Thank you for posting this! I just had T2-L3 fused and it really helps seeing someone go through normal activities years after their fusion. It's very scary after the surgery because you want to move and get use to your new body but also don't want to damage your spine or hardware. Awesome to see that you can still touch your toes post op that is amazing!! Keep living your best life!
I love this!! You have such great posture. I definitely need to do some work. Doing my own pedicures has been so hard. I need to try your suggestions. Thank you
I had scoliosis surgery at age 18. I'm now 50 years old. I have Harrington Rods in the middle part of my back. I have constant lower and upper back pains. 😮 HELP!
Ive had 28 vertebrae fused 3 from rhe top and 2 at the bottom aren't fused I can't figure out how to do anything having a terrible experience but it was good to see you can't twist either its reassured me abit
I had 60 - 65 degree scoliosis. It involved almost all of my back bones. I can't bend over, I'm always straight as a pen cause I literally can't use my back it's forced to stay straight. I'm fairly tall, 6'1 / 188 cm.l, so it's troubling for me to not be able to bend. Every time I discuss this with my doctor he just rubs it off and I think he's being dishonest about it. I'm tired of having a straight back and I'm considering removing the plates and drills in my back. Is every scoliosis surgery like this?
I have 70-88 degree scoliosis and my surgery id tomorrow. This is my decision but I can’t help and think about all the things I can no longer do with my body. Im scared for my mobility limitations more than the actual surgery
@@alfianodamanik just so you know my spine had 2 different deflections. One 65 degree and one 40. Both in opposite directions and 3/4 of my back was involved. So the mobility experience might be different for you. Even if it's limiting, it's still better than the pain and you're gonna get a big height boost. I got 10 cm taller.
@@slimretro2659 Hey, so its been a month and a half after my surgery. I stopped all pain meds after 10-11 days. I now understand the struggle of not being able to bend down. It’s been a huge adaptation to have to squat down everytime. Right now my pros have outweighed my cons. Walking and standing don’t feel as tiring as they used to be. So I’m glad my experience is going well so far
I just checked on google on a website. It clearly stated that if you cannot after few months return to your normal activities... It means that your surgery failed
Interesting. But by the look of it, for you the pros outweighs the cons. May I know what symptoms did you experience due to your scoliosis? I have the condition as well.
I've lost a bit of feeling on my back after my spinal fusion (did mine in 2010, T3-L3), it's a patch around 10x15 cm (3.9x5.9 inches) for me! But the loss of feeling is only in the skin so you would still feel any pressure that is applied and I'd say that massages are just as great! The only way I would not feel anything at all there is if you'd stroke it super light with the nails only!
Hello I had 40 degree, I just had the surgery 6 months ago, thanks God I have no pain anymore, I had L2 -S1 decompressive laminectomy with T 10 S 1 fusion and right L 4 S 1 trasnlumbar interbody fusion. I had 2 rods and 18 screws. But I was my body still want to Leaning to my right even though my bone is straight. My physical therapist just help me to get stronger But they never give exercise for my posture. Do you have any suggestions thanks
Hi Ingrid, great to hear that you are doing well after your surgery! After my surgery I still had uneven shoulders but after a couple of years they became even without me doing anything. I would suggest not pushing yourself too hard, your body will straighten up eventually you just need to give it time. All the best for the future! Sarah
I second what judy ryu said are all completely true and are NOT exaggerated, but yet most surgeons do not properly inform the patient of this. After years of research in reliable peer reviewed sources like pubmed and jama journals, what I have found is for both old and new generation instrumentation, the complications are really that high and range somewhere between 15-49%(counting the long term post operative complications) for a single lifetime. Risk of adjacent segment disease are higher for those who have lumbar fusions that end at L3 or lower, and may be inevitable they fuse all the way to S1 at some point in the patient's lifetime. On the other hand, based on Weinstein's 50 yr natural history(before the invention of the harrington rod), most adult patients even those who had progressive curves do quite well even with curves over 80 degrees, and it is important to note that most of the thoracic curves stopped progressing at the 5th decade of life and the breathing difficulties(most doctors warn you about) were insignificantly worse than a control group of seniors without scoliosis at the end of the study. In a cohort of over 300 patients in the study, only 3% truly needed the surgery, as compared to most 5-10 yr cohorts follow up studies who had spinal fusion where up to 8-20% end up with a revision surgery at some point within 5-10 yrs, where the complication rates are likely to be even higher after due to increased patient age and difficulty addressing the revision surgery. On a lighter note, most of the most common complications are something that may be resolved with a revision surgery, but usually the clinical outcome is nowhere as good as the one from the index operation. Also since complication rates are 2-3x higher for older adults, you never know what OTHER kind of complication out of the blue you'd come down with, and some of these unfortunately may indeed be lifelong and much more serious. The average ODI/SRS scores(back pain and quality of life) of these fused patients are usually not stellar and much poorer than the average especially for adults. Which should indicate that this surgery does not truly prevent or inhibit pain. To sum it all up there really isn't any logical reason to have it done unless you are so cosmetically disturbed by your appearance or have significant pain that you are desperate enough to gamble on a surgery to change for the better or worse.
If I could only show you how I looked before the surgery. I’m definitely happy I had mine. I actually have a rod screwed down along my spine. The rod doesn’t bend silly😂
Thank you for posting this! I just had T2-L3 fused and it really helps seeing someone go through normal activities years after their fusion. It's very scary after the surgery because you want to move and get use to your new body but also don't want to damage your spine or hardware. Awesome to see that you can still touch your toes post op that is amazing!! Keep living your best life!
I love this!! You have such great posture. I definitely need to do some work. Doing my own pedicures has been so hard. I need to try your suggestions.
Thank you
Thats is so helpful thank you for making this video
I had scoliosis surgery at age 18. I'm now 50 years old. I have Harrington Rods in the middle part of my back. I have constant lower and upper back pains. 😮 HELP!
Ive had 28 vertebrae fused 3 from rhe top and 2 at the bottom aren't fused I can't figure out how to do anything having a terrible experience but it was good to see you can't twist either its reassured me abit
I had 60 - 65 degree scoliosis. It involved almost all of my back bones. I can't bend over, I'm always straight as a pen cause I literally can't use my back it's forced to stay straight. I'm fairly tall, 6'1 / 188 cm.l, so it's troubling for me to not be able to bend. Every time I discuss this with my doctor he just rubs it off and I think he's being dishonest about it. I'm tired of having a straight back and I'm considering removing the plates and drills in my back. Is every scoliosis surgery like this?
I have 70-88 degree scoliosis and my surgery id tomorrow. This is my decision but I can’t help and think about all the things I can no longer do with my body. Im scared for my mobility limitations more than the actual surgery
@@alfianodamanik just so you know my spine had 2 different deflections. One 65 degree and one 40. Both in opposite directions and 3/4 of my back was involved. So the mobility experience might be different for you. Even if it's limiting, it's still better than the pain and you're gonna get a big height boost. I got 10 cm taller.
@@alfianodamanik definitely give me an update after your surgery. Good luck alfiano :)
@@slimretro2659 Hey, so its been a month and a half after my surgery. I stopped all pain meds after 10-11 days. I now understand the struggle of not being able to bend down. It’s been a huge adaptation to have to squat down everytime. Right now my pros have outweighed my cons. Walking and standing don’t feel as tiring as they used to be. So I’m glad my experience is going well so far
I just checked on google on a website. It clearly stated that if you cannot after few months return to your normal activities... It means that your surgery failed
Interesting. But by the look of it, for you the pros outweighs the cons. May I know what symptoms did you experience due to your scoliosis? I have the condition as well.
How tall are you?
Thanks for sharing👍
Thank you! Hope you found the video useful!☺️
Hi, can you tell which vertebrae got fused in your spine?
I’ve heard stories about some people lose the feeling in the back. They are not able to get massages. Did you experience any of this ?
I've lost a bit of feeling on my back after my spinal fusion (did mine in 2010, T3-L3), it's a patch around 10x15 cm (3.9x5.9 inches) for me! But the loss of feeling is only in the skin so you would still feel any pressure that is applied and I'd say that massages are just as great! The only way I would not feel anything at all there is if you'd stroke it super light with the nails only!
Yes it goes away
Stiffness occurred in my back. Why it happens? How it cure? Pls help
When I can do those exercises
Hello I had 40 degree, I just had the surgery 6 months ago, thanks God I have no pain anymore, I had L2 -S1 decompressive laminectomy with T 10 S 1 fusion and right L 4 S 1 trasnlumbar interbody fusion.
I had 2 rods and 18 screws.
But I was my body still want to Leaning to my right even though my bone is straight. My physical therapist just help me to get stronger
But they never give exercise for my posture. Do you have any suggestions thanks
Hi Ingrid, great to hear that you are doing well after your surgery! After my surgery I still had uneven shoulders but after a couple of years they became even without me doing anything. I would suggest not pushing yourself too hard, your body will straighten up eventually you just need to give it time. All the best for the future! Sarah
U look amazing
Aw Thank you!!
Did fuse in lumber area?
I believe I was fused to L2 so not the whole lumbar area. My X-rays are shown in my latest ‘My scoliosis story’ video. Sarah
@@sarahlouise4066 can you show a photo of your scar so I can tell how much was done please
Any complications after surgery
Even I have 40 degree curve
Personally I haven’t had any complications after surgery but you should talk to your surgeon about what they think is right for you! Xx
judy ryu - why so
I second what judy ryu said are all completely true and are NOT exaggerated, but yet most surgeons do not properly inform the patient of this. After years of research in reliable peer reviewed sources like pubmed and jama journals, what I have found is for both old and new generation instrumentation, the complications are really that high and range somewhere between 15-49%(counting the long term post operative complications) for a single lifetime. Risk of adjacent segment disease are higher for those who have lumbar fusions that end at L3 or lower, and may be inevitable they fuse all the way to S1 at some point in the patient's lifetime.
On the other hand, based on Weinstein's 50 yr natural history(before the invention of the harrington rod), most adult patients even those who had progressive curves do quite well even with curves over 80 degrees, and it is important to note that most of the thoracic curves stopped progressing at the 5th decade of life and the breathing difficulties(most doctors warn you about) were insignificantly worse than a control group of seniors without scoliosis at the end of the study. In a cohort of over 300 patients in the study, only 3% truly needed the surgery, as compared to most 5-10 yr cohorts follow up studies who had spinal fusion where up to 8-20% end up with a revision surgery at some point within 5-10 yrs, where the complication rates are likely to be even higher after due to increased patient age and difficulty addressing the revision surgery.
On a lighter note, most of the most common complications are something that may be resolved with a revision surgery, but usually the clinical outcome is nowhere as good as the one from the index operation. Also since complication rates are 2-3x higher for older adults, you never know what OTHER kind of complication out of the blue you'd come down with, and some of these unfortunately may indeed be lifelong and much more serious.
The average ODI/SRS scores(back pain and quality of life) of these fused patients are usually not stellar and much poorer than the average especially for adults. Which should indicate that this surgery does not truly prevent or inhibit pain. To sum it all up there really isn't any logical reason to have it done unless you are so cosmetically disturbed by your appearance or have significant pain that you are desperate enough to gamble on a surgery to change for the better or worse.
So youre telling me after scoliosis surgery you cant move anymorelike a regular person? No thanks 😂
If I could only show you how I looked before the surgery. I’m definitely happy I had mine. I actually have a rod screwed down along my spine. The rod doesn’t bend silly😂