Advice for Endometriosis Sufferers
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- Опубликовано: 3 окт 2024
- Actress Kate Bond, singer Halsey, and OB/GYN Dr. Thais Aliabadi share tips on how to diagnose and deal with endometriosis pain.
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Makes my cry when nobody takes me seriously about these pains
Me too, they think it’s just cramps. That’s why we need to talk about it more and make them realise how much pain we’re in. So even if people don’t believe you just keep fighting, one day it will be better
Me too honestly, my gyno told me it was normal to cramp 3/4 weeks, my cramps have been so bad that I've walked like I was 8 months pregnant, they hurt so bad that I can't eat sometimes, I get bladder infections after each period. It's insane how doctors don't listen when it's they're job. It's not normal to be in pain on your period.
Me too. No one understands.....
I was diagnosed when I had my Fallopian tube removed and the doctor saw endometriosis. I was not experiencing extensive pain. Just random slight pains and fatigue. In addition inability to get pregnant when I was trying!
You know 😭😭😭
Shout out to my Endo Sisters! You are not alone!!
💓
I love you
❤
The struggle is so real.
Yes we are warriors! 💛💛
When I was in 8th grade I was send home twice during two different periods and the principle said "you shouldn't be making this into a habit"
Bitch. I knew it wasn't me!
im in 8th grade and yesterday i got sent home :/
I’m so happy I’m not alone.
You are not alone. Just had My 5th op.
@@brendakabanda2181 Hello Brenda you're name looks familiar please tell me how you got rid of endo pain
@@dianahjanice4710 I'm Ugandan. I eat vegan most of the time. I stopped taking sugar unless I can't avoid it. Sugar feeds off pain. I also have 2 tablespoons a day of apple cider vinegar. I also make juices of beetroot, carrots with these ingredients as a base fresh ginger, turmeric, celery, lemon. They have helped a lot.
You're not alone darling. I wish u all the best. :)
Me too girl 😘
I’m crying I go through the whole body shaking from bad cramps the first 2 days of my period
Im in my 30s i started suffering from this in my mid 20s and i would have 1week worth of hell before n after period . Misdignosed with stones in my kidney. It took 9 years for someone to give me a giod answer why the pain was crippling... I still suffer from it now and choose healthier food options. But havent gone totally dairy free and glutten free... But on days im good n dont eat those i feel less pain
Go vegan ladies. Ive been veggie for 23 years and gluten free for 10, sugar free for a long time except chocolate on the rare occasion. I watched Dr neal Barnard. He swears to go vegan for endo. Today I'm on my 4th week being vegan.. today is my 2nd day of 6 day period and I've only taken a quarter of a pill. Usyally by now I'd be on pill number 5 or very strong nsaids. This is the way for us ladies. Try it. You'll see. Whole foods and plant based. Cook from scratch as much as you can.
melissa I have been gluten free since second grade and I was vegan for about a year. It did nothing for me unfortunately
@@melissa-uu9oq that’s great that it works for you, but with endo and even pcos there is no such thing as something that works for everyone, not every case of endo or even pcos is the same. it’s actually about finding what works for you, (changing your diet can help, but it is actually different things that affect people’s endo & pcos not one common thing). I have both endo & pcos and going vegan did nothing for either one for me (so the go vegan isn’t really a good piece advice, try go vegan & see if it works for you is a piece of advice).
For me it was Limiting my Caffeine & Alcohol intake & also had to get put on a birth control shot (taken every 3 months the same time every month) to help my estrogen levels (plus be taken vitamin D + Calcium Supplements on a daily bases for not being able to consume enough of it naturally, Because I’m also lactose intolerant, {not because of my pervious dieting} to be on Depo Vera without it doing damage) as naturally nothing was doing enough for me personally, maybe partially because of food allergies, I have, meaning I can’t consume them doesn’t matter if they help or cause, (it naturally limits what i can try), & that’s the reality (some people that have endo & or pcos also have food allergies to different foods for dieting limiting want that can & can’t use, which may not naturally be enough for them). Where as My Sister also has Endo & smoking weed is one of the things that helps her symptoms, (which works similar to Advil but without the side affects, also depends on pain tolerance).
Mercedes Graham omg me too
I have SUSPECTED endometriosis. They thought it was ovarian cysts, but there was no cysts when they did the ultrasound. I would randomly get a shock of pain (I was on birth control, so I didn’t have periods) that would go all the way from my stomach to my butt. It was so bad one day, and I wouldn’t stop bleeding, so I had to go to the ER. They gave me pain meds, did scans, said there was nothing they could do, and sent me home. I wanted them to check for endometriosis, but they said no. I’m 17, and it absolutely crushed me that they didn’t bother to take it seriously. Listen to your body!
Plant Food Paradise They told me that it wasn’t “worth” doing the procedure, so they just assumed that it was endometriosis and they put me on the depo shot. I still have pain, and bowel issues. My stepmother had the tissue removal laparoscopically and she said it made the pain worse and it can come back, so she won’t let me get it done.
I want to get it done so bad. I’m so afraid of changing birth control (because then I’ll have a period and it’s hell) that I shaved my head because the depo made my hair fall out. When I first switched from the pill to depo, I had a period and I was bedridden and passing nothing but clots. Even tramadol didn’t help.
I want this all to be over but no one really takes it seriously. Thank you so much for your comment.
I'm sorry. You probably already thought of it, but if you can't do it now, when you turn 18, you definitely should see other doctors.
It's very hard to get diagnosed. I was fortunate enough to have an amazing ob who also treated my mom who has it. I had diagnostic surgery at 15. It helped, but treatment has been constant. If you don't like the depo (I didn't like it) the nexplanon was good, or an extended pack of oral. It's 3 months on the pill, and then a week. If your Dr. Says you can skip the week which is how I manage. If your doctor isn't listing, find a doctor who will. You know your body better than anyone.
I'm suffering from extremely painful periods I literally have to eat like 4 ibrofean every 4 hours
What's crazy about endometriosis is that it can leave your pelvic region...it's very common to have to attached to your bowels but did you know they have been finding endometriosis tissue attached to people's lungs and stomach.. That can explain why you feel the pain so far up and that is always why sometimes it doesn't show up during a lapriscopy. My family has a history of endometriosis and I started my period when I was 12 years old and already started having severe pain just 4 months later!
The doctor was spot on with her 3 red flags. I'm so happy she has gotten some help with her pain. Treatment has really come a long way since the early 90's when I was diagnosed. Periods should not be excruciatingly painful, so don't ignore it in yourself or your daughter. Don't suffer in silence and think this is just what a period is suppose to feel like.
She has inspired me to go to a gyno. My periods, since I was young would bring on shakes, cold sweats, vomiting, nearly fainting, and pain to the point of where I would be in hysterically crying. My general doctor completely dismissed me and said birth control will fix it, its just your eating habits. While birth control did cure the pain and most of the symptoms, I've also had a history of large painful lumps near my bikini area. When the birth control made everything bareable I decided that I probably didn't need to go to the gyno soon (i'm 20). But after watching this, it prompted me to research and learn that birth control can help with the symtoms but there can be reasons. So, I will be making an appoiment soon.
Ariel god bless! may everything go well for you at your appointment - if not, keep trying, your body deserves the care 💕
Molten Kitty Thank you!
Ariel my dr prescribed Visanne. Look for videos! its no estrogen therapy to suppress endo. You stop your period after 4 months. The estrogen in birth control gave me blood clots which led to a dvt and pulonary embolism. Dr washed his hands from that and I was in and out of hospital 3 times a week for a year! All he had to do was ask me if anyone in my family ever suffered from blood clots and I would have said yes. That question he failed to ask me cost me 1 year of hell, loss of work, health, stress and I still have leg pains and fear or relapse. I relapsed two other times after that. I have to take injections for travel for life! So all to say, I am starting Visanne with high hopes.
Hey, this is two years ago, but do your lumps appear like “boils” it sounds like you may have HS if it’s on the outside on your body
Rosemary Lucy Cosentino Canadian Fine Artist Just saw this, thank you 💕💕
I've been struggling with my endometriosis for nine years, and watching this actually made me tear up. Please please please keep spreading this message, more people need to know that suffering this way isn't normal.
Way to go Halsey! Thanks for sharing
Thank you Halsey! I'm 60 years old and realize now that I suffered for a reason. My generation was told "that's just part of being a woman!" So glad women these days are being recognized and given explanations."!!
I’m sorry the women of your generation didn’t get the help they needed
I am so happy that endometriosis is finally being talked about. I suffer from it too and also was misdiagnosed for years. I really hope that they can get the word out to help more women get help.
Yes queen me too we can conquer this👑we r so strong
I'm happy that it's being discussed as well. I'm also 34 and just got diagnosed with endometriosis in August
I am diagnosed now at 42. Thank God I have children may Allah bless and protect them. I feel sorry for the pain endo women are going through I feel sorry for women struggling with pain pain and fighting to be mom. Stay strong much love 💞
Ameen Sister
Halsey it's amazing that your taking charge of your health. You are amazing and absolutely beautiful girl!
I started crying after she said mentioned the three major symptoms. I have my labroscoy in 3 weeks and I hope I can finally be pain free.
Are you pain free now? 🙏🏽
Are u pain free??
Well done girl. I have that horrible disease too. I use to vomit the whole time and I was crippled in pain. It's not easy. My whole tummy felt raw and it felt like it was going to explode.
It’s so sad when others don’t understand. I cry of the pain
We all know how it feels but they don't.. have you ever tried herbal medications it worked for me
@@gloriawhite2214 no never! Anything you can recommend? I’ll try it! Going in for surgery in a few months, but I’m desperate
THANK YOU FOR TALKING ABOUT THIS, PLEASE TALK ABOUT THIS MORE !!!
Ablation? No! You need excision of endometriosis, not an ablation. You need an excision specialist. Ablation helps to spread endometriosis cells. Excision is the gold standard. You have to take the disease from it's root not just the surface, like it happens w ablation.
AMEN
I agree with you.
Thank you. So frustrating continued misinformation. Ablation also makes it harder for the next Dr to find all the endo. The info is out there. Why are doctors still so uninformed? It's unacceptable. 41 yrs old, officially diagnosed from laparoscopy in 2010 at 33. Symptoms since 14. The disease is...it'll mess you up
Yes! I learned this from Nancy's Nook on Facebook. Are you on that page? It's wonderful!
Exactly!! Doctors that do ablation are not good doctors!!
Halsey...a fantastic artist and apparently a super person. Thanks for telling your story. You have helped people by sharing your struggle. Respect.
I was finally diagnosed at 25 after years of seeing doctors. It took an ovarian torsion/emergency surgery to get that diagnosis. I already had 2 little boys so 1 year later I ended up having a full hysterectomy. It's not a cure but made me feel a million times better. Thank you Halsey for speaking out about this!!
My mom was bleeding for about half a year. Doctors said it was normal & “stress”. Just watching this now now I know what my mom really has. Thanks for sharing !!!
This has been enlightening. Thank you so much. And it's unfortunate that sometimes it's other fellow women that judge others for "not being strong" when you try to tell them that you're in excruciating pain💔 Emotional support is essential. This is a topic that's underrated, especially here in Africa
I was diagnosed with endometriosis at the age of 34. At the age of 35 i had a bowel resection with stage 3 endo. It took me 12 months to recover fully but i have been blessed in finding a birth control pill that took all my pain away and 13 years later i am still going well and pain free.
I am luckier than most and feel for those women who are in a worse situation.
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on RUclips Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️
I was crying within 1 minute and 15 seconds 🥺 endometriosis has impacted my life so much. So happy it’s getting exposure so hopefully it will get more attention, research and resources.
I am 25 and I was diagnosed w/ endometriosis after I complained about my belly button bleeding while on my period! Your story is so touching to me!
Dealing with endometriosis every so often is a daunting experience each time you’re on your period. I’d like to share my journey because maybe just one person would read it and it would help prevent a lot of pain and sadness for them in the future.
I always had irregular periods with pain and at 13 years old, I was put on birth control. After getting married, I decided to come off birth control to have children. I got pregnant 7 months later and gave birth to a baby girl. But, when I stayed off birth control to want to have a second child, the endometriosis (not yet diagnosed at this time) became worse- painful periods. I landed in hospital for another reason, burst appendix where they had to do laparoscopy and was then diagnosed with endometriosis at 30. It’s true, if you suspect you have it- you won’t get a diagnosis till you’re much older. And even if you do get around to a diagnosis, theres only pain management for you to do. The things that worked for me was, cutting out allllllllll carbs before and during my periods, Maxidol are the pills I would take just at the on set of symptoms of my period (1-2 days before the start of my period) and during it.
I really think going on birth control when I was young stopped the endometriosis from destroying my system. It did grow tremendously just in the short time that I was off birth control, imagine if I never went on it, what that would have done to my system. Endometriosis, besides the pain, makes everything very sticky- please do yourself a favour and go on birth control for pain management and to prevent endometriosis from getting worse.
Focus on your symptoms but think about what pain management works for you and your future fertility goals.
I hope sharing my story helps someone out there! Sending love, peace and healing.
Hei, had you manage to become give birth to your second child?
I’m 30 and just diagnosed with endo.... I had these really painful periods all my life ALL MY LIFE and never missed a day of work, I couldn’t afford it, never missed a class at the U (and I got two degrees) I just stamped a good amount of pain killers.
I completely understand you! Been there done that
I'm 100 percent sure I've found out what I've had for soooooo long! I went to the gyno and they couldn't even tell me what was wrong, they only checked for ovarian cysts. My heart goes out to everyone who is having fertility issues. I'm lucky enough to have had my son, and now the symptoms are less to none because of an IUD.
Stage 4 endo right here tried everything I could and now... I'm having so many flare ups and apparently the Dr can't do anything else to help! So glad this is FINALLY being talked about.
Get a new doctor and ask for excision
So sorry. I am also stage 4. Try the laparoscopic surgery for removal if possible. Don’t bother with a hysterectomy because it isn’t a cure.
I’m 32. Just found a doctor that took all my symptoms seriously and actually cared. Having an ultra sound in a couple weeks. She recommended Depo Provera, which I am really nervous about, but we’ll see!
This is great, I absolutely love Halsey and glad this is being brought up. However, it’s important to mention that in some cases of women that suffer from endometriosis, pain can be a constant day to day thing. They mention that it is pain during your menstrual cycle, which is accurate, but it is possible to suffer outside of that too
I have stage 4 Endo and I am in pain constantly all the time.
Preach... Lord please heal all of us from endometriosis 🙏🙏🙏
*Nothing can compare the joy in my
heart for being free from this terrible
disease fibroids, for 2years I suffer
from it not until I saw a review on
how Dromocure on RUclips Cured
someone from Fibroids…I contact him
and bought his Herbal.☘️ medicine lucky for me
I was cured and free from this fibroids pain with the help of his herbal medicine....
Email ( dromo596@gmail. com )
WhatsApp. +2349033505260
. Dr Omo can also help you get rid of gallstones, Endometriosis, Ovarian cysts, Herpes, Pcos, low sperm& weak erection , Herpes virus, Blocked tubes, infections, Infertility & bleeding. Please help me share Dr Omo herbal medicine work fine no side effects .x ✝️ ☘️ >>☘️.
I think its important to remember you can have endometriosis without the pain, and the severity of pain does not correspond with the stage of endometriosis. I now have infertility due to endometriomas on both ovaries from endometriosis. There needs to be a better screening tool, and it should be routine in order to prevent infertility from occurring in women that otherwise wouldnt suspect it.
I agree ,it doesn't have to be that painful
I honestly got really lucky with my doctor. I literally told him my symptoms and the same day he mentioned endo a month later I had a laparoscopy and he removed as much lesions as he could.
So much respect for Halsey for being so open and honest about.
I just received diagnosis...I am so thankful that my pain has not been ignored...
I’m so glad people are speaking up about endometriosis! I really appreciate Halsey mentioning that bit about “when you’re sitting at home in pain, you don’t feel good, you don’t feel sexy, & it can really make you feel like less of a woman”. Those words are really difficult to think to yourself but even harder to say out loud. I feel that way quite often. I was diagnosed with stage 4 severe endo this year. I’m 24 years old. I went multiple doctors over the years and was told every excuse under the sun including “maybe you just have a low pain tolerance”. It took me 9 years to find an obgyn that took me seriously! I had laparoscopic surgery done 3 months ago to remove my endo. We aren’t sure if my right ovary is functional anymore. I just can’t help but think “what if I were diagnosed sooner”?
I'm so happy that I found more people like me. I'm 15 years old and my mom took me to the doctor and a week later I had surgery for it. My doctor said if my mom didn't being me to the doctor when she did that in a year that i wouldn't be able to have kids.
My periods are super painful, but the older women in my life as I was growing up always made me feel dramatic. They cramp too, get over it. But I'm halfway into my 20's and I almost went to the ER yesterday because the pain was UNREAL. Started my period today. I don't even know where to begin...
I'm so happy to see them bringing attention to this. So many women suffer horribly and are told they need to women up. I have been told my countless doctors in the past that I'm being dramatic because of hemorrhaging and severe pain. Once you end up in the er getting a blood transfusion the doctors and nurses act like you're careless for letting it get that bad when in reality your primary doctor and ob/gyn are the ones who told you that you were over exaggerating your pain and bleeding. You can't win most of the time in the US where doctors mistakes are the 3rd leading cause of death.
i was so fortunate to be diagnosed at 16. halsey is seriously an inspiration to me in every aspect of my life. i found out she had endo after my diagnosis, and i also found out we both have bipolar.
When i was in 10th grade i was sitting in Chem class with absolutely terrible cramps and at one time i let out a Yelp and a little cry because it was hurting so bad and the female teacher said to me, "stop being dramatic, if you think this is bad just wait till you have kids" not only did she belittle me but she dismissed my pain and set a precedence for how I handled my period for the next 7 years. In the last 6 months i have been in the ER three times for my period and they are just now talking about endometriosis, imagine if i had not been dismissed by another woman how long ago i could have been diagnosed
Im 39 and just found out i have endo omg took so long for a Dr to find out why im in pain im just grateful finally got diagnosed
I lost my left kidney because of endometriosis. Im happy people are talking about it. Its more than cramps!
Exactly. I've just been diagnosed with endometriosis in August, and I've been having bad pain flare ups, nausea, dizziness, fatigue, and back problems
That doctor is brilliant. As an endometriosis sufferer who has had 5 ops. She is a goddess on my eyes.
I have suffered for years with endometriosis... I’ve had two laparoscopic done and my pain was still the same, even worst. My Gynaecologist didn’t take my illness seriously for years, my endometriosis is now so bad it’s already attaching itself to other organs and now @37 years old I’m gearing up to do a full hysterectomy.
I relate as I got endometriosis at 14 which really changed my life I found I have been debilated while on my period making me miss out on alot of things that a teenager should be doing and watching my friends on snapchat having fun and knowing I was unable to go because of the pain really hurt my already poor mental health due to the fact I have been combating severe anxiety, depression and suicidal thoughts since I was a child.
Same here. I’m on medicine now but it is still agony sometimes. Also I love your profile picture lol
- Mushroom haha are you irish too
uh yes nah I’m Scottish but I love Father Ted haha 😂
I have endometriosis, and have lost four pregnancys due to it. I'm in pain most of the time. And when I go to my obgyn they just dismiss it. I feel like I have no hope 😔
Krystal Mendez Try to find an endometriosis specialist in your area! There’s a FANTASTIC endo and fertility specialist in Boston, if you happen to live around here
I know how you feel.. I had my first laparoscopy for this when I was 17, and another when I was 19. I was told that I will need a hysterectomy sooner than later, and its terrifying for me. Since I was 16 I've had to worry about never having my own children..
Change OBGYN Stat!!!
Krystal Mendez Praying for you.....please find a specialist who cares about you wanting to have a baby.
I have had 2 miscarriages and my dr said she really thinks I have it but doesn’t wanna do the surgery
Why do people bring up coke in the comments ? We're talking about endometriosis here, that has nothing to do with drugs ! It's like if you tell me that you broke your foot and I answer "Bet smoking weed is not helping" like wtf ! Coke has nothing to do with endometriosis ! And also, y'all need to stop being so naive, drugs are very very common in the music industry ! Probably the majority of the artists you hear on the radio do drugs so blaming Halsey for doing drugs is like blaming a college student for skipping lectures, it's in no way a good thing but everybody does it, so you can't blame only one person for it ! The music industry is a complete different world from our reality and it's very easy to get caught up in an unhealthy lifestyle. It's sad and I'm in no way saying coke is great and stuff, I'm just saying that if you don't like Halsey it's fine but don't go and say she's a bad person for doing drugs when your favorite artist probably does the same !
Have you even done cocaine? It is poison
Lmao yeah I know what cocaine is, thanks ! But what does that have to do with endometriosis though ? Like why do people bring it up here and now, this is a video where Halsey is doing something great, she's raising awareness about something important and all people do is talk about the fact that she's done cocaine, what's the point ? It's off topic !
You're right! It's funny because cocaine was once used as pain medication.. it wouldn't make her endometriosis worse, it would actually probably dull the pain. Though it's not good for one's body when used frequently. Also weed would probably help her too. Some people are so misinformed about marijuana and a lot of other recreational drugs, there's a huge negative stigma around them when it's really not THAT bad. Some pharmaceuticals are even worse.
@@soundtrip6991 i completely agree with you
Exactly and some don't understand how painful this condition is
Also just as important to address the fact that not every woman with endometriosis will have extreme pain. I grew up with very little pain, yet had very heavy flows. 1 week before my 30th birthday, I finally get a laparoscopic procedure to diagnose. Lo and behold, many lesions were found, along with scar tissue, and an enlarged uterus. You deserve to be heard.
I didn’t get diagnosed until the doctor was doing my hysterectomy. I ovaries and tubes first. A few months later the rest. I’m happy I no longer have the pain but even at 42, I wish I could’ve had one more child but I’m grateful for the 13 yr old miracle I do have.
Hallelujah for this coverage. Full Endo sufferer all my life since the age of 9😢 52 now still suffering. Wish I’d have frozen eggs🥲🦋
Have you tried herbal medications it worked for me with no side effects whatsoever
I've had endometriosis sense I was 14 and have been through 3 surgery and have had so many hospital visits and have tried every thing and have it really Severe and I am 24 years old and have two blessings 2 girls one is 3 and the other is almost 2 and I went through a lot of miscarriages but never gave up and I'm pregnant with our last child after 2 other miscarriages but now we finally got our boy and I'm due in Sep of this year 2018 and after he's born they are taking everything out because of how bad my medical is with Endrometriosis
Tiffany Hartman I had to respond because reading your comment about being able to carry children made me so happy for you!! What a blessing! Congratulations!!
Pinja Maria thank u it has been a big blessing to us to have two healthy toddler girls and a healthy boy on the way with dealing with the severe endromeioses I'm happy I could 3 blessings the doctors said no more after I have are third this Sep bc of my endromeioses being so bad my body won't be able to handle any more but I told them hey I've manage to deal with this horrible pain and having some miscarriages which was really hard to deal with too but told them I was able to get three blessings so after I have are baby boy in Sep they are doing a full Hysterectomy bc of the endromeioses:) thank u so much i have been through a lot and it means a lot to share my story to tell people with endromeioses to not give up :)
Tiffany Hartman That is just pure amazing!! Just being able to hear that there are people out there like you who are so strong to deal with this and still manage to deliver healthy beautiful babies is just so fricking awesome!! We could call that a superpower, right?!:) I myself go trough absolutely horrible pain too and my doctor once mentioned endometriosis to me but Im so scared to look into it because It’s a dream of mine to have children one day...but I’am only 17 so I’am hopeful that this period pain will settle but I have a gut feeling that it’s not going to be that simple.
Pinja Maria I believe strongly u will get the babies u want in the future I did even going through how serve I have it and had miscarriages but never gave up and now I have a 3 year old girl that's deaf but runs in my family and she is just an amazing little girl and then I have a almost 2 year old girl and the boy on his way and then getting my big surgery but it's been a long road and a lot of hospital visits and surgery and pain and I wouldn't change it for the world :) it's ur stories that u have that make u who u are today and there's a lot of hope :) and showing people not to give up when something bad comes ur way u just have to keep pushing through and keep trying :)
Tiffany Hartman Exactly! No matter what we have to keep on going in life and go trough what we go trough to become even better human beings trough our experiences! We need to keep up the strong hope for everything good in life! The internet is an amazing place to talk to people like you who inspire others! It’s really eye opening to hear somebodys story so thank you for sharing!:) I wish all the best for your family and your up coming Hysterectomy!:)
It took Multiple doctors and years of pain, time off work and Tafe, 3 ambulance trips costing $990 each trip and Iv been prescribed wayy too much tramadol over the years!
Finally found a doctor that wanted to listen. I've had two operations to unfuse my bowel and remove endometriosis.
May as well remove my my left ovary as it is useless.
Looks like the third operation isn't far away. This really sucks. And to think there are people with worse endo than me.
Bless you all and I'm sending back rubs and hugs. Xxx
Thinking of you all.
I've been having pain for a while now. A lot of doctors kept saying just take medication for an infection. It's just recurring infections, but my periods were so bad that I missed a lot of school. It was so painful that I had a hard time getting out of bed. Now I finally found a doctor who recognized that it could be endometriosis. Maybe it is or maybe it isn't. But it's a start from what I was being diagnosed before.
I was diagnosed when I was 26. While talking with my OBGYN she came to the conclusion that I had been suffering from endometriosis since I was 12. I remember the school telling me I can't call home and I would just lie in the corner of the room in so much pain crying and they would tell me suck it up it's called being a woman.
Took me till 38/39 to be diagnosed. And that was only because an ultrasound picked up a bladder mass. The urologist who did my cytoscopy had no idea what he was seeing. A 4cm square was removed from the inside of my bladder wall....pathology showed endometrial and endocervical cells. Comments of interstitial cystitis was also noted. Yet in the previous year I had a gynae registrar dismiss my bladder and bowel symptoms as psychosomatic!!! 3 days before my surgery with the urologist I had another gynae team tell me that his and his supervisors decision was I didn't have enough symptoms of endometriosis to warrant the risk of investigation! I kid you not.
In my mid 20s my Dr's attitude to me missing work due to severe period pain and nausea was that being on the pill would control it from growing. That nothing needed to be done in the way of investigation unless I was trying for a baby and had difficulties. I'm so angry at the missed diagnosis opportunities and what it's cost me. If I'd seen a private gynaecologist rather than the free hospital clinic this could have been managed so much differently and better.
Fact. Dr's questions are too rigid to determine if endometriosis is present.
Fact. Not everyone has difficulty with sex causing pain.
Fact. Pain is only one symptom. It shouldn't be the sum total in a decision. Sure I had painful periods but I didn't miss work the way I missed school when younger.
Fact. When someone describes needing to empty their bladder and wind up with bowel spasms something is very very wrong. Especially when someone reports seeing blood on the paper after wiping their behind. It's not just down to straining without an examination.
I could go on so much. Hopefully there are better tools a Dr cam use in a few years that cuts down the time to diagnosis. Even a treatment for it that works more effectively. There's no point in a woman being told she needs to conceive but the contraceptive pill is the only way to keep it at bay.
Doesn't estrogen in the pill make it worse ??
it's horrible how long and painful this journey is for people with endometriosis. I hope that one day there will be a cure for this. remember that you are not alone, even if it feels that way. I'm 23 with suspected endo from many doctors, but not have gotten a proper diagnosis. I pray for all of you that is going through this & for myself. take care.
I love halsey its very brave of her to go on national tv and talk about such a personal issue. ☺
I’ve been crying to multiple doctors about my pain. I always left feeling dismissed and without answers. I’ve been dealing with this pain for over 10 years. These last 4 years have been unbearable to the point where I am in pain during ovulation as well. This past year, I have been bed ridden because I cramp 24/7 now. I can’t eat, I can’t sleep, I can’t walk, I can’t work, I can’t have sex without pain, and now I sometimes bleed for 2 months straight. I feel like I’m dying, yet no one seems to hear me. I finally found a doctor who is willing to do a hysterectomy and hopefully then they will see what has destroyed everything I’ve worked hard for. Even though the pain has me screaming and being slave to the pain, the worst part about this is that I had to go through this for a decade (my entire 20’s) without any of my doctors listening, taking me serious, or helping me find a solution.
Are you ok now, after your hysterectomy? I hope so
Hi kyrsta I have adonoymiosis at stage 4 now I went through all the stuff u said and they kept saying that its normal after having a child I'm now having a hysterectomy as it has destroyed my life I would love to speak to u as this has really damaged me but I wasnt having it with these doctors I'm 31 now but it all started when I was 16 if u can please reply I wanted to ask did it effect ur skin sensitivity as I'm allergic to everything due to the hormone imbalance but the doctors say it dosent effect the skin they make me sick
@tylertheinsane156 did the hysterectomy help? I was told it wouldn't help me. I feel the same way as the original poster. I've experienced several sides affects from this disorder but sadly most are blown off.
Halsey is gorgeous. This is so eye-opening. Since i got my period at 14, my periods were so painful to the point where i couldn't even walk and if i tried to get up for painkillers or something, I would pass out from the pain. I missed so much school in high school because of it. I've been in so much pain from my periods that I've actually thrown up. And it's weird because my periods are so painful but I barely bleed at all. Luckily, I've been on birth control since i was 14 and that's managed my pain better, but I still worry that I have an underlying issue like endometriosis because of how much pain my period causes naturally.
Love you Halsey! Happy to see you’re taking charge of your body and health despite battling this illness!
You continue to inspire me everyday with your music and then I see this PSA! So much love for you girl! ❤️
Some say that you feel more pain because I don't have much pain tolerance but I know what I feel.And I don't know what I'm suffering from. It's frustrating
Thank you so much, doctor. This was a really good video. You explained everything amazingly. It's just nice to realize that you aren't alone. And, it's even better to see that there are good people out there. Like, you, who help you through all this. Keep up the superb work!
Halsey speaks so well
I’m glad I found this video cause I was diagnose at the age of 13 with endometriosis. At first they thought it was my appendix bursting. I was in so much pain. I wish no one else has to go through this, but unfortunately they do. I fortunately was able to take birth control which eliminated the pain.
i know how she feels. it's so awesome that she for help, and it's awesome that she's talking about it and giving awareness.
glad to hear she's freezing her eggs, just in case she wants kids later. your health should always come first, because there's other options if you want kids, adoption etc.
i know how she feels, in a way, because i never been pregnant before, but i have an enlarged uterus, (a pregnant persons uterus) luckily it doesn't bother me at all, and i feel normal... in other words i didn't know it was enlarged till i went to the doctor. no pain, no symptoms, nothing. they just ignored it pretty much, saying we will worry about it when you want kids
Very greatful for this video, nice to see that I'm not alone. Also, special thanks to the reporter for letting them talk, he didn't ask stupid queastions, very refreshing
Thank you Halsey. I got diagnosed about a year ago, at 31, not until I ended up in sepsis from a 13 cm endometrioma. Ive had two surgeries. Lost both my fallopian tubes and my ovary. It has been a nightmare.
Man I wish SHE was my OBGYN!
Me too
Me too it wouldn't have taken then 15 years to diagnose it would have probably taken 1 year lol
Which she are you referring to?
I have endrometreosis stage three and am recovering. Fertility is a main concern for me, I am 25 a grad student and have no extra income to freeze my eggs. I have already been told that I will not be able to have children. Insurance has not been kind and offers really little help for patients like me.. I am glad Halsey has the funds to protect her family in the future, I just wished for the rest of us, there was more help. :(
Finally someone is talking about this issue
Halsey is a true queen
Thank you Halsey for sharing and puting endometriosis on the spotlight. You are brave and beautiful!!
It's so sad when someone tells you it's normal for a lady having period but they don't have an idea how painful it is and how it affects you mentally.
I had the same thing happen, but I found out I had a life threatening Arrhythmia. I was in Bijeminy, and everybody told me it was anxiety or it was all in my head. It's so sad what these doctors will tell you, and are so quick to blame anxiety and whatnot. It's horrible. I'm glad you got a diagnosis and found someone who beieved you and took you seriously.
I feel so guilty for my diagnosis. Endo wasn’t even on my radar-despite my bf being diagnosed with it and subsequently having a full hysterectomy. Fast forward to two years after that-having debilitating pain is normal, isn’t it? To the point where you can’t even sit or stand comfortably- and my wonderful general practitioner who during my annual exam was worried about my extreme “sensitivity” to my pelvic exam and who immediately referred me to an OBGYN. Two months after that I was having my own hysterectomy, and after found out that my endo was “quite extensive” and “everywhere”.
My diagnosis was so quick, and the surgery was life changing. It grieves me to know that others have to fight so hard just be be heard. I am 100% an anomaly, and I 100% should not be.
When she said "It makes you feel like less of a woman" I lost it. So unbelievably true 😭 and it isn't even our fault
!!!!! This hit 😢❤
Wish there was a segment for people like me who suffer from Adenomyosis, endometriosis, and pcos. There’s many of us out there who know the Endo end that sucks and can come back but also not close to menopause and want to keep their uterus if possible otherwise a hysterectomy is my next choice because I cannot deal with these painful conditions together.
19cm endometrioma right here. I never had symptoms until it was close to rupturing and sending debilitating pain throughout my entire body... thankfully my ER ultrasounds were read quickly by a doctor, and a whole team called me back to the hospital at 2am and took the mass out... the endometrioma was nearly 10 pounds and required a C-section incision to remove
Does it effect a person to get pregnant?
Hi how is ur pregnancy did it affect? Pls reply also at wat age u discovered 19cm cyst?
I was 19 when I was diagnosed with PCOS. Now I'm almost 21 still struggling to conceive a baby. It's horrible thing to live with everyday.
I'm so happy ever since she announced her pregnancy 2 years ago and by the age of 26 she got Ender.
Made me feel so sad during those early years of her career she had to deal with these symptoms, no one should ever experience that pain or suffer from the fear they cannot be able to have a child.....
Halsey & the doctors, thank you
Her structured sentences omg, I’m jealous.
Yes I didn’t get diagnosed till 22 and started having symptoms at 16. Went through 7 OBGYN before I got a diagnosis at 22 .
Thank you so much for this information. You guys are brilliant. This show has been a personal favorite. Keep up the superb work. This was really informative. It's crucial information. And, it will help millions of people!
I think its amazing to bring knowledge about this subject to many women that suffer in silent. I am 35 years and Ive been dealing with this for about as long as I can remember, I was 12 and I remember not being able to go to school because if I got out of bed i woould faint. My pain tolerance is very high becauxe of this, I kept seeing doctors and doctors, eventually I felt like I was loosing my mind. I became depressed, I suffer from anxiety because of this. But the worst part to me is that some of us can't afford to freeze our eggs or get fertility treatments so we just have to childless. I was blessed to have one child she is 16 yrs old. Im scared I wont have more because of this. I still haven't been diagnosed because i have my surgery scheduled for 2 weeks, I already have cysts in my ovaries that block my tubes. I just wished women doctors would be better equipped to deal with this.
I was 14 when I was diagnosed with endometriosis. I am almost 24 now. It is such a horrible thing to live with.
they are so strong. Im proud of you both
I'm being diagnosed stage 3 endometriosis. It was real hard for me to accept it and people don't understand why I have to keep taking medical leave or why I'm always feeling so painful.
the fact that gerald would still be there for her and care for her even though she has this problem, like that's the kind of person you need in your life
Tan Charlotte-Jayne he cheated on her 🤦♀️
Thank you so much for talking about this. Thank u Halsey. We are so many going through this omg.
When I was in college I passed out due to pain. I didn’t know it was pain. Later the doc would tell me I fainted from the shock of pain. I was a virgin at the time. I went to ER and the ER doc accused me of basically lying and said either it’s an std or in my head. It was the most traumatic experience. Turns out, it’s just endo. 🥺
I wish I saw this years ago. I’m almost 28 now and just coming to terms with the fact that I probably have this disease and have had struggled with pain for years.
Hello, doctors! Thank you for this video. This was really nice. It's going to help so many people. Keep up the good work. This offers a lot of support to people suffering from it. You're doing an amazing job.
I got diagnosed with endometriosis last February and undergone surgery 5 days ago.
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Ive had this since my very first year of period, and I remember my mom taking me to doctors and they just threw pills at me. If I knew it was this I wouldnt be on my third year depressed because I cant have a child and every month I have so much pain. Doctors need to be more informed
I don't have Endometriosis, at least I don't think so, but I can't function without birth control. I was fortunate enough to have access to it early, thanks Planned Parenthood. I tried going off it in college, because I had been on it for about five years at the time and I wasn't sure if I was accurately remembering the pain, bloating, nausea, fatigue, and heavy bleeding. Literally one month off and I was dragging my behind back to the health center. The amount of pain killers I would go through, just to be somewhat present had to be worse than anything I could experience on the pill. Without birth control I literally can't sleep on my period the pain is so bad.
JessieBanana was your bloating constantly or just before and while on your period? How are you doing now ?
It was the same for me..I tried evening primrose...then vitamin b and cold liver oil tabs ...the pain is at a minimum now
The most informative video I have ever seen! Thankyou doctors