My Endometriosis Symptoms | Oversharing!
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- Опубликовано: 19 янв 2021
- I'm not holding back in this video - it's another lot of TMI to do with my endo journey!
I've spoken before about generic endo symptoms, but this is more my own personal experience, and the things I notice which I either know, or suspect, are endometriosis related.
Women's health just ain't being taken seriously is it? And as I explain in this video, I had sooooo many doctors being less than sympathetic. I always say, you know your body better than anyone, and you deserve to get the right answers and help. If you're a fellow gal with heavy periods/fatigue/sickness/infections/pain etc - I feel you.
Thank you so much for watching! Subscribe to my channel to support your girl and follow this journey! It means so much.
Lots of love x x x
Instaaa / miranda.burns
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endometriosis-uk.org/
Medical gaslighting is real! Lived through that ordeal for 8 years. Money, tears and basically all my 20's were wasted because of that. I FEEL YOU GIRL
I know you said not to comment about it but the blood clots are too real! Every month they shock me every time! Not just you girl ❤️
Brain Fog is sooo inconvenient and frustrating! So many times where I've had to have people repeat what they said to me. And recently, I've been looking for things and tou d them like a while later in the first place I actually looked for them. Tiredness is a big issue for me too but had issues with my iron levels for years.
I've been looking for answers along with my doctors. I am waiting on an ultrasound Feb 5th.
Pelvic pain, groin pain in lower left abdominal area, heavy periods, changes in bowel movements and always feeling extremely bloated. I'm tired and have aches and pains in areas I never have.
I appreciate everyone sharing their health journey online.
Once you find out what's wrong please share, I have the same symptoms
@louisepeens7006 I did find out I had an internal ultrasound at my OBGYN office. I have a golf ball sized cyst on an ovary. Funny enough it's on the opposite side that I've felt this pain on. My gyno said this is normal because of how the ovaries are linked together internally. We are going to watch the size and she told me what the symptoms are of it rupturing just in case it does I can go to the ER right away. I have another appt in April to check the size of it and see if we need to do surgery if it got bigger etc.
I hope you find answers soon.
I did have an ultrasound myself, but the doctor couldn't see anything, did an ultrasound from my groin area all the way to my ribcage, and she saw nothing, told me it might be obstruction in my intestines.... Which she's was obviously not able to see, starting to think I've got "ghostpains" from previous cysts that I had....
So it could be endometriose or IBS, both can be helped by a dietary and lifestyle change...
@@louisepeens7006 I'm glad you were able to get a scan to at least put your mind at ease about some of the potential causes.
Can completely resonate with so much of this. Thank you for being so open x
Girl I was told I might have but now after hearing your story I am almost 1000 percent positive . But I am always just brushed off . Like I’m crazy
You’re hilarious and I really appreciate your commentary, accent and applied humor. I’m in so much pain and your so relatable. I’m also always exhausted 😩😩.. like I could sleep all day.
Thank you for sharing this. You are the only person I’ve seen with similar symptoms as myself.
Thank you for sharing! Especially regarding fatigue and transvaginal ultrasound!
I get so tired! And I too always get colds more easily. Thought it was cos I have sensitive sinuses as I was born with a cleft lip & palate, and that whole area is sensitive. Maybe it's a mixture of both the fatigue and that 🤔 Also easily caught things on my actual period. Not diagnosed yet obviously, but so much of what you mention is so relatable 💖
Yes I get blood clots and pushing them through is like a volcano eruption 🙈, never knew that being sick a lot is a sign of Endometriosis, I do know how u feel about gp not listening to u but I have to say since going to the local nurse in the same doctors office I found way better was listened to.Spatone are natural iron supplement it’s liquid in sachets I get them instead of floradix it’s so good honestly more energy I found.😊
Hot water and chopped ginger reslly does help with that sick feeling. And the brain fog!!!!! THE BRAIN FOG!!!!!!!!!! OMG! I was holding a red pepper... for the life of me I couldn't come up with the word! I was all "babe, I'm adding... um...going to add this to the sauce. What ls this called!?... PEPPER!!!!" like a babbling idiot.
Right right. Let me just try not thinking about this debilitating pain 🙌
This whole video is so relatable, thank you for sharing!
Doctors are so dismissive!!!! I went to a pelvic pain specialist and she was so inconsiderate of my feelings and told me basically; listen you can tell people you have endo but there’s nothing we can do you’re already on birth control. And then told me I needed to do physical therapy.... because all my pain and bleeding and endless other symptoms will go away if I just do PT 🙃
I experienced something VERY similar a year ago! Went to an advanced urgent care & was sent out for an ultrasound, a week later had the transvaginal ultrasound (which was practically torture, but they did find a SMALL/functional ovarian cyst), went back to the same urgent care 9mo later because I was STILL in pain and missing so much work (the cyst burst about 4mo earlier), and then I finally caved-in & went to an OBGYN that was recommended to me by a client/friend but I didn't see the same Dr. that she told me to see (the head Dr/OBGYN & practice owner)... I was put with the "pelvic pain specialist". My ultrasound was a regular on the belly one (mildly uncomfortable but pain started to flare about 5min afterwards) and it was negative for any cysts or other abnormalities... so after a pelvic exam this "pelvic pain specialist" OBGYN immediately said for me to be put on BC, or go to pelvic floor physical therapy, or even take Lyrica. Walked out of there feeling unheard because I even brought a list of my symptoms, their onset & frequency, and how they are currently... all she did was glance down at it while telling me my options... and I had 3 pages typed out! So after that visit and being dismissed/gaslit I've just been dealing with the pain (which has decreased greatly overall), but for the past few weeks I've been in a little pain and actually called out of work today because it's worse & almost as bad as it had been a year ago.
@@nicolepatten299 that is so horrible I am so sorry you’ve had to go through that! I truly hope you find a good doctor that will help you find accurate solutions to your problems, and not just dismiss you!!
Hi! Thank you so much for this video! And you have just described my life!!! Like I can check EVERY SINGLE ONE of your symptoms. I thought thats just normal. but appearantly its not...
So glad to I'm not the only one with the tiredness 😩 and the colds. 💯 it sucks so bad.
Hey so NLP technique to get more energy when needed Is to imagine a time when u was most energetic, imagine for a couple seconds or minutes then once done ask yourself your name n what u had for breakfast, (Neuro Lingistic programming) hope it helps, or couple seconds intense jumping (depending on pain levels) should give u adrenaline or lately I've been doing mild magic spells to survive
My college professor told me I needed to file for disabilities if I wanted to continue going to my doctors appointments for Endo without being penalized. Is that a valid thing to do?
You should go to the doctor for ongoing colds. It could be something else or a deficiency. I had long lasting colds, I had a vitamin D deficiency which can cause other issues.
I have the brain fog, nausea and vaginal examinations at my gyno makes me cry. I bleed after and the pain lingers.
I am meeting the GP next week and going to try and get them to test me for this and other things. I pray I will be able to be strong enough to plead my case, and not let them keep sweeping me under the bush
I have a question, the example of the tampon on your way to drama class, did you wear only tampons or did you wear tampon and a pad at the same time?
I have all of these symptoms but instead of every period like it use to be I just havnt stopped bleeding for 11 months straight now I had laprascopic exam but apparently no endometriosis so I'm left just Tryna figure it out on my own 💁
Please let us know what happens if you find a good doctor!! I have these issues as well and have tried a laprascopic surgery felt the pain worse two months later now it’s been years!
I’ll never forget when I left my room in the morning and then it was like a Carrie scene even with a pad there
Guys why do we get so tired? Why does it happen?
I do waitressing and literally i cant do any more hours than 4 im constantly lifting my job is so hands on its so painful...my manager is a knob doesn't give two shits..i nearly died from etopic and they weren't arsed then upsets me so much
Isn’t it sad employers are not aware of this terrible disease
That medication was mefanamic acid btw
How do you know the pain is severe enough for endometriosis.
My blood clots were ver big and dark and ver present
I haven't been diagnosed with endo, although I suspect I may have it, but I was diagnosed with pcos (finally). The first physician I went to listened to the alarming and abnormal things my body was doing, than shrugged and told 16 year old me "women's bodies are complicated." That was it😂 if I'd gone on with the symptoms I was having I think I would've been at high risk for endometrial cancer later in life. The philosophy that the female body is just some sort of unknowable mystery has caused so much suffering and I'm not going to shut up until we stop being dismissed.
Why haven’t women just demystified their bodies?Done.
My whole period is just massive clots now, it's mad!!!
I have stage 4 endo btw, I've already checked 😂😂 I've been diagnosed with chronic fatigue syndrome too btw, I am TIRED. BUT I also have Lyme disease and ADHD so ya know, one lucky gal 😂🥰🥰
I got told I’m to young to have problems by my doctors.
I wonder how you all get heavy periods with endo whereas mine is very scanty
Yes hardly anything at all now with the Kyleena nothing at all but the pain is everyday now
Does anyone also have ovulation pain?
Yes every month and quite painful
Too x
Yes ! N bad body ache along with it.
Yes! I can’t walk .
Yes it’s AWFUL!
Honestly, not to scare anyone but I recently had this. Long story short there was an 8.5cm cyst in my ovary which had to be removed via laparoscopy.
I have endo and wrk in a meat facility doing physically demanding wrk in scorching temps. But unlike you, if I'm feeling miserable I don't have to pretend I'm happy. I don't know how you do it.
Endometriosis is very intently painful)
All is me 😂 💕
Sickness friends yayyy🗣️😂💕