A Deaf Kid with a Rare Syndrome (A Proud ASL User)
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- Опубликовано: 26 июл 2023
- Laynie is diagnosed with CHARGE syndrome, which has caused her to be Deaf. She is a proud American Sign Language user and loves to teach signs to anyone who wants to learn. If Laynie could send one message to the entire world, she would teach everyone how to sign "I love you."
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It will always warm my heart when Chris asks permission to ask if he can talk to the Mom about their medical info. It's such a personal thing - it's a lovely show of respect to ask Laynie if it's okay.
I totally agree. Nothing worse than talking about someone over their head especially someone as bright as Lainey.
Yeah it should be normalised as the bare minimum :]
I love that Chris included so much of him asking how to sign things! I’ve taken ASL classes and still the toughest part when I meet a deaf person in everyday life is feeling nervous to ask how to sign specific words or phrases. It’s a good reminder that we all crave communication and connection and there’s nothing embarrassing about asking for help!
Do you have any suggestions for overcoming that anxiety? Fear of making a fool of myself when I try other languages is a really hard one for me.
I would love if ASL was taught in school! Laynie seems super sweet❤
It was offered at my high school!
@@fruit032Oh that’s awesome! I wish they had it at my school, I would’ve loved to learn! I know a little sign, but only the basics😅
its an option as a language at my school, ive always loved asl and im so grateful i have the opportunity to take it as a class.
Asl is taught in schools in the city...and country...I live in.
My son's school has ASL as a forien language.
I love how Chris got down to Laynie's level and really tried communicating with her in ASL. I really appreciate that with every child he meets, he communicates with them at their pace and using their methods. I wish there was more exposure to sign language in schools, and kids could just learn it as a required language, like French, Spanish, German, Italian, etc. My only exposure to ASL was communicating with a deaf girl I made friends with at a summer camp. Kids learn languages surprisingly fast, and I was surprised how rapidly I was able to communicate with her. I still actively learn ASL because of that girl I met at summer camp, and I hope this video inspires other kids to do the same. Laynie you are amazing!
That's why he is one of the best people in this world. If only more people would emulate him and his actions, maybe our world would be a little kinder 🫶
Not all countries use the same sign language.
Yeah exactly I wanna learn that
@@franceslock1662 yes also that
As a 47 year old hearing son of deaf parents I can relate to deaf people and sign a lot, and I just love this family, and Laynie is just awesome. I am 100% sure you'll get lots of friends. Thank you for a great interview.
I am glad that you sign. One of my teacher's kids would not sign for their Deaf parents and that really made me sad.
Your childhood must have been interesting. How did your parents treat you? Was it strange bringing friends back to your house?
@ImNotSusOk There are several books written my CODAs (children of deaf adults) there's also an award winning movie by the same name on Apple TV (there's another version also from another country).
Anyway, you can read any of those books. There is one book called, In This Sign, which seemed so authentic I thought the author was a CODA, but was surprised that she was not.
Anyway, that is also a movie. It is set in the early part of the last century and the family is very poor and she is the go between for her parents and the hearing world. Anyway, I'm not a CODA, but my stepsons are and I know a few who are.
My husband is Deaf and his ex wife, also Deaf, did not sign to their sons so they didn't learn it. His grandchildren learned a little, but don't live close. They video chat, I'm not sure how! Lol! They did grow up bilingual though and that had its own issues when they entered school. I know some CODAs who only knew sign language and had to learn English later in life, like when they entered school. I know of at least one who needed an interpreter until he learned English.
And knew one child who basically experienced the frustration deaf children with hearing parents experience, except his parents were Deaf and he was hearing so they didn't sign to him and spoke to him, but their voices were unintelligible so he couldn't speak and he couldn't sign. I finally told his mom the problem. Her Deaf friend was there and she had hearing children but they were fluent in sign and could speak and she quickly understood what I was getting at - sign with your son so he can communicate with you. He's hearing and will pick up English very quickly. So sign to him because he can't sign and communicate and that's why he's crying a lot out of frustration to communicate with you! Interesting, yes?
Oh and I've been signing for over 31 years, so unlike the parents here, I can sign everything they were saying without hesitation. I also graduated an interviewing program and did that for s while as a living.
The only thing I find hard is if we're having an argument, my thoughts are faster than my signs and my husband tends to turn his back to me or his head and that's very frustrating because that cuts me off and I have to keep turning him toward me because it's so easy for Deaf people to shut communication down by closing their eyes or turning away!😮😂😂😂 No1 with technically that didn't exist when we met in 1991, sometimes we text fight. Lol!
Last thing, we were included in someone's doctoral thesis about Deaf-Deaf, hearing-hearing, and Deaf-hearing marriages. Our marriage is closer to Deaf-Deaf ones than Hearing-hearing ones as far communication style (really taking time to talk to each other) and the level I go into his world than he into mine.
Hope this answers some of your curiosity. I'm not CODA so I've read their books and asked a few, not too intrusive questions. I used to see the kids a lot at Deaf clubs. They'd be playing and run around and making a lot of noise and sometime I'd yell out - I heard that! And they'd freeze. Always surprised that a hearing person knew sign language and there with their parents!😂 😂😂😂
I also have charge syndrome. I was waiting for the day this channel had a kid with charge. It’s fascinating to see others with charge and what range of disabilities they have. I’m both hearing and visually impaired. As well as others. I’m fortunate that my heart is normal. I’m glad laynie seems to be doing well with her challenges
yea we can tell you hwve it looking at ur account
Keep learning MOM! Don't be a statistic. Don't let her age discourage you or make you think it's too late. It's never too late!
Laynie seems so sweet and fun! And also shout-out to that interpreter for conveying her expressions and emphasis and pace through speech so well
Laynie seems extremely clever and observant. I wish her only the best for her future! Hoping her family can make a collective effort to learn asl! I can imagine it must be quite isolating if you have this sort of language barrier at home.
Yeah, something about it seems off.
@@SelinaCatwdym?
Laynie's reaction to the "What's the best thing about your dad?" is so silly but sweet 🥰
I think ASL is by far the most beautiful and expressive language! I had a deaf aunt and uncle and also took ASL classes so I know quite a bit, but I'm better at signing than receiving... I don't have enough practice talking to deaf people on a regular basis, so I am s-----l-----o-----w at reading signs! Good for the parents for recognizing it is essential they learn to sign because Laney cannot learn to hear, and communication is literally everything! There are lots of video resources online now to learn and hone your sign language skills, do a little every day and it adds up quickly! I hope Laney gets to regularly socialize with other deaf kids, it is so important for her mental and social development!
So nice to meet you Laney, you are adorable and smart! The ONLY thing Deaf people can't do is hear, you will go as far as you want to! Hugs!!! ❤🧡💚🤎🤍🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟
She's really cool, and thanks for introducing her to all of us❤
I recently met a girl on the boardwalk at the beach resort I live at that was deaf and she taught me all kinds of sign language words. We had so much fun together. Her her parents and I went to play ski ball together and won a bunch of tickets that she cashed in for a stuffed animal. She signed I love you to me at the end of our time together promising to stay in touch through her family Facebook. I hope every year she comes to visit on vacation I will have learned more sign so we can talk to each other easier ❤
Lol having the ability to wish for anything and wishing for two cookies is seriously adorable.
Its so pure, it feels like we can see her soul with no barriers
I really appreciate that you ask the kids permission to ask their parents questions. It's so important for everyone to have agency, and I know personally (as a Child of Deaf Adults and disabled person myself) that people who are d/Deaf, disabled, etc. are often spoken over. Especially a problem when interpreters are present, and they talk to the interpreter, or with family present, when they don't let the disabled or d/Deaf person express themselves.
Yep, being talked over sucks. One pediatrician I had growing up would address every question to my parent who was with me. Even ones they would have no way of knowing the answers to. I eventually put my foot down and demanded a new pediatrician, but it was so humiliating. I'm also disabled (though I wasn't till my teens) and while I occasionally allow other one person to make medical decisions for me, it's not very common, and only when trauma history makes it too hard. But that's with my permission and request, which so many people just don't get the decision to make. Everyone deserves agency, even children.
This is one beautiful, loving, and humble family...you can just see every one of their hearts; especially Laynie. One wish, and it would be for only 2-3 cookies; that says everything. This family is doing it right. I know it's hard, excruciating at times, but if I were to meet them in person I would tell them (just like I know every one of Laynie's doctors & teachers have been saying to them all along) to just keep doing what you're doing because you're doing a good job and Laynie is doing great. I wish I could meet them in person. And yes, I do have tears while writing this comment. Thank you to everyone for this video. Videos like this reinforce God's presence in my heart and that he truly does hear. Thank you SO much for your hearts.
I love how respectful Chris always is, not just switch the conversation to her mother like she isn't there but ask Laynie first if it's ok to talk about her. And Laynie, you are a beautiful smart girl, well done in the interview!
When my sister and I were in junior high we had a deaf friend. She was beautiful, intelligent and funny. She could speak but was if could be difficult to understand her speech. This was before computers or smart phones so sometimes she had to write a word, phrsse or sentence if we didn't understand her. She was beautiful and brave, she grew up to be a very successful career woman with a hearing husband and 2 children. It's amazing how she was able to do so well way back in the late 1960s when there was so much less adaptive tech available and it was remarkable that she went to regular public school and was not sent to a school for the deaf. When we hung out her inability to hear was much less of a problem than than you'd suspect, she was just one of the gang, fit right in. I don't think any of us ever thought of her as disabled. Obviously her parents had done an excellent job parenting her. She was really great at reading lips and not shy to give us her sign and noise for what?? If she didn't understand something. I'm really glad that she was mainstresmed and not sent off to a school for the deaf where we'd not have had the opportunity to have her as a friend. I think her going to school with children that coukd hear helped her do really well in a hearing world. My sister and I still say some of the things that became her catch phrases way back when we were friends. We live on the other side of the country and have for decades, my sister is friends with her on Facebook now. Anyway, this young lady can be anything she wants and I suspect as she gets older she'll realize it's possible to have friends that don't sign, she can chat with friends online or in person via their phones or tablets..
Laynie is a lovely girl! Really, the whole family is great.
I really appreciate the parents and their efforts to learn ASL. I worked as an interpreter for the Deaf for several decades. I'd say the easiest way to learn ASL is immersion. This means not using your voice to communicate and only using sign. You could set aside a day or portion of a day to do that as a family every week. You'd also benefit from having other deaf people around which I realize may not be possible depending on where you live. Willingness to learn is an important factor and it seems you have that. I can assure you, the benefits of learning ASL as a family are immense.
Yep, like even just for dinner a few times a week would make a difference. And nobody could get scolded for talking with their mouth full. 😂
So... Did anyone else sign "I love you" at the screen? Or just me?
She is so sweet and so focused on the conversation. I was hooked up all the time!
Laynie is just a beam of light.
What a beautiful family and such bright children. Laynie did an epic job with the interview. 💞
What a beautiful young lady with such a wonderful heart, smile and soul. She is perfect ❤
If the family really wants to be more versed in sign language I think it may be helpful to throw themselves on the deep end and schedule a two week silent staycation where there's no talking or even typing allowed . I bet that necessity could really help speed up the learning process !
Honestly, they don't need to isolate themselves. They just need to connect with the Deaf community, and immerse themselves in its culture.
This one hit me directly in the heart. I just love the stories. I’m a blind musician, working on giving voice to the disabled artist community. So this kind of platform giving voice to these people no matter where they’re from what Walker life they come from. It just blows my mind. Thank you so much for what you do.
Lainey is such a bright beautiful little girl! Her siblings are so sweet. Watching how supportive they are of each other and how they communicate in ASL is so inspirational. What a precious family!
If she could wish for anything she’d want two or three cookies. Those are some achievable goals
❤❤❤❤❤❤ smiled through this whole interview. Learned some sign language as well. It would be awesome if she set up videos for people to learn how to sign. I am right with you girl, 5 million cookies sounds amazing! God Bless this beautiful family. Thank you for sharing your story with us. As always, thank you, Chris and Alyssa, for being amazing and helping each beautiful person get their story out.
What a lovely family. You can almost FEEL that they are SO sweet. Awe! Hug 🤗 ❤
For Laynie's mom, there are really great online resources now, like chances to practice ASL online with video chat groups! I'd say it's even better now than it was before the pandemic. Before there were a lot of d/Deaf and ASL meetups in person, but not as many online. When the pandemic hit, a lot of them moved online, and now that people can get together again, those in-person ones have started up again, but thankfully the online resources remain available. Practicing with native speakers is always the best way to learn a language, so it really helps. And I'm sure you know about Lifeprint and Bill Vicars here on RUclips, but just in case anyone wants a great place to start, his website and RUclips channel are the best ones I've found.
I think it would be cool if Payton and Laynie met because both of them are Deaf and have another kind of disorder
Payton is a teenager now!
Laynie is a sweet smart little girl. She seems very calm and wise beyond her years. Her and her family and beautiful. I wish everything good and great for them. I know asl I do think it would be a really good idea to add to education across the world its always good to know. Much Love and Respect for this family 🥰
Hello, thank you very much for the great interviews with the children and adults. I am from Germany, studying special education and your interaction with people is a role model for me. The videos inspire me every time, thank you so much
What an absolute sweetheart and wonderful family. Love their honesty as well as there are so many different facets to ASL (each year I teach my students our National anthem and it is amazing the different versions, just like dialects of a same language). So glad that Laynie is embraced by so many people.
I love that she’s teaching you some phrases and words, and that you were asking her to teach you. If you were really interested in learning sign language, I would take a course at a local community college, because American Sign Language has its own grammar and sentence structure, which is different from English.
Chris you are awesome l enjoy watching your videos on RUclips channel l been learning sign language ever.since l was 9 years old l enjoy doing it l used to go to school with 2 people who were deaf it's easy to learn you got have patience my friend Donna showed me how to do it.She is an awesome teacher.Chris you and Alyssa are my inspiration 😊
Hi Laynie! Your video was magnificent. I used to interact with lots of people with many different disabilities, and I learned a bit of sign language to help me communicate better. But my skills are no match for yours! I really really wish ASL had been taught in school when I went there. I’d jump at the chance to learn it from a skilled teacher-maybe one day you could teach other people how to sign! 🤗
She so smart and so pretty. I love her laughs. She did amazing in her interview and she’s a great sign language teacher.
I love Laynie!! I’ve known her for a few years she’s the sweetest. I’m so happy that she got to be on this channel!! One of my favorite people on one of my favorite channels. Love you lots Laynie hope I get to see you soon
What a super beautiful girl she is, i hope she does well in her future life, stay strong girl ❤❤
What a super sweet young lady! Laynie could teach a lot of people some things. Lots of love for her and her family 🫶😁
She is so beautiful and sweet. I love that she teaches others ASL to communicate with her. 🥰
I’m so thankful to you Chris for introducing us to so many incredible, unique people and their families. Thank you for helping me build a tool kit to show my future kids how to be accepting and inclusive of every friend they meet 🤟
Laynie, thank you for sharing! I hope one day I will be fluent in sign language ❤
what a wonderful little lady and family. I am always moved to tears by SBSK interviews.
Love the authenticity with the family. It’s hard to be supportive sometimes, and ppl do their best which may not be super amazing. This interview, while serious and important, still put a big smile on my face with the sheer joy of their love.
This girl is absolutely the sweetest thing ever!!! And it’s clear how loving the family is! Yet another amazing interview- I’m so thankful to have these videos to help educate and inform- great job by all!
Shes precious and SO smart. Not letting anything hold her back. How wonderful. Keep it up Laynie! The world is yours for the taking.
Laynie and her family are amazing! Thank you so much for this interview!
You are the best teacher of ASL Laynie! I wish you, and you family, would teach on youtube. Even if its just once. You are a helpful teacher and your family inspires me to learn.
🙌🏽🙌🏽🙌🏽🙌🏽 Thank you for Those interview Chris!! It was really nice to meet Laynie and family. I'm studying ASL, and I love it!!
Hello Laynie, i live in New Zealand. I think you are awesome!
It’s such a good thing, how you care for other human beings. This family deserves the best in life!
Laynie is a very cool kid. When are we all going to learn sign language? That's a key thing about accessibility in general that ive learnt, is that it's useful for everyone!
Laynie is really intelligent!
Great interview!
The family learning sign la guage to commubicate with her is nice and I think talking about the communication gap is important as people need to be aware of it as well!
She's pretty cool I have a cousin who was born deaf and I learned how to do ASL through my cousin. And me and her vid chat using sign language. And it's helpful to know ASL in the work force because if someone is ordering food, I can communicate to them in sign language.
What a lovely family! You are truly inspiring! ❤
Loooooove this video! What great people❤️ I have wanted to learn sign language for a very long time! I love how dad brought up visual disabilities and hidden disabilities. I have a hidden one and it’s HARD out there in the world. I am so thankful Chris goes out there and finds these fantastic families I can relate to how tough it can be sometimes and also wonderful! Laynie and fam are awesome😎
This beautiful girl is so sweet and loving. What a blessing to her parents!
Hi Laynie and family! Thanks for sharing your story. I moved to a new country at the age of 30 and it's been extremely challenging to learn a new language. I hope your family is able to find the right tools for them to really master sign language so that they can communicate fully with you!
What a beautiful and confident young lady! She'll tell you like it is!
As a heard of hearing person still learning sign language, thank you for teaching us ❤ Such a beautiful family!
Laynie is amazing❤️
Sending love to her and her family❤️
Chris I always enjoy watching your videos! It was interesting to learn about sign language, that is good to know!
First! She’s so cute and seems like a lovely person ❤
Love this video!! I would be so happy and lucky to have a friend like Laynie and to sign with her!! 🤟🏽
Extremely fascinating!! Thank you for helping me learn some sign language young lady!!
I absolutely LOVE your smile!!!!!! And you're so kind and thoughtful! May we one day meet and be friends, too! (And your siblings too, you're all so wonderful!!)
🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟🤟
Sign language so beautiful
I wish sign language were teach in school 💔
I would love to learn to sign❤You are amazing Laynie, a big hug going your way.
I hope the parents can tap into some good online resources that can improve their ASL. At this point, where you live really shouldn't make that much of a difference as long as you have a wifi connection and some time to devote to it. I'm glad the mom is aware of how important learning sign is. The fact that they have an interpreter in the meantime is great, though.
Hi Laynie!! ❤ She is the sweetest.
I Loved this special time interview. Although I'm fluent in ASL, it's so nice to see that Chris really wanted to learn it as he had the interview. I'm hoping that he continues to learn sign language for the future.
Really enjoyed Laynie!! Smart little girl...
Laynie is amazing❤️
Sending love to her and her family🤟❤️
Wonderful interview!
I hope the family keeps learning sign more together, it would benefit her sooooo much ,,,,,,KEEP TRYING FAM
I love this channel and all of the amazing kids ❤❤❤❤❤❤❤
Laynie is definitely a star, radiating love and happiness. It is so great to see how each member of her family treasures her. I guess that is because Laynie loves and treasures her family and friends. By chance I could not use the sound on this video so I got a bit of taste of what it might mean to be deaf. The sign language was cool but I wonder if I could be very good at it. Probably in time I would be since as an ESL teacher, I use a ton of gestures in my classroom for the students to learn English. May God bless Laynie and her family and friends with ever more love and happiness!
Thanks for teaching me some good words!!!
I love this girl’s sense of HUMOR!
When she told her mom she was “good” at signing!😊 ❤❤❤ 🎉🎉😊
Lay is seems so sweet with amazing soul
I love her ❤ she's a blessing a child of God. God bless you and you're family.
Such a wholesome family, also the sister is extremely mature, I'm impressed..
What a special little girl and a great family. Great example for the rest of us.
Laynie is beautiful and radiates happiness. Xx
God bless her and her family! I've learned a bit of sign language thanks to this video, so thank you for that! This kid radiates with gppd vibes and a fun attitude, I wish the best to her! Amen.
She is the sweetest! ❤
Bless her little ❤
Omg i was checking in an about your channel and omg you are about to hit ONE BILLION VIEWS!!!!
Beautiful family !!
Bendiciones desde Argentina para esta hermosa niña. Chris te amamos!!!😗😗😗😗
I used to work with a young lady with CHARGE syndrome, and she was so much fun and full of attitude. I didnt know much sign language and she would always try to teach me. She was very proud of being deaf and a sign language user
Lanie is such a sunshine and so bright❤
This child has taught me more signs in 5 minutes than ive learned my whole life. Maybe she'll have a YT channel one day
You are a true visionary. God bless you.😇😂
Hi everyone: It's so nice to see you all again on RUclips. I want to meet you all one day. Take care and stay safe.
Couldn't love this any more! ❤❤
What a beautiful little girl ❤
Hi laynie I'm carol from the UK
I wish you and your family nothing but the best ❤❤❤
👋🏻 Carol I’m also from the UK ♥️