Kids suffer from debilitating episodes after recovering from strep throat (Nightline)
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- Опубликовано: 20 июл 2018
- A once relaxed and positive child, Parker Barnes' parents say he suddenly developed odd tics, rage and anxiety, while Alexia Baier's parents said they feared for her and their family's safety.
WATCH THE FULL EPISODE OF NIGHTLINE: abc.tv/2n0ZlAk
Here's my public opinion, why don't you finish the dam STORY!!!!
Really. I was hoping to see the conclusion to this.
Seriously
@@waltonvelvet There was a reason why I printed dam:)
There's a further episode. ❤️
@@djicu2s379 AHAHA DAM MILKSHAKE DAM SNACK BAR
Who came from the little girl vidio
Just Amaris me
I did 😐
Me
Holy shit
Just Amaris me xd
My heart broke when the dad starting crying.
Me to bro it hurts😭
I was gonna write the same thing and then I noticed your comment. Me coming from a family with an emotionless dad when I saw the father cry I burst into tears too.
A human It should have broke from the beginning.
He must be holding back his cry for the entire interview
Joshph and go to see NorthJersey and then ASGY I AM NOT A COMPUTER
When she said I just want to be good why can’t I be good I teard up
Imagine how scared that poor kid must be
+Arial Mac-Both kids, really. Both of them are stricken with an autoimmune disease that causes them to be violent, lash out, depressed, and start crying on a dime. . .and it's so heartbreaking because they know something is wrong with them as well as their family but they can't explain why or what is wrong with them. And then, the kids are eventually ripped away from their parents and get admitted to the psychiatric ward at 4/10 years old. They lose all contact with anyone and are not allowed to speak to their parents except for 1 hour a day. . .and they don't understand why. They just want to go home. :*(.
Kids are way smarter than we ever give them credit for. Both of this kids clearly knew something was wrong too. There was some kind of battle waging inside their bodies that was eating at them, clawing at them, tearing them apart, and all they know is that the people they love the most are getting hurt from this. They hate it and it hurts them not to know what's going on, not being able to tell their loved ones what's wrong, and they hate that their family is getting hurt because of this. It's why it's so important to not only find a diagnosis but to treat kids with actual respect and dignity throughout all this because they are smart and capable.
Fera Flauna is it bad that I'm this way too
It's terrible. You can't explain. It's too hard, can't even understand it. It's scary..
It's absolutely heartbreaking :(
Pandas sucks i have it
I got strep throat when I was 9 or possibly even 11, now I'm starting to be extremely thankful that this did not happen to me, I hope they gets better
I got Strep throat too, and I have the same feelings!
Most people who get strep recover fine. Cases like this are rare
"They gets better"? Smeigal is that you?
I get strep throat at least once a year... theres so many complications that can come with strep, it’s kinda terrifying
I get strep throat all the time lol
Strep throat infection is very serious. I caught it at the age of 23. Within hours, I was in hospital with a roaring fever. The throat pain was unbearable. I was put on an antibiotic drip and given pain relief. I was in a room alone and all the medics wore masks. 2 days later, I was cleared to go home. Spent 3 days in bed and made a full recovery. I learned that strep infection is very serious and must never be Ignored.
Wow. I’m so sorry. I had it recently but at the time my university messed up my insurance so I took antibiotics from Mexico that my older sister who is a doctor had lying around. Thank god. I was in bed for a week in pain, feverish, etc. but it was manageable. You must have had a higher quantity of bacteria. I also got it as a kid on a few occasions. Very lucky nothing like this transpired unless it explains why I developed severe depression in elementary school.
Wow, I guess I’m lucky I’ve never had it that bad. I’ve had strep throat multiple times as a child and it just felt like a bad sore throat 😬
I got pandas at the age of 6
Wow. My kids have had it many many times. I’ve had it two-three times a year every year and so has my husband. It can actually go away on its own, but sometimes it doesn’t so it’s better to treat.
He said “its like those two thoughts merged, like they were both at war with each other” i felt that
"We" are the demons speaking through your son..this "Panda" thing is nothing but a clever cover-up name to bring more confusion. And fear causing you to run all over the "medical" field and go on a wild goose chase...the demons are many and make up stupid names to confuse you. Dont go on the "big pharma" rabbit trail. Love, prayer, and faith. Sandra Ps demons are part of the fallen angel group and are smarter and stronger than we are..the re is no way to outsmart them other than following Christ's word, avoiding in him, and recognizing who or what you are dealing with, and taking authority in his Name. Just because you cant see them does not mean that they dont exist and that they are not there. (You must be born again Christians to be able to do this.)
Abiding in Him (correction on message above)
When Parker is running in fear saying "get away, get away" it is very possible these monster spirits are appearing to him and terrorizing him. Many children go through this in their family, causing their parents to react or give them a spanking bringing the child even more frustration and anger because they dont know what's happening to them and they dont know how to explain it to their parents......so round and round we go to drs and big pharma and get even worse results...pharmaceutical..witchcraft, magic..sorcery....
@@sandrasteeves6447 Oh good grief. PANDAs only shows up right after a strep infection AND it goes away with medical treatment.
Me too
Poor kid only 9 or 10 but he mind is destroying him
the young nightmares how can you edit your comment but still include the mistake of putting he and not his
I just about cried when I saw his story. It's heartbreaking.
His*
There was a 4 year old who had the same thing a 4 year old!
12
*_oh god i never want strep throat again_*
I know, right? I had no idea something like that could literally make you lose your mind.
Pandas is where the brain has an autoimmune reaction to the strep and the antibodies produced, hurts the brain. if you’ve had strep before this won’t happen. this is also associated with children.
It may have been the antibiotics that caused his mental shit.
MonochromePilots what’s strep aha is it an American thing ?
Pandas only affect 3yrs olds - teens.
You can tell his parents love him so much. They've all gone through so much.
No parents deserve to have to suffer through this emotional rollercoaster, he is so lucky to have such strong parents.
I appreciate this comment so much because I'm a parent experiencing this right now and it is literally the hardest thing I have ever gone through. Thank you for recognizing the incredibly difficult role of the supportive parents. Not everyone is as compassionate when it's behavioral. ❤
In the first place the kid suffers. What is wrong with you adults?
@@victoriagabriella1103 how are you doing now?
I have pandas disease
If a four-year-old is sent to a psychiatry ward after strep throat, then I would hope that psychiatrist would look at the possibility of PANDAS before giving her a bag full of medication. Mental health is an important issue to treat, but we need to start understanding the mind body connection better.
TheLeigha72 a hundred 'likes'
What is PANDAS
PANDAS is short for Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections.
I'm sure that they gave her a bag full of different loads of meds instead of prescribing her something minimal, most likely one medication and it was also her parents decision to send her to a hospital, she stabbed her mother in the eye. a psychiatrist's job is to asses mental function and to help give a medication that could help soothe her EMOTIONS, well enough to be handled. It takes a long time to figure this out as a parent with other children and a job, there's so much that's going on why you people even speak on it when you've probably never even seen one yourself.
America is way too dependent on prescription drugs as a means to "fix" mental illnesses and other medical conditions. I don't blame the average American- it's big pharma companies and these supposed "professionals" that are responsible for looking after people.
Parker’s father brought me to tears...what an awesome dad he has...Obviously all the parents were great but it just touched me to see such a loving father 🙂
This explains why some children may have all of a sudden had behavioural problems they never had before. Thank you for sharing this story. 👩🦰
I got strep throat A LOT threw year 2011-2017 I haven't got it as much as I do now I use to get it every other 2 months or so it was crazy Thank YOU Jesus I did not get this...
If you don't get it the first time you never will
Ye
Oof
My son had “strep” for 18 Months in one form or another. I finally had to ask the doctor review his entire chart, she was dumbfounded. Thankfully two more rounds of vey strong antibiotics, solved the problem. PANDAS is new to me I am thankful to not have experienced it.
I do know strep throat causes rheumatic fever and a bad heart. Damages the valve.
Did anyone else notice that the little boy referred to himself as "we" several times?
👻👻👻👹👹👹
It’s as if he has split brain. That’s where the brain fights with itself. Last vs right and your hands play it out.
Probably just a word stumble. I have caught my self doing some times. I and I have a lot of word stumbles. It is just like saying he instead of she when you are telling a story.
@@AK-rf5oo , That's not something I tend to do. I'm not a nervous child, so it's possible.
I though he said me??
So tell me
What has the out come been?
How are these children now
This video was almost the same as the previous one
What is the conclusion
Rebecca Richardson I think they got diagnosed, because they wouldn’t be doing a news story on this if they didn’t already have a conclusion. That’s how tv works
Rebecca Richardson watch the whole video......they have PANDAS
Lily Barcohana I saw that they have PANDAS. I want to know if medications have helped these children. And if they are back or almost back to themselves
Medicine does help a lot
My husband is a pediatric Occupational Therapist and see kids with PANDAS, it is a very complicated disease, challenging and expensive for parents to deal with. Several cases of PANDAS I know of have been triggered by Lyme disease from a tic.
Mainly diet and gut healing therapies (GAPS diet, probiotics, etc.) have helped the kiddos my husband treats.
I get strep throat like once a year when I was a child. I'm so glad this never happened to me before.
I wanna give him a hug. I teach kids his age and the thought of one of my students feeling this way breaks my heart.
I feel BAD for these parents
I love my mommy I love mommy so much everyday everyday everyday everyday oh my gosh oh my God what happened to me my mommy said what happened to me my face is so here some haircut mommy's tummy haircut12155
I feel worse for the kid don’t know why you wouldn’t
God please help these families and children
Alexia Zamora lol
Why would he help them when he gave it to them?
Alexia Zamora
How hungry or high or both are you?
Youre beautiful!
IamtehFreak Satan gave it to them, not God.
As a teacher, I love the interviewer's way with kids. She's very attentive, caring and a great listener. I love watching her work!
Yes
I read a book many years ago about a boy that had this. His mom went through years of doctor appointments and sleeping outside his room to keep an eye on home. It’s a true story. The things they went through was horrifying. He was finally diagnosed with PANDAS. A permanent course of augmentin keeps it under control.
This reminds me of the movie “brain on fire”
Her doctors were calling her “psycho” and other random things that didn’t make sense but it turned out her brain was being attacked by her body
I also watched that movie. Very powerful and unimaginable what she went through.
4:22 This kid is very intelligent, what he say here explains what's going on with him it make so much sense... It really is a battle!
Eira Zea He is a very very smart child, this just took over him... It feels like I'm losing my best friend my 2nd family brother
I agree
+Eira Zea-Kids are way smarter than we ever give them credit for. Both Parker and Alexia realized something was wrong with them and they were trying to tell their parents what was wrong in any way they could and any way as a kid that they are able to describe it, especially when they didn't fully know what the problem was. But they did realize and reached the conclusion on their own that after the strep infection, SOMETHING happened to them and something was still wrong with them.
But they realized on their own that their behavior was unusual and it did make them unhappy and even sad to realize they were hurting their loved ones. It's heartbreaking-they love their family and would never want to hurt them-the PANDAS was making them do things that they didn't want to. And as Parker himself implied to the reporter over the incident with the knife, he didn't have full control of his body or mind at the time.
So any time kids tell you that something is wrong with them, even if it is small, ALWAYS listen to them. Because they will tell you in their way when there is something wrong with them.
you're right on the mark. Parker is brilliant, and I don't use that term lightly. He often holds the hightest grade in his classes. Junior year in high school awaits in the fall. Watching this again 6 years later and trying to unpack my grief. Parker is doing better but still not 100. Really close, but we are still reaching. Thank you for your kind words and observation. We believe in Parker whole heartedly!
I will pray for these kids and others with disabilities around the world you are in my prayers
Dad: "O great good PANDAS is there a syrup for that, the anti-panda pill"?
😂 that was good
I hate the dad. Him repeating “I want my son back” acting like he’s not his son anymore. He needs to change that mindset.
@@gamergirl4355 bruh do you really think it's still his son...I mean see the first behaviour now the second...
@@gamergirl4355 that’s wasn’t his TRUE son though. He completely changed out of nowhere.
And The Simpsons didn't help with their fictional Panda virus. ruclips.net/video/wYk6Ym1DtrY/видео.html
PANDAS is a decevingly adorable name for something so horrible, especially in childeren. I cried watching this, since I have experienced anxiety and other such problems, and it's not something I would wish on anyone, and definitely not in such an extreme form as this.
Amanda G. Be quiet Amanda
@@alvinailey3rd926 hm.. why!
@@alvinailey3rd926 what'd she do to deserve that?
Ikr
Amanda G. When you read what each letter in PANDAS stand for, it won't seem adorable.
I had strep throat once when I was younger. My mom said I used to be a talkative kid. I’m not sure if this was after the sickness, but I ended up drifting away from people, and becoming antisocial. Now that I’m a 12th grader I’m breaking out this shell.
Eat raw foods like me. You will bust out of the shell entirely. You got my word.
Cool
Jazzy-J X no trust me I had PANDAS from strep you’d know if you had it I couldn’t function it was bad I still have it but symptoms are mostly gone
I mean, puberty is a big change for people. Just developing social anxiety doesn't sound like PANDAS. PANDAS involves a lot more OCD symptoms and drastic behavior. I also developed social anxiety during puberty, but it's not related to the condition they are talking about in the video.
@@TheNaturalhumandiethahagagagagagHAHAGA
Again RUclips... Once again RUclips has brought us together in the realm of recommendations.
This had me bawling crying for this poor baby...that Doctor is a hero
I honestly wonder how many children were beat dam near to death by their parents thinking they are "just acting out" & needed harder discipline. 😢
DevineSpirit92 V Unfortunately, it's probably happened. Poor kids. My entire family thinks I'm too soft and nuts bc I don't agree with beating children (they call it spanking, but it goes beyond that with certain ones of them). Certain members of my family don't believe that children are people too, imo. Like you cant have a bad day, cant get angry, cant have a moment of impulse...yet these are all things adults do and they expect to be overlooked. When a child does it, beat them? No. Teach them maybe. Talk it out with them. If they deliberately broke a rule, then punish them with consequences. But no beating necessary.
just thinking about that makes me ill
Yes. Yes. Yes.
Well seeing this behavior the first day for the first time without having any knowledge of PANDAS, it would be any parent's natural instinct to discipline them for bad behavior. It's not the parents fault and it's not the child's fault. Nobody knew and it just happened. Just a natural instinct to discipline because they think they're just acting out that day. No parent would ever jump straight to the conclusion that it's PANDAS. Nobody knew so they reacted how any normal parent would. But of course after a month or so, they would be concerned.
Cloverleaf Equines go fuck yourself monster.
I'm finally glad pandas is getting the awareness it needs. Bless these children and I hope they're safe 💕💕
This breaks my heart! This is extremely sad i hope they find a cure for these kids
I feel bad for him but mostly his family bc they seem like such nice ppl
My friend has pandas. She first developed it in 5th grade. She's been doing better since and is now off at college living a normal life. I'm proud of her and happy for her. :)
This is promising, thank you
Those poor children, I’ve never heard of “Panda’s” or anything else resulting from getting Strep throat. It must be terrifying for both child & parents when the kids have an episode, the fact that the kids know there is something wrong but are unable to do anything about it must be so traumatic for them. I hope that they can be cured & not have to suffer everytime they get Strep Throat.
Dirty floors
that's because it never existed before @@DeedeeSch1
A friend of mine has PANDAS after getting Lyme disease. It’s horrible
It never goes away. It's a lifelong diagnoses to get PANDAS.
Its demons! Pandas are those bears in China
This is low key super sad ... I couldn't imagine this happening to one of my children .. My heart goes out to these families
My son was diagnosed with pandas after a strep infection in kindergarten. It has completely changed who he is as a person and it’s heartbreaking. 💔
I'm so sorry to hear this. I had strep several times as a kid in the 1970's, I think I had/have PANDAS, it would explain a lot, but this is the first time I've heard of a diagnosis even though I realized the synchronicity and a few of my doctor's made the connection they never told me why or what it might mean. There's a Ted talk about it, too. Blessings for your son and your family 🙏🙏🕊
Hang in there. I hope they can find a way to help kids with that. Much love to you.
Sending love ❤ Im sorry you and your family are going through this.
I'm sorry to hear about your son. Is there anything they can give him to help now knowing what it is ?
so sorry to hear that. My nephew was 12 years old when he got strep infection and he was subsequently hospitalized in a mental asylum. The medication didn't bring him "back" to normality - we sadly merely live with this now.
He is so smart with his words, it’s sad to see any child going through a “war” the way he described it
How horrible and what about children that never get treated...do they grow up to be some kind of uncontrollable psychopath? And how many adults are in prisons because they never were diagnosed. A chilling thought.
Even without treatment, symptoms tend to subside quite a bit during puberty, but treatment improves the chances of complete and earlier remission.
they grow out of it... my brother did.
Iris Gonzales
wow...very good point
thought provoking!
There are treatments available. Some treatments are in earlier stages of effectiveness trials, yet most kids I have worked with who present with PANDAS/PANS get better. The first line of treatment seems to be medical therapy - not so much psychiatric drugs, but appropriate antibiotic care and some other kinds of immunotherapies (which can be controversial in the medical community). Once acute symptoms are controlled, cognitive-behavioral therapies featuring graduated exposures can help any remaining OCD or tic/tourettes symptoms. PANDAS/PANS is not willful or on-purpose behavior. The children are just as scared as their parents, loved ones and teachers. PANDAS/PANS is not psychopathy.
no kidding
It's almost like they get possessed, I had a son that went through something similar. It was heartbreaking however we never figured out what was wrong. Nobody would help us or could help us.
Yes in the bible parents brought their children to Jesus and would ask him to deliver their children from demonic possession or devils....this is highly demonic...satanists go into homes at night and send demons into children that are not under Gods protection if Jesus does not live in those homes
Kerrie Child of God Seriously, stfu with that bullshit. This is a real disease that I and many others have.
@@kerriewithpurpose5722 not all illnesses are the result of demons. Most are actually purely physiological, and require medical treatment. ❤️
Don't look for demons under every rock or you will end up going crazy yourself. 😜
Kerrie Child of God - Get a grip. This is incredibly dangerous and irresponsible garbage you’re spouting and it’s downright disgusting. There is no room for your god in science. A real life disease cannot be cured by imaginary things.
Ppl, I think the appropriate comment here would be... @Carmen Fox what happened to your son? Is he ok now, did he get better at some point?
I am sorry you had to go through this alone and undiagnosed...🙏
My heart breaks for this family. Dear lord.
Brain On Fire is literally these stories but in a movie
Abby Jasper I was about to post that . Lol that was an amazing movie
@@theeasyway9432 TROLL GTFOH
Thx I'mma check it oit
it sucks tf are you talking about
i have the same illness as the person that brain on fire is based on
I had strep throat a lot as a kid...guess I was lucky enough to not have all this happen to me
Timothy Verheyn Jr. I difmd too
I have never had strep throat in my life it doesn't happen in my family.
+Timonthy Verheyn Jr.-To be fair, I don't think most kids, fortunately. . .will have to suffer from PANDAS like Parker and Alexia had to. It is a rare autoimmune disorder where after an infection, the body will start eating at your own brain, causing similar behaviors to mental illness.
And while a lot of doctors are still on the fence about considering PANDAS an actual illness, I believe this truly legitimate and needs to be studied further. After all, you DON'T see that drastic change in behavior from a kid unless there is some sort of trauma involved and if the kid's immune system is eating at the brain. . . it does make a lot of sense. There needs to be a better understanding of just why and how the immune system will start targeting the brain like that in these poor kids. There needs to be better treatment and prevention of "triggers" that can cause PANDAS like strep.
could even be vaccines
+Lila. D-No. . .because there is no vaccine currently to treat or prevent strep. The only way to treat strep is to take antibiotics. You can argue, and there should be research put into it, that perhaps the antibiotics help contribute to that bizarre, negative auto-immune reaction after the strep that can create PANDAS, but if so, that's not necessarily the medicine's fault either. It's more due to the fact SOME people have some kind of autoimmune deficiency where after a "trigger" such as strep comes around, the autoimmune system will behave erratically and even attack things it shouldn't. With PANDAS, the autoimmune system seems to attack parts of the brain after a "trigger" and for whatever reason, antibiotics really seem to help curb a lot of the PANDA symptoms-at least it did with Alexia and Parker.
I had this at 8 years old. My symptoms were non stop facial tics unbearable anxiety, beliefs that someone was “behind a tree about to kill my mom , mom you need to move over there are spikes growing out of my body they’re going to kill you” I would have to go to my dad 100s of times a day saying dad I had a bad thought and explain images flashing through my head. This is no joke I’m lucky I made it through god bless this family I’m 27 now and can say YES THIS IS 100% real. We got blessed with a neurologist who diagnosed it early and I suffered for a month and a half
This really ticks me off! What good is it to put 2 stories like this out here showing these painful images of children obviously suffering bizarre health traumas, and talk a little it about this and that.
And just end it.
Half a year ago I was released from a mental hospital. I stayed for almost 4 months because of crippling anxiety. Mental hospitals are nothing like in the movies. There are professionals who care about you and take care of you and your brain to make you healthy and ready for the world. It's honestly changed me so much.
That is great!! I'm so glad it helped.
I’m so glad to hear that! My cousin had crippling depression and she almost attempted suicide and she went to a mental hospital and she’s still very depressed but that’s because our doctors are shite and can’t give her the right dang medication but she said that the hospital helped her so much and it makes me cry when people say that they are getting better because I know how terrible it can be!! So I’m so so glad that you are doing better!! God bless you!!😊
Glad it isn’t basically Arkham.
OctieBoopTurtle it really cant happen to me i have narcolepsy
OctieBoopTurtle what hospital did you go to because I been in a ward and they are horrible
This is part 2. ABC you kill me with your parts being all wrong. And Being labeled wrong. Ugh!
Eliz S
ruclips.net/video/xK0LguyONXM/видео.html&feature=share
I use to get these when I was younger. It lasted quite a while but eventually “outgrew” it. They were terrifying because I had no idea what was going on and couldn’t control myself whatsoever. Very thankful it went away, and prayers go out to him and his family.
My son is going through this now. He has strep now again. He is on some scary strong antibiotics. He also has ocd with intrusive thoughts and extreme panic attacks and anxiety and worst of all in this situation is that he is intellectually disabled fairly severely and it's hard for him to understand as his level of comprehension is not on the level of other children. We are researching pandas and so much more but most doctor's have no idea what it is. He also fears having sleepovers anywhere even before all of this and he has trust issues. I feel like checking him into a phychiactric institution under his circumstances would only traumatize him and not help. This video is so relatable and yet most doctor's don't understand and are not willing to listen and I cried watching this video bc while Peter is extreme in many ways like these kids but also not in some ways. Every case is different. He isn't eating for so long because of this. It is just devastating and he 100 percent for sure is not the same boy he once was and I just want my son back, whoever he is, I know the real him and just want the real him back. He has been through enough and cannot catch a break this poor kid. This is the hardest thing we have ever had to deal with and we have dealt with alot and are still dealing with a ton right now even in life but nothing like what he is going through. This is our biggest worry and concern even with so many major and scary things going on in life. We are working on it and seeing different doctor's and making appointments still but I just want him better.
This is just truly heartbreaking to see in such a young child 💔
I know someone whose son was dx with Pandas. It took long term antibiotics and though he was better some, now IVgg infusions. But sending them to psychiatrists scares me.
Going to psychiatrists shouldn't scare you--you don't have to commit your child to see a psychiatrist. Second opinions are always good of course, if you have bad feelings about any doctor. Seeing a psychiatrist saved my life--I could not recover from major depression for years until I saw an actual psychiatrist (rather than just doctors, nurses, and therapists) and she helped me safely find a medication combination that put me back to normal. The training and education of a psychiatrist makes them extremely helpful. Nobody needs to agree to medicate their child without doing their research or getting a second opinion if they want. Please don't discount psychiatrists though. As with everything, the few "horror" stories are vastly outnumbered by the millions helped whose stories never become news. And remember that most went into this career specifically because they want and like to help people.
simply danLrene || I have a feeling he and the little girl are diagnosed with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections). It sounds terrifying.
xslg You@ve got to remember that 2 things run this country: Insurance and Drug Companies. They only care about the money, and in honest words, there is nothing we can do about it. I'm willing to bet you that cancer is a man-made disease made to give the Drug companies money. That we have a cure if some of the higher ranked officials get it.
Venus Sattchi No!!!!! You think so??
xslg What drugs were that exactly? You claim it was the drugs so you must know what drugs they were given that caused these problems..so what drugs specifically caused these problems?
Both kids have ultra sweet parents
The eyes of those parents break my heart.
I am so glad Nightline interviewed Dr. Swedo! I am a child and adolescent psychologist and saw her present at a PANDAS/PANS conference a few years back and was happy to hear her updates about the research being done in this area. At that point, I had interviewed about 3 to 4 families of young children who had similar, devastating presentations - almost just overnight, as these two families tearfully describe. I have a few thoughts: 1) this is neurological and not a willful behavioral choice - the kids presenting with these symptoms after strep or another viral illness are not in control and are not "bad or damaged;" 2) these behavioral changes are not their fault, their family's fault or any other person's fault; 3) effective medical treatments are available! - some are not wholly embraced by the medical community, yet medical interventions are catching up and some pediatric specialists in your area may have good ideas for referrals; and 4) with some of the really severe, acute behaviors in better control, CBT for OCD, tics, tourettes can help a child/teen and their family better control remaining symptoms and watch for signs of future "flare-ups."
Why do you do this?! No link to part 2. I've watched 3 videos with no link. grrrrrrrr
Ziggi M they do this all the time with their videos. It drives me nuts I can't find the 3rd part! And THIS video is suppose to be part 2 but it's labeled part 1- along with the OTHER one I just watched. Both say part 1. Ridiculous. Whoever does their RUclips really sucks.
So frustrating
Ziggi M hi. I found the complete story. Here it is.
ruclips.net/video/xK0LguyONXM/видео.html&feature=share
Ziggi M parker?
Zzukiyaki 75 this link leads to a video that is blocked, we can't view it.
So many more kids are going through this in 2023 now more than ever!
My heart goes out to these families. I wanted to cry when I watched this.😢. I hope these kids are doing better❤
This is the most sad and scary thing ever!😧😧😧😧
God!
Poor little boy
The pain the parents are going through is indescribable.
Anti-PANDA pill 💊
This poor family they’re trying to do the right thing and they’re getting tossed around. I hope you guys get the help you need. Truly
I see so many saying that they have never heard of PANDAS. That’s because it wasn’t accepted as real by conventional medicine. It was always blamed on other things such as autism. Strep can also cause Toxic Shock Syndrome and Sepsis. I always take my son in if he has a sore throat and fever to get tested for strep. People think I’m overly cautious but I have lifelong issues due to a virus.
I remember as a teen after having strep for almost a month I became deppressed and my mood changed a lot. I do believe bacteria and viruses can destroy your mental health too. Your body is a system if something isnt right the whole thing falls apart. Hope they are getting the help they need.
I have to be the one to throw a race/class card in the batch but.... Can you imagine how many poor, minority children either die or go to prison for having the same issue go undiagnosed? That's probably the scariest part of all this.
DravenUrei you are right
I guess the kids didnt get the memo to be anything other than caucasian before they have the right for genuine sympathy,,,,,,,, hmmmmmmmmmm,,,
Facts
Aww man, that's really sad
Holy snickerdoodle,, you're right.
Thank you Dr. Swedo! You've saved many lives!
My heart breaks for these children. Something so similar happened to me, I don’t want to explain it all, but I want to help them so bad
I had almost the same at 10 years old and then I got the diagnostic of depression, extreme anxiety ocd and paranoia. Today I am medicated and I have episodes 1-2 times on a month, I hope those children feel better and grown up without this struggles
I got it at age 7. You are not alone! There are adult PANDAS/PANS support groups on Facebook. Sharing my experiences with them has helped me a lot.
+1887-The good news about Alexia and Parker is that they're on a routine round of antibiotics now. That really seems to curb a lot of the PANDAS symptoms-Alexia's mother even noted later that except for a rare outburst, Alexia is actually doing far better now and she's still a sweet, bright kid. Same goes for Parker-you can tell even in the interviews on this special that he's much better now-it's just that his outbursts before PANDAS was diagnosed for him just gives him an understandable discomfort/embarrassment about it.
Hopefully when they grow up, they will both feel much less embarrassed over what happened and take a pro-active role in treating PANDAS. As long as they do that, I think these kids will be just fine.
1887 same
I almost have the same thing for some reason I developed chronic anxiety and extreme paranoia at the age of eleven now I’m twelve and taking various pills daily. I understand if you don’t believe me. But I just want you to know you aren’t alone
Try raw foods, it made most of my depression and anxiety dissappear. Depression is malnourishment my friend.
Poor baby 😢
Qtcarmen7 W he spoiled by Pokemon games losses... Lol
Game Over 😅
I feel so awful for this kid
xslg no they didnt. Tf? The strep attacked the still developing brain and body. You need to give your children vaccines. Not an option
xslg YOU have something to learn. You are a crazy person. You don't understand what the vaccines are. You need to do you research and be reasonable
To everyone who has this horble rage lurking inside them know there is hope I almost cried and if one person can be cured remember u can be to
Omg the father made me cry 😭
Poor little boy
Those kids outbursts look like my daughters “freak outs”, except hers were caused by allergies. I had no idea allergies could cause my child to become borderline autistic with tantrums that were terrifying but every time her eczema flaired up & her plethora of allergic symptoms appeared she’d change. Trying to jump out of a moving car, biting me, hitting herself or worse. We ended up doing protective use of force which is basically wrapping her up in our arms and legs and not letting her hurt herself or others. Fortunately dietary changes helped but weren’t as helpful for the environmental allergies she’s suffers from as well. Fortunately she seems to have outgrown the worst. But I never knew allergies could do this. But allergies are epidemic now it seems, I knew one kid with a food allergy growing up yet now every other kid has them and they can be deadly. There’s something wrong in our food, air, water, environment, etc., and it’s impacting our kids. Yet we’re now allowing even more toxic shit into the environment. (Thanks Scott Pruitt, your legacy is more then over the top corruption.) At the same time we don’t have the kind of health care we need to deal with it bc we have a for profit system. I had to cobble together testing and treatment for my kid bc I’m not independently wealthy. We are the richest country in the world with a ton of money for massive tax cuts for corporations yet we can’t take care of all of the children in our country? This scarcity bullshit is a ploy. We are choosing to spend our money on things other then the health of our ppl and our children. Or our children’s education. We have plenty of money but we’ve been told by corrupt politicians who are essentially being bribed by big business to tell us that there’s not enough money except for when it’s for war or tax cuts for the .1%. I’m lucky compared to some parents bc some parents have no resources. But even ppl with more then I have are being forced to make terrible choices in a desperate attempt to help their kids.
After PANDAS develops, allergies can cause it to flare up, and flares can take a kid from 0 to 100 in a day. Maybe it's worth looking into?
Dude you literally called out big government corruption and called for even bigger government in the same paragraph. What even?
Seek a good naturopathic physician and natural therapies for the remaining allergies. Heal the leaky gut issues, and eat only certified organic foods. Grains have Glyphosate/RoundUp which causes hole in the gut causing leaky gut syndrome.
Hi Zoey, it may be worth looking into something called helminthic therapy to see if it is something that might help. I recommend a resource called the "heminthic therapy wiki", it has lists of research articles, an understandable intro, and lots more.
+Zoey Zoey-Zoey-It's wasn't the allergies that necessarily caused the PANDA symptoms in your child. The allergies were really just a "trigger" for a bizarre autoimmune response. It was the autoimmune response that started to "eat" at the brain, which caused these bizarre behaviors. Fortunately, it seems that antibiotics and sometimes diet changes can help offset most of these PANDA symptoms and hopefully, your daughter is doing much better now.
As for WHY her body started to do that in response to allergies. . .I can't say. Autoimmune diseases are strange and there's still not enough resources/information into why some people are perfectly fine while others do get these bizarre responses from their body. I have a sister who has Type 1 diabetes-my mom suspects it came about after her pancreas was damaged from strep as a kid and slowly wore down. . .I had the same strep and I never had that problem. . .Why I was fine and she wasn't. . .it's hard to say. . . We just need to be able and willing to explore and determine more information on it, and those who do have autoimmune disorders should be told early that they have warning signs so they can treat or prevent anything that may come from it.
Is anyone else crying??
Jessie :3 nope I’m crying too
Me
Jessie :3 men aren’t supposed to cry
Jessie :3 no why would you cry 🤔
Jessie :3 no wussy just you alone
This made me cry
My heart breaks for this little boy and his family..
This was actually interesting news that imparted important information. Thanks abc.
My little brother just had strep throat 😰 Thankfuly, he's fine and well 😔
Can’t imagine, but I believe it. I’ve had multiple strep, ear nose and throat infections as a kid and have epilepsy. Before the episode I’d see weird things, feel terrified, get super talkative or silent. As a kid I can’t imagine trying to understand these things! I was a teen luckily when my major symptoms started. Luckily I’m better, still have a few seizures but I manage! Hang in there. If you don’t get results from one doctor or feel they aren’t understanding the situation find another ❤️
Can you link to part 2?
BTassie ruclips.net/video/pieFpXK-8xg/видео.html
ruclips.net/video/pieFpXK-8xg/видео.html
Mackenzie Masek - Thank you.
This is part 2; abc is awful when it comes to properly labelling their videos.
BTassie this is part two
Holy crap my daughter had her tonsils out after numerous bouts of strep at age 8. By age 10 she was vomiting 16 days at a time every 3 months. At age 12 she was in hospitals for both that and mental illness behavior by age 14 we had a cutting child in and out of hospitals 8 times. By age 16 she became violent hurting others in the hospital and just this month attacked me hitting me 20 times. Breaking my hand and causing a severe concussion. I tried to fight back but shes 20 and 260 pounds I'm under 160. Then shes been in jail for hurting a patient in a hospital and for hurting me. I cant find a facility long term to put her in. I'm scared my family is scared. They say she has bipolar and schizophrenia and she thinks shes a boy. She is a cutter and takes tons of meds. I never thought about strep maybe having a connection to this. But maybe my child really is mentally ill.
Patricia Smith oh you reckon
Patricia Smith please get her checked for PANDAS.
I'm so sorry all this happened to you and your daughter :( Mental health issues are sometimes hidden physical health issues. Best of luck for your family.
Hi Patricia, I'm so sorry to hear about what you & your daughter are dealing with & I agree with the other commenter here that stated you should try to get her to a doctor. Also, hopefully you'll be able to find resources for help by doing a Google search.
Best of luck to you & will say a prayer for you & your daughter.
If she thinks she’s a boy that’s not a disease, some people are boys stuck in girl bodies, and vice-versa, it’s scary to think about it
These parents are amazing 🖤
My brother died from this untreated illness he was born with ceberal palsy but the New Mexico hospital neglected isiaha Juan Ruiz untreated ailment thanks to the New Mexico
hospital his quality of life changes and he is no longer here to suffer anymore from New Mexico neglect im glad that he is with god now and he would be here today if he got the right treatment for his many medical problems and he was an angel the world forget because he was mentally delayed he was bullied and abused by the world and I hope people understand to be more compassionate towards people who are different who aren’t able to know any better because they are sick with medical problems and they are outcasted by society
The difference in both children during an episode and normal is insane, so sad they probably black out when it’s happening, and to the sweetest kids :(
Having this condition at such a young age must be so hard, I wouldn’t be able to imagine even being in the kids or the parents situation, I hope everyone is okay 🙏💙
the real hero here is the doctor. bless her heart
Looks like the story was cut off before we see the outcome.
What happened to the rest of it?
Really hoping both children have some improvements!
This made me cry.
This sacred me
ikr, terrifying to have
@Mike The Scott LOL.
I feel *sacred* too
That secular me though
Oh my god I knew from the very beginning it was about this. I have had this since 2015, 7 years now I’m still in shock that it’s finally getting recognized. When I had it, it started with a sore throat too and my parents thought I had seizures but I was twitching and back then there were very few that knew about it. When I was getting mad I felt like I was trapped just watching myself say bad things. Then after, I would always ask myself, “what’s wrong with me .” I really just want to be normal and it would drain all of my energy. I would never remember anything. It felt like it was in a dream and we found out like 2 or 3 years after. We went from doctor to doctor. I was just getting medicine that would not help. I gained so much weight on one medication and when I got sick I would get super mad out of nowhere. We learned that when I would get mad then it meant I was sick and I got no other symptoms like fevers etc. I would just get mad and what my doctor said is that when I get sick my white blood cells instead of killing the bacteria they go and pretty much just attack my brain. So my brain would get inflamed and that’s why I got mad but then people and doctors were learning about it . We drove so far to find doctors. That’s mostly my story and I’m still in treatment including IVIG and meds. I’m still in treatment but I’m getting better so that’s my story. If any one else has pans or pandas, I pray you get better soon. I would love to hear others stories too.
How traumatic for these two children in these videos. I know it is hard for all the families as well. What are the steps to helping them? I really hope there's light at the end of the journey that they are going through. I will remember these videos to share with others. God Bless.
Poor little dude
Parents all of these things began because someone down the road took their sick child somewhere. Infecting another. If your child is sick, please keep them home!
Yesenia Ramos thus is an uncommon response to an illness. Perhaps keep the children at home for outbursts. But these symptoms aren't ccommon or communicable.
Yesenia Ramos Thats right!
Damn now that I think of it that makes sense
I saw that look in my son’s eye when he suddenly caught a high fever as if he was having some kind of still seizure and I rushed him to the hospital and he was diagnosed with strep. It was so scary. And this makes me so sad to watch for the families.
That dad tearing up really tears me up
Why can’t doctors or psychiatrist find out was wrong with me.
what?
Why do you think something is wrong with you?
Joseph why are you asking RUclips
Eduardo Ferreira I’ve been going to therapy. I have anxiety and depression. I just want to live a normal life but I can’t
Joseph Ahh I see. There's always a root to what you may be feeling. Not your fault. Never is. But you have to try a lay out your feelings piece by piece and see what may be bothering you or keeping you down. Also, examine the company you keep. Make sure you're surrounded by positive people. Those that remind you just how important you are everyday. You are important. You matter. Don't ever think otherwise. Send me a message if you want to keep on talking. I'm here to talk. Judgement free. I promise.
Whenever I'm sick or in lots of pain, my anxiety becomes worst sometimes.
Trinity Livingston who?
Ben Soriano what do you mean by who?
Don’t worry you don’t have pandas, stop making this all about you.
Knuffelbeer I know that I don't, I'm just saying it's not always pandas and if you have a problem with what I posted than maybe you shouldn't comment on it. I can say what I want on here, it's my free right.
KAISER ZACHARIAH QUEST go f yourself, this girl is just stating her problems. She isn’t selfish
Me: Has Soar Throat
Also Me: Oh God, Imma die
Oh that breaks my heart when the dad explains about the text message he received from his son. That’s so sad.
When I had Strep when I was kid it resulted in me having seizures and they can’t find the cause but just that its affecting the left part of my brain. I’m 23 and up until now still on medication.