Thank you so much for the very informative video. I had the 2nd Pfizer vaccine on April 6th and 12 hours later went into a Thyroid Storm. I've never been diagnosed with any autoimmune disease or a thyroid problem until now. Now I have been diagnosed with Graves Disease and Thyroid Eye Disease. I have permanently disfigured eyes and I'm on Thyroid meds and heart meds. This disease has disfigured my eyes and my face. I now have double vision and I'm 18 months into this horrible rollercoaster.
We are so happy to hear the video was helpful! Graves' & TED are the worst, but it can definitely be managed. Sounds like Tepezza could help to quiet the TED portion. Hopefully an Endocrinologist is assisting with your hormone levels. Feel free to call the office if you have any questions or need any more assistance-we are here to help!
Please do more videos on hyperthyroidism, graves, and type1diabetic. Very few people on RUclips do it! You explained it very nicely, accurate, and in depth. Thank you for doing that. Please give us more info about these diseases, causes and treatments! They are so many of us here looking for an answer! Unfortunately most of the endocrinologist have zero knowledge and they only rely on general old beliefs and treatment options. Thanks
I have Graves’ disease and found out in 2021, and now my eyes are F’ed up. How do I treat this?? One ophthalmologist said I did t have TED, but I feel like I do. I’m on meds for hyperthyroidism/graves.. this is so annoying
12:45 I love this explanation. I’m going to a specialist Im having symptoms. Had thyroid removed 7 years ago but my eyes are having trouble . Thank you for your medical experience! ❤️🙏
Thank you so much for the very informative video. I've never known with any autoimmune disease or a thyroid problem until now. Thanks for sharing video!
The research and all that I have heard & read about Tepeza is that it significantly damages your hearing..a super high percentage of patients have hearing loss after being on it. I had 2 orbital decompressions 7 years ago which helped significantly.
I read the whole law suit against that company for not disclosing it and my own conclusion is that there is no way one's hearing will not be affected because of how that tepezza works and how ones hearing/ears work.
I wish I could find some doctors to help me. I’ve been thru so much already now I have graves and my left eye is bulging and SO PAINFUL. I want someone to treat it now before it gets worse. I cannot live my life. Light hurts my eyes. My whole side of my face hurts so bad I cannot function. My poor husband (his first wife died from autoimmune disease) and our poor kids. I need help. 🙏
I have Graves disease and always cold, and I also have TED and eye pain.. having surgery in may this year to remove thyroid because i had thyroid storm in February.. taking methimazole to help lower thyroid hormones and they are pretty low right now, off heart pills and down to five mgs of methimazole. was taking 20mgs daily for a month than 10mgs, now 5mgs..
This is very usefully presented. As to my own interest: I don't know that I have any issues with my Thyroid but now I do know what to expect if my eye(s) continue to be an issue. I randomly wake up with a bulging look to my eyes but it goes away over the day. I have several allergies which have progressively worsened with age and have recently been treated for conjunctivitis. The eye drops (combination of steroid and antibiotic) have been very beneficial and I likely will be using an eye antihistamine drop going forward as I am coping with allergens in my home environment as well as seasonal sources. I also had more obvious eye issues with my recent exam (pronounced double vision during exam --- but I do have astigmatism so it may be causing this). My prescription changed quite a bit from last year so I needed new glasses (improved but not perfect) and I don't have pronounced pain in the area described. I had parathyroid issues so have an endocrinologist I follow up with annually to monitor both thyroid and parathyroid for abnormal test results. So right now I'm thinking I'm one of those with other eye conditions but I will watch for TED. Thank you for making this video to explain the conditions for the non-medical folks!
I was diagnosed with graves and TED in november 2020 and was placed on a cocktail of meds which the meds reduced over the years. However I would like to know aside from surgery and radioactive iodine are there no supplements or natural remedies that can help heal the thyroid? Thank you
Does it also feel like there is a flim over the colored part of the eye sometimes? What type of eye doctor should one see to find out if you have this or not?
Hi doctor,i am located in India n have TED...i have preorbital swelling , double vision when i look towards ceiling, an opthalmologist has suggested severe pulse dose of solumedrol about 500mg per day for 3 days...but i havent yet done that fearing the extreme side effects ,,,also my Tsh levels have dropped to 0.0156...when the symptoms of preorbital swelling started the TSH levels were normal but starting dwindling almost a year after the eye swelling appeared. Noone has given me tepezza yet,, is it an OTC drug or does it need to be prescribed ?
I had a stem cell transplant at Duke (SCOT study) that wiped out my thyroid. I need levothyoxine, but I can't leave the house because of this police corruption and local trafficking.
Curious about this and hoping someone can help me out here ( not looking for a diagnosis ) Recently I had to get new glasses - my eyes are bulging out , weakness in optic nerve , pain / pressure . Fitted with ultra- violet lenses , something added to the lenses to stop the strain on my eyes - also have a second pair that has deep orange lenses - as I have really bad sensitivity to light ( not all the time ) I am awaiting further testing for Ehlers Danlos - does anyone know if there is a link between graves and EDS ? Currently on Gabapentin to help treat the nerve and bone pain - Also , any home remedies to reduce the pain naturally ( like can I use a heating pad ? ) Thanks to anyone who can offer some suggestion .
Thank you so much for the very informative video. I had the 2nd Pfizer vaccine on April 6th and 12 hours later went into a Thyroid Storm. I've never been diagnosed with any autoimmune disease or a thyroid problem until now. Now I have been diagnosed with Graves Disease and Thyroid Eye Disease. I have permanently disfigured eyes and I'm on Thyroid meds and heart meds. This disease has disfigured my eyes and my face. I now have double vision and I'm 18 months into this horrible rollercoaster.
We are so happy to hear the video was helpful! Graves' & TED are the worst, but it can definitely be managed. Sounds like Tepezza could help to quiet the TED portion. Hopefully an Endocrinologist is assisting with your hormone levels. Feel free to call the office if you have any questions or need any more assistance-we are here to help!
Drink herbal teas , (Braggs) Apple cider vinegar drink plenty of water and eat less carbs . I'd stay away from Medications but thats just me.
🙏🙏🙏
Same thing happened to me, after the 2nd shot and I have bee suffering ever since
@@sandiek.8769 I am so sorry to hear this happened to you too.
Please do more videos on hyperthyroidism, graves, and type1diabetic. Very few people on RUclips do it! You explained it very nicely, accurate, and in depth. Thank you for doing that. Please give us more info about these diseases, causes and treatments! They are so many of us here looking for an answer! Unfortunately most of the endocrinologist have zero knowledge and they only rely on general old beliefs and treatment options. Thanks
Thank you. Just diagnosed with graves. Very scared.
This video helped me a lot to understand more about my condition. Thank you doc.
Love from India
Most welcome!
I have Graves’ disease and found out in 2021, and now my eyes are F’ed up. How do I treat this?? One ophthalmologist said I did t have TED, but I feel like I do. I’m on meds for hyperthyroidism/graves.. this is so annoying
Go too a different doctor
12:45 I love this explanation. I’m going to a specialist Im having symptoms. Had thyroid removed 7 years ago but my eyes are having trouble . Thank you for your medical experience! ❤️🙏
14 years ago, i had radioiodine treatment fo Graves'disease. Now i have a Thyroid Eye Disease ( double vision)
Thank you so much for the very informative video. I've never known with any autoimmune disease or a thyroid problem until now. Thanks for sharing video!
Tepezza has loss of hearing side effect and extremely expensive in South Africa and not covered by medical aid
I had orbital decompression many yrs ago. My protruding eye look has improved over the yrs.
Hi
How much does the operation cost?
Was covered by Australian government
@rickman2267, is that operation painful?
The research and all that I have heard & read about Tepeza is that it significantly damages your hearing..a super high percentage of patients have hearing loss after being on it.
I had 2 orbital decompressions 7 years ago which helped significantly.
I read the whole law suit against that company for not disclosing it and my own conclusion is that there is no way one's hearing will not be affected because of how that tepezza works and how ones hearing/ears work.
How much did it cost you to have orbital decompression?
I wish I could find some doctors to help me. I’ve been thru so much already now I have graves and my left eye is bulging and SO PAINFUL. I want someone to treat it now before it gets worse. I cannot live my life. Light hurts my eyes. My whole side of my face hurts so bad I cannot function. My poor husband (his first wife died from autoimmune disease) and our poor kids. I need help. 🙏
🙏🙏🙏
Where do u live? Can u get an iv vitamin drip? If so look for myers cocktail to see if it helps.
I have Graves disease and always cold, and I also have TED and eye pain.. having surgery in may this year to remove thyroid because i had thyroid storm in February.. taking methimazole to help lower thyroid hormones and they are pretty low right now, off heart pills and down to five mgs of methimazole. was taking 20mgs daily for a month than 10mgs, now 5mgs..
This is very usefully presented.
As to my own interest: I don't know that I have any issues with my Thyroid but now I do know what to expect if my eye(s) continue to be an issue. I randomly wake up with a bulging look to my eyes but it goes away over the day. I have several allergies which have progressively worsened with age and have recently been treated for conjunctivitis. The eye drops (combination of steroid and antibiotic) have been very beneficial and I likely will be using an eye antihistamine drop going forward as I am coping with allergens in my home environment as well as seasonal sources. I also had more obvious eye issues with my recent exam (pronounced double vision during exam --- but I do have astigmatism so it may be causing this). My prescription changed quite a bit from last year so I needed new glasses (improved but not perfect) and I don't have pronounced pain in the area described. I had parathyroid issues so have an endocrinologist I follow up with annually to monitor both thyroid and parathyroid for abnormal test results. So right now I'm thinking I'm one of those with other eye conditions but I will watch for TED. Thank you for making this video to explain the conditions for the non-medical folks!
Just so VERY informative, clear and well done!!! Thankyou so much!!!
I was diagnosed with graves and TED in november 2020 and was placed on a cocktail of meds which the meds reduced over the years. However I would like to know aside from surgery and radioactive iodine are there no supplements or natural remedies that can help heal the thyroid? Thank you
Does it also feel like there is a flim over the colored part of
the eye sometimes? What type of eye doctor should one see to find out if you have this or not?
An ophthalmologist, endocrinologist and oculofacial plastic surgeon should all be aiding in your treatment.
@@drchipcole thank you
I have everything except the sweating, and inflamed eyes, going to get checked out
Hi doctor,i am located in India n have TED...i have preorbital swelling , double vision when i look towards ceiling, an opthalmologist has suggested severe pulse dose of solumedrol about 500mg per day for 3 days...but i havent yet done that fearing the extreme side effects ,,,also my Tsh levels have dropped to 0.0156...when the symptoms of preorbital swelling started the TSH levels were normal but starting dwindling almost a year after the eye swelling appeared.
Noone has given me tepezza yet,, is it an OTC drug or does it need to be prescribed ?
How to take treatment and where to find trepeze?
I had a stem cell
transplant at Duke
(SCOT study) that
wiped out my thyroid.
I need levothyoxine,
but I can't leave the
house because of this
police corruption and
local trafficking.
I have Graves’ disease, over active thyroid and thyroid eye disease
Does Tepezza work for both Graves and TED?
Hello sir where are you from..hospital
please I have thoid is already affecting my eyes what do I do now..please where I'd your hospital and your number
Oculusplasticsurgery.com
I had Graves’ disease and I’m currently battling thyroid eye disease
…can you help of my hyperthyroid doc
Sir I have thyroid eye desiase
😕
Different
Both the eyes
😕
Curious about this and hoping someone can help me out here ( not looking for a diagnosis )
Recently I had to get new glasses - my eyes are bulging out , weakness in optic nerve , pain / pressure . Fitted with ultra- violet lenses , something added to the lenses to stop the strain on my eyes - also have a second pair that has deep orange lenses - as I have really bad sensitivity to light ( not all the time )
I am awaiting further testing for Ehlers Danlos - does anyone know if there is a link between graves and EDS ?
Currently on Gabapentin to help treat the nerve and bone pain -
Also , any home remedies to reduce the pain naturally ( like can I use a heating pad ? )
Thanks to anyone who can offer some suggestion .