This post could not have come at a better time ... this past Friday, I had my Radiation Planning with my Radiation Oncologist and his team. While I have been in the trenches with mammogram, diagnostic mammogram, stereotactic biopsy, seed implanting (both sides), and then surgery, my dignity was always honored, unfortunately, this time the technicians treated me without dignity. My breasts were exposed without occasional covering, procedures were done without explanation, some hurt and then, without asking if I had claustrophobia, I was placed in a CT Scanner. I had to fight a panic attack throughout this procedure - I cried all the way home. Should I talk with the Radiation Oncologist about this, do you think?
Same happened to me:all my treatments went well, with all the respect from medical teams…everything ok until i landed in the radiotherapy center.The technicians there treated people worse than animals…but i thought:ok, it is just one step in my treatment and recovery, i tried not to forget what my goals were…to stay healthy in the future, that was the purpose of radiotherapy.So, try to take things as they come, talk to your ocologist if you need to, but think just about your reasons to be there: you do that for a healthier future,all the rest should not affect you, they are just a few passengers in your way. Stay strong, things will be better for sure
Dear Jean, I am sorry you had to go through this! No, this is definetely not normal. I had a lot of MRIs through my cancer journey, and in most cases, people were kind and friendly. Of course, some procedures produce pain (e.g. the necessary venuous access which I absolutely hate). But some people do this so carefully you don't even notice. I would suggest you talk to your radio oncologist. Perhaps they should do some more briefing for their team. We are ill, we are anxious, and we are in fear. It is important that you address this. Love and hugs, Beate from Germany ❤
@@BeateSchierleThank you so much, Beate! I kept thinking that I was taking it too much to heart, but this is just the beginning of this part of my treatment ... thank you for your encouragement and advice! It means more than you know,
Dignity confusion is an endless state of mind when people start their talking to a cancer patient with ((since you got this cancer and ….. )) this usually followed by gaslighting, false narratives, boundary violations, pressure to answer confidential sensitive questions, and the list is endless….. we will stand up for ourselves, stay strong
Thank you for sharing such a powerful insight. It's incredibly tough to navigate such invasive and insensitive remarks, especially during such a vulnerable time. It's admirable how you're choosing to stand strong and advocate for yourself and others.
We're truly touched to hear that these words struck a chord with you. It's conversations like these that bring us all closer together. Thank you for being a part of the Yerbba community.
Perfect timing for this post, thanks so much, let me share some experiences from breast cancer in the middle of the storm, Lost and blurred boundaries for the patient, people asking the most awkward questions, are you going to undergo lumpectomy or mastectomy, any plans for implants 🥹you will regret this, while as a patient I didn’t initiate to discuss it People suggesting energy healing in the middle of chemotherapy journey while many things are going wrong, accusing the patients that they need to do better and this cancer is related to traumatic experience we didn’t handle well People come to say it’s just your hair lost everything is going to be fine stop the drama, breast cancer is not only about loosing hair from chemotherapy it’s much bigger, people denying our boundaries and not respecting it
Oh my goodness, I can so relate. People advising, no telling, you that you need calm down and stop thinking about it before you make yourself sick. How do you stop? One of the best quotes I heard was "I cannot wait for the day that I wake up in the morning and NOT think about cancer" - that is/was me. Be well, take care of yourself and be your own advocate.
Thank you for sharing your stories here. Violations of dignity really can stay with us. We hope it's helpful to be able to name the elements of dignity: acceptance of identity, inclusion, safety, understanding, validation (acknowledgment), recognition, being given the benefit of the doubt, autonomy, fairness, and accountability.
Your video Dr. Griggs brought up so many feelings for me. How I became and still am angry with situations which occured and medical staff who contributed to these difficult situations and physical pain during my cancer treatment.. i lost sight of all the situations and medical staff who were so positively involved in my care who were respectful, supportive and insuring i was well taken care and help me get thru one of the most difficult times of my life. Thank you for helping me to start looking at dignity in a different way.... a lot of food for thought..
We're glad the video helped you start to see dignity in a new light. Reflecting on both the positive and negative experiences can be a part of the healing process.
What a beautiful and outstanding topic. I am 66 years old and I have just learned sooo much more about life than I have done in a long time. What a beautiful and wise approach, Dr. Griggs, thank you so much!!! ❤
Thank you so much for your kind words and being part of the Yerbba community. We're so glad you found the topic insightful. It's wonderful to hear that it resonated with you and offered a fresh perspective!
Thanks for writing. You may find our videos on aromatase inhibitors: ruclips.net/video/LuI1mCJU2_U/видео.html and our playlist for hormone receptor-positive breast cancer to be helpful.
@@yerbba thank you for the time and effort you put into making these videos. I was wondering if you could make video about ILC and what kinda of follow ups and tests, etc ILC patients need after they finish with their acute treatment because I know ILC behaves a little differently than IDC. I really appreciate it
Can you please do a video about verzenio for early stage high risk of recurrence? I'm taking it and having liver issues. Not sure it's worth damaging my liver. Thank you!!
Thanks for the suggestion. Abemaciclib (brand name: Verzenio) is a CKD 4/6 inhibitor. We'll add a video on abemaciclib for non-metastatic breast cancer to our list.
This post could not have come at a better time ... this past Friday, I had my Radiation Planning with my Radiation Oncologist and his team. While I have been in the trenches with mammogram, diagnostic mammogram, stereotactic biopsy, seed implanting (both sides), and then surgery, my dignity was always honored, unfortunately, this time the technicians treated me without dignity. My breasts were exposed without occasional covering, procedures were done without explanation, some hurt and then, without asking if I had claustrophobia, I was placed in a CT Scanner. I had to fight a panic attack throughout this procedure - I cried all the way home. Should I talk with the Radiation Oncologist about this, do you think?
🙏🙏❤️🙏🙏
@@ChristmasKathyThank you so much!
Same happened to me:all my treatments went well, with all the respect from medical teams…everything ok until i landed in the radiotherapy center.The technicians there treated people worse than animals…but i thought:ok, it is just one step in my treatment and recovery, i tried not to forget what my goals were…to stay healthy in the future, that was the purpose of radiotherapy.So, try to take things as they come, talk to your ocologist if you need to, but think just about your reasons to be there: you do that for a healthier future,all the rest should not affect you, they are just a few passengers in your way. Stay strong, things will be better for sure
Dear Jean, I am sorry you had to go through this! No, this is definetely not normal. I had a lot of MRIs through my cancer journey, and in most cases, people were kind and friendly. Of course, some procedures produce pain (e.g. the necessary venuous access which I absolutely hate). But some people do this so carefully you don't even notice. I would suggest you talk to your radio oncologist. Perhaps they should do some more briefing for their team. We are ill, we are anxious, and we are in fear. It is important that you address this. Love and hugs, Beate from Germany ❤
@@BeateSchierleThank you so much, Beate! I kept thinking that I was taking it too much to heart, but this is just the beginning of this part of my treatment ... thank you for your encouragement and advice! It means more than you know,
Dignity confusion is an endless state of mind when people start their talking to a cancer patient with ((since you got this cancer and ….. )) this usually followed by gaslighting, false narratives, boundary violations, pressure to answer confidential sensitive questions, and the list is endless…..
we will stand up for ourselves, stay strong
Thank you for sharing such a powerful insight. It's incredibly tough to navigate such invasive and insensitive remarks, especially during such a vulnerable time. It's admirable how you're choosing to stand strong and advocate for yourself and others.
“We cannot thrive when we are victim”, thank you doctor!
We're truly touched to hear that these words struck a chord with you. It's conversations like these that bring us all closer together. Thank you for being a part of the Yerbba community.
Perfect timing for this post, thanks so much, let me share some experiences from breast cancer in the middle of the storm,
Lost and blurred boundaries for the patient, people asking the most awkward questions, are you going to undergo lumpectomy or mastectomy, any plans for implants 🥹you will regret this, while as a patient I didn’t initiate to discuss it
People suggesting energy healing in the middle of chemotherapy journey while many things are going wrong, accusing the patients that they need to do better and this cancer is related to traumatic experience we didn’t handle well
People come to say it’s just your hair lost everything is going to be fine stop the drama, breast cancer is not only about loosing hair from chemotherapy it’s much bigger, people denying our boundaries and not respecting it
Oh my goodness, I can so relate. People advising, no telling, you that you need calm down and stop thinking about it before you make yourself sick. How do you stop? One of the best quotes I heard was "I cannot wait for the day that I wake up in the morning and NOT think about cancer" - that is/was me. Be well, take care of yourself and be your own advocate.
Thank you for sharing your stories here. Violations of dignity really can stay with us. We hope it's helpful to be able to name the elements of dignity: acceptance of identity, inclusion, safety, understanding, validation (acknowledgment), recognition, being given the benefit of the doubt, autonomy, fairness, and accountability.
Your video Dr. Griggs brought up so many feelings for me. How I became and still am angry with situations which occured and medical staff who contributed to these difficult situations and physical pain during my cancer treatment.. i lost sight of all the situations and medical staff who were so positively involved in my care who were respectful, supportive and insuring i was well taken care and help me get thru one of the most difficult times of my life. Thank you for helping me to start looking at dignity in a different way.... a lot of food for thought..
We're glad the video helped you start to see dignity in a new light. Reflecting on both the positive and negative experiences can be a part of the healing process.
Thank you Doctor. One of your best videos.
Truly important discussion and information
We completely agree. Thank you for watching and being part of our community
What a beautiful and outstanding topic. I am 66 years old and I have just learned sooo much more about life than I have done in a long time. What a beautiful and wise approach, Dr. Griggs, thank you so much!!! ❤
Thank you so much for your kind words and being part of the Yerbba community. We're so glad you found the topic insightful. It's wonderful to hear that it resonated with you and offered a fresh perspective!
I would appreciate very much any information with regards to oestrogen fed breast cancer and Aromasin treatment. THank you.
Thanks for writing. You may find our videos on aromatase inhibitors: ruclips.net/video/LuI1mCJU2_U/видео.html and our playlist for hormone receptor-positive breast cancer to be helpful.
Amazing video. Thank you ❤
Thank you for watching and being a part of our community!
@@yerbba thank you for the time and effort you put into making these videos. I was wondering if you could make video about ILC and what kinda of follow ups and tests, etc ILC patients need after they finish with their acute treatment because I know ILC behaves a little differently than IDC. I really appreciate it
Can you please do a video about verzenio for early stage high risk of recurrence? I'm taking it and having liver issues. Not sure it's worth damaging my liver. Thank you!!
Thanks for the suggestion. Abemaciclib (brand name: Verzenio) is a CKD 4/6 inhibitor. We'll add a video on abemaciclib for non-metastatic breast cancer to our list.
Thank you, Dr. Griggs, for your very informative advice.
Thank you for watching! We're glad you found this video helpful.