, or made me worry about my son even more) Your clearly doing all that you can to help your child, and only you know your child the best.
Hey everybody. Thought I would drop a line here and say that I was diagnosed with apraxia of speech as well. At the time of my diagnosis, I was about 18 months old. I didn't start talking or say my first word until 3 1/2. My Mom put me in five sessions of speech therapy per week from 18 months-5 years old. I had moderate apraxia. Today, I'm 20, and if you met me on the street, there is absolutely no way anyone could tell that I had apraxia. The one person I have in my life to thank for overcoming my diagnosis is my Mom. She was my biggest advocate, and never gave up on me. Also, I'm doing well in college, and studying human physiology! Anything is possible, you are your child's biggest advocate in life.
Amazing! :D
Thank you for this!
Brilliant, my little boy and us where told this morning that he has apraxia. You automatically think the worse and panic yet the more videos I've watched the more hope I know my son will get better with it. He has over 40 words as of yet but struggles to ask for the right thing with associated word to it unless we tell him the correct word and then he'll repeat it. Its so frustrating as we know he knows what he wants.. thanks for giving me hope for my little boy
My son is 22 and is very lonely. He was very young when he was diagnosed. He’s always struggled to have friends even though he played team sports for 8 years and all through high school. Now he is really scared of getting a job(not being able to perform good enough). Not motivated to go to college. He wants to be a gamer and RUclipsr but is struggling. I’m worried he doesn’t have anyone like him to talk to that understands him. Does anyone have any suggestions?
Thank you for recognizing the efforts that your mom made to ensure you succeed. I want to be that mom too and stay positive. I know these comments are from years ago but my son was suspected of having it today, he’s 2.5yr. I just want to be as educated as I can be in every single aspect I can think of to help as much as I can without being overbearing/overprotective parent either as I want him to be independent and experienced success and failures too.
I have a 5 year old son with your same story, he is very severe. It's nice to see my son metaphorically in the future, stay strong!
DaRyVision thank you. I hope your son is doing well!
Same here ❤️ You give me MUCH hope ❤️
Same
my little sister has apraxia. when she was younger my parents took her to doctors and none of them could figure out what she had. All the doctors thought she was deaf at first. they even made her wear hearingaids. later one of her teachers figured out that she had apraxia and she began speech therapy. She is 15 years old now. she is still pretty hard for strangers to understand even some family can't understand her but I am the one who is the most close to her so I know what she is saying all of the time. she is my best friend. (:
Thanks, my son has Apraxia as well. ALSO he is bilingual. So, its been fun. But he is getting there. Thanks so much for sharing your story. Spanish at this point is easier than English so we are letting him learn what is easier for him.
I was curious about those who are bilingual and have apraxia. Interesting to hear that he has no issues with Spanish.
I have apraxia too. I am 13! Thank you Jaron. 😊
I am not a native English speaker and sometimes I don't understand what people say. However, I believe your speaking is totally clear and understandable! because I can understand it. good job :)
Thank you so much for making and sharing this video. I have a 7 year old son with apraxia. He was diagnosed at 3 and I constantly wonder what he will sound like as an adult or what any adult with apraxia sounds like. You have given me so much hope and comfort in knowing the possibilities. As I write this I am in tears. I can't thank you enough. You are awesome for sharing this. I know it will help many kids and families dealing with apraxia of speech.
That's exactly why I clicked on this video as well. My 6yo is struggling with AOS but we found out he is graduating from one phase of therapy to the next ahead of schedule. It's so hard when people assume your child has a cognitive disability and they treat them differently. They need people to treat them like every other child.
I am turning 18 soon. I also have an Apraxia. People can usually understand me if I slow down. And some words are hard for me(like all sounds you need to turn your voice on for like z,j etc) and that there some words I need to drop a word if it 2 words together at the end of the word that is hard to say.
I am 18 and also have verbal apraxia. Like you I started speech therapy early on, but I "graduated" from it in 2nd grade. I moved around a lot in middle school and I have had schools send me to their speech therapist and I have been told that there is nothing else that they can do for me. Recently, I have also almost had to think about what I am saying more because I am having trouble pronouncing everything. There are even some words that I avoid saying at all possible costs.I often feel really insecure when I hear recordings of my voice and have often thought about doing voice therapy to change it. Watching your video helps me feel a little better about myself and not so ashamed, so thank you for sharing your story!
+kherron7 Thank you for sharing your story as well!
kherron7 I feel you bro I have the same problem and Spanish is the worst. I can barely speak English and I have to try to speak in Spanish like fk this
i also have a huge problem with spelling words
OMG, we love you Jaron! We have a little boy who is 7 right now with CAS, he was only 18mos when we learned it and we, too, have been to "a LOT of doctors." He has global dyspraxia, so as hard as speech is, so is pointing or walking or anything else. He works very hard, and we are so proud of how far he has come. As a mother I am very grateful to you. I know not every kid with CAS will turn out like you, but seeing even one such amazing person is so moving, even though you have lived it, you can't know what it means to a parent, until you are one. Thank you for not editing it, too. I understood every word, love your sense of humor and your honesty. Thank you
Jaron, I just came back to this 5 years after responding to this video and saw how many people had responded. This is the video that helped my wife see hope in my son having apraxia. This is the video that got her comfortable with watching other apraxia videos and helped her get my son the help she needed. Thank you.
This helped me a lot I spent the last week crying my eyes out. My daughter going to be 4 and she talks and talks and yells an we have no idea what she’s saying I know she is trying so hard, and as her mom I can’t believe I don’t know what she is trying to say. Watching this helped me so much realize we have a lot of hope with the right help. How are you all doing now?
@@CCAnne my son is now 9, my in-laws funded 6 day a week speech for a few years and now at 9 he is in speech 2 times a week. He lives a very normal life, his friends understand him, though he does have issues still you can understand him. His friends understand him and when he has trouble all of his teachers know so about his apraxia and just ask him to say it again slower and he is very comfortable with it. Have faith, it feels like yesterday he would just stand in a corner looking miserable because he couldn’t communicate.
Thanks so much, i am 14 and i have apraxia and i have been wondering why my voice sounds so much like it does. Kinda like a lisp and sterotypical gay person voice even though i have no lisp and straight. I guess it is a how some people with CAS sound when they get older. (MY voice sounds like your but yours is a bit deeper). Also i have had pretty simular experinces throughout my years of life
Thank you Jaron, you're a strong person. I'm studying to be a SLP and have more hope after seeing this. I want to work with adults and know it will be harder than younger children but if they are anything like you I'm sure we will have fun anyway.
+Nicole Johnson Good Luck!
Hi Jaron! Thank you so much for doing this video. The doctors are working on diagnosing my three year old niece with apraxia, and seeing a "big kid" who has overcome it is truly encouraging and inspiring. You are an incredible young man. Good luck with your future. :-)
I went to speech classes in elementary school because nobody would understand what I would be saying not even my mother. I was never told by my mom why I was out into those classes and my best friend who I met in kindergarden told me a few months ago how nobody knew what I would be saying besides me. My mom still never told me if I had anything like this but I'm guessing I did? I'm not sure tho. I still have to slow down when I'm talking and try to talk clearly and I can't say a lot of things still
Thank you THANK YOU! This video has given both my husband and I hope and brought us both to tears. Words can't tell you how awesome it is to hear you speak so well and to tell your story! You remind me of my son who is currently 6 but my husband and I both said we can hear our son through your words. Thanks again for the uplifting and educational video. I wish more would put themselves out there like you. Good job with schooling and becoming a nurse! Rock on! :-)
My almost 2 year old is about to be diagnosed with apraxia. He only says jibberish. He wants to talk so bad and loves being social. He only says mama and bye and those dont even sound right. He will say a long sentence in jibberish and be so happy saying it. He doesnt imitate any words. Its scary not knowing the future. Also I worry about school and bullying. Thank you so much for this video.
Hey Jaron , i write from Rio de Janeiro - Brazil, i have a little boy with 2 years and 7 months and he has Apraxia just like you had. Its really cool, as a father to watch your video. Thank you so much ! I cried a liitle bit but I also think like you, i like to see the positive side of things, you know. You are 21 by now maybe, and you faugth and won this Apraxia thing , bro !! You are a winner !! As my son will be too !! Im sure !! How many guys in your age never had an obstacle in life ?? Any new difficult will be nothing for you , just remember what you did and you will be stronger !! Thank you again !!
Jaron thanks for posting this. What an inspiration you are. I have a 13 year old son who was diagnosed with apraxia when he was three. He did speech therapy and just recently stopped. He is in his last year of middle school and feels too embarrassed to go to therapy. He gets pulled out of class. He tends to stutter a lot and there are certain words I cannot understand such as if he says jerk it sounds like joke. I felt therapy at the school is not enough and he was not getting enough one on one. I looked at alternate therapy for awhile but wasn't having luck. I took him to an ear nose and throat doctor once because he sounds nasal and I though maybe it has to do with his sinuses. He could not find anything wrong. One thing you did not mention is what kind of doctors did your mom take you to? My mom is wanting me to take my him to a neurologist. I feel that all they will do is diagnose him with apraxia so it would be a waste of time. It really is hard for him because there are days he is really upset and feels he will never get better. He is in theater arts at school and he does a lot of behind the scenes stuff so it is difficult for him to speak.
+Angie Fierros I believe my voice is very nasal sounding like as well. I took speech therapy all the way until I was a Junior in High School! Does he like to sing? Maybe voice lessons would be better suited for him or singing in a choir since they focus a lot on pronunciation. I highly encourage speech therapy :)
I can't thank you enough for this video. You have given my family hope.
As a dad with a son with CAS I appreciate you putting this out there! thanks, bro.
James Panzini thank you! I hope this really helps :)
Dear Jaron, yes this did help a lot, thank you so much, you can be proud of yourself and also looking to the fact that you are in College is really giving me hopes for my 5 year old who faces a similar journey. Again many thanks and good luck with your college endevour.
I hope everything is going well!
They are suspecting Apraxia in my son. What are some good tips to take care of those elementary bullies? :(
Thank you for posting this. My son was diagnosed with Childhood Apraxia when he was 2 and is now in Kindergarten. It helps me to see the possibilities. And when he is ready, I think this video will help him, too.
I am exactly where you are. It breaks my heart that my 2 year old can't say I love you yet. He is the sweetest boy though. This video gives me hope
Same. My 6 yr old is just starting kindergarten.
My baby girl is 3 she has apraxia and you're amazing 😊😊😊
Hello! I wish I could message you personally but unfortunately I don’t know if I can or even how too. My son is almost 5 and had SEVERE Childhood Apraxia of Speech, I’m feeling quiet upset and frustrated because all I want to know is how he will go as he gets older. He’s making great progress at the moment because his speechie is amazing. He’s gone in 12 months from practically not being able to say one word to being able to make two word sentences with GREAT concentration... it’s very hard for him, and I feel sad for him.
Your words and your experience would mean the world to me.
Dude I'm so proud of you! I suspect my 2 year old has speech apraxia. I can only hope he'll have a great attitude like you.
Thank you so much for sharing your story. Your speech sounds quite good actually. I currently work with a middle school student with apraxia and I think your experience and this video will really help and motivate him. Best of Luck to you Jaron!
not a native english speaker but i do understand perfectly, you are great
Your video that features your remarkable speech progress has touched many people, Jaron. Thank you for bravely creating and sharing it to give many families hope! I'll gladly share it on my social media sites soon. ~Keri
+myspeechparty.com Thank you :)
Thank you so much for making this video. My four year old son has apraxia and with so much being unknown it's extremely wonderful hearing your story. It has been so inspiring and encouraging. So again thank you.
Can you give an update? Thank you
Hi, I'm Lola and I have Dyspraxia. When I was younger my mum noticed that I wasn't speaking when other children was, around the same age your mum noticed for you, she went to the doctors and was referred to a speech therapist that specialised in autism. This meant that people supposed that I was autistic but we found out that I had verbal dyspraxia. I don't ever remember not being able to speak because I just assumed everyone could understand me. My mum fought for me to have a teaching assistant so that I was able to attend a mainstream school, as I was told I would never be able to read or write if I did, I proved then wrong having achieved lots academically and outside of school. I usually say that I could speak properly when I was 6-7 but I still struggle to his day and get taken the mick out of when I say the wrong word or blur my speech. You are the first person who I've found that I think has been on a similar journey.
My 8 year old with apraxia has been asking me about adults with apraxia. He seems more aware of it than he ever has. I wondered if he knew how he sounded to others. It doesnt seem like he does. Would it be helpful for.me to record him speaking and show him? Hes such a trooper. He doesnt let it hold him back all. He volunteers to pray for everyone.
Thank you for sharing your story. Its so helpful!! Im going to show my son your videos so he doesnt feel so alone. Youre amazing. Youve overcome so much and youre so strong. Thank you for paving the way for others and just being so genuine and authentic. God bless you sweetheart!
This gives me hope, your speech sounds great, but most importantly you have a great outlook! I can tell you have had to be strong in life. I don;t think people can fully appreciate just how much a language impairment can affect someone, the nuisance of having to repeat yourself more then once to get someone to understand, awareness that your speech is different, anxiety, and just the general exhaustion you must feel at the end of the day having to work so hard at something that just comes effortlessly to others. My son ( age 12) has apraxia and a language disorder (dyslexia) I know he has to work really hard at his speech and his school work. My heart breaks for the daily struggles he goes through. As his mother i want to push him to improve but i also want to let him just be him. I also can't hear his speech disorder as clearly as others can because ive developed the ability to lip read over the years. He's been in speech therapy since the age of 3. Its hard as a parent because people like to bring it up, mainly teachers giving you a laundry list of your child's weaknesses not bothering to mention the positives. My own mother, loves to constantly bring up how she can't understand him on the phone and make up reasons (seemingly in an effort to prove its my parenting at fault because i let him play video games and watch tv sometimes) It bothers me when others approach me because they can't understand him. Like as if its so hard to the decent thing and clarify what someone is trying to say with them instead of treating them essentially like a non human. His main issue now is he speaks too fast. I think he does this out of habit trying to cover up the fact that he makes speech errors, or maybe he is just excited. Its encouraging to hear that you didn't get bullied in school for it. My son has been at the receiving end of a few rude comments. I Still worry a great deal about how he will be treated in high school, he doesn't always wanna talk to me about mistreatment. I can tell when he's had a bad day, because he is moody towards me, and typically we get along great. I often wonder what his speech will sound like when he is older, i used to wonder at age 3 and so on at the earlier years i figured he would be speaking 100 percent clearly before age 10. I now realize, he may never be 100 percent coherent with his speech no matter how hard he works at it . Likely he will improve greatly as you have, but whether he does, or how much he improves, in the large scheme of life it doesn't matter its who you really are that matters most! Thanks for the inspiration and best of luck to you in the future!
I have this also, I’m 13 years old and I used to have a speech therapist, I’ve gotten so much better at my speech tho, I really hate having it tho,
15 now and it’s gotten even better in my opinion! 😽😽
I'm glad you got help. im glad you got over your elementary school blues! mine was shyness and be littling!
My daughter was diagnosed with childhood Apraxia. sometimes she says words so clearly, but if she speaks too fast it's harder to understand. she is now 4 learning more words everyday.
Hello. My son just started speech therapy, he's 2. I have 2 questions. 1. They say apraxia often occurs along with autism. We're you diagnosed with autism as well? And 2. I was wondering, does it always feel like hard work with every word you say, or at this point in your life does speaking feel natural and effortless to you? Does it feel like you're constantly working hard and consciously thinking about pronouncing things correctly or do you feel more relaxed when you speak now without having to think too much about how you're going to say things?
awesome video thanks for making it bro. my kid has apraxia too so this is inspirational
Hi Jaron, I really want to thank you for putting your intact video on. I really liked it. You come across as someone really confident and you really seem to know who you are.
Your journey seems to have been a lot of learning through different medium, in the private therapy you received when you had to learn where the tongue is positioned and all the different pronunciations do you have a specific name for that therapy? Thank you again and keep having a blast! Tonia
No I do not. I think it was regular speech therapy since most of the time I was in a group of other kids. Music class helped a lot when I was in high school. Definitely would recommend voice lessons IF your child likes to sing or like music in general.
Thanks for posting this video, Jaron! I'm studying to become a Speech-Language Pathologist like some of your other viewers and I'm glad to know that your therapy was helpful. Thankfully, I will also be able to work with awesome people like you someday. I admire your bravery in sharing your journey; it's never easy to show vulnerability, but you did so selflessly for the benefit of others. God bless you! Wishing you a lifetime of happiness.
This is a comment from my 9 year old son who has Speech Apraxia: I like you and I take speech classes. 💽💽💽💽💽💽💽💽💽💽💽💽💽💽📀📀📀📀📀📀📀📀📀📀💽💽💽💽💽💽💽💽💽💽💽🎵🎵🎵🎵🎵🎵🎵🎵🎵💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽💽
Marg E. WOW that brought me to tears 🌺🌺
@@tracylawlor4214 Aw. Thank you.
Bless you. Thank you for giving us all confidence.
I just wanted to say how much I appreciate your video. I have a 4 year old with apraxia of speech. He's been in therapy for 2 years and is considered severely delayed in his speech. It's encouraging to see how you've persevered and overcome your challenges. In a little over a year, he'll be starting school, and I am concerned about his getting teased. Is there anything in particular that your parents said or did to help you out when you faced teasing at school? Thanks so much for posting this video, your honesty about apraxia, and for showing an unedited version. It's really helpful to us parents out here in cyberspace!
I grew up with the same condition and art really helped me out. Art was a big part of my life to help express myself. I also had melt downs when I was in preschool and elementary because they didn’t understand what I was saying. Thank you sooo much for sharing.
wow 😮 I didn’t even know you had apraxia not many people or kids had those problems like that. because I have Down syndrome I had Down syndrome as child, many people like me go to speech practice. the only problem that I had is to mange my diabetes. I did not know what diabetes was at the time. 😢
Thank you for this. My adult son (24) has exactly the same symptoms as you describe talking to your mother. I didn't even consider he doesn't understand that people find him difficult to understand.
Nice video. Thanks for your honesty and insights.
Hello,
My son has autism and childhood apraxia of speech. I have been so worried about whether he will speak because he is about to be five and still has no more than ten words and they are unintelligible to most people. He has been in speech therapy since two and I have not seen a lot of progress. I know this video is old, but thank you for posting this. I am happy you gained the ability to speak and that it is understandable. I hope my son learns to speak.
You sound very clear when you talk, although you have speech apraxia. Some people may have it so severe that you cannot Mae out what he or she is trying to verbalize.
Hey Jaron, I know you probably won't see this haha but I just wanted to let you know that this video really helped me to feel for people speech apraxia and today I'm actually going to volunteer for a fundraiser for speech apraxia today with this business I work with as Rapunzel. I'm so excited to make these kids days after hearing this story.
thank you so much for sharing this, it's an inspiration to me.
Thank you for doing this! My darling little boy is almost 3 and he has apraxia. Like you, he tells us all kinds of things and we have no idea what he is saying. I am worried about bullying and thinking we might need to home-school him or find a private school. I love your way of expressing yourself, and I know when my son is older your courage and perseverance will inspire him. Thank you again.
I had CAS and went to public school. I remember getting frustrated that people couldn't understand me and was almost held back in kindergarten because of it (mom fought to have me advance). Thankfully I didn't experience any bullying in school because of my speech impediment. Especially with early intervention, I'm sure your boy will be fine in school!
Thank you Jaron for sharing this video. My son was diagnosed very late when he was 5,5 years old with servere Apraxia. In Germany it is not very known within therapists, so you can guess, it was quite a struggle. He`s 12 now and luckily doing well and a strong person, like yourself! Good luck and thanks again for sharing.
I just want to say how you are an inspiration to others. I haven't seen a doctor yet for my son who is 3 years old who I'm an very certain has speech apraxia. You have shown me (and I'm sure others) that nothing can stand in your way. ❤️ God has blessed you with a beautiful heart. Xox keep being the amazing you!
Hi Jaron...First off I wanna say I totally miss you!!! I also wanna say I am so proud of you...making this video must have been out of your comfort zone and takes a lot of courage. I also decided to jump out of my comfort zone and make a channel- kennedykoalaboo02 if you want to check it out but I havent posted for a while due to not having my phone... oh ya btw its been 6 months I am dying!! but anyways love ya cuz :*
Good information,we just discovered my 3 year old daughter has speech apraxia . This video is a total awareness to the world so ppl can understand what other ppl go through from an early age.
Thank you so much for doing this video.
My son has severe apraxia..
your video makes me so happpppy, thank you.
Thank you for sharing this, it's helping a lot of families. :)
Thank you so much for sharing your story. I understand what you say nursing school is tough! I just graduated and started my first big girl RN job! But at the same time, I'm learning that my son is apraxic. I'm super emotional about it right now and your story has helped me. You're going to be a great nurse! Good job.
I really wish there was more of this kinda of awareness on Apraxia!
Thank you for sharing, my brother is 8 years old and is going through this , you explained it very well.
Thank you for this video. My son (currently 4) was diagnosed at 3 with speech apraxia, but he had been receiving speech therapy for a year before that since we thought it was a delay. I'm glad for your success and glad your mom was such an amazing advocate for you.
Thank You so Much for sharing We just found out our grand daughter has Apraxia of Speech she just turned 3 on July 10 , 2016 God Bless You ...... You are Precious !!!