As someone with Idiopathic Hypoparathyroidism (Basically came out of nowhere), this is accurate. I am 12 and was just diagnosed after having a severe 2 minute long seizure at my bestie's birthday party ( Great time, I know.) My case is not genetic or removal of parathyroid glands. It just came. Lolll!!!! I take Tums (Calcium supplements) and something called Calcitriol. It's hard to describe what it does. Overall, accurate video from someone with the disease. 10/10.
it can be autoimmunal as well... I probably have it too. My Phosphat levels are way too high and my Calcium dangerously low... so I have to get it checked out now...
I think mine is autoinmune, I hVe another autoinmune disease history too, but yet not diagnosed. I had to have 5 seizures and 5 hospitalizations to finally find my pth vit k and calcium low… currently taking suplements and calcitriol, but somedays I collapse IDK if is my autoinmune flaring or if I need more supplements.
@@Lppt87I'm suffering from same And had to have 2 seizures. Can I please get ur number or social media I'd ? I just want to ask u some ques regarding this .
2 года назад+6
Good video. In treatment : mg2+ because magnesium is required to activate vit D
I think such videos should go a lil slow because when we change the speed from RUclips its not natural and irritating so pls make explanations a bit in calm way or slightly slow it would help me am sure and many others like me thank you 😀
I've heard hypoparathyroidism so many times by now it's second nature. partially because I have it myself! I was diagnosed after having a seizure at my friends freaking birthday party and went to a hospital for 1 week. I was diagnosed a few months ago ( I'm 12,btw) and this came out of nowhere. No genetics or parathyroid surgeries. Just life being the crockpot of madness it is. 😤 It's not that bad, tho. I take tums (calcium) every day and let me tell you! There's so many flavors of tums. Chewy bites are the best!! S tier. Mint ones are good, too! Lol. 😀
Please include usual doses of drugs used, blood levels of different parameters also in all of your videos. That would be helpful 😊.
I got two questions, is the treatment lifelong and does it cause hairloss
As someone with Idiopathic Hypoparathyroidism (Basically came out of nowhere), this is accurate. I am 12 and was just diagnosed after having a severe 2 minute long seizure at my bestie's birthday party ( Great time, I know.) My case is not genetic or removal of parathyroid glands. It just came. Lolll!!!! I take Tums (Calcium supplements) and something called Calcitriol. It's hard to describe what it does.
Overall, accurate video from someone with the disease. 10/10.
Thanks for the feedback! 😊
it can be autoimmunal as well... I probably have it too. My Phosphat levels are way too high and my Calcium dangerously low... so I have to get it checked out now...
@@tHeChIrGiS Here is some advice from someone who has it. DON'T WAIT TIL YOU GET A SEIZURE. Seizures due to crazy calcium and phos levels S U C K
I think mine is autoinmune, I hVe another autoinmune disease history too, but yet not diagnosed. I had to have 5 seizures and 5 hospitalizations to finally find my pth vit k and calcium low… currently taking suplements and calcitriol, but somedays I collapse IDK if is my autoinmune flaring or if I need more supplements.
@@Lppt87I'm suffering from same
And had to have 2 seizures.
Can I please get ur number or social media I'd ?
I just want to ask u some ques regarding this .
Good video. In treatment : mg2+ because magnesium is required to activate vit D
Does Mg affect parathyroid hormone too?
@@Akanksha-be7bz mg needed to absorb vitamin D
Also related to ALA to DHA conversion. If you are vegan it may cause issues including seizures, also choline deficiency. @@tracysmith-yv5lt
I think such videos should go a lil slow because when we change the speed from RUclips its not natural and irritating so pls make explanations a bit in calm way or slightly slow it would help me am sure and many others like me thank you 😀
Hi Duha! You may adjust the playback speed of the video at the bottom of the video player. 👍🏼
DiGeorge: Deletion of 22q11
Can hypercalcemia be a reason for hypoparathyroidism ?
Nice video.Waiting for Hyperparathyroidism????
Hi Clement! You access our video on Hyperparathyroidism at osmosis.org. You may signup for a free trial to access our entire video library. 😊
How much times did you mispronounce hypoparathyroidism recording this ? 😉 Great video BTW!
I've heard hypoparathyroidism so many times by now it's second nature. partially because I have it myself! I was diagnosed after having a seizure at my friends freaking birthday party and went to a hospital for 1 week. I was diagnosed a few months ago ( I'm 12,btw) and this came out of nowhere. No genetics or parathyroid surgeries. Just life being the crockpot of madness it is.
😤 It's not that bad, tho. I take tums (calcium) every day and let me tell you! There's so many flavors of tums. Chewy bites are the best!! S tier. Mint ones are good, too! Lol. 😀
I'm third 😀
Try saying that 3 times in a row after a few drinks
Am fifth maybe
Iam second
👍
❤
Im fourth 😹