My Journey With Apraxia Of Speech - Jordan Christian LeVan
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- Опубликовано: 29 сен 2024
- I don't believe a 19-minute video could ever fully tell my story, which is why I am writing my autobiography. However, in this video, I share my experiences growing up and being an adult with apraxia of speech. I love you, and happy apraxia awareness month.
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Thank you! I have been checking your channel hoping you come back☺️
I AM BACKKKK!!! 💙💙
Loved it my man.. keep up the great work.. my 7 year old can't wait for camp... I know for a fact that you have helped so many kids and not to mention mothers and fathers. You have always been there when we have had questions. We can't say thank you enough.
I CANNOT WAIT TO SEE YOU AT CAMP COMMUNICATE!
@Jordan Christian LeVan well him and his mom will be there. U do his iep meetings
My 3yrs old beautifull daughter has just been diagnosticated with dispraxia. Hopefully without any other complications. What will be her future? Struggle with this bad feeling but willing to help her the best i can. She started therapy 3 months ago, for now she s starting to talk, almost not comprensibile to strangers, but correcly words are starting to go out. Finger cross. Can i ask you how much time you spent to reach a good speech like yours?
Hi Jordan, I’m a few years older than you and went through some similar experiences. I’m actually just learning what Apraxia is now at 30. I would have started speech therapy at around age 6/7 in 1999/2000 in England and was sent to a new school for only one year for intensive speech therapy. It’s interesting to learn that it is a life long condition and confirms my suspicion
It definitely added a traumatic element not knowing what I had growing up because it does leave you open to bullying. Your confidence about yourself is already low, you’re less able to answer back and defend yourself and less likely to confide in others about it and to negatively internalize it instead. I remember being bullied and whenever i tried to answer back they would say that they didn’t understand me and then heap on other negative things. The psychological issues can definitely be another long term problem to face after the physical issues of speech production are mostly solved. I also remember things like having to give a speech in front of my class and inadvertently making a pronunciation mistake as a teenager(years after I’d stopped speech therapy) and having the whole class laugh. I did have friends but definitely felt like an outsider as there was no one else like me.
I also found that missing out on normal socializing as a young child can give you lifelong difficulties or stress when socializing or dealing with routine social obligations as an adult.
I had to get over social anxiety issues as a teenager and young adult as a consequence of my childhood experiences too.
I also was behind in school and was separated in the classroom (in primary/elementary school) for extra help and had extra special needs support with reading etc. This in combination with the other things gave me confidence and self image problems.
However on the positive side. I started secondary school ( high school) still with special needs classes and in lower ability level classes. Then through determination and increasing confidence in my own intelligence managed to finish with mostly As and Bs and then get into a good university.
However, it does still affect me as an adult with how I can interact with people in certain situations and I guess I do have to concentrate on how I speak even though my speech is mostly fine. I’ll slip if I speak too excitedly or feel anxious or surprised by an interaction. And i never do things like call to someone else from across a room. People still say pardon to me a lot and I have to concentrate on how i speak more than others do. I mostly feel comfortable in close one to one conversation where i can have a steady, relaxed way of speaking.
Still, I’ve made myself do things like be a Best Man, and teach English in Asia. I’m proud of those but in trying to push out of my comfort zone I also realized the wall I am hitting which is the reality of having this condition plus the social skills problems it leaves you with.
Apologies for the short essay, but I thought it might help to add some of my lived experience here too.
I would love to feature your story on The Apraxia Foundation! It’s a 501(C)3 nonprofit helping individuals with apraxia of speech afford research evidence based services and AAC. Your story is so important & I would love to help you spread the word!
@@jordanchristian9099 Hi, i’d be happy to write you some kind of bio to feature if you think it would be helpful to others. To be clear though I may not have been officially diagnosed with apraxia. I went through the experience as a child of speaking and it would be mostly not understood by others even though I knew exactly what I wanted to say though. I then had to have intensive speech therapy for it, so after hearing your description I highly suspect that that is the speech impediment I had. I could write something about my personal experiences growing up with it but I don’t remember a great deal about the specifics of my pronunciation and therapy etc. I’ve only been reading about Apraxia as a specific condition for a few days. I must have had a more moderate version of it than yourself, as although it had a big impact on me being understood as a child it doesn’t have a significant impact on my speech now. It more sets boundaries around how I’m comfortable speaking. It isn’t entirely gone but faint. I found the social isolation, loss of early socializing, anxiety, self image, bullying etc which came with it as challenging as overcoming the impediment. I was largely able to overcome the worst of those in my twenties. I appreciate every story and individual experience is different though.
Thank you for this video Jordan. I've read about Apraxia in books, but it is way more helpful to hear from someone like you who has grown up with it. Is it easier for you to write back and forth with someone?
So nice to see you on here again, Jordan. Hearing you talk so beautifully now gives me hope for my own son who is working through his own severe childhood apraxia at 6.
I love you and I’m always here for you!
@@jordanchristian9099 May I ask, did you like to draw when you were younger? My son is only now starting to discover that drawing is a new avenue to communicate. Early days, but he definitely knows he now has a new tool.
Thank you so much for doing your work in apraxia awareness, Jordan. You are brave. You are making a difference. I’m joyful you’ve “owned it.”
👏💙👏💙👏💙👏
Thank you for sharing.
I’m buying your books for my son. He just turned 9 and barely can write or read without help. It’s really hard. Hugs to you and your mother. When we’re you able to write and read?
You're amazing Jordan, and this is so so helpful. Thank you so much for sharing your story ❤️❤️
It's good to see you again! I was wondering a few weeks ago about what had happened to you and hoped you were doing well.
Yes! I’ve just been doing so many things over the past 2 years. I published a book series, opened a nonprofit, and graduated college! I’ve missed filming though like this. It’s so therapeutic.
So helpful! Thank you. Well done! 🎉
Wonderful video. I wish you all the best.