An Aphasiologist Has a Stroke | Dr. Robert Goldfarb | TEDxAdelphiUniversity
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- Опубликовано: 5 май 2016
- “An Aphasiologist Has a Stroke.” The following was added to the Aphasiology article by the editor of the journal: “In June of 2013, the aphasiologist Robert Goldfarb, Ph.D., ASHA Fellow, had a left pontine CVA. He kept a journal of his reactions and rehabilitation and this article recounts the hills and valleys of his journey. It presents an exceptional insider perspective from a renowned professional, providing a unique window into his experiences. Chris Code: Editor.”
Robert Goldfarb, Ph.D., Fellow, ASHA, is Professor of Communication Sciences and Disorders (with the Professor Recognition Award) at Adelphi University and Emeritus Professor of Speech and Hearing Sciences at Lehman College and The Graduate Center, CUNY, where he was also Executive Officer. He has published extensively in the areas of adult aphasia, the language of dementia, and the language of schizophrenia, and is also co-author of two tests: The Stocker Probe for Fluency and Language(1995) and Time-Altered Word Association Tests (TAWAT, 2013). He was a Fulbright specialist in applied linguistics in Bogota, Colombia (2013).
This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at ted.com/tedx
This has to be one of the most honest speeches I've ever heard. When my husband was dying of pancreatic cancer, the doctor asked, "What else can we do for your comfort?" He answered, "I just want to make love to my wife one more time." It didn't happen - he was too sick. That was 16 years ago and I still cry remembering this moment. Dr. Goldfarb, you have an amazing wife, which is as it should be, because you are an amazing man. God bless.
I cannot imagine how you feel. Bless you for your honesty, and may you find ways to be fulfilled til the end of days.
My mom suffered a major left hemisphere stroke, October of 2021, that has left her paralyzed on the right side and with severe expressive aphasia. She has a PhD in synthetic organic chemistry. Ironically, she’s on patent for a drug that’s used with blood thinners in patients that have suffered strokes. She was a chemical engineer before immigrating to the USA. Hard working lady, smartest women I Know and insurance covers hardly anything. She’s slowly recovering, but a stroke can be a lighting bolt in someone’s life.
My heart goes out to you and your mom. My husband lived almost 11 years after his severe brain bleed and TBI (the result of a near-fatal cycling accident) and, while his recovery was slow and limited, I could respond to the flashes of his original brilliance which shone through, and I could defend his humanity. Our last decade together was not easy. Friends fell away, even family fell away. Caregiving exhausted me, and I very nearly did not survive.
Despite all the heartache, I know my husband faced his disabilities with huge heart and courage. Yes, he had been a brilliant scientist who could no longer do simple arithmetic (and this pissed him off!). But his courage and determination in the face of all his losses were his true brilliance.
I hope you can reflect your mom’s brilliant humanity back at her as you both struggle.
Beautifully said. My father had a stroke and I’m so grateful to still have him with us despite the deficits he has experienced as a result. Lightning bolt indeed.
Great speech well done keep going doing amazing things I have hypoxia brain injury I died 26minutes spent weeks months in coma rehab hospital learning talk walk again been a recovery massive discovery never ever give up on yourself many will never yourselves keep positive keep strong stay safe everyone sending luck hugs prayers most of all love from headway Nottingham UK x
I am Blessed by your honesty. I also survived a deep brainstem stroke in 1996, and your eloquent talk has me tears of remembrance streaming down my cheeks.
Hi
How are you right now
@@fasilatd7723 I am well, thank you for asking! I regained most of my lost function slowly..It took years.
To look at me, you probably wouldn't notice the deficits any longer. Still struggle with dexterity of my left hand and short term memory... But considering it took me a full year to relearn how to talk, walk and reason, I've come a long, long way :) Have a great day!
@@beverlyoliverrockspanninga8234 My grandma just had what her doctor told us was a medium sized stroke in the left brain. You said it took a year to relearn to speak, when you had the stroke, could you understand what people were saying? My grandma has no facial response to anything we say to her, and doesn’t say a word. I’m hopeful she can recover even slightly. 🙏🏻
@@hughduffy213 I could understand speech but nobody could understand me and every stroke is different. The emotions are all over the map. The depression and frustration was overwhelming I hope your grandma will be alright with time and patience.
My Stroke was in 2016. I relate to so many things he's speaking about. Great talk.
Screw that insurance company. They should be ashamed of themselves. Whoever that woman was, she's absolutely amazing. I just wonder how she did what she did.
Tonight My mum has just had a cortex infarction that has only effected her speech as of yet. She was in hospital within 30 min. At 84yrs with dementia and copd the prognosis isn't good. Second ct tmrw morning. Thank God for the NHS
Up date! She's recovered really well! Almost like stroke never happened.
Agreed.. our NHS is amazing. xxxxx
I had similar slurred speech and did develop aphasia after a traumatic brain injury in a car accident. It took me six years to relearn how to speak. I still see the wrong words at times. Like you I have to be very mindful to try and get the words out. As well as not choke from dysphasia. SLP was a saving grace. And after eight hard years of work I was able to return to work on a limited basis. Therapy works I concur. I lost my brain dictionary for years could not remember words. Definitely supplements make a big difference in my brain functioning and health now I’m so glad that you’ve been able to return to do would help so many. Your insights are truly valuable and thank you for this wonderful presentation
I had an undiagnosed TBI from a fall on the grass at work. I shattered the left ankle and I landed more on my elbows toward my left side.
What he talked about and it took 8 years. Then when I took a human biology class on the section about the brain. I started to weep, because now I knew what to talk to my doctor about! We did tests and I was deficient. With help from him and OT I have improved. I had a photographic memory to a camera with out film for almost a decade. Now I get 3 out of 4 pictures. Which is good. You have to grieve your missing pieces. Then accept and grow on.
Thank you Dr Robert Goldfarb.
Thank you, Dr. Goldfarb for enlightening the public about some of the trials and tribulations that you have suffered from your stroke. Your speech was beautifully done.
So eloquent. I hope Robert is still teaching. I would take any class of his just to listen to him again.
Dr Goldfarb
Thank you for sharing your experience with us. My experience was very different but the descriptions of your deficits are almost identical to what I found myself with in June of this year. I especially appreciate your description of the fluidity of thought but the resulting speech produced being significantly different. I too have been there and continue to struggle with it. I know it’s a lot better than it was but it is nothing like my voice. The low pitched, breathy, staggering speech and choking while swallowing are my biggest challenges and have lead to a 30 lb weight loss during this time. The other thing you mentioned that struck home was the emotional “incontinence”.
I’ve had a few outbursts that are completely out of character for me. My poor husband has been the recipient or witness on all but one of those occasions. It is reassuring that you experience d and overcame these. It would have been nice if the neurologist might have mentioned it as a possible side effect so I (& my husband) wouldn’t be ready to get me to the nearest psych hospital! Your presentation was so clear and informative that I’ve forwarded the link to my husband to watch and I have renewed hope that I may get closer to my previous baseline. Thank You!
What a tender telling of your trauma. thank you so much for sharing and helping people all over the world.
I am selfishly glad for your recovery, so that I can now learn about variations of aphasia. Recently, I've considered whether the language problems I encounter, (severe at first) could be some 'version' of the aphasia I endured when taking 'pot' (in 1965), and experienceing my right side becoming paralyzed. The paralysis was gone in the morning, but then began the extreme problems for the next 14 years, at which time I was on disability. I attended junior college during my hiatus, returning to work in 1980. Today, as to self expression, I can write better than speak. Now I play recorder at my senior talent show, am retired (at 78), and I do all the recommended things for stroke and autism. The stroke was never followed up on. Many thanks for your expertise and wish to educate others.
I would suggest trying 'pot' again under some sort of guidance.
Thank you, thank you. In early recovery here. The fatigue is unreal. !!! xxxxxx
What a fabulous talk--I am an occupational therapy educator and I am using this video in my course. So glad to hear you!
Thank you TEDx and Dr. Goldfarb. This video was very informative and an eye opener. Every aspect of a survivor you presented with clarity and truth. I am a Case Manager in an assisted living so I take this information as a jewel.
Thank you Dr. Goldfarb. Your sharing of a harrowing time has helped me understand more what my mother is going through. She is 86 and has had an episode leaving her with expressive and receptive aphasia. She is of Italian origins and has gone back to her native dialect, and all English is gone except for a few words is left. She cannot write or read and is reduced to miming and basic words and expressions to communicate. I have become the Rosetta stone to translate her antics. She often has emotional outbursts which break my heart, but I understand better their origins now after listening to your talk.
I am a chemistry and biology teacher and I find I am still learning so much about our fragile human state. May your god travel with you and may your humanity persist within you. Kind regards.
Having a pontine stroke at some time in my life is my single greatest fear, if for no reason other than the possibility of locked in syndrome.
Thank you so much for sharing your story, helps me to understand how our body is effected by a stroke.
My husband suffered a stroke on March 23, 2020.
He is doing well in rehab but like you said, you feel exhausted.
My husband was a runner and was in boot camp workout classes for a long time.
I asked him if everything he is learning how do now harder than boot camp and he said, yes.
Gives me hope.
I am watching this for my Biological Psychology class. What a remarkable story! Such a brilliant tale of resilience. Thank you for sharing.
It's a miraculous escape and wishing you good health, joy and comfort in all means dear doctor. You are a true inspiration and high rated role model. Thank you for sharing your own experience.
My mother passed away due to complications of a stroke and was hypertensive. I did not visit her while she was hospitalized. The next time I saw her, she had passed. Thank you Sir for sharing your story. To have your wiseness and intelligence ....
My thoughts are with you, may she Rest In Peace
@@christalyu635 thank you
@@rachelgillis971 So sorry. Sending you love. Life can be so harsh. May she RIP with God. xxxx
@@janemccourt5022 Thank you
This needs more attention.
This is excellent !!! Thank you so much 🇨🇦
Fascinating, amazing. What a great speech Robert.
I suffered stroke about 4+ months ago. The other day, I tried standing on a chair to replace a flickering light bulb. Knowing I'm unsteady. and might fall which could land me in the hospital again reulting more bills, I defeatedly told my wife "I can't..."
Giving me more hopes don’t that has always been my favorite word just didn’t understand the true meaning of it until ten years ago when at 55 I had a massive stroke still currently left side paralyzed
How wonderfully insightful. Thank you.
Thanks, Dr. Goldfarb
thanks for sharing Doctor, it is certainly inspiring, and completely understand what you refer to when you say that life is still worth living after a stroke experience like your and mine.
I’m crying!!
Thank you Sir for sharing your beautiful life story l respect people who care and love each other , bless you both 💓🙏🏻
Very inspirational...thank you for sharing your story. How scary to think you may be having a brain stem stroke
Wonderful.
My mom just had a stroke this weekend. Her speech is delayed, although not slurred. She also is showing personality changes.
I wish you the best in such a difficult time
11:00 and this is whats wrong with US healthcare. I feel so utterly lucky to live in Australia, whilst their may be issues, I know that if I have a stroke, I will get 1st class medical care, and won't receive a bill for a single cent.
I know that I can if I want pay to have Private Health Care, and get admitted to a private hospital, with potentially nicer rooms, that the care I receive will likely come from the exact same Dr, because most Drs work both public and private.
I’m also an Australian, but I wish there were no such thing as ‘private health insurance’. No wealthy country like Australia should be dividing something as essential as healthcare down economic lines. We have a progressive tax system. Higher one’s wealth, higher amounts of tax they must contribute. As a result, our public health system should receive every dollar it requires in order to meet the health needs of every citizen.
@@DanielVerberne I agree, I wish the 1% and all the huge companies would pay their tax, and spend millions on lawyers and accountants to avoid tax....
Our health system is woefully underfunded, and we're struggling already to keep Drs here even with our private plus system.
people are non-compliant at home for many reasons. getting in a good rehab facility that follows dr's orders is very important.
The idea that anyone would have to worry about money because they had a stroke blows my mind, no pun intended. I just can't believe americans tolerate this system.
American here. I can’t believe it either. I hate it here.
Money worries make everything so much harder, and the effects of stress compound the physical and psychological difficulties.
I now have to research more about how the financial pressures play a part in "compliance." Anyone know how to get a hold of the doc?
Coconut oil and fish oil causes brain cell regeneration. Army research, sago mine disaster victim. I had aphasia. Strokes. Couldn't walk and had to learn again. Lady doctor wrote a book on coconut oil and Alzheimer's. It's slow. And try to walk 20to 40 minutes a day it releases BDNF.
@ debbi ramsey which book u are talking about.. My dad had a stroke few months back he is unable to speak and facing problem in recovery what you did for that.????
can't believe they didn't immediately hook him up to look for afib......known cause of stroke....and not super hard to find if you are in it......wtf
My sister have also ataxic dysarthria due to an cerebellar hemorrhage 4 months ago. How long did it take to recover fully?
"what do you do?"
"I'm a professor"
"what do you teach?"
"this"
2022 1st time to heard this speech
NO relationship between STROKE and DIET??? Just curious ??
hugs top ! thats love!
0:11 You'd be Michael Cohen!
Insurance rejected! Unbelievable. We need universal health care. This is ridiculous. We are one of the only developed countries that does not have national health care for all of its citizens even though we are one of the wealthiest countries in the world.
My sister just had japanese encephalitis and now she can speak but the words are at the moment repeatetive but i can partly understand because of her eyes expression that she is meaning anorher topic. Is there a way to improve her communication?
I'm no expert, just a curious person but I think it might be caused due to the damage to the broca's area. Some say that when this area is damaged, people can still sing perfectly although not being able to speak. There are the cases of some people learning to speak correctly by the use of singing somehow. I guess they learn speaking by the way they say the songs, creating a new pathway in their brains. Your sister might want to try that if she can sing.
I'm no doctor or expert in this are, just putting some ideas that I read from a book. Take the advice with a bit of salt, but you can try it regardless. I hope the best for you and your sister.
update: my sister is recovering, she was a musician and a researcher so even when it was her language center that was affected she managed to recover her words. At first it was jumble bit since we were family we could understand what she meant. Now she is able to speak much better but her eye too was affected. Regardless we gave thanks to God for the miracle.
@objective lense this is grt that your sister recovered . My dad had stroke nov 2019 and still he can't speak or utter a single word. So now I am just finding a solution to fix the problem by watching video on aphasia.
My husband is just 56 suffered a stroke at 54 can't speak nor use his right side.ltis very difficult for me sometimes i think that he is making progress but he gets frustrated, cry and wont even try to use his talking device.please helpme to understand
how it is going now? I hope it's going better! It dounds very similar to my father who is 54 and had a stroke 2 months ago. I think he understands us pretty well but he can only say a few words and is paralysed on his right side. Does he have problems with incontinence and swallowing?
I don't understand how could he take an aspirin... nevertheless I'm happy he ended up ok in the end!
such a badass
Another example of the need for a holistic medical approach, with multiple specialists in different disciplines assessing a patient, instead of such incongruity! If you go to a pizza guy you get pizza is just not good enough.
Lizzie Dean Makes so from who should we get our pizza try another example plz
March 2013 I had stroke
comb hair left to right ?
Hi sir,
I have fluently talking problem in my native language.
I know all words but i can't remember (on time) the word when i am talking to others.
Y this happening.
Please help me
I'm sorry I don't see well and hope I did say by Mary t Newport, book. Alzheimer's what if there wa a cure.
looks like a wind shapes my writing
I'm sorry ove had strokes several times. Aphasia. Couldn't understand d English and had to learn to walk again..I .
I could barely crawl with hands trembling..the book I was thinking is by ,Mary her book is alzheimerz what or there was a cure. She admits the
Title is exaggerated to get attention. Nut see the dramatic partial recovery her husband when she started him on coconut oil. Also see the
Sago mine. Disaster victim and his dramatic improvement after they put him on fish oil. Both coconut oil and fishoil cause brain cell regeneration. I don't see well, so let me repeat the book title, alzheimerz what if there was a cure, for all the strokes and issues I've had you'd never know I couldn't walk or aphasia and all these things. Hope this help. Ccoconut ,at be a hard kind of stuff and very soft swpwmsinfg on the temp of around room temp.. can put in the fridge or on a counter like where mine is, it will not spoil.
Hope you are doing better, pray to god, have you in heart.
A Dr. doesn't want to pay his bill to other doctors. The irony. Give him another six months.
I want to stop complaining.
empirical failed you. ought underscribe and confirm.
Strokes are Gifts from God!
ahmad reza
I Did! That is how I know. It has been a challenge and altered my life completely..and I am learning new stuff. I also realize that is could be much worse..so I am Grateful at the same time.