Endometriosis: Stage 4
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- Опубликовано: 7 сен 2024
- Please share this video. It is very important to get the word out about Endometriosis.
Since this video is so long I have added the time of major talking points.
0:09 Reason for my absence from RUclips
1:20 Something inside of me is wrong
2:50 Actual diagnosis
4:10 Gynecology Oncology
6:20 What is Endometriosis
8:35 I woke up from surgery with a catheter on
11:40 Lupron injectons
12:42 Side effects of Lupron
13:50 Health insurance/ Endometriosis is an expensive disease
16:28 Getting pregnant
I was recently diagnosed with stage IV (severe) endometriosis. I have been gone from RUclips for 2 years and this is why. This is my first time publically announcing this. I have been struggling with sharing something so private because this disease has essentially changed my life. My mind was going in a thousand different directions when making this video because it was extremely difficult taking about something that I am still very emotion over. I chose to share this information publically because I want to create awareness for this disease. If you are experiencing the following symptoms please contact your primary health care provider:
- painful periods
- pain with urination or bowel movements
- excessive/heavy periods and/or spotting
- pain with intercourse
- pelvic pain/abdominal cramps/back pain
- difficulty becoming pregnant
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MsTanish1
I have severe stage 4 Endometriosis. We need a cure, and Endo awareness needs to be known, as there is 176 million women world wide. Thank you, for the amazing video.
Ooooh I feel every ounce of this video love. I too was diagnosed with stage 4 endometriosis this past April. People just don't understand. I went through my life with everyone looking at me like I was crazy when I would complain about pain during my cycle. Friends/boyfriends thought I was overreacting. YEARS of doctors throwing me on birth control, pain killers...etc. Hospital stays where no one knew what was wrong with me and being released to still deal with the uncertainty and pain.... Missing work, school and special events because of the pain! When I was diagnosed I cried...like a sigh of relief of FINALLY knowing what was going on with my body. I had a very large rapidly growing ovarian cyst that I had surgically removed. This is what lead to the stage 4 endometriosis discovery. My doctor said it was the worst she had ever seen. Thank you so much for sharing your story. I pray you are in a better place with your health. And you are so right that more awareness needs to be brought about this. I appreciate you ❤️
If you are not comfortable getting pregnant because you are not married then I'm with you on that sister. Trust in The Most High God and he will make you a mom when the time is right. Welcome back and thanks for sharing your experience.
One more thing, continue to speak all good and positive things into existence. And never ever take ownership of this condition (i.e. "My endometriosis"), it doesnt belong there so therefore it doesnt belong to you. Blessings to you on your road to complete recovery.
+Natalie Brooks Wonderful post.
Shawnny Colin thank you!
amen!
Yes, claim all great things...xo. Thanks for reminding all of us doll😌
***** We all need this reminder from time to time for verious reasons. It is a true blessing when we can gain strength from each other. #MySistasKeeper
This is so terrible. I had endometriosis from age 13-26. I didn't even know until age 21. My symptoms vanished once I started having children. Your case was so intense. I will keep you in my prayers.
I also had my Endometriosis from probably the loss of my Virginity 13, to Present. I say Present due to the fact that as I study every single video, reading and watching videos from doctors overseas. I want it ALL. ...reason being that
I was trying to get answers without the concern of having children. I didn't even care if I had Children at the time of late 30s and they still didn't care. The catheter should have been removed for you right when you came out of surgery.
They should have explained all that to you going into the surgery
☆they also explained to me that I would be getting 50% of my blood was to be transfused.. yeah is due to the severity of the blood in the that is seeping out of the uterus, into your blood stream. That's what Endometriosis IS. Stage 4 is debilitating. Stage 4 is very rare; thank God and as you speak on this, you hit cost point. 🙏 this disease is a hidden medial issue. Not even Doctors know what it is. I ended up winning Disabilty right before an onslaught of Sepsis when I moved to Nevada. I nearly made it to the hospital.
So, I as a stranger.....am so glad that you did have health insurance..if you are planning on having a baby... if yhats something you want; please consider adoption. Or a serogit for yourself and your boyfriend. VERY interested as this video is 6 years ago: so would LOVE to know how you are.
Yes. I was having a Lifetime of UTI from before i was having a regular sex life.
Endometriosis can spread to ALL organs, not just bladder and intestines, but kidneys and liver. Organs that are eliminating waste are better at staving off infection. I am not here to alarm or make anyone afraid but as I am looking for the info I need for my next steps *as when they did my surgery they FORGOT my blood transfusion. This was and regretfully was a huge mistake and will shave years off my life. Before I forget, *as this is such an issue for Stage 4 card holders 😄 🤣 * I want to remind anyone that cares to get involved in helping and saving lives for women *even men can get Endometriosis!* that the brain can be infected by Endo. It can also be researched; unfortunately. It can only be researched after your final breath. I plan on donating most anything people want ~ with the knowledge that I had endometriosis.
My brain will be the most important thing I believe I can donate to Science. I found this out by the last EMTs that transported me. A man who's wife had the life saving hysterectomy. The female EMT in the back with me, was also a Survivor of State 4 Endo. So I believe this was a divine meeting; as we sometimes get from God. These doctors , and people out there
1.The Medical field is NOT at all set to serve or care for women first. Our needs are secondary to those or men.
2. This is a share ans share alike from the inside with your sisters. If we don't do this....I would be sitting in the dark without the people that sit far lower on the scale of "importantance" at the hospital. If not for the internet, I would be dead in the water! So share share share!!
Onward, I had Covid a few months ago and it slammed my immune system....the one I desperately need that transfusion for. B12 kick shots are helpful and I am also into things like Tumeric/Ginger /Black Pepper for absorption.
The reason I was denied so much medical treatment, one big reason is that Endo makes your pain threshold drop dramatically and it hurts, like I don't have to tell. I was hemorrhaging every 22 days for a period and I had cysts discovered on my tubes. More than a few medium sized. They were missed previously to this because of paps done with metal speculum. When I went to my awesome family doctor, right before he retired ans showed him pictures of my hemorrhaging. This changed everything. He was a former OBGYN. Delivered 800 babies....and told me to never be embarrassed to ask the question....they will never tell you. He asked if he could do a gloved hand probe to search for cysts. That is how they were found. Sadly he was my Utah doctor and retiring ....because he would have never dropped the ball like they did in Nevada. That alone, put me on the track to save my life but these so called Profesionals did not care as I delved into the next 4 years of very close calls of Sepsis onsets. Being ignored and barely tolerated. Illegal arrests which got me sick with infection. Lesions were introduced to my nose and into my brain.
No apologies; no money back. No nothing!! And I barely made the table and now I am sick again. I may need to open up the brain; there are tests that need to be done right away....and I'm just, going to hang in there. I want to get this info OUT there. As crazy as I may sound to others....it will be a long time before this is important. IF EVER!!! So. Stat vigilant you look beautiful and bigger than that; anyone who has done this ...you're strong. Youre a fighter.
I was a trained MMA style fighter and thank god for that! I dont know if i would have made it.....i was walking with 2 canes when i got on the table ....so, the things i speak of are very important to one with the State 4 Endometriosis ...i had no idea, i cant be ungratefulfor my wild hair these days as it covers the lesions and redness and they are painful 🥺 but im gonna keep on keeping on. There is a reason behind this and i believe it is to help and educate. Who would have thought with a GED.....this is where I would
be.. ..at 45.
God Bless. Stay strong and healthy...you know what is right for you. No one else can tell you that. 💜💜💜💜💜💜💜💜💜💜💜💜💜💜🥀🌾
This video will save someone's life. Thank you so very much for making it and for sharing your experience. You are so brave. The problem with endometriosis is that, in many cases, it does not show up on a simple pap smear or during an annual exam. All the very best to you.
sherwood991 did u have pain on your bones n joints before getti g diagnosed with this disease?
I have endometriosis as well and I'm having a hard month. I've almost broke down and cried from frustration a few times. I can't get a doctor who will help me. this video made me feel like there's a light. I just want to be a normal human.. I've become so stubborn about it that I won't let it control me (it still does) and I go to work in excruciating pain. I feel like a prisoner to my own body.
Same for me. No help from any Dr's. Unbearable pain and its so depressing to not be believed.
Thanks so much for your story. I also have Endometriosis. I cry sometimes because I feel like my life is over. I've known about this for years. I also have a scar tissue problem from have a c- section with my daughter. Scar tissue rapped around my whole stomach and I have endometriosis. My stomach burns almost everyday. People think I just want attention but I'm in pain mostly all the time but thank you much for your story and journey. God Bless .
Milahn Marks hi! I can relate to your conditions and when I read your comment it was like looking into the mirror! Scar tissue from appendix surgery and stage 3 endo has wrecked my insides, nerves, and quality of life. I'm not sure if you've tried yet but I had positive results from a pain Dr that gave shots in my spine to quiet the nerves. It has given me a "normal" life if only for a brief period of time (1-3 months per shot). It's worth looking into!! Wishing you peace, comfort and hope!
Mila Nicole ❤❤😢😢😢 I know how you feel peace and much healing
Mila Nicole feel free to message me!
Hey love, this was so brave of you to post. I am sorry to hear about your condition. It sounds like you have been through so much at such a young age. May God continue to protect you and heal you
Thank you so much for sharing your story. I have been dealing with this for years. Multiple surgeries for fibroids, tumors, removing endometrial lesions etc. Now, I am in chronic excessive pain and trying to find a doctor that will actually help me. I get emotional so easily now since I am in pain so much
BLESSED is the barren woman, for she is the mother to many.. God got you girl! From one teacher to the next, KEEP YOUR HEAD UP💗💗💗
Just stumbled on your video and my heart goes out to you. I suffered for 19 years (yes you read that right). At 15/16 I had 2 exploratory laparoscopies to clean out the powder burns and scar tissue. February 28,2002 I went in for a 3rd our patient laparoscopy and in the process my artery to right leg was severed and my intestines severed in 2 places by the instrument used. I coded 2x in OR, ended up in a medically induced coma for 48, ICU for 3 days, IMCU for 3, days and 12 days in a regular room before going home. 20 days after my 30th birthday I was diagnosed with cervical cancer. After having surgery to remove the cancer, tumors, and clean all the excess scarring from the endometriosis I ended up having to have a full bilateral hysterectomy and oopherectomy 9 months later because my uterus twisted backwards and collapsed in on itself. I wouldn’t wish endometriosis on anyone. I was diagnosed at 14 and suffered until my hysterectomy January 3, 2016. I also had stage 4 endometriosis. When I had my first surgery my mom said she remembers my doctor crying because she said I was her youngest patient and she had never seen it so aggressive before.
Thanks for sharing your story! Bringing awareness is such a great thing especially on this hard-to-diagnose chronic illness. I was diagnosed with endometriosis in 2010 and had my first surgery then. Starting last year, the dreaded endo pains were back and I've been going into emergency many times. And you are right, it is very very costly most especially that I just recently moved to Canada and I'm not covered by the government's healthcare here. We fought hard with my travel insurance because they won't cover anything related to it after the first emergency. We had to keep applying to other insurance companies and hope that they won't make a big fuss about my previous admissions to the hospital. I also feel for you about the doctor putting pressure on having a baby. Before I was even married (haven't even met my husband yet), my doctor back in the Philippines kept telling me that I should save my eggs and start researching and saving up for a surrogate mom. That's crazy! I hated each visit until I started to see another gynecologist. Anyway, the doctors that I'm seeing (gynecologist and oncologists) now are wonderful. They're huge blessings! I have an appointment in a week and that will be to discuss about the details of the surgery. Hope it'll be soon. Can't wait to get all the lesions and cysts out.. and start feeling normal again. Thanks for sharing your story! Hugs!
Hello. First of all you are so beautiful. I too have ensometriosis with adhesions, and I think I have PCOS but haven't been diagnosed for that. My journey began when I found out I was pregnant because of severe pain when I was 22. They told me It was a tube pregnancy and I should terminate the pregnancy asap. I reluctantly did because my mom encouraged it. I'm now 33 and 3 years ago I had a laproscopic procedure done which showed I have severe ensometriosis and would never be able to conceive. I've been trying off and on since and have been unsuccessful. It's hard thinking about the baby I was forced to abort and turns out my pain was only from ensometriosis. I am still trusting in God however. It's just difficult to see everyone around you with children and you wonder "why me? " There are so many women having babies that they don't even want. Thank you for sharing your story and I pray success for you when TTC. GOD BLESS YOU.
Denisia Crawford Trust the Lord... believe His report. By His strips, You are made whole!
Amen, Thank You.
D
God has a testimony for your life. Praying for you.
Denisia Crawford
Ddd
I've heard of this but did not know it could cause all these issues. My heart breaks for you having to go through all this. I understand what it's like to have life interrupted by medical issues that take over and also understand what it's like to have to make decisions about pregnancy based off external things you don't want in the mix. ((BIG HUGS)). Its nice to see you on this side, I follow on IG so I don't feel like you've been missing. I will keep you in my prayers. Be encouraged. ❤️
First, I want you to know that I missed you and I'm happy your back. I recently had surgery to remove fibroids and lost an ovary during the same surgery due to a cyst. I sincerely understand the fear and anxiety you experienced. Please believe that this too shall pass and thank God you are doing well. I will say a prayer for you and support you as much as I can here on RUclips. God bless.
So happy to see you and to know that you are well now. Endometriosis is no joke. I know too many African-American Women diagnosed with it. We are going into the new year and I hope that moving forward you experience an amazing 2016 and beyond.
I am literally sitting here after two surgeries within two weeks. My last surgery was yesterday so I'm in bed looking up as much information as I can find. I'm in stage 4 as well. Thank you so much for telling me your story. I will have to take Lupron after I recover and that part is making me very nervous.
Endo sister here! Prayers for you
Honey I can totally sympathize with you. I'm 35 & was diagnosed about 15 yrs ago. Stage 3. I've had multiple laparoscopies & had my left ovary removed in 09. Bc I refuse a hysterectomy my dr decided to try me on lupron for 3 months...never again. Just like menopause. I'm managing pain with meds from pain dr. And to answer whomever's question, yes you can get pregnant with endometriosis I had my 1st daughter in 02 and then got pregnant with my 2nd in 09 with one ovary & endometriosis. That was about the only times I didn't suffer from it bc of course no period while pregnant. I'll keep you all in prayers, i don't wish this disease on nobody.
Really sorry to hear you are going through this. Endometriosis is debilitating and can really affect the quality of life.
I hope that soon you are able to turn a corner with this and I hope the laparoscopy goes well.
OMG I cannot believe it's been 2 years! So sorry to hear that you've had to go through such serious medical problems 🙁 You show a lot of strength and I can guarantee that this vid has helped and will help many others. Thanks for sharing your story. I wish you all the best
so sorry to hear that you've been going through this. would have never known all this easy going on in your life, because you're always so positive. Thanks for sharing your story and it was so good hanging out with you last night girl!! praying for you and your recovery😘😘😘😘
I too have endometriosis/adenomyosis n i know the struggle. Ive had 2 lapaoscopy surgeries performed by drs with no bed side manners and 1 laparotomy surgery which was perforrmed by a dr who studies wholistic medicine. I went to multiple drs. Went on lupron for 6 months gained weight had tons of mood swings and hot flashes. Gurl i know n completely understand your struggle n every day is still a struggle. N god bless you for sharing your story. I just cope with watching what i eat n try to get as much excersize as i can
Your story sounds similar to mine.
I'm glad I saw your comment because I had an internal scalp last month and the doctor told me I had adinometriosis. I researched online but couldn't find any information on it which I thought was odd. Now after reading your comment I've learnt that it's actually called ADENOMYOSIS. What the hell kind of doctor did I go to??
Anyway, I was told that surgery is the last resort and I was given drugs - Mefenamic acid and Tranexamic acid. Could you please tell me what Meds (if any) were given to you?
I meant internal scan (not scalp, lol)
+sensimania i did lupron shots for 6 months and i literally monitored everything i ate becAuse it can make you gain tons of weight(the shots can put you through a false menopause) . During that time i also did acupuncture and shiatsu massages for pain management. I know its difficult but i kept moving and trying to get tons of excursize and drink tons of water and have fans everywhere because the meds will give you hot flashes. To be honest im not sure if the meds have fully helped. I kind of just had to change my life alot like staying away from highly inflamitory foods(red meat, carbs, dairy), saying lots of prayers, being extremely active, drinking lots of water(probably a gallon or more a day) and tons of patience.
+sensimania hopefully that helps
Sharing this very personal experience will bless and inform so many women to pay attention to what their body is telling them. Stay beautiful and positive. Be well.
Thank for sharing. Studies show that black women have a harder time being taken seriously and receiving appropriate treatment. Thank you for being strong and informing us of your treatment and thank you for being so positive. You're my favorite RUclipsr and even though this isn't a hair video is SO appreciated!!!! Good luck to you and I'm so happy to hear that children are still a possibility. As soon as you posted on IG I had that fear for you and I'm glad to see it wasn't warranted. Be blessed my sister.
Thank you for sharing your story. I was diagnosed with Pcos about 2 years ago and wanted to opt out of taking birth control but my doc told me I would need to take it bcuz it would put me at higher risk for endometriosis. I appreciate you sharing your story I know a girl who went through the same thing you are going through. I'm praying for you bcuz I really don't know your whole situation and I could sit here and quote bible to you but that isn't love but I will pray for you and the decisions you must make let gods will be done. I'm really sorry you were diagnosis so late you making this video will help a young girl who may be going through right now. God Bless
Thank you for your story.. you're very courageous and strong! I got diagnosed in the ER with a mass on my ovary. That mass thankfully resolved. Hallelujah, thank you Jesus! However I'm still stuck with this crazy pain. My Gynecological oncologist said that he's confident it's endometriosis . I am just finishing up my cycle and it's been rough. Lots of discomfort, diarrhea ..etc. It even hurts up into my belly button area, my hip and my side. Ugh! I have a recheck in September to see how things are going. I appreciate so much this video. .because it gives me insight and helps me to better prepare. As far as a baby goes. . I have two. They are ages 10 and 8. I know I've had this going on for awhile so I'm thankful I was able to conceive. I did miscarry my 1st baby. .but thankfully that was very early at 8 weeks. Hang in there sister. . I'll be thinking of you!
I commend you for your bravery sis! It takes a lot to step out of your comfort zone & share something so personal. Thank you for sharing your testimony with us because it's something we all need to be aware of. Too often we just roll with the punches & not get checked out. I will continue to keep you in prayer my sister! God bless!!! 🙏🏾🙏🏾🙏🏾❤️❤️❤️
First of all. If you don't know by now. YOU ARE NOT CRAZY! I can't not explain to you how watching this has made me feel. I am 33 and I have had Endometriosis since 15. I too knew that something was always wrong. I talked to you while you talked as if we have known each other for years. I've had FOUR laparoscopies. I have declined Lupron twice, and I have one child and lost one. I can't even muster the words to say to you... I'm lying this is all I can say " I've seen him do it" keep your faith and if you guys are not ready let the Lord be your doctor on when it is time.
Thank you for being brave enough to share your story. We never know what the next person's struggle is. Wishing you a strong recovery.
I wish you were able to make this video about 12 years ago for me. I was about 25 years old when I was diagnosed with endometriosis. I had to have a full hysterectomy and never knew I had it. It is extremely debilitating and can take over your life. I never knew why this was happening to me, but I have been able to cope with the effects from it. When I was 17 years old, my boyfriend then, and now my husband were told that I could never have children due to itipical cells. We were shocked and shed our tears, but were able to look past that in order to lead a happy life together. We were amazed that not even 5 years later we would bring a healthy baby boy into the world and then 2 years later my youngest son was born. Not even two years later this dreadful disease came into my life with a vengeance. I would always tell my doctor that my period was debilitating and he would always say it was normal. I feel that through education and awareness I could have saved my uterus and ovaries. My life hasn't been the same. I'm truly blessed to have my boys, however, I appreciate you for making other women that share this experience aware of what can take place and how to cope with it. Thank you!
I am delighted to see you up and moving...I do not know your faith but permit me to pray for you giving thanks to the Father the you are here and you found out what the issue was and was able to get it dealt with. From your video I can see it is an ongoing situation an ongoing path to healing and I pray for your strength I pray for your peace of mind I pray for continued healing in your womb continued healing in your body continued healing in your emotions In Yehushua's name. Keep the faith my sister...you still have a lot to do
+rachel hendrickson Oh an may I add perhaps if you haven't done so researching plant based living that can help with your situation. Food is life, food is a medicine
+rachel hendrickson great post.. I recently posted a video on how plant based diet has helped me
I just want to thank you for sharing your story. I was diagnosed with stage 1 when I was 16, but just this past February it's progressed to stage 2. I'd never wish this on anyone, but I'm always thankful to find others who understand endo and what it does to us. keep fighting girl ♡
Hi, I too am a endowarrior stage 4. In my case Lupton wasn't every 4 weeks. In my case was the every 6 months and it costs around $1650. I had "menopause " for a year. it is not easey, it is expensive and because it touch so much of my organs even with histerectomy it will not be going back to a "normal" stage. I appreciate your video. there are support groups and the community is full of love and empower for us.
I knew of this condition but never knew it had stages. Glad you managed to get your diagnoses and treatment. Prayers for healing and future blessings x
Thank you for sharing! I know many women who are suffering from endometriosis and/or PCOS and weren't diagnosed until adulthood or after they were married and tried for years to have children with no success. Unfortunately women's reproductive health is something we don't pay enough attention to as a collective so as women we HAVE to be our own advocates and demand the care needed to resolve our own issues. You have no idea how many women you are empowering just by sharing! Blessings to you in the New Year and I pray that your healing is swift!
After being in pain for almost 2 years, like 2 1/2 weeks out of the month and seeing several doctors smh i finally seen a doctor last week and was told he think i have endometriosis. I definitely know your pain and i will be praying for you and all the other women out there thats suffering😢❤
I really feel all your pain that you were going through with this disease. Last year I was diagnosed with endometriosis, had a surgery and after that they put me on 4 months of induced menopause and it was like living hell, with all the nasty side effects of it...Now I am alright , just trying to have a baby and pray to god that everything's gonna be ok. Stay strong and positive, you are wonderful! God bless you!
Endo-sister her too. Thanks for sharing your story. I didn't know Endometriosis can be diagnosed in stages. I was diagnosed when I was 15 years old. I was also told I wouldn't bare children, but God. So, to my Endo-sister's trust in God the creator of life and do not be discourage behind this diseases. I thought after having my son all the pain was gone, post 1 1/2 years after having my son the pain is slowly, but surely returning back. So glad, I found your vlog Tanish thanks for sharing your testimony & inspiring me to "keep fighting" and trust God.
I have to say, am so happy to see you are doing better. God is an amazing God.
God be with you and others that are dealing with this disease.
Stay strong girl we can beat together. I have endometriosis as well and know exactly youve been through. Been through the same thing but worst! At 30 years old, I survive from stroke just days after my laproscopic surgery! Thanks my heavenly father up above. Amen! Need to get another procedure done in about six months to a year because I still recuperating from my stroke developed inability to speak properly! But I'll shall remain positive and strong. I thank god I am alive! Remember it can always be worst so stay strong! Hugs and kisses
I'm currently struggling with Endometriosis and I really wish I would have seen this video sooner. Thank you for sharing. This is going to save so many lives. I hope that you are doing well.
Hi, thanks for sharing. I was just diagnosed with stage 4 endometriosis. I had surgery and my appendix had to be removed. It's only been a month since the surgery. I'm so glad you mentioned the treatment. I didn't know it was to put you in menopause. I am working on getting pregnant as soon as I heal from surgery and then take it from there. I wish you the best of luck with your future pregnancy. I know how it feels for the doctors to rush a pregnancy.
Yes, I am in it also. The lack of concern for women in pain makes me looney. Great job speaking about it. I still cant believe what you have to endure with this illness.
Thank you for sharing your experience. It is so important to speak up and advocate for yourself when you are not your usual self. I had to do that years ago and told the doctor point blank that I am not leaving this hospital w/o some kind of catscan. Turned out to be pneumonia. I respect the medical field but no one knows you and your body better than you if you listen to it. Also i get the pressure to have kids too. My gynecologist would pressure me too being that I was in my mid thirties and i did not hv kids but I ended up having an unplanned pregnancy anyway(love being a mom btw). Don't let it stress you out, it will happen at the right time. Glad to see you😌
Thanks for Sharing I have Endometriosis Sarcoma Cancer which spread to my Lungs I have done Chemotherapy & Radiation God Bless all you Ladies I'm praying for you All. 🙏🙏💞
I was diagnosed when I was 21, and I am 26 now. I completely understand your situation to an extent. However, it is amazing how difference each case is. Thank you so much for sharing your story.
you're such a strong and beautiful women. I'm glad your here today to be able to share your experiences and helping out people who aren't aware of this condition. I pray for a healthy recovery.
Thank you for sharing your story. We as women go through so much with our bodies and sometimes ignore the signs of trouble. This video was much needed. My prayers are with you.
Thank you for sharing your story. We've missed you. Stay prayerful. God has already brought you so far. Know that the next surgery will be uneventful and you will remain on the path of being healed. You're in my prayers. By the way, you look stunning as usual!
Thanks for sharing your story sis, I learned a lot hearing it. This definitely brings awareness to this disease. We missed ya💓! May God heal you completely....sending lots of love and prayers your way🙏🏾
Hey! I just get operated last November too. It took 6 years to my doctors to find what I was suffering from but now it's all good. The intervention went well and I can't wait to try getting pregnant. Bless you and I hope you will get better mind and body.
How old are you? I'm going through the same issues. I have been blown off for years about painful cycles. You are so right there's not enough awareness about this disease. I'm ready to sue all of these docs who have never listened to me over the years. The fact that I may not be able to have kids will bring me great sadness. But thanks for sharing your story and prayers and blessings to you.
OOH MY GOD.........Words can't tell you how I felt watching this video. This is really a lot to deal with but am Glad God is seeing you through and you are on your way to recovery. May God guide, heal , and bless you all the way.....YOUR YT FAM WOULD REMEMBER YOU IN PRAYERS.
I have only watched the up to 5:04 of this video and I can't resist to comment. I am battle the same issue of Stage 4 Endometriosis and constantly in "stabbing" in my pelvic area. Especially in my bladder. It excruciating to urinate and the pain last 28 days out of a month. Ok, now let me listen to the rest of the video. Maybe It will be a blessing to me. God bless you for sharing.
+akabajada777 It's me again. I' have Stage 4 Endo on my bladder and bowels. As I was watching this video, I was in fetal position with my hands on my bladder area even after taking "2" 600mg Ibuprofen. I've had 2 surgeries already and I've been told recently that I have over 6 fibroids on top of that. By the way, the adhesion from the endo is also on my bowls, so I get severe sharp pains in my anus (sorry to be explicit). I would love to see your doctor. I live in the Los Angeles area. Please Pray about having a baby. I've been suffering from this disease since I was a teenager and I'm now 40 with no children "Yet". I have faith in God and believe that He will make it possible for me to have a child (even twins). God bless you and heal you.
Thank you for sharing! I’m battling stage 4 Endo right now. It’s stressful but I’m encouraged to keep going. Thank you for encouraging all of us.
Thank you so much for sharing. I actually stayed crying cause I understand this so much. My endometriosis is in my uterus. I been dealing with this pain for years. I had the surgery which worked for 2 years then the pain came back. I then tried the lupron for 9 months (that's a whole other story) but once I got of the lupron I got pregnant a month later but unfortunately had a miscarriage. Well say all that to say never give up ladies! We are as strong as they come. Keep hope and faith
hey girl u look amazing, i have stage 4 too still not sure about surgery and would like children one day its difficult to be summed up with all of this its really strange noone gets it which is annoying even my agency i work for just seem to think its nothing . these videos are great so we can all chat about this and have a chat about it . you are a brave girl I hope your journey goes smoothly peace out..
Hi Lovely! Thank you for sharing your experience with us. I'm so glad you pushed and asked questions until you got treatment. We live so long with things gone wrong and in time accept them. I'm dealing with an issue going on about 5 years now and I still have no resolution but God is good and He is my ultimate Healer. In time I will get an answer. I'm praying you recover in body, mind and spirit and that you start a family in the Lord's timing. Doctors are good and I'm sure yours has the best intentions but as you said it's not the best reason to bring a child into the world. Stay well. Blessings...
Thank you for sharing your story. I also had endometriosis I also had recurring rupturing cysts on my ovaries. I suffered from age 20-32 when I had no choice but to have a hysterectomy. The pain was indescribable but no one believed I was in as much pain as I was in. The endometriosis connected my small intestine to my bladder, uterus, kidneys, and ovaries. When it was first discovered I had excellent insurance and one of the only doctors at the time in Michigan who knew about the disease Dr. Dov Schuchman. However, over a period of time I was unable to work due to the pain. I ended up on medicaid which the doctor didn't take. I went from having an excellent doctor to having doctors who knew nothing about the disease and treated me as a ginny pig. After 15 surgeries and 10yrs my original doctor contacted me to let me know he now accepts all insurances...he even accepted women with no insurance. He let me know I had been on his mind over the years and he wanted to make sure I'd gotten the best treatment out there. Well...it was too late. As I said earlier everything was connected and my ovaries were completely closed. I had always been told that I was lucky to have the 2 children that I had(I was a mother at age 19 & 20) but no more children in my future. It's been 8yrs since my final surgery and I can honestly say that my life started 8yrs ago. Technology and medicine has advanced since I was first diagnosed 20yrs ago so please look at all of your options. Understand the foods and herbs that can help/hinder you. Also consider freezing your eggs. I pray healing and life unto you. Stay encouraged.
I cannot wait until you are finished with your treatments. You have been so transparent about your condition and I KNOW it is not easy to expose your personal life. Thank you for sharing your story and I decree healing in every area of your body. You are awesome and the very definition of brave and blessed!!!!
Thank you for sharing, I'm at the beginning of the endometriosis journey, been it serious pain for years.
thank so much for sharing your case .hummm my daughter suffers from this disease 2015 and she went under 7 hours surgery which one of her tube was removed. now she's is doing fine but on birth control pills.
Listening to your story and the struggles you have endured with endometriosis, I fully understand and have been where you are. I always had bad cramps since I started my period at 11, but the severity of the pain and the heaviness of the flow began to increase around 19. I had a laparoscopy at 21 and was diagnosed with endometriosis. I have been on several different birth controls, I've done Lupron and I know all about the side effects (and I hate to tell you, but the effects linger for years! I STILL get hot flashes and sweat in my sleep and that was 10 years ago), I had 3 fibroids and my appendix removed, and I just recently had another laparoscopy because it has gotten worse. The pain is excrutiating and debilitating, I cry often, and I've been in a depression for some time. My doctor said that I need to start planning my family in the next year, but I'm in your same situation as in not yet married but in a relationship for almost 2 years. I want a family but I don't want to be pressured into it. This condition is taking so much away from my livelihood, but I don't want it to continue to do so. Thank you for sharing your story, and I pray that you continue to heal and have all of your heart's desires. God bless!
Sorry to hear what you have been going through. Thank God that it's been detected and treated and that you are on the road to recovery. Please permit me to suggest that you commit the pregnancy and having children to God. Try not to feel pressurised and pray that God will make it happen at the right time. I've heard of Endometriosis, but never knew it could spread like this. Always thought it was confined to the womb. Thanks for sharing your story. It will be well with you in Jesus name.
Thank you for sharing your story with us. You did not have to open up to this degree and I love that you did. You will save so many women's lives and help many along the way. I will pray for you and your continual health.
Thank you for sharing your story. I suspect that I have endometriosis due to rectal pain and bleeding during my period. The doctors just keep brushing me off. It's horrible how doctors dismiss women, especially black women.
I was diagnosed with stage 4 Endometriosis in October 2012 and had my surgery in November 2012. I spent a week in the hospital, and I have been pain free ever since. My doctors were awesome, and they saved all of my organs (I had to cysts on ovaries, and was taken out just in time). I did experienced weight gain, and was put on birth control for a few months (I hated the way it made me feel, I quit taking them). I start eating better, toss out all of my beauty care products (body and hair product) that contain chemicals, less stress, exercise more, drink plenty of water, relax more, plenty of sleep.
My doctor is trying to get me pregnant soon, but I'm not married. He said I might have to use donor eggs, because I haven't had a menstrual cycle since December 2015. I feel so much better, I don't know if I want to try to have any kids (ivf is too expensive) lol. I just buy or create a reborn doll in place of a real baby. I know it sounds weird, but it helps with my healing. I pray that one day I become a mother, and I pray that you will, too. You're not alone. I wish you and everyone who's suffering and battling this horrific disease the best outcome and stay strong. You will get through this.
I was so happy to see an update from you, but seeing your absence is due to an illness is terrible. I hope you will continue to heal successfully, and even if you both decide to wait rather than try to have a child at the recommended time, I pray you both will not encounter any issues with conceiving and carrying.
Wow. I was wondering where you were! I'm so happy that you're ok now and I pray that you will remain healed in Jesus' name. Stay strong.
Thank you for sharing your story. I also was diagnosed with endometriosis in 2012 followed by surgery in July 2012. I suffered for years with lower abdominal and pelvic pain due to the disease and after many many test I was finally diagnosed. I was also taking the lupron shot and suffering from the hot flashes (torture) no hair loss but a lot if weight gain. Fast forward to today in doing better, still trying to work this weight off but the pain that I was experiencing has subsided immensely. I do feel some pain at the end of my period but nothing like before. I will definitely be following you on your road to recovery and I pray that all is well concerning reproduction for you in the future.
hi everyone I went through the same thing for years in up taking DIM pills for hormone balance also dieting less stress lots of water things that will keep me living longer to bring forward a baby also a tea called dong quai and red tea and multiple vitamins and pray also
First off, you look wonderful and Thank God you are doing well after all you've been through. I am praying for you and can relate . I was on Lupron to shrink fibroids in my uterus. I called the hot flashes "fry flashes" because that was the best way to describe the extreme sudden heat I would feel. I discontinued the treatments and went on to have surgery...by that time the fibroids caused me to have my uterus removed from my bladder and during the surgery my bladder was damaged and had to be repaired. I wore a catheter for 13 days!!! My husband and I also got the urgency speech and you are right...it's not natural or comfortable ...even married. Keeping you in prayer for healing and that his perfect will be done. Stay positive.
I agree that we need to get the word out there , I haven’t had my lap surgery yet but with everything that had happened to me the last 3 years is crazy and to know that you have to go to the doctor so many times before they say ok I think that you may have endometriosis that to me is look ,why do women get over looked for what they are feeling? people start to feel like it’s in there head , it should be treated like any other illness. But thanks for this video
Thank you for sharing - I am in a very similar health situation with unfortunate health care circumstances. Your Doctor sounds great...I wish, I could see him...I'm scared shitless, I'm in agony almost everyday...no one believes me besides my immediate family but even they struggle to understand how this disease is shutting everything between my ribs and knees down.
I'm glad that they finally found out what the problem was. Glad to see u again. I will be praying for you. Take care!
I will be praying for your healing Tanish. And I thank you for sharing this with us. I remember when I got my cycles and as a child/teen I would experience extreme painful cramping. My pediatrician finally referred me to a gyn when I was 17. And the gyn put me on bc pills to help with the cramping. And thanks again for sharing this; I think this will bring alot of awareness especially to women's health.
Tanish I am so sorry you had to go through this. I have many friends that have endometriosis so I am glad you are bringing awareness to this. So proud of you for sharing your story. Love ya!
God bless you! Sharing your story will truly be a blessing to others!
Prayers for you Dear. I had a total Laparascopic Hysterectomy 6hr surgery removing my mass and cancer, but they could not get all the cancer during surgery, it was stage 4 endmeterioses uterine cancer now it is stage 4 uterus cancer endemetrial cancer, now I have got to have chemo and radiation treatments, I am go Pray and have Faith that God and Jesus Christ will work through the chemo and radiation treatments to get rid of my cancer.
I'm so happy to see your face! I too along with a few others know your pain. I suffer from stage four Endometriosis also. After going to a number of doctors I was finally diagnosed after suggesting to my last doctor that I may have it. He first went in to see how severe it was, and then I was given Lupron. It reversed the scarring quite a bit. Like you there's a lot involved in my story. I hope all goes well for you in the future as far as fertility and your overall health.
My prayers and thoughts are with you. I cant ever immagine being put in such a compromising position on having children. I hope everything works out for the best for you. Stay blessed!
I was diagnosed with endometriosis in 2006 after an etopic pregnancy. I am currently taking the lupron injection. I get emotionally everyday because I still have not gotten pregnant. Good luck with everything in the future
So sorry to hear about this I truly understand what you are going through.i pray that you continue to get better. I have had female issues from age 22 until currently. Fibroids which caused fertility which cause a hysterectomy all before having children which was devastating. God has miraculously given me peace so I just want to say the doctor shouldn't be forcing you to have a baby. Some doctors don't understand God has the final say so not them. I am speaking that if you and your boyfriend get married you will have a baby when the time is right.
I thank God that you are feeling better and I am praying for your total deliverance. I've been watching your videos forever, I've been missing you. Continue to take care of yourself Ms Tanish1 ❤️👍🏾
Girl. We can only be supportive because you are sharing such a private part of your life with us. I mean Yea you share videos of hair and fashion but this is something else. God bless you and happy healing. God has your best interest. Continue to be strong and courageous. Oh and thanks for sharing your story. It's
I feel like you completely understand me and I completely get you. I get youuuuuuuuu! I am in the same boat your so brave to speak about this
Thank you for sharing such a personal story that can impact each and every one of us. I've heard about endometriosis, but I never knew how serious it could be to be categorized in stages- that is mind blowing. You keep praying girlie and I will be praying for you too. Hugs & kisses to you❤️
Glad you were able to find out what was wrong with you. I'm glad you're feeling better. I had surgery for endometriosis a few years ago...I completely sympathize with you. God bless you!!!
Good to hear from you, I have a sister currently going thru something very similar!! Praying for your complete healing, I still believe in miracles! Best wishes!!
I remember some years back when i read avout ovarian cysts which i knew I had i read they can mask endometriosis but i didn't think it was that serious. Mostly because the healthcare providers kept telling me many women get ovarian cysts and they are often normal. No one thought to actually dig a little deeper especially with my history. Some years ago a cyst broke and i ended up in the ER. This yr i went back and looked at those med records and the cyst that became 8cm was there and documented as "no normal ovarian tissue seen." NO ONE MENTIONED IT OR REFERRED ME FOR FOLLOW UP. So the cyst grew. The endometriosis progressed for 9yrs. It was there before the ER visit so no idea how long this has actually been going on. I have always had horrible menstrual cramps to the point of nausea/vomiting, school nurse sending me home from school. Healthcare industry has to do better!!!!
I have missed you so. You are such a graceful diva. so glad you found treatment. Please come back to youtube!!!
I pray for your continued healing. Thank you for sharing your story. Your sharing will undoubtedly cause many to seek treatment. You are indeed a blessing.
Thank you for sharing! Endometriosis is something I vaguely remember learning about in school long ago, but it's not something people talk about regularly! I'm glad you're doing better.
Thank you for sharing your story because I've heard about that disease but had no information about it. I was in tears to hear of the things you've been through and I'm sure it's been much much more. Take care
I am in tears. This is the third video , I've watched ( stupid, yes). I understand.I am diagnosed with the same thing. I have pain. If I have to go to the bathroom, crazy pain, the pain right now the right side is crazy before, it was the left! I have seen three gynos over 2 years, not a single one is empathetic, caring or supportive. And I too, had to ask, why isnt anyone listening or helping. I would of preferred if someone just went into to look around oppose to giving me pills....like pills do not solve all. as of right now, my pelvis is going through it.... i admire that you did this video without dropping tears. I am crying as I watch you speak, because i hope you recovery and journey remains solid. I also hope for myself that I will be okay. I recall people asking me if i ever wanted kids, i said no, cause iwas scared to raise a black child---i never thought what if, you were told you may not be able to have a child, then, what would you say.....thank you....thank you.
It's good to see you back as i've been wondering where you have been. I can only imagine the pain you have been through as I have also suffered in the past with very heavy periods and other symptoms but I have never been diagnosed with endometriosis. I am praying for God's intervention in your life and for a complete turn around❤
This was a great and very informative video. Thank you for sharing this personal battle. I pray things get easier for you. Glad to see you back on RUclips :)
Thank you for sharing this information, your personal story. If I'm not mistaken Jane Kennedy went through this same diagnosis some time ago and was told she needed to have a baby. You are helping someone, thank you for sharing.
I went through the same thing. I had severe Endo. also had surgery the lesions were removed. also still had to be put on lupron for 6 months. The side effects are pure hell including 30lbs weight gain but the lupron helped the Endo in the long run. tell the doctors to change the needle to a butterfly needle. it comes with a huge needle very painful as u said. it's very easy to twist off to replace with smaller one. I went through a deep depression towards the end of the lupron treatment but finished the full 6 months. then began birth control pills lo lo estrogen for a few months. yet this caused me to have bad mood swings. so I began nuvaring. ive been taking this for 3 yrs now it's the best treatment for me I have no side effects other than the recent uti's. still painful periods occasionally but not as bad as b4. thanks for uploading ur video.