China's Influence (Living with Wolf-Hirschhorn Syndrome)
HTML-код
- Опубликовано: 31 май 2024
- China is diagnosed with Wolf-Hirschhorn syndrome. As a result, she is missing part of her 4th chromosome and is nonverbal.
This hasn’t prevented China from influencing those around her with her innately loving nature.
SBSK's Socials:
/ specialbooksbyspecialkids
/ specialbooksbyspecialkids
/ chrisulmer
I'm surprised that no one has pointed this out yet but if you pay attention to her eyes at 9:39 you can see that she's actually blinking along to the music. You can tell that she really feels and anticipates the cadence. It's so fascinating.
Yes, absolutely! I thought the same when I saw her.
Up
I noticed reading your comment, amazing!
Maybe it’s her way of expressing her enjoyment of the music, just like someone would dance or bob their head. She blinks instead.
Yes! I noticed that too. I came to the comments to see if anyone else noticed ☺️
I appreciate her dad’s honesty about their struggle to cope with their original expectations not being met. And it was also nice to hear about China proving then wrong and succeeding in her own way.
Me too! It's a challenge for everyone, for sure... being blessed with special babies brings up all kinds of emotions throughout the family unit. I'm so grateful to everyone for sharing and being so candid so as to teach the world how to cope💜
That's not her dad. That's her brother.
YES!!!!
@@alicejohnson4363 it's her dad
@@alicejohnson4363 Her brother was the first guy with her if you watched the whole video you will see her dad.
China looks SO much like her dad! I love their hair, it's gorgeous 💖 I hope China and her family are doing well!
I said the same thing the resemblance is astonishing
She also looks like her Mom, pretty
Everytime I see Chris's interactions with these children I just get the feeling that he is an angel of love as he shows immense love and compassion for them. I just felt like this young girl was absolutely Smitten by Chris. This husband-and-wife did an awesome job raising their son as evidenced by the love and care he has for his sister.
That is so nice! I think he has an amazing personality and a genuine kind soul. 💖
Did you notice how China was staring at Chris while he was playing the guitar? Yes, clearly she was smitten by him.
He is a very good soul...just like everyone he meets and interviews...pure love and kindness radiate from him. It would be a true pleasure to meet him.
It is adorable how China adores Chris. My favorite part though is her with her brother. It’s really neat to see the love between them ❤
They way she looked at Chris while he was playing guitar, got tears in my eyes. God bless you sweet girl.
I noticed that right away too. Wow, how sweet was that. So many people think a child with severe disabilities are a burden, or abnormal or whatever. But I tell them, no, they are not. They are a blessing in this world, and to be cherished!
Same
My sister has this syndrome and is 61. She is always happy and is doing well.
I can't stress enough how important your work is. My sister has mild cerebral palsy, and although she has pursued higher education in multiple fields, she often expresses frustration at her limitations, e.g., fine motor skills. She always studies so hard and has no problem passing classes, but when she enters into practical experience situations, she becomes very anxious and loses control when she needs to be calm and cool. She always excuses herself by saying that she is ill, but in reality she is just dealing with that incredible anxiety and helplessness that goes along with disability. How can I help my sister without making her feel helpless?
I think you may help her understand that everybody has strengths and weaknesses, and the fact that she's anxious about practical sessions means that she cares and it shows good effort and a drive to succeed
I think you should help her focus on things that she can do independently by herself and maybe find more ways that she can be independent. If her issue is not being able to have control over what she can't do, then we just need to help her be creative. Writing about whenever she is anxious and when she is anxious may also help. It helped me to really figure out what's going on and fix whatever I need to do. She is smart, I'm confident she can find a way.
I volunteer at a group home and one of my favorite residents is a 43 year old woman with Wolf-Hirschhorn. As I watched this video, it was like watching her. She's absolutely the sweetest girl, and loves her music too. I have made a playlist of her favorites, and we "rock out" to them together. China is simply beautiful and lovely.
My third cousin has this syndrome too!! I've never seen someone else with her condition and they actually look alike a bit but they have different personalities. Maggie loves to talk !!
My niece, too.💜
The brother and sister love brings tears to my eyes. Mum too. What a beautiful family!
Brother is soo cute too🥰
Her eyes when u play the music..she blinks with the beat!! Seems like music is a way for her to communicate and bond with you ..just beautiful
You can tell in China's eyes, she's in there looking out and liking what she hears and sees. I'm sure that in the inside she is reacting but it just doesn't make it to her facial muscles all the time or her vocal chords. She's beautiful. Lovely family.
Her Brother is a special guy: so sweet and beautiful.
I adore dad’s truthfulness of the situation, but that he is happy she can come kayak and do water slides with the family. And as Chris reads her a book, she has her elbow on him, and gives him a high five. Subtle as she is on things, means the world to her family, since it’s her way of communicating
What a wonderful advocate her father is. Beautiful family.
I have no idea why ANYONE would"thumbs down" any of these interviews!!
Thank goodness RUclips just did away with thumbs down altogether 🥳🥳🥳
@@tantrika.exotica yeah i’m so happy
The way Chris interacts with the children makes me cry. Not in a sad way. He’s just such a wonderful soul. 😁💜
What a family! Amazing! Her mother is soo beautiful! Dad is kind and positive! And her brother is an each little girl dream brother)) guys, u r something truly special!
Dad's power mullet for the win!!
"Leaning on the everlasting arms'. One of my favorites too. China is beautiful, thank you
I love China's parents especially her dad she's such a sweet man and her mom is so wonderful
Bless her little woven heart. This whole family is brilliant in the approaches they use to improve things in the life they live together
She was so amazed by Chris! How cute! Aren't we all? Beautiful family 💕
Chris you play the guitar beautifully and I love so much how you incorporate music to connect with the very special people you are fortunate enough to meet and interview! So special to watch! Thanks ♥️
Chris is such a kind-hearted person: we need more people like him, who make the effort: a lovely video, and a lovely family.
I always find magical how music calms and interacts with so many kids and adults with disabilities
I worked with someone who has this syndrome and it is so nice to see representation of it. The girl I worked with was verbal and also used AAC to talk as well.
You’re a kind hearted man, I wish we had young men like you.
One of my favorite vids of all time always come back to it. The family is so sweet you can feel the love radiate thru the screen. All the health and happiness to them, love from the east coast!!
Your videos are extremely educational the world is not taught about all these disabilities and disorders. We only know the most commons ones. You are teaching the world about the differences among humans. This information is not taught to us as we grow into adults. Lack of understanding is one of the reasons why people stare at people whom are different but feel more ignorant to ask what is thier condition. This platform gives viewers a chance to expand their knowledge of all the medical and physiological differences that effect humans.
Great video. You are so loving and respectful. As a grandma of a child with CP. Zak is 18 and has never walked, is verbal but hard to understand, only uses his left hand. He graduates in May. Thank you for all you do.
She's beautiful, what lovely eyes. My favourite channel.
Oh my goodness…and he plays the guitar! Could this guy be any more amazing! ❤️
We have 2 boys. One affected by autism. He's high functioning but impacted.. We hope he achieves his dreams, and finds love, and all those things that make a fulfilling life. We help and support him as much as possible. I just worry about when me and his mom have passed..
If it makes you feel better, I have high functioning autism and have a doctorate degree, a hybrid job that allows me to work from home when needed, and I live independently. The academics came easy but I did have to work really hard at other things. Keep surrounding him with love and support. ❤
Love how much she enjoyed listening to you play. It would of been like a one on one concert for her. Very special. Keep doing what your doing. Changing people's perspectives on people that are different/ unique.
Such a sweet family.
China really responded to the music she just lit up! Music heals it's a blessing 💗😊💗
Chris is one of my favorite people,always kind and considerate and proving to the world we are all special in our own way.God bless
I think China really enjoyed when the guitar was played for her. She probably has a lot of thoughts when shes hearing music like when her mother plays the piano.
I love this! Chris is such an amazing man. I wish I could meet him.
,
,/❤️❤️❤️
Yes, come play some tom petty on your guitar for us chris! Seriously though, this man has done some good in this world and I can't imagine all of the lives it has touched.
This makes my heart smile 😊 she is wonderful and very special I have 3 teenage boys with special needs i used to feel down about them and wonder why but now I’m focusing on the positive things and advocating for them. It can be challenging but it’s worth it.
When the dad talks about how he and his wife used to be sad that China will "never have a best friend, never get married, never have a baby" etc. It made me think... You could say those things for a lot of "typical" people, too. You never know what a person will be or do or have in life. Nothing is guaranteed
That does happen for some people without those struggles, but the possibilities are there in a way they aren't for some
China receives love and appreciation for who she is by many people and this is something that many people don't ever experience, being with disabilities or not. Her life has a purpose. She does not need to get married or have children. Many of us are single with not many friends around as most are married with kids. Watching SBSK's amazing kids gave me a purpose in life. These children are a marvel to me for what they can accomplish every single day. Nothing is for granted, we can be in this situation too one day as we will grow old. The parents are also an excellent source of strength. All kids are angels. May you all be blessed.
I agree with her mom. China knows what is going on and understands more than most people probably give her credit for. She makes eye contact, attempts to communicate, and even plays the game with her brother when she wants a drink. Lol
Yes. And that's why I think some of what was said in front of her should not have been said, like when her dad quoted her mom as saying China will never have friends. I have a high opinion of China's father-he seems warm and loving; I just wish he'd be a bit more careful with his words around China.
They really should be more careful, yes. She may not be able to talk but that doesn’t mean much.
She has a really beautiful smile and it makes me smile. Hope you're doing well China 🌺
Beautiful China x shes stunning inside and out. Shes defo stolen my heart. Such a lovely family also, your al so blessed to have eachother. Thanks for sharing your story with us
This family makes my heart swell. There is an abundance of support and love and they seem to know how to fill their own cups while being a close family.
There is so much love for China that radiates out of this family, and so much joy! This is probably one of my favorite interviews… especially as a fellow book and music lover! Thank you for spending your time with us China! I would love love love to see another video with you and your family in the future :)
Chinas brother really loves her and he wants her to be happy!!! You can tell that this family are really beautiful people😍😍😍I bet God is so proud of them❤
Such a beautiful soul. God loves you so much China.
I love China's smile when her mom plays her favorite song. 🥺☺️🥰🤗💝💐🦋
Your Rendition of the Beatles “BlackBird” was BEAUTIFUL.
She has an amazing supportive family
Thank you Chris for letting us meet beautiful China. She's also lucky to have her very loving brother and of course her dedicated mom and dad. Chris is the best friend anyone can have. China is the sweetest girl .I love her !
I’ve learned a lot from this and I wanna say thank you
Music is something that everyone understands and enjoys. It's something everyone needs. It helps us communicate with eachother
That moment when you’re playing guitar and Chine look’s you right in the eye was so special. You could see the connection being made.
When you played blackbird her look was priceless 😍😍😍awe
Very wholesome stuff. Bless this family. 💜
Her dad is so lovely!!!
Beautiful family
What a living doll...I feel like I want to protect her myself.....
What a beautiful young lady and loving family. ❤
I think about China often and love coming back to see her enjoying the guitar. Sweet girl 💚
Looks like Chris' talents are endless.
Lovely family. A lot of love there. Lucky China.
Looks JUST like her dad WOW that resemblance is incredible! She's a lovely young lady too I hope she's doing well.
When Chris was playing, she was blinking along the music!
China is her dads twin! So wholesome!
I love her father's hair!
What a beautiful family, I hope she is doing well.
Sweet beautiful girl 🥰 and Chris has such a perfect way with children! Love learning about all these great people and children ❤️
China and her family are so beautiful and such wonderful souls...truly earth angels. When she smiled while sitting at the piano with her mom, her smile lit the room up ! :)
I'm so glad the father brough up their struggle. I know people say they are blessed to have a child whatever your child is going through and all is good and everyone is happy, but I actually can't even imagine how difficult it truly is to be in the family's shoes..
I have certain songs that make me happy. Of course China would have particular songs she likes! I'm glad she's able to connect through music and I'm glad she has such a wonderful, loving family.
I have wanted to say this for 2 YEARS! This family, like all the families we're introduced to on here, are amazing. We should ALL strive to live our lives enjoying making memories and celebrating people for WHO they are not what they can't do!
its like having a beautiful sweet child for your entire life! what a lovely family❤
Just saw this. How wonderful for her to be so loved
I'm 22 as well 😊🌱 I love these videos so much. I end up tearing up every time
Ow, how sweet this family! True love in their eyes God bless you!
So True! We are Christians and we honored that God gave us beautiful China!
That little smile!! What a gift that was!
Chris: God bless you, your patience, your heart.
Such a beautiful girl with an equally beautiful family. They seem to take such great care of her and you can see the love. So pure.
China is really sweet and all her family is so caring ❤️ love them 🥰
So greatful for this show I love all the kids and adults I am disabled and this inspired me
and your precious china is in my heart, i am a chinese, she is adorable, praying for your beautiful family. God bless.
China's dad got it Wright when he said focus on what she can do
Chris is the GOAT I swear this man is awesome!
All these videos are so good that I don't wait even a second to hit the like button.
In all cases we realize that the human brain does not give up. Despite the limitations, he tries to perform the functions as much as possible, until he overcomes them and advances to the next level.
Fascinating
Thanks!
Love that Chris played guitar for her😊
Ur videos are great thanku we all can learn from ur videos love acceptence is the key to people like this thanku for taking time to do these no matter how different they are they are human beings and deserve respect my heat belongs to the parents and prayes
you are such a beautiful person. *to the maker of this* and to all the ppl in the video. :)
She has a beautiful soul.
I love these videos. Their lives have value and hopefully some might learn that from these
I love the way she smiles even though she is not able to speak but still she is so sweet....i want to be friends with her...she is amazing..😊😊❤❤
Mister rogers spirit is alive in this guy.Nice man
The Hutchinson Family have been an absolute inspiration in my life! China is a true blessing! (Bro. MO)
What a lovely interview for a lovely lady!! China is absolutely gorgeous and smart❤️❤️ I understand the parents’ worries. China will be alright because she is an amazing person who can still experience amazing things. God is with her!
“Therefore, do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble if its own.”
Matthew 6:34
That's the beauty in all of these..
That we meet them who will love us no matter what..who will like us, smile with us.. care.. laugh and hug us no matter what.💗
God bless them all.
Wow. You can really tell they're a family! The resemblance is uncanny ❤