It's because they don't care. It makes no sense for gynecologists to be so careless. That is your one job. And if you are a black woman, it is worse. They care less.
Yes. I tried taking birth control last yr for 4 months and i didnt know as much as i would have thought i was supposed to b told. The dr pretty much brushed off my concerns of break through bleeding. Like i felt as though i was lost. I just decided to lean myself off and probably nvr get it again.
I think doctors have a bias towards believing women when they say they’re in pain. People in general tend to think women are just emotional and/or wusses. So they usually just think we’re exaggerating when we tell them our symptoms.
Especially black women. It's been proven time and time again that health "professionals" often dismiss our claims. Supposedly we have super strength and higher pain tolerance than other women and should just deal with it.
@@JustmeB21 Don't blame yourself you were just a child. We know our bodies the best and if one doctor tells you no... keep fighting for your health until somebody is willing to listen and do something about it.
BR I This made me cry because this is me. I’ve fainted during periods and the doctors says “drink coffee and the pain will stop”. Then like two weeks before my period I’m getting sharp pains in my back and hooha. I’m like I’m tired of taking things just tell me what this is so I can fix it.
@@JustmeB21 i found a cure for mine. Got a CBD company to test their product on me and it worked. I'm doing a video on the company soon and will share it with the world.
My endometriosis went undiagnosed for about 4 or 5 years it end up developing into stage 3 cancer I had to have a full hysterectomy at the age of 28 with no children It was hard but it was my new reality.
Omg im so very sorry. I hope you are able to find peace. I dont have endometriosis but i am 40 with no children and 3 failed IVF cycles; so i know your pain of the reality that we will never have biological children. God bless you.
Cheers for this, I've been looking for "causes of cervical pain during intercourse" for a while now, and I think this has helped. Have you heard people talk about - Siyrooklynd Eminent Secret - (Have a quick look on google cant remember the place now ) ? It is an awesome one off guide for discovering how to end your fibroids problem minus the hard work. Ive heard some incredible things about it and my co-worker got excellent success with it.
This video literally brought me to tears. I’m only 21 and still trying to find a doctor to take my pain serious. I’m in the ER every month and it’s been going on for years
same here but they ended up putting me on pain meds and because I didnt take them like they wanted me to they kicked me off cold turkey and I got really sick and still am getting sick because I still deal with the endometriosis til this day smh... it's sad because the doctors really don't care about the people only the paycheck.
I am a 27 year old woman who was just diagnosed for endometriosis 1 week ago by a male obgyn. My 2 female gynecologist disregarded my symptoms, my awful pain, my nausea, diarrhea with periods. He told me: you deserve the help you’ve been looking for for 2 years. It brought me hope and relief and hearing this woman talk, brought me to tears, thank you for sharing your story
Have y’all tried herbs? It works 💯, ever since I got herbs from this doctor to cure Endometriosis and my fibromyalgia is perfectly managed 100%, almost all the symptoms are gone and I don’t feel any pain anymore as I used to. I feel very free and normal again. I practically contact him for every single illness or symptoms and his herbs works all the time. He is open to WhatsApp on this +44 7441 443148
I got my diagnosis by a male gynecologist all the female ones were fobbing me off all those 15 years!!! Of having 3 week periods they accused me of lying!! They even said that my ovaries were being overworked due to stress!!! 😱😱😱😱 When it was not
As someone with endometriosis and ovarian cysts, I totally understand the pain. The first time I experienced the pain I thought I was dying, I was in so much pain to the point where I couldn't even walk.
I used to vomit and pass out with the pain and after 4 surgeries I still ended up infertile, but now the mother of a beautiful daughter after adopting. Endometriosis was never heard of here in Ireland so I got on the web and discovered myself what the problem was.
@Mary Smith James 2 of my sisters had bad cramps n after giving birth dats it. Besides when my sis found out that she rid her pain after her 1st child, she told a lady fren about it n the lady got pregnant n dat was it for her pain. The lady i told u had it so bad, she would ave to get injection every month, as pills wasn't helping her... I mean that's what i ave experienced with my sisters n the lady, so i can't say it is going to work for others. Whenever i get pregnant then i will know for a fact...
@@Learningalphabetandnumbers That’s a myth unfortunately. The only way to treat this currently is excision surgery. It’s so disheartening because even doctors don’t know this information or anything about this disease...
@@Kimmer24 I can only attest to the pain being gone because it's a family issue for me. Two of my sisters were going through the same pain issue and after giving birth, their pain is gone... Listen, I am having faith, okay...😊 I did a surgery and believed I will be pain free, but that is not happening... Hard to be a woman lol
Her saying living with the pain made her not want to live.... I feel this i was crying in the shower in horrible pain this morning asking why me what did I do to deserve this 😭
It took me 13 years to get my endometriosis diagnosis. When you're in pain for so long with no one listening to you, it's a relief when someone actually hears you.
At 48 years old I’ve been suffering over a decade. I knew something was wrong and this can’t be normal. I finally got a diagnosis. Now I’m going to solve the problem to live my absolute best life now. Thank you.
Going through this right now. When she cried, i felt that pain - most endo and adeno sufferers understand exactly what she feels. Frustrating to have suffered for decades and not get a solution. I'm still grappling with this. It is criminal, how little is being done to find treatment options.
I suffered. Then I was told that cows get endometriosis too. Farmers gave them selenium supplements. I started taking it along with vitamin c and vitamin e. I then discovered that Brazil nuts are a fantastic source if selenium. I ate few daily with an orange. It helped me greatly. I hope this helps someone. Don't give up. God has the healing power.
Cows get endometriosis because of the food they eat which is soy based. Soy increases a hormonal reaction in the body that causes severe tissue growth especially the reproductive system. Virtually all the food products we eat today have soy which which increases the hormone estrogen. An over abundance of this hormone causes endometriosis and eventually STERILITY.
At age 25 I was diagnosed with endometriosis and told I might never have kids. Long story short. My husband and I prayed and here I am with two beautiful children. I still get a lot of pain every month but yes, God is a healer. Never give up.
hurdlesharon8187 most women with the standard American diet are not eating large sources of soy. I am vegan now and soy does not cause me any type of menstrual issues. Dairy is a cocktail of hormones and it causes lumps, cysts and a host of hormonal issues in women. There’s a difference between a cow eating soy when it should eat grass, and a human eating soy.
I'm only 17, about to turn 18, and I've been experiencing all the symptoms since I was around 12. Doctors won't listen, saying it's a bad period. I want kids when I'm older. But this pain, it's just not worth it. It breaks me every month. Knowing I'm going through this for almost no point.
Keep trying, that’s all you can do I’m also 17 (turning 18 next year) and I also have debilitating period pain. I hope you get through to a great helpful doctor soon!
Same as you. I am 18 years old at the moment with terrible symptoms. Extremely painful cramps, and I honestly agree that it's not worth it. But I do not want to regret it later on in life so I'm just sittin there takin the pain with no doctors taking the condition seriously.
I have a friend who suffers from this and though she explained it to me I felt the need to search around for more information and get a further understanding of it. I wish you women who experience this didn't go through this painful discomfort.
@@michellediaz2218 😔 I understand how it's severely painful and how crippling it makes you feel. I pray that you'll find what it is that will work for you in either eliminating or relieving this infirmity.
You are an amazing friend... i have endometriosis and the pain feels worse then active labor, i would definitely choose birthing my children again over having endometriosis that's for sure. Endometriosis can be very debilitating and disrupt your life, and sleep.
Hey sorry You went through this hope you are doing well. What is ur advice for surgery, mine just put me on birth control and told me to take Advil 🤦♀️
Seriously started crying, and seriously still am. I have all the symptoms and have been in so much pain for the longest. I was scared to have the talk with my husband, but I think I'm ready now. I didn't want him to feel guilty, because it's not his fault it hurts so badly. I guess I forgot that it's not my fault either.
It's no one's fault. And ao sorry your going through this pain. Hopefully you can get it figured out so you can live a better quality of life. Prayers to you 🙏
I was just diagnosed this week with stage IV endometriosis after doing exploratory laparoscopy. I only saw OB/GYN specialist because I had infertility problems. If I didn't have surgery, I would have never known and I am a nurse also. Crazy! But so true!!
@@sirid2987 I've had excision surgery thank goodness from some good surgeons where i live. My symptoms are much better. Hopefully I can get pregnant soon and yes I've heard excision is the best way to get rid of endo.
Natalie, is the incision surgery something my own OB GYN doctor can do? I’ve recently just had a laparoscopy to diagnosis my issues and just found out I have stage 4 endometriosis and my doctor had to remove my right falloupian tube from how severely damaged it was due to endometriosis. It’s been an emotional rollercoaster.
20 years before my diagnosis, destroys lives, marriages, and careers, I was a Registered nurse for 20 years. Years of gp visits and consultants. Final surgery when discovered was attached to organs everywhere in abdomen. I am so glad there is more awareness of this disease now 🙏
It took me 25 years to be taken seriously and diagnosed. You do start to feel hopeless. When she started crying, i did too. I had a black woman gyno. She downplayed my pain until i started bleeding from my rectum. Surgery happens(by a male surgeon). All my organs were fused together, i had thickscarring from previous c sections, adhesions had pulled my intestine to my belly button and..adhered. also found cysts and endosalpingiosis as a secondary diagnosis. I cried so hard. I wasnt imagining it ❤❤❤ also...shes absolutely gorgeous.
In my experience, I find that sometimes having a male obgyn can be better because they will run a battery of tests to find out where the symptoms are coming from. They ask more questions and try to get more information because although they study women's bodies they have no predisposition about what a woman is going through. Women obgyn's sometimes dismiss things because they are women themselves and think they know what's going on. You have to really push women for more diagnostics.
@@bricbrac28 wow! I'm so glad you were able to get that 2nd opinion and have that taken care of. When I first got pregnant, my friend gave me that advice and she was right. I have the best obgyn he's funny, personable, runs tests and answers all questions.
@@kimberly11091 Well I'm sorry you had to go through that. My friends and I have had both male and female obgyn's and we stuck with the male. A lot of the female obgyn's said the exact thing your male obgyn said. At the end of the day, I hope you were healed of whatever ailed you.
My worst gyn was a man. He doesn't even have lady parts & he had the nerve to tell me endometriosis is "annoying" but not painful. He actually argued with me over my symptoms because he claimed women don't actually know what they're experiencing so he's just "correcting" us on what symptoms we're feeling 😠😠
I just got my diagnosis this week after a laparoscopy. I waited 15 years for this diagnosis, i am so relieved that my Pain Can be explained🙏🏼 i hope more doctors will listen and not dismiss!
I started bawling my eyes out, when she said that she didn't want to live, if this was what she had to live with. I felt that so much, as that is where I am at right now. It took me over 10 years for a doctor to even want to check me for endometriosis. I only got diagnosed earlier this summer and my intestines have now fused with my pelvic cavity. I have had 3 months in constant agony and I am not sure I can take it much longer. The dream of having kids has been shattered and now I only dream of one day hopefully having surgery and regaining a bit of energy. I would be more than happy to just be pain free every other day. I lost my job because of this, and honestly everything just sucks. I am going to see the doctor who diagnosed me tomorrow, and hopefully she will refer me to a clinic where I can start to get some sort of treatment if possible.
Wow. No one knows the pain we go through. We are Endo Warriors. It took a year for me to be diagnose. I found me a new OBGYN and all I can say is I thank God for her. She gave me hope I’m now getting back to my regular life. I am a ENDO WARRIOR 🎗🎗💛💛
Mind blown. It's a minor miracle that this doctor came out and admitted her medical training let her down! I take my hat off to her. She must be a very aware doctor. Now good on you!! My endometriosis was not diagnosed for years - 30 years later I am finally diagnosed. However, 20 years later there was some diagnostic inkling. This was a really good interview. Good on you for speaking out to the lady who suffers it. We all know how you feel!
I’m tired of being prescribed birth control for my symptoms. There has to be an easy solution through medication that could help us, and they just don’t care. Endometriosis is CHRONIC and dehabilitating, and the pain is unbelievable. It’s like our body wants to punish us and so does the rest of the world by not giving a crap.
@@MonaDanna I used Jewel sanitary napkins, it reduced my cycle from 10 to 3 days and I have less cramps, if interested to try go to www.justicewithlakeisha.com You can also subcribe to my youtube channel as well For more information go to www.jfmj.org
I think that’s what I’m suffering from. Since my menstrual started at age 12 I get crucial pain, body over heats, and throwing up before period comes and during. 26 now and still dealing w. It
I am the same. I got my period at age 12, and i have been in awful pain. I throw up, my body over heat, back pain , can’t even do anything. I have been to emergency so many times but no doctors ever talked me about endometriosis,
I’ve suffered with unbearable, heavy periods for years. I would have severe abdominal cramps, diarrhea, nausea, even pain in my legs, no amount of pain killers would even make a dent in the pain, & I felt like people thought I was exaggerating the pain. I ended up severely anemic needing blood transfusions, iron infusions, left me having a hard time breathing, insomnia, irregular heartbeat, extreme fatigue. I would go through 3 large pads & 10-12 ultra Tampons in an hour, I asked a previous ob years ago if it could possibly be endometriosis, and was ignored. I finally caved & had a hysterectomy in December. Just found out yesterday from my ob’s Pa, that I had endometriosis all over my uterus & they also had to remove my tubes as it had spread to there. I’m so frustrated that this maybe could have been dealt with years ago. It’s sad to say but sometimes you have to be your own advocate.
I’ve been diagnosed with IBS 5 years ago and my GI doc referred me to a gynecologist. I never went, but I honestly regret it. My periods can be pretty painful, not to the point of feeling nauseous though. I’ll cramp for the first 3-4 days of my period. My hips become sore and occasionally my back would hurt too. But I do get pms, sometimes the mild cramps would start as soon as a week b4. My body is weird though cuz my cycles are hella inconsistent, usually very long (30-49 days.) My period itself is 4-6 days. GI issues off period, but it just intensifies when I’m on my period. I’m not sure if I have endometriosis though.
Have a look on the UK endometriosis website, there’s been a new link found between not only endo being misdiagnosed as IBS but also people with Endometriosis developing IBS through the Endo
This brought on a lot of emotions I was diagnosed with stage 4 endo 2 years ago and have been struggling to get the help I need to get my life back. So thankful endo is getting more attention so us who suffer daily can get the care we need and deserve.
Its funny how Jenneh is the one who suffered and had the disease but yet spoke the least. Lets start letting the patient speak more, its their body. The doctor can only speak from her text book and what she seen clinically but yet we have a patient who went through it. I think Jenneh should have been the one to speak on signs and symptoms, its HER diagnosis.
Trevor George yes they started first talking to the doctor when the patient is the one that is actually going through the pain, the doctors are not always right, smh, doctors practice medicine it’s not 100%
I have been diagnosed with endometriosis since I was 17. I suffered since I started my period at 13. With no diagnosis. But I've had 3 surgeries since then. And I'm still suffering. There's no cure for endometriosis. But thank God she has relief. Bc so many people just say go have the surgery AMD you'll be cured. But that's not always the case. God bless her so glad she's not in pain now. Hopefully it will last. 🌺
I have been suffering since middle school. I vomit and have diarrhea at the same time. I can’t eat food and cannot keep fluids down. I basically live in the bathroom and scream all day. It is very embarrassing because nobody understands what causes pain every month for me to scream. So I suffer in silence until I live with my boyfriend he is so shocked every month at my pain he even asked if he can drive me to the hospital. When I was in middle school I asked my doctor what can we do and all she said was she can prescribe me painkillers. I gave up since then but now I realize something really must be wrong because I still have not met anyone with this pain like me. I will try to see another doctor until I get taken seriously
Please don't give up! Don't just go to another doctor... Go to a OBGYN specialist in your area. Those are the doctors that have spent the time studying disorders.
Hi, @Christina Charles. This strong pain isn't "normal", but very "diffused" and a lot of girl suffer with it, but you don't have to be afraid, because you can do a lot to prevent and avoid your pain. I'm a nurse, from a lot of years I've been studying the severe menstrual pain and some methods to prevent it, first by means of an easy progressive thermal stimulation and after, if necessary, by a particular controle of your food. The cause of your pain must be studied, understanded and resolved. You can write to me by my email osv1950@gmail.com : we can speak better than here and I will send you an attachment (here not possible) of a first method, very glad to help you not to suffer unnecessarily next times.
Black women if a dr denies you treatment then ask them to record it on your health records and then report them. Im sure they will do something about it then.
I will do that. Watch I get all of them fired. I don't care if I see them on the streets begging for change. If they see me and ask me for anything I will say "Sorry there is nothing I can do for you." Irony.
@@mbererm It happens more often to black women. That is not to take anything from your experience, but in every arena of care, black women are neglected and our mortality rates, particularly maternal mortality rates prove it.
Queen Dionne I’m not discrediting what you’re saying. However this is a video about endometriosis. She talks about the lack of knowledge there is about the condition within the medical industry. She herself, who has a medical background, was not aware of the illness up to her diagnosis. Her experience is my experience and the experience of many, many women who have the disease.
I am so sorry you have to go through this. I at this moment am in the process of being diagnosed with my chronic infections and the pain is unbearable. I hate how people expect us to live like this. It is utterly painful knowing that our lives could suffer longterm (infertility, loss of certain bodily functions etc) with these conditions. I am so angry at the world. You are not at all alone.
I've been in excruciating pain for 3 years and today I just scheduled my laparoscopic surgery for endomerriosis. Its hard for doctors to listen to patients especially black women. I actually studied this condition for years and I kept telling my doctors this really could be it and they never looked into it. I actually had said it could be umbilical endometriosis which is rare and 2 days ago I had an MRI of the abdomen and pelvis and they found a 1.8cm nodule in the umbilicus area. Now we are scheduling a surgery to remove the noodle and check for endometriosis in the pelvis and umbilicus. I studied my symptoms and medical research over the 3 years and I am finally going to get confirmation that I was right. I'm so relieved.
Just got diagnosed with endo after 6 years of searching for a doctor to help me and 13 years of heavy bleeding and pain. If I would have stopped at doctor #1 I would have died 6 years ago. If something feels wrong keep fighting , keep searching help is out there. ❤
I have always had painful periods and finally at 37 I ended up in the ER a few times. I have endometriosis and I bleed very heavy, vomit of the pain and roll up in a ball for 3 days every month. I can’t work, I can’t workout, I can’t even eat and the hospitals Doctor say they can’t prescribe me pain medication. I can not continue to live this way. This is a very real problem people. I’m glad that this young lady is being awareness to this horrible disease .
I’ve been in so much pain since having my first born almost 2 years ago. There are times while on my period where the pain is so severe I fall to the floor and want to vomit. Exact symptoms! Thank you so much for posting this video. I have not mentioned anything to my doctor bc I was scared they’ll just say I was being dramatic. Thank you for opening my eyes. 😢
10years here complained on all sorts of deaf hears was told this was my normal 😳😳 I had a 16day period and passed out at work😩🤦🏽♀️ finally found a doctor who was like this isn’t normal not for you or anyone. (I love her it’s like drowning and someone giving you their hand) 😢😢😢 got my diagnosis and doing several treatments and we’ll see where this goes 🤞🏾🤞🏾🤞🏾
Oh yes they're on point I have this condition. Painful periods, bowel symptoms & infertility & all the others mentioned in this video. It makes you sick for a week or 2, literally you feel like you can't function daily & in alot of pain & discomfort sometimes. I did the surgery, injection treatment & birth control. As long as you have ovaries it comes back because the estrogen is to high.
Estrogen is high because of a high consumption of SOY virtually all foods are SOY based which increases estrogen in the body and is also a hormone disruptor which will eventually lead to fibroids, endometriosis and ultimately sterility
If you have excision surgery, endometriosis should not come back even with ovaries. You need a surgeon who is skilled specifically in excision. There aren’t many in the US and fewer world-wide. The Facebook group Nancy’s Nook has a list of surgeons committed to excision treatment and recurrence is less than 20% with these surgeons. I’ve had 12 surgeries total. My last being with Dr. Mosbrucker in WA state. I’d suffered for 25 years. Now I live pain free.
@@amyallen3269 thank you Amy I'll look into that & see how it goes. So your saying I don't have to remove my ovaries?? Which is good. Have a blessed day.
@@hurdlesharon8187 This is new to me I don't like soy but as you said alot of foods has soy in them, how sad. I do read ingredients so I'll check up on that & watch further more than I'm already doing what I'm eating. Thank you have a blessed day.
My best friend just had the same thing happen. She got diagnosed with endometriosis yesterday after 4 years of pain and over 10 different doctors and multiple gynaecologists. She had surgery yesterday. I'm a nurse and know about endometriosis, and have always thought that that was the problem. They even removed her appendix a couple years ago thinking she had appendicitis. Had her on long term NSAID medications which is terrible for your stomach. She finally found a gynaecologist that helped her and put her on the list for surgery within 3 months. It's not just a racism problem it's the fact that people don't understand how debilitating endometriosis is. It's not just period pain, it's severe pain and it gets worse. My friend has been in severe pain everyday for the last 6 months. Plus all the other symptoms on top of that she has barely been able to get herself out of bed.
Hi, I'm diagnosed with ibs but not very convinced as I have been going to ER a few days before my period starts. Symptoms like vomiting and abdominal pain was really bad. I'm having symptoms such as nausea, brain fog, insomnia everyday for the past 2 months. One of my gut doctor said it could be long covid. I'm really hoping you can give me an insight of what's ur friend's daily symptoms (even when she dun have her period?)
Wow crazy my friend had this is the 1980s here in Portland Or. She was diagnosed and treated with orthosopic surgery way back then. What the heck? That's 35 years ago.
God Bless you Jenna I cried along with you..my cramps/chronic pain is so bad I definitely the if this is what my life is going to be then I dont want to live
Don't give up Lisa! There are so many women and support groups out there that want to help you. I have Stage IV Endometriosis, and I just learned the steps I need to take to find relief.
I am happy to finally see more coverage on this subject. I had extremely painful endometriosis that started at age 11. I begged doctors to give me a hysterectomy at 19 and no one would do it because I didn't have children. I tried to have children with my husband and in the end we were divorced bc I couldn't bare his children. I finally put up a go fund me at the age of 32 to just pay out right for my hysterectomy and I am so happy to say I am 80% pain free. I realize now that a hysterectomy isn't a cure since I still get reoccurring cysts that burst, however that beats what my life once was. I wish the best to anyone struggling with this awful pain. Just know you are not alone.💜
Thank you for explaining how debilitating it is. It literally does make you want to take you’re own life it is a horrendous thing. It’s on par with cancer level pain apparently and it’s dismissed so easily. My husband doesn’t care he has no clue why it past few years whatever kicked it up a gear to 6 hospital stays surgery fatigue leaving work because inability to handle it just will not listen. So so frustrating.
I was able to mange my endo with diet and exercise! I was able to conceive a year later and now have a healthy 5 year old. I did research on what foods to stay away from and what to eat more of.
Yup! A lot of women don't realize that diet plays a critical part in the management of the disease. I too suffer from it. It took me years to figure it out and now I can't get a doctor to listen to me. I have been able to control my symptoms with a drastic change in diet however, until I can get a doctor to listen, I remain infertile at 40 with weight issues and no answers from anyone (although I work out religiously and eat like a bird) among other symptoms. In any event, I am glad to hear I am not alone in my struggles. Stay hopeful ladies but keep your diet plant based, low carb and eliminate estrogen rich foods and chemicals. It does help over time. God bless 😘
I included soy in my diet (non GMO) and flax seeds. I'm also vegan and eat quite clean but I can say that soy and flax seeds work best for me. I don't eat sugar or anything that can cause inflammation. Hope this can help someone. Wish I knew all this 20 years ago.
This pain is unbearable I have suffering with this pain for over 6 years. Have been to many doctors and have not been given anything but birth control which i refuse to take.
@@AA-yk4dy it is really stupid that we are in 2021 and still there is no cure for an illness many women suffer from. It almost seems like world doesn't care about women at this point.
Stage IV Endometriosis Mom Here! This interview is so powerful! For the ladies in the comments that think that there is no hope to living without pain, there is! If you doctor is not taking your pain seriously, find a specialist! Also, the right vitamins can truly relieve you of pain! I recently did a video sharing the ones I use. Just know you can fight this!!
When i was first diagnosed with endometriosis, i was in my twenties, and i told my doctor to take out everything since i was not planning on having children . He never took me seriously. Now, i am in my forties and having lots of health issues because of my endometriosis . I just had surgery for block colon and end end up in the ICU. Endometriosis is no laughing matter.
I was just diagnosed with endo yesterday!! It all makes sense now as to why I have constant pain during and around my period! My dad used to say don’t be soo dramatic!!! I must of had it for years!!!! I defo don’t have it reallly badly cos I still maintain a pain free life but that could change! I don’t really have bad period pains like I did when I was younger! Maybe I have it milder than others!!!
14 years of pain and symptoms and I have finally found a doctor who listened... Because I'll be having a dual surgery to remove what is believed to be an endometrioma I'm waiting for a surgery date, but hearing "if that's what the rest of my life will be, I don't know if it's a life I want to live," I felt that...
It took me so many doctors to get my diagnosis! When you all for tests and doctors decline ask them to note why they chose not to do the tests they usually end up doing it
I truly am sorry for the people that have it. I’m only 12 years old, I don’t have endo but I do suffer from intense cramps myself! Cramps are no joke! I’m praying for people that have it!🥺
I have endometriosis, fibroids and one block tube due to the endometriosis i wasn't able to get pregnant. Permit me introduce you the herbal mixture that cured my endometriosis in a period of 14 days. I am a living wit- ness of this wonderful work of this doc. For information on how I was cured, contact @doctor_saibu now by email drsaibu2@gmail.com for more details on herbal medications and get the cure completely @doctor_saibu Herbs are also effective in curing the HIV, cancer, hepatitis, fibroids, HPV, etc .
I suffered from endometriosis for 8.yrs before I was diagnosed. I started the pain from my very first period. I finally had a Laparoscopy at the age of 20 while I was a nursing student. I even lost a job due to my pain. I finally had a hysterectomy when I was 36 yrs old. I also had 8 losses due to endometriosis. I felt better since the hysterectomy. I never knew anout an association for my disease.
I went through menopause a year ago. After decades of pain so severe I can’t describe it. It affected every aspects of my life. And never was treated because it’s just pain.
The first time I learned about endometriosis I was in eighth grade age 12 and I’m 29 now... I’m shocked that it’s so many women aren’t learning about this
It’s interesting to hear physician opinions. I’ve smas and endometriosis. By far it’s the most episodic and erratic feeling. Today was a day where I couldn’t get up. Stuck in a malaise of pain.
It took 9 years for my diagnosis to be done & still on the journey, in Kenya many doctors, medical practitioners have no idea how to even deal with a patient.
Every doctor I go to and tell them I have abnormally painful periods, I bleed like crazy, I have terrible back pain and would dread my period because I knew I wouldn’t want to do anything for days. Not to mention pain with penetration, bladder problems everything in the book, And they always say I just have a heavy period and need birth control. Never fails and it’s so sad because it really takes a toll on me and it’s something that I would love to never have to worry about again
I was diagnosed a week ago with endometriosis during laparoscopic surgery. Mine affected my colon, rectum, bladder, uterus, ovaries, fallopian tubes, and abdominal muscles. I went seven years undiagnosed and had two surgeries before this one. I finally feel like I may be able to get my life back.
@@jenniferhasenstab1406 There's no cure for it unfortunately. Even if they cut it out (excision surgery) it grows back. Even people who have had their ovaries removed can still have issues.
@@chichinglook5091 so i had irritable bowel syndrome, pain in my pelvic area not during my period, fatigue, heavy and irregular periods since I started at 11.
@@Panda72021 right, so they prescribe me progesterone only birth control which helps prevent it from growing back. And they also put a kind of mesh inside as well. Also they have this new robotic endoscopic surgery that they used on me which burnt the implants.
My endometriosis symptoms were: cistitis like symptoms very often, like every 2-3 months, bleeding when sexual contact. For 2 years was treated for cistitis until I refused to believe it so I was finally suggested to see the gyno. The gyno only with these 2 symptoms said she thought I had the endometriosis but required a laparoscopia. At my first laparoscopic -2 days after seeing the gyno-test was found around 5 locations of the endometriosis on the uterus and ovaries. No pain until years after the diagnosis, endometriosis must have developed somewhere around the colon. But the pill stopped the pain. The pill works for me.
I feel like these days most doctors don't seem to care. I've only had one Doctor In my lifetime that would go above and beyond for her patients and sadly she moved. I remember I was having tremendous pain and swelling in my throat 2016. I couldn't talk for long, my voice would disappear which lead me to get fired from my call center job. I went to an ent dr, but he kept telling me nothing was wrong. I kept going back n he got irritated with me. I found another ent and he told me I have tonsillitis. I had to have my tonsils removed, and I feel so much better. Now I'm going through tremendous physical pain and I don't know why. No one can give me an answer, and they don't even bother to check the root of the problem.
Luckily I was diagnosed around 14/15 with "Severe Endometriosis!" I was told I would never have children. I probably cried for weeks. The pain is excruciating!! I couldn't get out of bed, heavy bleeding, nausea, headaches, vomiting, felt like I was being stabbed in my gut, over and over, diarrhea, etc. After 2 laser procedures, a D&C, different birth control methods, meds, in and out of the hospital, even having a blood transfusion once(2pints), due to heavy bleeding, I ended up having a hysterectomy! Best decision of my life. I have been pain free since 2009. I failed to mention that I also have 3 beautiful kids, ages 18,20, and 23, after being told I wouldn't be able to have kids. God had other plans for me! When my procedure was done in 2009, my youngest child was 3 so i knew i didn't want any more kids, so I decided to have the surgery. Today, there are other options hopefully, but for me I was over it. Regretfully though, now my 20 year old is going thru the same thing, and worse! My mom also had endometriosis, and ended up having a hysterectomy. We moved to Texas a couple years ago, and the docs have been brushing my daughter's symptoms off but I plan on getting her to the doctor that treated me soon, in Alabama. Don't stop until you get the help you need. No one deserves to live in pain, like that. Living in a country fighting "Opioid Addiction" good luck on getting something to help with the pain!! Nothing over the counter worked for me, or my daughter
I suffered with endometriosis for almost ten years before I was properly diagnosed. It wasn't until I had surgery to remove fibroids that it was discovered. By that time, it was extensive, involving my reproductive organs, bowel, bladder and urinary tract. Adhesions had fused things together so that nothing could work properly. The worst part of it was having doctors who were so dismissive of my pain and symptoms. Laser surgery finally brought me relief, but it couldn't repair my infertility. I was fortunate to go through menopause early, because it slows down or even stops the growth of endo. Menopause has been a new lease on life!
G.A. I don’t understand please explain I am in terrible pain and bleeding to death from three weeks my dr after mri told me yesterday I have endometriosis
Mary- I sympathize. I had heavy bleeding, too, but in my case it was fibroids causing that. My primary symptom was horrible pain from the endo most of the time, even when going to the bathroom. My doctor removed the endometreosis adhesions with laser surgery at the same time he removed the fibroids. He wasn't able to remove all of it, however, and surgery left me vulnerable to scarring. Most gynecologists will first try treatment with birth control pills. (That never worked well for me.) The laser surgery gave me amazing relief and I went through menopause just a few years later. I've not had any more problems or pain. I hope you have a good doctor who listens to you and communicates well all your options. You have to advocate for yourself and find a different doctor if you are not getting any relief. If you want to have children, you definitely have to be proactive. Best wishes! G.A.
Finally was able to convince a doctor I wanted to be sterilized at 40 (started asking at 16!), and while he was in there, turns out he removed moderate endometriosis! If doctors had taken me seriously in one of many ways (extreme period pain with some wild PMS in my 30s or that I knew I never wanted kids at 12 and wanted permanent sterilization), they could have not made me go through 30 years of pain that prevented me from living a normal life or planning normal activities. It was easier for them to give me a script for flexeril instead of asking what hurts and why. I had surgery 3.5 weeks ago and my period is even worse than usual, hoping it'll settle down in a few cycles. Best wishes for all the others out there that need help and hope y'all can find doctors that believe your pain and want to help instead of just extort you for money and tell you "that pain is normal, let me write you another script for it." I'm gonna go eat RSO and go to bed.
I experienced the same problem and dealt with it for over 10 years of the same things. My doctor told me that she didn’t believe me after I had been seen by her for over a year and that she didn’t experience it every month & she wouldn’t do my hysterectomy. I got a second opinion and they told me what was wrong with me & they did my hysterectomy. I had fibroids and another form of endometriosis. My uterus was 6.6 oz in weight. Six times the size of a normal uterus.
Thankfully for me I got referred to an infertility doctor for my pain around 18 years old. I told him my symptoms and flat out said you have endometriosis you need surgery. There is no way to confirm you have endo unless you have surgery so you are kind of hoping you have it, if that makes sense. He was the #1 doctor in the country for endo surgery, and was the head of team that did the first successful uterus transplant resulting in a live birth at the Cleveland Clinic. Amazing news for him, sad for me, he got chosen to be chief of staff at Londons first CCF. I will be eternally grateful to this man, I have had 4 other endo surgeries because it does grow back, but if he didn't listen to what I was saying God knows how horrible it would have gotten.
I had been suffering pass outs and chronic pain and unbearable fatigue and awful periods before any doctor could tell what my problem was. I really identified with her when she cried. Its just you get blamed at work and society for sth thats not even your fault!!!!
I’ve had a period since I was 8 I’m 22 now but I found out I have endometriosis at the end of November 2021 with having being anemic and iron at a 5.1 and needing 3 blood transfusions and a iron transfusion I had no clue but I’m now researching bc my pain has always been bad but it has been horrible these last few months and seems to be worsening I didn’t know that the pain I was experiencing was bc of the endo I’m blessed to come across this video it’s now August 2022 I’m on a mission to heal and understand my body‼️
Annabel’s Mother hi there. i want you to know that i know exactly what you’re going through. i know i have endo and no doctor believes me. i’m actually seeing my fifth gyno tomorrow and as much as i pray that he’ll believe me, i know in my heart that he won’t. i feel your pain. keep fighting. we can get through this. we’re women and that’s the worlds greatest superpower!
@@Rachel-qx8gn thank you so much for asking. it went just as well as all the others did, and all were train wrecks. i’ve seen three more gynos since and no one has believed me. it’s beyond devastating not being believed and being brushed off as just “too sensitive” or “not strong enough”. in the new year, i’m going to see an endo specialist. it’s really expensive and my insurance won’t cover it but i don’t care anymore. this pain has controlled my life since i was twelve (it’s been nine years). i can’t live like this anymore. wish me luck in the new year that all goes well!
Currently laying in bed crying and in pain rn and trying not to throw up because of how painful this is, my lower stomach and lower back are most affected and it feels like I’m dying quite literally😭 Just trying not to pass out😖
It's because they don't care. It makes no sense for gynecologists to be so careless. That is your one job. And if you are a black woman, it is worse. They care less.
charnae young Facts
According to them we don't feel pain at the same rate they do. 🤔 Oh and 70% of MD's think black skin is thicker than a white counter part
Yes. I tried taking birth control last yr for 4 months and i didnt know as much as i would have thought i was supposed to b told. The dr pretty much brushed off my concerns of break through bleeding. Like i felt as though i was lost. I just decided to lean myself off and probably nvr get it again.
charnae young exactly
I was just ready to right this exact comment
I think doctors have a bias towards believing women when they say they’re in pain. People in general tend to think women are just emotional and/or wusses. So they usually just think we’re exaggerating when we tell them our symptoms.
Especially black women. It's been proven time and time again that health "professionals" often dismiss our claims. Supposedly we have super strength and higher pain tolerance than other women and should just deal with it.
@@JustmeB21 Don't blame yourself you were just a child. We know our bodies the best and if one doctor tells you no... keep fighting for your health until somebody is willing to listen and do something about it.
Thank you. Thank you for this because I’m tired of constantly explaining myself and saying “No, I’m really hurting”.
BR I This made me cry because this is me. I’ve fainted during periods and the doctors says “drink coffee and the pain will stop”. Then like two weeks before my period I’m getting sharp pains in my back and hooha. I’m like I’m tired of taking things just tell me what this is so I can fix it.
@@JustmeB21 i found a cure for mine. Got a CBD company to test their product on me and it worked. I'm doing a video on the company soon and will share it with the world.
My endometriosis went undiagnosed for about 4 or 5 years it end up developing into stage 3 cancer I had to have a full hysterectomy at the age of 28 with no children It was hard but it was my new reality.
I am so sorry! But don't worry sis you still can be a mother no matter what . 🙏🏾
Omg im so very sorry. I hope you are able to find peace. I dont have endometriosis but i am 40 with no children and 3 failed IVF cycles; so i know your pain of the reality that we will never have biological children. God bless you.
😥
I will have a kid for you
I’m sorry love! God bless you with baby bless 🙏🏾😘
She started crying and so did I...
Me too.
Me too I’m here now suffering I don’t want to live this way for ever
Me too. I know how she feels🥺
Cheers for this, I've been looking for "causes of cervical pain during intercourse" for a while now, and I think this has helped. Have you heard people talk about - Siyrooklynd Eminent Secret - (Have a quick look on google cant remember the place now ) ? It is an awesome one off guide for discovering how to end your fibroids problem minus the hard work. Ive heard some incredible things about it and my co-worker got excellent success with it.
i wanted to cry but even crying makes my cramps worse-
This video literally brought me to tears. I’m only 21 and still trying to find a doctor to take my pain serious. I’m in the ER every month and it’s been going on for years
Have you ever tried out herbal medication it worked for me with no side effects whatsoever with the help of Dr Mabosa Herbal on RUclips
same here but they ended up putting me on pain meds and because I didnt take them like they wanted me to they kicked me off cold turkey and I got really sick and still am getting sick because I still deal with the endometriosis til this day smh... it's sad because the doctors really don't care about the people only the paycheck.
@@SimplyASweetHeart oh so sorry about that that’s why you should give herbal medication a try it worked for me i assure you it will work for you too
Praying for your healing
See Dr. Cherie Marfori with GWU Hospital in DC.
I am a 27 year old woman who was just diagnosed for endometriosis 1 week ago by a male obgyn. My 2 female gynecologist disregarded my symptoms, my awful pain, my nausea, diarrhea with periods. He told me: you deserve the help you’ve been looking for for 2 years. It brought me hope and relief and hearing this woman talk, brought me to tears, thank you for sharing your story
Hey in endometriosis does our periods gets stopped pls reply yes or no
What were your symptoms?
Have y’all tried herbs? It works 💯, ever since I got herbs from this doctor to cure Endometriosis and my fibromyalgia is perfectly managed 100%, almost all the symptoms are gone and I don’t feel any pain anymore as I used to. I feel very free and normal again. I practically contact him for every single illness or symptoms and his herbs works all the time. He is open to WhatsApp on this +44 7441 443148
I got my diagnosis by a male gynecologist all the female ones were fobbing me off all those 15 years!!! Of having 3 week periods they accused me of lying!! They even said that my ovaries were being overworked due to stress!!! 😱😱😱😱 When it was not
@@taylorjane152 you trolls are getting really good at your spamming 😭
As someone with endometriosis and ovarian cysts, I totally understand the pain. The first time I experienced the pain I thought I was dying, I was in so much pain to the point where I couldn't even walk.
This is me almost daily now. I'm lucky to get a pain free day. 12 years later finally diagnosed and waiting for surgery.
You’re not alone there
Omg I feel this pain 🥲and doctors don’t take it serious
I just got this pain 3 days ago 😢
same!
I used to vomit and pass out with the pain and after 4 surgeries I still ended up infertile, but now the mother of a beautiful daughter after adopting.
Endometriosis was never heard of here in Ireland so I got on the web and discovered myself what the problem was.
I am just waiting to get pregnant to get rid of mine...
@Mary Smith James 2 of my sisters had bad cramps n after giving birth dats it. Besides when my sis found out that she rid her pain after her 1st child, she told a lady fren about it n the lady got pregnant n dat was it for her pain. The lady i told u had it so bad, she would ave to get injection every month, as pills wasn't helping her... I mean that's what i ave experienced with my sisters n the lady, so i can't say it is going to work for others. Whenever i get pregnant then i will know for a fact...
O dear really feeling bad for you.
@@Learningalphabetandnumbers That’s a myth unfortunately. The only way to treat this currently is excision surgery. It’s so disheartening because even doctors don’t know this information or anything about this disease...
@@Kimmer24 I can only attest to the pain being gone because it's a family issue for me. Two of my sisters were going through the same pain issue and after giving birth, their pain is gone... Listen, I am having faith, okay...😊 I did a surgery and believed I will be pain free, but that is not happening... Hard to be a woman lol
Her saying living with the pain made her not want to live.... I feel this i was crying in the shower in horrible pain this morning asking why me what did I do to deserve this 😭
I use to feel like that when I was young! Very painful I never had endometriosis but I suffered!
I no I started crying
It took me 13 years to get my endometriosis diagnosis. When you're in pain for so long with no one listening to you, it's a relief when someone actually hears you.
When she said I didn’t want to live like that I felt it , my situation right now no one understands the pain
Even dr. also not understands.. i also suffer from this from past 10 years.. I'm only 27 years old.. it started when I'm in 12th class
At 48 years old I’ve been suffering over a decade. I knew something was wrong and this can’t be normal. I finally got a diagnosis. Now I’m going to solve the problem to live my absolute best life now. Thank you.
Going through this right now. When she cried, i felt that pain - most endo and adeno sufferers understand exactly what she feels. Frustrating to have suffered for decades and not get a solution. I'm still grappling with this. It is criminal, how little is being done to find treatment options.
Same... suffering from a year... Want to know the cure... medicine aren't working so well☹️
@@shanvi7011progesterone cream will help you
Could someone share what adeno is in reference to?
I suffered. Then I was told that cows get endometriosis too. Farmers gave them selenium supplements. I started taking it along with vitamin c and vitamin e. I then discovered that Brazil nuts are a fantastic source if selenium. I ate few daily with an orange. It helped me greatly. I hope this helps someone. Don't give up. God has the healing power.
Cows get endometriosis because of the food they eat which is soy based. Soy increases a hormonal reaction in the body that causes severe tissue growth especially the reproductive system. Virtually all the food products we eat today have soy which which increases the hormone estrogen. An over abundance of this hormone causes endometriosis and eventually STERILITY.
hurdlesharon8187 TRUTH!
At age 25 I was diagnosed with endometriosis and told I might never have kids. Long story short. My husband and I prayed and here I am with two beautiful children. I still get a lot of pain every month but yes, God is a healer. Never give up.
hurdlesharon8187 most women with the standard American diet are not eating large sources of soy. I am vegan now and soy does not cause me any type of menstrual issues. Dairy is a cocktail of hormones and it causes lumps, cysts and a host of hormonal issues in women. There’s a difference between a cow eating soy when it should eat grass, and a human eating soy.
Thank you so much. I will try this for my endo.
I'm only 17, about to turn 18, and I've been experiencing all the symptoms since I was around 12. Doctors won't listen, saying it's a bad period. I want kids when I'm older. But this pain, it's just not worth it. It breaks me every month. Knowing I'm going through this for almost no point.
Keep trying, that’s all you can do I’m also 17 (turning 18 next year) and I also have debilitating period pain. I hope you get through to a great helpful doctor soon!
Freeze your eggs and get surgery
Same as you. I am 18 years old at the moment with terrible symptoms. Extremely painful cramps, and I honestly agree that it's not worth it.
But I do not want to regret it later on in life so I'm just sittin there takin the pain with no doctors taking the condition seriously.
I feel you, im 18 and was diagnosed with endo this year, if you have questions feel free to ask!
@@LexiNc8284how do you prevent it. Ive had painless cycles since I was 12 1/2 (when I started menstruating) now 14, and I don’t want to get it(endo)
I have a friend who suffers from this and though she explained it to me I felt the need to search around for more information and get a further understanding of it. I wish you women who experience this didn't go through this painful discomfort.
You’re an amazing friend.
You're a great friend. It's terrible. I've told my husband & drs I feel like I'm giving birth to Freddy Kruger! That's how painful it is.
@@michellediaz2218
😔 I understand how it's severely painful and how crippling it makes you feel. I pray that you'll find what it is that will work for you in either eliminating or relieving this infirmity.
You are an amazing friend... i have endometriosis and the pain feels worse then active labor, i would definitely choose birthing my children again over having endometriosis that's for sure. Endometriosis can be very debilitating and disrupt your life, and sleep.
@@franchescavandyk8149 Thank you. We are still friends and some days are good and other days are rough.
I just had my surgery 5 days ago! I dealt with this disease for years! Makes me cry just talking about it. God bless you..
Hey sorry You went through this hope you are doing well. What is ur advice for surgery, mine just put me on birth control and told me to take Advil 🤦♀️
How are you feeling now?
Hugs to all ladies who has been dealing with the same pain. It's really exhausting.
Want to give also Hugs and Love to all of you who are in Pain .My daughter has also this sickness
it killing,I can't do anything
Seriously started crying, and seriously still am. I have all the symptoms and have been in so much pain for the longest. I was scared to have the talk with my husband, but I think I'm ready now. I didn't want him to feel guilty, because it's not his fault it hurts so badly. I guess I forgot that it's not my fault either.
It's no one's fault. And ao sorry your going through this pain. Hopefully you can get it figured out so you can live a better quality of life. Prayers to you 🙏
Progesterone cream will help you
I was just diagnosed this week with stage IV endometriosis after doing exploratory laparoscopy. I only saw OB/GYN specialist because I had infertility problems. If I didn't have surgery, I would have never known and I am a nurse also. Crazy! But so true!!
@@sirid2987 I've had excision surgery thank goodness from some good surgeons where i live. My symptoms are much better. Hopefully I can get pregnant soon and yes I've heard excision is the best way to get rid of endo.
What symptoms did you have?
@@gaentstudio3228 Hi, can you please give me your Doctor’s address?
Natalie, is the incision surgery something my own OB GYN doctor can do? I’ve recently just had a laparoscopy to diagnosis my issues and just found out I have stage 4 endometriosis and my doctor had to remove my right falloupian tube from how severely damaged it was due to endometriosis. It’s been an emotional rollercoaster.
Pretty much endo is only really diagnosed for sure during exploration surgery
20 years before my diagnosis, destroys lives, marriages, and careers, I was a Registered nurse for 20 years. Years of gp visits and consultants. Final surgery when discovered was attached to organs everywhere in abdomen. I am so glad there is more awareness of this disease now 🙏
It took me 25 years to be taken seriously and diagnosed. You do start to feel hopeless. When she started crying, i did too. I had a black woman gyno. She downplayed my pain until i started bleeding from my rectum. Surgery happens(by a male surgeon). All my organs were fused together, i had thickscarring from previous c sections, adhesions had pulled my intestine to my belly button and..adhered. also found cysts and endosalpingiosis as a secondary diagnosis. I cried so hard. I wasnt imagining it ❤❤❤ also...shes absolutely gorgeous.
In my experience, I find that sometimes having a male obgyn can be better because they will run a battery of tests to find out where the symptoms are coming from. They ask more questions and try to get more information because although they study women's bodies they have no predisposition about what a woman is going through. Women obgyn's sometimes dismiss things because they are women themselves and think they know what's going on. You have to really push women for more diagnostics.
@@bricbrac28 wow! I'm so glad you were able to get that 2nd opinion and have that taken care of.
When I first got pregnant, my friend gave me that advice and she was right. I have the best obgyn he's funny, personable, runs tests and answers all questions.
@@msblessing2000 excuse me? A Male obgyn had the nerve of telling me that I was faking my pain
@@kimberly11091 Well I'm sorry you had to go through that.
My friends and I have had both male and female obgyn's and we stuck with the male. A lot of the female obgyn's said the exact thing your male obgyn said.
At the end of the day, I hope you were healed of whatever ailed you.
My worst gyn was a man. He doesn't even have lady parts & he had the nerve to tell me endometriosis is "annoying" but not painful. He actually argued with me over my symptoms because he claimed women don't actually know what they're experiencing so he's just "correcting" us on what symptoms we're feeling 😠😠
msblessing2000 it's true. it sounds sexist but it's true.
I just got my diagnosis this week after a laparoscopy. I waited 15 years for this diagnosis, i am so relieved that my Pain Can be explained🙏🏼 i hope more doctors will listen and not dismiss!
I started bawling my eyes out, when she said that she didn't want to live, if this was what she had to live with. I felt that so much, as that is where I am at right now. It took me over 10 years for a doctor to even want to check me for endometriosis. I only got diagnosed earlier this summer and my intestines have now fused with my pelvic cavity. I have had 3 months in constant agony and I am not sure I can take it much longer. The dream of having kids has been shattered and now I only dream of one day hopefully having surgery and regaining a bit of energy. I would be more than happy to just be pain free every other day. I lost my job because of this, and honestly everything just sucks. I am going to see the doctor who diagnosed me tomorrow, and hopefully she will refer me to a clinic where I can start to get some sort of treatment if possible.
Hope you get treatment soon! ❤
How did things go for you? Did you get the surgery? ❤
Sending you love x
Wow. No one knows the pain we go through. We are Endo Warriors. It took a year for me to be diagnose. I found me a new OBGYN and all I can say is I thank God for her. She gave me hope I’m now getting back to my regular life. I am a ENDO WARRIOR 🎗🎗💛💛
That is beautiful Allegra! I am glad it only took you switching your doctor once to find someone that would listen to you.
Mind blown. It's a minor miracle that this doctor came out and admitted her medical training let her down! I take my hat off to her. She must be a very aware doctor. Now good on you!!
My endometriosis was not diagnosed for years - 30 years later I am finally diagnosed. However, 20 years later there was some diagnostic inkling. This was a really good interview. Good on you for speaking out to the lady who suffers it. We all know how you feel!
I’m tired of being prescribed birth control for my symptoms. There has to be an easy solution through medication that could help us, and they just don’t care. Endometriosis is CHRONIC and dehabilitating, and the pain is unbelievable. It’s like our body wants to punish us and so does the rest of the world by not giving a crap.
Best comment ❤
Or worse being told it's psychosomatic anxiety. Happened to me by 2 physicians
I have been living with my pain from the minute i started my period until this day n i am 30...
Hello, I have a product that could help you
Same here.
@@lakeishajackson7370 pls what product?
@@MonaDanna I used Jewel sanitary napkins, it reduced my cycle from 10 to 3 days and I have less cramps, if interested to try go to www.justicewithlakeisha.com
You can also subcribe to my youtube channel as well
For more information go to www.jfmj.org
Lakeisha Jackson I call it weed.
This video not only made me cry, but made me MORE aware of my symptoms. I wont give up...i will keep pushing for a diagnosis
Brave, beautiful nurse Jenneh . I hope she gets better. Blessings to her, and to anyone suffering this terrible disease.
I think that’s what I’m suffering from. Since my menstrual started at age 12 I get crucial pain, body over heats, and throwing up before period comes and during. 26 now and still dealing w. It
Go to a gynecologist and suggest that you might have endometriosis
I have a product that can help you
I am the same. I got my period at age 12, and i have been in awful pain. I throw up, my body over heat, back pain , can’t even do anything. I have been to emergency so many times but no doctors ever talked me about endometriosis,
I’ve suffered with unbearable, heavy periods for years. I would have severe abdominal cramps, diarrhea, nausea, even pain in my legs, no amount of pain killers would even make a dent in the pain, & I felt like people thought I was exaggerating the pain. I ended up severely anemic needing blood transfusions, iron infusions, left me having a hard time breathing, insomnia, irregular heartbeat, extreme fatigue. I would go through 3 large pads & 10-12 ultra Tampons in an hour, I asked a previous ob years ago if it could possibly be endometriosis, and was ignored. I finally caved & had a hysterectomy in December. Just found out yesterday from my ob’s Pa, that I had endometriosis all over my uterus & they also had to remove my tubes as it had spread to there. I’m so frustrated that this maybe could have been dealt with years ago. It’s sad to say but sometimes you have to be your own advocate.
As a nurse who didn’t get diagnosed until 5 years later, I’m so grateful to be working with a doctor who is finally helping ❤
Absolutely my symptoms were all written off as IBS for 20+ years. Nausea. Constipation. Diarrhea. Pain. Bloating.
Allison Baxter omg now I’m scared bc I’ve been diagnosed with IBS and I have those symptoms and my periods are bad
I’ve been diagnosed with IBS 5 years ago and my GI doc referred me to a gynecologist. I never went, but I honestly regret it. My periods can be pretty painful, not to the point of feeling nauseous though. I’ll cramp for the first 3-4 days of my period. My hips become sore and occasionally my back would hurt too. But I do get pms, sometimes the mild cramps would start as soon as a week b4. My body is weird though cuz my cycles are hella inconsistent, usually very long (30-49 days.) My period itself is 4-6 days. GI issues off period, but it just intensifies when I’m on my period. I’m not sure if I have endometriosis though.
RawrLyss you should ask !
Darker Image I definitely will go see a gyno as soon as rona settles down. Tired of my body 🙄
Have a look on the UK endometriosis website, there’s been a new link found between not only endo being misdiagnosed as IBS but also people with Endometriosis developing IBS through the Endo
I was diagnosed when I was 19 . And had surgery. I’m 28 now been free since then
You are so lucky you were, younge that's why you feel naw
Lucky you
Sorry if this is imposing but did it leave you infertile
Im 20 and I'm sure almost positive I have something like endometriosis... my periods are ridiculous!
This brought on a lot of emotions I was diagnosed with stage 4 endo 2 years ago and have been struggling to get the help I need to get my life back. So thankful endo is getting more attention so us who suffer daily can get the care we need and deserve.
Its funny how Jenneh is the one who suffered and had the disease but yet spoke the least. Lets start letting the patient speak more, its their body. The doctor can only speak from her text book and what she seen clinically but yet we have a patient who went through it. I think Jenneh should have been the one to speak on signs and symptoms, its HER diagnosis.
Trevor George yes they started first talking to the doctor when the patient is the one that is actually going through the pain, the doctors are not always right, smh, doctors practice medicine it’s not 100%
@@rhirhi7260 not only that is she is expert as "patient" bit also a qualified nurse.
@@povertron Excellent point
I have been diagnosed with endometriosis since I was 17. I suffered since I started my period at 13. With no diagnosis. But I've had 3 surgeries since then. And I'm still suffering. There's no cure for endometriosis. But thank God she has relief. Bc so many people just say go have the surgery AMD you'll be cured. But that's not always the case. God bless her so glad she's not in pain now. Hopefully it will last. 🌺
I have been suffering since middle school. I vomit and have diarrhea at the same time. I can’t eat food and cannot keep fluids down. I basically live in the bathroom and scream all day. It is very embarrassing because nobody understands what causes pain every month for me to scream. So I suffer in silence until I live with my boyfriend he is so shocked every month at my pain he even asked if he can drive me to the hospital. When I was in middle school I asked my doctor what can we do and all she said was she can prescribe me painkillers. I gave up since then but now I realize something really must be wrong because I still have not met anyone with this pain like me. I will try to see another doctor until I get taken seriously
I’m going through the same thing rn. Doctors don’t like curing people they just want the money from “treating” them.
Please don't give up! Don't just go to another doctor... Go to a OBGYN specialist in your area. Those are the doctors that have spent the time studying disorders.
@@cringefest7841 Please don't give up! There are doctors out there that will listen and help you. Try finding a specialist in your area.
Hi, @Christina Charles. This strong pain isn't "normal", but very "diffused" and a lot of girl suffer with it, but you don't have to be afraid, because you can do a lot to prevent and avoid your pain. I'm a nurse, from a lot of years I've been studying the severe menstrual pain and some methods to prevent it, first by means of an easy progressive thermal stimulation and after, if necessary, by a particular controle of your food. The cause of your pain must be studied, understanded and resolved. You can write to me by my email osv1950@gmail.com : we can speak better than here and I will send you an attachment (here not possible) of a first method, very glad to help you not to suffer unnecessarily next times.
You need birth control to stop your periods. My gynaecologist told me that’s the only treatment.
Black women if a dr denies you treatment then ask them to record it on your health records and then report them. Im sure they will do something about it then.
It happened to me too and I'm not black
I will do that. Watch I get all of them fired. I don't care if I see them on the streets begging for change. If they see me and ask me for anything I will say "Sorry there is nothing I can do for you."
Irony.
@@mbererm It happens more often to black women. That is not to take anything from your experience, but in every arena of care, black women are neglected and our mortality rates, particularly maternal mortality rates prove it.
Queen Dionne I’m not discrediting what you’re saying. However this is a video about endometriosis. She talks about the lack of knowledge there is about the condition within the medical industry. She herself, who has a medical background, was not aware of the illness up to her diagnosis. Her experience is my experience and the experience of many, many women who have the disease.
@@mbererm 👍🏾
This is me right now. My mom had stage 4 and I now have it as well. I’m only 17 and it hurts so much. It feels so hopeless
I am so sorry you have to go through this. I at this moment am in the process of being diagnosed with my chronic infections and the pain is unbearable. I hate how people expect us to live like this. It is utterly painful knowing that our lives could suffer longterm (infertility, loss of certain bodily functions etc) with these conditions. I am so angry at the world. You are not at all alone.
Jesus she's beautiful
I've been in excruciating pain for 3 years and today I just scheduled my laparoscopic surgery for endomerriosis. Its hard for doctors to listen to patients especially black women. I actually studied this condition for years and I kept telling my doctors this really could be it and they never looked into it. I actually had said it could be umbilical endometriosis which is rare and 2 days ago I had an MRI of the abdomen and pelvis and they found a 1.8cm nodule in the umbilicus area. Now we are scheduling a surgery to remove the noodle and check for endometriosis in the pelvis and umbilicus. I studied my symptoms and medical research over the 3 years and I am finally going to get confirmation that I was right. I'm so relieved.
Ive self diagnosed more than once. If our doctors actually did their job snd gave a crap we wouldn’t need to do this!!
Endometriosis is the worse 🤦🏽♀️
Poor health and no end in sight does deteriorate you mentally and physically. Glad she got to a solution.
Just got diagnosed with endo after 6 years of searching for a doctor to help me and 13 years of heavy bleeding and pain. If I would have stopped at doctor #1 I would have died 6 years ago. If something feels wrong keep fighting , keep searching help is out there. ❤
Wdym died??
Died? You had endometrial cancer?
I have always had painful periods and finally at 37 I ended up in the ER a few times. I have endometriosis and I bleed very heavy, vomit of the pain and roll up in a ball for 3 days every month. I can’t work, I can’t workout, I can’t even eat and the hospitals Doctor say they can’t prescribe me pain medication. I can not continue to live this way. This is a very real problem people. I’m glad that this young lady is being awareness to this horrible disease .
I’ve been in so much pain since having my first born almost 2 years ago. There are times while on my period where the pain is so severe I fall to the floor and want to vomit. Exact symptoms! Thank you so much for posting this video. I have not mentioned anything to my doctor bc I was scared they’ll just say I was being dramatic. Thank you for opening my eyes. 😢
Praying for great health, and healing for any women who experience or suffer with this pain or any pain and discomfort 🙏🏿♥️✨
10years here complained on all sorts of deaf hears was told this was my normal 😳😳 I had a 16day period and passed out at work😩🤦🏽♀️ finally found a doctor who was like this isn’t normal not for you or anyone. (I love her it’s like drowning and someone giving you their hand) 😢😢😢 got my diagnosis and doing several treatments and we’ll see where this goes 🤞🏾🤞🏾🤞🏾
Oh yes they're on point I have this condition. Painful periods, bowel symptoms & infertility & all the others mentioned in this video. It makes you sick for a week or 2, literally you feel like you can't function daily & in alot of pain & discomfort sometimes. I did the surgery, injection treatment & birth control. As long as you have ovaries it comes back because the estrogen is to high.
yes estrogen feeds it
Estrogen is high because of a high consumption of SOY virtually all foods are SOY based which increases estrogen in the body and is also a hormone disruptor which will eventually lead to fibroids, endometriosis and ultimately sterility
If you have excision surgery, endometriosis should not come back even with ovaries. You need a surgeon who is skilled specifically in excision. There aren’t many in the US and fewer world-wide. The Facebook group Nancy’s Nook has a list of surgeons committed to excision treatment and recurrence is less than 20% with these surgeons. I’ve had 12 surgeries total. My last being with Dr. Mosbrucker in WA state. I’d suffered for 25 years. Now I live pain free.
@@amyallen3269 thank you Amy I'll look into that & see how it goes. So your saying I don't have to remove my ovaries?? Which is good. Have a blessed day.
@@hurdlesharon8187 This is new to me I don't like soy but as you said alot of foods has soy in them, how sad. I do read ingredients so I'll check up on that & watch further more than I'm already doing what I'm eating. Thank you have a blessed day.
My best friend just had the same thing happen. She got diagnosed with endometriosis yesterday after 4 years of pain and over 10 different doctors and multiple gynaecologists. She had surgery yesterday. I'm a nurse and know about endometriosis, and have always thought that that was the problem. They even removed her appendix a couple years ago thinking she had appendicitis. Had her on long term NSAID medications which is terrible for your stomach. She finally found a gynaecologist that helped her and put her on the list for surgery within 3 months. It's not just a racism problem it's the fact that people don't understand how debilitating endometriosis is. It's not just period pain, it's severe pain and it gets worse. My friend has been in severe pain everyday for the last 6 months. Plus all the other symptoms on top of that she has barely been able to get herself out of bed.
Hi, I'm diagnosed with ibs but not very convinced as I have been going to ER a few days before my period starts. Symptoms like vomiting and abdominal pain was really bad. I'm having symptoms such as nausea, brain fog, insomnia everyday for the past 2 months. One of my gut doctor said it could be long covid. I'm really hoping you can give me an insight of what's ur friend's daily symptoms (even when she dun have her period?)
Wow crazy my friend had this is the 1980s here in Portland Or. She was diagnosed and treated with orthosopic surgery way back then. What the heck? That's 35 years ago.
God Bless you Jenna
I cried along with you..my cramps/chronic pain is so bad I definitely the if this is what my life is going to be then I dont want to live
Don't give up Lisa! There are so many women and support groups out there that want to help you. I have Stage IV Endometriosis, and I just learned the steps I need to take to find relief.
@@HealthyKyla
❤
I am happy to finally see more coverage on this subject. I had extremely painful endometriosis that started at age 11. I begged doctors to give me a hysterectomy at 19 and no one would do it because I didn't have children. I tried to have children with my husband and in the end we were divorced bc I couldn't bare his children. I finally put up a go fund me at the age of 32 to just pay out right for my hysterectomy and I am so happy to say I am 80% pain free. I realize now that a hysterectomy isn't a cure since I still get reoccurring cysts that burst, however that beats what my life once was. I wish the best to anyone struggling with this awful pain. Just know you are not alone.💜
Miss Nachami try reading sacred woman by Queen Afua.
But they will give ANY MAN A VASECTOMY!!
Thank you for explaining how debilitating it is. It literally does make you want to take you’re own life it is a horrendous thing. It’s on par with cancer level pain apparently and it’s dismissed so easily. My husband doesn’t care he has no clue why it past few years whatever kicked it up a gear to 6 hospital stays surgery fatigue leaving work because inability to handle it just will not listen. So so frustrating.
I have lived with this as long as I can remember and now I am told just to learn to live with such chronic pain that has even affected my nerves
Hello my sister use Dr Omo herbal supplement it will help you get rid of them naturally his Herb's are very active
I was able to mange my endo with diet and exercise! I was able to conceive a year later and now have a healthy 5 year old. I did research on what foods to stay away from and what to eat more of.
Yup! A lot of women don't realize that diet plays a critical part in the management of the disease. I too suffer from it. It took me years to figure it out and now I can't get a doctor to listen to me. I have been able to control my symptoms with a drastic change in diet however, until I can get a doctor to listen, I remain infertile at 40 with weight issues and no answers from anyone (although I work out religiously and eat like a bird) among other symptoms. In any event, I am glad to hear I am not alone in my struggles. Stay hopeful ladies but keep your diet plant based, low carb and eliminate estrogen rich foods and chemicals. It does help over time. God bless 😘
Can you ladies elaborate on what changes you made to your diet please? X
Yes more info of diet changes!
Can you elaborate on what diet changes you made? Thank you!
I included soy in my diet (non GMO) and flax seeds. I'm also vegan and eat quite clean but I can say that soy and flax seeds work best for me. I don't eat sugar or anything that can cause inflammation. Hope this can help someone. Wish I knew all this 20 years ago.
Shes so pretty
Been trying to get a dr to take my pain seriously for 30 years!
Was just diagnosed after 6 years of issues. Wow this is good info to help others
This pain is unbearable I have suffering with this pain for over 6 years. Have been to many doctors and have not been given anything but birth control which i refuse to take.
Have you thought about going to a GYN Specialist? It wasn't until I went to a specialist that I was diagnosed.
@@HealthyKyla what was their treatment besides surgery?
@@Evettecord There isn't any. Doctors will throw birth control at it, but it doesn't help. There is no cure for endo.
Please go to the gynaecologist as soon as possible to get it checked out.
@@AA-yk4dy it is really stupid that we are in 2021 and still there is no cure for an illness many women suffer from. It almost seems like world doesn't care about women at this point.
Stage IV Endometriosis Mom Here! This interview is so powerful! For the ladies in the comments that think that there is no hope to living without pain, there is! If you doctor is not taking your pain seriously, find a specialist! Also, the right vitamins can truly relieve you of pain! I recently did a video sharing the ones I use. Just know you can fight this!!
Please share what you take
Pls share the vitamins
When i was first diagnosed with endometriosis, i was in my twenties, and i told my doctor to take out everything since i was not planning on having children . He never took me seriously. Now, i am in my forties and having lots of health issues because of my endometriosis . I just had surgery for block colon and end end up in the ICU. Endometriosis is no laughing matter.
She said the symptoms omg I have al of those 😭 I’m on my period I’m in so much pain I’m shaking I just want it to stop
You have to get surgery.. it’s the only way because it only gets worse because it grows.
I was just diagnosed with endo yesterday!! It all makes sense now as to why I have constant pain during and around my period! My dad used to say don’t be soo dramatic!!! I must of had it for years!!!! I defo don’t have it reallly badly cos I still maintain a pain free life but that could change! I don’t really have bad period pains like I did when I was younger! Maybe I have it milder than others!!!
I went through a lot before my diagnosis! Please go until you get a diagnosis!!🙌🏽
14 years of pain and symptoms and I have finally found a doctor who listened... Because I'll be having a dual surgery to remove what is believed to be an endometrioma I'm waiting for a surgery date, but hearing "if that's what the rest of my life will be, I don't know if it's a life I want to live," I felt that...
I cried watching this. It’s not only me! Other women suffer. Ive been turned down so much. It is criminal.
It took me so many doctors to get my diagnosis! When you all for tests and doctors decline ask them to note why they chose not to do the tests they usually end up doing it
I can relate and it seems like nobody cares....her story is my mine. God bless ❤️
SUCH AN IMPORTANT CONVERSATION.
I truly am sorry for the people that have it. I’m only 12 years old, I don’t have endo but I do suffer from intense cramps myself! Cramps are no joke! I’m praying for people that have it!🥺
I have endometriosis, fibroids and one block tube due to the endometriosis i wasn't able to get pregnant. Permit me introduce you the herbal mixture that cured my endometriosis in a period of 14 days. I am a living wit- ness of this wonderful work of this doc. For information on how I was cured, contact @doctor_saibu now by email drsaibu2@gmail.com for more details on herbal medications and get the cure completely @doctor_saibu Herbs are also effective in curing the HIV, cancer, hepatitis, fibroids, HPV, etc .
I suffered from endometriosis for 8.yrs before I was diagnosed. I started the pain from my very first period. I finally had a Laparoscopy at the age of 20 while I was a nursing student. I even lost a job due to my pain. I finally had a hysterectomy when I was 36 yrs old. I also had 8 losses due to endometriosis. I felt better since the hysterectomy. I never knew anout an association for my disease.
Thank you for shining a light on this. As a endo warrior myself it means the world to me! ❤️
I recently get rid of my Endometriosis through herbal supplement i ordered from Dr Aluda on RUclips..
I went through menopause a year ago. After decades of pain so severe I can’t describe it. It affected every aspects of my life. And never was treated because it’s just pain.
Did your menopause lessen the endo pain?
The first time I learned about endometriosis I was in eighth grade age 12 and I’m 29 now... I’m shocked that it’s so many women aren’t learning about this
Ive seen this years ago now im watching it again crying in pain crouching again in pain
It’s interesting to hear physician opinions. I’ve smas and endometriosis. By far it’s the most episodic and erratic feeling. Today was a day where I couldn’t get up. Stuck in a malaise of pain.
I've been looking for an answer for over 5 years and I finally got a diagnosis today after speaking to half a dozen drs..... . I finally have hope.
It took 9 years for my diagnosis to be done & still on the journey, in Kenya many doctors, medical practitioners have no idea how to even deal with a patient.
Every doctor I go to and tell them I have abnormally painful periods, I bleed like crazy, I have terrible back pain and would dread my period because I knew I wouldn’t want to do anything for days. Not to mention pain with penetration, bladder problems everything in the book, And they always say I just have a heavy period and need birth control. Never fails and it’s so sad because it really takes a toll on me and it’s something that I would love to never have to worry about again
I was diagnosed a week ago with endometriosis during laparoscopic surgery. Mine affected my colon, rectum, bladder, uterus, ovaries, fallopian tubes, and abdominal muscles. I went seven years undiagnosed and had two surgeries before this one. I finally feel like I may be able to get my life back.
I know this is old but how do they get rid of it if it’s everywhere?
@@jenniferhasenstab1406 There's no cure for it unfortunately. Even if they cut it out (excision surgery) it grows back. Even people who have had their ovaries removed can still have issues.
Hi may I know what are ur symptoms? Do you exp those symptoms on a daily basis or only during your period??
@@chichinglook5091 so i had irritable bowel syndrome, pain in my pelvic area not during my period, fatigue, heavy and irregular periods since I started at 11.
@@Panda72021 right, so they prescribe me progesterone only birth control which helps prevent it from growing back. And they also put a kind of mesh inside as well. Also they have this new robotic endoscopic surgery that they used on me which burnt the implants.
A smile?! I wanted to die!!! She is so brave
My endometriosis symptoms were: cistitis like symptoms very often, like every 2-3 months, bleeding when sexual contact. For 2 years was treated for cistitis until I refused to believe it so I was finally suggested to see the gyno. The gyno only with these 2 symptoms said she thought I had the endometriosis but required a laparoscopia. At my first laparoscopic -2 days after seeing the gyno-test was found around 5 locations of the endometriosis on the uterus and ovaries. No pain until years after the diagnosis, endometriosis must have developed somewhere around the colon. But the pill stopped the pain. The pill works for me.
That tear... I felt it. Endo pain leaves you traumatized because feel the worst kind of pain that even years on thinking about it can make you cry.
I feel like these days most doctors don't seem to care. I've only had one Doctor In my lifetime that would go above and beyond for her patients and sadly she moved. I remember I was having tremendous pain and swelling in my throat 2016. I couldn't talk for long, my voice would disappear which lead me to get fired from my call center job. I went to an ent dr, but he kept telling me nothing was wrong. I kept going back n he got irritated with me. I found another ent and he told me I have tonsillitis. I had to have my tonsils removed, and I feel so much better. Now I'm going through tremendous physical pain and I don't know why. No one can give me an answer, and they don't even bother to check the root of the problem.
Luckily I was diagnosed around 14/15 with "Severe Endometriosis!" I was told I would never have children. I probably cried for weeks. The pain is excruciating!! I couldn't get out of bed, heavy bleeding, nausea, headaches, vomiting, felt like I was being stabbed in my gut, over and over, diarrhea, etc. After 2 laser procedures, a D&C, different birth control methods, meds, in and out of the hospital, even having a blood transfusion once(2pints), due to heavy bleeding, I ended up having a hysterectomy! Best decision of my life. I have been pain free since 2009. I failed to mention that I also have 3 beautiful kids, ages 18,20, and 23, after being told I wouldn't be able to have kids. God had other plans for me! When my procedure was done in 2009, my youngest child was 3 so i knew i didn't want any more kids, so I decided to have the surgery. Today, there are other options hopefully, but for me I was over it. Regretfully though, now my 20 year old is going thru the same thing, and worse! My mom also had endometriosis, and ended up having a hysterectomy. We moved to Texas a couple years ago, and the docs have been brushing my daughter's symptoms off but I plan on getting her to the doctor that treated me soon, in Alabama. Don't stop until you get the help you need. No one deserves to live in pain, like that. Living in a country fighting "Opioid Addiction" good luck on getting something to help with the pain!! Nothing over the counter worked for me, or my daughter
Thank you for bringing awareness to this. I can literally only say thank you and I hope more people and doctors will take it seriously.
I’m feeling the same way she was feeling right now and I’m praying to God my appointment at the end of the month gives me some answers 😢❤
I suffered with endometriosis for almost ten years before I was properly diagnosed. It wasn't until I had surgery to remove fibroids that it was discovered. By that time, it was extensive, involving my reproductive organs, bowel, bladder and urinary tract. Adhesions had fused things together so that nothing could work properly. The worst part of it was having doctors who were so dismissive of my pain and symptoms. Laser surgery finally brought me relief, but it couldn't repair my infertility. I was fortunate to go through menopause early, because it slows down or even stops the growth of endo. Menopause has been a new lease on life!
I agree with you but suffered decades.
G.A. I don’t understand please explain I am in terrible pain and bleeding to death from three weeks my dr after mri told me yesterday I have endometriosis
G.A. How u got out of it please
Mary- I sympathize. I had heavy bleeding, too, but in my case it was fibroids causing that. My primary symptom was horrible pain from the endo most of the time, even when going to the bathroom. My doctor removed the endometreosis adhesions with laser surgery at the same time he removed the fibroids. He wasn't able to remove all of it, however, and surgery left me vulnerable to scarring. Most gynecologists will first try treatment with birth control pills. (That never worked well for me.) The laser surgery gave me amazing relief and I went through menopause just a few years later. I've not had any more problems or pain. I hope you have a good doctor who listens to you and communicates well all your options. You have to advocate for yourself and find a different doctor if you are not getting any relief. If you want to have children, you definitely have to be proactive. Best wishes! G.A.
G.A. Prayers on the way 🙏for u my dear
One more question what laser surgery or treatment u did
Finally was able to convince a doctor I wanted to be sterilized at 40 (started asking at 16!), and while he was in there, turns out he removed moderate endometriosis!
If doctors had taken me seriously in one of many ways (extreme period pain with some wild PMS in my 30s or that I knew I never wanted kids at 12 and wanted permanent sterilization), they could have not made me go through 30 years of pain that prevented me from living a normal life or planning normal activities. It was easier for them to give me a script for flexeril instead of asking what hurts and why.
I had surgery 3.5 weeks ago and my period is even worse than usual, hoping it'll settle down in a few cycles. Best wishes for all the others out there that need help and hope y'all can find doctors that believe your pain and want to help instead of just extort you for money and tell you "that pain is normal, let me write you another script for it." I'm gonna go eat RSO and go to bed.
I experienced the same problem and dealt with it for over 10 years of the same things. My doctor told me that she didn’t believe me after I had been seen by her for over a year and that she didn’t experience it every month & she wouldn’t do my hysterectomy. I got a second opinion and they told me what was wrong with me & they did my hysterectomy. I had fibroids and another form of endometriosis. My uterus was 6.6 oz in weight. Six times the size of a normal uterus.
Thankfully for me I got referred to an infertility doctor for my pain around 18 years old. I told him my symptoms and flat out said you have endometriosis you need surgery. There is no way to confirm you have endo unless you have surgery so you are kind of hoping you have it, if that makes sense. He was the #1 doctor in the country for endo surgery, and was the head of team that did the first successful uterus transplant resulting in a live birth at the Cleveland Clinic. Amazing news for him, sad for me, he got chosen to be chief of staff at Londons first CCF. I will be eternally grateful to this man, I have had 4 other endo surgeries because it does grow back, but if he didn't listen to what I was saying God knows how horrible it would have gotten.
Have you tried herbal medications it worked for me cleared everything and no growing back
I had been suffering pass outs and chronic pain and unbearable fatigue and awful periods before any doctor could tell what my problem was. I really identified with her when she cried. Its just you get blamed at work and society for sth thats not even your fault!!!!
I’ve had a period since I was 8 I’m 22 now but I found out I have endometriosis at the end of November 2021 with having being anemic and iron at a 5.1 and needing 3 blood transfusions and a iron transfusion I had no clue but I’m now researching bc my pain has always been bad but it has been horrible these last few months and seems to be worsening I didn’t know that the pain I was experiencing was bc of the endo I’m blessed to come across this video it’s now August 2022 I’m on a mission to heal and understand my body‼️
I’m going this right now. No dr. Hears me . It’s absolutely the worst.
Annabel’s Mother hi there. i want you to know that i know exactly what you’re going through. i know i have endo and no doctor believes me. i’m actually seeing my fifth gyno tomorrow and as much as i pray that he’ll believe me, i know in my heart that he won’t. i feel your pain. keep fighting. we can get through this. we’re women and that’s the worlds greatest superpower!
@@communismandlesbianism how did it go?
@@Rachel-qx8gn thank you so much for asking. it went just as well as all the others did, and all were train wrecks. i’ve seen three more gynos since and no one has believed me. it’s beyond devastating not being believed and being brushed off as just “too sensitive” or “not strong enough”. in the new year, i’m going to see an endo specialist. it’s really expensive and my insurance won’t cover it but i don’t care anymore. this pain has controlled my life since i was twelve (it’s been nine years). i can’t live like this anymore. wish me luck in the new year that all goes well!
😮 I had the same symptoms but I do not know what I have yet still wateing for my results
Currently laying in bed crying and in pain rn and trying not to throw up because of how painful this is, my lower stomach and lower back are most affected and it feels like I’m dying quite literally😭 Just trying not to pass out😖
Hello sister use Dr Omo herbal medicine very powerful and active am free from pain after using it will help you...
@@rhondapagan5759 I’ll definitely look it up tysm girl🤞
Reach him on email and order.