Growing Up with Verbal Apraxia (CAS) - Q&A
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- Опубликовано: 25 июн 2024
- hey guys, in this video I answer frequently asked questions I get about growing up with Verbal Apraxia. (Verbal Apraxia is otherwise recognized by ASHA under Childhood Apraxia of Speech.) I took these questions off of my Facebook and Instagram!
You can find those social media links down here:
Facebook: / fightingformyvoice
Instagram: jordapraxia
My Website: www.fightingformyvoice.com
My 7 year old son has apraxia and kids ask him why he speaks like a baby. It's not their fault as they are only curious children but it has impacted on his confidence and ability to make friends.
Thank you for the video.
I am a speech therapist. Your video is an inspiration to me. I am very proud of you! Keep up with your good work.
Thank you!
Do you know if there is a definition for a person who speaks and emphasizes every fifth word or so... A big brown dog RAN past me and then HE walked home.
This video is awesome. Both of my sons have apraxia they’re age 7 and 3. It’s nice to see an adult with apraxia talking about this speech disorder.
You are in the right place.. you should follow him on Facebook too.. he is gonna give you a lot of positive energy to go on
My son is 5. Recently officially diagnosed with apraxia. Myself and my daughter interpret for him. People don't understand him at all. Thankfully, I am able to understand about 65 percent of what He says and my daughter understands 95 percent. Watching your videos has given me hope. The most heart breaking part of it is that he has an extremely hard time with making friends. Kids look at him weird and ask him why he talks weird. I pray it is building his character and strengthening him.
Thank you.. really thank you.. I have a 5 years old son with Apraxia and I see him in you ,thanks to you I am able to understand him more now.. please keep going and never stop talking to us.. we need people like you..
I'm a school psychologist, and your video is so valuable! It helps us see how our students can grow up and be terrific like you!
Hi! I'm an italian Speech Therapist who works on Speech Sound Disorders and Speech Motor Delays. I was surprised to see your current level of speech. This is much inspiring and supporting not only for my daily practice, but mostly for the families and the guys I work with. That's why I recommend your videos to those of them who master a little bit of English language! Thank you.
Thank you I’m over here sobbing my heart out because my 4 year old she try’s so so so hard to talk and yell but she can’t make words in English they are all kinds of sounds and she gets so upset, I am so great full you made this I know one day she maybe able communicate and read. You have done absolutely fantastic ❤️🙏
Stay strong and optimistic. Things do improve. I know we can't project to the future when we see our child not talking!
@CharitysClarity I’m right there with you! There’s not ONE day that I don’t cry my heart out seeing my son struggle and he’s not even in school yet. I make a concerted effort not to do it in front of him though but some days it just happens. I had him in my early 40’s (he just turned 3 May 4th) & I’m not in the greatest health. I know it’s going to get harder before it gets better, especially when he starts school but I’m ready to take it on. I know that it’s going to be even harder on him when kids start to pick on him, which I know that they will because he’s also on the spectrum. This is the first time I’ve watch a video of an adult with AS & he’s giving me hope!
Jordan, thank you so much. As the mother of a little kiddo diagnosed with CAS, your video gives me immense hope. I realize I may be biased, but I do think this video is one of the most beautiful on all of RUclips. Bravo to you on all of your hard work.
Thank you for sharing your journey. It makes me feel like we are on the right path with our 8 year old son and as you know - this is a tough path to navigate with not much information out there. I feel inspired and man, GOD BLESS those SLP's, Support Teachers, Orton Gillingham Tutors!! I owe them my world for their efforts and care.
Thank you so much for sharing! I am a Music Therapist and I work with a few clients with apraxia...thanks for encouraging others!
Thank you for doing these videos. It's so good to hear from someone who has lived with this disorder. My seven year old son has been diagnosed with CAS. I'm so greatful to finally have a reason for why and information for how we get him the help he needs. I look forward to seeing more of your videos. Take care x
So proud of you. God bless you in all your future endeavors
This video was so inspiring and helpful for me! My seven year old son has CAS and is the kindest, most thoughtful person. It breaks my heart that he struggles to make friends because speech is so difficult for him. He has also struggled with reading and writing, but with lots of work, he has been picking them up. We are so proud of him for so many reasons!
Im so glad to have watched your video. You gave us hope! Thank you ❤ - from a mom whose kid was just diagnosed with apraxia today
I’m so proud of you. Way to go!
You are doing a great job. You are giving the most important thing,"Hope"!
Thank you for doing this video. My little grandson has CAS and I have been wondering how it will impact him in his adulthood. I am so reassured by your video as he is enthusiastic and happy to speak as you are! You rock!
Thank you!
Listening to you gives me hope for my 5 year old son who has just been diagnosed with apraxia
I’m learning so much from you. Please keep up the great work
I am so inspired by you! My 4 year old grandson is on the autism spectrum and has apraxia. I'm so encouraged that with speech therapy, he'll be able to blossom as you have. Thank you!
Thank you for this video and sharing your experience. My daughter is diagnosed with CAS but fortunately developing her speech A LOT. Best wishes for you!
Thank you so much for sharing your experience! My son's speech therapist thinks my 5 year old has apraxia and told me to look it up and I found your videos!
thank you so much for making this video. my son is 8 and is apraxic and im so inspired by your video!
Thank you for making this video. My 5 year old son has apraxia and mild autism. I’m constantly questioning what sort of life he have later on. After listening to you, I’m hopeful.
I'm a Baslp student, I'll be a slp, ur video give me more motivation towards my study.... Hopefully one day I'll be also able to treat people who in need, like ur slp did. Wow!
Thank you so much. This gives me amazing hope
THANK YOU MY TWIN SONS ARE 6 AND RECENTLY DIAGNOSED. YOU BRING HOPE
You are an inspiration! I'm a mama to a 9yo guy with CAS, and watching you express yourself so well now is really encouraging. Thank you for sharing with all of us ❤
💙💙💙
my 2 sons have it. one is 17 and one is 6. as a Mom i have learned how to be a Mommy speech teacher for my kids and it has actually helped them a lot
That’s awesome!
Jordan, thank you. My son is 9 and also has speech apraxia. He's never met anybody with a severe articulation disorder like him. I can't wait to get home tonight and introduce him to your channel. He also has a RUclips channel and loves to share videos about skate boarding and FortNite 😄. Keep sharing, please, I'm so grateful to have found your channel.
Amber Theriault you’re so welcome! I haven’t uploaded in a month or so- but plan on doing more content in the future
Thank you so very much for sharing your story.
Really thanks for your video, you gave me hope for my daughter
Thanks again ❤
Thank you for this video. I enjoyed this video and it was apt. 🙏
Thanks for sharing this! 😊
I'm so grateful for this. My four year old is being diagnosed with apraxia, and I just wanted to hear from a perspective like his.
Found out my 5yo has it..arghh..
@@rhdtv2002 It's a difficult road and frustrating for parents and children. My little guy's apraxia is pretty severe, as he has a handful of words he can say clearly some of the time. Sometimes it's just too much for him to bear and it breaks my heart.
While your speech disorder is slightly noticeable when I pay attention, your smile, good attitude, and charisma make up for it and then some. It's very inspiring.
Hi! I'm an SLP from Montreal, and I wanted to thank you so much for sharing your awesome videos with us! I do have a couple of questions for you (only if you don't mind answering them):
1) Where were you able to get 5x of speech therapy a week for 7 years? 2) Did you get these SLP services in a private school or in a public school or clinic?
I'm asking because I'm the only SLP in 2 elementary schools (of around 400-500 kids in each school) in Montreal and there is a serious lack of SLPs in the public sector (health and education). Even in the private sector there are wait-lists for SLP services. I'm so glad you were able to get intensive speech therapy for many years, but there are so many other kids out there who aren't able to get that amount of speech therapy 😢.
Anyway, you keep doing what you're doing, cause you're really great at it! 😀😀😀
Hey! I appreciate this video so much! My sweet 2 year old just got diagnosed with this today. He also has a CHD called, DILV. My first thoughts was how much he'd deal with bullying. I was bullied and I was a normal boring teenager. How did you cope with kids and people being mean or making fun of your Apraxia? I want to be able to help him deal with his disorder in a positive and living way. Thank you for your time!
Great job!
hello! I'm 19 and have always struggled with pronunciation and speech I thought it was because of my autism but however, but I know other autistic people who pronounce their words so clearly after doing some research I come to the conclusion that I have apraxia It is nice to see someone I can relate to.
I love this! I think my son has this aphasia!
5x45 minutes per week for 7 years ... hell, thats amazing ... my son can get a total of 8-10x30 minutes in 3-4 months :'(
With that said though, you are amazing Jordan, thank you, this is very helpful for a parent with an apraxia child!
Thank you ❣ SO helpful 😊
proud of you
I've had severe speech apraxia disorder and was diagnosed about the same age as you 4 or 5 years old. My mom also knew I had speech disorder but doctors thought I had a hearing problem! But moms know best and she google searchd it and the docs tested it and I did and still do have apraxia. My mom taught me little sign language but since I went to therapy from when I was 5 1/2 for 11 or 12 years, I forgot most of it but I can now efficiently communicate in english without my brain messing things up. But to this day I still have to be corrected on some words and phrases, I have bad balance and hand coordination but I am proud to come out of therapy after 13 years. Now I am 15 years old and most of the time people can understand me! I loved your story. Did you have balance and hand coordination problems along with your apraxia and also I don't remember having hard times reading! I actually remember loving reading! Which every story is unique and I love that 😊
Heaven Kleinschmidt congratulations with your progress! I think that’s amazing! It’s common to still have some speech errors entering adulthood. But also keep in perspective- everybody messes up on words sometimes!
I actually have bad balance as well. I wouldn’t say clumsy- which I’m also not very active. 😂 I didn’t learn how to ride a bike for example. Hand coordination took me years in OT to get down. I don’t have hand coordination problems currently. However, I do notice I hold my pencil differently!
@@jordanchristian9099 Yes! I didn't learn how to ride my bike for a long time either! I had to have a bike that hand a railing thingy so my brother could hold on to it while I pedaled and one day he let go and that is how I learned! I also held pencils and silverware differently too! I love being able to talk about my apraxia because many people don't even know what it is!
well, from what I understand speech aparaxia is a brain disorder, so I guess it makes sense that it affects other things too.
@@jordanchristian9099 the only reason why I'm watching this is bc I love science haha. I watch alot of things regarding diagnosis, illnesses, anathomy etc. purely for entertainment bc I've always been that weird kid who enjoys this kind of stuff lol. I remember back in school, I would be so exited when we were gonna watch a documentary, while everybody else absolutely hated it 🤣
And now I am an adult and I still love science haha. Anyways, I wish both of you the bestest of luck. I'm sure you are both very brave and talented people. Sending lot's of love from the bottom of my heart
@@Pikachu_Duck_Lemonade yes apraixa is a brain disorder and I love science too so I understand haha. I also am very interested in dignoises and other things of the concious. Thanks so much and I'm sure you are also a very brave talented person and sending love to you as well
thank so much for this video. Also I would like to know if u had/have any other disorder? As a parent of child with CAS and DDX3x Mutation I thank u a lot for this content!
Hi Jordan, I’m a special education teacher who is currently working with a 1st grader with Apraxia. In addition to the support you received for reading and writing with your speech therapist, do you remember getting support related to math when you were young? For example how to pronounce the numbers orally?
Hello. You are an inspiration to me. My daughter is 3 with suspected CAS. Did you have multiple slps growing up? How do you know if you have the right slp who is meeting your needs because CAS is a difficult disorder to treat, especially when you add different or longer utterances. Thank you!
I think you’re awesome! “There’s no right age to stop.” That goes with everything, doesn’t it! Hats off to you for reminding all of us to keep reaching. All the best to you.
what age did you start to speak? My son is 4 and a half and hasn't started talking yet. Seeing you, gives me hope that my son will speak one day
From my student: Sometimes when I meet new people I feel less confident in my speech. Does that ever happen to you and how do you cope with it?
Thanks for the Video, I appreciate so much all of your comments, my son was diagnosted with apraxia and I think every day what is the Best thing to do to help him.
Thanks for your video. My son is 5 and still not diagnosed with a speech disorder, I'm beginning to suspect mild to moderate apraxia, but I guess we'll see what the doctors say. I hope they're able to diagnose him with something so he can get the help he needs. We've been trying to find answers since he was 3....😥
Mine is 5yo and we just found out but I told my wife that he had it years ago
My speech is only fluent in my head
Mine too!
Hi Jordan. My 32yr old son has apraxia. He is having a very difficult time doing job interviews. He got a job at Walmart about 7 yrs ago but hates it. He has been on several job interviews but no one ever hires him. I believe it’s because of his apraxia. Voc Rehab helped him get the job at Walmart but even that was difficult. Voc Rehab only helped with the interview and it took a very long time to find this job. Have you ever been on a job interview? Did you tell the interviewer about your apraxia. My son has done it both ways. Any help would be appreciated. Great channel!
I hope my daughter turns out as cute and funny like you!!!!
Aw that’s kind of you to say, thank you!
Hey I grew up with verbal apraxia too . Now I’m a singer 🤣
Hi, Jordan. My son just started speech therapy, he's 2. I have 2 questions. 1. They say apraxia often occurs along with autism. We're you diagnosed with autism as well? And 2. I was wondering, does it always feel like hard work with every word you say, or at this point in your life does speaking feel natural and effortless to you? Does it feel like you're constantly working hard and consciously thinking about pronouncing things correctly or do you feel more relaxed when you speak now without having to think too much about how you're going to say things?
do you know what therapy you received ? your speech is amazing!
Therapy based off of repetition!
Thanks for your videos I've watched several. Did you use alternative communication methods as a kid? Sign language? Or something else? We are suspecting my 2 y/o has apraxia and we are learning ASL a bit to help her communicate
My son too and we have been doing ASL
My 4 yrs old daughter has apraxia she was finally diagnosed last yr by her speech therapist. She gets so frustrated.
I'm so afraid she'll be bullied growing up
Hey, my brother is being questioned for having it, what do I do that'll help him?
At what age did you begin speech therapy?
What country are you in? Was speech therapy provided by government or private? You are able to talking beautifully now.
In public school and USA
hi jordan
How did you manage socially? Friends?
My daughter appears to have apraxia at the age of 3. No words, but she is trying so hard to pronounce sounds.
I was wondering if you were ever able to discover the cause of your apraxia. Thanks!
I have Apraxia of speech, technically there is somewhat of an care it's called speech therapy. I do not think there is a need for an care. I think the only care would be, if an child with CAS is born with a disease that should have an care,That they get an chip in their brain, and their medical team decides that the chip has the capability to produce speech, Than that would count as an care
I have apraxia due to my seizures... I know some sign language but am not fluent. Can a word ever be in your head but can you just get the word out?
That is my problem a lot of the time.
I use my hands a lot of the time too, to "speak" because I can't verbally communicate.
That’s what I’m wondering too. Can you know a word, but can’t make it come out?
My 4 year old son has Apraxia, thanks for this video. For all the moms out there how do you guys cope? Has it been hard for you guys? How are your kiddos doing?
Very hard I'm so alone in this . In area with no good services . But I work hard with my son .and this kind of videos gave me so much hope . Thanx for asking .
@@echonight7705 how u doing, hope everythings fine. Hurts to see mothers go through hardships like this🥺🥺🥺
I have question... When "talking" in your head is your speech fluent or do you have moments where your head-speech is affected by your Apraxia as well?
I'm 21 with Aprxia I can speech is fluent in my head only
I'm 24 and there are times when I can hear my speech. Most of the time I sound fluent in my head though.
@@blumen9724 It's Crazy so sometimes! I thought I was the only one! lol!
I am 26 and my speech is only fluent in my head
Mine is fluent in my head!
how is apraxia diagnosed? in Germany they don't know that, please I need an answer ?
In the UK apraxia is called verbal dyspraxia. So you might get help from that.
Love your video, but please put your distracting hands down, sit on them. My daughter has apraxia too.
Hand movements help promote my speech, as motor skills support speech production. Avoiding hand movements would not be affirming of neurodiversity and would not aid in my verbal speech production. I always encourage hand movements, as they help create speech neurons in the cerebellum of the brain. Encouraging a person with CAS to sit on their hands would not be beneficial.
Every single person is different, my daughter has never used the hand movements like you do, it was intended as feedback for a more enjoyable video. But I get it, if it helps you communicate, then it helps for that success, importantly.
Thank you for sharing this
Jordan, It is so inspiring to see your shining face and your confident manner of speaking! As an SLP,, I am esearching how beneficial Hi Tech AAC, Alternative Augmentative. communication using an ipad with proloquo2go will be for student who is very verbal but frustrated. If you have had experience using high tech communication, would you please post? Thank you for being awesome!
Kaycee 😊