Cried when you said " just feel old all of a sudden" I had felt like I hit a wall.... your simple explanation of the disease is well appreciated. Had my surgery last week and looking forward to feeling better!
Thank you so much. You just broke down what my endocrinologist has been trying to tell me. I have been dealing with all of these symptoms and he is an amazing doctor here in KCMO. He just had not broken everything down the way you just did. The one thing that both of you have reassured me of is that it is CURABLE. I can finally get my life back. The depression was starting to take over and I was just about to give up. Thank you so much…this has really helped me.😢
Thank you so much. I just found out I have this because I'm vit D deficient and as a result have higher PTH levels. Your headline about feeling old is so me! Watching your explanation has made me feel normal, that I'm not going crazy as I literally have felt this feeling of not feeling up to the task as I used to. Thank you so much for sharing your knowledge in such a clear and kind way.
Almost all the symptoms here apply to me. I've literally been suffering with fatigue and other aches and pains for a long time, and severely the past year. I'm in the process of having many tests. This week is the nuclear scan. I can't wait to feel better. Thanks for confirming that I am not totally crazy, yet! Great video.
The visuals really helped me understand. Thank you! I’m a pre-50 postmenopausal woman with osteopenia, and several years with slightly elevated calcium levels but normal PTH levels. My endocrinologist ordered DNA testing to see if this is “normal” for me or if I need to move forward with surgery.
What a great and detailed explanation. I have been diagnosed with hyperparathyroidism and have an adenoma. They're still discussing my treatment options
Oh my. This is the information I have been looking for. Been trying to explain this to my Dr. 55 and been very active and within last 9 months I hit the wall.
I sent you an email. I am being bounced around from Specialist to specialist with no answers I have every symptom hair loss nausea, heartburn, headaches, but my calcium keeps fluctuating. I am ready to give up! I can get out of bed due to the fatigue and heart palpitations. Over the last month Calcium 10.4 PTH 40, 2 weeks later 9.9 calcium PTH 50 vitamin D 17. 4 days ago Calcium 10.1 PTH 70 Vitamin D 40 (due to injection doctor said that was my issue.) Chloride is 112. I go back to the cardiologist on Monday to review my heart monitor results and a referral for a skeleton doctor for more tests. Thank you for the amazing videos.
Hello ...I just had 1 large Adenoma removed ...by the way you were spot on with my numbers when you replied Back to me ....iam post 9 weeks my numbers are get no further supplements need vitamin D still a bit low at 39. I did want to ask I noticed my bowel movements have been softer since surgery? My PTH was 197 and now is 51 as of last week. My Question is this transition from the change in PTH level adjusting ? Many thanks 🙏 you are amazing and have gotten me through this ❤️
My last calcium was 10.4, PTH 103, DEXA shows osteoporosis and I am currently passing a 2mm left side kidney stone. This is my 2nd time goung through this nightmare of a disease. I had a 4cm parathyroid adenoma and a right hemithyriodectomy removed in 2011. I also ended up with left lyrengeal nerve damage and admitted in ICU. A second ooeratuon has me feeling very uneasy. However, going through all the signs and symptoms and other issues isn't very heartwarming either. Thus is my 1st kidney stone. Oh my goodness...I just wanted to die😂. I will be 63 next month.
Oh, dear, usaarmymedic1334, your story so touched me!🥺 I could feel your frustration. First, if you served as an army medic, thank you for your service; you don't deserve living life like this after all you gave. You've since had a birthday ~some 9 months ago... I so wonder what has transpired since then. Don't think many ppl come back to read reply but hope you do to see mine. On the very vague possibility that you see this.... I would love to hear from you. I too suffer from hyperparathyroid (at least that's what I think it is) symptoms but have not had it checked out yet; just basing it on (in my case) very high Ca++ and very high vit D levels, and don't take either of these exogenously. Well... if you see this, and are not afraid of replying, this is mine, without the spaces: t o u c h I n g s o l e s at y a h o o dot com. Thank you for sharing your story... Blessings, D
Watched twice. It took nearly 5 years to be diagnosed with Hyperparathyroidism. Bone pain was often dismissed although I did get my arm xrayed to rule out break or fracture. Fatigue I thought was because I was working hard whilst coping with bone pain. Confusion I put down to general weariness, not sleeping well. One year before my diagnosis I had a blood test that showed high blood calcium, I was given a letter by my doctor to have one week off work and to rest. There were obvious signs and complaints and still the diagnosis took so long
who do I go see about this, as soon as 60 came around, everything went wrong, I broke my hip and femur, I cant sleep, I ache all over, Im tired all the time. I went to see an endocrinologist who wanted to put me on osteoporosis meds as I have esteopenia,they said my thyroid was normal without asking me any questions. Im waiting on a second opinion. ?
This was great information. Both my sister's have had this and now I am not doing so well and trying to get my doctor to check this out, but he is being resistant. It is very frustrating for me to feel horrible and not be getting help.
Hi. I have a 3cm parathyroid adenoma and despite taking medication, my blood calcium is 3.05 (European numbers) I am having surgery next week, but they think it’s cancer because the tumor is palpable and visible, plus high PTH and blood calcium started at 3.74 (EU) and was admitted to emergency due to a kidney stone. Got a stent, stayed 1 week in hospital to bring calcium down. Kidney stent taken out 1 month later. But stone broke, but didn't pass yet. Had laser blast, but didn't help much. I am tired, so tired, have muscle bone pain for more than 2-3 years and yes, got that I am old now, all of a sudden. I am 62, not diabetic, otherwise healthy, but my legs, feet, ankles are in pain. Sometimes, it hurts to walk. I do my 10,000 or more daily steps cuz I don't want to atrophy… Can’t wait to get this out!
Hi. It took 3 weeks for pathology to figure it out. It was my parathyroid which was INSIDE my thyroid (from birth apparently) and no adenoma, no cyst or tumor, but the actual parathyroid which just grew out of proportion and causing the hyperparathyroidism probably for a few years. Go figure.
@@carollemieux7474 hi. I got the operation and it took 3 weeks for the biopsy. It was not cancer but the actual parathyroid that had grown inside my thyroid. Very unique and rare occurrence, thus the time for the biopsy. I had a little over a third of the thyroid removed with it, but all my numbers went to normal after the operation. I will have to take calcium and other minerals and vitamins to try to make up for the years of draining calcium from my bones, hopefully reversing my osteoporosis and osteopenia. I feel so much better, no more pain in my bones and muscles. Thanks for your words of support.
I think you may have just cured me! I have frequent urination and constipation but I couldnt understand why me lacking calcium would lead to more urine output. It seemed counter productive but lacking the muscle ability to empty the bladder makes total sense! Also explains why ive been constipated and feeling weak in the gym! Think i still have to optimize magnesium and vitamin D since its all correlated but at least I know the issue! Thank you!!!!
Told my doctor all the symptoms about pain in my elbows and knees, muscle twitches, insomnia cause i keep getting up to pee, etc… and he refered me to a chiropractor… BRUH. Can you be my doctor lol
This was a very informative video.Thank you. I had this surgery on Monday. My only problem is a burning throat from the breathing tube. They also had some monitoring device that went off if he got too close to the Laryngeal nerve.
I'm 39(m) and majority of the symptoms I have...can that trigger ADHD as well? In my early 20s I had a seizure and the cause was calcium build up in my brain. My Endocrinologist here in Sydney perscribed me Rocalcitrol 1 capsule twice day along side with magnesium and calcium supplments but the older I get. The less enthusiastic in life I feel I used to do many things when I was young now I stay home more and go bowling once a week since Im in a league, i'm not a social butterfly though. Only leave hte house when needed either to bye meds/shopping or doctors.
I somehow became lactose intolerant a couple years ago, so recently I looked at my diet and realized there is no way I'm getting enough calcium in my diet causing my parathyroid to over compensate. The suddenly feeling old title and all of the symptoms are spot on, even in the order he listed them in. Hopefully calcium supplement will help and going to doctor for deficiency blood panel.
I had 3 and 1/2 of my parathyroid’s removed. Felt much better. Now2 yrs later in having the same symptoms. My PTH is very high again ( it was normal after the surgery) there going to do a sonogram to check but the dr I’m seeing now said he wouldn’t recommend removing the last part of that gland even if there is another adenoma. He thinks it would be worse to do that. Yett a friend had it done and she’s so much happier. I’m tired of just being treated with Vit D . There seems to be an old school thinking and a new school . I’m curious what your thoughts are. Especially since I’m having so many what ideas call side affects from it. All the things you mentioned in this video
Hi Michelle, since you had 3.5 glands removed you must have parathyroid hyperplasia, which means all 4 glands were abnormal to begin with. It’s possible that the last half a gland left has grown now and is overproducing PTH and causing problems or you may be one of 20% of people who have 5 parathyroid glands. Ultrasound and 4D parathyroid CT scans can help figure that out. Your 2 options are surgery with an expert parathyroid surgeon or taking the medication Cinacalcet. Best wishes Babak
So I don’t have to have my thyroid and parathyroid removed? My endocrinologist and primary care provider are very vague when explaining things and both said I need surgery instead of giving me the option of hormone therapy and iodine tabs. I just turned 30 on April 18th and I’m worried that if I don’t have my thyroid and parathyroid when I’m older I’ll have issues. I don’t want to be stuck on meds for the rest of my life after having the surgery, there’s gotta be another way.
Also if this is of any help I met with the endocrinologist for the first time today and was told I have a nodule on the left that 3.8 cm in length and 3.9 on the right and surgery is required if they’re at 4cm or over, since I have multiple and 2 are almost at 4cm they want to do complete removal of thyroid and parathyroid.
I had my surgery 7 weeks ago two adenomas removed and left half of my thyroid due to a follicular adenoma( why so many adenomas I have one in my breast for 20:years also). My levels are all back to normal . So does that mean I’m cured and don’t have to hyperparathyroid disease anymore?
Can you, please , explain hyperparathyroidism and kidney stone relation in your video. PTH 82, normal blood calcium level 9.6,normal ionised calcium , elevated calcium in 24 hour urine test, repeated kidney stone, always left kidney. Started on thiazide now. Having parathyroid scan in 2 weeks.
Hi. Having had hyper parathyroid and an operation to remove it, the kidney stones were the trigger for the doc at the hospital to detect it. All the calcium in the blood is like sand, thus going through the kidneys and accumulating and creating the stones. Simple as that. Kidney stones can of course be due to bad diet… and diabetes etc. I have osteoporosis and osteopenia due to the super PTH levels and parathyroid issues that were probably present at least 3-4 years prior to detection. Good luck!
It’s not a particular level that you are looking for. You want your calcium and PTH to respond to each other appropriately. And be mostly in the normal range.
My calcium has slowly increased now to 10.9snd PTH bounces all over high to higher end of normal ,I was told I have mild hyperparathyroidism, after watching this I have an appointment with a specialist surgeon in new Zealand My anxiety levels and depression are really high@@LarianMD
Thank you so much this is amazing . What if you have Hashimotos and reactive hyperglycaemia and hypercalceamia am so unwell with all symptoms of above my calcium is around 2.67mmol other 5.00pmol feel like I can’t get help from drs they say mild hypercalceamia . And my too is >1300 . Am in uk and endocrinologist are not good . Please can you tell me difference between Pth and pthrp (parathyroid related peptide) which is 6.5pmol 😢❤
PTH is produced by parathyroid glands, while PTHrp is naturally produced by the body during pregnancy. PTHrp is also produced by some tumors that can mimic hyperparathyroidism
Thank you for your reply so grateful. By nhs range it should be less than 1.7 my endo has put this as my pth result so that’s not good and defo not pregnant I am 57 . Having very hard time and my tpo is >1300 and tg very very high to . but my pth fluctuates normal range and calcium fluctuates always boarder range or high . Thank you really for your help it’s hard to get help and am very unwell but seems can’t get them to listen and the fact they have misdiagnosed pthrp for pth results is not good . 🤗
I am CKD HD patient i was diagnose with tertiary hyperparathyroidism 😢how to avoid this kind of disease? And is it true that its better to have a surgery w/c parathyroidectomy?
Unfortunately in the setting kidney failure and hemodialysis it is impossible to avoid tertiary HPT. If you live with the kidney failure long enough and not get a kidney transplant in time it will happen.
I am having all of these symptoms plus my PTH is high and I have osteopenia. I don’t know about my calcium level yet. I also have a nodule on my left thyroid lobe that I will have biopsied this week. My endocrinologist asked me what was going on with my THP and osteopenia (how am I supposed to know). How can I get her to look into my parathyroid glands?
Sorry you’re going through this. Ask your doc to get calcium/pth/vitamin D labs at the same time. It will show you if your parathyroid glands are malfunctioning.
Hi Doctor Larian I have been diagnosed with FHH several years ago I just recently had my PTH and labs taken again The results came back, and my PTH level was high at 71.9 my blood calcium is 11.2 my vitamin D level 38.8 Could you help me understand why my PTH level is high even though I have Familial hypocalciuric hypercalcemia thank you 🙏🏼
My sons calcium is 10.9 and he has all the symptoms. Doctor isnt concerned for the elevated calcium. We've been to many specialists no one has mentioned hyperparathyroid.
I have almost everyone of the symptoms. I'm being treated for high calcium in my urine ,having had prior kidney stones. Nephrologist just keeps pushing pills to control the high calcium. I know there is something causing it,ive asked and was told they dont know why it happens. Im a 50yo male.I need to find a doctor that will actually help me.
I have the very same question. Prior to having a C4-C7 my primary care doctor ordered a large panel of blood work, and my calcium was extremely high. I had just had a bone density test that showed I already have osteopenia. There was enough concern that the surgery was almost cancelled. Not only did they fuse C4-C7, but they had to correct reverse curvature of the cervical spine. The neurosurgeon said that he could have done more, but wanted to leave me with some mobility. I now have a herniated disc at C3-C2. I haven’t had any blood work done in a while. What should I have them look for when I have access to insurance? I also have Occipital Neuralgia, and Dystonia of the scapular area. A herniated thoracic disc, and facet joint problems in my lower back. Could any of this be related to hypothyroidism, or an underlying case of hypoparathyroidism? I was diagnosed with hypothyroidism at 30, 24 years ago. Life is pretty miserable. I was diagnosed with carpal tunnel at 16 in 1986, that was unheard of at the time. I truly feel as if something has been missed for most of my life, any thoughts??
Thank you. I have hyperparathyroidism with normal calcium levels, and no adenoma visible after two ultrasounds and twoj nuclear scans over past four years. I have many of the symptoms listed, for four or more years now. All my other Bloodwork was fairly normal except for slightly low thyroid. I feel exhausted and somewhat weak, occasionally dizzy. I also have degenerative disk disease and some neuromuscular damage from spinal nerve root compression. I am frustrated with no apparent solution yet.
Are you sure you have hyperparathyroidism or hyperthyroidism? The treatment of hyperparathyroidism is surgery ONLY, some times the adenoma in one or more hyperparathyroid glands are not seen on ct scan or US. Check online on Norman Parathyroid Center in Tampa, Florida, US; they are the specialists.They have videos in RUclips also.
@@LarianMD I have ADPKD…. So, I’m not sure the cause exactly. Told to take vitamin D. VD normal now. Ca and phos normal.. PTH 138. I’m not sure how high is high or barely high.
If you repeat your labs calcium/pth/vitamin D several times fasting and at 8AM, and your calcium is always is normal and PTH is elevated, you may have normocalcemic hyperparathyroidism; but also must rule out other causes of high PTH. You’ll need a physician that understands these issues to comprehensively investigate.
Cried when you said " just feel old all of a sudden" I had felt like I hit a wall.... your simple explanation of the disease is well appreciated. Had my surgery last week and looking forward to feeling better!
Thank you so much. You just broke down what my endocrinologist has been trying to tell me. I have been dealing with all of these symptoms and he is an amazing doctor here in KCMO. He just had not broken everything down the way you just did. The one thing that both of you have reassured me of is that it is CURABLE. I can finally get my life back. The depression was starting to take over and I was just about to give up. Thank you so much…this has really helped me.😢
Thank you so much. I just found out I have this because I'm vit D deficient and as a result have higher PTH levels. Your headline about feeling old is so me! Watching your explanation has made me feel normal, that I'm not going crazy as I literally have felt this feeling of not feeling up to the task as I used to. Thank you so much for sharing your knowledge in such a clear and kind way.
This is me too! Old so fast😢
Brilliant , well done, to the point and most appreciated.
Almost all the symptoms here apply to me. I've literally been suffering with fatigue and other aches and pains for a long time, and severely the past year. I'm in the process of having many tests. This week is the nuclear scan. I can't wait to feel better. Thanks for confirming that I am not totally crazy, yet! Great video.
Excellent video … thank you.
The visuals really helped me understand. Thank you! I’m a pre-50 postmenopausal woman with osteopenia, and several years with slightly elevated calcium levels but normal PTH levels. My endocrinologist ordered DNA testing to see if this is “normal” for me or if I need to move forward with surgery.
Thank you. Excellent video.
What a great and detailed explanation. I have been diagnosed with hyperparathyroidism and have an adenoma. They're still discussing my treatment options
The treatment is surgery
Thank you!
Bless you Dr
Thank you. Everything is correct. I feel all the symptoms 😢
it sounds so much like diabetes as well,
Can you do a video on the symptoms, and signaling of, calcium vs PTH in primaryHPTD?
All four of my parathyroid were bad so I have a new one in my forearm. When will it start working?
Oh my. This is the information I have been looking for. Been trying to explain this to my Dr. 55 and been very active and within last 9 months I hit the wall.
Been running high 10’s and over 11 on calc labs with PTH of 37. The rollercoaster of vague symptoms may finally have answer
I sent you an email. I am being bounced around from Specialist to specialist with no answers I have every symptom hair loss nausea, heartburn, headaches, but my calcium keeps fluctuating. I am ready to give up! I can get out of bed due to the fatigue and heart palpitations. Over the last month Calcium 10.4 PTH 40, 2 weeks later 9.9 calcium PTH 50 vitamin D 17. 4 days ago Calcium 10.1 PTH 70 Vitamin D 40 (due to injection doctor said that was my issue.) Chloride is 112. I go back to the cardiologist on Monday to review my heart monitor results and a referral for a skeleton doctor for more tests.
Thank you for the amazing videos.
Hello ...I just had 1 large Adenoma removed ...by the way you were spot on with my numbers when you replied Back to me ....iam post 9 weeks my numbers are get no further supplements need vitamin D still a bit low at 39. I did want to ask I noticed my bowel movements have been softer since surgery? My PTH was 197 and now is 51 as of last week. My Question is this transition from the change in PTH level adjusting ? Many thanks 🙏 you are amazing and have gotten me through this ❤️
My last calcium was 10.4, PTH 103, DEXA shows osteoporosis and I am currently passing a 2mm left side kidney stone. This is my 2nd time goung through this nightmare of a disease. I had a 4cm parathyroid adenoma and a right hemithyriodectomy removed in 2011. I also ended up with left lyrengeal nerve damage and admitted in ICU. A second ooeratuon has me feeling very uneasy. However, going through all the signs and symptoms and other issues isn't very heartwarming either. Thus is my 1st kidney stone. Oh my goodness...I just wanted to die😂. I will be 63 next month.
I hope that you have had some relief and improvement since you wrote your comment. ❤
Oh, dear, usaarmymedic1334, your story so touched me!🥺 I could feel your frustration. First, if you served as an army medic, thank you for your service; you don't deserve living life like this after all you gave. You've since had a birthday ~some 9 months ago... I so wonder what has transpired since then. Don't think many ppl come back to read reply but hope you do to see mine. On the very vague possibility that you see this.... I would love to hear from you. I too suffer from hyperparathyroid (at least that's what I think it is) symptoms but have not had it checked out yet; just basing it on (in my case) very high Ca++ and very high vit D levels, and don't take either of these exogenously. Well... if you see this, and are not afraid of replying, this is mine, without the spaces: t o u c h I n g s o l e s at y a h o o dot com. Thank you for sharing your story... Blessings, D
Watched twice. It took nearly 5 years to be diagnosed with Hyperparathyroidism. Bone pain was often dismissed although I did get my arm xrayed to rule out break or fracture. Fatigue I thought was because I was working hard whilst coping with bone pain. Confusion I put down to general weariness, not sleeping well. One year before my diagnosis I had a blood test that showed high blood calcium, I was given a letter by my doctor to have one week off work and to rest. There were obvious signs and complaints and still the diagnosis took so long
who do I go see about this, as soon as 60 came around, everything went wrong, I broke my hip and femur, I cant sleep, I ache all over, Im tired all the time. I went to see an endocrinologist who wanted to put me on osteoporosis meds as I have esteopenia,they said my thyroid was normal without asking me any questions. Im waiting on a second opinion. ?
This was great information. Both my sister's have had this and now I am not doing so well and trying to get my doctor to check this out, but he is being resistant. It is very frustrating for me to feel horrible and not be getting help.
You should look a parathyroid surgeon that takes a keen interest in treating hyperparathyroidism
Can it affect your ph levels
Hi. I have a 3cm parathyroid adenoma and despite taking medication, my blood calcium is 3.05 (European numbers) I am having surgery next week, but they think it’s cancer because the tumor is palpable and visible, plus high PTH and blood calcium started at 3.74 (EU) and was admitted to emergency due to a kidney stone. Got a stent, stayed 1 week in hospital to bring calcium down. Kidney stent taken out 1 month later. But stone broke, but didn't pass yet. Had laser blast, but didn't help much. I am tired, so tired, have muscle bone pain for more than 2-3 years and yes, got that I am old now, all of a sudden. I am 62, not diabetic, otherwise healthy, but my legs, feet, ankles are in pain. Sometimes, it hurts to walk. I do my 10,000 or more daily steps cuz I don't want to atrophy… Can’t wait to get this out!
Hi. It took 3 weeks for pathology to figure it out. It was my parathyroid which was INSIDE my thyroid (from birth apparently) and no adenoma, no cyst or tumor, but the actual parathyroid which just grew out of proportion and causing the hyperparathyroidism probably for a few years. Go figure.
Your message is from a while ago, but I hope you've gotten better in the past 10 months. You're not alone--we're pulling for you.❤
@@carollemieux7474 hi. I got the operation and it took 3 weeks for the biopsy. It was not cancer but the actual parathyroid that had grown inside my thyroid. Very unique and rare occurrence, thus the time for the biopsy. I had a little over a third of the thyroid removed with it, but all my numbers went to normal after the operation. I will have to take calcium and other minerals and vitamins to try to make up for the years of draining calcium from my bones, hopefully reversing my osteoporosis and osteopenia.
I feel so much better, no more pain in my bones and muscles.
Thanks for your words of support.
Great explanation of hyperparathyroidism. Is it true that it is more common in women than men?
Yes, it is
Yes
What would cause Calcium to go into urine on the 24 urine test... thanks 😮
Some people have a defective CaSR receptor due to gene defect (EXT1 and 2).
This is ME!!!!
I think you may have just cured me! I have frequent urination and constipation but I couldnt understand why me lacking calcium would lead to more urine output. It seemed counter productive but lacking the muscle ability to empty the bladder makes total sense! Also explains why ive been constipated and feeling weak in the gym! Think i still have to optimize magnesium and vitamin D since its all correlated but at least I know the issue!
Thank you!!!!
Told my doctor all the symptoms about pain in my elbows and knees, muscle twitches, insomnia cause i keep getting up to pee, etc… and he refered me to a chiropractor… BRUH. Can you be my doctor lol
This was a very informative video.Thank you. I had this surgery on Monday. My only problem is a burning throat from the breathing tube. They also had some monitoring device that went off if he got too close to the Laryngeal nerve.
That's amazing, I didn't know that was available. Best wishes for your quick and complete recovery.
I'm 39(m) and majority of the symptoms I have...can that trigger ADHD as well? In my early 20s I had a seizure and the cause was calcium build up in my brain. My Endocrinologist here in Sydney perscribed me Rocalcitrol 1 capsule twice day along side with magnesium and calcium supplments but the older I get. The less enthusiastic in life I feel I used to do many things when I was young now I stay home more and go bowling once a week since Im in a league, i'm not a social butterfly though. Only leave hte house when needed either to bye meds/shopping or doctors.
I had to stop working! I’m still after a year without a diagnosis! Elevated PHT but not calcium so no treatment or any treatment!
Exactly how i feel 😪
What about 10.4 female 36.
I somehow became lactose intolerant a couple years ago, so recently I looked at my diet and realized there is no way I'm getting enough calcium in my diet causing my parathyroid to over compensate. The suddenly feeling old title and all of the symptoms are spot on, even in the order he listed them in. Hopefully calcium supplement will help and going to doctor for deficiency blood panel.
Hopefully, I have seen a lot of patients that all they needed was appropriate calcium supplementation. Good luck
@@LarianMD so you take calcium with high blood calcium levels?
I had 3 and 1/2 of my parathyroid’s removed. Felt much better. Now2 yrs later in having the same symptoms. My PTH is very high again ( it was normal after the surgery) there going to do a sonogram to check but the dr I’m seeing now said he wouldn’t recommend removing the last part of that gland even if there is another adenoma. He thinks it would be worse to do that. Yett a friend had it done and she’s so much happier. I’m tired of just being treated with Vit D . There seems to be an old school thinking and a new school . I’m curious what your thoughts are.
Especially since I’m having so many what ideas call side affects from it. All the things you mentioned in this video
Hi Michelle, since you had 3.5 glands removed you must have parathyroid hyperplasia, which means all 4 glands were abnormal to begin with. It’s possible that the last half a gland left has grown now and is overproducing PTH and causing problems or you may be one of 20% of people who have 5 parathyroid glands. Ultrasound and 4D parathyroid CT scans can help figure that out. Your 2 options are surgery with an expert parathyroid surgeon or taking the medication Cinacalcet. Best wishes Babak
@@LarianMDcan you recommend an expert surgeon ?
So I don’t have to have my thyroid and parathyroid removed? My endocrinologist and primary care provider are very vague when explaining things and both said I need surgery instead of giving me the option of hormone therapy and iodine tabs. I just turned 30 on April 18th and I’m worried that if I don’t have my thyroid and parathyroid when I’m older I’ll have issues. I don’t want to be stuck on meds for the rest of my life after having the surgery, there’s gotta be another way.
Also if this is of any help I met with the endocrinologist for the first time today and was told I have a nodule on the left that 3.8 cm in length and 3.9 on the right and surgery is required if they’re at 4cm or over, since I have multiple and 2 are almost at 4cm they want to do complete removal of thyroid and parathyroid.
I had my surgery 7 weeks ago two adenomas removed and left half of my thyroid due to a follicular adenoma( why so many adenomas I have one in my breast for 20:years also). My levels are all back to normal . So does that mean I’m cured and don’t have to hyperparathyroid disease anymore?
Which were ur levels before ? Mine 10.4 but doctor says fine
Can you, please , explain hyperparathyroidism and kidney stone relation in your video. PTH 82, normal blood calcium level 9.6,normal ionised calcium , elevated calcium in 24 hour urine test, repeated kidney stone, always left kidney. Started on thiazide now. Having parathyroid scan in 2 weeks.
Hi. Having had hyper parathyroid and an operation to remove it, the kidney stones were the trigger for the doc at the hospital to detect it. All the calcium in the blood is like sand, thus going through the kidneys and accumulating and creating the stones. Simple as that. Kidney stones can of course be due to bad diet… and diabetes etc. I have osteoporosis and osteopenia due to the super PTH levels and parathyroid issues that were probably present at least 3-4 years prior to detection. Good luck!
What serum levels should you expect to see and what test should be run?
It’s not a particular level that you are looking for. You want your calcium and PTH to respond to each other appropriately. And be mostly in the normal range.
The blood test is the CMP
My calcium has slowly increased now to 10.9snd PTH bounces all over high to higher end of normal ,I was told I have mild hyperparathyroidism, after watching this I have an appointment with a specialist surgeon in new Zealand
My anxiety levels and depression are really high@@LarianMD
Thank you so much this is amazing . What if you have Hashimotos and reactive hyperglycaemia and hypercalceamia am so unwell with all symptoms of above my calcium is around 2.67mmol other 5.00pmol feel like I can’t get help from drs they say mild hypercalceamia . And my too is >1300 . Am in uk and endocrinologist are not good . Please can you tell me difference between Pth and pthrp (parathyroid related peptide) which is 6.5pmol 😢❤
PTH is produced by parathyroid glands, while PTHrp is naturally produced by the body during pregnancy. PTHrp is also produced by some tumors that can mimic hyperparathyroidism
PTH is produced by the parathyroid glands, while PTHrp is produced in the mother’s body during pregnancy. PTHrp is also produced by certain tumors.
Thank you for your reply so grateful. By nhs range it should be less than 1.7 my endo has put this as my pth result so that’s not good and defo not pregnant I am 57 . Having very hard time and my tpo is >1300 and tg very very high to . but my pth fluctuates normal range and calcium fluctuates always boarder range or high . Thank you really for your help it’s hard to get help and am very unwell but seems can’t get them to listen and the fact they have misdiagnosed pthrp for pth results is not good .
🤗
Are there any hair symptoms with hyperparathyroid?
On my crown my scalp feels very itchy but not dry no dandruff...inflamed itchy and my hairs turning white and the hair is corse like straw.
I am CKD HD patient i was diagnose with tertiary hyperparathyroidism 😢how to avoid this kind of disease? And is it true that its better to have a surgery w/c parathyroidectomy?
Unfortunately in the setting kidney failure and hemodialysis it is impossible to avoid tertiary HPT. If you live with the kidney failure long enough and not get a kidney transplant in time it will happen.
I am having all of these symptoms plus my PTH is high and I have osteopenia. I don’t know about my calcium level yet. I also have a nodule on my left thyroid lobe that I will have biopsied this week. My endocrinologist asked me what was going on with my THP and osteopenia (how am I supposed to know). How can I get her to look into my parathyroid glands?
Sorry you’re going through this. Ask your doc to get calcium/pth/vitamin D labs at the same time. It will show you if your parathyroid glands are malfunctioning.
Hi Doctor Larian
I have been diagnosed with FHH several years ago
I just recently had my PTH and labs taken again
The results came back, and my PTH level was high at 71.9 my blood calcium is 11.2 my vitamin D level 38.8
Could you help me understand why my PTH level is high even though I have Familial hypocalciuric hypercalcemia thank you 🙏🏼
@@I-am-the-light-in-the-dark If your PTH is persistently high, then you may also have hyperparathyroidism in addition to FHH
@@LarianMD thank you
My sons calcium is 10.9 and he has all the symptoms. Doctor isnt concerned for the elevated calcium. We've been to many specialists no one has mentioned hyperparathyroid.
Also watch more of Dr. Larian. These are the only two places that seem to understand the real way to diagnose this disease. I wish I could see them
I have almost everyone of the symptoms. I'm being treated for high calcium in my urine ,having had prior kidney stones. Nephrologist just keeps pushing pills to control the high calcium. I know there is something causing it,ive asked and was told they dont know why it happens. Im a 50yo male.I need to find a doctor that will actually help me.
I am sorry for that, please visit Endocrinologist
I have been felling all that symptoms.
Does ot make a difference when you test calcium? Fasted state , etc .
I have the very same question. Prior to having a C4-C7 my primary care doctor ordered a large panel of blood work, and my calcium was extremely high.
I had just had a bone density test that showed I already have osteopenia. There was enough concern that the surgery was almost cancelled. Not only did they fuse C4-C7, but they had to correct reverse curvature of the cervical spine. The neurosurgeon said that he could have done more, but wanted to leave me with some mobility.
I now have a herniated disc at C3-C2. I haven’t had any blood work done in a while. What should I have them look for when I have access to insurance?
I also have Occipital Neuralgia, and Dystonia of the scapular area. A herniated thoracic disc, and facet joint problems in my lower back. Could any of this be related to hypothyroidism, or an underlying case of hypoparathyroidism?
I was diagnosed with hypothyroidism at 30, 24 years ago. Life is pretty miserable. I was diagnosed with carpal tunnel at 16 in 1986, that was unheard of at the time.
I truly feel as if something has been missed for most of my life, any thoughts??
Is hyper thyroidism and parathyroid same?
No its not the same
Thank you. I have hyperparathyroidism with normal calcium levels, and no adenoma visible after two ultrasounds and twoj nuclear scans over past four years. I have many of the symptoms listed, for four or more years now. All my other Bloodwork was fairly normal except for slightly low thyroid. I feel exhausted and somewhat weak, occasionally dizzy. I also have degenerative disk disease and some neuromuscular damage from spinal nerve root compression. I am frustrated with no apparent solution yet.
Are you sure you have hyperparathyroidism or hyperthyroidism?
The treatment of hyperparathyroidism is surgery ONLY, some times the adenoma in one or more hyperparathyroid glands are not seen on ct scan or US. Check online on Norman Parathyroid Center in Tampa, Florida, US; they are the specialists.They have videos in RUclips also.
Secondary Hyperthyroidism with primary hyperthyroidism symptoms-phosphate normal. High intact pth 105 calcium 9.1 ckd3b
I used to jog 3-5 miles a day, then overnight everything changed. I couldn’t just go jog. I’m tired.
It’s crazy how much this disease can impact our body. You can reverse it though after surgery.
@@LarianMD I have ADPKD…. So, I’m not sure the cause exactly. Told to take vitamin D. VD normal now. Ca and phos normal.. PTH 138. I’m not sure how high is high or barely high.
Same as me ,I went from 10 km walks per day plus weight exercises,now I can hardly clean my house without getting exhausted
Bam
is this is a permanent thing/abnormality which keep stuck throughout anybody's life? Kindly guide.
You can search “Hyperparathyroidism” on the search engine of your choice. ❤
No ,it can be reversed with the correct treatment , surgery is the answer
I have high pth but normal calcium. So how does that happen? Tumor?
If you repeat your labs calcium/pth/vitamin D several times fasting and at 8AM, and your calcium is always is normal and PTH is elevated, you may have normocalcemic hyperparathyroidism; but also must rule out other causes of high PTH. You’ll need a physician that understands these issues to comprehensively investigate.
Me 100% 😢