Cried when you said " just feel old all of a sudden" I had felt like I hit a wall.... your simple explanation of the disease is well appreciated. Had my surgery last week and looking forward to feeling better!
Thank you so much. I just found out I have this because I'm vit D deficient and as a result have higher PTH levels. Your headline about feeling old is so me! Watching your explanation has made me feel normal, that I'm not going crazy as I literally have felt this feeling of not feeling up to the task as I used to. Thank you so much for sharing your knowledge in such a clear and kind way.
My husband had surgery 48 hours ago with a skilled parathyroid surgeon. My husband had severe mental health issues including crying, anxiety, terror; he always said "I don't feel right in my core", had SO MANY kidney stones, severe reflux, gait problems [read a study of a woman who had gait problems, too], terrible fatigue on top of his chronic fatigue already diagnosed, etc etc, he was on the decline. Luckily our primary care M.D. was a good one. Noticed the Vitamin D and calcium numbers and referred us to an endocrinologist. Quickly post surgery, he could tell the difference. It's wonderful to see the increased energy and not hear moaning all night, or panic, he can process information, he is happy. btw, he needed no pain meds or anything else. He could even swallow everything (they tell you to do a liquid diet but he didn't). In fact, the outcome was so amazing that the next morning we went out to eat as normal people with normal lives. Each day his mental health gets better, don't know about the reflux. His long 3 hr naps are less and he feels refreshed finally.
Thank you so much. You just broke down what my endocrinologist has been trying to tell me. I have been dealing with all of these symptoms and he is an amazing doctor here in KCMO. He just had not broken everything down the way you just did. The one thing that both of you have reassured me of is that it is CURABLE. I can finally get my life back. The depression was starting to take over and I was just about to give up. Thank you so much…this has really helped me.😢
I have tears in my eyes from your graph. My fatigue and SI, hip and knee pain has changed my life. High PTH levels (4x normal) but normal calcium levels. You have given me hope for my future life after surgery.
Thank you. I've been hospitalized twice since 2019, misdiagnosed. I knew something was wrong but couldn't explain it. I finally insisted on bloodtest and was diagnosed this week. There is anger in having felt shame and thinking I was defective, only to learn it was something out of my control. Thank you for the hope.
Thank you for sharing. Your video is very helpful. My endocrinologist tested me a few months ago and I was diagnosed with hyperparathyroidism. I had a nuclear scan and CT scan completed. I will have surgery in one week. I have all of the symptoms in your graph. I'm staying hopeful that after my surgery my life will be back to normal.
The visuals really helped me understand. Thank you! I’m a pre-50 postmenopausal woman with osteopenia, and several years with slightly elevated calcium levels but normal PTH levels. My endocrinologist ordered DNA testing to see if this is “normal” for me or if I need to move forward with surgery.
I had some blood tests with my GP and advised my calcium was low and prescribed calcium for 14 days. In the mean time noticed a lump in my neck, went for an ultrasound and now referred to head and neck team as it’s my parathyroid gland with some swollen lymph nodes. All the symptoms you describe make me believe I have hyperparathyroidism. Thank you for this informative video
Almost all the symptoms here apply to me. I've literally been suffering with fatigue and other aches and pains for a long time, and severely the past year. I'm in the process of having many tests. This week is the nuclear scan. I can't wait to feel better. Thanks for confirming that I am not totally crazy, yet! Great video.
Oh my. This is the information I have been looking for. Been trying to explain this to my Dr. 55 and been very active and within last 9 months I hit the wall.
What a great and detailed explanation. I have been diagnosed with hyperparathyroidism and have an adenoma. They're still discussing my treatment options
My domestic partner had two of the parathyroid glands removed October 29th 2024. She has suffered from symptoms of chronic fatigue, brain fog, confusion, forgetfullness, anger, anxiety for year and years and despite me having her view many post op videos she thought she was going to be healed of all symptoms the next day. She was actually hysterical and wanted to be taken to an emergency clinic because she still had all the symptoms. I managed to get her to calm down and convinced her that she has to take it day by day -- years and years of symptoms don't neccessarily disappear overnight. Now a week later she is noticing improvement and is hopefull instead of depressed and fatalistic.
Of course I landed in the 20% presenting with kidney stones! LOL My parathyroidectomy is next week. I am hoping to have increased energy, concentration, and NO kidney stones afterward! I'm glad to learn more about this condition. Once I was diagnosed so many things made sense. Thanks for the great video.
I have been diagnosed with hyperparathyroidism. I’m due for a consultation in a couple of weeks. My calcium however has never been above 10.0. Since I’ve read more about it I’m thinking that I finally have the answer to my daddy’s problems. At 67 he had an aortic valve replacement. The surgery took shockingly longer than expected by the surgeon because of the amount of calcium deposits in and around the valve. After that he continued to decline. Within a month he lost 25 pounds and was having delusional thoughts and hallucinations. He forgot how to do things. He was peeing constantly and his bladder was bloody and raw according to his urologist. The urologist even said it wasn’t contracting therefore causing urine to constantly be in his bladder. After another month he was placed in a mental hospital and given medication because of the severity of his delusions. He went into a catatonic state and the scans showed some atrophy but not enough to cause his catatonic state. He came home after a couple of weeks but we lost our daddy mentally in the course of two months and he never returned. It was like no one knew what was wrong with him. He was diagnosed with Parkinson’s and then had a shunt placed for NPH. I spent many years trying to figure out what had happened to him. I truly think he had this as well and it saddens me to know he could’ve gotten better. He suffered many years and the last few years were so bad. He eventually passed away from kidney failure. He had had kidney stones throughout his lifetime as well. Please share any feedback on this. I would appreciate if.
This was a very informative video.Thank you. I had this surgery on Monday. My only problem is a burning throat from the breathing tube. They also had some monitoring device that went off if he got too close to the Laryngeal nerve.
I think you may have just cured me! I have frequent urination and constipation but I couldnt understand why me lacking calcium would lead to more urine output. It seemed counter productive but lacking the muscle ability to empty the bladder makes total sense! Also explains why ive been constipated and feeling weak in the gym! Think i still have to optimize magnesium and vitamin D since its all correlated but at least I know the issue! Thank you!!!!
Told my doctor all the symptoms about pain in my elbows and knees, muscle twitches, insomnia cause i keep getting up to pee, etc… and he refered me to a chiropractor… BRUH. Can you be my doctor lol
Yes this happened to me. 1.5 yrs ago overnite. Super inflammation all over that just seemed to spread from joint to joint, area to area. Kind of unreal. Some of the things I have found help me most with inflammation (I'm very sensitive to most all pharmaceuticals so will leave those as a last resort) are bovine bone and marrow, calcium citrate and glycine. All give me magnificent relief in addition to improving my sleep and health. I've recently added diatomaceous earth which is silica (supposed to be a mineral which helps us) and it also gets rid of parasites and heavy metals. I have only felt better from the silica as well. Also taking a lot of D3 and magnesium. I recently started bovine brain, hoping that helps with my memory and neurological protection. I haven't been noticeably irritable so much, more like super lethargic and depressed. No zest for life. My energy is improving gradually with the above supplements. 😊
Hi. I have a 3cm parathyroid adenoma and despite taking medication, my blood calcium is 3.05 (European numbers) I am having surgery next week, but they think it’s cancer because the tumor is palpable and visible, plus high PTH and blood calcium started at 3.74 (EU) and was admitted to emergency due to a kidney stone. Got a stent, stayed 1 week in hospital to bring calcium down. Kidney stent taken out 1 month later. But stone broke, but didn't pass yet. Had laser blast, but didn't help much. I am tired, so tired, have muscle bone pain for more than 2-3 years and yes, got that I am old now, all of a sudden. I am 62, not diabetic, otherwise healthy, but my legs, feet, ankles are in pain. Sometimes, it hurts to walk. I do my 10,000 or more daily steps cuz I don't want to atrophy… Can’t wait to get this out!
Hi. It took 3 weeks for pathology to figure it out. It was my parathyroid which was INSIDE my thyroid (from birth apparently) and no adenoma, no cyst or tumor, but the actual parathyroid which just grew out of proportion and causing the hyperparathyroidism probably for a few years. Go figure.
@@carollemieux7474 hi. I got the operation and it took 3 weeks for the biopsy. It was not cancer but the actual parathyroid that had grown inside my thyroid. Very unique and rare occurrence, thus the time for the biopsy. I had a little over a third of the thyroid removed with it, but all my numbers went to normal after the operation. I will have to take calcium and other minerals and vitamins to try to make up for the years of draining calcium from my bones, hopefully reversing my osteoporosis and osteopenia. I feel so much better, no more pain in my bones and muscles. Thanks for your words of support.
This was great information. Both my sister's have had this and now I am not doing so well and trying to get my doctor to check this out, but he is being resistant. It is very frustrating for me to feel horrible and not be getting help.
I'm undergoing testing now for hyperparathyroidism I noticed elevated calcium levels for the past 20 years but not until recently did a Doctor finally go oh I think we should check this out and refer me to an endocrinologist. So I'm undergoing tests now for a diagnosis but you have described my life to a T. Every single thing you have mentioned I have been saying in my mind check, check, check.....Now it finally makes sense.
Very helpful thank you. I am 39, and I’ve always had fibromyalgia, but the fatigue and pain has been much more severe the last 6-8 months. My parathyroid just tested as 72 ng/L. However, my calcium and vitamin d levels are normal. We are doing more tests and possibly a referral to an endocrinologist. If the parathyroid is truly the issue and could be cured with surgery I will be THRILLED. This fatigue is all-consuming. I have pretty much every other symptom on the list as well. Except for the calcium/d levels.
Doc! I don't know how to feel right now. I'm going to start with the year I didn't know I had kidney stones EXCRUCIATING! I'm going to number each event! 1. Kidney Stones (17 YEARS AGO THIS STARTED) 2. Hair loss 3. constant malaise 4. constant fatigue 5. severe abdominal pain 6. Aggression, more aggression and more (lead to divorce) 7. Delusions- I've been told 8. Hallucination- I've been told 9. angry at the drop of a dime for no reason at times, when it comes on-RUN 10. 3 Cervical spine surgeries in ten years from bad car accident---because now I realize the bone wouldn't fuse because of rare tumors (WHET!) 11. Most of the front of my hair (screams) 12. partial hysterectomy because who knew it was kidney stones 13. depression, crying, RAGE, anxiety, PTSD 14. consistent low vitamin D levels over the years had to take 50,000 IU's 15.Heart rate over 175 with barely any movement 16. Irritability on 1000 (hard to be around me at times I ADMIT) 17. Ulcer on pancreas from this rare tumor-2 Endoscopies 18. Heartburn soooo bad (UGH) 19. Uterine ablation because of pain ( was kidney stones GRRRRRRRRRR) 20. frequent urination 21. sinus issues---bitter taste in mouth from post nasal (I swear I could taste something from this tumor or something!!!) 22. Insomnia 23. MUSCLE CRAMPS IN THE LEG UGHHHHHHHHHH 24. Twitching, eyes and various other places 25. MEMORY LOSS, CAN'T FINISH SENTENCES, FORGET MY THOUGHT IN THE MIDDLE OF A CONVERSATION-EMBARASSING 26. Thirst and this is crazy because well, I was just thirsty!!!! and the list goes on. When you have co-occurring issues like arthritis, car accident, it's soooooooooo hard to detect!!! My tumors were inside the thyroid and made it impossible to detect-thank GOD for the one that surfaced on the outside of the Thyroid. TEN INCONCLUSIVE BIOPSIES AND I WAS OVERRRRR IT! Just elected to remove left lobe last Tuesday. I was experiencing bone pain so bad, I just said to my partner well wtf, how does one feel when they get old!!!!! He said I had to exercise, like I wanted to throw something!! WTF can exercise with this level of pain. Man if only people knew how bad this condition is. But yes, we caught it and I was tripping when I could walk up the bus steps with ease, Everything was a uhhhh, like my next stage of pain was in my hip!!! just got a cortisone shot-hey I'm thinking this is life SMH. Its improved so much, hell many of my pains have improved from a week ago. I just absolutely cannot believe I suffered- No---been tortured by this for almost 2 decades. I experienced a personality disorder, like you just cannot make this up! I wish everyone the best of luck!!!! stay persistent if you believe something is wrong. My issue was rare, little known about the tumors. Thank God they are benign. If you do not get this disease in order, you will die like Gary Shandling the comedian, he didn't take it serious because he never heard of the parathyroid gland. You know you better than anyone, pay attention-I cannot say this loud enough!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! No Dr. could explain any of this, my Dr. will probably be embarrassed because every symptom is in my chart. The date I found out results from my pathology report is an added birthday. I want to go on a talk show because I know someone else is going through what I did. There's still A LOT to this MOVIE! This was a VERRRRRY slow growing tumor-just absolutely INSANE!
Yes, I have those symptoms. My PTH was 105.9 and renal EGFR 47, creatinine elevated. My provider says my calcium level is normal and not to worry about it. Have not had any other studies.
Hi Dr. Larian. You just described all of my symptoms. Sometimes our doctors are clueless what’s going on. What test should I ask them to do in order to confirm my diagnosis of parathyroidism? Thank you!
@ Thank you very much Dr. Larian. Tomorrow I’m meeting my doctor and I will get all these test done and then I’m gonna call you maybe I will meet you. I have no trust on my doctors.
@@LarianMD Hi Doctor. I came to America from Armenia. Now I live in SW. Washington state. i’m not reaching to you because I am in Armenian but you are an expert regarding parathyroidsm. My appointment has been scheduled 11/27. I am suffering & I don’t know when I’ll have tests done. I need your advice. Is there any way I can talk to you? Thanks and God bless!!!
I somehow became lactose intolerant a couple years ago, so recently I looked at my diet and realized there is no way I'm getting enough calcium in my diet causing my parathyroid to over compensate. The suddenly feeling old title and all of the symptoms are spot on, even in the order he listed them in. Hopefully calcium supplement will help and going to doctor for deficiency blood panel.
I’ve had several slow healing fractures, one non union clavicle fracture, frequent urination/incontinence for 3 years or more, osteopenic, suddenly looked and felt older, irritable, poor memory, unable to find words…my blood calcium is 10.8 upon my annual physical this year….my dr wants to repeat it, but this seems very likely
Watched twice. It took nearly 5 years to be diagnosed with Hyperparathyroidism. Bone pain was often dismissed although I did get my arm xrayed to rule out break or fracture. Fatigue I thought was because I was working hard whilst coping with bone pain. Confusion I put down to general weariness, not sleeping well. One year before my diagnosis I had a blood test that showed high blood calcium, I was given a letter by my doctor to have one week off work and to rest. There were obvious signs and complaints and still the diagnosis took so long
It’s not a particular level that you are looking for. You want your calcium and PTH to respond to each other appropriately. And be mostly in the normal range.
My calcium has slowly increased now to 10.9snd PTH bounces all over high to higher end of normal ,I was told I have mild hyperparathyroidism, after watching this I have an appointment with a specialist surgeon in new Zealand My anxiety levels and depression are really high@@LarianMD
Hello ...I just had 1 large Adenoma removed ...by the way you were spot on with my numbers when you replied Back to me ....iam post 9 weeks my numbers are get no further supplements need vitamin D still a bit low at 39. I did want to ask I noticed my bowel movements have been softer since surgery? My PTH was 197 and now is 51 as of last week. My Question is this transition from the change in PTH level adjusting ? Many thanks 🙏 you are amazing and have gotten me through this ❤️
My last calcium was 10.4, PTH 103, DEXA shows osteoporosis and I am currently passing a 2mm left side kidney stone. This is my 2nd time goung through this nightmare of a disease. I had a 4cm parathyroid adenoma and a right hemithyriodectomy removed in 2011. I also ended up with left lyrengeal nerve damage and admitted in ICU. A second ooeratuon has me feeling very uneasy. However, going through all the signs and symptoms and other issues isn't very heartwarming either. Thus is my 1st kidney stone. Oh my goodness...I just wanted to die😂. I will be 63 next month.
Oh, dear, usaarmymedic1334, your story so touched me!🥺 I could feel your frustration. First, if you served as an army medic, thank you for your service; you don't deserve living life like this after all you gave. You've since had a birthday ~some 9 months ago... I so wonder what has transpired since then. Don't think many ppl come back to read reply but hope you do to see mine. On the very vague possibility that you see this.... I would love to hear from you. I too suffer from hyperparathyroid (at least that's what I think it is) symptoms but have not had it checked out yet; just basing it on (in my case) very high Ca++ and very high vit D levels, and don't take either of these exogenously. Well... if you see this, and are not afraid of replying, this is mine, without the spaces: t o u c h I n g s o l e s at y a h o o dot com. Thank you for sharing your story... Blessings, D
I had my surgery 7 weeks ago two adenomas removed and left half of my thyroid due to a follicular adenoma( why so many adenomas I have one in my breast for 20:years also). My levels are all back to normal . So does that mean I’m cured and don’t have to hyperparathyroid disease anymore?
I sent you an email. I am being bounced around from Specialist to specialist with no answers I have every symptom hair loss nausea, heartburn, headaches, but my calcium keeps fluctuating. I am ready to give up! I can get out of bed due to the fatigue and heart palpitations. Over the last month Calcium 10.4 PTH 40, 2 weeks later 9.9 calcium PTH 50 vitamin D 17. 4 days ago Calcium 10.1 PTH 70 Vitamin D 40 (due to injection doctor said that was my issue.) Chloride is 112. I go back to the cardiologist on Monday to review my heart monitor results and a referral for a skeleton doctor for more tests. Thank you for the amazing videos.
Thank you. I have hyperparathyroidism with normal calcium levels, and no adenoma visible after two ultrasounds and twoj nuclear scans over past four years. I have many of the symptoms listed, for four or more years now. All my other Bloodwork was fairly normal except for slightly low thyroid. I feel exhausted and somewhat weak, occasionally dizzy. I also have degenerative disk disease and some neuromuscular damage from spinal nerve root compression. I am frustrated with no apparent solution yet.
Are you sure you have hyperparathyroidism or hyperthyroidism? The treatment of hyperparathyroidism is surgery ONLY, some times the adenoma in one or more hyperparathyroid glands are not seen on ct scan or US. Check online on Norman Parathyroid Center in Tampa, Florida, US; they are the specialists.They have videos in RUclips also.
who do I go see about this, as soon as 60 came around, everything went wrong, I broke my hip and femur, I cant sleep, I ache all over, Im tired all the time. I went to see an endocrinologist who wanted to put me on osteoporosis meds as I have esteopenia,they said my thyroid was normal without asking me any questions. Im waiting on a second opinion. ?
Thank you for this video! I was just diagnosed with hyperparathyroidism and had a CT scan, ultrasound, and a Nuclear Medicine scan however none of them show anything wrong with the parathyroids! I was suggested exploratory surgery which worries me. Do you suggest any other tests?
If my PTH intact result is 82, but my latest DEXA actually showed improvement, what is going on? When I was initially diagnosed, all my levels were normal except for PTH. My symptoms could be persistent weight loss, muscle fatigue and the fact that despite my being a dedicated vegan for 17 years and a lifter for 35 years, I have deflated into a sharpei puppy. I lost 35 pounds since menopause and can’t get it back. My face is aging much faster than it should. Despite drinking 2 liters of water daily (not including the litany of fresh produce snarfed down every day), I look dehydrated. Is this part of the fun of the disease?!
So I don’t have to have my thyroid and parathyroid removed? My endocrinologist and primary care provider are very vague when explaining things and both said I need surgery instead of giving me the option of hormone therapy and iodine tabs. I just turned 30 on April 18th and I’m worried that if I don’t have my thyroid and parathyroid when I’m older I’ll have issues. I don’t want to be stuck on meds for the rest of my life after having the surgery, there’s gotta be another way.
Also if this is of any help I met with the endocrinologist for the first time today and was told I have a nodule on the left that 3.8 cm in length and 3.9 on the right and surgery is required if they’re at 4cm or over, since I have multiple and 2 are almost at 4cm they want to do complete removal of thyroid and parathyroid.
Thyroid is good? Did you run tests for T4/T3 and other thyroid hormones? If they are ok you don't need a remove of thyroid and for parathyroidectomy we have (the majority of population) 4 gland's you don't need to remove all if you do that you get hypoparathyroidism that is very dangerous.
I swear! For years now I have joked with clients that no one ever told me that you don't grow old, you go to bed one night and wake up old! It just happens! ... Little did I realize that is actually a symptom of hyperparathyroidism. I'm not there yet but my calcium is high so they're checking pth. Even if that's not the problem, I may never joke about waking up old again. It's not a joke.
Can you, please , explain hyperparathyroidism and kidney stone relation in your video. PTH 82, normal blood calcium level 9.6,normal ionised calcium , elevated calcium in 24 hour urine test, repeated kidney stone, always left kidney. Started on thiazide now. Having parathyroid scan in 2 weeks.
Hi. Having had hyper parathyroid and an operation to remove it, the kidney stones were the trigger for the doc at the hospital to detect it. All the calcium in the blood is like sand, thus going through the kidneys and accumulating and creating the stones. Simple as that. Kidney stones can of course be due to bad diet… and diabetes etc. I have osteoporosis and osteopenia due to the super PTH levels and parathyroid issues that were probably present at least 3-4 years prior to detection. Good luck!
Hey doc. My mom told me she has this high Pth levels and somewhat normal calcium level which were high last time around abut seemed to be in the normal range now. However her pth is still high as per her doctor. She also mentioned doctor pitting some nodules on her thyroid but they also had to look at her parathyroid glands since pth is high. She does seem tired and and says little when I talk to her. She does seem to suffer from some of the symptoms you listed. How serious is this illness? Is it life treating? I am worried about her
You’re talking about me, Doctor! I am dealing with an 8mm kidney stone that has moved from my left kidney and is stuck in my ureter. I’m on 600mg of gabapentin at bedtime because I have such terrible burning in my thighs, torso, lower back. No one can figure out why! 😢 Joint pain, muscle aches, legs don’t work right and feel like lead. Extreme fatigue. Intact PTH has been as high as 134. Vitamin D has been as low as 11. Calcium is “normal”, so I’m considered secondary hyperparathyroidism. Calcium is in the 9’s. Has never gone over 10. A suspicious parathyroid growth or tumor has been detected on 2 scans but is being ignored by doctors. One scan was the sestamibi scan, one a thyroid ultrasound. I also have a tirads 5 thyroid nodule that I was told was cancerous when I had the FNA done (2 needles got clogged due to calcification, but the surgeon submitted clear fluid to pathology. Benign!). I want a second opinion. Now they found my endometrial lining is very thick and may be malignant. I have to go to the OR for the biopsy. It’s never ending! 😢 Could all of these hormonal diseases be related?? Help!! 😢 I just turned 64.
I’m sorry to hear what you’re going through. It sounds like you have normocalcemic hyperparathyroidism. I would need to do more labs to confirm. If you have kidney stones then you should have parathyroid surgery. And during parathyroid surgery the thyroid nodules can be biopsied (and sent to the pathologist during surgery to get an immediate answer) and if cancerous it can be addressed at the same time. Btw please have the urologist remove the kidney stones immediately
@@LarianMDDr Larian, thank you so much for responding to me. I have heard amazing things about you! If I had any way to get to you to be your actual patient, I’d be there. However, I do have an appointment with an endourologist on December 18th. I’m praying she wants to remove this large kidney stone immediately! I’ve also been told by a friend (she’s a dentist and your patient) that she thinks I have normocalcemic hyperparathyroidism. I don’t recognize myself in pictures. My memory is shot. I can’t sleep. I take everything personally. I’m up urinating all night. I feel like I’m a textbook case. Thank you for spelling everything out! Blessings! 🙏🏼❤️🩹❤️🩹🙏🏼
Is it common for symptoms to come and go? I think mine might be due to vitamin D deficiency, but need to talk to the doctor, i just had x rays and my bones are indicating this, but my blood calcium was normal. No constipation, in fact just the opposite, a little too easy to go. But yes, i feel like my mom who is in her 80's and I am 49. I am having bone pain, muscle pain, fatigue, insomnia, hypersomnia, headaces, brain fog, constant tingling in the legs, my face and tounge went numb yesterday for an hour. In fact i went to the ER thinking i was having chest pain, and my heart is fine. Even had an ultrasound done to rule out blood clots. But, i had crying fits the whole day, the nurse was concerned that "something else" was going on because i cried at everything. I was actually thinking i was bipolar because of the massive mood swings and inability to sleep. My last doctor, now retired, kept sending me to physical therapy and recommending antidepressants and Tylenol.
I had 3 and 1/2 of my parathyroid’s removed. Felt much better. Now2 yrs later in having the same symptoms. My PTH is very high again ( it was normal after the surgery) there going to do a sonogram to check but the dr I’m seeing now said he wouldn’t recommend removing the last part of that gland even if there is another adenoma. He thinks it would be worse to do that. Yett a friend had it done and she’s so much happier. I’m tired of just being treated with Vit D . There seems to be an old school thinking and a new school . I’m curious what your thoughts are. Especially since I’m having so many what ideas call side affects from it. All the things you mentioned in this video
Hi Michelle, since you had 3.5 glands removed you must have parathyroid hyperplasia, which means all 4 glands were abnormal to begin with. It’s possible that the last half a gland left has grown now and is overproducing PTH and causing problems or you may be one of 20% of people who have 5 parathyroid glands. Ultrasound and 4D parathyroid CT scans can help figure that out. Your 2 options are surgery with an expert parathyroid surgeon or taking the medication Cinacalcet. Best wishes Babak
Thank you so much this is amazing . What if you have Hashimotos and reactive hyperglycaemia and hypercalceamia am so unwell with all symptoms of above my calcium is around 2.67mmol other 5.00pmol feel like I can’t get help from drs they say mild hypercalceamia . And my too is >1300 . Am in uk and endocrinologist are not good . Please can you tell me difference between Pth and pthrp (parathyroid related peptide) which is 6.5pmol 😢❤
PTH is produced by parathyroid glands, while PTHrp is naturally produced by the body during pregnancy. PTHrp is also produced by some tumors that can mimic hyperparathyroidism
Thank you for your reply so grateful. By nhs range it should be less than 1.7 my endo has put this as my pth result so that’s not good and defo not pregnant I am 57 . Having very hard time and my tpo is >1300 and tg very very high to . but my pth fluctuates normal range and calcium fluctuates always boarder range or high . Thank you really for your help it’s hard to get help and am very unwell but seems can’t get them to listen and the fact they have misdiagnosed pthrp for pth results is not good . 🤗
I have more or less all the symptoms but lab tests showed only PTH high …meaning ? Tsh and t3 ok but low t4 . Is it better ndt or sinthetic thyroid medicine. I don’t have whole thyroid and have been on medication for 6 years .Im getting sicker and sicker 😩
I’m 38 and high parathyroid level for almost about 2 yrs and I’m trying to have a second baby , is that something can effect a pregnancy ? Have seen dr.s never got a straight answer :/
Is it possible to have muscle twitches with hyperparathyroidism? My endocrinologist says that it is not a symptom of hyperparathyroidism but I was recently diagnosed with hypercalcemia, still waiting to confirm hyperparathyroidism, and have had muscle twitches all over my body.
It’s not a typical symptom but often time hyperparathyroidism is combined with other deficiencies such as magnesium which may predispose to muscle twitches.
I have the very same question. Prior to having a C4-C7 my primary care doctor ordered a large panel of blood work, and my calcium was extremely high. I had just had a bone density test that showed I already have osteopenia. There was enough concern that the surgery was almost cancelled. Not only did they fuse C4-C7, but they had to correct reverse curvature of the cervical spine. The neurosurgeon said that he could have done more, but wanted to leave me with some mobility. I now have a herniated disc at C3-C2. I haven’t had any blood work done in a while. What should I have them look for when I have access to insurance? I also have Occipital Neuralgia, and Dystonia of the scapular area. A herniated thoracic disc, and facet joint problems in my lower back. Could any of this be related to hypothyroidism, or an underlying case of hypoparathyroidism? I was diagnosed with hypothyroidism at 30, 24 years ago. Life is pretty miserable. I was diagnosed with carpal tunnel at 16 in 1986, that was unheard of at the time. I truly feel as if something has been missed for most of my life, any thoughts??
I am CKD HD patient i was diagnose with tertiary hyperparathyroidism 😢how to avoid this kind of disease? And is it true that its better to have a surgery w/c parathyroidectomy?
Unfortunately in the setting kidney failure and hemodialysis it is impossible to avoid tertiary HPT. If you live with the kidney failure long enough and not get a kidney transplant in time it will happen.
May vitamin D supplementation without calcium supplementation cause more harm than good by absorption of calcium from bone? Though it is learnt that indiscriminate use of OTC medication containing both calcium and Vitamin D is the third most common cause of hypercalcemia.
My sons calcium is 10.9 and he has all the symptoms. Doctor isnt concerned for the elevated calcium. We've been to many specialists no one has mentioned hyperparathyroid.
@@LarianMD I have ADPKD…. So, I’m not sure the cause exactly. Told to take vitamin D. VD normal now. Ca and phos normal.. PTH 138. I’m not sure how high is high or barely high.
I have almost everyone of the symptoms. I'm being treated for high calcium in my urine ,having had prior kidney stones. Nephrologist just keeps pushing pills to control the high calcium. I know there is something causing it,ive asked and was told they dont know why it happens. Im a 50yo male.I need to find a doctor that will actually help me.
My grandma total ca. =14 ionized ca=8mg/dl And PTH i=830 pg/ml Other investigations normal Patient now in icu for 1 day What do you think the diagnosis might be doctor Please help we are so worried😢
If you repeat your labs calcium/pth/vitamin D several times fasting and at 8AM, and your calcium is always is normal and PTH is elevated, you may have normocalcemic hyperparathyroidism; but also must rule out other causes of high PTH. You’ll need a physician that understands these issues to comprehensively investigate.
WOOOOOOOOOOOW! THAT'S WHAT AT REAL DOCTOR IS LIKE!!!! DAAAAMN!! MY DOCTORS IN INDIA ARE FRIGGING IDIOTS!! I'M GETTING MY PTH TEST DONE TOMORROW!! I HAVE ALL OF THESE SYMPTOMS EXCEPT FREQUENT NIGHT URINATION AND KIDNEY STONES!!
Cried when you said " just feel old all of a sudden" I had felt like I hit a wall.... your simple explanation of the disease is well appreciated. Had my surgery last week and looking forward to feeling better!
Can you please give us an update 🙏🏾
Thank you so much. I just found out I have this because I'm vit D deficient and as a result have higher PTH levels. Your headline about feeling old is so me! Watching your explanation has made me feel normal, that I'm not going crazy as I literally have felt this feeling of not feeling up to the task as I used to. Thank you so much for sharing your knowledge in such a clear and kind way.
This is me too! Old so fast😢
Oh my gosh I'm thrilled right now because I think I found out what's wrong with me not just hyperthyroidism because I have the Vitamin D deficiency
My husband had surgery 48 hours ago with a skilled parathyroid surgeon. My husband had severe mental health issues including crying, anxiety, terror; he always said "I don't feel right in my core", had SO MANY kidney stones, severe reflux, gait problems [read a study of a woman who had gait problems, too], terrible fatigue on top of his chronic fatigue already diagnosed, etc etc, he was on the decline. Luckily our primary care M.D. was a good one. Noticed the Vitamin D and calcium numbers and referred us to an endocrinologist. Quickly post surgery, he could tell the difference. It's wonderful to see the increased energy and not hear moaning all night, or panic, he can process information, he is happy. btw, he needed no pain meds or anything else. He could even swallow everything (they tell you to do a liquid diet but he didn't). In fact, the outcome was so amazing that the next morning we went out to eat as normal people with normal lives. Each day his mental health gets better, don't know about the reflux. His long 3 hr naps are less and he feels refreshed finally.
Thank you so much. You just broke down what my endocrinologist has been trying to tell me. I have been dealing with all of these symptoms and he is an amazing doctor here in KCMO. He just had not broken everything down the way you just did. The one thing that both of you have reassured me of is that it is CURABLE. I can finally get my life back. The depression was starting to take over and I was just about to give up. Thank you so much…this has really helped me.😢
I have tears in my eyes from your graph. My fatigue and SI, hip and knee pain has changed my life. High PTH levels (4x normal) but normal calcium levels. You have given me hope for my future life after surgery.
Thank you. I've been hospitalized twice since 2019, misdiagnosed. I knew something was wrong but couldn't explain it. I finally insisted on bloodtest and was diagnosed this week. There is anger in having felt shame and thinking I was defective, only to learn it was something out of my control. Thank you for the hope.
Thank you for sharing. Your video is very helpful. My endocrinologist tested me a few months ago and I was diagnosed with hyperparathyroidism. I had a nuclear scan and CT scan completed. I will have surgery in one week. I have all of the symptoms in your graph. I'm staying hopeful that after my surgery my life will be back to normal.
The visuals really helped me understand. Thank you! I’m a pre-50 postmenopausal woman with osteopenia, and several years with slightly elevated calcium levels but normal PTH levels. My endocrinologist ordered DNA testing to see if this is “normal” for me or if I need to move forward with surgery.
And what did the DNA test show?
I had some blood tests with my GP and advised my calcium was low and prescribed calcium for 14 days. In the mean time noticed a lump in my neck, went for an ultrasound and now referred to head and neck team as it’s my parathyroid gland with some swollen lymph nodes. All the symptoms you describe make me believe I have hyperparathyroidism. Thank you for this informative video
Almost all the symptoms here apply to me. I've literally been suffering with fatigue and other aches and pains for a long time, and severely the past year. I'm in the process of having many tests. This week is the nuclear scan. I can't wait to feel better. Thanks for confirming that I am not totally crazy, yet! Great video.
Go to Parathyroid Center of Tampa…experts.
Oh my. This is the information I have been looking for. Been trying to explain this to my Dr. 55 and been very active and within last 9 months I hit the wall.
Been running high 10’s and over 11 on calc labs with PTH of 37. The rollercoaster of vague symptoms may finally have answer
I had the surgery a month ago. I don't feel different but I think it's extremely important to have it done!
Please tell me more i have 11.7 calcium am as a nurse and very tired cant sleep well , my d vit low , etc
My mate had the surgery done to remove one of the adoemas aswell but she goes goes even after two months she feels no different.
What a great and detailed explanation. I have been diagnosed with hyperparathyroidism and have an adenoma. They're still discussing my treatment options
The treatment is surgery
My domestic partner had two of the parathyroid glands removed October 29th 2024. She has suffered from symptoms of chronic fatigue, brain fog, confusion, forgetfullness, anger, anxiety for year and years and despite me having her view many post op videos she thought she was going to be healed of all symptoms the next day. She was actually hysterical and wanted to be taken to an emergency clinic because she still had all the symptoms. I managed to get her to calm down and convinced her that she has to take it day by day -- years and years of symptoms don't neccessarily disappear overnight. Now a week later she is noticing improvement and is hopefull instead of depressed and fatalistic.
Of course I landed in the 20% presenting with kidney stones! LOL My parathyroidectomy is next week. I am hoping to have increased energy, concentration, and NO kidney stones afterward! I'm glad to learn more about this condition. Once I was diagnosed so many things made sense. Thanks for the great video.
Brilliant , well done, to the point and most appreciated.
Love the clear and well-documented explanations! Jon A. CNMT
Great video. Explains all the symptoms of having hyperparathyroid problems
I have been diagnosed with hyperparathyroidism. I’m due for a consultation in a couple of weeks. My calcium however has never been above 10.0. Since I’ve read more about it I’m thinking that I finally have the answer to my daddy’s problems. At 67 he had an aortic valve replacement. The surgery took shockingly longer than expected by the surgeon because of the amount of calcium deposits in and around the valve. After that he continued to decline. Within a month he lost 25 pounds and was having delusional thoughts and hallucinations. He forgot how to do things. He was peeing constantly and his bladder was bloody and raw according to his urologist. The urologist even said it wasn’t contracting therefore causing urine to constantly be in his bladder. After another month he was placed in a mental hospital and given medication because of the severity of his delusions. He went into a catatonic state and the scans showed some atrophy but not enough to cause his catatonic state. He came home after a couple of weeks but we lost our daddy mentally in the course of two months and he never returned. It was like no one knew what was wrong with him. He was diagnosed with Parkinson’s and then had a shunt placed for NPH. I spent many years trying to figure out what had happened to him. I truly think he had this as well and it saddens me to know he could’ve gotten better. He suffered many years and the last few years were so bad. He eventually passed away from kidney failure. He had had kidney stones throughout his lifetime as well. Please share any feedback on this. I would appreciate if.
This was a very informative video.Thank you. I had this surgery on Monday. My only problem is a burning throat from the breathing tube. They also had some monitoring device that went off if he got too close to the Laryngeal nerve.
That's amazing, I didn't know that was available. Best wishes for your quick and complete recovery.
Excellent video … thank you.
HYPOPARATHYROIDISM feels the same but worse (after losing 2 Paras during messed-up OP).
I think you may have just cured me! I have frequent urination and constipation but I couldnt understand why me lacking calcium would lead to more urine output. It seemed counter productive but lacking the muscle ability to empty the bladder makes total sense! Also explains why ive been constipated and feeling weak in the gym! Think i still have to optimize magnesium and vitamin D since its all correlated but at least I know the issue!
Thank you!!!!
Told my doctor all the symptoms about pain in my elbows and knees, muscle twitches, insomnia cause i keep getting up to pee, etc… and he refered me to a chiropractor… BRUH. Can you be my doctor lol
Thank you. Everything is correct. I feel all the symptoms 😢
Great explanation of hyperparathyroidism. Is it true that it is more common in women than men?
Yes, it is
Yes this happened to me. 1.5 yrs ago overnite. Super inflammation all over that just seemed to spread from joint to joint, area to area. Kind of unreal. Some of the things I have found help me most with inflammation (I'm very sensitive to most all pharmaceuticals so will leave those as a last resort) are bovine bone and marrow, calcium citrate and glycine. All give me magnificent relief in addition to improving my sleep and health. I've recently added diatomaceous earth which is silica (supposed to be a mineral which helps us) and it also gets rid of parasites and heavy metals. I have only felt better from the silica as well. Also taking a lot of D3 and magnesium. I recently started bovine brain, hoping that helps with my memory and neurological protection. I haven't been noticeably irritable so much, more like super lethargic and depressed. No zest for life. My energy is improving gradually with the above supplements. 😊
Hi. I have a 3cm parathyroid adenoma and despite taking medication, my blood calcium is 3.05 (European numbers) I am having surgery next week, but they think it’s cancer because the tumor is palpable and visible, plus high PTH and blood calcium started at 3.74 (EU) and was admitted to emergency due to a kidney stone. Got a stent, stayed 1 week in hospital to bring calcium down. Kidney stent taken out 1 month later. But stone broke, but didn't pass yet. Had laser blast, but didn't help much. I am tired, so tired, have muscle bone pain for more than 2-3 years and yes, got that I am old now, all of a sudden. I am 62, not diabetic, otherwise healthy, but my legs, feet, ankles are in pain. Sometimes, it hurts to walk. I do my 10,000 or more daily steps cuz I don't want to atrophy… Can’t wait to get this out!
Hi. It took 3 weeks for pathology to figure it out. It was my parathyroid which was INSIDE my thyroid (from birth apparently) and no adenoma, no cyst or tumor, but the actual parathyroid which just grew out of proportion and causing the hyperparathyroidism probably for a few years. Go figure.
Your message is from a while ago, but I hope you've gotten better in the past 10 months. You're not alone--we're pulling for you.❤
@@carollemieux7474 hi. I got the operation and it took 3 weeks for the biopsy. It was not cancer but the actual parathyroid that had grown inside my thyroid. Very unique and rare occurrence, thus the time for the biopsy. I had a little over a third of the thyroid removed with it, but all my numbers went to normal after the operation. I will have to take calcium and other minerals and vitamins to try to make up for the years of draining calcium from my bones, hopefully reversing my osteoporosis and osteopenia.
I feel so much better, no more pain in my bones and muscles.
Thanks for your words of support.
This was great information. Both my sister's have had this and now I am not doing so well and trying to get my doctor to check this out, but he is being resistant. It is very frustrating for me to feel horrible and not be getting help.
You should look a parathyroid surgeon that takes a keen interest in treating hyperparathyroidism
Bless you Dr
I'm undergoing testing now for hyperparathyroidism I noticed elevated calcium levels for the past 20 years but not until recently did a Doctor finally go oh I think we should check this out and refer me to an endocrinologist. So I'm undergoing tests now for a diagnosis but you have described my life to a T. Every single thing you have mentioned I have been saying in my mind check, check, check.....Now it finally makes sense.
Good luck dear. I’m happy you are on the path getting the correct diagnosis and treatment.
All four of my parathyroid were bad so I have a new one in my forearm. When will it start working?
Very helpful thank you. I am 39, and I’ve always had fibromyalgia, but the fatigue and pain has been much more severe the last 6-8 months. My parathyroid just tested as 72 ng/L. However, my calcium and vitamin d levels are normal. We are doing more tests and possibly a referral to an endocrinologist. If the parathyroid is truly the issue and could be cured with surgery I will be THRILLED. This fatigue is all-consuming. I have pretty much every other symptom on the list as well. Except for the calcium/d levels.
Thank you. Excellent video.
Thank you!
Doc! I don't know how to feel right now. I'm going to start with the year I didn't know I had kidney stones EXCRUCIATING! I'm going to number each event!
1. Kidney Stones (17 YEARS AGO THIS STARTED)
2. Hair loss
3. constant malaise
4. constant fatigue
5. severe abdominal pain
6. Aggression, more aggression and more (lead to divorce)
7. Delusions- I've been told
8. Hallucination- I've been told
9. angry at the drop of a dime for no reason at times, when it comes on-RUN
10. 3 Cervical spine surgeries in ten years from bad car accident---because now I realize the bone wouldn't fuse because of rare tumors (WHET!)
11. Most of the front of my hair (screams)
12. partial hysterectomy because who knew it was kidney stones
13. depression, crying, RAGE, anxiety, PTSD
14. consistent low vitamin D levels over the years had to take 50,000 IU's
15.Heart rate over 175 with barely any movement
16. Irritability on 1000 (hard to be around me at times I ADMIT)
17. Ulcer on pancreas from this rare tumor-2 Endoscopies
18. Heartburn soooo bad (UGH)
19. Uterine ablation because of pain ( was kidney stones GRRRRRRRRRR)
20. frequent urination
21. sinus issues---bitter taste in mouth from post nasal (I swear I could taste something from this tumor or something!!!)
22. Insomnia
23. MUSCLE CRAMPS IN THE LEG UGHHHHHHHHHH
24. Twitching, eyes and various other places
25. MEMORY LOSS, CAN'T FINISH SENTENCES, FORGET MY THOUGHT IN THE MIDDLE OF A CONVERSATION-EMBARASSING
26. Thirst and this is crazy because well, I was just thirsty!!!!
and the list goes on. When you have co-occurring issues like arthritis, car accident, it's soooooooooo hard to detect!!! My tumors were inside the thyroid and made it impossible to detect-thank GOD for the one that surfaced on the outside of the Thyroid.
TEN INCONCLUSIVE BIOPSIES AND I WAS OVERRRRR IT! Just elected to remove left lobe last Tuesday. I was experiencing bone pain so bad, I just said to my partner well wtf, how does one feel when they get old!!!!! He said I had to exercise, like I wanted to throw something!! WTF can exercise with this level of pain. Man if only people knew how bad this condition is. But yes, we caught it and I was tripping when I could walk up the bus steps with ease, Everything was a uhhhh, like my next stage of pain was in my hip!!! just got a cortisone shot-hey I'm thinking this is life SMH. Its improved so much, hell many of my pains have improved from a week ago. I just absolutely cannot believe I suffered- No---been tortured by this for almost 2 decades. I experienced a personality disorder, like you just cannot make this up!
I wish everyone the best of luck!!!! stay persistent if you believe something is wrong. My issue was rare, little known about the tumors. Thank God they are benign. If you do not get this disease in order, you will die like Gary Shandling the comedian, he didn't take it serious because he never heard of the parathyroid gland.
You know you better than anyone, pay attention-I cannot say this loud enough!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
No Dr. could explain any of this, my Dr. will probably be embarrassed because every symptom is in my chart. The date I found out results from my pathology report is an added birthday. I want to go on a talk show because I know someone else is going through what I did.
There's still A LOT to this MOVIE! This was a VERRRRRY slow growing tumor-just absolutely INSANE!
it sounds so much like diabetes as well,
Can you do a video on the symptoms, and signaling of, calcium vs PTH in primaryHPTD?
I have all these symptoms. Getting surgery soon.
Yes, I have those symptoms. My PTH was 105.9 and renal EGFR 47, creatinine elevated. My provider says my calcium level is normal and not to worry about it. Have not had any other studies.
A high PTH requires a work up, you may have normocalcemic hyperparathyroidism or secondary hyperparathyroidism
I had to stop working! I’m still after a year without a diagnosis! Elevated PHT but not calcium so no treatment or any treatment!
Exactly how i feel 😪
Can it affect your ph levels
Hi Dr. Larian.
You just described all of my symptoms. Sometimes our doctors are clueless what’s going on. What test should I ask them to do in order to confirm my diagnosis of parathyroidism?
Thank you!
Calcium, PTH and vitamin D done fasting and at 8 AM.
@ Thank you very much Dr. Larian. Tomorrow I’m meeting my doctor and I will get all these test done and then I’m gonna call you maybe I will meet you.
I have no trust on my doctors.
@@LarianMD Hi Doctor. I came to America from Armenia. Now I live in SW. Washington state. i’m not reaching to you because I am in Armenian but you are an expert regarding parathyroidsm. My appointment has been scheduled 11/27. I am suffering & I don’t know when I’ll have tests done.
I need your advice. Is there any way I can talk to you?
Thanks and God bless!!!
I somehow became lactose intolerant a couple years ago, so recently I looked at my diet and realized there is no way I'm getting enough calcium in my diet causing my parathyroid to over compensate. The suddenly feeling old title and all of the symptoms are spot on, even in the order he listed them in. Hopefully calcium supplement will help and going to doctor for deficiency blood panel.
Hopefully, I have seen a lot of patients that all they needed was appropriate calcium supplementation. Good luck
@@LarianMD so you take calcium with high blood calcium levels?
That’s exactly how I felt for a year
I’ve had several slow healing fractures, one non union clavicle fracture, frequent urination/incontinence for 3 years or more, osteopenic, suddenly looked and felt older, irritable, poor memory, unable to find words…my blood calcium is 10.8 upon my annual physical this year….my dr wants to repeat it, but this seems very likely
Watched twice. It took nearly 5 years to be diagnosed with Hyperparathyroidism. Bone pain was often dismissed although I did get my arm xrayed to rule out break or fracture. Fatigue I thought was because I was working hard whilst coping with bone pain. Confusion I put down to general weariness, not sleeping well. One year before my diagnosis I had a blood test that showed high blood calcium, I was given a letter by my doctor to have one week off work and to rest. There were obvious signs and complaints and still the diagnosis took so long
how high was your calcium?
Wtf of doctor do you have? If a thing is out of range you need to search the cause.
What serum levels should you expect to see and what test should be run?
It’s not a particular level that you are looking for. You want your calcium and PTH to respond to each other appropriately. And be mostly in the normal range.
The blood test is the CMP
My calcium has slowly increased now to 10.9snd PTH bounces all over high to higher end of normal ,I was told I have mild hyperparathyroidism, after watching this I have an appointment with a specialist surgeon in new Zealand
My anxiety levels and depression are really high@@LarianMD
Hello ...I just had 1 large Adenoma removed ...by the way you were spot on with my numbers when you replied Back to me ....iam post 9 weeks my numbers are get no further supplements need vitamin D still a bit low at 39. I did want to ask I noticed my bowel movements have been softer since surgery? My PTH was 197 and now is 51 as of last week. My Question is this transition from the change in PTH level adjusting ? Many thanks 🙏 you are amazing and have gotten me through this ❤️
Hello Doc. I have low pth and normal calcium levels. You have any idea what s going one ?
My last calcium was 10.4, PTH 103, DEXA shows osteoporosis and I am currently passing a 2mm left side kidney stone. This is my 2nd time goung through this nightmare of a disease. I had a 4cm parathyroid adenoma and a right hemithyriodectomy removed in 2011. I also ended up with left lyrengeal nerve damage and admitted in ICU. A second ooeratuon has me feeling very uneasy. However, going through all the signs and symptoms and other issues isn't very heartwarming either. Thus is my 1st kidney stone. Oh my goodness...I just wanted to die😂. I will be 63 next month.
I hope that you have had some relief and improvement since you wrote your comment. ❤
Oh, dear, usaarmymedic1334, your story so touched me!🥺 I could feel your frustration. First, if you served as an army medic, thank you for your service; you don't deserve living life like this after all you gave. You've since had a birthday ~some 9 months ago... I so wonder what has transpired since then. Don't think many ppl come back to read reply but hope you do to see mine. On the very vague possibility that you see this.... I would love to hear from you. I too suffer from hyperparathyroid (at least that's what I think it is) symptoms but have not had it checked out yet; just basing it on (in my case) very high Ca++ and very high vit D levels, and don't take either of these exogenously. Well... if you see this, and are not afraid of replying, this is mine, without the spaces: t o u c h I n g s o l e s at y a h o o dot com. Thank you for sharing your story... Blessings, D
My Good God be with you, God can heal
I had my surgery 7 weeks ago two adenomas removed and left half of my thyroid due to a follicular adenoma( why so many adenomas I have one in my breast for 20:years also). My levels are all back to normal . So does that mean I’m cured and don’t have to hyperparathyroid disease anymore?
Which were ur levels before ? Mine 10.4 but doctor says fine
I sent you an email. I am being bounced around from Specialist to specialist with no answers I have every symptom hair loss nausea, heartburn, headaches, but my calcium keeps fluctuating. I am ready to give up! I can get out of bed due to the fatigue and heart palpitations. Over the last month Calcium 10.4 PTH 40, 2 weeks later 9.9 calcium PTH 50 vitamin D 17. 4 days ago Calcium 10.1 PTH 70 Vitamin D 40 (due to injection doctor said that was my issue.) Chloride is 112. I go back to the cardiologist on Monday to review my heart monitor results and a referral for a skeleton doctor for more tests.
Thank you for the amazing videos.
Only an Endocrinologist can confirm.
Hi can this also cause Afib ? Thank you
Thank you. I have hyperparathyroidism with normal calcium levels, and no adenoma visible after two ultrasounds and twoj nuclear scans over past four years. I have many of the symptoms listed, for four or more years now. All my other Bloodwork was fairly normal except for slightly low thyroid. I feel exhausted and somewhat weak, occasionally dizzy. I also have degenerative disk disease and some neuromuscular damage from spinal nerve root compression. I am frustrated with no apparent solution yet.
Are you sure you have hyperparathyroidism or hyperthyroidism?
The treatment of hyperparathyroidism is surgery ONLY, some times the adenoma in one or more hyperparathyroid glands are not seen on ct scan or US. Check online on Norman Parathyroid Center in Tampa, Florida, US; they are the specialists.They have videos in RUclips also.
who do I go see about this, as soon as 60 came around, everything went wrong, I broke my hip and femur, I cant sleep, I ache all over, Im tired all the time. I went to see an endocrinologist who wanted to put me on osteoporosis meds as I have esteopenia,they said my thyroid was normal without asking me any questions. Im waiting on a second opinion. ?
Thank you for this video! I was just diagnosed with hyperparathyroidism and had a CT scan, ultrasound, and a Nuclear Medicine scan however none of them show anything wrong with the parathyroids! I was suggested exploratory surgery which worries me. Do you suggest any other tests?
fibromyalgia misdiagnosed as this disease?
If my PTH intact result is 82, but my latest DEXA actually showed improvement, what is going on? When I was initially diagnosed, all my levels were normal except for PTH. My symptoms could be persistent weight loss, muscle fatigue and the fact that despite my being a dedicated vegan for 17 years and a lifter for 35 years, I have deflated into a sharpei puppy. I lost 35 pounds since menopause and can’t get it back. My face is aging much faster than it should. Despite drinking 2 liters of water daily (not including the litany of fresh produce snarfed down every day), I look dehydrated.
Is this part of the fun of the disease?!
So I don’t have to have my thyroid and parathyroid removed? My endocrinologist and primary care provider are very vague when explaining things and both said I need surgery instead of giving me the option of hormone therapy and iodine tabs. I just turned 30 on April 18th and I’m worried that if I don’t have my thyroid and parathyroid when I’m older I’ll have issues. I don’t want to be stuck on meds for the rest of my life after having the surgery, there’s gotta be another way.
Also if this is of any help I met with the endocrinologist for the first time today and was told I have a nodule on the left that 3.8 cm in length and 3.9 on the right and surgery is required if they’re at 4cm or over, since I have multiple and 2 are almost at 4cm they want to do complete removal of thyroid and parathyroid.
Thyroid is good? Did you run tests for T4/T3 and other thyroid hormones? If they are ok you don't need a remove of thyroid and for parathyroidectomy we have (the majority of population) 4 gland's you don't need to remove all if you do that you get hypoparathyroidism that is very dangerous.
This is ME!!!!
I swear! For years now I have joked with clients that no one ever told me that you don't grow old, you go to bed one night and wake up old! It just happens! ... Little did I realize that is actually a symptom of hyperparathyroidism. I'm not there yet but my calcium is high so they're checking pth. Even if that's not the problem, I may never joke about waking up old again. It's not a joke.
Can you, please , explain hyperparathyroidism and kidney stone relation in your video. PTH 82, normal blood calcium level 9.6,normal ionised calcium , elevated calcium in 24 hour urine test, repeated kidney stone, always left kidney. Started on thiazide now. Having parathyroid scan in 2 weeks.
Hi. Having had hyper parathyroid and an operation to remove it, the kidney stones were the trigger for the doc at the hospital to detect it. All the calcium in the blood is like sand, thus going through the kidneys and accumulating and creating the stones. Simple as that. Kidney stones can of course be due to bad diet… and diabetes etc. I have osteoporosis and osteopenia due to the super PTH levels and parathyroid issues that were probably present at least 3-4 years prior to detection. Good luck!
Hey doc. My mom told me she has this high Pth levels and somewhat normal calcium level which were high last time around abut seemed to be in the normal range now. However her pth is still high as per her doctor. She also mentioned doctor pitting some nodules on her thyroid but they also had to look at her parathyroid glands since pth is high. She does seem tired and and says little when I talk to her. She does seem to suffer from some of the symptoms you listed. How serious is this illness? Is it life treating? I am worried about her
You’re talking about me, Doctor! I am dealing with an 8mm kidney stone that has moved from my left kidney and is stuck in my ureter. I’m on 600mg of gabapentin at bedtime because I have such terrible burning in my thighs, torso, lower back. No one can figure out why! 😢 Joint pain, muscle aches, legs don’t work right and feel like lead. Extreme fatigue. Intact PTH has been as high as 134. Vitamin D has been as low as 11. Calcium is “normal”, so I’m considered secondary hyperparathyroidism. Calcium is in the 9’s. Has never gone over 10. A suspicious parathyroid growth or tumor has been detected on 2 scans but is being ignored by doctors. One scan was the sestamibi scan, one a thyroid ultrasound. I also have a tirads 5 thyroid nodule that I was told was cancerous when I had the FNA done (2 needles got clogged due to calcification, but the surgeon submitted clear fluid to pathology. Benign!). I want a second opinion. Now they found my endometrial lining is very thick and may be malignant. I have to go to the OR for the biopsy. It’s never ending! 😢 Could all of these hormonal diseases be related?? Help!! 😢 I just turned 64.
B1 deficiency contributes to hyperthyroidism, pain, etc
I’m sorry to hear what you’re going through. It sounds like you have normocalcemic hyperparathyroidism. I would need to do more labs to confirm. If you have kidney stones then you should have parathyroid surgery. And during parathyroid surgery the thyroid nodules can be biopsied (and sent to the pathologist during surgery to get an immediate answer) and if cancerous it can be addressed at the same time. Btw please have the urologist remove the kidney stones immediately
@@LarianMDDr Larian, thank you so much for responding to me. I have heard amazing things about you! If I had any way to get to you to be your actual patient, I’d be there. However, I do have an appointment with an endourologist on December 18th. I’m praying she wants to remove this large kidney stone immediately! I’ve also been told by a friend (she’s a dentist and your patient) that she thinks I have normocalcemic hyperparathyroidism. I don’t recognize myself in pictures. My memory is shot. I can’t sleep. I take everything personally. I’m up urinating all night. I feel like I’m a textbook case. Thank you for spelling everything out! Blessings! 🙏🏼❤️🩹❤️🩹🙏🏼
Is it common for symptoms to come and go? I think mine might be due to vitamin D deficiency, but need to talk to the doctor, i just had x rays and my bones are indicating this, but my blood calcium was normal. No constipation, in fact just the opposite, a little too easy to go. But yes, i feel like my mom who is in her 80's and I am 49. I am having bone pain, muscle pain, fatigue, insomnia, hypersomnia, headaces, brain fog, constant tingling in the legs, my face and tounge went numb yesterday for an hour. In fact i went to the ER thinking i was having chest pain, and my heart is fine. Even had an ultrasound done to rule out blood clots. But, i had crying fits the whole day, the nurse was concerned that "something else" was going on because i cried at everything. I was actually thinking i was bipolar because of the massive mood swings and inability to sleep. My last doctor, now retired, kept sending me to physical therapy and recommending antidepressants and Tylenol.
I had 3 and 1/2 of my parathyroid’s removed. Felt much better. Now2 yrs later in having the same symptoms. My PTH is very high again ( it was normal after the surgery) there going to do a sonogram to check but the dr I’m seeing now said he wouldn’t recommend removing the last part of that gland even if there is another adenoma. He thinks it would be worse to do that. Yett a friend had it done and she’s so much happier. I’m tired of just being treated with Vit D . There seems to be an old school thinking and a new school . I’m curious what your thoughts are.
Especially since I’m having so many what ideas call side affects from it. All the things you mentioned in this video
Hi Michelle, since you had 3.5 glands removed you must have parathyroid hyperplasia, which means all 4 glands were abnormal to begin with. It’s possible that the last half a gland left has grown now and is overproducing PTH and causing problems or you may be one of 20% of people who have 5 parathyroid glands. Ultrasound and 4D parathyroid CT scans can help figure that out. Your 2 options are surgery with an expert parathyroid surgeon or taking the medication Cinacalcet. Best wishes Babak
@@LarianMDcan you recommend an expert surgeon ?
Are there any hair symptoms with hyperparathyroid?
On my crown my scalp feels very itchy but not dry no dandruff...inflamed itchy and my hairs turning white and the hair is corse like straw.
Thank you so much this is amazing . What if you have Hashimotos and reactive hyperglycaemia and hypercalceamia am so unwell with all symptoms of above my calcium is around 2.67mmol other 5.00pmol feel like I can’t get help from drs they say mild hypercalceamia . And my too is >1300 . Am in uk and endocrinologist are not good . Please can you tell me difference between Pth and pthrp (parathyroid related peptide) which is 6.5pmol 😢❤
PTH is produced by parathyroid glands, while PTHrp is naturally produced by the body during pregnancy. PTHrp is also produced by some tumors that can mimic hyperparathyroidism
PTH is produced by the parathyroid glands, while PTHrp is produced in the mother’s body during pregnancy. PTHrp is also produced by certain tumors.
Thank you for your reply so grateful. By nhs range it should be less than 1.7 my endo has put this as my pth result so that’s not good and defo not pregnant I am 57 . Having very hard time and my tpo is >1300 and tg very very high to . but my pth fluctuates normal range and calcium fluctuates always boarder range or high . Thank you really for your help it’s hard to get help and am very unwell but seems can’t get them to listen and the fact they have misdiagnosed pthrp for pth results is not good .
🤗
Some people have a defective CaSR receptor due to gene defect (EXT1 and 2).
I have more or less all the symptoms but lab tests showed only PTH high …meaning ? Tsh and t3 ok but low t4 . Is it better ndt or sinthetic thyroid medicine. I don’t have whole thyroid and have been on medication for 6 years .Im getting sicker and sicker 😩
I’m 38 and high parathyroid level for almost about 2 yrs and I’m trying to have a second baby , is that something can effect a pregnancy ? Have seen dr.s never got a straight answer :/
What would cause Calcium to go into urine on the 24 urine test... thanks 😮
Can this cause seizures and movement disorders?
Mine is caused by lithium side effects, how does a doctor treat it?
I have slight elevation in calcium and 92.3 pth intact.
Is it possible to have muscle twitches with hyperparathyroidism? My endocrinologist says that it is not a symptom of hyperparathyroidism but I was recently diagnosed with hypercalcemia, still waiting to confirm hyperparathyroidism, and have had muscle twitches all over my body.
I have this always but havnt been diagnosed yet even though I have high pth
It’s not a typical symptom but often time hyperparathyroidism is combined with other deficiencies such as magnesium which may predispose to muscle twitches.
@@LarianMD I have chrones disease. Normal calcium and parathyroid over 120. Is the chrones causing a problem with absorption
Does ot make a difference when you test calcium? Fasted state , etc .
I have the very same question. Prior to having a C4-C7 my primary care doctor ordered a large panel of blood work, and my calcium was extremely high.
I had just had a bone density test that showed I already have osteopenia. There was enough concern that the surgery was almost cancelled. Not only did they fuse C4-C7, but they had to correct reverse curvature of the cervical spine. The neurosurgeon said that he could have done more, but wanted to leave me with some mobility.
I now have a herniated disc at C3-C2. I haven’t had any blood work done in a while. What should I have them look for when I have access to insurance?
I also have Occipital Neuralgia, and Dystonia of the scapular area. A herniated thoracic disc, and facet joint problems in my lower back. Could any of this be related to hypothyroidism, or an underlying case of hypoparathyroidism?
I was diagnosed with hypothyroidism at 30, 24 years ago. Life is pretty miserable. I was diagnosed with carpal tunnel at 16 in 1986, that was unheard of at the time.
I truly feel as if something has been missed for most of my life, any thoughts??
I need to know something about this disease can any one help me out of this
How to treat at 1st step
I am CKD HD patient i was diagnose with tertiary hyperparathyroidism 😢how to avoid this kind of disease? And is it true that its better to have a surgery w/c parathyroidectomy?
Unfortunately in the setting kidney failure and hemodialysis it is impossible to avoid tertiary HPT. If you live with the kidney failure long enough and not get a kidney transplant in time it will happen.
Secondary Hyperthyroidism with primary hyperthyroidism symptoms-phosphate normal. High intact pth 105 calcium 9.1 ckd3b
My dad had hyperparathyroid and I had graves I had iodine radiation for graves now my vitamin d is low
May vitamin D supplementation without calcium supplementation cause more harm than good by absorption of calcium from bone? Though it is learnt that indiscriminate use of OTC medication containing both calcium and Vitamin D is the third most common cause of hypercalcemia.
Vit D can be useful before parathyroidectomy to reduce the risk of HBS.
My sons calcium is 10.9 and he has all the symptoms. Doctor isnt concerned for the elevated calcium. We've been to many specialists no one has mentioned hyperparathyroid.
Also watch more of Dr. Larian. These are the only two places that seem to understand the real way to diagnose this disease. I wish I could see them
I used to jog 3-5 miles a day, then overnight everything changed. I couldn’t just go jog. I’m tired.
It’s crazy how much this disease can impact our body. You can reverse it though after surgery.
@@LarianMD I have ADPKD…. So, I’m not sure the cause exactly. Told to take vitamin D. VD normal now. Ca and phos normal.. PTH 138. I’m not sure how high is high or barely high.
Same as me ,I went from 10 km walks per day plus weight exercises,now I can hardly clean my house without getting exhausted
I have almost everyone of the symptoms. I'm being treated for high calcium in my urine ,having had prior kidney stones. Nephrologist just keeps pushing pills to control the high calcium. I know there is something causing it,ive asked and was told they dont know why it happens. Im a 50yo male.I need to find a doctor that will actually help me.
I am sorry for that, please visit Endocrinologist
I have been felling all that symptoms.
What about 10.4 female 36.
Yank out the gland and no other symptoms arise?
Yes
My grandma total ca. =14 ionized ca=8mg/dl
And PTH i=830 pg/ml
Other investigations normal
Patient now in icu for 1 day
What do you think the diagnosis might be doctor
Please help we are so worried😢
Is hyper thyroidism and parathyroid same?
No its not the same
is this is a permanent thing/abnormality which keep stuck throughout anybody's life? Kindly guide.
You can search “Hyperparathyroidism” on the search engine of your choice. ❤
No ,it can be reversed with the correct treatment , surgery is the answer
I have high pth but normal calcium. So how does that happen? Tumor?
If you repeat your labs calcium/pth/vitamin D several times fasting and at 8AM, and your calcium is always is normal and PTH is elevated, you may have normocalcemic hyperparathyroidism; but also must rule out other causes of high PTH. You’ll need a physician that understands these issues to comprehensively investigate.
Me 100% 😢
WOOOOOOOOOOOW!
THAT'S WHAT AT REAL DOCTOR IS LIKE!!!!
DAAAAMN!!
MY DOCTORS IN INDIA ARE FRIGGING IDIOTS!!
I'M GETTING MY PTH TEST DONE TOMORROW!!
I HAVE ALL OF THESE SYMPTOMS EXCEPT FREQUENT NIGHT URINATION AND KIDNEY STONES!!
Bam
❤