Alcohol & Essential Tremor

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  • Опубликовано: 9 май 2020
  • In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board certified neuropsychologist Dr. Karen D. Sullivan discusses the relationship between alcohol and essential tremor. Learn more at www.ICFYB.com or follow us on Facebook at icareforyourbrain

Комментарии • 271

  • @space_cadet04
    @space_cadet04 10 месяцев назад +11

    I was absolutely floored when I found this video. I had been trying to figure out what my shaking was related to when it started 20 years ago in my early I mid 20s. I started noticing gag alcohol would make them completely stop so i started drinking just to go out, to go to work, to function, cuz the head shaking was so embarrassing. My husband still thinks my shakes are only when I'm upset or have anxiety but he doesn't realize it happens while I'm doing my makeup or watching a movie. It's so random. Yes some emotions can make it worse but I also suffer from Borderline Personality Disorder and CPTSD so my emotions are very strong. Maybe that's why certain emotions can make it worse.

    • @sasavoj
      @sasavoj 3 месяца назад

      same here

  • @googlesucks4859
    @googlesucks4859 2 года назад +11

    I've had ET for approximately 7 years. I try to play golf (used to be pretty good, until ET) and a few beers does help with the swing. But take my word, I use to drink 6 to 7 days a week, years ago.........you don't want to take that path either. So far, I've been lucky. If you can drink it when you really need it and can stop until you need it.......this is great! I've been able to keep it at a bare minimum at home.......fortunately! So my lesson for the day.......keep the alcohol drinking to a bare minimum........VERY GOOD video, by the way!!

  • @jennifermilligan4327
    @jennifermilligan4327 3 года назад +14

    💌 I just got a call from my 25 year old daughter tonight. She had 40 minutes of tremor today. She isn’t saying she may have ET, but with your informative talk I just listened to ...she may. She has made a virtual appointment with her physician and will begin this journey tomorrow. Thanks for offering your expertise to the public. Jennie from Muskoka, Canada.

  • @Micro41
    @Micro41 Год назад +13

    It is very touching to hear from a medical professional validate our suffering. All the blessings this world can give.

  • @LoveTheElectro
    @LoveTheElectro 3 года назад +7

    This clicked on so many levels for me. Thank you!

  • @nikkm6480
    @nikkm6480 Год назад +21

    Thanks for this post it helps so much that my tremor has progressed since a small child and the only person that seems to understand is my neurologist. Knowing that there are people like yourself want to help raise awareness. I have all three elements and it’s upsetting when people blatantly stare and assume it’s drink or drug related.

    • @JM-nm5hh
      @JM-nm5hh 9 месяцев назад +1

      I have dealt with my ET since I was was 26. I'm now 62. People definitely think that you are a drug addict or Alcoholic.

    • @user-yr2dj9ej7x
      @user-yr2dj9ej7x 2 месяца назад

      My roommate who is 75 im pretty sure he has this too he’s had it since childhood and his mother had it . Can you tell me if there’s any treatment because he’s using alcohol to help it which really isn’t good because he’s does it excess. You are the only person I’ve heard that had this from childhood any advice?

  • @MrWordcat
    @MrWordcat 6 месяцев назад +4

    Wow. Your video jest taught me more about my ET and relationship with alcohol than any literature, group (therapy/AA) or doctor ever had before. I feel like I have more agency over my alcohol use and am 1 step closer to getting it under control. I can't thank you enough!

    • @icareforyourbrainwithdr.su7103
      @icareforyourbrainwithdr.su7103  6 месяцев назад

      That is the best! Awesome! I have a 4 hour webinar on ET you might benefit from as well. icfyb.com/webinaret/

  • @AnthonyClimo
    @AnthonyClimo 3 года назад +12

    This is very educational. I have an allergic disease to alcohol. Addiction and abuse which I am now 1month 20days sober and have gone through a lot to get to finally work the program with help from my doctor and outpatient programs. But one of the best reasons I used and felt the need for alcohol is it stop all the shaking and other then the negative effects I never felt a better relaxation and ability to get relief from any shakes.

  • @KendraW8
    @KendraW8 3 года назад +3

    Thank you for this. I truly needed it.

  • @littlelauraanne61
    @littlelauraanne61 2 года назад +4

    VERY helpful information. Thank you Dr. Sullivan.

  • @Kjell777Iverson
    @Kjell777Iverson 2 года назад +18

    I have had ET since I was a child (long before I ever had a drink). I remember being embarrassed by my tremors constantly. I started drinking to self medicate with my adulthood. Recently, I tried to detox, but I couldn't stop the shakes. I have tried this twice, but every time I tried I would get to the point where my shakes were low enough but then I would encounter insomnia and the shakes wouldn't stop.
    ET runs in my family and my cousin has it. My family doctor when I was little suggested to my mother that I had simply had too much caffeine, via pop (or soda, as you may).
    I really appreciated this video. Thank you, Dr.Sullivan. Not sure if I can recover from this because I've been self medicating my tremors for so long, but this was so very informative.

    • @nicholasmendelsohn6779
      @nicholasmendelsohn6779 2 года назад +2

      Thank you for saying that because I've had it since I was very very young and I believed I was born with it my nickname is shaky and I've tried every type of medication they've thrown at me and nothing helps but a beer first thing in the morning or for that matter anything I can get my hands on alcohol related so I connect with you totally and thank you for saying what you said it really means a lot and Dr Sullivan is amazing because I just learned a lot from this video as well God bless you and I hope we can get through this together!!

    • @normedwards5305
      @normedwards5305 Год назад

      Ditto!

    • @TexasScratchMan
      @TexasScratchMan Год назад +1

      i feel your pain brother. I have had it since i was born, i was made fun of and treated like a freak growing up, even at 37, its hard to go out in public and meet people because as soon as they notice me shaking they start acting different like they feel weird being around me.. its effected my relationships, friendships and with family, because along with ET i have developed severe anxieties over my life due to it.
      Top it off, im also extrememly ADHD and pretty much have to force myself to constantly eat because i will literally go 48 hours before i feel hunger

    • @dmariewalker6880
      @dmariewalker6880 3 месяца назад +1

      I don’t drink, but I’m going to try either a beer or glass of wine and see if it helps; it would so be worth it when I have to balance my budget.

  • @frenchustube
    @frenchustube Год назад +3

    New subscriber here. I love the way you talk and I could listen to you all day. That was so straightforward and so non-judge mental. I am going to listen to some of your other videos.Thank you

  • @ShawnBelaire
    @ShawnBelaire 3 года назад +5

    Thank you that was very informative I never knew there was more to it.

  • @cindyr6702
    @cindyr6702 Год назад +1

    3/9/2023
    Approximately 1.5 years ago a I realized that when I stepped on the scale to weigh myself my legs were trembling/shaking on the inside (not visible to me) and my legs wouldn’t stay still enough for me to get a reading on the scale. This came on suddenly. I had been successfully weighing myself every morning for a couple of years. And then one morning it took me 20 - 12 attempts to get a reading. I kept trying for many mornings and then just gave up. And that was the beginning of my journey. I was diagnosed with dystonia and the most important thing I’ve learned - and practice daily is self care. I’ve seen a few of your videos and I am going to become one of your biggest fans. I crave reliable information. And I’m blessed with a PCP that has been leading me through my discovery period. And I have a neurologist who specializes in movement disorders. Thank you so much for sharing your expertise.

  • @krc5210
    @krc5210 Год назад +1

    Just found you today! So grateful but sorry I missed the virtual conf. I hope I can find it on youtube. TY for all the info presented here.

  • @royking7298
    @royking7298 2 года назад +3

    Thank you so much! It's just the info I've been looking for.

  • @TexasScratchMan
    @TexasScratchMan Год назад +7

    It makes me feel much better knowing im not alone. the shakes, the social anxiety, the depression... over the last few years, i have started having more and more frequent pin a needle feelings in feet and lower legs, eye lids twitching. Im about to go see a neurologist next week. Im tired of living like this. waiting til i was 36 to address this is my own fault

    • @icareforyourbrainwithdr.su7103
      @icareforyourbrainwithdr.su7103  Год назад +3

      Focus on what you are doing now and be compassionate to yourself for not acting sooner!

    • @TexasScratchMan
      @TexasScratchMan Год назад +1

      @@icareforyourbrainwithdr.su7103 ❤ Thank you so much for doing what you do

  • @tberrardy
    @tberrardy 4 года назад +2

    Great video!

  • @celesteinman56
    @celesteinman56 2 года назад +4

    Thank you. Great info and I look at it as self care and love. People that care about you would encourage and not gas light. Have a blessed day. :)

  • @eileencarman9752
    @eileencarman9752 3 года назад +11

    Interesting. Glad to have accidentally stumbled on to it

  • @jaktoy8885
    @jaktoy8885 3 года назад +7

    For years I had a problem with tremors in my hands, I stopped smoking and drinking coffee and I drink fresh lemon juice while I want to get fast enough on the tremor

  • @ronn773
    @ronn773 2 года назад +8

    Thank-you so much for posting these videos. They sure help me understand my symptoms better.

  • @pete_surgeon
    @pete_surgeon Год назад +1

    Excellent. I learn something new each time. Danke

  • @kvzaruiz
    @kvzaruiz Год назад

    GRACIAS POR SU KNOWLEDGE AND TIME

  • @debrawitte8391
    @debrawitte8391 Год назад

    thank you for your love !

  • @icareforyourbrainwithdr.su7103
    @icareforyourbrainwithdr.su7103  4 года назад

    Join us for our I CARE FOR YOUR BRAIN ET WEBINAR: www.icfyb.com/webinaret/

  • @neelam507
    @neelam507 4 года назад +6

    Very well explained....👌👌👌👌👌👌

  • @kimdessaix586
    @kimdessaix586 8 месяцев назад

    Thank you Dr. Sullivan for this very informative video on Essential Tremor and alcohol.

  • @mileakin2689
    @mileakin2689 2 года назад

    Thank you so much for that information

  • @cranberry63
    @cranberry63 Год назад +1

    Thanks for a very insightful video on the origins of ET. I keep coming back to this one.

  • @marsharodgers3654
    @marsharodgers3654 Месяц назад

    Thank you so much for all you do. You have taught me so much about my ET and managing it. You are such a blessing.

  • @LissaAus
    @LissaAus 2 года назад +6

    Thank you Dr Sullivan for talking about this issue in such an intelligent, sensible way. All I had from my GP is that alcohol stops tremors....I didn't realise it was causing more damage. Food for thought.

    • @dianegraber9333
      @dianegraber9333 Год назад

      Good grief.. a very uninformed GP! Hope you tell GP this fact so to educate before others are harmed by such ignorance.. find a very good neurologist (and neuro psychologist as well.. if you’re lucky). All the best to you 🦋

  • @blackseabrew
    @blackseabrew 3 года назад +8

    I first noticed tremors when I was 20 while shooting competition...couldn't hold the rifle study/noticed minute shaking. Now 53 and tremors are visible to others. Never was a heavy drinker but certainly partied in college. But being an engineer my career always took precedent over alcohol. Started a very special medication in 2008 for narcolepsy. It doesn't mix with liquor at all. I primarily have action tremors if I understood your video. Overall my health is good except for narcolepsy. Definitely looking for answers.

  • @jakeeasterwood9317
    @jakeeasterwood9317 3 года назад +24

    After watching this video I have discovered that a 7oz glass of wine about 1 hour before eating actually allows me to actually hold a fork steady and get food to my mouth without frustration, humiliation and embarrassment. I also suffer from low thyroid, pernicious anemia (B12 deficiency). Now I understand another piece of this puzzle about what is going on and put some kind of balanced approach to this horrible condition. Thank you so much! I’m so glad I found this.
    Even typing this on a phone… which I usually have a lot of trouble doing, is easier.

    • @chiledoug
      @chiledoug Год назад +1

      alcohol actually work better than anything had to quit thought

    • @pmichael73
      @pmichael73 7 месяцев назад

      My doctor recommended I try wine (sensible amounts!) to see if it settled my ET. (Experiment still in progress. May not have found the right wine yet!)

  • @bobwalk2002
    @bobwalk2002 Год назад +1

    Very good information, I like the way you look the whole person in your diagnosis and recommendations. I have just recently been diagnosed with essential tremor, at this point it is very minor and only affecting my right hand. I have been a moderate/heavy drinker most of my life and will be following your recommendations to reduce my alcohol. Another method for people to reduce their alcohol consumption, is to buy and consume lower alcohol beverages. Their are many good beers available with alcohol levels as low as 3-4% and also some very good non alcohol beers available.

  • @tammyfujihara5152
    @tammyfujihara5152 8 месяцев назад

    I randomly came across this and I learned so much about my et! My bf told me recently that I should pay attention to interrupting people. I have been paying attention and I do have difficulty stopping myself. Interesting to know this is related to et.

  • @angelayan8712
    @angelayan8712 Год назад +2

    This is a powerful discussion and it is scaring me. Thanks! I take mentioned drugs.

  • @nicholasmendelsohn6779
    @nicholasmendelsohn6779 2 года назад +18

    Thank you so much for that I just watched your video for the first time and it really touched my heart I've had tremors my whole life and I've tried every medication under the sun and the only thing that helps me is alcohol and I have to drink a beer first thing in the morning and the last thing before I go to sleep so that was very inspirational and I'm looking forward to seeing more!! Thank you very much for what you do it certainly means a lot because I felt so alone in this world and thought I was the only one that had this condition!

    • @Xanax1.0
      @Xanax1.0 Год назад +1

      What about benzos

    • @annatapl
      @annatapl Год назад +1

      Dr. Sullivan, Did you récord the virtual seminar? I would love to see it!

    • @dmariewalker6880
      @dmariewalker6880 3 месяца назад

      @@Xanax1.0 lol my doctor says that they cause dementia, which I don’t believe.
      I was on them for awhile after a severe auto accident, which gave me PTS bc I was T boned and my truck rolled & I was ejected 65 feet.

    • @Xanax1.0
      @Xanax1.0 3 месяца назад

      @@dmariewalker6880 im so so sorry for you

    • @user-yr2dj9ej7x
      @user-yr2dj9ej7x 2 месяца назад

      Yes my roommate has to drink before he can even write a check and of course over time he’s become a full blown alcoholic but I really feel bad for all of you so there’s no medicine that can help this I take it?

  • @user-yr2dj9ej7x
    @user-yr2dj9ej7x 2 месяца назад

    Thank you Dr this is very informative

  • @SolKnopfMusic
    @SolKnopfMusic 2 года назад +1

    It does the same for me. Absolutely!

  • @kathleensmith4836
    @kathleensmith4836 Год назад +4

    If alcohol can stop tremors why isn’t someone finding out what it is and use it in tablet form

    • @Jamsie27531
      @Jamsie27531 4 месяца назад

      Because drug companies can’t patent alcohol, so they can’t make any money on it.

  • @dianadougan6871
    @dianadougan6871 3 года назад +1

    I am so glad I also, stumbled on to your utube topic.

    • @iowabettyg
      @iowabettyg 3 года назад

      have you ever been tested for tick-borne diseases: lyme disease or any of other diseases TICKS carry? usa has 20 different types.
      have you ever had an EMBEDDED TICK WITH BLOOD IN IT or a BULLS-EYE RASH?
      yes, please read my detailed, lengthy note above.
      best wishes to you for quality of life.
      betty gordon, ames, iowa

  • @Backwardlooking
    @Backwardlooking Месяц назад

    Thank you. Extremely lucid and helpful. Best wishes. 👍🏻🇺🇸✌️🏴󠁧󠁢󠁥󠁮󠁧󠁿🇬🇧

  • @kebigelow97
    @kebigelow97 11 месяцев назад +4

    Not enough protein in my daily diet triggers my ET. It might be today but will show up tomorrow. Monitor your protein intake daily. 50 g's daily keeps me ET free. Not medical advice. Just my experience.

    • @martibusbee6485
      @martibusbee6485 24 дня назад

      Thank you I have ETs primarily in the morning. I don’t eat much protein, especially at night. Sometimes in the morning I have trouble eating my Cheerios. I’ll try to eat an egg first. Boiled wouldn’t be so bad if I can follow up with my Cheerios and a cup of Fairlife milk. Thanks!

  • @DF-zp1os
    @DF-zp1os Год назад +3

    Interesting video. I developed tremor late teens and never sought diag from doctor as in my 20s I noticed the temporary alcohol fix and was made aware of ET and alcohol connection. Now in early 40s working through migraines, sleep problems, intermittent pain/tingling, and tachycardia I was placed on beta blocker for successful treatment of tachycardia. Saw improvement in ET, but the best improvement occured after started taking GABA supplements. All my research says this shouldn't occur because GABA supplements don't cross blood brain, but it dramatically improved tremor and eliminated migraines. The only kicker is i can still have tremor flare ups that are more pronounced than in my 20s, but frequency has dropped using GABA.

  • @Tubecheerio
    @Tubecheerio 2 года назад +16

    I control my ET by practicing Taichi/chigong 3 hours daily over the past 30 years. I can eat with chopsticks/fork & spoon and write normally. My doctor initially misdiagnosed my ET and gave me medication to treat Parksonson. I discontinued the medicine after 1 week - that was more than 30 years ago.

  • @rachaelsmith1114
    @rachaelsmith1114 Год назад

    good idea

  • @robelestifanos1227
    @robelestifanos1227 3 года назад +1

    Thank u

  • @michellebaker8994
    @michellebaker8994 Год назад +1

    God help me, I have this. It’s life changing and reliving the worst day of my life, ever damn day

  • @CeceKruchkoSmith
    @CeceKruchkoSmith Год назад +1

    Fascinating, easy to listen too, easy to understand.
    I don't know about ET but the information about Gaba and Alcohol is useful. Gabapentin is very useful to help get alochal use down to its usefulness.
    Perhaps you can examine the brains of us that have been in high control relationships. I have both experiences. I was in a cult and basicly drank my way out.
    Looking back, the cult became an addiction. It's no wonder - from the beginning I told my family it was like being high without drugs.
    It was.
    I got out of both only with self education. Now I get high learning new things from people like you ❤️
    Thank you for your (free 😀)
    help 🙏

  • @dancahill8199
    @dancahill8199 2 года назад +4

    This Dr. is a fabulous speaker ! This was like
    Neurology 101. 😊😊

  • @sophiepalmer-doran344
    @sophiepalmer-doran344 3 года назад +1

    i was on Depakote for 9 years for a seizure disorder This is how Depakote affected me it caused massive weight gain, memory loss, a hand tremor a one point i stoped eating i had no appitite i was severly depressed and suisidal . i was taken off but still had a small tremore this is my personal experience of the medication and i know that everyone will react diffrently to any kind of medication
    now i have a tremor in my left hand as it is my nondominante and my right hand also shakes not a big shake but i can feel it even if no one sees

  • @RyanPridgeon
    @RyanPridgeon 3 года назад +52

    Myself and others online have found that heavy strength training (e.g weighted squats), particularly stuff that hits the legs or back hard, helps ET hugely. For me there is a night and day difference between doing this or not. Other kinds of exercise don't really seem to have an effect. Can anyone speculate on how that could be possible in relation to the cell loss talked about here?

    • @ladydy2831
      @ladydy2831 3 года назад +4

      I find the same thing with me. It helps that I am a PT and was a bodybuilder. It makes all the difference lifting weights....for me.

    • @breckandy
      @breckandy 3 года назад +8

      You are the first person to bring this up. I find that weight-bearing resistance in the arms and legs makes a vast improvement. Before I couldn't lift a plate in the cupboard without shaking and clattering and now it is a breeze. I no longer so much have the sensation I am going to trip over my own feet so much.
      You are on to something.

    • @rattmotor9865
      @rattmotor9865 3 года назад +3

      @ Ryan Pridgeon goin HEAVY ! Thankyou!

    • @Kjell777Iverson
      @Kjell777Iverson 2 года назад +6

      Tai chi can really help too.

    • @RyanPridgeon
      @RyanPridgeon 2 года назад

      @@borrago out of interest, would that affect the tremor in other parts of the body?
      In my case, the tremor is most prominent in my face, but working out with my legs is the best thing for reducing that facial tremor (I feel the difference is much more dramatic than can be explained by other factors such as stress/sleep etc)

  • @ultramegasuper11
    @ultramegasuper11 10 месяцев назад

    Thanks 😊

  • @sheshe6724
    @sheshe6724 3 месяца назад +1

    I learned a lot,my husband is heavy drinker,he has tremors in his hands,ty for the information

  • @vikramadityajha8924
    @vikramadityajha8924 2 года назад

    thanks

  • @joshuaslokum36
    @joshuaslokum36 2 года назад +1

    Thank you Doctor for the information. I have had ET for decades and I am 55 now and it is significantly noticeable in times of stress and anxiety. It is embarrassing for me when people notice... I definitely notice my tremor go away when I drink. But with this information... I’m stopping....
    ❤️🙏☕️

  • @karenhiller9189
    @karenhiller9189 Год назад +1

    Thanks!

  • @gailshari25
    @gailshari25 2 года назад +3

    Alcohol is a relief.

  • @christineschnell4155
    @christineschnell4155 2 года назад +1

    I can only say a big thank you to you for your video and your knowledge of ET and especially the connection between ET and alcohol ism. I am in my 70s and have had ET since my late 30s. Needless to say it has impacted my life enormously. My mother had ET and was also an alcoholic. I assume she drank during her four pregnancies. I am also an artist but the conflict with my tremor is overwhelming I am thankful that alcohol does not help my tremor, alcoholism will not be me.
    Looking forward to your upcoming videos and will look for the ones I’ve missed

  • @johnclerk1195
    @johnclerk1195 5 месяцев назад

    Thank you for the post. My father had essential tremor, and quite a few of my father's side of the family have it too. The last years of his life he couldn't even sign his own name, or try to drink enjoy is coffee. The harder he tried to hold anything, the more pronounced his tremor. Much to his relief, having a beer lessened ET. He died of prostate cancer when he was 90. What you describe of the symptoms were exact symptoms he had. My 2 older sisters have it, but I don't.

    • @pattykauth2431
      @pattykauth2431 3 месяца назад

      That's because he had difficulty writing!

  • @stephaniesecher6725
    @stephaniesecher6725 Год назад

    Having been recently diagnosed with ET this video is very informative, thank you. Did you do the Zoom conference to talk about "None motor symptoms in ET"? If so, is it available to watch somewhere? Thank you again...

  • @davidosman657
    @davidosman657 Год назад

    Do you have a rerun of your June 26 virtual program ?
    Thank you for providing the program

  • @brendacollinsdeeks7268
    @brendacollinsdeeks7268 Месяц назад

    I wish I had found this in time to attend the virtual conference. I hope I can find the recording of the co Terence so I can replay it.

  • @TheBinaryWolf
    @TheBinaryWolf Год назад

    Refreshing to see a practitioner with a global view of the condition. Most--almost all--physicians focus solely on the symptomatology and not the etiology; and if you treat just the symptom and not the cause, the best for what you can hope is management and not remedy. The condition is challenging, for even minor compression on the spinal cord or excessive use of a computer mouse can generate or exacerbate ET. Indeed, the therapist must also be a detective to sleuth factors contributing to the condition.

  • @ladyg0726
    @ladyg0726 4 месяца назад

    I appreciate you. I'm undiagnosed. My legs and voice, eyes are all affected. I don't have Parkinson's. All tests are negative. I have action tremors of legs, hands. Having no diagnosis is most exasperating 😢

  • @antoniovalenzuela8379
    @antoniovalenzuela8379 Год назад +5

    I've Had Tremors since I was a teenager, I remember I first noticed it on my fingers than it went to my whole hand. eventually I felt it on my foot as well, This was all before my senior year was over.
    I was in school sports and music programs, I really enjoyed music and sports. As soon as I graduated I went to college and started drinking to make my tremors not present while I was in class taking notes. I noticed I was drinking everyday on campus and I just quit college cause I though It would just be a waste of time. After that I realized that my life would be different than others forever.
    I started working construction because it fit around my issue better at the time, I could also drink around my work friends (after work hours). Eventually I started a business of my own in construction but every time I have to go meet with a new client it gives me anxiety to think that I have to be in front of them while my body shakes. I started drinking before meeting to ease the tremors and it did help but that means that I have to drink Every time I have to go on a meeting? Yes My drinking habit has been built up around my tremors. I am 37 now and Have serious problems because of this, They just divorced me because my Ex thinks I'm just an alcoholic, I have a 3 year old daughter. I have yet to see how the rest of my life is going to unfold from this point on.
    As I think back of why I have this tremors, I remember that I played with mercury. I would grab mercury place it on my hands thinking its was cool, as my dad was a dentist and had it at reach.
    I have yet to try to detoxify my body from heavy metals to see what happens.
    This disease has taken control over me more than I thought and I'm working to see if I can live a better life or if this is it.
    I dont think anyone wants to use alcohol as resource, You can also become an alcoholic and have more problems down the road such as liver problems.
    Just thought of sharing my life story because I know this is a hard condition to have.
    Thank You for listening.

  • @brownco41
    @brownco41 4 года назад +2

    Great explanation I would like to join your zoon virtual conference

  • @chuckmaddison2924
    @chuckmaddison2924 Год назад

    Mine goes bad trying to solder on circuit boards, so I've pretty much given up on that. This week I went through 4 forms before I could fill it out and sign my name.
    My sister told me about alcohol so later today I'm going experiment and see what happens when I feel light. All in the name of science.. I have been on asthma medication for about 20 years. I miss electronic work. Tremor is fairly common in the family.

  • @PalmettoMoon
    @PalmettoMoon 4 года назад +7

    I'm glad you cover issues with ET. I have ET and it's not covered enough. I'm 47 and have had it most of my life but as normal it's gotten worse the older I get. I wish more was known about it. My nuero wants my to have dbs surgery but I want to cover all bases before I even consider it. You cover way more than my Neuro covers. I do drink occasionally and you are so correct on the rebound. The rebound tremors are terrible. My Neuro has never covered this with me. I would love to be part of the zoom meeting. I don't have anyone to connect with that has tremors.

    • @tylerpool5464
      @tylerpool5464 4 года назад +3

      I'd be willing to chat if you're up for it . I'm 24 years old and have had this for 4 years now

    • @PalmettoMoon
      @PalmettoMoon 4 года назад +2

      @@tylerpool5464 Nice! It's good to meet someone with the same condition. Have you had it all of your life?

    • @tylerpool5464
      @tylerpool5464 4 года назад +1

      @@PalmettoMoon nice to meet you to! No I have not , I developed mine when I was 20. How about you?

    • @PalmettoMoon
      @PalmettoMoon 4 года назад +1

      @@tylerpool5464 I've had it all of my life but with ET, the older you get the worse it gets. It's impossible for me to do most things that require intricate detail such as soldering or even just using a drill to take something apart or such. In my state (TN) ET is not considered a disability. I've also heard and read that it's very hard to get in about any state. How bad does yours effect your every day life?

    • @tylerpool5464
      @tylerpool5464 4 года назад +2

      @@PalmettoMoon my tremors just started really effecting my life in the past year. a year ago I went through a stressful 3 month period and now I shake a bit all over, head to toe. I do take propranolol 60mg ET daily. It pretty much stops my tremors but doesn't do much for my hand tremors. I'd like to not take anything but I'm pretty much past that point now, I'll be honest with you I do worry about getting older now, I'm already pretty effected at 24 and idk about you but mine started off so mild, compared to 4 years ago it's an extremely noticeable difference. My left hand is the worst, I've also got it in my voice. Do you take anything?

  • @DSTADAV
    @DSTADAV Год назад

    Thank you. Husband (68) has had ET for decades, getting worse all the time.Uses mysoline (since propanolol dropped BP too much). The tremor is bothersome and embarrassing.
    His mom and our daughter also have it. He is also type 1 diabetic. Is there a higher incidence of ET with T1D?).
    Anyway, thank you for your expertise. Will be watching more of your lectures.

  • @GregSr
    @GregSr Год назад +2

    Dr. Sullivan? That has a nice ring to it.
    Thank-you for focusing on this issue. I'm 69 years old. My ET kicked in about 5 years ago. I had no idea that there is an explanation for my left hand trembling whenever I am trying to use a pen. For me, there is some irony. 1) Only my left hand is afflicted and I happen to be left handed. 2) Alcohol supposedly gives temporary relief and I can't stand even the smell of alcohol. As a diabetic, I had assumed that the tremors and glucose were somehow related. Compared to many, my ET is very minor. Although, I'm assuming it will gradually get worse as I get older.

    • @Gelovan682
      @Gelovan682 Год назад +2

      Switch to writing with your other hand at first you think that’s going to be difficult, but I can print beautifully with my right hand and I was a lefty. All my life did a lot of writing as a lawyer and now I just print with my right hand and get my pretty good.

  • @dorisniss2105
    @dorisniss2105 3 года назад +2

    did u mention ultrasound treatment? i like to know more about it. please

  • @karenhiller9189
    @karenhiller9189 Год назад

    Is that zoom conference in the past? If so is it available as a recording?

  • @inthekitchenwithbubby7724
    @inthekitchenwithbubby7724 3 года назад +6

    I have had ET since I was a teenager. I agree with other comments that it’s great to find factual information. Oct 20th I will have DBS surgery.

    • @iowabettyg
      @iowabettyg 3 года назад

      have you ever been tested for tick-borne diseases: lyme disease or any of other diseases TICKS carry? usa has 20 different types.
      have you ever had an EMBEDDED TICK WITH BLOOD IN IT or a BULLS-EYE RASH?
      yes, please read my detailed, lengthy note above.
      best wishes to you for quality of life.
      betty gordon, ames, iowa

    • @adamfrazier9429
      @adamfrazier9429 2 года назад +1

      Did the surgery help?

    • @inthekitchenwithbubby7724
      @inthekitchenwithbubby7724 2 года назад +2

      YES IT HELPED A LOT! SO MUCH SO I HAD THE OTHER SIDE DONE IN MAY. A FEW ISSUES TO RESOLVE BUT OVERALL VERY HAPPY I “WENT FOR IT”!

    • @adamfrazier9429
      @adamfrazier9429 2 года назад

      @@inthekitchenwithbubby7724 Nice! I'm glad it worked for you. This is the first I'm hearing of this DBS surgery.

    • @henrytorres9855
      @henrytorres9855 Год назад

      I know its been a year, how have you been feeling since then? I've been talking with my doctor as I had just noticed small tremors in my hand about 3 weeks ago. He says it could most likely be ET, but not a concrete diagnosis. I haven't been more scared in my life and if DBS surgery works for ET then I will feel a lot better for my future.

  • @carolwatts944
    @carolwatts944 Год назад +1

    I’m sorry I missed your June workshop (Oct now). Is it on RUclips now? Also -
    I smoke MUCH more marijuana than drink alcohol. (Have found in last couple yrs that alcohol tolerance is much lower than historically. ) My question is ET & marijuana combo. Am assuming that less information is available than the booze angle. Any thoughts on the subject would be appreciated. Thnx 😊

  • @Jonathan-hu3lk
    @Jonathan-hu3lk 2 года назад +3

    I’ve been diagnosed with ET. I’ve had it since the age of 15 and got the diagnosis at the age of 35. One doctor previously dismissed it as a twitch, but now I’ve been prescribed propranolol which seems to help. I do drink, but not a lot. My GP did ask if I’d ever noticed if having a drink helps and I’ve never noticed that it does. Now, when I find myself having a drink, I’m monitoring how it affects my ET. On a few occasions, I’ve had relatively bad tremors even after a drink or two. Although, I don’t tremor constantly and it’s also possible that alcohol may have helped on other occasions when I wasn’t experiencing any tremor. I guess it’s possible the relatively bad tremors could have been more severe if it wasn’t for the alcohol I’d consumed. But, still very difficult for me to determine if it helps me at all and I’m not prepared to start drinking everyday to find out. This was a very interesting video though and thanks for sharing.

    • @susanjones5592
      @susanjones5592 Год назад +1

      Thanks. Ver interesting information.

    • @Jonathan-hu3lk
      @Jonathan-hu3lk Год назад +1

      Since commenting on this a few months ago, I’ve noticed a vast improvement on my tremors. I was taking propranolol, but this seemed to interfere with my sleep. I saw a doctor who dismissed the idea that it was and if anything should help me sleep. But when I was on it, I noticed I was getting very little sleep. So, I ignored my doctor and I’ve now stopped using propranolol altogether, concentrating on getting better sleep. One sleep aid that I take most nights is a cup of cbd tea. Now I’ve no idea if this helps with tremors directly, but it certainly helps me sleep. And lack of sleep seems to make my tremors worse. My tremor is a head tremor and it’s very rare I get it these days, but in the past it has been quite severe

  • @olddirtbikerider
    @olddirtbikerider 3 месяца назад

    I am interested in your opinion of DEEP BRAIN STIMULATION and FOCUSED ULTRASOUND. Very enlightening video.

  • @douglassmith2460
    @douglassmith2460 4 месяца назад

    Hello, Thank you for making this information available. I have a quick question. I have a 40 year history with Migraine and I also have about a 10 year history with Diabetes. Is it possible or even likely that one of those could be the source of my ET. Thanks in advance.

  • @karensholts4937
    @karensholts4937 2 года назад +1

    Would this also be true in regards to chronic benzodiazepine use which also affect Gaba?

  • @johnhaugen8319
    @johnhaugen8319 3 года назад

    I may be interested in your virtual meeting

  • @wdnick
    @wdnick Месяц назад

    I'm 52 and have been living with ET since high school. At some point in my 20's my neurologist told me alcohol would help. Worst advise I ever got. Yes, alcohol made it better while I was drinking, but the tremors got worse over time so I drank more, and the next thing I knew I wasn't drinking just for the tremors. The tremors were so bad when I was not drinking that I could barely write and it was messy. No problem, couple of drinks later and I was steady as anyone, but the next morning they were back.
    I finally decided to quit drinking for good 5 years ago and after a few days I realized that my tremors are NOT NEARLY as bad as they were when I drank. Not at all. I now choose to just live with it and take a couple of drugs that help (I was on those all along anyway). I know that if I drink, the detox shakes will be much worse than they are normally and that vicious cycle could start again.
    DO NOT use alcohol to control your ET. It is a very slippery slope.

  • @davidosman657
    @davidosman657 Год назад +1

    Can you do a program on Deep Brain Stimulation - DBS vs Focused Ultrasound - FUS ?

  • @chuckmaddison2924
    @chuckmaddison2924 Год назад

    I'm back and after a large glass of Bailey's it held back the tremor and was able to solder a small joint with 3 components just touching. So yes alcohol does seem to work, but I feel crap and unable to function normally, apart from fine control.

  • @sartajsingh24
    @sartajsingh24 6 месяцев назад

    very helpful :)

  • @rlb3255
    @rlb3255 9 месяцев назад

    Has there been any discussion and / or research regarding the use of cannabis to treat ET?

  • @abrahamenav8026
    @abrahamenav8026 Год назад

    What is your opinion about electronic brain intervention at age 85, for severe lower jow tremors?

  • @michaelfuria4257
    @michaelfuria4257 2 года назад +1

    I have essential tremor in my arms and hands-being treated with meds. I also have an irregular essential tremor in my voice-had this for decades- docs told me there is nothing they can do-I have been trying to sing back-up harmony in the bands I have worked with-never worked out because of the vocal tremor-Is there any hope??

  • @terrywright3359
    @terrywright3359 Год назад

    My trimmers started at age 12. I'm 50 now and have learned to live with them but they have gotten worse over the years one or two shots of whiskey a month if I have something I really need to slow the trimmers for.

  • @cc34945
    @cc34945 Год назад +1

    I have MS and ET. The MS seems dormant. Tremor at 73 is progressing. There is information on this video I’ve never heard before. Our whole family has ET that seemed to start with paternal grandmother. Now we’re seeing it with my nephews in their 30’s. Where does MS end and ET start?

  • @agbobier2657
    @agbobier2657 Год назад

    I developed benign essential tremor after a high epideral.

  • @darlaramey5818
    @darlaramey5818 Год назад

    I just wonder if the dbs would help with my headaches too

  • @christopherskipp1525
    @christopherskipp1525 Год назад

    What is a neuropsychologist? Thank you.

  • @tinajenkins8410
    @tinajenkins8410 Год назад +2

    Those of you that have tremors, have you always had them? If not, at what age was onset? I'll be 54 in Nov, and have just recently started having tremors. I have not been diagnosed with diabetes, nor have insulin issues, but at first I thought maybe I was "shaking" because I was hungry. But, it isn't just my hands, and eating doesn't make it stop. My head/neck also tremors. It is jittery feeling, and it actually makes me nauseous. Seems to be worse in the mornings. I also wondered if it had anything to do with the damage in my neck, affecting my spinal cord, causing it. I have Syringomyelia. I'm trying to dodge so many surgeries right now (ankle, both knees, neck, back). Severe osteoarthritis. Just trying to figure it out.

    • @jacquedickson3981
      @jacquedickson3981 Год назад +1

      I am a nurse and developed ET around the age of 46 yr/old
      Went to neurologist lots of scans / MRI I was told they had no idea why or what has caused this. I experience hand and head tremors. Propranolol helps to control them but not completely It’s really embarrassing if someone doesn’t know me they think I can’t do my job. Just imagine getting your blood drawn from someone with ET. I have adapted to and adjusted the way I do things to accommodate ET . No family history of ET and not an alcoholic or drug addict. I also do not have any other diagnosis for diabetes, thyroid, etc

    • @tinajenkins8410
      @tinajenkins8410 Год назад

      @@jacquedickson3981 I know it is terrible. No drug or alcohol use here either.
      I take Bystolic, but not for this.

  • @drsuessl
    @drsuessl Год назад

    Thank you for sharing this information. The shaking started just after my my massive GI bleed (non alcohol related), medication related. Then liver cancer twice then liver transplant (8 years ago). Did my sick liver bring ET on?

  • @heididegrow4735
    @heididegrow4735 9 месяцев назад

    What about a natural Gaba supplement..I take them. Will they have rebound effect?

  • @kvzaruiz
    @kvzaruiz Год назад

    Hi Dr.
    I Have a friend that have ET and base on your knowledge…
    What can I do to help her to reduce those symptoms from my end so she can be relax and enjoy the time together?

  • @susanmatthewsscott799
    @susanmatthewsscott799 Год назад

    I am interested in what the research shows with ET and use of THC, CBD, and CBN…
    Positive and negative.

  • @evonne315
    @evonne315 Год назад

    Does this have a connection to body dysregulation ? I get that from CFS/ME (Long COVID), trauma and CPTSD. Its lessened since removing myself from trauma and stress but if triggered I will have this trauma release with tremors, cold sweats, ect and then need to sleep. Like for 15 hours at a time.

  • @kareemahmed7028
    @kareemahmed7028 Год назад

    Hello..Is there an alternative to Propranolol ..because I suffer from bronchiectasis and sputum discharge..and I use Propranolol to treat essential tremors