I'm proud to say that I've known Kevin since he was 4. I'm so happy to see that his brilliant mind is changing lives. A heartfelt thanks to Kevin and the clinic for their selfless, humble and illuminating work. Our world is a better place because of them.
I'm a licensed nurse with speciality in disability studies, my brother and his wife are doctors. I've always respected doctors in general and even more so in my own field. But this gave me goosebumps. Such skilled and passionate doctors. Thank you Kevin Strauss!
Why do I feel like crying when he showed the video of the boy with GA-1 with his brother and he looked unaffected? The work he and the entire staff at the clinic is doing is wonderful. Bless them.
A moving and inspirational talk by Dr Kevin Strauss, of the Clinic for Special Children. The work of Dr Strauss and his colleagues is nothing short of miraculous and deserves wide visibility!
There is another program on youtube that someone recorded off of their t.v. and they said that a lot of genetic disorders are caused by inbreeding. The Amish marry amongst themselves and very, very rarely accept outsiders into their community. So there are people that are related, getting married and having children.
Forgive my ignorance - I don't know the details of US medical bureaucracy - Why is accepting US government grant money a bad thing? I would have thought for a clinic short on money, a government grant to continue research would be a valuable thing.
My guess is, to qualify for grants you need to be inspected routinely, abide by safety standards, tons of paperwork probably incompatible with Amish people
hi i am from a family that has a rare defect as well witch also comes from germen blood lines. it is only in are blood line and one blood line in germany it is simaler as if a later verson of this defect it cases over time decrese of moter function and it afects the white mater of the brain it shows in urine as high levels of lisen the same thing in this deseas i had a qestion. in are defect it is only afected by the male and the female carrys it meaning theres a good x and a bad x in the female genome i have done some resurch and have a hoptiosis that may help. in bone marrow transplats the giver of bone marrow blood tyep ends up being the revevers blood type. it changes as the bone maroow helps to make new blood now if a femals bad x could be removed. witch we can do that now. from the bone marro and be given to the affected. the blood type would chang and the body would addapt the new good x if done at time of birth it could stop the pergrason of this defect and help
Unfortunately, or atleast not to my knowledge.. your genome is not able to be changed. Your chromosomes are within every single cell of your body. We would have many things solved if so v-v
I'm proud to say that I've known Kevin since he was 4. I'm so happy to see that his brilliant mind is changing lives. A heartfelt thanks to Kevin and the clinic for their selfless, humble and illuminating work. Our world is a better place because of them.
Were you his teacher?
How wonderful! He seems like a very good man. Love from Australia
I love how he's not "othering" the Amish, or shaming them for being insular. He has so much respect!
I'm a licensed nurse with speciality in disability studies, my brother and his wife are doctors. I've always respected doctors in general and even more so in my own field. But this gave me goosebumps. Such skilled and passionate doctors. Thank you Kevin Strauss!
Why do I feel like crying when he showed the video of the boy with GA-1 with his brother and he looked unaffected? The work he and the entire staff at the clinic is doing is wonderful. Bless them.
A moving and inspirational talk by Dr Kevin Strauss, of the Clinic for Special Children. The work of Dr Strauss and his colleagues is nothing short of miraculous and deserves wide visibility!
Thank you so much for sharing this; it is such a wonderful presentation with great hope.
Bless you Dr. Strauss!
This is medicine at its best- beautifully delivered.
There is another program on youtube that someone recorded off of their t.v. and they said that a lot of genetic disorders are caused by inbreeding. The Amish marry amongst themselves and very, very rarely accept outsiders into their community. So there are people that are related, getting married and having children.
I believe that fancy introduction he gave meant inbreeding
Amazing
He did great job not using the term inbreeding
There is more going on than the founders effect, and that should be addressed.
So dancing around the REAL issue.
Ahh murica, always a group of people who want to do things the other way.
These people are like... genetic hipsters
Good work kevdawg
Forgive my ignorance - I don't know the details of US medical bureaucracy - Why is accepting US government grant money a bad thing? I would have thought for a clinic short on money, a government grant to continue research would be a valuable thing.
Because the Amish are ultimately anti government, accept when it comes to trump.
My guess is, to qualify for grants you need to be inspected routinely, abide by safety standards, tons of paperwork probably incompatible with Amish people
Start dealing with the causes and the effects will go away
Amish people can marry austrians or swiss or germans or english girls/boys
hi i am from a family that has a rare defect as well witch also comes from germen blood lines. it is only in are blood line and one blood line in germany it is simaler as if a later verson of this defect it cases over time decrese of moter function and it afects the white mater of the brain it shows in urine as high levels of lisen the same thing in this deseas i had a qestion. in are defect it is only afected by the male and the female carrys it meaning theres a good x and a bad x in the female genome i have done some resurch and have a hoptiosis that may help. in bone marrow transplats the giver of bone marrow blood tyep ends up being the revevers blood type. it changes as the bone maroow helps to make new blood now if a femals bad x could be removed. witch we can do that now. from the bone marro and be given to the affected. the blood type would chang and the body would addapt the new good x if done at time of birth it could stop the pergrason of this defect and help
Unfortunately, or atleast not to my knowledge.. your genome is not able to be changed. Your chromosomes are within every single cell of your body.
We would have many things solved if so v-v
Just tell them to stop inbreeding.
Omg.
Amish people can marry austrians or swiss or germans or english girls/boys