♡ Getting an Iron Infusion Prior to Surgery! (21st-23rd.05.19) | Amy's Life ♡
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- Опубликовано: 11 сен 2024
- ♡ Getting an Iron Infusion Prior to Surgery! (21st-23rd.05.19)♡
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Just remember, even if someone else is in a full body cast your broken arm still hurts. Everyone's pain is valid, never compare yours to someone else's because at the end of the day you still hurt and trying to suppress that pain because you feel its not valid only hurts worse! Take it in, feel it, and work through it.
I totally understand those days
When I have days like that
I sit down cry for 15 minutes
Scream yell
Then the rest of the day if I can I chill
So it’s ok to not blog or do anything
We are not letting people down
As the ones that love us understand ❤️❤️❤️
With your pending hip surgery, you should consider creating an Amazon wish list of items that would be helpful to you during your recovery. Things like jogging pants, any medical items, art supplies, books, tops... you can always find really nice things under a certain price limit if you're concerned about that. Plus, you can hide your address as well if you choose not to have things delivered to your p.o box. Just a thought any way. 💜
Chronic Butterfly omg that sounds amaizng! Thank you so much for suggesting it! ❤️🙏🏼
Great idea at any time! We, your subscribers would love to help in any way we can! If you were to make an amazon wish list and post a link in the video description, we could send things from your wish list that you actually want or need!This could also go for your medical supplies. We can help you with that in the same way! Talk to your supply providers and see if they can help you set something like this up!
I'm having "one of those days" today. A part of me wants to crawl back into bed and pull the sheets over my head and just sleep the whole day. However, I know that won't help the way I'm feeling. Thanks for the reminder that it's ok to feel this way but I need to just push through it and do what I need to do. It's hard not having anyone to talk to that understands what I'm going through. I've pretty much lost all of my friends due to health and mental problems. You gave me the motivation to get out of bed, so thank you. Hope you're having a good day.
I just discovered your channel and subscribed today. You are so amazing and strong! I wish you good luck on your surgery and fast easy recovery. ❤️🍀
Feeling not alone is HUGE! Life can be so isolating/lonely with chronic illness/disability. Thankyou SO much Amy-for the support, connecting (some of) us thru the comments & reminding us we aren’t alone-Thankyou SO, SO much!🙏 🙏🙌🙌
I feel empathy for you with your mental health being affected by your physical health. I have chronic back pain and scoliosis and over the last week my legs are weak it is so hard to walk so my MH has been affected too. I love the strength you have as encourages me cope with live.
Thanks for that nice pep talk. We are all here for each other 💕 thanks for speaking out
Good luck in surgery and feel better! Praying for your recovery every step of the way.
We zebras and Spoonies seem to have more of those days than most. You're right! None of us are alone in that. As for being sick all over your passenger seat, febreze works miracles and so does baking soda mixed with a couple drops of your favorite essential oil. Lemon is great in the car! It makes you feel so good when you get in your car. Leave the baking soda mixture on the seat over night or for at least 8 hours and then sweep or vacuum it up. Also, to keep odd smells out, keep a bit of activated charcoal in your car in either the door pocket or cupholder. It absorbs the smells before you even smell them, most of the time.
In the wise words of Hannah Montana; "Everybody has those days. Everybody knows what, what I'm talking about, everybody gets that way."
2:02 in the wise words of the high school musical cast "we're all in this together"
I’ve had one of those days, except for the vomit. So sorry that happens to you, I know it’s part of your life but it still sucks big time. Watching your videos is helping me except my own limitations and that’s it’s okay. It goes to show you the old or sorta old(me) can learn from the younger. So glad Tom was there to wack you on the back. My brothers have helped me out a time or two. Love ya Amy!💜💜💜💜🐶🐶
Hey sweetpea, coming from someone that's struggled with mental health for a very long time I want to tell you about the Thrive Programme. It's amazing, will change your life and give you the skills to get through the tough times. It's an incredible book that you read and apply the exercises to your life. Note: It's not a self help book and is backed up by full scientific facts. Lots of love, you're so great. Xx
I feel you with this. I have ADHD and a lot of people don't understand the impact it has but essentially I get intrusive thoughts and chronic anxiety from over worrying. Some days I just get so angry that I have to deal with it and don't want to do any of it anymore. Those days suck but they do pass luckily.
I feel you girl, some days i wake up and my chronic pain is so bad that i just can’t gain the strength to get out of bed, even if i know that getting up and moving will make me feel better somehow my mind just wont let that happen. Sometimes it’s best to take a self care day if you can on those kinda days, but i also know it’s important not to just sit and wollow in self pitty (even though thats quite often what i do) because often that will make my mental health even worse. Keep being strong and just remember we all have those days ❤️
I just had surgery Wednesday and in a lot of pain, people who think getting ports is easy just don’t understand. Also I slipped in the tub yesterday and caught myself with the surgery side and I’m paying for it today!
Agreed, sometimes you just need a good cry! It’s hard dealing with illness and your body not cooperating. I’m having one of those days today. I’ve been working a lot lately and today my body is just like, “NOPE!” 😐
Your vlogs literally make my day better. I've been having such an awful day and this has been a blessing 💕🌸
Chloe Rose aww thank you! 💕💕
I can definitely relate to the beginning. I've had joint pain almost all my life, and the past 5+ years it's gotten a whole lot worse and now I've got nausea for who knows why. So far no doctor has been able to figure it out, all labs come back clean and so it just kind of seems like there's no end to it and I definitely go a little crazy with it sometimes. Maybe one day I'll get a diagnosis of sorts or my body will sort itself out, but for now these are just the cards and some days it's harder then others to make the best out of it
I can relate. I have wrist issues and hip issues. Mri and nerve study are fine so now I get referred to a specialist.
@@dizzysaurus7 not to say I hope they find something but I hope they find a way to maybe stop it, good luck!
Ouch poor Tom
Heal soon please
Oh no Amy don’t chock lol
Wish there were more people like you on here, the reality of life with chronic illnesses not the over the top, dramatic, teeth clenching, hand on face, woe is me, Doctor shopping, unhealthy, co dependent, chronic illnesses “warrior” teams!!! You are needed on this platform, please don’t give up as you’re very much needed 😉. Poor Tom, feel better soon. Lots of love 🥰
Lotti at Beanie Co Designs aww thank you so much! ❤️❤️
I relate to the start of your video. I don’t have a chronic illness, but I have had Gastro for the last week, and I feel horrible. I balled my eyes out yesterday because I thought I was feeling better and it started all over again.
You’re gorgeous and I love watching your videos!
I so SO appreciate the fact you aknowledge that it´s ok to be frustrated at times.. recently had a rant at my family for really not understanding the hassle one´s own health can bring, and the worries that follow.. it really isn´t easy being chronically ill! And it really is a hard situation to "imagine".
Thank you Amy, greetings from Norway 😘
I've never had an iron infusion but I have had a potassium infusion and they are painful! Aargghh! Thankfully I haven't had too many so I try to avoid them by taking my potassium pills religiously!
Love you so much Amy! Your videos make my day. Proof that a positive light can be shed on any situation 💕 thanks for sharing your life with us! Love from Canada♥️
Emily Van Zyderveld and thank you for all your love and support ❤️❤️
@@amyslife4457 you deserve all the support in the world💕
Been a crap day. It's good to see your face. Thanks for the vlog!
Hope you get feeling better soon my dear! And you haven't let any of us down and you never have to apologize for anything ! You are truly an inspiration to me and alott of other people!
I just want to say thank you for being real and explaining everything like a real person not an internet star! 😘 I don’t have any illnesses but I am an aspiring doctor so this is very helpful!
Nina The equestrian aww thank you! 😊
Amy's Life np!!♥️
I’m glad you’ve gotten your infusion and that you’ll be all set for your hip surgery next month!!! Sending lots of love that everything goes well and that you have less days where you struggle. Everyone has those days, but if we could all not have to deal with days like that, it would be such a blessing.
I LOVE Monte Carlo’s too! Crunchy caramel tasting biscuit with creamy icing encased in chewy (?strawberry/raspberry) jam is just 2 die for! I try to avoid them, as I can easily eat a couple-but I pay for it!
Thank you for your words. I have ms and have been having lots of frustrating days, so thank you? And your nails are so pretty!
I have spinal stenosis and my neck is in a lot of pain today. So yeah its one of those days for me too. Ughhh.....
We call tracksuit bottoms - tracky dacks or trackies
Your intro was so reassuring. Sometimes I feel bad for having days like that when nothing is wrong (I suffer from OCD but it hasn't been bad for a while), especially when there are people like you who do an incredibly job of facing whatever their personal struggles may be every single day. I try really hard to keep a good perspective of that, but some days are just rough for no reason and you're amazing for acknowledging that and helping everyone feel a little better about those days.
Stay strong and amazing, Amy! ❤
I have that with my left knee, I turn over and wham, out pops my knee cap, chuffin hurts like hell. I've had it in a brace for three weeks, I've now got to see a surgeon, hope I ain't got to have another op, just getting over my gallbladder surgery. I love watching your videos, you are such an inspiration to me, you deal with so much, you inspire me to fight on and to stay strong. Love you hun xx xx from jules in the UK
I'm currently trying to get my own diagnosis (we are thinking Lupus) and I've been having some really rough days. Today I pushed myself too much and ended up in a lot of pain. I love watching your videos and hearing you be so real about bad days and how it's okay to have them ♥ Thank you for being such an inspiration!
Only just had chance to watch this.. on the day I won the hot water bottle as well.. so happy, thank you so much. Hope Tom’s wrist is feeling better today. Sending loads of love from the u.k xx
I have been through hard times at school and with friendships so watching u has meant that I can carm down I love you Amy
I had to have a few iron infusions after my transplant 2 months ago & they truly helped me feel so much better! I am praying your surgery goes good and you heal well & fast! 💜
I like how you got new clothes for your surgery. Treat yo self. I did the same thing when I had a week long video eeg.
Elizabeth Wheeler haha it’s the little things in life right 😂😂
Can I just say hats off to you for still vlogging with no makeup on with what may feel like a million spots popping out, I would never do this personally especially if I had lots of followers, but thank you for embracing yourself despite that ☺️ great video again!xx p.s sorry for pointing this out but just wanted to say thank you 🙊
I love your nails so much! Poor you for having such a tough day, but definitely you're okay having a day being angry or upset! Glad you feel better the second day. I hope you stay warm. Poor you almost choking like omg, I have a fear of choking. Heal fast Tom. Day 3: I'm so glad you're feeling better. What surgery are you preparing for? I'm so sorry to hear about the your EDS effects when you sleep. I'm glad your iron infusion went relatively well! Glad you got some new comfy clothes. Hope your tummy feels better soon. Goodnight Amy ❤❤❤💜💜💜💜💓💓
Thank you for being you and sharing your story and thank you for saying that it’s ok to have bad days because sometimes those things happen and you just feel like you understand nothing but to have someone else inspire you and tell you it’s ok sometime you feel better. Thanks Amy!!
XoXo
Maddie
I have those days because of my heart failure. I don’t have what u have but I suffer as well. God Bless You ♥️♥️♥️
I so understand, I have some serious medical issues looking at at least 2 surgeries maybe more, then was in a car accident on way home from Dr. and can’t work and waiting on judgement from my disability hearing yesterday. Love, hugs and prayers sweetie💗🎀🥰‼️
You're literally such an inspiration to me omg. You're so strong and I've just recently st as rted watching you and omg. Best decision ever to subscribe to you. I really hope to get your merch soon! Much love sent your way 💖
its normal to have some days that suck,always look forward to better days:)
Why’re they not using your Hickman for the infusion? About the choking on the candy, that made me laugh so much coz I’m like that too I’ve survived 14 intimations, 2 cardiac arrest and one time being clinically dead for almost 30 min, and I breathed in some root beer and couldn’t catch my breath, I said to myself “this better not be what takes me out! A flipping root beer!” 😂 😂
Kimberly Hayes my team don’t like to use my line unnecessarily, it’s less of an infection risk to use a normal cannula rather than accessing my line x
Ah I see, I have two central lines that are used every time I have anything done because it takes 5 to 7 hrs to find a vein on me. So I was just confused but you’re right different places, different protocols lol.
I just found out today that my fur baby (kitty) has cancer, and have literally been crying all day. I just needed a day to stay home, and snuggle my baby.
Wow you guys get those too? We get them in the lower mainland (Vancouver British Columbia area) it’s normally (here anyway) scaring the Chinese immigrants into thinking they need to go to the Embassy
I live in Australia, Monte Carlo is the best!
Monte Carlo has been around for years in Australia
I remember them in my teens
Now I am 50
Very yummy 😋
Yep they are called Monte Carlos, they have been around forever in oz. nice to dip into a cup of tea
2:00 - honestly needed this been such a rough day and just struggle so much sometimes
You are so strong and inspiring!! Love you
Bless you xx. It's perfectly OK to have a bad day I think you are a amazing person and hope you are feeling a lot better. Sending all my love and positive energy from the uk xxx
Was having a bad day also, more so mentally. And watching your videos and following in on your day and just chatting in your car and stuff makes me feel like I have a friend which in then makes me feel a little better:) love these vlogs! Thank you for taking the time out of your day to include us!
Wow I had one of those days today thank you for posting this today.
I have fibromyalgia and severe nerve damage on the whole left side of my body and my hips and lower back spasm a lot sometimes even give out j me and I can’t even stand up but I don’t think it compares to the pain I’m sure you endure from your joints popping out all the time 😭
Oh gawd, flashbacks of that time I almost choked on a hard Lifesaver candy when I was a kid. It's seriously the only memory I have of my trip to Disneyland.
Stay strong. Hope everything goes well for you in surgery. I will keep you in my prayers lots of hugs
Good luck with that surgery! I have never had surgery in my life and I couldn’t imaging going through something that intense.
Hi amy I have a question I don’t think you’ve answered before but could you explain how your pumps work? Like why do you need them for tpn and fluids but there was none for the iron? It just spiked my curiosity a bit.
I love you videos! Keep on being so amazing 💕
ilivetobellydance with iron they just use a gravity bag and they can adjust the flow with the giving set depending on how long the infusion goes for but with my TPN & feeds it has to be a set rate so it doesn’t run too fast or too slow, so I use the pumps to make sure I’m getting the correct dosage per hour! Hope that makes sense. Technically you could use gravity bags for TPN & feeds too but it would be just too difficult to make sure I was getting the right amount 😅
Amy how have you never had a Monte Carlo before!!!!! 😂 oh bless you
I’m glad you like them, they are one of my favourite biscuits 😋 Are you able to drain all biscuits through your tube?
Rosie mostly yes there’s not really any that I can’t drain, most biscuits I’ve had anyway are usually drainable 😅
thank you so much for your intro, i really need to hear your words today! wishing you all the best!
Amy thank you 🙏 as always for sharing the good times and the not so good days. Good thing Tom came along at the perfect moment to uncooked you. Love ❤️ love you guys to bits.
What foundation do you use it looks beautiful. Also you are beautiful without makeup
Magneato from X Men can use the iron in people’s blood to manipulate their bodies so you aren’t wrong there 😂😂
I would like to voice a concern I have had. I am not a germophobic, but, I do know germs are not your friend. Wondering if you realize, every time, anyone walks into your home, they are putting everything they walked on, on your floors. When you use your wheelchair, you are putting it on your wheels and your hands, if your the one rolling it around. I just see how important it is, when you do your TPN, yet your walking on the floors, with your shoes, socks ect, with all the outside yuck on them. You might, want to think about making everyone take their shoes off, right inside the front door. What with it being winter in Australia, and colds and flu going around (as it always does in the winter} just wanted you to take extra precautions, especially when your gearing up for surgery in June! Sending you nothing, but loving, healing energy!!
I dont miss getting iron infusions. I would always get an allergic reaction so they would fill me with benadryl and slow down the iv. I would be there for at least 8 hours.
Apparently I've started cracking stuff back in while I'm still asleep and actually waking my partner up instead haha, ooops!
I love Monte Carlo biscuits!!! You made me crave them now haha
Omg I remember getting my first ever iron infusion, I bled so much when it went in and came out LOL , looked like I got stabbed , I couldn’t eat during it though or drink anything :(
Lol there was chronic pain commercial before this vid
Hf10 anyone?
I have an hf10!
Oohhh my hip 😂 that made me laugh so much ❤️❤️ good luck xx
Monte Carlo's are my absolute favorite biscuits
Yes, they are called Monte Carlo. I love them! Don’t they have them in England? Kingstons are good too. I suppose Arnotts was an Aussie company...P.S. you are such trooper Amy. Best wishes for your surgery preparations. 💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕💕
Well said 😊
I love you Amy! You inspire me everyday!
Does it ever creep you out that the blood you receive used to be in someone else ??
We live you girl
Have a wonderful day 🦋
You and Tom are sooooo cute 😊😊😊😊🥰
I have Iron overload disease. I have to carry a letter from my hematologist staying this because I was set off metal detectors off (sigh)
Hey Amy I don’t know if u know but ur helix piercing jewellery is turned the wrong way in this vid
What’s the difference between a infusion and a transfusion?
Lucy x infusion means that the IV is infused from an substance so things like saline, iron etc and a transfusion is somthing that’s transferred from one person to another so for example blood. Hope that made sense 😅
Amy's Life thanks ☺️ I get it x
have they tested you for classical EDS you seem like you have that rather than hypermoblie because you have more severe issues than hEDS
Lucy kate u actually found out recently that I wasn’t tested for vascular or classical and my doctors want me too because I symptoms from both and HEDS 😩
you are so totally inspiring. Love your vlog.
Sweet dreams
Both you and Tom
Love you both ❤️❤️
How come your central line can’t be used for the iron infusion too? Is that kept solely for TPN and fluids? Sorry I don’t have any experience of central lines excluding on person on TPN.
Best of luck any I thinking of you big hugs keep strong
Love both you and Tom always ❤️❤️
You are so strong Amy ❤❤
lv your videos was having a rough day due to my illness you cheered me up question were do you buy your masks
I love you so much x your so inspirational
Your amazing Amy!!! i'll be sending a letter to you soon. And when you get it can you please let me know in one of your vids? thanks. ❤️❤️❤️
Monte Carlos are my fav!!!
Monte Carlo biscuits are the bomb! 😋 yum
Luke Dawson agreed! 😋😋
Meeeeeee lmao choking on candy 🍬 oh lord 😹😹
Raven Thunder ahaha 😂😂😂
Amy's Life that’s when it hits u the worst when ur trying to relax in bed smh 🤦🏻♀️
I have been meaning to ask. I cannot remember if you mentioned it. Do you have autoimmune disease? The reason I ask is because the last few years I have anemia and take iron. But for a few weeks I have had unexplained bruising and they believe it has to do with that. And then I see your video where you need an iron transfusion.