You’re such a strong, beautiful and brave person. You and your family inspired me and I believe lots of people here hearing your story are inspired. Thank you for sharing your story.
She has a nice figure and I love how she looks with the blonde wig. I think butterfly skin it's one of the most brutal conditions to deal with but she seems to have a great support system and is a great spokesperson for it!
I agree, EB is such an awful and painful condition yet this young woman handles it with such dignity and grace. I had a 7” non- healing wound on my back after having surgery. Dealt with an open wound for over 2 years. Had constant infections, painful weekly cauterizations and could not sit down for years as it would reopen the skin that was trying to heal. I cannot imagine the pain this brave lady has to endure on a daily basis. She is the epitome of strength! Such an inspiration.
@@AshCupricYou are a strong lady as well to go through so much pain. I hope that your wound won't reopen and you are going to have an amazing life with no problems. People like you are an inspiration for many to keep going. You are also very pretty!
She's the 2nd person I've seen with This disorder,and I simply can't imagine how miserable she must be everyday. I know people say this a lot, but seeing things like this really put things I to perspective...
Imagine being her...would you like to read about yourself in YT comments, how "miserable you must feel about yourself"? Even if itv was meant as sort of sorry and support? I wish people had more sensitive choice of words...in general.
@@Numba1TacoMan You have to be extremely miserable yourself to make fun of someone who has a condition that ruins their lives. She is extremely strong and inspirational to endure this condition and to keep on going. Maybe you should get off the Internet and think about yourself and who you are.
What a loving family she has. She’s still very beautiful outside and in side it take a strong and amazing person to go throw something like this I wish u all the luck in the world ❤
Look!! You must be one of most strongest people in this world 💪💪💪after all you were through you did not give up!!!you should be proud of it you!!! seems to be sweet & kind person so pretty ❤❤❤ when i see people with a different conditión "dont see any diferent from the rest of humans at least to me EVERYONE IS THE SAME RESPECT & LOVE FOR YOU 🤗🤗🤗!!!
Все его очень ждут... Посмотрите на Настю Подосинину и ее маму Светлану (погуглите). У Насти самая тяжёлая форма этого заболевания, она, скорее всего, до возраста Саньи просто не доживёт, уже чудо, - рук ее мамы и иностранных врачей - что до сих пор жива. Пока что есть только какая-то мазь в Америке, но ещё непонятно, как достать, она недавно создана. Настя с мамой, конечно, очень хотят суметь дождаться того момента, когда смогут ее попробовать.
My friend has EB but not to this degree. I can't help but notice how much she and this woman look alike tho! Larger nose, thin lips and small chin. Are there facial markers with EB?
Praying the Drs will learn more of your condition and can treat it more effectively🌹🙏❤️🩹. Hopefully your pain relief helps. You are a Brave Warrior🌹💃🏻.
Its ok sweetie one day you will be made whole an perfect 🥰 God is going to restore you to perfection just hang in there an ask God to show you your purpose here on earth 🌎 🙏 our suffering is only temporary ❤️ you can do this! I pray in Jesus name you find peace an comfort in him ❤ God bless you
I can’t even say I understand her pain. I have a painful medical condition but nothing like hers. That is horrible, poor thing. I wish her the best and I wish for her to have more good days than bad.
I feel very bad for her but thank god she’s in Norway. If she was in the United States she would be forced into a nursing home at a young age and probably medically bankrupt.
She's such a strong and beautiful young woman, and still so happy even though she's living with such a painful disease. I hope she has a long and wonderful life ❤
I can't imagine god mades such torture. This brave girl and others like her endure the worst pain you can imagine, every day, every second of there life. I am thinking about John Hudson, Jonathan Pitre...etc. Let's sand some love please💛💙💜💚❤
Thank you for showing us what you deal with and the truth about the pain and absolute necessity for good pain management! You are very beautiful, truly inside AND out! Sending you positive energy and love!
You are so strong and brave for enduring such hardship and yet being positive and sharing your story. I pray all goes well for you. You are a Beautiful soul. ❤
What a beautiful soul ❤ Im so glad you have a wonderful support system; your friends seem amazing! Raising awareness for this condition and being a role model for others that live with it is so important and inspiring ✨️ I wish you all the best! And I'd totally be down to hang out with you and your friends, you all seem like such fun people 😊
Good for her for staying strong and having a fulfilling life despite the enormous challenges and other people affecting her growing up. This serves as a stark remember of how easy it can be to forget the things you have to be grateful for.
You are strong and beautiful. You have the power to inspire others to love themselves and I appreciate you putting yourself out there and sharing your story.
full of people who dare to complain about so many superficial things in their little lives while many people with very painful illnesses and symptoms live this life hard, courageously, without saying anything, while some pain must be truly horrible..my heart breaks for these people, it makes me sad and I find life unfair..
Agnosticism is the only answer that makes sense. The "God(s)" people believe in from currently popular religions are fabricated and used to control people, especially women.
May God give u peace,happiness and more blessings upon u.. Such a beautiful brave woman u are .. l think God brought u in this world with a purpose and u are living it now ❤by teaching ourselves to be happy.. And acceptance.. l love u❤
Sanja, when I look at you, I see someone who is brave, loved, and interesting. I feel curious about you, not your disease - what are your favorite things, do you have a hobby, your favorite places, etc. Those are the things that friendships are built on, and that make you unique.
Sanja, so feel for you sweetie, wish I could take a part of your pain!!! Wish you more than the best and pray that a solution will come one of these days!! Do not loose hope, dear heart!! Lots of love from Belgium, Pinkie XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
You are a beautiful and strong woman! You are such an inspiration. You handle such a difficult/ painful condition with dignity and grace. I’m wishing you all the best!
I have eczema and there is no cure, I'll have it for life. People dont like hearing it but there truly is always someone who has is worse. Mine makes me miserable and I have open wounds. I have it worse then some. Some people only get it temporarily. I dont have a protective skin barrier. I can relate on a less severe scale in comparison to her. But I can certainly relate to the pain. Eczema is painful, doctors have no answers to how skin conditions relate to pain receptors. My heart goes to her, what a life to live.
От экземы нет лекарства только у обычной традиционной медицины, а у медиков с альтернативными разумными подходами экзема прекрасно лечится. Найдите для себя грамотного врача нетрадиционной, альтернативной медицины. Будете продолжать "верить в науку" и evidence based medicine, экзема действительно будет с вами есть жизнь.
hi thank you sweetheart for sharing im a mother of 3 grown sons just hold your head up high you have nothing to be ashamed of im glad you have a good family and friends stay strong🕉🙂
I feel so much for her, growing up in hospital and countless ER runs with a rare illness can be it's own type of hell. An heaven knows I wouldn't be here if not my Mom and fiancee. I can't thank them enough for that. Though I feel immense guilt as my illness cost my mom her retirement, something I can't ever fix.
How ironic, the person with the thinnest skin actually has the thickest skin. I initially felt sorry for this beautiful brave soul, but this woman is a amazing. As a person with several critical chronic illnesses, it’s not easy to be a 3D animated person when your in such physical and emotional pain. Her perseverance is inspiring. Plz, give a around drinks to her support system without them she wouldn’t be the beacon she is today. Thx for sharing this story
Awwww this poor woman 😢
What a strong person she is to endure this condition day in and day out 🙏🏼
It's sad ey.
Horrific ey.
My heart hurts for her. ❤️🩹
Me to 💔💔
Me too horrofic illness
Mine too ey.
@@azilelaufer9831Terrible one.
Same bless everyone with a different life like me I have only my left side of my heart beating
My heart aches for her but she has to be strong for herself ❤ Love goes out to you !
You are still gorgeous. Inside and out. I would definitely have been your friend at school.❤
My heart breaks for you and anyone who has this condition. I only hope they find better treatments for you. ❤
You are so beautiful and brave! Wish you all the best, you deserve everything in this world 🤍
God bless you 🙏🥰
You are pretty ❤
🥺❤️
I’m surprised she is able to wear makeup bc taking it off seems dangerous? Well I’m glad she can wear it since she wants to ❤
Man, if you ever think yer havin' a bad day..just think again! 😬
You’re such a strong, beautiful and brave person. You and your family inspired me and I believe lots of people here hearing your story are inspired. Thank you for sharing your story.
True, inspired indeed.
Thats nothing lol
Inspiring ey.
Life is just too cruel. I can not imagine how you cope with this terrible condition. I wish you all the best.
Too cruel indeed ey.
Me too i wish her all the best😢
It’s fake
Unimaginable ey.
@@Pack_Watch Fr who the heck on planet earth would have skin that rips like a tissue?? They're literally trying to scare us😂
She has a nice figure and I love how she looks with the blonde wig. I think butterfly skin it's one of the most brutal conditions to deal with but she seems to have a great support system and is a great spokesperson for it!
I agree, EB is such an awful and painful condition yet this young woman handles it with such dignity and grace. I had a 7” non- healing wound on my back after having surgery. Dealt with an open wound for over 2 years. Had constant infections, painful weekly cauterizations and could not sit down for years as it would reopen the skin that was trying to heal. I cannot imagine the pain this brave lady has to endure on a daily basis. She is the epitome of strength! Such an inspiration.
@@AshCupricYou are a strong lady as well to go through so much pain. I hope that your wound won't reopen and you are going to have an amazing life with no problems. People like you are an inspiration for many to keep going. You are also very pretty!
She's the 2nd person I've seen with This disorder,and I simply can't imagine how miserable she must be everyday. I know people say this a lot, but seeing things like this really put things I to perspective...
Imagine being her...would you like to read about yourself in YT comments, how "miserable you must feel about yourself"? Even if itv was meant as sort of sorry and support?
I wish people had more sensitive choice of words...in general.
My best friend 🥰 so proud of you!
She seems to be a lovely Person!
Poor woman I wish I could have a magic wand and stop her pain and condition, the world is so unfair
Whatever dream or wish you hold in your heart,I hope you go for it, brave girl. ❤️🙏
hand her a violin 💀
@@Numba1TacoManthere's always a narcissist in the comments seaking attention
@@Numba1TacoMan or maybe we could hand you a day pass to go outside and touch some grass, troll.
@@-xxMelissaxx- Roses are blue violets are red, your dad is hot and your mom is dead
@@Numba1TacoMan You have to be extremely miserable yourself to make fun of someone who has a condition that ruins their lives. She is extremely strong and inspirational to endure this condition and to keep on going.
Maybe you should get off the Internet and think about yourself and who you are.
This disorder always makes me appreciate my skin. 😢 they’re in pain all the time.
What a loving family she has. She’s still very beautiful outside and in side it take a strong and amazing person to go throw something like this I wish u all the luck in the world ❤
Such a beautiful woman, her bravery to live as normal as possible is truly an inspiration. ❤
What an absolute warrior! Still smiling and striving
Look!! You must be one of most strongest people in this world 💪💪💪after all you were through you did not give up!!!you should be proud of it you!!! seems to be sweet & kind person so pretty ❤❤❤ when i see people with a different conditión "dont see any diferent from the rest of humans at least to me EVERYONE IS THE SAME RESPECT & LOVE FOR YOU 🤗🤗🤗!!!
God bless you. you are absolutely gorgeous In my eyes 👀❤
Poor girl, my heart breaks. Great to see support of her friends and family and elite Norwegian medical assistance.
You're Beautiful 💞 It's not what's on the outside that Matters beauty is from the inside out you're very beautiful Girl😊💕💌💞
You are such an inspiration for anyone who is suffering from painful, chronic illness. My ❤ goes out to you!!
Sending her all the love. What a beautiful human being!
God bless her! Praying for a cure or treatment to help manage this.
Poor thing she is so brave I appreciate her sharing her story ❤
Безумно жаль эту прекрасную девушку. Надеюсь в будущем появится лекарство от этой болезни.
Все его очень ждут... Посмотрите на Настю Подосинину и ее маму Светлану (погуглите). У Насти самая тяжёлая форма этого заболевания, она, скорее всего, до возраста Саньи просто не доживёт, уже чудо, - рук ее мамы и иностранных врачей - что до сих пор жива. Пока что есть только какая-то мазь в Америке, но ещё непонятно, как достать, она недавно создана. Настя с мамой, конечно, очень хотят суметь дождаться того момента, когда смогут ее попробовать.
The deep breath... I heard you sister. Such a strong and resilient person you are.
I’m so happy that she has all these people who love her and support her.
PRAYING FOR YOU AND YOUR HEALING 🙏❤️
My friend has EB but not to this degree. I can't help but notice how much she and this woman look alike tho! Larger nose, thin lips and small chin. Are there facial markers with EB?
I h ave noticed this also. Its a brutal condition and hopefully they will find a cure at best or something that controls the condition. Toot Sweet.
I hope you get really better😓
Nooo she doesn't deserve this pain! God Bless her!!!
Praying the Drs will learn more of your condition and can treat it more effectively🌹🙏❤️🩹. Hopefully your pain relief helps. You are a Brave Warrior🌹💃🏻.
Religion is what is preventing the number one way that doctors could use to treat these type of diseases. Stem cell research.
So inspiring your challenges have brought us all closer together Sonia - you have a very special role and you’re inspiring to us all !!!
What a beautiful soul with the prettiest eyes!!! ❤️
For en nydelig og sterk dame, du er fantastisk. Heier på deg
Its ok sweetie one day you will be made whole an perfect 🥰 God is going to restore you to perfection just hang in there an ask God to show you your purpose here on earth 🌎 🙏 our suffering is only temporary ❤️ you can do this! I pray in Jesus name you find peace an comfort in him ❤ God bless you
I can’t even say I understand her pain. I have a painful medical condition but nothing like hers. That is horrible, poor thing. I wish her the best and I wish for her to have more good days than bad.
I feel very bad for her but thank god she’s in Norway. If she was in the United States she would be forced into a nursing home at a young age and probably medically bankrupt.
She's such a strong and beautiful young woman, and still so happy even though she's living with such a painful disease. I hope she has a long and wonderful life ❤
❤❤ sending you love and comfort 🤲
Sending you waves of calm love🙏✨️
I can't imagine god mades such torture. This brave girl and others like her endure the worst pain you can imagine, every day, every second of there life.
I am thinking about John Hudson, Jonathan Pitre...etc. Let's sand some love please💛💙💜💚❤
Thank you for showing us what you deal with and the truth about the pain and absolute necessity for good pain management! You are very beautiful, truly inside AND out! Sending you positive energy and love!
🙌🏽 this! 🙌🏽 Good pain management is so critical for so many patients with all kinds of conditions and it's sadly so hard to come by.
You are so strong and brave for enduring such hardship and yet being positive and sharing your story. I pray all goes well for you. You are a Beautiful soul. ❤
What a beautiful soul ❤ Im so glad you have a wonderful support system; your friends seem amazing! Raising awareness for this condition and being a role model for others that live with it is so important and inspiring ✨️ I wish you all the best! And I'd totally be down to hang out with you and your friends, you all seem like such fun people 😊
Such a strong and beautiful person!
This is hard to watch. Heart wrenching,
Најгора ствар је сажаљење,мислим да је то више нервира него ишта,Бог нек је чува и да јој снагу за све❤
What a beautiful woman ; such a strong resilient queen !!
Good for her for staying strong and having a fulfilling life despite the enormous challenges and other people affecting her growing up. This serves as a stark remember of how easy it can be to forget the things you have to be grateful for.
You my darling are beautiful inside and out. They 9nly stare cos they are in awe of your loveliness!
She has to be a tough gal to live with that condition. I’m so very glad she has supportive friends and family. She is beautiful.
Oh it'd be so amazing if we could find a cure for you In this lifetime.
You are strong and beautiful. You have the power to inspire others to love themselves and I appreciate you putting yourself out there and sharing your story.
Come to america, we have stem cell transplants that has proven to cure a great majority of EB.
Lord heal this woman in the name of Jesus
I truly feel for her. What an amazingly brave and beautiful woman 💖
I really feal terrible for her pain seriously
full of people who dare to complain about so many superficial things in their little lives while many people with very painful illnesses and symptoms live this life hard, courageously, without saying anything, while some pain must be truly horrible..my heart breaks for these people, it makes me sad and I find life unfair..
This is when I question God's intentions, this is heartbreaking,
Agnosticism is the only answer that makes sense. The "God(s)" people believe in from currently popular religions are fabricated and used to control people, especially women.
Poor thing. But why isn’t her nurse wearing gloves all the time.
I was thinking the same thing, like it'd be so easy for any germs to get transferred into the open wounds!
May God give u peace,happiness and more blessings upon u.. Such a beautiful brave woman u are .. l think God brought u in this world with a purpose and u are living it now ❤by teaching ourselves to be happy.. And acceptance.. l love u❤
So sorry what you going though 💔
She is TRUE ｓｔｒｏｎｇ ｐｅｒｓｏｎ．
Sanja, when I look at you, I see someone who is brave, loved, and interesting. I feel curious about you, not your disease - what are your favorite things, do you have a hobby, your favorite places, etc. Those are the things that friendships are built on, and that make you unique.
She is amazing and strong and beautiful. 😊😊😊
So much inspired by you Sanja !!May God bless you and takes away all your pain .
Sanja, so feel for you sweetie, wish I could take a part of your pain!!! Wish you more than the best and pray that a solution will come one of these days!! Do not loose hope, dear heart!! Lots of love from Belgium, Pinkie XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX
She seems like such a fun and sweet person!! ❤ she’s adorable 🥰
You are a beautiful and strong woman! You are such an inspiration. You handle such a difficult/ painful condition with dignity and grace. I’m wishing you all the best!
I have eczema and there is no cure, I'll have it for life. People dont like hearing it but there truly is always someone who has is worse. Mine makes me miserable and I have open wounds. I have it worse then some. Some people only get it temporarily. I dont have a protective skin barrier. I can relate on a less severe scale in comparison to her. But I can certainly relate to the pain. Eczema is painful, doctors have no answers to how skin conditions relate to pain receptors. My heart goes to her, what a life to live.
От экземы нет лекарства только у обычной традиционной медицины, а у медиков с альтернативными разумными подходами экзема прекрасно лечится. Найдите для себя грамотного врача нетрадиционной, альтернативной медицины. Будете продолжать "верить в науку" и evidence based medicine, экзема действительно будет с вами есть жизнь.
Hoppas du får må så bra som möjligt ❤❤❤varma kramar
🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻❤️❤️❤️❤️
May God the holy spirit healed you🙏🏻🙏🏻🙏🏻🙏🏻
Ouch.
Life is Precious
I hope she finds someone to spend her life with
i feel so sorry for you :'( i wish you all the best and stay strong 💘
Pray for your condition. You are amazing, a very strong person. God bless you and keep you.
I wish there was some type of cure or just anything that can help her get rid of it !!!😢😢😢😞😞
She is such a beautiful woman. I admire her perseverance through such a painful condition to have as normal of a life as possible.
She is love,when she cries, I cry, oh honey!
I don't feel sorry for how she looks because she is very pretty even with her condition but i DO feel sorry she has to live in constant pain
God bless you
Poor girl.. 😢
Oh no! May God heal her!❤🙏🏾✝️
hi thank you sweetheart for sharing im a mother of 3 grown sons just hold your head up high you have nothing to be ashamed of im glad you have a good family and friends stay strong🕉🙂
❤ u sis😢 from northeast 🇮🇳. We all r with you🙏
My nephew was born like thst he lived to be 2 months old
I feel so much for her, growing up in hospital and countless ER runs with a rare illness can be it's own type of hell. An heaven knows I wouldn't be here if not my Mom and fiancee. I can't thank them enough for that. Though I feel immense guilt as my illness cost my mom her retirement, something I can't ever fix.
Thank you for sharing ❤❤❤❤.
Please please keep sharing we love you ❤️.
We are praying for you. God bless you and your family 🙏🏽
You're so inspiring ❤😊 stay healthy and happy always 🙏
I so Hope and Pray for help and a cure for what she has and Cancer's. I pray for blessing to her.
How ironic, the person with the thinnest skin actually has the thickest skin. I initially felt sorry for this beautiful brave soul, but this woman is a amazing. As a person with several critical chronic illnesses, it’s not easy to be a 3D animated person when your in such physical and emotional pain. Her perseverance is inspiring. Plz, give a around drinks to her support system without them she wouldn’t be the beacon she is today. Thx for sharing this story
Your still amazing don't ever give up