Waiting Over a Year for an Autism Diagnosis: Families Say the Government Has Let Them Down

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  • Опубликовано: 1 апр 2024
  • Today sees the start of World Autism Acceptance Week, and families say the government has let them down at every turn. There's been a huge jump in the number of people waiting for an autism diagnosis on the NHS. Quarterly figures released by the NHS in March, show that last year it rose by 47%.
    Kelly Burley tells GMB about how she has been told that her daughter will have to wait between 84 and 89 weeks for an initial assessment.
    Presenter Chris Packham, who was diagnosed with Asperger’s Syndrome when he was in his 40s, explains the impact of getting a diagnosis has had on him and his life.
    Broadcast on 02/04/24
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Комментарии • 142

  • @nicolabrown4574
    @nicolabrown4574 Месяц назад +30

    It took 7 years from referral to diagnosis for my son. He was referred when he was 11 and diagnosed by 18! Most parents would be glad if it only took a year!

    • @bowjana8128
      @bowjana8128 Месяц назад +3

      It's just because parents want more benefits

    • @Tiggysmum
      @Tiggysmum Месяц назад

      @@bowjana8128nothing to do with wanting more benefits,it’s to help get the RIGHT support at school or at home. Understanding their needs. If u watched the film the mother of 2 children with autism explains.

    • @annastybeach9064
      @annastybeach9064 Месяц назад +2

      I can see how they would try and do that, but you can't fake it forever ;)

    • @user-po4nu4xo4m
      @user-po4nu4xo4m Месяц назад

      My Granddaughter was suffering and so unhappy. She new she was different but didn't know why. She had terrible melt downs self harming and we, her family, were not happy to wait a year we wanted her to be diagnosed much quicker and there was an option Go Private

    • @user-po4nu4xo4m
      @user-po4nu4xo4m Месяц назад +2

      If someone with autism gets benefits it's to help them get through their life.
      You cannot fake autism - not fittings in, having no friends, having melt downs, wishing you were dead to name a few. A professional would recognise the signs

  • @chrisburns1322
    @chrisburns1322 Месяц назад +9

    We seem to be obsessed with children with autism when in reality most services stop after someone reaches adulthood.there is serious issue in terms of how we neglect autism.

  • @heatherlinnette189
    @heatherlinnette189 Месяц назад +8

    My sister has two autistic children, both diagnosed, one more severe than the other. Her third child is on the waiting list to be diagnosed with autism. He’s been on that list for well over a year, there is no end in sight for him having a diagnosis. When she’s rung them up on it, they’ve said they don’t know when it would be, but he’s on the list. As he’s going to turn 16 and can refuse medical help within the next year, my sister has decided to go private. She’s lucky that she can afford to pay the fees it’s over £4000 for private assessment. A lot of people don’t have this type of money. But she feels like she’s been left with no choice. I myself have two autistic children, one diagnosed with autism, one diagnosed with Asperger’s. My older daughter had lots of problems as a child, but nobody suggested it was autism. She went off to university, thinking she could do it, and it nearly ended her. So she took two years out and tried to go back to university again, with in six weeks of being back at university. She was there, trying to end her own life. The psychiatrist decided that she had autism, but they’re not allowed to give an official diagnosis cause they’re not trained within autism. It then took five years! for my daughter to finally get a diagnosis. Her GP put on the medication that she would need if she was diagnosed with autism or what was wrong with her mental health. But the problem is with her mental health come about because she didn’t know who she was. She didn’t know why she was so different and why she couldn’t cope when everyone else around her could. I nearly lost my daughter. At one point of her life was held by a thread. All because the system from the very start to let her down. She was under the hospital as a little girl, because when she was in school, she would pretend she was in pain, but she was doing her subjects. She didn’t like to scare her teachers because I’d be very worried about her. She’s a very quiet child. So she was investigated by the paediatrician find out what a medical problem was all they could conclude was constipation. But that wasn’t the problem. The problem was autism. She always complains. She had no friends, but the other girls didn’t want to play with her. It’s hard to hear this when your child is beautiful and comes across as Friendly and has a sweet, kind personality. The flags were over for autism. I didn’t have a clue myself about autism. She couldn’t put her shoes on until she was nearly 11 to me, it made no sense she would destroy a pair of shoes every four weeks. She had to wear glasses, but she would break her glasses within days of half of them or simply lose them. When she was six years old, her test results showed up that she was blind, but clearly she can see. So she had to be tested within three months of that appointment. She was then diagnosed with severe eyesight problems, but she would not wear her glasses. She preferred to be in a own world, where everybody else has blocked out because she simply couldn’t see them. I didn’t realise this was what was going on when she was a child. I only realised that she potentially had autism when she was 18 after doing lots of research on the Internet. When I first told us, she said absolutely no way. After the first suicide attempt, I’m feeling desperate. She started to look at autism and the symptoms and recognised a lot of them within herself. At the same time, the psychiatrist she saw the very first psychiatrist suggested she might have autism. this is why an autism diagnosis is so important. It literally can save lives, would anybody be denied life-saving treatment? You would think not, but in the situation with autism, if they do not get the diagnosis, then it can be a death sentence. Because autism doesn’t go away. You do not grow out of it in my experience with my daughter, the symptoms and the problems associated with autism with the sensory issues become worse. The older she got. Nobody should have to go through this.

  • @jujutrini8412
    @jujutrini8412 Месяц назад +9

    There seems to be quite a lot of rich people and celebrities who have recently found out that they have autism/aspergers/adhd etc. These rich people need to club together and raise funds so that they can help the kids that are in desperate need as the state does not seem able or capable (or willing) to do this. Funds could be put to training specialists, educators, diagnosticians, schools, clinics, research etc. Rich people with these conditions in this country could totally do this if they wanted to.

  • @SimonSmith-yd6tt
    @SimonSmith-yd6tt Месяц назад +24

    Even when the families get the diagnosis then the struggle really begins to get help in the seriously underfunded education system

    • @neeciiw7840
      @neeciiw7840 Месяц назад +3

      Facts!! It took 6 yrs for a diagnosis about my so and now ask me what help have I had since 🤦🏾‍♀️

  • @jasonthomas208
    @jasonthomas208 Месяц назад +5

    I had to wait 2 years for my assessment which took place last October and I was assessed positive as autistic. I'm 57 , took them long enough to work it out after going back and forth to the doctor my entire life with numerous issues! I had to pursue it off my own back as my doctor kept fobbing me off!

    • @AngelaDavis-yz3xf
      @AngelaDavis-yz3xf Месяц назад +1

      It's awful, I suspected my child had Autism, he was refused a referral for an assessment by our G.P. when he was 4.
      I0 years later he was diagnosed with being on the spectrum.

    • @jasonthomas208
      @jasonthomas208 Месяц назад +2

      @@AngelaDavis-yz3xf I've gone 57 years being told to pull myself together, it's been a nightmare. sorry to hear about your son, hopefully catching it earlier will make a difference.

    • @AngelaDavis-yz3xf
      @AngelaDavis-yz3xf Месяц назад +1

      @@jasonthomas208 Thank you Jason, I wish you all the best 😊

  • @Vertigo-wm6lc
    @Vertigo-wm6lc Месяц назад +7

    Was told i had autism by a psychiatrist, then after waiting for annassessment was told no I dont. Think half the time the doctors dont even know themselves

    • @J4sonkempson
      @J4sonkempson Месяц назад +2

      You've probably been thrown off the list to keep numbers down, I had this and have had to push to make sure I'm still on the list.

  • @RageBaitPodcast
    @RageBaitPodcast Месяц назад +13

    One of many reasons why self-diagnosis is VALID and EMBRACED by Autistics regardless of their own diagnostic status/story. I was only able to get diagnosed by paying thousands out of pocket. Only possible with wealthy parents. End of story.

    • @Grover91
      @Grover91 Месяц назад +3

      That's exactly what I'm desperately trying to save up for. It's ridiculous that to realistically get professionally assessed, we have to fork out enormous sums of money.

    • @msbebelle07
      @msbebelle07 27 дней назад

      I live in Quebec, Canada, I did not want to wait, just paid for my daughter diagnostic, it cost 4 090$ for a neuropsychologist to do, she is what we called before Asperger…💕 I am not rich, I saved, hope you can to, have a blessed life 💕

  • @annastybeach9064
    @annastybeach9064 Месяц назад +4

    No change there, my kid is 22 now, I fought for a diagnosis..got very little help, she had speech therapy but there was zero help for autism..groups, specialists..it is just awful. I worked in the USA in the 90's with children and adults with autism and other special needs and they were way ahead of us back then. Why do we pay tax for this? i want an opt out to pay for private health insurance pls. This lady did not state the obvious, you need a diagnosis so if you need care as an adult you can get it..ie my child got help when attended college, a quiet area etc etc..now as an adult was on the housing list and is in her own flat with a worker that checks on her well being from time to time..we do that too so all is fine, but we are not here forever.

  • @sherimillman53
    @sherimillman53 Месяц назад +31

    We desperately need a new curriculum for autism and ADHD and other conditions

    • @joanne26
      @joanne26 Месяц назад +3

      I was born in 1965 and it was not until the late1990’s did I hear of Autism.
      And it was not until the last 10-15 years had I heard of ADHD
      I have no direct family or wider family that suffers with these issues
      I now know how long it can take for the medical profession to ‘diagnose’
      Reading some of these comments it seems to be young kids and teenagers?
      Could it be to do with puberty/hormones??
      😍😍❤️❤️👍 👍 🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿🥲

    • @angelaregan475
      @angelaregan475 Месяц назад +4

      My grandson age 4 is one of the children waiting for a diagnosis. He developed perfectly normally and reached all milestones until the age of 1. He had the MMR jab and then regressed. Nothing will convince me that these jabs are safe.
      3 different vaccinations at one time must be too much for a little body to cope with.

    • @TrevorHerbert-dj1jl
      @TrevorHerbert-dj1jl Месяц назад +2

      ​@@joanne26great and interesting ideas, we will never know why these so called conditions occur. We can just understand it more, it can be sensed very early in infants if you look properly, its all about the education and understanding and previous knowledge. ❤❤❤🙏🙏🙏 good luck.

    • @joanne26
      @joanne26 Месяц назад

      @@angelaregan475 your comment has made me think what did I have.
      I’ve looked on Google and the MMR jab only started in 1988. I thought it was later than that but time flies
      It says for anyone born before 1988 you may have received the measles vaccine and anyone born before 1970 - I was born in 1965 are likely to have had measles infection and were less likely to be at risk
      I do remember getting measles at around 7-8 (I had chicken pox at 11) so I guess I had immunity
      ❤️❤️🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿

    • @turokforever007
      @turokforever007 Месяц назад

      @@angelaregan475 Everyone in the UK government who had kids got the jabs separately

  • @louise6119
    @louise6119 Месяц назад +5

    I got diagnosed when I was 18 explained years of outrageous anxiety and feeling weird

  • @SIGSEGV1337
    @SIGSEGV1337 Месяц назад +8

    well all the signs were ignored for decades, so now we're just at the point where society just suddenly collapses in ways we don't expect

  • @abbiebrown2733
    @abbiebrown2733 Месяц назад +7

    The government are failing vulnerable children. A diagnosis is so important for autistic children to get the right support and thrive. It is so important for the child's mental health. Professionals need to take it serious. These children deserve a fulfilling life . There should be the right support. If an autistic child get the support they can go on to live a happy and positive life. We need to stop locking up autistic children and seeing them as different

    • @marionmoore665
      @marionmoore665 Месяц назад

      Stop giving them the vaxines then. It would all be OK then. Why has this gone through the roof, since child vaxines. 😕?

  • @user-po4nu4xo4m
    @user-po4nu4xo4m Месяц назад +5

    My granddaughter has autism she was diagnosed 2 years ago, she was 17. 2 years ago there was a waiting list of about 1 year with the NHS so the family paid for her to go private for a diagnosis which was done in a month. Sadly she found it hard to make friends at school as she was different to other pupils in the class and didn't fit in especially when she got a bit older. She hated school/college and the strange girl sitting alone (my special granddaughter) received no help from the teachers. Once diagnosed things became much easier help and compassion was given to her by the teachers and extra time was allowed when sitting exams. When her schooling came to an end she was offered a job by her local council, as big concerns of this nature, have to employ people that have a condition in life. Today she is a confident young woman but tends to make friends with men and women that are about 10 years older than herself. In 2022 it cost about £2,000 to go to a private clinic for her diagnosis, money well spent.

    • @annastybeach9064
      @annastybeach9064 Месяц назад

      Yes my daughter also went to council job interviews but was not their kind of autistic, even although has high PC and English skills ;) I am very happy your grand child had the opportunity and can flourish

  • @Darkwoods360
    @Darkwoods360 Месяц назад +2

    My son school refused at 9 already with a diagnosis of Autism and we still had a fight to get him a special school placement. Once he had his new special school place things got significantly better for him and he had access to appropriate therapy’s for his severe sensory issues and the lower stimulation environment helped him progress and understand his own strengths and differences. I feel great empathy for people without diagnosis and it’s often so obvious that they have Autism. It is traumatic to leave children in negative environments and also causes issues for the other children witnessing autistic children in distress. The sensory struggles are often overlooked and from my experience most behaviour of concern is triggered by sensory issues. Good luck and hope you get a diagnosis soon and I would look to special school by secondary before to much PTSD builds up and a move is then in crisis instead of proactive to specialist support. Autism does not go away and a child can’t become neurotypical by being with others, so best to accept the Autism and access the special environment.

  • @leighannclements7849
    @leighannclements7849 Месяц назад +18

    My son has been waiting for a diagnosis since he was 4 years old he is now 14. He was diagnosed with learning difficulties with complex needs in 2019 a year after the doctor put it down just to learning problems after speaking to a teacher that explained he hadn’t even dealt with my son. My son has been permanently excluded from two mainstream schools. Was left out of school for 2 and half years was being privately tutored at home. He finally got a special needs placement and the school doesn’t believe he has been diagnosed properly. My son does not sleep well never has needs medication so we currently have to go back from through the system. They also have said my son suffers with anxiety and depression and has had no help with it. We are in the east of England. It’s such a horrible situation and impacts the entire family. I’ve had to give work up I now suffer with depression anxiety stress and an eating disorder. It’s a absolute disgrace and against their human rights.

    • @joanne26
      @joanne26 Месяц назад +3

      I have no direct family or wider family members connected with Autism
      It must be awful both for your son and your husband as carers.
      I was born in 1965 so grew up in the 70’s.
      As a society we never heard of Autism or being Autistic even into the 90’s
      Why are more young people suffering with this debilitating issue
      It’s taking such a long time for doctors to diagnose. I wonder why?
      The only subject that has been more in the news since the new millennium is ME chronic fatigue syndrome
      People who have suffered with this have had to wait decades and some doctors really cannot diagnose as they say it’s mental health and to do perhaps with puberty/hormones
      The NHS is being thrown all this money but they are being sued for all sorts of stuff £100 billion
      They get £250 odd billion
      🏴󠁧󠁢󠁥󠁮󠁧󠁿🏴󠁧󠁢󠁥󠁮󠁧󠁿❤️❤️👍 👍

    • @leighannclements7849
      @leighannclements7849 Месяц назад +1

      I’m a single parent yes it’s very hard and very emotional.

    • @peterwilliamskelhorn6675
      @peterwilliamskelhorn6675 Месяц назад +2

      ​@@leighannclements7849thats true my mum always knew something was wrong with me but she didn't know the word for it until i got diagnosed with Aspergers in 2001 at 10 years old. I was in a special needs primary school at the time

    • @britnatzaredemocracydenier5922
      @britnatzaredemocracydenier5922 Месяц назад

      So if folk hate on your disabled kid you're fine with it Leigh as you said on another comment section on Scotlands hate crime bill saying hate is free speech so you won't mind your kid being stigmatized..
      My daughter has severe epilepsy and you think it's ok for my daughter to be abused by hateful people

    • @peterwilliamskelhorn6675
      @peterwilliamskelhorn6675 Месяц назад +1

      @@britnatzaredemocracydenier5922 they weren't being horrible

  • @traceyjayne4636
    @traceyjayne4636 Месяц назад +2

    Yes it's taking a lot longer than a year, told up to a 5 year waiting list.

  • @ellie_5276
    @ellie_5276 Месяц назад +4

    A family member of mine has been waiting 2.5 years for an adult assessment - still no closer to getting it.

  • @lindalaker3665
    @lindalaker3665 Месяц назад +2

    I think my granddaughter is autistic, but we just accept her as she is and love her. A diagnosis would make no difference.

    • @bonaparte1988
      @bonaparte1988 Месяц назад

      That is a very positive way of thinking.
      Cause after the diagnosis,all they are gonna do is prescribe medication which is basically artificial chemicals that will mess with the brain.
      It's sad to see so many little children being started on o these chemicals.

    • @angelaregan475
      @angelaregan475 Месяц назад +6

      Yes, it would. She would get the expert help she needs.

  • @J4sonkempson
    @J4sonkempson Месяц назад +2

    I've been waiting 2 years for adhd assessment, I'm 52 so assume I'm at the back of the que. Starting to think I'm also a bit on the spectrum as well, I've been through the mental health system for 20 years and it was never even suggested, trouble is you don't ever have the personnel insight to even realise you have it.

    • @truthmerchant1
      @truthmerchant1 Месяц назад +3

      I was diagnosed with ADHD at age 57 after a two year wait. I've now been on the waiting list for an autism assessment for 18 months. The letter they sent me stated they offer diagnosis only and no support, I tried to get help from the mental health service and was told there is none. My physical health has been destroyed because of the difficulties of trying to function in the world with these undiagnosed conditions.

    • @J4sonkempson
      @J4sonkempson Месяц назад +2

      @truthmerchant1 thanks for that, makes me a bit more hopeful. I think you really need to help yourself, I've spent a lifetime as a square peg being hammered into a round hole. Accept your limitations and be kind to yourself, I know we can be very mean to ourselves 😢

  • @alexandrarohla1531
    @alexandrarohla1531 Месяц назад +4

    Nothing new here at all some people wait years schools don't need this extra stress, school referrals don't mean a thing too slow too little too late

  • @rebeccarussell9618
    @rebeccarussell9618 Месяц назад +1

    I knew at between 6-12months old that my son was I have a letter from the cdc saying exactly that..they said he was to young so fast forward he's now 7 the school has asked to have the referral put through as we have been waiting a long time then the person dealing with us was sacked so had to wait to be see by someone else, when we got there they had miss placed the forms and letters from the school, so had to do it all again we are now back waiting they said two months but it's been longer than that now . My some has been given one to one in the class room ,has movement breaks and a weighed leg blanket..the system need fixing its not fair on our children and for us that cannot afford to go private

  • @kellykreqeli8924
    @kellykreqeli8924 Месяц назад +5

    I was not diagnosed with adhd until I was 36 and I went to state school had not help and struggled and was always labelled a bad child and was made to feel that it was my fault I was this way
    It’s important to diagnose someone as early as possible which was why I fought so hard for my son to be diagnosed

    • @leighannclements7849
      @leighannclements7849 Месяц назад +2

      That’s horrible feel so sorry for you my son gets labelled with that too even by family members 😭

  • @mightymo8699
    @mightymo8699 Месяц назад

    I know a lady with 2 sons with this problem n her new partner also but they have been waiting for YEARS to get assessed!! My son was put off for years n was 28 when he went n sorted it himself . The system is broken n many suffer with mental health now. I even know a lady in her 70's who has never been diagnosed n suffers greatly!!

  • @MQtheAI
    @MQtheAI Месяц назад +1

    Been waiting since october 2022, completely in the dark no support offered.

  • @pschin348
    @pschin348 Месяц назад +1

    We waited 5 years for our son’s diagnosis. Even after diagnosis they still reject our application for healthcare plan to support.

    • @magusl9628
      @magusl9628 Месяц назад

      On what grounds do they reject it?

    • @pschin348
      @pschin348 Месяц назад

      @@magusl9628 not severe enough to require funding. He is not self harming nor disruptive.

  • @baffledmouse9933
    @baffledmouse9933 Месяц назад +3

    I was diagnosed at 27 after doing my own research and asking to be referred. I believe it took about a year to get diagnosed.

    • @someonesomeone25
      @someonesomeone25 Месяц назад +1

      A year is very quick compared to many. But even that is far too long.

  • @bear4772
    @bear4772 Месяц назад +1

    2 and half years in wales and still waiting for the assessment

  • @Ravenswalk
    @Ravenswalk Месяц назад

    I’m in Canada and my granddaughter is waiting to be assessed we have been told it will be three years before we get to see a specialist.

  • @jiartwork5880
    @jiartwork5880 Месяц назад +2

    I have autism I live in Australia we have the same problem there is such a wait to get a diagnosis I was lucky but it is important cos you then understand why you do the things you do made sence

  • @ajarnwordsmith628
    @ajarnwordsmith628 Месяц назад

    The mother...very intelligent/caring mum

  • @KEZAMINE
    @KEZAMINE Месяц назад

    Me: years 😐
    Others kids: 2 weeks 🙂

  • @thevindex
    @thevindex Месяц назад

    I was meant to be diagnosed at 5, but they lost the referral. I put my name down again in 2020, they lost the referral again. I’m 39 so I’ve been waiting 34 years.

  • @32446
    @32446 23 дня назад

    Took about 5 years to get my son diagnosed.

  • @samglazier1433
    @samglazier1433 Месяц назад +1

    A diagnosis is only provided to individuals whose life is severely impacted.
    Social anxiety and difficulty making friends should not be a reason for diagnosis.
    It’s now labelled SAD
    Those with autism and other mental health needs need support to understand themselves and feel understood by others but full individual plans are not helping the child or school systems.
    Sensory issues can be supported without removing individual from the social environment.
    I worked with individuals for years and I don’t recall a single person who feels better having a diagnosis.
    Tony Atwood was the world’s leading authority until he admitted that the spectrum will cover around 25% of human beings.
    SPS sensory perception sensitivity needs to be understood and talked about more.
    This is often confused with autism but is actually different. Yes you can have both.
    Once you understand yourself as a unique individual who can grow, evolve and overcome, a diagnosis of any kind can restrict this.

  • @josefschiltz2192
    @josefschiltz2192 Месяц назад

    In 2018, I only had to wait a few weeks and the interviews were in quick succession.

  • @kellykreqeli8924
    @kellykreqeli8924 Месяц назад

    My son was diagnosed until he was 13 and we know from the age of 3 and he has high functioning asd and it effected his scolding as he was not put in the right placement once he was diagnosed and they sure how badly it was effecting him after two school placements were not right I sat down kcc he was lucky he got home tutoring as he could not be around other children even though he was at play groups and around kids all his life
    My son has no friends the only friend he has is his tutor and struggles socially going to the shops alone paying for a train ticket and paying for things at the shop
    He is 20 this year
    It’s sad cause he passed his English and maths and is now doing a computer hardware courses of he is this way I’m worried this will affect his career as a young person trying to live a normal life in society
    My son can’t handle crowded places loud noise bright lights and certain smells effect him and can cause a melt down which is why we are careful when he does come out with us

  • @mumsywiggly
    @mumsywiggly Месяц назад

    As a Autistic adult, good morning britain needs to understand that this interview is very derogatory. Please include more autistic people in this conversation. Chris peckham is exemplary as usual.

  • @outlaw6421
    @outlaw6421 Месяц назад

    2 yrs we have waited for the autism assessment

  • @outlaw6421
    @outlaw6421 Месяц назад

    Sue the education authority with child law and human rights laws,they soon comply and a appointment .its like doing to hospital with a broken arm and them not telling you ,you have a broken arm..

  • @An-Alien-On-Earth
    @An-Alien-On-Earth Месяц назад

    I had to wait over two years for mine, only got my results a week ago

  • @mfslots
    @mfslots Месяц назад

    i was assessed and diagnosed twice!

  • @distorbia20
    @distorbia20 Месяц назад +1

    Richard kids need diagnoses so they can get the help and support. Schools can provide loads support so helps to get the diagnoses

  • @Wishing_you_peace
    @Wishing_you_peace Месяц назад

    Several years in some places.

  • @someonesomeone25
    @someonesomeone25 Месяц назад +1

    Adult autism diagnosis can be multiple years.

  • @ArchieKenny
    @ArchieKenny Месяц назад

    A year, here in norfolk its a 6 year wait .

  • @christiedennis1741
    @christiedennis1741 Месяц назад

    We had to wait over 7 years from assessment to diagnosis of autism with our son.

  • @christineclifton7191
    @christineclifton7191 Месяц назад

    I am not diagnosed but highly suspected of adhd and autism i am trying to go down the private root due to how long the waitng is i also suspect something is wrong with my disks the health care is dismismisive i had the head of the practice have ago at me due to struggling to fill paper work and i needed help also have dyslexia and was asking for an adhd refural i also informed my therapist has diagnosed me with cptsd i spoke carmly and pointing out she was raising her voice at me and continuing and then said i cant wave a magic wand i then put in a formal complaint and i got no reply no apology it made me fearful of the nhs and i am also not being supported by my work place dispite i have flares of three month chronic pain at a time make it impossible to stand they have refused a chair basically i dont have an official diagnosis, i have been over worked expressed going into burn out i am told to wait till ir convenient for them my therapist says my body will chose to give up if i dont sign of but i also have responsibility so i am trapped not having any official diagnosis despite i am affected daily

  • @Micheal-Knight-
    @Micheal-Knight- Месяц назад

    This must be why he ripped up a friend's child's painting pinned on there fridge.

  • @Beyond_Belief534
    @Beyond_Belief534 Месяц назад +3

    What is the relationship between childhood vaccines and autism?
    Why don't you speak the truth on it?

  • @Oceanstarz
    @Oceanstarz Месяц назад

    Chris, do you know any excellent Solicitors who deal with the Court of Protection and Judicial Re Judicial Reviews? Fighting for freedom for my Autistic Relative, with Autism myself … a challenge but I’m not giving up ✨⚖ All ideas welcome. And brilliant that you keep pushing forward regardless ⭐

  • @colettemikaelson160
    @colettemikaelson160 Месяц назад

    4 years my child was on the waiting list and 11 years trying to get professionals and school to take us seriously.

    • @Ron_swanson_true_libertarian
      @Ron_swanson_true_libertarian Месяц назад

      So pay for a private one they are 1-2k if it's your child take responsibility into your own hands.

    • @leighannclements7849
      @leighannclements7849 Месяц назад +3

      Oh yeah coz everyone has the money to do that 🙄

    • @colettemikaelson160
      @colettemikaelson160 Месяц назад +2

      @@Ron_swanson_true_libertarian try 3k and that was 3 years ago. Not everybody is in a position to do that.

    • @Ron_swanson_true_libertarian
      @Ron_swanson_true_libertarian Месяц назад

      @@colettemikaelson160 my mother was very poor she went out to charities asked help she went to preist and begged them for whatever they could give she sold everything but the clothes on her back including my PlayStation I got for Xmas and I was happy to let it go don't assume we had anything more then food on our table but your right i was too harsh and time's have changed so I apologise my mother raised me better so I should know better.
      It was for my baby brother not me for all the difference it made he killed himself last year at 25 years old.

    • @colettemikaelson160
      @colettemikaelson160 Месяц назад

      ​@@Ron_swanson_true_libertariancool story bro

  • @thomaskeyton7771
    @thomaskeyton7771 Месяц назад

    They literally can't keep up with anything anymore in health even me getting my anti psychotic changed or upped or downed can take much longer then it should depending on medication. They are having med shortages right left and not enough doctors people have to set up appointments months ahead just to get seen.

  • @paddy4chenny
    @paddy4chenny Месяц назад

    Im 38 ive struggled with this all my life and will never be diagnosed as i dont trust the doctors especially after the covid scam

  • @beewa8840
    @beewa8840 Месяц назад +1

    Mum seems a bit touched by ADHD.

    • @franm.8343
      @franm.8343 Месяц назад

      I think it's common in society and has probably been around since the beginning of time. Most people learn to cope over time, but it can affect sufferers education attainment and decision making skills and can cause them many difficulties.

  • @TrevorHerbert-dj1jl
    @TrevorHerbert-dj1jl Месяц назад

    Well done ❤❤❤❤❤❤❤❤❤❤🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏 good clip. 😊😊😊

  • @outlaw6421
    @outlaw6421 Месяц назад

    It's always bern bad my nephew took 5 yrs yo be assessed this was 3 yrs ago,lockdiwns made no difference the tories have bern strangling this service for over 10 yrs

  • @stevenhull5025
    @stevenhull5025 Месяц назад +2

    The big question we should be asking is why this massive rise in ADHD in recent times??? Are "modern" foods we give our kids the cause?? Seed oils?? Confectionary?? Grains?? Sugar?? Those chemical "E's" on a list as long as your arm on packaging of processed foods??

    • @angelaregan475
      @angelaregan475 Месяц назад +1

      All of those, plus MMR jabs.

    • @rosarose3443
      @rosarose3443 Месяц назад

      🤔 Better understood and picked up. Years ago it was not. Did you watch the interview?

  • @URFUTUREUK
    @URFUTUREUK Месяц назад

    These parents have decided befoe the professionals that rhe child is autistic 😆 this country needs a shake up. She wants a diagnosis cause she wants the benefits.

  • @user-ty5ys2zz8d
    @user-ty5ys2zz8d Месяц назад

    money grabbing parents. There are genuine diagnosis then there are the ones jumping on the bandwagon. I personally know one. Her teacher says i should report mother to child services.

  • @wearetheremnants1615
    @wearetheremnants1615 Месяц назад

    172000 people could find out they dont have it .. that would be relieving..

  • @Robobongo88
    @Robobongo88 Месяц назад

    I dont belive that number at all. Iv met people who arent autistic who claim to be because they think its some sort of quirk😂

  • @Paul-pf6rm
    @Paul-pf6rm Месяц назад +2

    There's lots of excuses for bad behaviour these days...

  • @bethanellisjones6723
    @bethanellisjones6723 Месяц назад +1

    I was told it will be years until we are seen

  • @user-vl5xo8og8s
    @user-vl5xo8og8s Месяц назад

    Too many opportunities I believe. Science and recognition of issues has outpaced the system. In the 60s we were just classed as thick or different. Some were able to pay for assistance, some schools offered help. Some of us survived and some did not. But the country does not owe us help, we must seek it for ourselves. Any help is a bonus. Remember a true friend stays with you in good times and bad. The country cannot afford to help everyone. I think this also opens other issues when one sees so much money being wasted on illegal immigration.

  • @gooderspitman8052
    @gooderspitman8052 Месяц назад

    In a country where the plebs are on the breadline, sadly a diagnosis is the only way of increasing your income. P.S It took me 63 years to get a diagnosis.

  • @dainhea-marciamiller.3824
    @dainhea-marciamiller.3824 Месяц назад

    Corona damage. Crown damage.

  • @whiskeywarlord9425
    @whiskeywarlord9425 Месяц назад

    How about fibdi g the cause of the Autism and fixing that

    • @rosarose3443
      @rosarose3443 Месяц назад

      How about finding the cause of being Neurotypical and fixing that?
      You cannot fix Autism it is not an illness or a disease. Our brains are wired differently to that of a neurotypical which means we experience the world differently and we learn differently to how you do.
      Unfortunately, from a very young age we are expected to change ourselves in order to be accepted and fit into society, which over time then causes depression and severe anxiety because we are not able to experience or live life authentically in the same way that you do because we are seen as "different", "odd", "weird" and "strange" etc, which is not tolerated or accepted.
      However, neurotypicals fail to look at themselves from an Autistics perspective and that is that neurotypicals are "different", "odd", "weird" and "strange" and we are expected to acknowledge, accept and respect those differences, and either we assimilate or someone should "Find the cause and fix it".
      Do you need fixing?

    • @whiskeywarlord9425
      @whiskeywarlord9425 Месяц назад

      @@rosarose3443 more research into Vaccines is needed and what they have done to children

  • @richlondonrich
    @richlondonrich Месяц назад +1

    I'm waiting to find out if I have cancer. Wasting money on autism and trans and depression hits different when the cancer waiting lists increase

  • @el7h3773
    @el7h3773 Месяц назад +2

    It took us 9 months from start to finish for My 3 year old to get diagnosed. Never had an issue.
    The thing is there are so many adults who all 'think' they are autistic because they don't fit or watched tik tok videos clogging up the waiting list for genuine cases
    Same with some parents also who won't stop until they get a diagnosis on paper even AFTER their child has been assessed and not met the criteria. A diagnosis isn't even a guarantee you get support, an ehcp is more valuable in that sense but now everyone wants one of those aswell. Sorry but its obviously going to take ages when everyone thinks they have it. But do they really?

    • @RageBaitPodcast
      @RageBaitPodcast Месяц назад +1

      Tiktok right now is the leading, cutting edge of scientific discussion and analysis of autism diagnosis by autistic people. The information I found there far surpassed anything available at NYU Silver School of Social Work or at Columbia University, where I got my bachelor and masters degrees. I would caution against making assumptions like this without first looking into the inadequacies of the criteria itself. Many doctors do not understand how to recognize or diagnose patients who aren’t white males, and the DSM is very difficult to update quickly.

  • @vincentblack7467
    @vincentblack7467 Месяц назад +8

    Everyone is a victim and like being a victim...

    • @willneilos2163
      @willneilos2163 Месяц назад +2

      How?

    • @jameswashington1163
      @jameswashington1163 Месяц назад +4

      What type of reaction are you waiting for with your comment? a high 5?

    • @nintymark64
      @nintymark64 Месяц назад +7

      As a 33yo autistic guy, it’s not about enjoying being a victim, it’s extremely difficult to navigate a world that is not built for us. For those without autism will never get it, and that’s fine but you don’t need to post moronic comments like this. We’re not actually asking for all that much

    • @AH--173
      @AH--173 Месяц назад +3

      It's not about victimhood

  • @vincentblack7467
    @vincentblack7467 Месяц назад

    Well it hasn't held Chris back as it, he found out in his 40s, tuck him long enough never saw the thing sooner..

  • @joanne26
    @joanne26 Месяц назад +4

    Growing up in the 70’s/80’s I never heard of Autism and being Autistic.
    There are now so many who have it and have either waited years and diagnosed or still waiting
    I have no family who has this but have the medical profession explained why young people get this
    🫤🫤🙏🙏❤️❤️

    • @leighannclements7849
      @leighannclements7849 Месяц назад

      It’s not the flu they are born with this condition.

    • @aa-fw2pw
      @aa-fw2pw Месяц назад +1

      I was just thinking this. I grew up in the 90s and didn't hear much about it then either.

    • @joanne26
      @joanne26 Месяц назад

      @@aa-fw2pw another point I forgot to add is about the time it take’s for doctors to diagnose
      I remember also in the 90’s I first heard of ME - chronic fatigue syndrome
      The medical profession across the 🌏have not got to grips with a diagnosis yet
      As I do not have any family that suffers with anything like this I cannot relate to families that suffer
      How many ‘grow out’ of autism?
      Is it to do with puberty/hormones
      🥴🥴🫤🫤😃❤️

    • @aa-fw2pw
      @aa-fw2pw Месяц назад

      @joanne26 My 15 year old niece suffers from borderline personality disorder and autism. But she has been through immense trauma, as my brother (her father) got diagnosed with kidney failure when she was just three years old, and he passed away in 2021 when she was 12 years old. So I think that has a lot to do with her conditions, particularly her BPD. But I am not a medical professional so I could be wrong, of course.

    • @bonaparte1988
      @bonaparte1988 Месяц назад

      It's just another conspiracy.
      These children in 20-30 years down the line will not be seen fit enough to run the world.
      They want to control them and rule them.
      I was told I have ADHD not formally diagnosed but I don't want that label on me because I can control myself.

  • @wiiliamnoel5250
    @wiiliamnoel5250 Месяц назад

    MI5 CALL TO MARK SEXTON 10.25AM WEDNESDAY 20TH OF MARCH 2024 .BITCHUTE . Responsibly Liberty .