11-Year-Old Girl 'Allergic' to Sunlight | ABC News

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  • Опубликовано: 2 июл 2015
  • Savannah Fulkerson has a rare genetic condition that causes her skin to burn when exposed to the sun. Some would say she is allergic to sun or allergic to sunlight.
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    Around the time Savannah Fulkerson turned 4, she became unable to spend any length of time outdoors. “We’d be outside about 20 minutes or so … she’d say, ‘I burn!’” recalled Savannah’s mother Andrea Fulkerson. Fulkerson remembers Savannah in so much pain she had “uncontrollable screaming like she got hit by a car.”

Комментарии • 81 тыс.

  • @lovecenic
    @lovecenic 4 года назад +17971

    "it's all because of that damn phone"
    -parents 2019

  • @catundertail4160
    @catundertail4160 3 года назад +5358

    shes been quarantined her whole life, respect.

  • @rosesavocado8557
    @rosesavocado8557 Год назад +796

    She is so mature for her age. She understands that the kids that make fun of her isn’t personal, it’s just because they’re to immature to understand. She is very outspoken and kind. My respect for her really reached its peak when she said that other kids have it way worse than her. Not many kids understand that. I see very bright things in her future.

    • @katosgaming8826
      @katosgaming8826 Год назад +14

      Bro 😂 why " I see bright things in her future " 😂😂

    • @rosesavocado8557
      @rosesavocado8557 Год назад +12

      @@katosgaming8826 OMG 🙊I just realized this…

    • @SMCwasTaken
      @SMCwasTaken 11 месяцев назад +4

      But she's throwing a tantrum

    • @rosesavocado8557
      @rosesavocado8557 11 месяцев назад +24

      @@SMCwasTaken She’s not. Poor thing is crying out in pain

    • @teenagecarlover1567
      @teenagecarlover1567 9 месяцев назад +15

      @@SMCwasTakenyou’d do the same thing dude😒

  • @cgrogers96
    @cgrogers96 Год назад +447

    Seeing her cry just broke my heart. I hope she’s doing ok now

    • @Yunafan2963
      @Yunafan2963 11 месяцев назад +26

      Don't worry she's okay now

    • @Jugglenut10
      @Jugglenut10 20 дней назад

      Some people are making fun of her and taking advantage of her, these people need to go to hell.

    • @mrrobloxgaming3613
      @mrrobloxgaming3613 14 дней назад

      People like her disver better

  • @BanditFoxx
    @BanditFoxx 4 года назад +17184

    *I swear my parents would’ve just told me to quit being so sensitive.* -sigh-

    • @nutellagacha6572
      @nutellagacha6572 4 года назад +222

      Grey the Wolf same

    • @younge252
      @younge252 4 года назад +672

      My father would beat me up till the allergies to go away he was one crazy bastard

    • @NathanJ249
      @NathanJ249 4 года назад +163

      Fucking same...

    • @charleybleh
      @charleybleh 4 года назад +80

      Bruh

    • @charleybleh
      @charleybleh 4 года назад +168

      Damn, my mom is a nurse and I feel like she would tell me I'm fine

  • @ijustlivehere15
    @ijustlivehere15 8 лет назад +3925

    She should be a gamer...we dont leave our rooms

    • @onlylnw
      @onlylnw 8 лет назад +124

      Yassss. Best. Comment. Ever.

    • @katarinaducouteau7241
      @katarinaducouteau7241 8 лет назад +83

      im a gamer who just locks myself in my bedroom playing League of Legends ALL DAY xD

    • @larissavampire9122
      @larissavampire9122 8 лет назад +24

      One Does Not Simply haha I really do feel sorry for her and everything but I love this comment, best thing ever, I never leave my room neither

    • @esfandiaribhaktiari3854
      @esfandiaribhaktiari3854 8 лет назад +8

      One Does Not Simply Welcome to the club... ;D

    • @lilang59
      @lilang59 8 лет назад +3

      omg yasssss :D

  • @sselluoss5935
    @sselluoss5935 8 месяцев назад +34

    Shes 19 now, i hope she ended up ok and found someone to love her dispite the disability

    • @mikeytokyorevengers3743
      @mikeytokyorevengers3743 8 месяцев назад

      Where is she right now? Does she have a Instagram

    • @sselluoss5935
      @sselluoss5935 8 месяцев назад

      @@mikeytokyorevengers3743 no clue. Just hope she's alright. I know how shitty it is to grow up with a disability. It's tough but possible

    • @locksley2010
      @locksley2010 8 месяцев назад +1

      She's on Tik Tok. She has treated her disease and can now spend time outside in the sun.

    • @sselluoss5935
      @sselluoss5935 8 месяцев назад

      @@locksley2010 k

  • @c_llard_mvtt
    @c_llard_mvtt Год назад +504

    as a person who is allergic to the cold and gets hives when exposed to cold weather and/or cold water, i bet my pain isn’t even half as bad as hers and i hope she gets better, love y all! stay safe!

    • @Cinnamon95183
      @Cinnamon95183 Год назад +19

      Don't go to Chicago or Canada during winter. It's always so fricking cold.

    • @c_llard_mvtt
      @c_llard_mvtt Год назад +19

      @@Cinnamon95183 good to know

    • @hahahaqi
      @hahahaqi Год назад +4

      @@c_llard_mvtt go to the hottest contry

    • @Alpha-Kenny-Body
      @Alpha-Kenny-Body Год назад +6

      @@hahahaqi nah go to a balanced weather or warm weather country

    • @Dragon-Slay3r
      @Dragon-Slay3r Год назад +3

      @@Cinnamon95183 🤣 FBI x? 🙀 4 5 10 15 are the same I've seen them share the same flats

  • @emilystanage4611
    @emilystanage4611 3 года назад +5425

    School nurse: “She just needs some ice”

  • @colesimon9364
    @colesimon9364 4 года назад +15552

    all yall complaining about staying inside during quarantine imagine how she feel😳

    • @isaacportillo47
      @isaacportillo47 4 года назад +405

      U right.

    • @hayd3058
      @hayd3058 4 года назад +338

      I know, I just say to people get over it, it’s better than risking your life and some people have worse life than you

    • @tiffany15O5
      @tiffany15O5 4 года назад +240

      @@hayd3058 just because other people are suffering doesn't mean you can't also be upset

    • @camilasantaella7784
      @camilasantaella7784 4 года назад +112

      【ダークナッツ】 nobody said that my g

    • @cultureliteratureantiquiti6445
      @cultureliteratureantiquiti6445 4 года назад +11

      My favorite is

  • @ALB94646
    @ALB94646 Год назад +42

    Oh, poor baby. This breaks my heart, hearing her cry like that. I hope she’s doing better now

  • @mint_soup9743
    @mint_soup9743 Год назад +85

    Proud of you sweetheart. ( I'm allergic to the sun too!) You are a champion in your own right and are very lucky to have such loving parents. ❤️ There is so much left to be grateful for and you have a team of people across the world looking for a cure right at your side! 💙

    • @chelnextdoor
      @chelnextdoor Год назад +6

      You’re strong ❤️

    • @iamghost_
      @iamghost_ 4 месяца назад +1

      I can be allergic to the sun sometimes. I remember around October, I was outside doing something and the sun was burning my skin soo bad to the point where I had to find shade.

    • @Toca_Zoey10
      @Toca_Zoey10 Месяц назад

      You are so brave

    • @Toca_Zoey10
      @Toca_Zoey10 Месяц назад +1

      You are so brave

  • @elizabethmerrick877
    @elizabethmerrick877 3 года назад +13762

    if anyone’s wondering how she’s doing now, she’s participating in a drug trial that allows her to go outside in the sun for a short amount of time. she’s doing great

  • @human5130
    @human5130 3 года назад +7074

    I don't understand how some could be so *stupid* , to make fun of her for this.

    • @sandrashalaby2
      @sandrashalaby2 3 года назад +110

      Obviously people who have F- science shout out to Science Club the people who know that this should not be made fun of👍👍👍

    • @benjamineriksson3147
      @benjamineriksson3147 3 года назад +38

      The only thing I think is she should live in the Nordic countries or working in LA but gotta be hard with working night shifts all the time.

    • @justinongfuel693
      @justinongfuel693 3 года назад +7

      Yes

    • @Dr-Random
      @Dr-Random 3 года назад +35

      HenryLighthart sometimes the Internet makes me want to commit suicide.

    • @aaliyahclark4179
      @aaliyahclark4179 3 года назад +16

      Windows 7 Professional please don’t I’m here for you

  • @gloomjesussecretaccount
    @gloomjesussecretaccount Год назад +19

    I went to school with a girl who’s whole family wore all black and carried umbrellas outside. Everyone always said she was allergic to the sun. I always wanted to talk to her but didn’t want to be rude or bother her. She was beautiful but very pale. I think about her a lot and wonder what that was all about

  • @ThuNguyen-jy2jt
    @ThuNguyen-jy2jt 7 месяцев назад +17

    She's so pure and innocent. I just want to give her a big hug. I hope she's doing well and is still keeping up that high spirit! ❤❤❤

  • @Sleipnirseight
    @Sleipnirseight 3 года назад +2779

    5 years of doctors blowing them off when all she needed was a simple blood test. Gotta love our healthcare system

    • @Antifashanarch
      @Antifashanarch 3 года назад +73

      That disorder is quite difficult to diagnose, its not the doctors fault.

    • @Hardin_sisters
      @Hardin_sisters 3 года назад +122

      U guys gotta stop thinking doctors know everything, as if they just have all the answers sitting in their brain arsenal, they dont! start by not putting all your faith in man anyway. They couldn't fix her all they told her is what she prob already knew with a name attached

    • @Antifashanarch
      @Antifashanarch 3 года назад +9

      @@Hardin_sistersyeah, there is no cure for that so it didnt matter

    • @Sleipnirseight
      @Sleipnirseight 3 года назад +59

      The point is not that doctors should know everything. The point is that doctors in the US have a reputation for being dismissive, particularly of certain groups of people.

    • @Sleipnirseight
      @Sleipnirseight 3 года назад +21

      @@Hardin_sisters thank you, I don't put my faith in man. I put my "faith" in the scientific method, exactly because it doesn't rely on faith.

  • @Dibbydibble
    @Dibbydibble 3 года назад +4496

    “It burns mommy” for some reason that hit hard 😔

    • @trapmaster8458
      @trapmaster8458 3 года назад +22

      69 like

    • @SamStraker
      @SamStraker 3 года назад +44

      This hit HARD

    • @weirdpotato4054
      @weirdpotato4054 3 года назад +64

      *flashbacks on when your mom pours a hot boiling water to you*

    • @ccc2943
      @ccc2943 3 года назад +73

      weird potato
      This isnt a joke Idk why your joking about this

    • @param6727
      @param6727 3 года назад +38

      @@weirdpotato4054 😐😐😐😐

  • @TheSonicAndTailsShow
    @TheSonicAndTailsShow Год назад +62

    Salute this brave soldier! I'm glad she's doing better now.

    • @cha_hoe
      @cha_hoe Год назад +1

      bruh what lmfao

  • @jacobheise3951
    @jacobheise3951 7 месяцев назад +4

    I love this. Bless her and everyone struggling with this unfair condition

  • @coryovfx
    @coryovfx 2 года назад +8311

    It’s so heartbreaking how she says “I try not to think about it because some people have it worse than I do”
    Respect for this young lady

    • @EliasIsC0ol
      @EliasIsC0ol 2 года назад +39

      Omg so true

    • @wlathwait4971
      @wlathwait4971 2 года назад +51

      I was allergic to bathroom light

    • @kpopcoreanimeepixx7010
      @kpopcoreanimeepixx7010 2 года назад +22

      @@wlathwait4971 bathroom lmao

    • @aylssakarla8034
      @aylssakarla8034 2 года назад +17

      @@kpopcoreanimeepixx7010 I laughed too I'm sorry 😔😭

    • @therealvii
      @therealvii 2 года назад +10

      @@wlathwait4971 I hope you’re doing better now :D

  • @whatareyoudoinginmyswamp4607
    @whatareyoudoinginmyswamp4607 4 года назад +2442

    _Cue the “God forgive me for complaining about my life” comments_

    • @MrPicklekvGygA
      @MrPicklekvGygA 4 года назад +42

      *The bible is the greatest work of mythology I have read*

    • @Amy-ce8gf
      @Amy-ce8gf 4 года назад +24

      *”God forgive me for complaining about my life”*

    • @user-dx7ps9xs4p
      @user-dx7ps9xs4p 4 года назад +11

      Finally a comment that sees through all those beggars

    • @just.alexis887
      @just.alexis887 4 года назад +9

      The Lost Cosmonaut it’s real not a myth

    • @just.alexis887
      @just.alexis887 4 года назад +8

      Amen

  • @loolafly7967
    @loolafly7967 Год назад +12

    What an amazing and very mature young lady. It’s great to know she is now participating in the drug trial and I truly wish the best for her. I believe this young lady will go on to be someone very special in her life. Love from Scotland xxx

  • @birdyfilovingheart6365
    @birdyfilovingheart6365 5 месяцев назад +4

    She's not only beautiful, brave and inspiring, she's articulate and has a strong character. Whatever life throws at this young lady, she'll shine 😊

  • @puddle_han
    @puddle_han 3 года назад +3337

    News: "Girl is allergic to sunlight"
    My story animated: *write that down*write that down*

    • @bagelbob3979
      @bagelbob3979 3 года назад +143

      yeah except instead my story animated is always fake storys like 5 yr old billionare now that just some bs

    • @bunni9262
      @bunni9262 3 года назад +25

      @@bagelbob3979 have you seen stormi

    • @bagelbob3979
      @bagelbob3979 3 года назад +6

      @@bunni9262 ? wdym

    • @prnl-_-mystic2976
      @prnl-_-mystic2976 3 года назад +6

      Ikr

    • @potato512
      @potato512 3 года назад +4

      So true lol

  • @grayson2145
    @grayson2145 3 года назад +9473

    Can we all give a salute to this girl for being in quarantine for her whole childhood and possibly her entire life

    • @Tristan1886
      @Tristan1886 2 года назад +239

      See this is why I don't complain about quarantine. Altho I purposely isolated myself even before quarantine anyways.. but I know that I have it easier than others. This poor girl has this for life. I can't even imagine it.

    • @capybara9521
      @capybara9521 2 года назад +6

      @Julian2134 Delangel you like your own comment cringe

    • @MypronounIsKing
      @MypronounIsKing 2 года назад +21

      @@Tristan1886 So because of a one in a million medical situation you think that means we should all be forced to stay indoors ?? How does that make sense. Quarantining is dumb and has been brainwashed into the normies and mainstream abiding peoples heads. All brainwashed

    • @Tristan1886
      @Tristan1886 2 года назад +29

      @@MypronounIsKing We're gonna just ignore there's a virus going around are we? Honestly you guys can do what you want I'm not even speaking for everyone. But going out is a risk so the most I can say is take care and stay safe and try to protect yourself.

    • @claytong2069
      @claytong2069 2 года назад +4

      I do that too

  • @KitKitbar
    @KitKitbar Год назад +27

    Poor thing. I hope she's doing so much better. It's heartbreaking to hear her say " it hurts mommy" while crying. Bless her, and may the Lord help her through it❤️❤️❤️❤️❤️

  • @sophie_arkenstone1484
    @sophie_arkenstone1484 10 месяцев назад +7

    What a sweet girl, I hope she’s doing okay today.

  • @jordeecakes
    @jordeecakes 8 лет назад +14111

    aw i felt so bad when she was crying

    • @kaia6278
      @kaia6278 8 лет назад +125

      so do I and I'm just gonna admit that I was stalking your RUclips channel lol😂

    • @KimmieVZ
      @KimmieVZ 8 лет назад +27

      Oh wow ! :(

    • @soulextracter
      @soulextracter 8 лет назад +30

      xxkaiaxx x That escalated quickly

    • @NiaBazemore
      @NiaBazemore 8 лет назад +7

      I saw it too

    • @KaylaLoveYaLucas
      @KaylaLoveYaLucas 8 лет назад +3

      jordeecakes jay queen

  • @harrypotter8984
    @harrypotter8984 4 года назад +6264

    “Darkness is my home”
    *nervous laughing intensives*

  • @khanp2420
    @khanp2420 9 месяцев назад +2

    This is just so heartbreaking. Be greatful people

  • @wlfsprt9125
    @wlfsprt9125 Месяц назад +2

    It is called porphyria 😢, I have lived with this for decades. Bless you young lady.

    • @raelynnnnnnn
      @raelynnnnnnn Месяц назад

      I hope you’re doing okay, please stay hopeful❤

  • @ianbarber2937
    @ianbarber2937 3 года назад +2067

    I don’t care what these stupid bullies say. That hat is quite dapper.

    • @Dokozu
      @Dokozu 3 года назад +11

      ?

    • @ianbarber2937
      @ianbarber2937 3 года назад +46

      @@Dokozu they said she looks like a mushroom with the hat. I say the hat is cool.

    • @genesissmalls3720
      @genesissmalls3720 3 года назад +5

      Dapper Dan

    • @ianbarber2937
      @ianbarber2937 3 года назад +5

      @@Dokozu dapper is just a funny way of saying cool

    • @hardcorehunter9438
      @hardcorehunter9438 3 года назад +6

      @@genesissmalls3720 I don't want fop God damnit, I'm a dapper dan man

  •  2 года назад +4812

    She’s 18 now, I hope she’s doing well 😔

    • @l0via359
      @l0via359 2 года назад +247

      She is, she can go outside without having to cover up

    • @Aureiixz
      @Aureiixz 2 года назад +30

      Yes….

    • @amutatedsponge1157
      @amutatedsponge1157 2 года назад +32

      She is beta

    • @williamlim5234
      @williamlim5234 2 года назад +24

      bot

    • @caracal8356
      @caracal8356 2 года назад +9

      Yeah she can can die if she spends too much time outside in the sun

  • @jima8946
    @jima8946 Год назад +2

    Sweet little girl. Brokers your heart to see any child in pain

  • @Lia_621
    @Lia_621 7 месяцев назад +2

    This is my message to kids, teens ,adult or anyone who is suffering from this disease .
    We all know how painful that must be to go through in every-every day.
    But we will all support you 💪🙏 and also pray for you in this difficulty movements 💞🙏
    We pray you stay strong 🙏❤ and hope you won't let this disease or condition stop you from doing your daily activities such as cooking, playing or even smiling etc.

  • @jessicagirard6983
    @jessicagirard6983 7 лет назад +3535

    That poor girl I cant even imagine

    • @peytonknows9249
      @peytonknows9249 7 лет назад +7

      Jessie Boo poor little girl

    • @fatfreeyogurt9081
      @fatfreeyogurt9081 7 лет назад +6

      but atleast now when everybodys sleeping she be on her phone in bed

    • @zayb07
      @zayb07 7 лет назад +5

      Jessie Boo me neither! 😭😭😭😭😭😢😭😭😭😢😭😭😭😢😭😭😭😢😭😭😭😢😭😭😭

    • @honey1971
      @honey1971 7 лет назад +6

      Jessie Boo 😭😭😭

    • @celebystar5345
      @celebystar5345 7 лет назад +12

      I wish some thing could help her

  • @MrMattyboy321
    @MrMattyboy321 8 лет назад +7679

    Move to the UK. You will be fine most of the time

  • @carolinewolf_flame8123
    @carolinewolf_flame8123 Год назад +3

    Brave young lady, I wish her all the best in life

  • @xxlil-_-stinkxx8786
    @xxlil-_-stinkxx8786 Год назад +3

    Aw bless her heart. She doesn't deserve this. Praying for her 🙏

  • @kuroromelomi5479
    @kuroromelomi5479 3 года назад +2034

    I honestly feel so bad because she’s laughing while talking about her allergies..

    • @sabinaxyx
      @sabinaxyx 3 года назад +10

      Hanako-kun!?

    • @noonedoesitlikepasta9520
      @noonedoesitlikepasta9520 3 года назад +8

      @@sabinaxyx I'm simp for Hanako Kun!(T_T)

    • @Sofie-pr4ke
      @Sofie-pr4ke 3 года назад +3

      I LUV YE PFP

    • @Sofie-pr4ke
      @Sofie-pr4ke 3 года назад +4

      @@noonedoesitlikepasta9520 same I have a hoodie w his face and I made a collage of him in my room lol

    • @notkatie5132
      @notkatie5132 3 года назад +5

      She is such an optimist I love her she's so happy

  • @Wha0
    @Wha0 3 года назад +2775

    Are we going to talk about how they are recording her crying tf is that

    • @superwolfpup
      @superwolfpup 3 года назад +341

      Maybe they were worried and they took a video for the doctor to see how she reacts instead of putting her through the pain again for the doctor.

    • @sallowsquallsofficial6781
      @sallowsquallsofficial6781 3 года назад +154

      They do that because the reaction to pains makes medical diagnoses easier, and even more identifiable to individuals that may be suffering.
      It's also a good way to emphasize.

    • @edgymix9109
      @edgymix9109 3 года назад +30

      @@superwolfpup yeah i was gonna say that. Since she cant get go out to go there

    • @pandacrossing9742
      @pandacrossing9742 3 года назад +21

      It’s messed up how they put it on tv though

    • @sallowsquallsofficial6781
      @sallowsquallsofficial6781 3 года назад +13

      @@pandacrossing9742 Nah. Not really.

  • @heathermacananny5579
    @heathermacananny5579 8 месяцев назад +2

    awwwww hope she gets better god bless her

  • @CeciliaDuffy-mh1nd
    @CeciliaDuffy-mh1nd 7 месяцев назад +2

    She is strong I hope she will be okay

  • @UserUser-ov2ig
    @UserUser-ov2ig 3 года назад +4192

    I’m so thankful for having a healthy body

    • @summerkampy7108
      @summerkampy7108 3 года назад +95

      Me to I have exzema but watching this my exzemas nothing!!!

    • @Valeoe
      @Valeoe 3 года назад +6

      Na fam this is funny

    • @318DoubleE
      @318DoubleE 3 года назад +42

      Peccavi you sure?

    • @Valeoe
      @Valeoe 3 года назад +10

      @@318DoubleE yeah it also the girl is literally emo I live in the darkness

    • @udhav423
      @udhav423 3 года назад +121

      @@Valeoe that girl is going through so much pain & you find this funny?

  • @miriameclipse7953
    @miriameclipse7953 4 года назад +2566

    “ I just try to think positive because I know there are people who have it way worse than me “ WOW WHAT A GIRL🙌🏾

    • @1youngwest
      @1youngwest 4 года назад +29

      Said the same thing. We gotta be thankful.

    • @fireblaster8916
      @fireblaster8916 4 года назад +15

      I always say this when I’m hurt I just think of the kids in Africa

    • @N1sjsjsj
      @N1sjsjsj 4 года назад +14

      @@fireblaster8916
      i live in africa oof

    • @nab345t
      @nab345t 4 года назад +18

      Not saying her perspective is wrong but its not right to use comparisons to make oneself feel better, i do it to, but its just not right

    • @Red-ko3nf
      @Red-ko3nf 4 года назад +3

      Punch Line Cartoon yeah

  • @iheartpink2222
    @iheartpink2222 11 месяцев назад +5

    She’s almost 19 now, idk what’s going on now!
    Hope she’s doing alr

  • @indie_lover
    @indie_lover 7 месяцев назад +2

    I wanna give her a hug ❤

  • @KlausWonderstrap
    @KlausWonderstrap 8 лет назад +1681

    "Dark's my home"
    She needs to become a crime fighter...
    Like Batman.....

    • @prozackfilms8661
      @prozackfilms8661 8 лет назад +20

      I respect you

    • @jefferygiraffe2668
      @jefferygiraffe2668 8 лет назад +4

      Klaus Wonderstrap Best idea ever 10/10.

    • @Fattydude66
      @Fattydude66 8 лет назад +33

      Klaus Wonderstrap Nah she's gonna be Bane... I was born in the darkness... Molded by it.

    • @Zorriel
      @Zorriel 8 лет назад +1

      Klaus Wonderstrap Hah

    • @chaneloberlin6149
      @chaneloberlin6149 8 лет назад +2

      WHY DID I LAUGH SO HARD AT THIS!!!

  • @leseyallen1264
    @leseyallen1264 4 года назад +2274

    Move to England. You’ll love the rain. And when you want to sleep in, then the sun will come out. When you do want to go outside, the darkness decides that today will be a bad day.

    • @thisisaloadofbarnacles921
      @thisisaloadofbarnacles921 4 года назад +60

      She should move to the North Pole when it's dark for half the year and then to the South Pole when it's dark for the other half

    • @SpiceBoy7UK23
      @SpiceBoy7UK23 4 года назад +7

      She could move to Sarah Palin's Alaska and go hunting with her during the winter. They only have a couple of hours of sunlight then

    • @officialpursuitriches
      @officialpursuitriches 4 года назад +1

      Forgot about the traffic

    • @SpookeIz
      @SpookeIz 4 года назад

      Brother

    • @griffinguidance2845
      @griffinguidance2845 4 года назад

      No move to ireland instead

  • @MotherOfTheSea
    @MotherOfTheSea 3 месяца назад +2

    I remember watching this video back when I was 10 and I was so scared to turn 11 but now I’m 16. Looking back at this video, this girl was extremely brave. I hope she’s doing okay.

  • @Rare_kinderen
    @Rare_kinderen Год назад +12

    I hope shes okay

  • @wanisuki761
    @wanisuki761 3 года назад +778

    "i hope the other kids don't go through the same thing" a gold heart

    • @nerdsmyspiritanimal2676
      @nerdsmyspiritanimal2676 3 года назад +1

      What "Other kids"?

    • @101hamsters6
      @101hamsters6 3 года назад +1

      Yes i agree

    • @oof3479
      @oof3479 3 года назад

      @@nerdsmyspiritanimal2676 Albino and other lighter people

    • @dennraeh
      @dennraeh 3 года назад +2

      @@oof3479 what? What about darker people?

    • @user-sk4up8wz5b
      @user-sk4up8wz5b 3 года назад

      @@travisscott3050 it's not okay to say that kind of stuff just because of what they like.

  • @sampenaranda2256
    @sampenaranda2256 8 лет назад +2608

    Did anyone else have this recommended and popped over 9000 times to them then finally click the damn thing.....cuz I did

  • @DELvEK
    @DELvEK Год назад +2

    This young little girl is VERY impressive and is incredibly strong mentaly.

  • @MauroSXD
    @MauroSXD 11 дней назад +2

    May God bless her huge respect to her she is a strong warrior.

  • @sweetzo2627
    @sweetzo2627 2 года назад +1983

    “Dark is my home”
    Aw..:(

    • @stephanyhdz92
      @stephanyhdz92 2 года назад +7

      @@maekajustbecause dude, what's happening with him she scream that's messed up

    • @maekajustbecause
      @maekajustbecause 2 года назад +6

      @@stephanyhdz92 she’s screaming because her skin hurts so bad because of the sun.

    • @tacobellalugosi2527
      @tacobellalugosi2527 2 года назад +3

      @@Savetion. im sorry you have no soul and unlike this little girl . darkness is where you belong . you walking cartoon .

    • @toshiro8281
      @toshiro8281 2 года назад +1

      @@fudgetoonbits I do too but he just deletee it :(

    • @bonelessmice6828
      @bonelessmice6828 2 года назад +2

      @@fudgetoonbits guy making fun of dead/suffering people
      he makes fun of rorochan(a girl who committed suicide by jumping off a building while streaming)

  • @parkthaeyon9268
    @parkthaeyon9268 3 года назад +695

    When she said "Dark is my home" I felt really bad for her :'(

  • @divvy5310
    @divvy5310 7 месяцев назад +1

    I have solar urticaria and I can’t imagine her pain. I can go outside with short sleeves for a little bit but I can stay out all day with long sleeves. I can’t imagine her situation and my prayers are with her. I hope she’s doing better now

  • @sethraelthebard5459
    @sethraelthebard5459 Год назад +4

    I think she is amazing! She is a literal child of the night! I'd love to have an update on what she is doing these days.

  • @letsbefriend5466
    @letsbefriend5466 6 лет назад +4152

    "KIDS SOMEWHERE ELSE HAVE WAY WORSE THAN ME" i must say those are pretty strong words. Be thankful all the time people

  • @shantelvlogs2804
    @shantelvlogs2804 2 года назад +3820

    "i just try to think positive because other people have it worse than me." wow the respect👏🏾. poor girl😕

    • @LanaDelReysz
      @LanaDelReysz 2 года назад +92

      That's really a dumb quote. It's the same as "ignore your problems, because there are peoplr who have bigger problems"

    • @shantelvlogs2804
      @shantelvlogs2804 2 года назад +11

      @@moon-to9rj you only have 38 subscribers

    • @kermitcult4845
      @kermitcult4845 2 года назад +15

      @UCPU3rUCljSYr_vlklHFLd7g What’s dumb is your comment. They were only quoting because the girl in the video is still grateful and appreciative even with a severe allergy to the sun. Dumbass.

    • @kermitcult4845
      @kermitcult4845 2 года назад +34

      @@shantelvlogs2804 Damn they have 20 now. Subscribers don’t mean anything but lmaoooo 😭

    • @mr.eggdog707
      @mr.eggdog707 2 года назад +7

      @@kermitcult4845 they now have 99 subscribers

  • @Martin_Vlogs2011
    @Martin_Vlogs2011 Год назад

    What a brave, strong, and positive young woman

  • @thebrokenmicshow1457
    @thebrokenmicshow1457 9 месяцев назад +2

    Wow I didn’t know there were cases this severe. I’ve always been allergic as well. I hope that she’s gotten better with the progression of science and all

  • @spoonqueen952
    @spoonqueen952 3 года назад +994

    “I know kids have worse problems than me” she’s such a sweet girl I hope she’s better now ❤️

  • @Lightyagami2012
    @Lightyagami2012 5 лет назад +3010

    This asian doctor is a genius

  • @byebye199
    @byebye199 Год назад +11

    you can't tell this girl to touch grass 💀 but jokes aside, I hope she is doing alright.

  • @LuneSaavedra
    @LuneSaavedra 8 лет назад +866

    She's so beautiful and positive. She's a very good role model, too.

    • @elisemcandrew9222
      @elisemcandrew9222 8 лет назад +3

      Aryana Saavedra omg i ove dan and phil to

    • @petertuohy295
      @petertuohy295 8 лет назад +2

      Aryana Saavedra I saw you on Shane Dawson's channel

    • @RZIisRaw
      @RZIisRaw 8 лет назад +5

      This is a very sad thing for any parent to discover about their child. I wish the very best for the parents, but most of all, I wish the best for Savannah. Keep your dream alive

    • @awesomem78
      @awesomem78 8 лет назад

      ***** Can you help me to reach 200 subscribers Stay Awesome

    • @StephaniaHalych
      @StephaniaHalych 8 лет назад

      +Peyteyson 123
      DOES IT LOOK LIKE I CARE ?????

  • @bleepvbloop
    @bleepvbloop 2 года назад +4873

    if you were wondering how she’s doing now, well she was approved to use the afamelanotide drug and she said that the treatment is going well and she can lay out in the sun without covering now!

    • @mikaroni_and_cheez
      @mikaroni_and_cheez 2 года назад +212

      Yay! I'm glad she's able to feel okay out in the sun more

    • @epicwwiistuff6863
      @epicwwiistuff6863 2 года назад +37

      @Savetion BASED MLG PRO GAMER 420 69 man shut up.....

    • @kennyackerman2468
      @kennyackerman2468 2 года назад +38

      @Savetion BASED MLG PRO GAMER 420 69 bro...wtf man

    • @tothemoonandback2912
      @tothemoonandback2912 2 года назад +22

      Omg yay! That's great, she'll be fine now

    • @Rockets409
      @Rockets409 2 года назад +12

      @@epicwwiistuff6863 Chill bro how would you feel if you couldn’t go outside tho? I’m guessing you stay inside and don’t grass 😐😐

  • @algireaux1364
    @algireaux1364 Год назад +1

    I just fell sad for this poor girl and others alike. Stay strong like her friends.

  • @aliwardana4851
    @aliwardana4851 Год назад +3

    Allah جل جلاله helped us from the unseen and Allah جل جلاله made us very intelligent. (Muhammad Qasim
    Dreams)

  • @philswift6135
    @philswift6135 4 года назад +1438

    Her: "it burns"
    School: "ahh so you have chosen wet paper towel"

    • @loveleonk
      @loveleonk 4 года назад +29

      Ice pack with paper towel around it 😔🤚🏽

    • @cutie_teddybear3839
      @cutie_teddybear3839 4 года назад +4

      yes.

    • @cutie_teddybear3839
      @cutie_teddybear3839 4 года назад +14

      @@loveleonk
      school nurse: ICE PACK?!?! HELL NAW! YOU WILL GET A WET PAPER TOWEL!!

    • @elizabethpalacios5546
      @elizabethpalacios5546 4 года назад +3

      Itching and burning 😳

    • @Red-ko3nf
      @Red-ko3nf 4 года назад +1

      Not mine they be like home or hospital which one?

  • @bakersfield.chisme.whatyou6164
    @bakersfield.chisme.whatyou6164 4 года назад +2640

    It's so heartbroken seeing a child going through pain

  • @Simon_gh0st_Riley
    @Simon_gh0st_Riley 7 месяцев назад +2

    It’s the fact the mom recorded it while her child was suffering instead of helping her..that’s a bad parent.

  • @psychicrenegade
    @psychicrenegade 8 месяцев назад +2

    Poor baby. I have ecxema...and that's NOT eczema. I'm so glad the doctors finally figured out what was going on with little Savannah, and she doesn't have to suffer like that anymore. It's sad that she can't play in the sunlight, but at least they know what's going on now, and uow to best manage her condition. ❤❤❤

    • @locksley2010
      @locksley2010 8 месяцев назад

      It's treatable now. Savannah is now able to be outside in the sun without any side effects. You can find her on Tik Tok.

  • @barbaragriffith1609
    @barbaragriffith1609 2 года назад +2433

    She literally has to live like a vampire, so sad!

    • @Dallas-wz3je
      @Dallas-wz3je 2 года назад +42

      I know, right? I’m hecka glad that I’m not her to be honest

    • @aesthete1892
      @aesthete1892 2 года назад +66

      @@Dallas-wz3je i guess we all should we grateful for a perfect body

    • @lardlover3730
      @lardlover3730 2 года назад +21

      She should be a gamer

    • @lardlover3730
      @lardlover3730 2 года назад +8

      @Savetion nobody asked

    • @patatjay8860
      @patatjay8860 2 года назад +23

      @Savetion . Please don't be mean. Remmember, what goes around comes around. Treat people how you would want to be treated. I'm sure you wouldn't want people to say that to you.

  • @juweriaabdi3347
    @juweriaabdi3347 2 года назад +1096

    2:57 “I have to be in the dark, the dark is my home.” I could hear the pain in her laugh.

    • @jackrsummeraccount674
      @jackrsummeraccount674 2 года назад +12

      poor girl! I feel bad she can't do anything on sunny days

    • @zetton7273
      @zetton7273 2 года назад +1

      I do like that line

    • @BreadCanteloupe
      @BreadCanteloupe 2 года назад +1

      🎈Balloon🎈

    • @user-gm4xt4ns2q
      @user-gm4xt4ns2q 2 года назад

      Yeah me to💔

    • @juweriaabdi3347
      @juweriaabdi3347 2 года назад +1

      @Savetion ♪ nah just stfu, u wouldn’t be laughing if you could feel her damn pain. Istg people like you make me question if this world even has hope for anything

  • @jtb2313
    @jtb2313 9 месяцев назад +1

    She's such a ray of sunshine! (In terms of character)

  • @Meepmeep505
    @Meepmeep505 Год назад +1

    My dad has this allergie. I cant imagine the pain he is in but it isnt as bad as this girls one. I feel bad and extremly lucky to have a dad that didnt get as bad as hers. I hope she will feel better soon and my family also wants to enjoy the hot sun with my dad. Thats it for me. commenting this 7 years after the video! I hope no one gets the disease.

  • @STRAWBERRY-sl4sz
    @STRAWBERRY-sl4sz 2 года назад +2853

    This almost made me cry,imagine having a condition that puts you through SO much pain.

    • @lumityislife2277
      @lumityislife2277 2 года назад +7

      Wait if your allergic to something it will hurt like this?

    • @kam9910
      @kam9910 2 года назад +15

      @@lumityislife2277 not exactly, certain allergies react differently, I don’t think it would do as much harm to you for something like eating a peanut your allergic to.

    • @kam9910
      @kam9910 2 года назад +3

      @卍 Savetion Cool 卐 what’s wrong with you-

    • @SZN04
      @SZN04 2 года назад +4

      @@kam9910 don’t worry their just a troll who says stuff bad about a lot of people. ex: Jacksepticeye’s dad. I’ve learned to stop commenting on them because they won’t reply and they are probably 5.

    • @kam9910
      @kam9910 2 года назад +1

      @@SZN04 yeah.

  • @Gumbocinno
    @Gumbocinno 3 года назад +1753

    I wonder how she's doing now. It's been nearly 6 years.

    • @yesimmelody4321
      @yesimmelody4321 3 года назад +184

      She can go out in the sun for only 9 hours now because she took some drug trial

    • @Covid-bv4hp
      @Covid-bv4hp 3 года назад +24

      @@yesimmelody4321 source

    • @itsmj3110
      @itsmj3110 3 года назад +24

      @@Covid-bv4hp I saw another comment saying it was her Instagram

    • @nyoimanis
      @nyoimanis 3 года назад +6

      @@itsmj3110 what her @

    • @crazymonkey7424
      @crazymonkey7424 3 года назад +6

      @@yesimmelody4321 source

  • @thhdmu646
    @thhdmu646 8 месяцев назад +3

    im ngl who records their child in pain instead of comforting them for millions of people to see? it’s not only humiliating but weird

    • @harrythebossgamer7280
      @harrythebossgamer7280 8 месяцев назад +1

      But this is most likely to raise awareness for what Savannah has, so anyone else who has her condition or undiagnosed can look into treatment and research.

  • @H0t.Like_Pink
    @H0t.Like_Pink 7 месяцев назад

    i used to have horrible tooth pain when i saw her crying that hard i could feel it cuz that was harder then i cried when it happened:( in hope she’s ok!

  • @cheyennegalindo520
    @cheyennegalindo520 4 года назад +3042

    she’s such a sweet kid and she’s so beautiful keep thriving girl

  • @aridaya879
    @aridaya879 3 года назад +1523

    she’s like a vampire in a way, she do be in quarantine forever tho😔

  • @OfficialBGST
    @OfficialBGST Год назад +1

    Her pained cries are heartbreaking

  • @NicholasMurillo-vg9en
    @NicholasMurillo-vg9en 4 месяца назад

    Never in a million years I could stay inside for life god bless everyone including Savanna ❤

  • @aestheticasmr6445
    @aestheticasmr6445 3 года назад +1183

    School nurse:
    It's ok sweety, I'll go get you some ice.

    • @jasonyt3027
      @jasonyt3027 3 года назад +8

      Fac

    • @hjjjj7888
      @hjjjj7888 3 года назад +3

      ruclips.net/video/iSh1zbwLeCU/видео.html

    • @Mclovin-jc5ss
      @Mclovin-jc5ss 3 года назад +10

      So true when u get a stomach ache here u go (gives ice pack)

    • @dead-ul9hd
      @dead-ul9hd 3 года назад +2

      fax

    • @piesquared3951
      @piesquared3951 3 года назад +4

      Ice: heal 100

  • @aelista6080
    @aelista6080 3 года назад +715

    “Mommy it burns “ that hurt basically me when I had one sun burn on my hand but still she’s so brave for her to stay inside for so long

    • @xceislorminecraft2490
      @xceislorminecraft2490 3 года назад +6

      to stay inside for so long even though most 9 year olds stay inside playing rocket league all day

    • @themk5465
      @themk5465 3 года назад +3

      I had 2 big sun burns on my face 😃 couldn't even close my eyes but I wasn't complaining.

    • @gracethegiraffe27
      @gracethegiraffe27 3 года назад +2

      @@themk5465 Go you. *The sarcasm is evident.*

    • @themk5465
      @themk5465 3 года назад +1

      @@gracethegiraffe27 not sarcasm I'm being for real I had 2 sun burns but took it like a champ

    • @lemon6531
      @lemon6531 3 года назад +1

      Quarantine?

  • @maylily820
    @maylily820 10 месяцев назад

    Hoping savannah is doing well these days, I know what it’s like to be bullied and picked on throughout my life. But your so strong girl you can do ur wishing all the best for you

  • @will-i-am
    @will-i-am 3 года назад +798

    “It’s not gonna tear me down, it’s just gonna build me up” wow

    • @unitgamex2972
      @unitgamex2972 3 года назад +10

      That isn't really true let's be honest

    • @will-i-am
      @will-i-am 3 года назад +4

      Why would u even comment that??

    • @unitgamex2972
      @unitgamex2972 3 года назад +7

      @@will-i-am unless we find a cure overcoming something like that it's going to be pretty hard.

    • @yunusm4208
      @yunusm4208 3 года назад +1

      @@unitgamex2972 wt the comment or the sickness of the girl ??

    • @unitgamex2972
      @unitgamex2972 3 года назад +1

      @@yunusm4208 the comment.
      It's not truly going to build her up

  • @savannah6751
    @savannah6751 4 года назад +879

    “she needs essential oils”
    karen, 2020

    • @jamestyler114
      @jamestyler114 4 года назад +3

      Savannah :/ *hunbots had entered the chat*

    • @Raganite31
      @Raganite31 4 года назад +2

      Savannah :/ yeah she does

    • @grym9350
      @grym9350 3 года назад

      u so beautifull

    • @xxsapphirexxyt711
      @xxsapphirexxyt711 3 года назад +2

      “she just needs to listen to kids bop”
      Karen, 2020

    • @zs2456
      @zs2456 3 года назад +2

      @Šùñkęñ Pãrådįšę there are shooters on roblox like Arsenal or Phantom Forces

  • @tahoesnowlion
    @tahoesnowlion Год назад +1

    I so emphasize with her. I have a similar problem that started in the 30's after years of skin diving , living on a sail boat and spending so much time outdoors. What has helped me is to block any kind of light from my scalp and face. Wearing a wig blocks the light and protects me from any kind of direct light. I wear it outside and when driving etc. It really helps. No mote buring needles in my skin. I don't have to constantly be checking the light above me like I use to. At home I have soft lamps etc for lighting. Maybe trying a wig might also help others. I wear a 50 SPF & a 30 SPF on my face. I do wear sun blocking clothing if outside. I think the most life changing thing for me was the discovery that blocking light on my head hepled to calm my face and the rest of my body as well. I still can't stand under CFL or halogen lights without becoming tachycardic and sick to my stomach but it has really helped me.

  • @jnogair
    @jnogair Год назад

    Poor girl😢hope shes okay and that she’ll grow up to have a amazing life😢🙏pls god take care of her🙏

  • @boiledsalmon
    @boiledsalmon 2 года назад +3698

    I used to have a friend who was allergic to sunlight, he always had to put on tons of sunscreen and wear long sleeves and a huge hat whenever we went out to the playground. I felt really bad for him

  • @zindusea
    @zindusea 5 лет назад +1387

    Girl that's allergic to sun: *Is in darkness, then walks into sun, everything starts turning red and she starts breaking out, and crying*
    Doctor: *oh she just has eczema*

  • @GarfieldTheCatt
    @GarfieldTheCatt 7 месяцев назад +1

    Can you imagine not having the ability to go anywhere during the day and not being able to enjoy things like walking your dog or going to the pool. That’s insane anyone reads this reply your thoughts

  • @wyattm6782
    @wyattm6782 2 месяца назад

    Seeing her cry Broke my heart😭😭😭

  • @nxeonexplosixn7127
    @nxeonexplosixn7127 3 года назад +751

    The fact she’s always smiling even when I can tell she wants to cry is so sad to me and I wanna cry.

  • @JustinWilliam0811
    @JustinWilliam0811 3 года назад +834

    My gf’s experiencing the same. She’s allergic to heat, pollen, seafood, fur, and many things. It’s horrible.

    • @singmysong1167
      @singmysong1167 3 года назад +79

      Hi, friend, don't know if this will help her, but I once read in a health book somewhere that allergies can be caused by toxins backed up in the liver. Health food stores may carry a liver cleanse product for her to try. Do your research. God bless. RR

    • @JustinWilliam0811
      @JustinWilliam0811 3 года назад +26

      SingMySong thanks. I’ll look into it

    • @bagelbob3979
      @bagelbob3979 3 года назад +4

      @@JustinWilliam0811 well i hope she gets better one of my dreams since ima kid i guess is to one day be able to modify a gene so you dont have to go thru this and also u good bf props to you most people would leave her im proud of u :)

    • @srbsa422
      @srbsa422 3 года назад +5

      She got epic trollled by god

    • @shekotechie
      @shekotechie 3 года назад +10

      @@srbsa422 WTF, you goddamn heathen!