You're adorable. Sending a boatload of positive thoughts❤❤❤My nephew is 36 and just went through a summer of chemo afrer being diagnosed with lymphoma between his heart and lungs. All clear today...thank God. I wish you and your husband a long and happy life!!
Please help raising my granddaughter past year she’s so tired sleeps all the time weight loss she went within 6 months size 8 to 3-4 her legs below knees itch all the time. Doctors do blood says all looks good few months of very high levels of protein in urin. Santa tests last test hemoglobin levels were low. She’s so frustrated cause doctor says all is coming back okay some little high out low but no worries she’s 17 I’m terrified cancer is high in our family please 🙏🏼 help me I don’t know what to demand
@@izzyalekgo get a second or third opinion from an internal medicine, not family practice or primary care. What you described should be enough of a concern for them to get to the root.
I also had Stage 4 Non-Hodgkins Lymphoma with one mass on my spine, so I know your pain. I'm now fully recovered and very grateful. I'm glad to hear you're doing well.,
That's absolutely amazing so very happy for you. Unfortunately I lost my beautiful 27 year old son from excally the same non hogken lymphoma stage 4 he only lasted 6 months from start to finish. It's coming up to his 2 year passing 22.11.22.😞😞💔💔🩵💙🩵But I am TRULY SO HAPPY FOR YOU All the best my darling 🇬🇧🇬🇧
I just was diagnosed stage 4 non small cell lung cancer which spread to several areas. I only had shoulder pain. And just finally sucked it up and went to be seen. Shoulder X-ray showed large lung mass. I am getting my port on Tuesday. Praying for all of you ..
Hi. I don't know your full name, but I'll be praying with you through this experience. May God carry you through this and be your strength and foundation of Hope. All the best for this Tuesday! ❤
I’m so happy you are cancer free and I love you get to experience the love of having children. What I really love about your message is we all go through this life alone no matter how many ppl we surround ourselves with that loves us. It’s so true. We do need to be empathetic and vulnerable. Thank you for sharing you story honey and god bless you. Again so grateful it’s a beautiful ending ❤️
Enjoyed hearing your courageous story. You are so strong. And we are so grateful that you shared this with all of us. God bless you with healing and freedom from the nasty cancer for the rest of your days. Blessings to your brother and all of your family.
So happy you are well! I had cancer at 28… I’m now 67😁had a scare last week with an enlarged lymph node that won’t go down but had an ultrasound and it is not cancer, Merry Christmas!🎄🎁
Did you find out what it was? My neck has been swollen in the clavical area & painful since Oct 24. Scans said it's not my lymph nodes. They don't know what's wrong.
I started itching really bad a few years back. I was told I was allergic to food. I kept feeling off and they thought I had an autoimmune disease but the rheumatologist said I had fibromyalgia. I developed a cough that kept me op all night and then horrible night sweats they thought I had bronchitis. Finally I went in again because the cough wasn’t getting better. They thought I had a clot so they did a d dimer test and it showed something wasn’t right so they did a ct scan and saw a mass pushing my trachea. I did a biopsy that showed I had Hodgkin’s lymphoma. The PETscan showed it was near my trachea and one near my liver. Stage 3. It took 3-4 years to figure out what was wrong. I did treatment for 6 months. I didn’t feel sick but I was in pain. Done with treatment this past May. So far so good except now I have neuropathy and fast growing cataracts in both eyes.
Wow your story , symptoms and your ct and pet scan are exactly like my mine . I’m starting the chemo next week . Did u loss all your hair ? Did u use cooling cap ?
@@lacharmer441red light builds up collagen, which is technically “scar tissue” so I would be very wary with red light and cataracts. It could build them up potentially, instead of breaking them down?
Please, please, please, make sure you go to ALL of your follow ups for EVER. My Grandpa was in remission for 12 years. He stopped doing regular follow ups after 10 years. At year 15 he started feeling bad. By that time it was too late. He passed away 2 years later at 59. That was 25 years ago and the hole in my heart has never healed.
My sister also had horrible back pain. That’s where her saga began really all I want to say is I’m glad you are still living. You look like you’re fully recovered to me. You have a very nice family. Good luck to you.
I love what you said at the end, “The more loving and exciting it will be!” Young lady, you have brought appreciation into my thoughts today. Thank you for that. I’m so glad that you and your family have been recovering so well, it’s definitely got to be something that is terribly difficult and painful to go through in so many ways. Bless you, you have such a beautiful little family, ❤
When my husband had his PET scan to be declared cancer free at the five year mark, they found out that his lung cancer had spread to his other lung . Stage 4 now. 78 yrs old has been receiving quemo therapy and Keytruda. It’s been hard on him, his adult children and myself. We won’t know how the therapy has been working until three more cocktails. So very happy for all that have von the battle.
Thanks for sharing your story so important to help people struggling with symptoms and not knowing what is going on. Well done wishing you all the best ❤
Such an amazing story, Rylie. You've been thrue a lot, but the true love and your inner positive attitude helped you to overcome that enemy inside of your body. I'm happy for you, and I wish you all the best. Stay clean and safe! ❤❤❤
I can’t imagine it was easy to do IVF under these circs, but I’m glad they gave you the option. My friend with Hodgkins wasn’t given the choice; he had to ask (& is now recovered with twins ❤)
@@theRylieGodoy it was pretty amazing tbh…especially as I hadn’t seen him irl for ages & he’d been very naughty and not mentioned it. I was so thrilled for him when I saw them that I burst into happy tears!
Unbelievable. Will we ever know why so many people get cancer nowadays. And, so many members of one family!! And, the cat. Wow. Rooting for you and your brother. All the best😊
It’s coming from everywhere !!! 5G creates cancer microwave ovens emit cancerous radio waves frequencies our food has poison added you must research to find truth 😢💔🙏‼️🙏‼️
Well, until fairly recently, getting health care was nearly impossible for most Americans. It's still pretty hard to get, but it is somewhat more accessible. Anyway, before that, a lot of people got sick and passed of "natural causes" which was either a heart attack or cancer complications. Now, at least some people have a chance....
widespread environmental pollution is definitely a factor, the western diet too, and covid suppresses the immune system, making it harder for the body to fight off cancers
Bless you, your brother, your dad, I can’t believe all three of you have had the same cancer!! Also bless your mom too. Sorry you lost your cat to it too!! ♥️ I wish you and your family the best!! I have had Mono so I always like to hear these stories to keep track of symptoms. My body already has a form of Vasculitis.
Reminds me of Mel & Kim. An English pop duo, consisting of sisters. Mel suffered from back pain. Long story short, she passed at the age of 23 in 1990. It was cancer.
Thanx for sharing such an amazing story! I hope you all remain cancer free and lead happy & healthy lives. You were so fortunate to not only have such a supportive family but also boyfriend! Hope all is well with all of you.
I believe is someone actually took the time to really listen & do some related tests you would have been diagnosed earlier. We seem-to be victims of drive through medical care! Wish you all the best!
1985 I was diagnosed with Hodgkin’s disease stage 3 which now is called Hodgkin’s lymphoma. I was 18 had 3 months ABVD and 6 months MOPP. Then 6 weeks of radiation.I then met my husband and had my son at 29. It was hard to get pregnant. After my son I never had another cycle. Dr said I went through menopause early probably from the chemotherapy. At age 42 I had DCIS and had to have a bilateral mastectomy. Dr said probably from the radiation. I have had genetic testing and everything was fine from that. I believe it’s the environment where I grew up because my neighbor behind me was diagnosed a few years after me with the same cancer. She was young also.
For people wondering what is Hodgkin's lymphoma it affects the lymphatic system which is part of the body that fights germ/disease systems. It includes the lymph nodes which are located in the abdomen, groin, pelvis, chest, under arms and neck. It can also affect other organs or parts of the body. Do Not ignore any symptoms that you know are not normal. Be your own healthcare advocate. Ask questions. Challenge your doctor. Get a 2nd and even 3rd opinion.
It makes you wonder 💭 how did our 7 yr old son get diagnosed with cancer osteosarcoma 💔😭 he started complaining that his right knee HURT 😫 he was playing football in a league so we never thought it was cancer our dr told daddy I DONT WANT TO GUESS so let’s get an X-ray and they did that day I stopped at the dr office after work and they took me to his office and I said to my self I have been with this dr since I was 4 yrs old and never in his office THIS IS BAD he walked in put the X-ray up and said THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I fell to my knees HYSTERICAL 😫😫😫😭💔 the next 3 yrs were full of chemo and operations 😫 it was a true test on our marriage we also had a 6 yr old daughter 💗 I am so happy that you are cancer free and your girls are beautiful 💕
I hate to sound callous or rude, but doctor seemed to give a damn more about kids than they do adults. Once you turn 18, your life is apparently over, in the eyes of the medical system. Please do not get this twisted, I am extremely grateful for your son‘s recovery… And for the survival of your marriage. I am just extremely ill… Discombobulated, that children seem to get a lot more resources than adults when it comes to chronic care.
@@SarafinaSummers that is true to a certain degree medically I don’t see a difference but financially there is in California they have CALIFORNIA CHILDREN SERVICES and they reimburse for parking and pay for anything your ins does not cover and if parent stays in hospital with child they get 3 meals paid for as long as you are in hospital and they also reimburse for gás used and after chemo and an operation to save the leg did not work he had to get his leg amputated and nothing worked the cancer kept coming back we took hm home and 9 months later he died in my arms at home 😩😩💔💔😭😭
Noo, I'm Soo sorry! I'm just sickened by the amount of cancers and auto immunes and people suffering at the hands of a medical system that is all Profits over people! Drs can't or don't follow the "Do no harm" and they are no longer healers, but symptom treaters! No One especially a (your) 7yr old child! My tears are for you tonight! And wishing, hoping, praying that something changes in the world of Medicine before it's too late to do any good.❤@@annagarza7299
@SarafinaSummers you need to go to the er with hot water in a thermos drink it to show a fever when they take your temperature tell them you have chest pains and make sure you breath quickly in and out. They will admit you for fever chest pain and scans I'm praying for you they didn't believe me untill I faked a fever and sprinted right before the er check in. I know most patients don't gave the energy to do that tho
What an amazing lady, thankyou for sharing your story. Your husband looks wonderful and your children are beautiful. Hope everything goes well for the rest of your life.❤
My husband had NHL too. His also was in his back/spinal cord. Also had the sweats,ect. After months of of its pulled muscles, he lost the use of his legs. Finally the ER dr found it and shipped him to larger hospital to have emergency surgery. His turmoe was in his vertebrae pushing on his spinal cord. He was in wheelchair for year and drs told him that was as good as it would get. He made himself walk. After all the chemo and clots ect. So for he's clear. Now he can walk with cane,still gets weak but is doing great. So glad things are going good for youand family.
Hodgkin's Lymphoma is the easiest cancer to cure ,I too had Hodgkin's Lymphoma 17 years ago Went through the chemo and God has Blessed me !I never had back pain I had swollen lymph nodes in my neck,my groin ,under my arm pits ,behind my knees ,all of my chest ,I could not breath ,I had no pain but the itching was all over ,night sweats ,losing my eye sight ! I lost 40 lbs ,it was awful ! I really never heard of back pain with Hodgkin's Lymphoma !
Just because there's no genetic test for lymphoma doesn't mean there's no genetic condition that causes it. New biomarkers are constantly being identified.
There are some genetic mutations that make a person more likely to get cancer. I was tested for all of them. This family needs to be tested for all of them.
Not disagreeing about genetic causes, but biomarkers typically refers to proteins and carbohydrates on the outside of the cell membrane, not DNA. Cells "talk" to each other and "identify" each other with these protein "flags."
My Dad had a horrible side ache for several weeks before he was diagnosed with lymphoma. His spleen was so incredibly swollen. I watched his PET scan each time he had them. He lit up like a Christmas tree, it was horrendous! The techs had never seen a spleen as inflamed as his.
Such a beautiful soul and lovely couple and gorgeous family. So very happy you had a great outcome and you’re a live and healthy. Much love and happiness wished for you all. ❤❤❤❤
If you were in that much pain and then continue to drink alcohol. I can’t believe you weren’t peeping blood because I was diagnosed with kidney cancer ♋️ at 56 and lost my right kidney and my urologist couldn’t believe it grew in my kidney instead of out, but he would NOT let me leave his office until he looked at my dye procedure and I him my life and tell him to this day and I went through six weeks of chemotherapy but found cells in my ledder tube that runs from your kidney to your bladder and I just had bladder surgery and there were no cells this time, so I get to move to six months until my next bladder cell surgery. Cancer has come along way and just l can give you some advice, God Bless you but have ur oncologist, urologist and PC doctor all work together like mine do. Merry Christmas 🎄 and a Happy New Year’s to you and your husband and I sending you lots of prayers and hugs for gf. 🙏🙏🙏🙏♋️♋️♋️😇😇👍
i am also an HL survivor and my mother passed from it (misdiagnosed) about 25 years prior. while my oncologist said it’s not typically genetic, he said in his opinion there was very likely a genetic component bc environmental didn’t make sense. my daughters pediatrician has her on a plan to watch her
Thank you for sharing your journey. Your great personality after all that still shines thru. I wanted to note that a cancer dtr told my SO that it's something that happened or exposed to 10 or so years ago that shows up later in life. Especially true with skin cancer. So glad to hear that you are NED.
My dad didn’t have lymphoma but he did have AML which is acute myeloid leukemia and they think he may have gotten his from Camp Lejeune when he was in the US Marine Corp or possibly from Agent Orange when he was overseas serving in the Vietnam War! He died in 2021 but he was also 84 years old but when he was admitted to the hospital to start treatment he got severely septic and his white count was either 0.2 or 0.3 however he did survive it and actually he was only on IV antibiotics for a few days and then he switched to oral antibiotics (I’ve had sepsis 4 times with the first being the worst and I was hospitalized for a month and spent 2 1/2 weeks on several IV antibiotics). He did really well on the oral antibiotics and that was until he got pneumonia about a week later. 3 1/2 weeks after he was admitted he passed away and it was less than 2 months after he started chemotherapy and less than 10 hours after I signed the hospice paperwork! Also this was his 2nd bout with cancer plus mom had breast cancer (survived), grandfather had colon cancer (died but he was also 96 years old), aunts and uncles have also had cancer. I have celiac disease and CVID and both increase risk for certain cancers!
Radon exposure can cause it. It is random from one house to another. Test for it. There is remediation steps for it. My Son passed from complications from being treated for lymphoma. We had radon in our basement.
@@dawnstraughen755 yep we thought radon campuses mine. I’m in South Dakota and it’s the 2nd largest state to have high radon levels we ended up placing radon system
Thank you for sharing your story. Being so vulnerable is something we all should not shy away from. You are a beautiful person inside and out! Prayers that you live a long cancer free life, enjoying your precious family🙏🏻
Thank you for sharing your story. You are such a beautiful light in this world, and I wish you and your beautiful family a wonderful, cancer free life. My husband was diagnosed with a very aggressive stage 4 metastatic prostate cancer earlier this year. After multiple rounds of radiation, it continued to spread to multiple areas in his spine and hip. We are now weeks into chemo, and we do follow up testing December 9th. Things are not looking good, but all we can do is hope and pray that things will turn around. The hard part as his wife is that I love him so much and I'm scared. There is tons of support for the patient but not the spouse. I know he is the one with cancer, but I'm hurting too. Except for 1 sister I have not received a phone call from anyone else. My honey gets 8-10 calls a day so besides me he has an extremely strong support system, me not so much much. Am I wrong or selfish to feel this way?
@tina No, you’re not wrong or selfish - I was totally involved in the caregiving of my parents & my late boyfriend & so I know it’s brutal, both physically & emotionally - and the stress is really intense - I’m so sorry you don’t have more of a support group for you - praying for your strength & courage to get through this - greetings & blessings from Florida 🙏
You need to find support and help with the caretaking, start with a therapist, surely the cancer center has one. They should be able to find help and support for you. If you neglect your own well being you'll be the next one with cancer. Please take care of yourself ❤
@@ThePatientStoryThank you for the kind words. It means a lot. From total strangers I get my happiness. Kinda sad when you think about it. 🥲😢😂😢 Merry Christmas.
For years, they said there was no genetic link to cancer, period. I'm old, so I remember those days. So, I would look at it more as though they haven't identified one yet. When it comes to medicine, today's answers are always subject to change
Prayers to you and your sweet, supportive family (your brother too). Thank you for sharing your story. Today, there are many options for treating various cancers. Technology is very advanced which helps for treating cancer patients.
Maybe there were certain chemicals in the water. 9 people got cancer in my street where i grew up in Lima, Peru.. Some got it younger like me at 45 and others a little bit older in their 60s. Only 2 of us are still alive. My father had pancreatic, my brother currently with tracheal and I had breast cancer in 2003. You are sweet and gorgeous. I wish you a long healthy life with your beautiful family. Thank you so much for sharing. It really helps knowing about the symptoms and treatments for different cancers.❤
Wen I found out I had lumps in my breast I went in to do the biopsy I was asking everyone questions too. It's normal I think ur nervous❤ prayers to you
You’re a beautiful soul and I am so happy you were able to have a family after treatment. I was wondering if you had any swollen lymph nodes? I’m dealing with a lot of “strange” symptoms and the doctors keep brushing me off. I’m wondering if I might have lymphoma.
What symptoms have you been dealing with? Have you had blood work done recently? Push for further testing if you feel like something isn't right. You know your body better than anyone. Advocate for yourself and don't be afraid to get a 2nd or 3rd opinion if you aren't satisfied!❤
@ rashes, sweating profusely day and night, severe headaches, malaise, muscle cramps and a bunch of other little things that seem strange. I got bloodwork done and they didn’t see anything but I pushed for more testing and got a MRI and CT scan. The doctor said I had a “severe sinus infection” even though I didn’t have any of the usual symptoms of a sinus infection. 2 rounds of antibiotics and still have all of the symptoms. I have a new doctor so I’m being the squeaky wheel and getting more testing done, I have a bunch of appointments coming up so hopefully I’ll find something out soon. I have been sick for almost 4 years now, the last 2 years have been the worst.
@@Stlgirl-t3i definitely, I’m pushing for more testing, the bloodwork keeps coming back “normal” and didn’t detect a severe sinus infection so I know it’s not as accurate as the docs would have you believe.
The graveyards are full of people who were told to go home because it's just a minor ailment. My auntie was told her severe rectal pain was just gastroenteritis and that everything would be fine in a few days. In a few days she was dead. It was colorectal cancer and it had metastasized to every organ in her body. My rage at the doctors is still raw! So many are full of arrogant disdain for their own patients and couldn't care less. Even the nurses told her it was probably just stress and a bad stomach flu. Too many people have reported similar stories of loved ones being dismissed only to die days or months later. It's the heartbreaking reality for many of us.😢
God bless you both and your family and thanks for sharing. Just a question did you take the safe n effective meds? Pray you have a wonderful long life.
I had horrible lower back pain and mine turned out to be 3 herniated discs in my right lower back. I got them from when I passed out in the bathroom and I fell as a result.
Rylie, I am so glad that you were able to get the care that you needed, that you have such an amazing husband and 2 beautiful kids. I was treated for stage 3 triple negative breast cancer in the yr just prior to covid. I finished treatment in Oct 2019. So yes I agree with you on the fact that neither one of us had to go through treatment during the pandemic. Sending you lots of love, light and healing energy.
I really enjoyed hearing your perspective and story. Congratulations on your recovery and beautiful family ❤ I’ve been dealing with similar symptoms for over a year now, ER docs said kidneys (totally bs) and spinal stenosis (do have, but it’s not responding to injections anymore), plus high white and platelets low B and Potassium . I finally got another MRI this week and see my Dr in a few days. Hopefully something is obvious, otherwise more testing…..
@@Stlgirl-t3i You think the x-ray would have been the first thing done,.It reminds me of when my doctor wanted to inject my knee with out x raying it even examining it. It ended up I needed intense physio.
My maternal aunt and maternal uncle both passed away from Lymphoma. Also have niece that completed treatment for it. Now I'm having some suspicious symptoms. Should I get checked?
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
You're adorable. Sending a boatload of positive thoughts❤❤❤My nephew is 36 and just went through a summer of chemo afrer being diagnosed with lymphoma between his heart and lungs. All clear today...thank God. I wish you and your husband a long and happy life!!
so glad he is doing well today! :)
So happy hes okay now. Just got diagnosed with stage 3 ovarian cancer dont want chemo. Scared
@@dianajames4717 Take the time to think and get well informed! It hopefully will make you less scared! You can do this!
Please help raising my granddaughter past year she’s so tired sleeps all the time weight loss she went within 6 months size 8 to 3-4 her legs below knees itch all the time. Doctors do blood says all looks good few months of very high levels of protein in urin. Santa tests last test hemoglobin levels were low. She’s so frustrated cause doctor says all is coming back okay some little high out low but no worries she’s 17 I’m terrified cancer is high in our family please 🙏🏼 help me I don’t know what to demand
@@izzyalekgo get a second or third opinion from an internal medicine, not family practice or primary care. What you described should be enough of a concern for them to get to the root.
darling, when one is 27 one thinks they are going to live forever & stay healthy forever. You are charming & I wish you a happy long life.
I also had Stage 4 Non-Hodgkins Lymphoma with one mass on my spine, so I know your pain. I'm now fully recovered and very grateful. I'm glad to hear you're doing well.,
I’m so happy to hear you’re doing okay too! ❤❤
That's absolutely amazing so very happy for you. Unfortunately I lost my beautiful 27 year old son from excally the same non hogken lymphoma stage 4 he only lasted 6 months from start to finish. It's coming up to his 2 year passing 22.11.22.😞😞💔💔🩵💙🩵But I am TRULY SO HAPPY FOR YOU All the best my darling 🇬🇧🇬🇧
@@ClareRowe-v5yso sorry for your loss. 🤗❤️
wonderful news! ❤
@@ClareRowe-v5y did he get the Covid vaccine?
I just was diagnosed stage 4 non small cell lung cancer which spread to several areas. I only had shoulder pain. And just finally sucked it up and went to be seen. Shoulder X-ray showed large lung mass. I am getting my port on Tuesday. Praying for all of you ..
Hi. I don't know your full name, but I'll be praying with you through this experience. May God carry you through this and be your strength and foundation of Hope. All the best for this Tuesday! ❤
Prayers for complete healing we declare it so in Christ Jesus amen.
Thinking of you ❤.. what type of Shoulder pain was it ?
We are so sorry to hear this!!! We will be thinking of you!
@@Stlgirl-t3i 🙏💜💕
I’m so happy you are cancer free and I love you get to experience the love of having children. What I really love about your message is we all go through this life alone no matter how many ppl we surround ourselves with that loves us. It’s so true. We do need to be empathetic and vulnerable. Thank you for sharing you story honey and god bless you. Again so grateful it’s a beautiful ending ❤️
Enjoyed hearing your courageous story. You are so strong. And we are so grateful that you shared this with all of us.
God bless you with healing and freedom from the nasty cancer for the rest of your days.
Blessings to your brother and all of your family.
So happy you are well! I had cancer at 28… I’m now 67😁had a scare last week with an enlarged lymph node that won’t go down but had an ultrasound and it is not cancer, Merry Christmas!🎄🎁
Did you find out what it was? My neck has been swollen in the clavical area & painful since Oct 24. Scans said it's not my lymph nodes. They don't know what's wrong.
I started itching really bad a few years back. I was told I was allergic to food. I kept feeling off and they thought I had an autoimmune disease but the rheumatologist said I had fibromyalgia. I developed a cough that kept me op all night and then horrible night sweats they thought I had bronchitis. Finally I went in again because the cough wasn’t getting better. They thought I had a clot so they did a d dimer test and it showed something wasn’t right so they did a ct scan and saw a mass pushing my trachea. I did a biopsy that showed I had Hodgkin’s lymphoma. The PETscan showed it was near my trachea and one near my liver. Stage 3. It took 3-4 years to figure out what was wrong. I did treatment for 6 months. I didn’t feel sick but I was in pain. Done with treatment this past May. So far so good except now I have neuropathy and fast growing cataracts in both eyes.
Read up on infrared light, it can help with eye site
Your story reminds me of the auto mechanic’s I’m dealing with. They’re just throwing darts to see which one sticks, wasting our time and money.
Wow your story , symptoms and your ct and pet scan are exactly like my mine . I’m starting the chemo next week . Did u loss all your hair ? Did u use cooling cap ?
@@lacharmer441red light builds up collagen, which is technically “scar tissue” so I would be very wary with red light and cataracts. It could build them up potentially, instead of breaking them down?
What brand of the Covid vaccine did you get?
Please, please, please, make sure you go to ALL of your follow ups for EVER. My Grandpa was in remission for 12 years. He stopped doing regular follow ups after 10 years. At year 15 he started feeling bad. By that time it was too late. He passed away 2 years later at 59. That was 25 years ago and the hole in my heart has never healed.
My sister also had horrible back pain. That’s where her saga began really all I want to say is I’m glad you are still living. You look like you’re fully recovered to me. You have a very nice family. Good luck to you.
sending positive thoughts your sister's way!
I love what you said at the end, “The more loving and exciting it will be!”
Young lady, you have brought appreciation into my thoughts today. Thank you for that.
I’m so glad that you and your family have been recovering so well, it’s definitely got to be something that is terribly difficult and painful to go through in so many ways.
Bless you, you have such a beautiful little family, ❤
My daughter had HL at 17, lots if those symptoms for months and we didn't know what was wrong. She's 24 now and doing great 🙏🙏🙏
You are lucky to have support from friends and family🙏🏻Keep being bubbly 🤗
I think the mental part of having cancer is the hardest part of having it
So beautiful that Felipe is with you through thick and thin. God bless you both.
a supportive partner makes a huge difference!
When my husband had his PET scan to be declared cancer free at the five year mark, they found out that his lung cancer had spread to his other lung . Stage 4 now. 78 yrs old has been receiving quemo therapy and Keytruda. It’s been hard on him, his adult children and myself. We won’t know how the therapy has been working until three more cocktails. So very happy for all that have von the battle.
🙏🏿🙏🏿🙏🏿
Thanks for sharing your story so important to help people struggling with symptoms and not knowing what is going on. Well done wishing you all the best ❤
thank you for sending her well wishes!
Such an amazing story, Rylie. You've been thrue a lot, but the true love and your inner positive attitude helped you to overcome that enemy inside of your body. I'm happy for you, and I wish you all the best. Stay clean and safe! ❤❤❤
I had Hoskins lymphoma and recovered . Really praying for you
EMPATHY IS DEFINITELY RARE! Thank You for sharing here 🙏🏻❤️
Such an honest and sweet woman. Wishing you the best ❤
she really is!
Thanks for sharing! Have a wonderful cancer free life! Your children are darling!
thank you for listening to her story :)
You have the best freaking attitude I’ve ever seen in my whole life. I’m sending you much love, healing, and happiness.
What a beautiful spirit u have... along with the exterior beauty. Prayers to you for 100 years of clean scans!! ❤❤❤❤
❤❤
she's an amazing soul!
Kids are too cute🎉
The water in the house…You are so adorable ♥️♥️aww sending you so much strength and positive vibes ♥️♥️
I can’t imagine it was easy to do IVF under these circs, but I’m glad they gave you the option. My friend with Hodgkins wasn’t given the choice; he had to ask (& is now recovered with twins ❤)
How amazing is that 💕 send my congrats to him!
wow- twins?? what a blessing!
I so appreciate your use of "circs" felt like I met a kindred spirit!
@@theRylieGodoy it was pretty amazing tbh…especially as I hadn’t seen him irl for ages & he’d been very naughty and not mentioned it. I was so thrilled for him when I saw them that I burst into happy tears!
You are very special person, the way you are facing this situation . Thank you for sharing your story.
You are such a beautiful soul…I feel it through this story. Grateful you are healthy. Your smile is contagious.
yes she is!
Unbelievable. Will we ever know why so many people get cancer nowadays. And, so many members of one family!! And, the cat. Wow. Rooting for you and your brother. All the best😊
It’s coming from everywhere !!! 5G creates cancer microwave ovens emit cancerous radio waves frequencies our food has poison added you must research to find truth 😢💔🙏‼️🙏‼️
Well, until fairly recently, getting health care was nearly impossible for most Americans. It's still pretty hard to get, but it is somewhat more accessible. Anyway, before that, a lot of people got sick and passed of "natural causes" which was either a heart attack or cancer complications. Now, at least some people have a chance....
widespread environmental pollution is definitely a factor, the western diet too, and covid suppresses the immune system, making it harder for the body to fight off cancers
All the comments are disappearing literally
Wheres your statistic? BTW Monsanto was found guilty of causing a lymphoma in the past.
You’re beautiful without hair!! Not everyone can pull that off! Bless your husband! He really loves you!
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Bless you, your brother, your dad, I can’t believe all three of you have had the same cancer!! Also bless your mom too. Sorry you lost your cat to it too!! ♥️ I wish you and your family the best!!
I have had Mono so I always like to hear these stories to keep track of symptoms. My body already has a form of Vasculitis.
so glad they are all doing well today ❤
Reminds me of Mel & Kim. An English pop duo, consisting of sisters.
Mel suffered from back pain.
Long story short, she passed at the age of 23 in 1990. It was cancer.
Thanx for sharing such an amazing story! I hope you all remain cancer free and lead happy & healthy lives. You were so fortunate to not only have such a supportive family but also boyfriend! Hope all is well with all of you.
thank you for listening to her story :)
I believe is someone actually took the time to really listen & do some related tests you would have been diagnosed earlier. We seem-to be victims of drive through medical care! Wish you all the best!
Omg your whole family had cancer, that’s crazy!!!! Glad you are doing ok!
1985 I was diagnosed with Hodgkin’s disease stage 3 which now is called Hodgkin’s lymphoma. I was 18 had 3 months ABVD and 6 months MOPP. Then 6 weeks of radiation.I then met my husband and had my son at 29. It was hard to get pregnant. After my son I never had another cycle. Dr said I went through menopause early probably from the chemotherapy. At age 42 I had DCIS and had to have a bilateral mastectomy. Dr said probably from the radiation. I have had genetic testing and everything was fine from that. I believe it’s the environment where I grew up because my neighbor behind me was diagnosed a few years after me with the same cancer. She was young also.
Cancer cluster? Worth investigating.
Positive vibes for an amazing future filled with love and light!
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For people wondering what is Hodgkin's lymphoma it affects the lymphatic system which is part of the body that fights germ/disease systems. It includes the lymph nodes which are located in the abdomen, groin, pelvis, chest, under arms and neck. It can also affect other organs or parts of the body. Do Not ignore any symptoms that you know are not normal. Be your own healthcare advocate. Ask questions. Challenge your doctor. Get a 2nd and even 3rd opinion.
Thanks for sharing and congratulations for being cancer free!
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It makes you wonder 💭 how did our 7 yr old son get diagnosed with cancer osteosarcoma 💔😭 he started complaining that his right knee HURT 😫 he was playing football in a league so we never thought it was cancer our dr told daddy I DONT WANT TO GUESS so let’s get an X-ray and they did that day I stopped at the dr office after work and they took me to his office and I said to my self I have been with this dr since I was 4 yrs old and never in his office THIS IS BAD he walked in put the X-ray up and said THAT IS A TUMOR AND I DO NOT KNOW WHAT KIND I fell to my knees HYSTERICAL 😫😫😫😭💔 the next 3 yrs were full of chemo and operations 😫 it was a true test on our marriage we also had a 6 yr old daughter 💗 I am so happy that you are cancer free and your girls are beautiful 💕
I hate to sound callous or rude, but doctor seemed to give a damn more about kids than they do adults. Once you turn 18, your life is apparently over, in the eyes of the medical system. Please do not get this twisted, I am extremely grateful for your son‘s recovery… And for the survival of your marriage. I am just extremely ill… Discombobulated, that children seem to get a lot more resources than adults when it comes to chronic care.
@@SarafinaSummers that is true to a certain degree medically I don’t see a difference but financially there is in California they have CALIFORNIA CHILDREN SERVICES and they reimburse for parking and pay for anything your ins does not cover and if parent stays in hospital with child they get 3 meals paid for as long as you are in hospital and they also reimburse for gás used and after chemo and an operation to save the leg did not work he had to get his leg amputated and nothing worked the cancer kept coming back we took hm home and 9 months later he died in my arms at home 😩😩💔💔😭😭
so sorry your family had to go through that awful experience
Noo, I'm Soo sorry! I'm just sickened by the amount of cancers and auto immunes and people suffering at the hands of a medical system that is all Profits over people! Drs can't or don't follow the "Do no harm" and they are no longer healers, but symptom treaters! No One especially a (your) 7yr old child! My tears are for you tonight! And wishing, hoping, praying that something changes in the world of Medicine before it's too late to do any good.❤@@annagarza7299
@SarafinaSummers you need to go to the er with hot water in a thermos drink it to show a fever when they take your temperature tell them you have chest pains and make sure you breath quickly in and out. They will admit you for fever chest pain and scans I'm praying for you they didn't believe me untill I faked a fever and sprinted right before the er check in. I know most patients don't gave the energy to do that tho
What an amazing lady, thankyou for sharing your story. Your husband looks wonderful and your children are beautiful. Hope everything goes well for the rest of your life.❤
My husband had NHL too. His also was in his back/spinal cord. Also had the sweats,ect. After months of of its pulled muscles, he lost the use of his legs. Finally the ER dr found it and shipped him to larger hospital to have emergency surgery. His turmoe was in his vertebrae pushing on his spinal cord. He was in wheelchair for year and drs told him that was as good as it would get. He made himself walk. After all the chemo and clots ect. So for he's clear. Now he can walk with cane,still gets weak but is doing great. So glad things are going good for youand family.
Hodgkin's Lymphoma is the easiest cancer to cure ,I too had Hodgkin's Lymphoma 17 years ago Went through the chemo and God has Blessed me !I never had back pain I had swollen lymph nodes in my neck,my groin ,under my arm pits ,behind my knees ,all of my chest ,I could not breath ,I had no pain but the itching was all over ,night sweats ,losing my eye sight ! I lost 40 lbs ,it was awful ! I really never heard of back pain with Hodgkin's Lymphoma !
What stage
I’m so glad you are so special that God shows you while letting others die
Just because there's no genetic test for lymphoma doesn't mean there's no genetic condition that causes it. New biomarkers are constantly being identified.
There are some genetic mutations that make a person more likely to get cancer. I was tested for all of them. This family needs to be tested for all of them.
My mom has CLL - there are genetic markers for it.
@@jenniferw1595what are the genetic markers?
very true- grateful for the researchers out there working on this!
Not disagreeing about genetic causes, but biomarkers typically refers to proteins and carbohydrates on the outside of the cell membrane, not DNA. Cells "talk" to each other and "identify" each other with these protein "flags."
My Dad had a horrible side ache for several weeks before he was diagnosed with lymphoma. His spleen was so incredibly swollen. I watched his PET scan each time he had them. He lit up like a Christmas tree, it was horrendous! The techs had never seen a spleen as inflamed as his.
What a beautiful family
right!?
You're in my prayers 🙏🏾🙏🏾🙏🏾
Thank you for sharing your story. You are an amazing young lady!!
yes she is!
I love you with the darker hair..so sorry you have to go through this!
she can rock it!
Your remarkable and a blessing to humanity ❤️
Thank you for sharing your story 💛 Blessings to you 🙏
thank you for listening to her story!
Sending you lots of hugs 🤗❤️❤️❤️
Thanks so much for sharing your story. You have a beautiful family. ❤🤗
yes she does!
Such a beautiful soul and lovely couple and gorgeous family. So very happy you had a great outcome and you’re a live and healthy. Much love and happiness wished for you all. ❤❤❤❤
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If you were in that much pain and then continue to drink alcohol. I can’t believe you weren’t peeping blood because I was diagnosed with kidney cancer ♋️ at 56 and lost my right kidney and my urologist couldn’t believe it grew in my kidney instead of out, but he would NOT let me leave his office until he looked at my dye procedure and I him my life and tell him to this day and I went through six weeks of chemotherapy but found cells in my ledder tube that runs from your kidney to your bladder and I just had bladder surgery and there were no cells this time, so I get to move to six months until my next bladder cell surgery. Cancer has come along way and just l can give you some advice, God Bless you but have ur oncologist, urologist and PC doctor all work together like mine do. Merry Christmas 🎄 and a Happy New Year’s to you and your husband and I sending you lots of prayers and hugs for gf. 🙏🙏🙏🙏♋️♋️♋️😇😇👍
Wishing you all the best from Stittsville!!!
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You are so strong and resilient. Very inspiring! Wish you the best ❤
You are truly amazing 🙏🙏🙏🙏
I am so happy you are okay and you were able to have such a beautiful family.
she is blessed!
Wishing you the best and sending you lots of love ❤❤❤❤
Your gorgeous with your dark hair...glad you are here❤
yes she is!
Aww you two make a beautiful couple and family ♥️♥️
Good luck out there!❤
Wishing you all the best with your lovely family.
i am also an HL survivor and my mother passed from it (misdiagnosed) about 25 years prior. while my oncologist said it’s not typically genetic, he said in his opinion there was very likely a genetic component bc environmental didn’t make sense. my daughters pediatrician has her on a plan to watch her
Thank you for sharing your journey. Your great personality after all that still shines thru. I wanted to note that a cancer dtr told my SO that it's something that happened or exposed to 10 or so years ago that shows up later in life. Especially true with skin cancer.
So glad to hear that you are NED.
I’m from Ottawa!!! Sending you so many good vibes your way 🫶
Thank you for sharing
Your message about vulnerability 😂is inspiring
My God bless you and you have a wonderful life from here on in❤
I'm glad you're doing better!
we do too!
My dad didn’t have lymphoma but he did have AML which is acute myeloid leukemia and they think he may have gotten his from Camp Lejeune when he was in the US Marine Corp or possibly from Agent Orange when he was overseas serving in the Vietnam War! He died in 2021 but he was also 84 years old but when he was admitted to the hospital to start treatment he got severely septic and his white count was either 0.2 or 0.3 however he did survive it and actually he was only on IV antibiotics for a few days and then he switched to oral antibiotics (I’ve had sepsis 4 times with the first being the worst and I was hospitalized for a month and spent 2 1/2 weeks on several IV antibiotics). He did really well on the oral antibiotics and that was until he got pneumonia about a week later. 3 1/2 weeks after he was admitted he passed away and it was less than 2 months after he started chemotherapy and less than 10 hours after I signed the hospice paperwork! Also this was his 2nd bout with cancer plus mom had breast cancer (survived), grandfather had colon cancer (died but he was also 96 years old), aunts and uncles have also had cancer. I have celiac disease and CVID and both increase risk for certain cancers!
Love your vibe. Fellow cancer survivor 1 year NED. 4 to go.
amazing- wishing you all the best!
Thank you for sharing your experience
Thank you for sharing. Beaverton Michigan
❤❤🎉sending love, blessings and complete healing to you❤
Radon exposure can cause it. It is random from one house to another. Test for it. There is remediation steps for it. My Son passed from complications from being treated for lymphoma. We had radon in our basement.
@@dawnstraughen755 yep we thought radon campuses mine. I’m in South Dakota and it’s the 2nd largest state to have high radon levels we ended up placing radon system
You're right about the five year mark. I was so happy to pass the five year mark but at six years it came back😮
It's not lymphoma... It's breast cancer.
I'm so sorry 🥺
Hi, I’m a big believer that the brain can tell us about our bodies and u listen to it
Thank you for sharing your story. Being so vulnerable is something we all should not shy away from. You are a beautiful person inside and out! Prayers that you live a long cancer free life, enjoying your precious family🙏🏻
very grateful for brave souls like hers willing to share their stories :)
Thank you for sharing your story. You are such a beautiful light in this world, and I wish you and your beautiful family a wonderful, cancer free life. My husband was diagnosed with a very aggressive stage 4 metastatic prostate cancer earlier this year. After multiple rounds of radiation, it continued to spread to multiple areas in his spine and hip. We are now weeks into chemo, and we do follow up testing December 9th. Things are not looking good, but all we can do is hope and pray that things will turn around. The hard part as his wife is that I love him so much and I'm scared. There is tons of support for the patient but not the spouse. I know he is the one with cancer, but I'm hurting too. Except for 1 sister I have not received a phone call from anyone else. My honey gets 8-10 calls a day so besides me he has an extremely strong support system, me not so much much. Am I wrong or selfish to feel this way?
thinking of you and your husband during this time :(
@tina No, you’re not wrong or selfish - I was totally involved in the caregiving of my parents & my late boyfriend & so I know it’s brutal, both physically & emotionally - and the stress is really intense - I’m so sorry you don’t have more of a support group for you - praying for your strength & courage to get through this - greetings & blessings from Florida 🙏
You need to find support and help with the caretaking, start with a therapist, surely the cancer center has one. They should be able to find help and support for you. If you neglect your own well being you'll be the next one with cancer. Please take care of yourself ❤
@@ThePatientStoryThank you for the kind words. It means a lot. From total strangers I get my happiness. Kinda sad when you think about it. 🥲😢😂😢
Merry Christmas.
For years, they said there was no genetic link to cancer, period. I'm old, so I remember those days.
So, I would look at it more as though they haven't identified one yet.
When it comes to medicine, today's answers are always subject to change
Prayers to you and your sweet, supportive family (your brother too). Thank you for sharing your story. Today, there are many options for treating various cancers. Technology is very advanced which helps for treating cancer patients.
Maybe there were certain chemicals in the water. 9 people got cancer in my street where i grew up in Lima, Peru.. Some got it younger like me at 45 and others a little bit older in their 60s. Only 2 of us are still alive. My father had pancreatic, my brother currently with tracheal and I had breast cancer in 2003.
You are sweet and gorgeous. I wish you a long healthy life with your beautiful family. Thank you so much for sharing. It really helps knowing about the symptoms and treatments for different cancers.❤
Did it happen all around the same time or when someone died of cancer did they all get infected with cancer?
How far apart did everyone get cance? Thanks for sharing
Thank you for sharing your story.
Wen I found out I had lumps in my breast I went in to do the biopsy I was asking everyone questions too. It's normal I think ur nervous❤ prayers to you
You’re a beautiful soul and I am so happy you were able to have a family after treatment. I was wondering if you had any swollen lymph nodes? I’m dealing with a lot of “strange” symptoms and the doctors keep brushing me off. I’m wondering if I might have lymphoma.
What symptoms have you been dealing with? Have you had blood work done recently? Push for further testing if you feel like something isn't right. You know your body better than anyone. Advocate for yourself and don't be afraid to get a 2nd or 3rd opinion if you aren't satisfied!❤
@ rashes, sweating profusely day and night, severe headaches, malaise, muscle cramps and a bunch of other little things that seem strange. I got bloodwork done and they didn’t see anything but I pushed for more testing and got a MRI and CT scan. The doctor said I had a “severe sinus infection” even though I didn’t have any of the usual symptoms of a sinus infection. 2 rounds of antibiotics and still have all of the symptoms. I have a new doctor so I’m being the squeaky wheel and getting more testing done, I have a bunch of appointments coming up so hopefully I’ll find something out soon. I have been sick for almost 4 years now, the last 2 years have been the worst.
You have a mycobacterial infection please I promise you get a pet ct scan they will tell you it's cancer but it's mycobacterium@@tntina420
@@tntina420 do not go by blood work alone. My bloodwork has been normal it took. That’s why we were stunned that I actually had lung cancer
@@Stlgirl-t3i definitely, I’m pushing for more testing, the bloodwork keeps coming back “normal” and didn’t detect a severe sinus infection so I know it’s not as accurate as the docs would have you believe.
The graveyards are full of people who were told to go home because it's just a minor ailment. My auntie was told her severe rectal pain was just gastroenteritis and that everything would be fine in a few days. In a few days she was dead. It was colorectal cancer and it had metastasized to every organ in her body. My rage at the doctors is still raw! So many are full of arrogant disdain for their own patients and couldn't care less. Even the nurses told her it was probably just stress and a bad stomach flu. Too many people have reported similar stories of loved ones being dismissed only to die days or months later. It's the heartbreaking reality for many of us.😢
God bless you both and your family and thanks for sharing. Just a question did you take the safe n effective meds? Pray you have a wonderful long life.
Have you tested the family home for radon levels ? Thank you for sharing your story.
Beautiful Warrior Mama!!
I know where your from Pierre"s neck of the Country, I have been there before nice town I thought. So sorry you had to go through all this.
I had horrible lower back pain and mine turned out to be 3 herniated discs in my right lower back. I got them from when I passed out in the bathroom and I fell as a result.
Congratulations 🎉🎉🎉 enjoy that gorgeous fam of yours🫶🏻💪🏻🙏🌹
prayers always beautiful ❤
Your a sweetheart❤
Hi,interesting testimonial, congratulations 🎉❤
Rylie, I am so glad that you were able to get the care that you needed, that you have such an amazing husband and 2 beautiful kids. I was treated for stage 3 triple negative breast cancer in the yr just prior to covid. I finished treatment in Oct 2019. So yes I agree with you on the fact that neither one of us had to go through treatment during the pandemic. Sending you lots of love, light and healing energy.
I wonder what the outside air quality is or if they sprayed a lot of pesticides. Scary.
I really enjoyed hearing your perspective and story. Congratulations on your recovery and beautiful family ❤
I’ve been dealing with similar symptoms for over a year now, ER docs said kidneys (totally bs) and spinal stenosis (do have, but it’s not responding to injections anymore), plus high white and platelets low B and Potassium . I finally got another MRI this week and see my Dr in a few days. Hopefully something is obvious, otherwise more testing…..
Everything shows up in an MRI. I hope everything goes well. The blood tests are abnormal. I had an MRI and it showed everything.
@@VandaPietrantonio same labs were always great. It took a X-ray to see I had a mass on my lung.?
@@Stlgirl-t3i You think the x-ray would have been the first thing done,.It reminds me of when my doctor wanted to inject my knee with out x raying it even examining it. It ended up I needed intense physio.
@ yep you would think X-ray. But why X-ray when my labs are normal. It mind blowing..
Socialized medicine at its best!!!!!
God bless you. So brace ❤
My maternal aunt and maternal uncle both passed away from Lymphoma. Also have niece that completed treatment for it. Now I'm having some suspicious symptoms. Should I get checked?
Definitely get checked.